Re: Still keeping up the fight

[Guest guest]

I would recommend you post what supplements etc.... you are giving your son.

Hard to way what would improve without knowing exactly what you are giving him.

Could be a major factor!

Probiotics?

Digestive enzymes?

List of supplements?

Yeast protocol?

Only three rounds and worse, yeast protocol?

Tammy

[ ] Still keeping up the fight

I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

[Guest guest]

You are not alone. You will find a way.

Good thing you are working with AC so early on. We wasted so many years on

other things.

AC chelation is working. I think it took 6 or 7 rounds before I saw real

progress, and we have a LONG way to go. I think you should keep going with AC

chelation. Deb

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

[Guest guest]

Good idea! This is what he takes on a daily basis.

His enzymes are Houston Tri Enza(taken with every meal and snack).

Morning:

Liothyronine 2.5 mcg for his thyroid

Krill oil 1000mg

CoQ10 50mg

Kirkman buffered C powder 1100mg

Chelates zinc 10mg

Biotin 10mg

GSE liquid concentrate 10 drops

Emulsified A 25,000iu's

Emulsified D 2,000iu's

Emulsified K 500mcg

Kartner Health Vitamins/minerals(half the daily dose)

Lithium 5mg

Taurine 500mg

5 Drops of Liver Life

ACE 50 mg

L-Carnitine 500mg

Magnesium Complex (citrate/oxide) 200mg

Dry Vit E 400iu's

Colostrum High-IG

5-MTHF (folate) 1,000mcg

Cedar Bear parasite cleanse 1/4 tsp

Vit B6 50mg

B complex 1/3 cap

Afternoon:

Liquid Cal and Magnesium with D3

Liothyronine 2.5mcg

TMG 500mg

Cedar Bear Parasite cleanse

Colostrum High IG 960mg

Taurine 500mg

Biotin 10mg

GSE 10 drops

Nite Time:

B12 shot 25mg (every other nite)

Del-Immune V (25mg Lactobacillus rhamnosus lysed powder)

Zinc 10 mg

Colostrum High IG 960mg

Magnesium Complex (citrate/oxide) 200mg

Biotin 10mg

Taurine 500mg

Liothyronine 2.5mcg

Kartner Vit/Minerals 1/2 daily dose

L-Carnitine 500mg

5 drops Liver Life

Buffered Vit C 110mg

Klaire Labs Ther Biotic 3 caps

Culturelle (dairy and GF) 3 caps

DMPS 5mg (every 6-8hrs every other week)

Wow, that's alot of stuff for such a little guy!!! Please give me any thoughts

on what I am doing.

Sent from my iPhone

On Feb 5, 2011, at 2:42 PM, " Tammy Kuhn " <tkuhn1@...> wrote:

> I would recommend you post what supplements etc.... you are giving your son.

Hard to way what would improve without knowing exactly what you are giving him.

Could be a major factor!

>

> Probiotics?

> Digestive enzymes?

> List of supplements?

> Yeast protocol?

>

> Only three rounds and worse, yeast protocol?

>

> Tammy

>

> [ ] Still keeping up the fight

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

>

[Guest guest]

You did not say whether your child is one who gets sick all the time or

never gets sick. Mine was one who got sick all the time.

I found a study that showed children with autism improved after being

treated IM with Vancomycin. When my son came down with a bad case of

pneumonia, he was given Rocephan IM (similar to Vancomycin) for two days IM

and then followed up with oral Omnicef. the difference in him by the fourth

day was unbelievable.

You might consider Vancomycin if you can get a doctor on board with it.

These children are all different, and it is a puzzle. As far as AC

chelation goes, have you joined the Recovery From autism group? They have a

wealth of knowledge regarding AC Protocol.

Many parents do not report improvement until round ten. I know how hard it

can be --especially with the tough behavior (my son once tried to choke me).

Some report a great deal of improvement with body Ecology Diet. I wish

there were words to ease your frustration. I would ask to join the RFA

gorup and consult with the moderators there.

We went through some very tough times here. There were a lot of daily

tears. We just kept trying things until we found what worked. Our son is

much improved and has good behavior now. I used to not be able to go

anywhere. I hope you can hang in there.

I prayed A LOT, too.

[Guest guest]

You are definitely not alone, it is a long and hard battle and it is the most

heartbreaking thing I personally have ever had to endure. My son is 4.5 and we

also tried everything and have been doing biomed for 2 years with some

improvements (Mb12 injections helped language and antivirals helped immune

system for us). We just started AC chelation and are on R6 and are seeing so far

the best improvements out of everything we've tried. Rounds 1-4 were pretty

rocky for us - he started peeing and pooping on the floor and his bed after

having been potty trained for a year and a half. It was so frustrating and we

almost stopped. This weekend we are doing R6 and the potty issues have stopped

and he is doing so much better and has better spontaneous language, less

repeating sentences over and over (dramatically less - this used to drive us

INSANE), he's seeking us out to play with him more and his attention and

auditory processing are remarkably better. We tried both DMPS and DMSA and for

us he seemed to have done better on the DMSA.

Hang in there! We wasted 2 years trying everything under the sun b/c we were

afraid to chelate. Now I regret not starting sooner. Your son is still young and

you still have time to help heal him and try new things.

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

[Guest guest]

Just wanted to give you a little encouragement. Although our dd was one of the

lucky ones - we never had full blown autism but rather developmental delay and

more recently an adrenal disorder. We are still chelating. We started

transdermal when she was around 5. We moved on to oral a couple of years later.

She's ten now with some learning issues; hormones are balanced. It's been a

long road but diet and chelation continue to be key. Key supplements for the

gut - Natren probiotics, starting with Life Start. She's now on Bifido Factor.

ProEN2 by Interplexus for yeast, etc. Extra Magnesium citrate by Pure

Encapsulations (you want to stay away from extra fillers) when she gets

constipated. She's also gluten free. Our dd is now a happy, well adjusted 10

year old with many plans for the future. When she was first diagnosed at age 4

I would never have dreamed she'd be where she is now.

Health and healing are possible.

Take care, Olivia

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

[Guest guest]

Don't forget to be educating/training for all that you can get from as much,

(Doing ABA/Applied Behavior Analysis in particular, that *has* been proven to be

helpful if not connecting with the more difficult subjects/cases/people) that

that isn't about communication in fostering and developing the greater

communication and connection and control, that you should find works best in

dealing with serving the needs of our selves, including our individual

children... and dealing with the frustration and sensory issues (of the

bio-logical/bio-medical, where the bio-logical/bio-medical would work so well,

should work in tandem with, as for, such feedback/give-and-take from and with

your child, Hello) that would be very difficult to properly ascertain and

address/achieve otherwise... (of it all helps with the analysis that depends on

as much?!.) that that doesn't give us what we need in taking us where we want

(and have) to go for everything we can be and are looking for, (of such justness

if not justness itself) but I feel it does

True, many people classified as ABAers/teachers/trainers can't put as much

together on the matter, (in their being part of the problem?) what they are

actually about? Consider their source/s if not motivation, along with yours? ..

..

Your child might feel ignored or abused otherwise

Consider that a prayer going out for you. No, don't forget prayer, where you are

prepared to try so much with respect to communication and all that you be trying

so reasonably to achieve.

Mike

I ABA

ABA for Understanding more

Education/training provides what communication is necessary and possible

(including available) for the bio-medical and everything else so meaningful,

that we are trying to achieve with as much is my sense of it, if not it being

the essence of communication and the justness of as much, itself. It at least

would provide (better provide) the love and understanding you have for your

child's needs, (from trying to make such a connection) that anything and

everything else would be so meaningful, I Figure.

VOU/Visionary of Understandingmore

Aim High/er. Communicate further and wider for all you can achieve by as much

starting with who and/or what you want to help in that respect but encompassing

as much as you can in that respect

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

[Guest guest]

Don't forget to be educating/training for all that you can get from as much,

(Doing ABA/Applied Behavior Analysis in particular, that *has* been proven to be

helpful if not connecting with the more difficult subjects/cases/people) that

that isn't about communication in fostering and developing the greater

communication and connection and control, that you should find works best in

dealing with serving the needs of our selves, including our individual

children... and dealing with the frustration and sensory issues (of the

bio-logical/bio-medical, where the bio-logical/bio-medical would work so well,

should work in tandem with, as for, such feedback/give-and-take from and with

your child, Hello) that would be very difficult to properly ascertain and

address/achieve otherwise... (of it all helps with the analysis that depends on

as much?!.) that that doesn't give us what we need in taking us where we want

(and have) to go for everything we can be and are looking for, (of such justness

if not justness itself) but I feel it does

True, many people classified as ABAers/teachers/trainers can't put as much

together on the matter, (in their being part of the problem?) what they are

actually about? Consider their source/s if not motivation, along with yours? ..

..

Your child might feel ignored or abused otherwise

Consider that a prayer going out for you. No, don't forget prayer, where you are

prepared to try so much with respect to communication and all that you would be

trying so reasonably to achieve.

Mike

I ABA

ABA for Understanding more

Education/training provides what communication is necessary and possible

(including available) for the bio-medical and everything else so meaningful, (to

work, so well) that we are trying to achieve with as by as much is my sense of

it, if not it being the essence of communication and the justness of as much. It

at least would provide (better provide) the love and understanding you have for

your child's needs, (from trying to make such a connection, in teaching as much)

that anything and everything else would be so meaningful. (I Figure)

VOU/Visionary of Understandingmore

Aim High/er. Communicate further and wider for all you can achieve by as much

starting with who and/or what you want to help in that respect... but

encompassing as much as you can in that respect

>

> I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> my son without any real gains in his condition. I continue to give him all his

supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

>

[Guest guest]

My first instinct is that you are giving too much. Of course some people will

not agree. Here is the deal, his kidneys and liver are probably already

stressed, so sometimes the healing process can take place with LESS supplements

rather than more (my opinion). Try to go food based:

1. aloe juice (or just inside of aloe leaf) in smoothie with pear juice, banana,

and ice. Aloe has good antiparasite properties and was an excellent gut healer

for my son.

2. magnesium, magnesium, magnesium (epsom salt baths, mag chloride, mag citrate,

with taurine for better absorption) Don't give up the magnesium, ever.

3. Keep the Vit C and Zinc

4. Raw honey for antibacterial properties (incentive after taking supplements?)

5. Kombucha tea, sauerkraut, coconut kefir, other cultured vegetables for

probiotics.

6. NO MSG or any forms of it. This is really important, avoid natural flavors,

yeast extract, " spices " , etc. and make sure everything he eats is something

grown from the ground. No hydrogenated oils, no canola .... just olive,

safflower, sunflower, grapeseed, or coconut oil.

7. The krill oil is probably fine, but you might want to add flaxseed oil as

well for extra Omega 3.

There is a chance that he may be reacting to one of the multivitamin supplements

or the parasite supplement. Pay attention to the yellow colored ones (COQ10,

Vit B complex or multi), some of our children can't tolerate those. I would not

give the GSE either, but opt for something more mild because of his temperament

- candex, candidaise? Do you have activated charcoal on hand? I would have

that in case he has a reaction to food or supplements. As you get further along

in recovery, the bad reactions are more apparent - the constantly mad, screaming

child turns to the occasionally mad, screaming child and then you have a tool.

Did NP have you do an ALCAT food sensitivity test? We really liked that

test. Your child may be sensitive to coconut because it was used in one of the

more recent vaccinations, this is something that has been uncovered among some

moms whose children are a bit younger than mine.

Liz

>

> > I would recommend you post what supplements etc.... you are giving your son.

Hard to way what would improve without knowing exactly what you are giving him.

Could be a major factor!

> >

> > Probiotics?

> > Digestive enzymes?

> > List of supplements?

> > Yeast protocol?

> >

> > Only three rounds and worse, yeast protocol?

> >

> > Tammy

> >

> > [ ] Still keeping up the fight

> >

> > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > my son without any real gains in his condition. I continue to give him all

his supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> >

> >

[Guest guest]

I could agree to that. (Don't go extreme?!.) Also, to the same effect perhaps,

reintroduce things not so much in the same format, but more to what you have

established *works,* (go with what works?!.) slowly, and pay attention to what

happens in that respect of what you should keep and eliminate, which

necessitates doing things one at a time given a long enough time allowance to

allow for as much. You could also work backwards from where you are until you

get back to where things were working better if that was ever the case?

Introduce/reintroduce things as intelligently as you can is all I'm saying. (Of

the scientific-method! and ABC, antecedent, behavior, consequential logic) Don't

stick with a losing program or approach, or game.. . But you knew that, right?!.

Sometimes we need to be reminded of as much I Figure (Cut your less reasonable

workload and/or prioritize for as much as you need? of prioritizing to

understanding [your Feeling/s, of as much] and the justness of as much, Hello.

I would keep in mind that supplements are mostly just that and/or should be

treated so, (until proven otherwise as in your situation?) supplementary to a

more natural and healthy diet of real foods, etc. Supplements are not typically

recommend to replace real food, but to compensate for abnormal developments you

wish to deal with of bringing things back to normal by as much, of your

experience of your experimentation (research, if not the primary research) to

that effect, where you are so calculating if not analytical, and if not, why

not? .. .

I'd be leary about sticking with things that build a dependency on things not

especially normal or natural, especially where it is a dependency that has not

been well researched and established in the literature, or anywhere else, (for

anyone in particular, as with your research?) how risky that can be relative to

how slowly evolution and understandingmore (adaptation?) takes, (and the

communication for as much you might be trying to facilitate for as much? of such

control) of how complicated things can be over the long run.. (Don't we know

It?!.) Things are more likely to go wrong where you take things too far and fast

from the typical, (of Understanding?) or where you're at, I figure, in that

respect

Guinea pigs tend to have a poor prognosis otherwise, I find. Also be trying to

enjoy what you've got, where appreciation very often goes a long way in that

respect of getting more to appreciate.. .

Sure, criticize when you want to prosecute/treat, by as much, where so true, to

the primary facts? .. . I figure that's always a good first step in as much,

where it is actually the case, that I don't understand as much in making that my

thing (But I Feel I Do

Best wishes,

Glavic

Also if not especially dealing with sacred cows, including our language.. .

Ignoring me doesn't make *me* always go away, unless I Especially *want* to go

away (I'm not especially nice about people who try to censor me? no) which

usually involves going away to something I find is better (more reasonable, by

as much.. .) Sometimes, I stick around to help, even where I'm not appreciated,

that that might be what I figure the other needs to learn? .. . I figure we here

more or less appreciate me in that respect... of my being so *direct,* that that

really isn't what communication is really about, (and what is so needed, of our

Feeling so) but/as I Feel It Is.. My practice is based on as much, where you

might want more help for as much.. .

Here's more than hoping you get used to as much?!. as there is so reasonable to

as much

BWT

>

> I agree, that sounds and looks like an awful lot to be giving him. If you

> are not yet a member of the RFA group, ask to join. There are supplement

> files, and the moderators are very knowledgeable and can help. You need to

> go down your list and note why you are giving him each thing. It is

> important to know the purpose.

>

> We give the basics:

>

> multi vitamin/mineral

> C,D3, E,

> Zinc

> EFA (flax seed meal)

> enzymes

> Fish oil caps

> magnesium

> GSE

> ACE

> Epsom salt baths

> Probiotics

> Acetyl-L-Carnitine

> Calcium

>

> I also think you are giving too much and too many things. I think you need

> to go back to the basics, and then add one thing at a time and wait and see

> if you notice any positive changes.

>

> The first thing I noticed was that you are giving 50 mg of ACE to a three

> year old. Did you start this low and slow? Did you add each supplement one

> by one and take notes to see if it helped? Every child is different, but my

> son weighs 142 pounds, and for him I found that about half a capsule of ACE

> helps while more than that makes him very hyper.

>

> Do you notice red ears or cheeks with giving GSE? This happens to my son if

> we give him too much.

>

> Again, the moderators on the RFA group could help you more with this. The

> files section is very helpful.

>

>

>

[Guest guest]

Comments interspersed.

By the way....I am sure that the did his allergy testing....what were the

results? That also might be a key issue to supp tolerance.

Also....did you add more than one at a time?

> > Good idea! This is what he takes on a daily basis.

> > His enzymes are Houston Tri Enza(taken with every meal and snack)

Has he been on this right along? I have heard a lot of issues with this

one. We started on Houston, too....but when we did we went

with one at a time...and gradually worked up to the ones we wanted to use.

> >

Morning:

> > Liothyronine 2.5 mcg for his thyroid

Is this new? Thyroid often has an adjustment period. I am not familiar with

this one...but since thyroid is one of the master glands...any adjustment in it

is going to effect the whole body.

> > Krill oil 1000mg

Does he tolerate seafood? My kids can't do krill because of seafood intolerance.

Also if the the thyroid is off...this can effect how he processes seafoods.

Have you done flax oil yet? If not...you might think of dropping the krill and

adding flax for a while.

> > CoQ10 50mg

This has always been a great help. But I understand that it is problematic for

some.

> > Kirkman buffered C powder 1100mg

> > Chelates zinc 10mg

This one seems low...I think the rule is 50 mgs+ 50 for each 50 lbs. Someone

correct me here, if I am wrong.

> > Biotin 10mg This would not even have been a drop in the bucket for my kids.

Dana needs to jump in here...but biotin is a great help for the gut and for

yeast.

> > GSE liquid concentrate 10 drops

This was trouble city for my kids....if there are any issues at all with the

liver....this is not a good one. We went to candex, no-fenol, biotin and immune

boosters, like epicor and beta 1-3 glucan.

> > Emulsified A 25,000iu's

This seems high, esp for a little one and using a multi..but could be just me.

> > Emulsified D 2,000iu's

> > Emulsified K 500mcg

Is this K1, K2 or k3. We had better luck with K2...but if the thyroid is

off...this can be problematic. My gang had terrible gut aches with K until we

got their thyroid adjusted and A levels correct.

> > Kartner Health Vitamins/minerals(half the daily dose)

Check the ingredients...I had a heck of a time getting a multi for my kids that

didn't make em crazy. Most of em had allergens that they couldn't tolerate and

if there is one vit that they don't tolerate..the whole mix is done...

> > Lithium 5mg

> > Taurine 500mg

> > 5 Drops of Liver Life

How long ago did you start this and how high did you start? A lot of

us had to start at one drop and work up...and it can take a while if the liver

has issues.

> > ACE 50 mg

> > L-Carnitine 500mg

> > Magnesium Complex (citrate/oxide) 200mg

I would personally lose this one. Oxides were really hard for my kids to use.

Is there a special reason for it? I use either asparatate or malate. Those are

both easily absorbed...and if there are muscular issues...malate is

great...because the malic acid in it helps with the krebs cycle and with

muscular pain.

> > Dry Vit E 400iu's

What are the ingredients....and can he tolerate them. My kids had a rough time

with E until we found some that they could tolerate.

> > Colostrum High-IG

Boy this is a big baddy for mine. If your kiddo is milk allergic...this can be

a problem...even in this refined state...you can not believe the reactions, when

we tried it....bad news for us.

> > 5-MTHF (folate) 1,000mcg

> > Cedar Bear parasite cleanse 1/4 tsp

> > Vit B6 50mg

> > B complex 1/3 cap

B's can cause the kids yeast to flare pretty bad. So keep that in mind when you

give them.

Whoa!! more.... Man The more I look at this the more I see too many things going

on. No disrespect to Andy or ...but they don't live with our kids. It is

easy to prescribe and hard to live with...not meaning that they don't care or

are insensitive....just they don't live with em.

I would stop it all....and start over 1 thing at a time. Use it for a week or so

and see how they do and go from there. Alot of times we had to reduce the doses

by half or more and work up to the dose we needed to get to. We always start

low here and work up..and go as slow as we need to. I would make sure that the

allergies were tested and that the supps didn't contain any allergens and work

your way up. Keep this list as something to work toward....but this is just too

much for a little one...that's just my opinion.

Also dmsa is really good and doesn't require a prescription and does a great

job...but it is every 4 hours. We do it every weekend. But if every other is

working right now...go for it.

Also GABA is very helpful for mood stabilizing. My kids needed that alot...and

SAMe...but that one prolly needs to come later.

Jesus help ya find the solutions ya need.

Ronni

> > Afternoon:

> > Liquid Cal and Magnesium with D3

> > Liothyronine 2.5mcg

> > TMG 500mg

> > Cedar Bear Parasite cleanse

> > Colostrum High IG 960mg

> > Taurine 500mg

> > Biotin 10mg

> > GSE 10 drops

> > Nite Time:

> > B12 shot 25mg (every other nite)

> > Del-Immune V (25mg Lactobacillus rhamnosus lysed powder)

> > Zinc 10 mg

> > Colostrum High IG 960mg

> > Magnesium Complex (citrate/oxide) 200mg

> > Biotin 10mg

> > Taurine 500mg

> > Liothyronine 2.5mcg

> > Kartner Vit/Minerals 1/2 daily dose

> > L-Carnitine 500mg

> > 5 drops Liver Life

> > Buffered Vit C 110mg

> > Klaire Labs Ther Biotic 3 caps

> > Culturelle (dairy and GF) 3 caps

> > DMPS 5mg (every 6-8hrs every other week)

> > Wow, that's alot of stuff for such a little guy!!! Please give me any

thoughts on what I am doing.

> >

> >

[Guest guest]

Was there anything on my sons list that screamed big no no? Not especially, but

I can tell you for sure that when my son gets like this (never stops moving,

hits, kicks, bites, doesn't listen) I know it is time to re-evaluate all

exposures. Most the time, that meant taking his supplements down to amla (vit

c) and magnesium (my choices, things he obviously didn't react to) and keep his

diet very bland - homemade. Many times I gave him buckwheat groats (heated like

hot cereal), coconut oil, and maple syrup for breakfast - sometimes with bananas

cut on top; organic/natural chicken or turkey plus vegetable or made into soup

for lunch, and something similar for dinner.

(Last time he acted like that, it was a hidden source of MSG and possibly yellow

dye at a Mexican restaurant where I had asked what was in things but didn't ask

for exact ingredients on labels - it actually caused violent aggression and

seizure.)

> > >

> > > > I would recommend you post what supplements etc.... you are giving your

son. Hard to way what would improve without knowing exactly what you are giving

him. Could be a major factor!

> > > >

> > > > Probiotics?

> > > > Digestive enzymes?

> > > > List of supplements?

> > > > Yeast protocol?

> > > >

> > > > Only three rounds and worse, yeast protocol?

> > > >

> > > > Tammy

> > > >

> > > > [ ] Still keeping up the fight

> > > >

> > > > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > > > my son without any real gains in his condition. I continue to give him

all his supplements, taken him on and off to see if I could see any changes. I

have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > >

> > > >

[Guest guest]

This is very important. I would discuss every supplement with the child, what

it is for. Watch resistance to eating food, watch cravings, watch everything -

and learn his ways.

Teach him to sign " break " if he is in school or has ABA tutoring or if do

lessons with him at home. This has been so valuable with the girl I work with.

It is so important to communicate that you respect the way they are feeling. I

enjoy homeschooling my boy because if he is having an off day, he can just sit

in the bath and I read to him. He can stand on his head on the couch if he

wants, he does what he has to for his body to feel comfortable and I adjust my

teaching.

You must also move on with curriculum difficulty as you would with any other

child. My son is 8, he tells us a small fraction of what he knows, but he knows

a whole lot more. If he was in regular school, he'd still be identifying

numbers 1-10 probably. I have him adding and subtracting manipulatives. The

lack of expressive language is an excuse to hold children back way too often.

Better get to bed, more later...

> >

> > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > my son without any real gains in his condition. I continue to give him all

his supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> >

>

[Guest guest]

Of yourself, show enthusiasm for what's good to eat in the spirit of

communication and teaching by as much. Start mixing/blending (accordingly, to

what works?) the foods your son needs into the foods he likes in the spirit of

synthesizing things in that respect? of a *coming together* if you will, (where

you would be about as much yourself, that that isn't also if not especially how

communication itself works) of being so moderated to understandingmore of

Communication.. . If that takes you to specific foods that work better for as

much you will have succeeded in the more just way of succeeding is my sense of

It

Breaks too, must be *earned*.. . at least by the telling of The truth?!. (Once

you understand It if not more of It yourself?!. of making that your thing.. .)

Don't allow otherwise. (Hey, or welcome to the problem?!.) You should find that

works, with a bit of probing (Listening? of better listening, of the analysis,

of Understanding?!.) of what the truth actually is in that respect.. . of

Communication, that that wouldn't be fundamental to all that is so meaningful

and just, but I Feel It Is! and wish as much for you, and yours.. .

Communication isn't just a lot of *talk,* (blah, blah, blah-like) however that

is typically carried on?!. It's a *connecting* with and for what matters, (and

exchange, of Sorts?!.) of what really matters. Most certainly It is a conveying

of your Feeling/s for his, your son's, how much those matter.. . (Use as much

for all you hope to achieve where so true yourself?) of and for as much (if not

such understanding? that that doesn't connect with a/the greater understanding,

(of More?) but I Feel It Does!

You're probably going to have to come more *half-way* with things, than you are

(in moving along for what is best? for what would help *you* understand more by

as much, that that wouldn't be essential to all that you could accomplish so

meaningfully) in that respect, to gain your child's best interests.. . (Also be

more like him towards him becoming more like you in that respect?!. that that

doesn't show understanding and what you do understand, that he should respect

you otherwise) of your being so reasonable yourself, I figure by as much!

Be on guard for such connection with your son, two-years-old or whatever (That a

good intuition by those who should have as much doesn't count for as much?)

where trying as much for your son should prove to make a/the difference, of and

by as much -- as I encompass with respect to *Communication* and my

communicating, (more than mere language as we know it?) that everything would be

so just.

Glavic

My response particular to Liz and our shared understanding.. .

That, is the pillar upon which I base all that I do and feel I can do for the

other and all. It kind of boils down to this with me, you teach communication

by communicating, (however you can, of feeling as much? of what is so primary,

to Communication if not such communication, of what our feeling/s are about) by

whatever is interesting and helpful with respect to the other being able to

become more independent and self-sufficient, and social, themselves, of as much,

(and dare I say *just,* to as much, more just, by as much, that any other social

should matter) where relevent towards their understanding more for themselves

and all there could be by as much, that is and would be so reasonable.. . I

find many ABAers like teachers themselves are more about putting on a show in

that respect (if not so specifically..) and not about the real thing, of the

other understanding, (more, for themselves) vs. what might be merely a memory or

seeming memory (or illusion) or the obedient thing, to whatever, otherwise? .. .

if not the divide-and-conquer thing, perhaps

I figure you can only truly teach, teach so justly by teaching to justice

(itself) in that respect.. . of achieving it so directly? (that anything else

could be so meaningful and just, and not abusive otherwise, otherwise of what

would make us so unfair and unworthy as of games and/or who gets picked off

otherwise, and/or of entertainment and fantasy and the delusional otherwise,

after the games of our getting picked off so unjustly of our being part of as

much, how fun [child gratifying, immature gratifying even?] that might have

started out as) of having so much figured out myself.. . realizing that the best

way to change and teach and develop the other is by changing and learning from

and developing myself, of ourselves, of as much, as I teach, so reasonably

Case in point?!. My whatever typical 18-year-old daughter is obsessing on

listening to pop (or something like that?) music, still (as much as she can, as

dark as it seems to me now, but who am I to deny her as much [of our culture? ..

..] where she would pay for as much if not support her behavior somehow? if not

allow herself to be so divided and conquered by those who would do so? .. .) so,

*I'm* now listening to *classical* music (not necessariy my favourite all the

time..) and overtly/more directly talking about as much, too, to get such

message(s) across to her, my daughter, that our pleasure is *relative,* and

should be relative to our *work,* (for Understandingmore) Yes. I will suffer

myself of as much (what suffering?!.) to teach my child so much. I am not

denying her her art, no, I am shaping it by my shaping myself and my own of as

much, so true and just, Thereof -- I Am, I Feel I Am, of practicing what I

teach! (I wish as much for Us.. . I could be doing other things

Hey, where we obsess, so very often/likely do our students and children, I Feel

as understand

I feel I am really on the same page with you on this, (Liz) even where you are

not so precisely like me in this (if not every) respect.. . and figure anything

else would be of the forces of darkness (confusion! of fear) wherever that is

taking us, (as where it has?) and I am not so much about that, (what others are

about, in what they are about of as much as they are about) and I sure would

like to hear more from you (or anyone else in such respects, as ours) in what I

figure amounts to the measure of our *progress* where we would be progessing so

well at all, as of and by as much no less.

Just off the top of my head? (So much for sacred cows otherwise? What, that I

have something to hide?!. I figure this deals with as much, of the confusion and

disorder, otherwise, if not all there is, Thereof.. I figure *Communicating*

(all that we can?!.) trumps being like the other (and the problem, of the

otherwise?) and all we were if not are otherwise in bringing the other and the

solution along, if not so far along.. .

Who knows, we may even be recognized for as much by as much one day (in our

recognizing and identifying, if not prosecuting/treating those not so true? of

our becoming as much as we can become in that respect) but, here's for now (that

we should get anywhere else) and my hoping to hear more from you in that

respect, of making *Justness,* of the justness of communication of

Understandingmore, The thing!

Of my putting my faith, so true, in as much, and not so much anything

otherwise.. .

I figure I learn maybe more than we do by much as much.. . in my, practicing how

I figure we learn, where we would learn and be so just at All. (That that isn't

communicating and about communicating, as starting from within, of what there

Is, Thereof

Thanks for helping me learn as I do if not also of you ]and our teaching[ by as

much.. .

Glavic

oooooouu, Yeah. I figure our children care about as much and need that

connection, of, what is so meaningful, (primary?) well, you understand what you

understand by as much, Hello, that anything else should matter.. .

Of course you can follow that/from as much.. . Anything you *Feel* (for

understanding more?) would be good enough in that respect, of Understandingmore,

as I call It! but call It what you want, but just call it?!.

Communicate with your children for all that you can do for them, for all that

you can understand, for all that we can be

I really want my children to figure things out for themselves, like, what's

going on inside them?!. (That anything else should matter?!.) I figure that's a

pretty good place to start (With my help, of Communication?) if not end.. .

End? .. .

I figure you know It when you Feel It, that that isn't about Understandingmore,

but I Feel It Is

More, please?!. I figure God's *always* listening (and answering!) I do/hope as

much for us

> > > >

> > > > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > > > my son without any real gains in his condition. I continue to give him

all his supplements, taken him on and off to see if I could see any changes. I

have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > >

> > >

> >

> >

>

>

>

[Guest guest]

I meant " exchange " .. Communication is " an " exchange (with respect to value, of

values, of true consideration) of " Sorts, " no less, with respect to

Understanding More and what would be so meaningful and just.. . Be giving of

value to be getting of as much? .. . I don't believe we can fool our children in

that respect of what is best for them.

Glavic

You'd be right, (I Feel) if you felt I wouldn't be carrying on this way if I

wasn't so healthy and wealthy and wise.. . Few are? (or as much like I Am?!.

that that wouldn't be special if not so special? but I Feel It Is, where you fit

in in that respect?!.) I Feel as understand.. . Isn't It *nice* to have such

choice(s)?!. (To those who truly believe in choice? of such choice(s)? of

Intelligence? of Justness? of such justness? .. .) Here's more than hoping so

On connecting with what truly matters, I Feel I Am, Thereof

Include *God* in your conversations for as much, I will advise for you.. No, I'm

not thinking of some old man or anything like that, sheesh? God is what *you*

Figure out for your self, that God wouldn't be so clear and understandable, and

worthy? Sheesh

> > > > >

> > > > > I am hoping I am not alone in feeling extremely discouraged by my

childs progress. He is almost three years old and autistic. I have tried a ton

of things for

> > > > > my son without any real gains in his condition. I continue to give him

all his supplements, taken him on and off to see if I could see any changes. I

have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > > >

> > > >

> > >

> > >

> >

> >

> >

[Guest guest]

I feel for you, but I have no advice on the food issue. I really hope you get

some replies from people with experience with it. My son is on a restricted

diet, but he still eats everything offered. Okay, nevermind, I have one

suggestion Zinc. Sometimes children need zinc to be able to smell and taste

food, it helps that sense - and makes food more appealing. Good luck, and I

hope you get some other better replies.

Liz

> > > >

> > > > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > > > my son without any real gains in his condition. I continue to give him

all his supplements, taken him on and off to see if I could see any changes. I

have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > >

> > >

> >

> >

>

>

>

[Guest guest]

It's best to be thankful for what we do get? unless we're sure we deserve more

for our giving more for as much?!. That'd be a tough one as far as communication

goes, of such giving, the value of as much relative to the individual and what

they need and get from as much, would be my feeling/s on that.. .

I figure we've got some pretty good answers here in that respect, thank-you

Glavic

I'd be happier for a better president and savior, though I guess one should not

expect more from a savior until such time as one gets one, that we deserve one?

So far I'm happy with the one I have in that respect.. .

> > > > >

> > > > > I am hoping I am not alone in feeling extremely discouraged by my

childs progress. He is almost three years old and autistic. I have tried a ton

of things for

> > > > > my son without any real gains in his condition. I continue to give him

all his supplements, taken him on and off to see if I could see any changes. I

have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > > >

> > > >

> > >

> > >

> >

> >

> >

[Guest guest]

Hi Kathy. I too want to empathize and cheer you on. It can be sooo demoralizing

when there's no apparent progress and when there are food sensitivities. We had

them in spades. From v young (my DS is 22 mos). I went GFCF (while exclusively

breastfeeding) and at least he started gaining weight (the pressure to do

formula was enormous from docs--we supplemented with donated milk for a while).

But still, even while exclusively BF, DS had rashes, etc etc. WHenever I tried a

new food after about 6-9 mos (at pressure of sundry people and conventional

wisdom) it was always awful and I'd back off. I read adn then rejected

everything there was out there about first foods, from paavo airola to the SCD

to mainstream baby books. None of it worked. Then my DS at around 9 mos grabbed

for my green smoothie glass. Wouldn't let it go. He's basically lived on

breastmilk and green smoothie and raw veggie juices since then. It was something

I never would have thought to start him on/offer him, but he wouldn't let the

glass to my mouth without him having some. So eventually I made his own

smoothies, and now we make enough for the day and jar it up in the fridge.

What I've noticed is that my son will absolutely refuse any food that will cause

him a problem--they have a very strong instinct about these things, I've read.

Will post more later about food sensitivities and our extensive experience with

them. But baby got us up extra early today and I've gotta go feed him. What I

will say that worked for us is the Total Elimination Diet to establish by

experience what foods he reacts to. There were so many of them, it was

impossible to tell any other way, what to eat or not eat (I mean me eating them,

cos baby was still bfeeding and doing only 4 ingredients in smoothie while i did

the TED--he was reacting to what I ate, even when GFCF). I followed a book

called Diet Wise by an allergy doctor. Every nutritionist/naturopath I've ever

talked to since has said " Yeah, that's the hardest way, but it's really the only

one that works to get all food sensitivities " .

Alright, gotta go.

Fiona

>

> > I would recommend you post what supplements etc.... you are giving your son.

Hard to way what would improve without knowing exactly what you are giving him.

Could be a major factor!

> >

> > Probiotics?

> > Digestive enzymes?

> > List of supplements?

> > Yeast protocol?

> >

> > Only three rounds and worse, yeast protocol?

> >

> > Tammy

> >

> > [ ] Still keeping up the fight

> >

> > I am hoping I am not alone in feeling extremely discouraged by my childs

progress. He is almost three years old and autistic. I have tried a ton of

things for

> > my son without any real gains in his condition. I continue to give him all

his supplements, taken him on and off to see if I could see any changes. I have

added things back one at a time twice now. The only thing I saw was that GABA

increased his aggressiveness. I had him on the scd diet for for months and saw

no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> >

> >

[Guest guest]

You're right, zinc may certainly be enough. I shouldn't downplay the validity

of suggestions I give

> > > > > >

> > > > > > I am hoping I am not alone in feeling extremely discouraged by my

childs progress. He is almost three years old and autistic. I have tried a ton

of things for

> > > > > > my son without any real gains in his condition. I continue to give

him all his supplements, taken him on and off to see if I could see any changes.

I have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > > > >

> > > > >

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

And then again, it could be a diet or environment that supplements can't

compensate (enough?) for? .. . I would consider that one especially where any

arrangement of supplements isn't making a difference.

Mike

> > > > > > >

> > > > > > > I am hoping I am not alone in feeling extremely discouraged by my

childs progress. He is almost three years old and autistic. I have tried a ton

of things for

> > > > > > > my son without any real gains in his condition. I continue to give

him all his supplements, taken him on and off to see if I could see any changes.

I have added things back one at a time twice now. The only thing I saw was that

GABA increased his aggressiveness. I had him on the scd diet for for months and

saw no gains. He continues to be Gf/cf/sf and soy free. I have used a homeopath,

DAN, flew him from MI to Seattle to meet with Dr. Cutler and a nurse practioner.

We went over everything regarding my son and developed a plan of action. I have

treated for yeast, parasites, and bacteria. I know there are still a ton of

things that I could still try. I am just feeling very scared that my son is

never going to get better. It breaks my heart everyday not seeing any

improvements. He never stops moving from the second he wakes up. He throws

everything, hits, bites, and doesn't listen to a word I say. We are only on

round three of DMPS. I was hoping I would see some type of sign that this is

going to help him but he is more out of control then ever! I would love some

hope at this point that things can still get better. This situation is taking a

huge toll on my family's well being. I apologize for carrying on.

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

[Guest guest]

can you please tell me what ACE is?

thanks

>

> Tammy,

>

> The one thing I noticed in my son from the start was a problem with milk, I

> think. I BF, but he still had horrendous colic. I just didn't produce

> enough milk, though I kept pumping, but by three months, I had to start

> supplementing, and we had the hardest time finding a formula he could

> tolerate.

>

> But I still kept BF until seven months. I was always worried about what

> food was going to be like. I have no food allergies that I know of, but my

> husband is allergic to ALL fresh fruits and All fresh vegetables. He will

> eat a little of this and that, but knows the limits before he gets that

> funny feeling in his throat. It still scares me to see how reactive his is

> to food.

>

> He can eat canned, though (which I think is very strange). I made salmon

> croquettes for years using canned salmon. Then his parents came to visit

> and I baked fresh salmon. He took one bite, and he should have gone to the

> hospital. Scared the heck out of all of us. A person should not have to

> drink Benadryl just to be able to eat food!

>

> He can also eat some cooked veggies and cooked fruit like pineapple, but not

> a lot. That limits his choices for eating healthy, for sure.

>

> Our son -- it just took forever to find a formula, and his pedi was no

> help. So to me, this was a sign of things to come. He still developed

> normally to fifteen months, and then those shots and boom! He started

> getting sick all the time, and like you mentioned: every little sniffle or

> cold would snow ball into pneumonia. Then he developed what appeared to be

> asthma, and we went the gambit of all these MD's just wanting to put him on

> tons of steroids all day long. Steroids made him gain a lot of weight,

> which we are still battling.

>

> However, ACE was suggested to me, and when we started the AC Protocol, on

> the first day, my son started acting like he was having an asthma attack.

> Then I started giving him some ACE, and my son has not needed any asthma

> medications since starting the ACE. This is profound, as he has needed

> asthma meds routinely since he was three. In fact, this is the longest we

> have gone since beginning our journey where our son has been able to be

> prescription drug free.

>

> I just was intrigued when I read your child was prone to pneumonia, as

> well. Mine had it eight time between the ages of two and nine.

>

>

>