Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Dont waste your time with poryphirin tests through DAN. From all you know it might just be a scam. what are your daughters symptoms. Chelate using ANDY CUTTLER protocol. It will chelate almunium as well as mercury. Rochelle. > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a good doctor and I hope she isn't doing a test that is of no good. My daughter symptoms are poor eye contact 2 words at 30 months no point or repeating hand stimming..more like a wawe hard to engage repetitive play I bought the test from Usman for 140 and sent it off today..we have been doing biomedical how for 6 months..diets..basic supplements..B12..last appointment she said that we can start working on my daughter viral issues..she has high titers for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex and Difulcan and await the test results..if she does well with Valtrex and has low metals... I wasn't going to go after the metals..but if the test only shows mercury then I am going to test for the others. I just don't want to keep taking blood, urine from her you know. ________________________________ From: rochelle b <mcroche2002@...> Sent: Wed, February 16, 2011 12:11:21 AM Subject: [ ] Re: Porphyrins, Urine through Doctor Data  Dont waste your time with poryphirin tests through DAN. From all you know it might just be a scam. what are your daughters symptoms. Chelate using ANDY CUTTLER protocol. It will chelate almunium as well as mercury. Rochelle. > > Does this test only check for Mercury does anyone know? I also am trying to >understand something my daughter is 2.5 and if she does have high mercury how is >that possible??? Her titers are high for 6 different shots..with Rubella being >385.3 but I thought that all mercury was removed from shots in 2000? My daughter >never had a flu shot nor have I. I would think that my dan would be checking for >other metals not mercury but from what I am reading Porphyrins only covers >mercury..I'm more worried about Aluminum.We did a blood test for lead and she >was fine...just trying to understand. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 We use labbio in france they send you kit you get results posted and emailed to yourself. If you do start valtrex send base line urine for metal testing valtrex pulled so much metals from our son and that was on a daily basis. Metals bind to the viruses not sure if works other way around and chelation helps remove viruses does anyone know On 2/16/11, <ginger82099@...> wrote: > Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a > good doctor and I hope she isn't doing a test that is of no good. My > daughter > symptoms are > poor eye contact > 2 words at 30 months no point or repeating > hand stimming..more like a wawe > hard to engage > repetitive play > > > > I bought the test from Usman for 140 and sent it off today..we have been > doing > biomedical how for 6 months..diets..basic supplements..B12..last appointment > she > said that we can start working on my daughter viral issues..she has high > titers > for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex > and > Difulcan and await the test results..if she does well with Valtrex and has > low > metals... I wasn't going to go after the metals..but if the test only shows > mercury then I am going to test for the others. I just don't want to keep > taking > blood, urine from her you know. > > > > > > ________________________________ > From: rochelle b <mcroche2002@...> > > Sent: Wed, February 16, 2011 12:11:21 AM > Subject: [ ] Re: Porphyrins, Urine through Doctor Data > > > Dont waste your time with poryphirin tests through DAN. From all you know it > might just be a scam. what are your daughters symptoms. Chelate using ANDY > CUTTLER protocol. It will chelate almunium as well as mercury. > Rochelle. > > >> >> Does this test only check for Mercury does anyone know? I also am trying >> to >>understand something my daughter is 2.5 and if she does have high mercury >> how is >>that possible??? Her titers are high for 6 different shots..with Rubella >> being >>385.3 but I thought that all mercury was removed from shots in 2000? My >> daughter >>never had a flu shot nor have I. I would think that my dan would be >> checking for >>other metals not mercury but from what I am reading Porphyrins only covers >>mercury..I'm more worried about Aluminum.We did a blood test for lead and >> she >>was fine...just trying to understand. >> >> >> >> Thanks, >> >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Did you see any gains from Valtrex? ________________________________ From: Cotter <cotter.mary1@...> Sent: Wed, February 16, 2011 2:38:18 AM Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data  We use labbio in france they send you kit you get results posted and emailed to yourself. If you do start valtrex send base line urine for metal testing valtrex pulled so much metals from our son and that was on a daily basis. Metals bind to the viruses not sure if works other way around and chelation helps remove viruses does anyone know On 2/16/11, <ginger82099@...> wrote: > Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a > good doctor and I hope she isn't doing a test that is of no good. My > daughter > symptoms are > poor eye contact > 2 words at 30 months no point or repeating > hand stimming..more like a wawe > hard to engage > repetitive play > > > > I bought the test from Usman for 140 and sent it off today..we have been > doing > biomedical how for 6 months..diets..basic supplements..B12..last appointment > she > said that we can start working on my daughter viral issues..she has high > titers > for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex > and > Difulcan and await the test results..if she does well with Valtrex and has > low > metals... I wasn't going to go after the metals..but if the test only shows > mercury then I am going to test for the others. I just don't want to keep > taking > blood, urine from her you know. > > > > > > ________________________________ > From: rochelle b <mcroche2002@...> > > Sent: Wed, February 16, 2011 12:11:21 AM > Subject: [ ] Re: Porphyrins, Urine through Doctor Data > > > Dont waste your time with poryphirin tests through DAN. From all you know it > might just be a scam. what are your daughters symptoms. Chelate using ANDY > CUTTLER protocol. It will chelate almunium as well as mercury. > Rochelle. > > >> >> Does this test only check for Mercury does anyone know? I also am trying >> to >>understand something my daughter is 2.5 and if she does have high mercury >> how is >>that possible??? Her titers are high for 6 different shots..with Rubella >> being >>385.3 but I thought that all mercury was removed from shots in 2000? My >> daughter >>never had a flu shot nor have I. I would think that my dan would be >> checking for >>other metals not mercury but from what I am reading Porphyrins only covers >>mercury..I'm more worried about Aluminum.We did a blood test for lead and >> she >>was fine...just trying to understand. >> >> >> >> Thanks, >> >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 If I am honest we did not see gains,but our son is also dealing with lymes and its co infections ,what i liked about valtrex was we were getting rid of virsuses and metals,i now believe we didnt continue on long enough,also we prob should have rotated the anti virals,he tested positive for EBV CMV coxsackie measles rubella varcilla so virsuses are big issue, he also has high levels of metals,we carried out chelation re DAN protocol but he just got sicker,i am really intrested in trying AC protocol,and intend to start this weekend,am nervous because everytime we start new thing we see regression and no gains,his detox or lymph drainage is not working despite being on numerous draiange remedies.good luck if you try valtex i am honsely thinking of revisiting it , On Wed, Feb 16, 2011 at 8:44 AM, <ginger82099@...> wrote: > > > Did you see any gains from Valtrex? > > ________________________________ > From: Cotter <cotter.mary1@...> > > > Sent: Wed, February 16, 2011 2:38:18 AM > Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data > > > > We use labbio in france they send you kit you get results posted and > emailed to yourself. If you do start valtrex send base line urine for > metal testing valtrex pulled so much metals from our son and that was > on a daily basis. Metals bind to the viruses not sure if works other > way around and chelation helps remove viruses does anyone know > > On 2/16/11, <ginger82099@...> wrote: > > Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she > was a > > good doctor and I hope she isn't doing a test that is of no good. My > > daughter > > symptoms are > > poor eye contact > > 2 words at 30 months no point or repeating > > hand stimming..more like a wawe > > hard to engage > > repetitive play > > > > > > > > I bought the test from Usman for 140 and sent it off today..we have been > > doing > > biomedical how for 6 months..diets..basic supplements..B12..last > appointment > > she > > said that we can start working on my daughter viral issues..she has high > > titers > > for 6 different shots..rubella is 385.3 sky high so we are starting > Valtrex > > and > > Difulcan and await the test results..if she does well with Valtrex and > has > > low > > metals... I wasn't going to go after the metals..but if the test only > shows > > mercury then I am going to test for the others. I just don't want to keep > > taking > > blood, urine from her you know. > > > > > > > > > > > > ________________________________ > > From: rochelle b <mcroche2002@...> > > > > Sent: Wed, February 16, 2011 12:11:21 AM > > Subject: [ ] Re: Porphyrins, Urine through Doctor Data > > > > > > Dont waste your time with poryphirin tests through DAN. From all you know > it > > might just be a scam. what are your daughters symptoms. Chelate using > ANDY > > CUTTLER protocol. It will chelate almunium as well as mercury. > > Rochelle. > > > > > >> > >> Does this test only check for Mercury does anyone know? I also am trying > >> to > >>understand something my daughter is 2.5 and if she does have high mercury > >> how is > >>that possible??? Her titers are high for 6 different shots..with Rubella > >> being > >>385.3 but I thought that all mercury was removed from shots in 2000? My > >> daughter > >>never had a flu shot nor have I. I would think that my dan would be > >> checking for > >>other metals not mercury but from what I am reading Porphyrins only > covers > >>mercury..I'm more worried about Aluminum.We did a blood test for lead and > >> she > >>was fine...just trying to understand. > >> > >> > >> > >> Thanks, > >> > >> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hair tests are less expensive and tell you what you need to know, but you have to read it using the counting rules. Many doctors do not read them using the counting rules and feel that they are useless. If your child has metal, use AC cheltaion. Dr. Suzanne DaSilva www.biomedicaldoc.com > > >> > > >> Does this test only check for Mercury does anyone know? I also am trying > > >> to > > >>understand something my daughter is 2.5 and if she does have high mercury > > >> how is > > >>that possible??? Her titers are high for 6 different shots..with Rubella > > >> being > > >>385.3 but I thought that all mercury was removed from shots in 2000? My > > >> daughter > > >>never had a flu shot nor have I. I would think that my dan would be > > >> checking for > > >>other metals not mercury but from what I am reading Porphyrins only > > covers > > >>mercury..I'm more worried about Aluminum.We did a blood test for lead and > > >> she > > >>was fine...just trying to understand. > > >> > > >> > > >> > > >> Thanks, > > >> > > >> > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Don't bother with a porphyrins test. Use the Doctor's Data Hair Elements test, and apply the rules of counting per the Dr. Andy Cutler Protocol, and stop letting a DAN milk away your money having you pay for meaningless tests and frivolous supplements -- many of which don't work. (What I would give to have all t hat money back). My son in now eleven. I admit that we have been lucky. The very basic things we did: diet (gf/cf/sf) and metabolic supports: vitamins, minerals, amino acids along with therapeutic interventions helped our son quite a bit. We were scared and not knowledgeable the beginning and thought we had to have a doc on board to do AC, and of course DANS steered us away from that as they can't make enough money off it, so we were steered toward IV chelation which caused regressions and serious respiratory reactions in our son. What you may wind up finding happens with a DAN (and I am not saying this is a definite) is that they try or have you try all these different things, and then when none of it works, then they will tell you maybe you ought to put the child on psychotropics after all. Well, for us, we were not going to put our son on Prozac just because he was stimming and had hyperactivity. What was more important to us was WHY the stimming came back (probably due to IV chelation) and why the hyperactivity came back (probably doing IV again). Then I remembered how those close to the AC Protocol had helped put us on the right track in the beginning, and I found myself wishing I had listened to Dr. Cutler all those years ago as anything he had told me to do helped. But we didn't listen at that time about the proper way to chelate heavy metals. You need to do a hair test on your child and apply the rules of counting. If your child has received any vaccine sin the last thirty years, your child has been injected with both mercury and aluminum - among many other toxic chemicals like antifreeze and formaldehyde. They did not take the mercury out. My son received 67.5mcg mercury via vaccines on March 7, 2001, and IMMEDIATELY lost all speech and began a downward spiral behaviorally, digestively, immunologically, and neurologically. Even if they had actually taken it out and been truthful with the public, the FDA NEVER recalled the thimerosal-containing vials still on the shelves -- a supply which may well still be out there but minimally would have lasted an additional seven years. The flu, combo flu this year, tetanus, and rabies shots all still contain the full complement of mercury. ALL non-live virus vaccine are still MADE (manufactured) using thimerosal. They told the public they took it out, but they supposedly take it out AFTER it is manufactured with it. They supposedly extract it out after the manufacturing process. HA-Ha. Mercury hides. Mercury bind TIGHTLY to protein (and fat) and as any parent who has ever tried to get it out of their child can attest, mercury is very difficult to unbind. It does not reside in the blood for long. Any exposure not excreted by the body will reside in the fatty tissues in the body: the brain, the kidneys, the liver, the lining of the intestine. It is really they only thing that can cause abnormal mineral transport int he body. so if you look to see whether there is abnormal mineral transport in the body. therefore it has the power to disrupt myriad biochemical reactions in the body. All vaccines are made with animal protein -- ah, something for the mercury to bind tightly to. And who polices the extraction of mercury from the product? Well, our government allows the pharmaceutical industry to police itself! Maybe because this industry contributes heavily to their campaigns. You think? In addition, the vaccines are still sold in multi-dose vials rather than safer one dose vials (which would not require a preservative). Many factors can play a roll in how much mercury an individual child receives. Sometimes it can be that the nurse doesn't shake the bottle well enough, so one child gets much more mercury than the next child. In some vaccine, mercury and aluminum are in there together. The aluminum acts as a catalyst and makes whatever mercury is in there even more toxic. In vaccines where they " took the mercury out, " they added aluminum as the primary preservative. Aluminum- a substance known to cause neuronal cell death and suspect in contributing to breast cancer and Alzheimer's. No wonder autism has continued to rise, given the number of vaccines and the amount of mercury and aluminum children are still getting via vaccines. In all this, mercury is still the primary problem. They try to comfort the public by saying that it is ethyl-mercury and not methyl. Big whoopee-do. it is STILL the second most toxic substance on the face of the Earth. No safety studies were ever done on infants using methyl mercury (unless you count the massive human experimentation on our children over the last thirty or forty years). They " guessed. " They based its efficacy and safety on several men who were dying of meningitis who they injected with thimerosal, and when the men died, the cause of death was listed as meningitis and thimerosal was pronounced safe. Did your child receive the Hib shot? This is a type of flu shot. You need to buy Andy Cutler's book " Amalgam Illness, " Study it. Get your DAN to order a Doctor's Data Hair elements test and apply the rules of counting to determine if your child is mercury toxic. If so, then your child is probably toxic in other heavy metals too, as mercury disrupts the detoxification system in the body. If you get the mercury out, the other metals will follow. Our environment is filled with this stuff! so our children with depressed detoxification systems are picking more of it up elsewhere, as well, and it is cumulative in the body. it is in batteries, lights, electronics, the air, the water, and in the food supply. It is " pervasive. " I suggest you use the AC Protocol for chelation. It will take 100 to 300 rounds to get the mercury out, so you are looking at from a little over two years to six years. But this is a very safe -- low and slow method of chelation. DO NOT allow yourself to get talked into IV chelation, which I now believe to be dangerous. You can still use your DAN to do certain tests when they are warranted such as re-checking for yeast (which you can tell by behavior usually) and you can test for neutrophil count and once in a while for kidney/liver function. In case you have not done so yet, I hope you have done a copper check. Many of these children can have abnormal levels of copper and disrupted copper/zinc in the body due to the abnormal mineral transport. High levels of copper over time can cause permanent brain damage, so I think all children with this condition should be checked for high copper ASAP. Zinc chelates copper. My son's levels were so high after vaccine reaction that they thought he had 's disease (a genetic disorder), but of course it wasn't 's, but he has needed to be on extra zinc ever since to keep his copper levels in check. As I said, we were very lucky. Perhaps my son's own detoxification system was not as damaged as other children, so doing the gf/cf/sf diet and adding metabolic supports helped him tremendously and brought back functional language. Later, he regained expressive speech and two years ago, reciprocal speech emerged, and now he has all forms of speech, though about five years delayed. By age four, all stimming had ceased, his SID and OCD were all but gone but then at age six we got persuaded to do IV chelation, and the SID, stimming, and OCD returned. His immune system was severely damaged by the reaction to vaccines. He began getting sick all the time. From age fifteen months on, he would develop an infection with fever roughly every two weeks like clock work. these were usually respiratory. He has had pneumonia eight times, countless bouts of bronchitis, and they told us he had asthma. He was sick so much we finally put him on steroids, which made him gain a lot of weight and only reduced his illnesses by half. Then he developed an inability to fight off the bacteria that gets introduced when an insect bites him, so every time he gets bitten, he will develop radiating staph from each and every bite site. Fire ant bites cause anaphylaxis, and allergy shots did nothing to reduce the allergic response. Then after some events that occurred at our DANS last summer, I took a step back and reassessed and remembered that in the beginning, the A-M group had helped us a great deal, so I came back, and from here I learned about the RFA group, which has helped tremendously, an we began the AC Protocol a little over a month ago. I learned that very often asthma symptoms can really be a sign/symptom of adrenal fatigue (another lovely gift of mercury poisoning as mercury likes to settle there, as well). A little over a month ago, I started giving my son ACE (Adrenal Cortex Extract). My son is being chelated using ALA only due to his being a very reactive kid. Since beginning this protocol, my son has needed NO asthma medications. He has not needed his rescue inhaler even once! He has not been sick. This is the longest my son has gone without being sick in over nine years! On rounds he is more focused and there is less stimming, SID, OCD. About days 2 and three off rounds, the yeast flares up, and we are trying to fight this with biotin and GSE, but yeast is a big problem for most of these children. We will prevail. I urge you to give the AC Protocol consideration. My son was moderate/severe in the beginning. He is high functioning now. He is bright, funny, imaginative and very well behaved. We home school now, and at the beginning of that I was worried we might get sick of being together all the time, but this has been a wonderful experience, and I love being with him. It gets hectic, but he is making up a lot of ground lost due to societies preconceived notions regarding autism. I firmly believe that with continued AC chelation, my son will continue to improve and healing is very possible. Three years form now, we will know for sure, but we KNOW our son is mercury toxic, and getting the mercury out can only help. I am just still walking on cloud nine that he has not been sick, has not shown signs of asthma, and has not needed steroids in over a month. I am not a doctor. I am just a mom who has studied, researched, and worked her @$$ off to get her son back. Hope this helps you. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 , We've used porphyrin tests from Labbio in France and have found them helpful (only two, over a period of 4 years, so not testing all the time). The reason why I bothered to do it was because my son hasn't progressed like many children do, and I had lots of questions as to why. Do know that these tests can give false negatives, and that some people have tested negative, chelated a few rounds, and then tested positive. Also, if you are chelating, you need to wait four weeks after the last round in order not to get a falsely elevated result. You must handle the sample carefully too. There are a couple good papers in the files section here at AM which can tell you what metals the test will cover. Anita > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 , We went to Anju Usman too for a year. We saw no improvements whatsoever in any area. My child who is 2.8 year old still has all the symptoms.Please send me a private email so that we can discuss. Thanks Rochelle. > > > > Does this test only check for Mercury does anyone know? I also am trying to > >understand something my daughter is 2.5 and if she does have high mercury how is > >that possible??? Her titers are high for 6 different shots..with Rubella being > >385.3 but I thought that all mercury was removed from shots in 2000? My daughter > >never had a flu shot nor have I. I would think that my dan would be checking for > >other metals not mercury but from what I am reading Porphyrins only covers > >mercury..I'm more worried about Aluminum.We did a blood test for lead and she > >was fine...just trying to understand. > > > > > > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 My 2 cents. I personally think the urine porphorine test was the best gage of mercury I did for my son. They offer other tests. Since it's hard to assess all around, this test just gives you a look from a different angle. And Dr. Usman is great, do trust her. With these kids, she IS the one who knows. It is really hard with little kids because they are going to develop regardless what supplement, therapy, chelation protocal you might try. Looking back, I think it's a matter of stick to it ness. I dropped things too soon, didn't do it correctly...it's a tricky process. The Dr.s I do not trust are mainstream denialists. They aren't worth a crap. So what if insurance pays, they generally offer nothing and take a huge sum of money. Let'em starve! I would to the porphyrin test through the French Lab I repeat...Dr. Usman and the word scam to NOT belong together. That woman is the real deal and you are lucky to even get time with her. > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 You can contact me privately about Dr. Usman, also. I took my son to see her between 2004-2007. Overtesting is a DAN!-wide issue, not just Dr. Usman. Pam > > > > > > Does this test only check for Mercury does anyone know? I also am trying to > > >understand something my daughter is 2.5 and if she does have high mercury how is > > >that possible??? Her titers are high for 6 different shots..with Rubella being > > >385.3 but I thought that all mercury was removed from shots in 2000? My daughter > > >never had a flu shot nor have I. I would think that my dan would be checking for > > >other metals not mercury but from what I am reading Porphyrins only covers > > >mercury..I'm more worried about Aluminum.We did a blood test for lead and she > > >was fine...just trying to understand. > > > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 valtrex pulled metals?! From: Cotter Sent: Wednesday, February 16, 2011 1:38 AM Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data We use labbio in france they send you kit you get results posted and emailed to yourself. If you do start valtrex send base line urine for metal testing valtrex pulled so much metals from our son and that was on a daily basis. Metals bind to the viruses not sure if works other way around and chelation helps remove viruses does anyone know On 2/16/11, <ginger82099@...> wrote: > Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a > good doctor and I hope she isn't doing a test that is of no good. My > daughter > symptoms are > poor eye contact > 2 words at 30 months no point or repeating > hand stimming..more like a wawe > hard to engage > repetitive play > > > > I bought the test from Usman for 140 and sent it off today..we have been > doing > biomedical how for 6 months..diets..basic supplements..B12..last appointment > she > said that we can start working on my daughter viral issues..she has high > titers > for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex > and > Difulcan and await the test results..if she does well with Valtrex and has > low > metals... I wasn't going to go after the metals..but if the test only shows > mercury then I am going to test for the others. I just don't want to keep > taking > blood, urine from her you know. > > > > > > ________________________________ > From: rochelle b <mcroche2002@...> > > Sent: Wed, February 16, 2011 12:11:21 AM > Subject: [ ] Re: Porphyrins, Urine through Doctor Data > > > Dont waste your time with poryphirin tests through DAN. From all you know it > might just be a scam. what are your daughters symptoms. Chelate using ANDY > CUTTLER protocol. It will chelate almunium as well as mercury. > Rochelle. > > >> >> Does this test only check for Mercury does anyone know? I also am trying >> to >>understand something my daughter is 2.5 and if she does have high mercury >> how is >>that possible??? Her titers are high for 6 different shots..with Rubella >> being >>385.3 but I thought that all mercury was removed from shots in 2000? My >> daughter >>never had a flu shot nor have I. I would think that my dan would be >> checking for >>other metals not mercury but from what I am reading Porphyrins only covers >>mercury..I'm more worried about Aluminum.We did a blood test for lead and >> she >>was fine...just trying to understand. >> >> >> >> Thanks, >> >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Valtrex is not a chelator. > >> > >> Does this test only check for Mercury does anyone know? I also am trying > >> to > >>understand something my daughter is 2.5 and if she does have high mercury > >> how is > >>that possible??? Her titers are high for 6 different shots..with Rubella > >> being > >>385.3 but I thought that all mercury was removed from shots in 2000? My > >> daughter > >>never had a flu shot nor have I. I would think that my dan would be > >> checking for > >>other metals not mercury but from what I am reading Porphyrins only covers > >>mercury..I'm more worried about Aluminum.We did a blood test for lead and > >> she > >>was fine...just trying to understand. > >> > >> > >> > >> Thanks, > >> > >> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi Haven, I can't tell you how much I appreciate your feedback on AC chelation. You always provide great insight, detailed information and extreme enthusiasm. I just want to say thank you for taking the time to help us parents who are facing doubts, anxiety and uncertainty about implementing a protocol without doctor's instructions but yet it's been proven to be working and safe for most children. Your encouragement definitely plays a crucial part in our decision making. However, I have a different situation and would like to share with others so that for those who just can't follow the schedule will have an option without completely giving up the treatment. My son is 10 and we just started chelation the end of last December, under our DAN'S supervision. We are doing 3 days on and 11 days off with DMSA and ALA. The dosage is 100 mg x3/day for DMSA and 33 mgx3/day for ALA. He weighs 63 lb and does not have any side effect/die off to the dose and schedule, except yeast and/or bacteria. So far, he has been making steady progress in behaviors, speech, concentration, play skills, etc. I am really thrilled to hear his aide's and play guide's good report everyday! I am a fairly new member to this group and have learned a lot from fellow parents here. I know the majority of you follow AC protocol and am really happy to learn that most of you see great results from it. I would have tried his method if I were 10 years younger I am in my late 40s and just can't function well during the day if I don't get a good quality of sleep at night. In my house, if I get grumpy and grouchy, EVERYONE else will suffer too Luckily, as I said, my son responds well to the more traditional chelation treatment and I am very grateful for that. Chelation or not is really a personal choice after all. I was told to chelate my son back in 2006 by a different DAN and at that time, chelation was the last thing on my mind. I didn't want to take the risk and I was not ready to put some " drug " in my son's body. I was willing to try diet, therapy, intervention, etc. Just NO DRUG. We have tried many things and gone through ups and downs. Five years later, we are finally ready to start this journey. If I could do it all over again, would I do it differently? Probably not. I still believe the reason my son responds so well to the typical chelation schedule is due to his age and all the years of dieting and supplementing. He is just in a better condition now for chelation than 5 years ago, IMHO. As I mentioned above, this board has provided me wealth of information and tips and I look forward to continue the journey with you all. April Re: [ ] Porphyrins, Urine through Doctor Data Don't bother with a porphyrins test. Use the Doctor's Data Hair Elements test, and apply the rules of counting per the Dr. Andy Cutler Protocol, and stop letting a DAN milk away your money having you pay for meaningless tests and frivolous supplements -- many of which don't work. (What I would give to have all t hat money back). My son in now eleven. I admit that we have been lucky. The very basic things we did: diet (gf/cf/sf) and metabolic supports: vitamins, minerals, amino acids along with therapeutic interventions helped our son quite a bit. We were scared and not knowledgeable the beginning and thought we had to have a doc on board to do AC, and of course DANS steered us away from that as they can't make enough money off it, so we were steered toward IV chelation which caused regressions and serious respiratory reactions in our son. What you may wind up finding happens with a DAN (and I am not saying this is a definite) is that they try or have you try all these different things, and then when none of it works, then they will tell you maybe you ought to put the child on psychotropics after all. Well, for us, we were not going to put our son on Prozac just because he was stimming and had hyperactivity. What was more important to us was WHY the stimming came back (probably due to IV chelation) and why the hyperactivity came back (probably doing IV again). Then I remembered how those close to the AC Protocol had helped put us on the right track in the beginning, and I found myself wishing I had listened to Dr. Cutler all those years ago as anything he had told me to do helped. But we didn't listen at that time about the proper way to chelate heavy metals. You need to do a hair test on your child and apply the rules of counting. If your child has received any vaccine sin the last thirty years, your child has been injected with both mercury and aluminum - among many other toxic chemicals like antifreeze and formaldehyde. They did not take the mercury out. My son received 67.5mcg mercury via vaccines on March 7, 2001, and IMMEDIATELY lost all speech and began a downward spiral behaviorally, digestively, immunologically, and neurologically. Even if they had actually taken it out and been truthful with the public, the FDA NEVER recalled the thimerosal-containing vials still on the shelves -- a supply which may well still be out there but minimally would have lasted an additional seven years. The flu, combo flu this year, tetanus, and rabies shots all still contain the full complement of mercury. ALL non-live virus vaccine are still MADE (manufactured) using thimerosal. They told the public they took it out, but they supposedly take it out AFTER it is manufactured with it. They supposedly extract it out after the manufacturing process. HA-Ha. Mercury hides. Mercury bind TIGHTLY to protein (and fat) and as any parent who has ever tried to get it out of their child can attest, mercury is very difficult to unbind. It does not reside in the blood for long. Any exposure not excreted by the body will reside in the fatty tissues in the body: the brain, the kidneys, the liver, the lining of the intestine. It is really they only thing that can cause abnormal mineral transport int he body. so if you look to see whether there is abnormal mineral transport in the body. therefore it has the power to disrupt myriad biochemical reactions in the body. All vaccines are made with animal protein -- ah, something for the mercury to bind tightly to. And who polices the extraction of mercury from the product? Well, our government allows the pharmaceutical industry to police itself! Maybe because this industry contributes heavily to their campaigns. You think? In addition, the vaccines are still sold in multi-dose vials rather than safer one dose vials (which would not require a preservative). Many factors can play a roll in how much mercury an individual child receives. Sometimes it can be that the nurse doesn't shake the bottle well enough, so one child gets much more mercury than the next child. In some vaccine, mercury and aluminum are in there together. The aluminum acts as a catalyst and makes whatever mercury is in there even more toxic. In vaccines where they " took the mercury out, " they added aluminum as the primary preservative. Aluminum- a substance known to cause neuronal cell death and suspect in contributing to breast cancer and Alzheimer's. No wonder autism has continued to rise, given the number of vaccines and the amount of mercury and aluminum children are still getting via vaccines. In all this, mercury is still the primary problem. They try to comfort the public by saying that it is ethyl-mercury and not methyl. Big whoopee-do. it is STILL the second most toxic substance on the face of the Earth. No safety studies were ever done on infants using methyl mercury (unless you count the massive human experimentation on our children over the last thirty or forty years). They " guessed. " They based its efficacy and safety on several men who were dying of meningitis who they injected with thimerosal, and when the men died, the cause of death was listed as meningitis and thimerosal was pronounced safe. Did your child receive the Hib shot? This is a type of flu shot. You need to buy Andy Cutler's book " Amalgam Illness, " Study it. Get your DAN to order a Doctor's Data Hair elements test and apply the rules of counting to determine if your child is mercury toxic. If so, then your child is probably toxic in other heavy metals too, as mercury disrupts the detoxification system in the body. If you get the mercury out, the other metals will follow. Our environment is filled with this stuff! so our children with depressed detoxification systems are picking more of it up elsewhere, as well, and it is cumulative in the body. it is in batteries, lights, electronics, the air, the water, and in the food supply. It is " pervasive. " I suggest you use the AC Protocol for chelation. It will take 100 to 300 rounds to get the mercury out, so you are looking at from a little over two years to six years. But this is a very safe -- low and slow method of chelation. DO NOT allow yourself to get talked into IV chelation, which I now believe to be dangerous. You can still use your DAN to do certain tests when they are warranted such as re-checking for yeast (which you can tell by behavior usually) and you can test for neutrophil count and once in a while for kidney/liver function. In case you have not done so yet, I hope you have done a copper check. Many of these children can have abnormal levels of copper and disrupted copper/zinc in the body due to the abnormal mineral transport. High levels of copper over time can cause permanent brain damage, so I think all children with this condition should be checked for high copper ASAP. Zinc chelates copper. My son's levels were so high after vaccine reaction that they thought he had 's disease (a genetic disorder), but of course it wasn't 's, but he has needed to be on extra zinc ever since to keep his copper levels in check. As I said, we were very lucky. Perhaps my son's own detoxification system was not as damaged as other children, so doing the gf/cf/sf diet and adding metabolic supports helped him tremendously and brought back functional language. Later, he regained expressive speech and two years ago, reciprocal speech emerged, and now he has all forms of speech, though about five years delayed. By age four, all stimming had ceased, his SID and OCD were all but gone but then at age six we got persuaded to do IV chelation, and the SID, stimming, and OCD returned. His immune system was severely damaged by the reaction to vaccines. He began getting sick all the time. From age fifteen months on, he would develop an infection with fever roughly every two weeks like clock work. these were usually respiratory. He has had pneumonia eight times, countless bouts of bronchitis, and they told us he had asthma. He was sick so much we finally put him on steroids, which made him gain a lot of weight and only reduced his illnesses by half. Then he developed an inability to fight off the bacteria that gets introduced when an insect bites him, so every time he gets bitten, he will develop radiating staph from each and every bite site. Fire ant bites cause anaphylaxis, and allergy shots did nothing to reduce the allergic response. Then after some events that occurred at our DANS last summer, I took a step back and reassessed and remembered that in the beginning, the A-M group had helped us a great deal, so I came back, and from here I learned about the RFA group, which has helped tremendously, an we began the AC Protocol a little over a month ago. I learned that very often asthma symptoms can really be a sign/symptom of adrenal fatigue (another lovely gift of mercury poisoning as mercury likes to settle there, as well). A little over a month ago, I started giving my son ACE (Adrenal Cortex Extract). My son is being chelated using ALA only due to his being a very reactive kid. Since beginning this protocol, my son has needed NO asthma medications. He has not needed his rescue inhaler even once! He has not been sick. This is the longest my son has gone without being sick in over nine years! On rounds he is more focused and there is less stimming, SID, OCD. About days 2 and three off rounds, the yeast flares up, and we are trying to fight this with biotin and GSE, but yeast is a big problem for most of these children. We will prevail. I urge you to give the AC Protocol consideration. My son was moderate/severe in the beginning. He is high functioning now. He is bright, funny, imaginative and very well behaved. We home school now, and at the beginning of that I was worried we might get sick of being together all the time, but this has been a wonderful experience, and I love being with him. It gets hectic, but he is making up a lot of ground lost due to societies preconceived notions regarding autism. I firmly believe that with continued AC chelation, my son will continue to improve and healing is very possible. Three years form now, we will know for sure, but we KNOW our son is mercury toxic, and getting the mercury out can only help. I am just still walking on cloud nine that he has not been sick, has not shown signs of asthma, and has not needed steroids in over a month. I am not a doctor. I am just a mom who has studied, researched, and worked her @$$ off to get her son back. Hope this helps you. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 i know, thats why I was asking for the clarification. From: noaholiviaian Sent: Wednesday, February 16, 2011 12:52 PM Subject: [ ] Re: Porphyrins, Urine through Doctor Data Valtrex is not a chelator. > >> > >> Does this test only check for Mercury does anyone know? I also am trying > >> to > >>understand something my daughter is 2.5 and if she does have high mercury > >> how is > >>that possible??? Her titers are high for 6 different shots..with Rubella > >> being > >>385.3 but I thought that all mercury was removed from shots in 2000? My > >> daughter > >>never had a flu shot nor have I. I would think that my dan would be > >> checking for > >>other metals not mercury but from what I am reading Porphyrins only covers > >>mercury..I'm more worried about Aluminum.We did a blood test for lead and > >> she > >>was fine...just trying to understand. > >> > >> > >> > >> Thanks, > >> > >> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Metals are bound to viruses so i suppose when you get rid of virus metals are moved to On 2/16/11, noaholiviaian <phaselow@...> wrote: > Valtrex is not a chelator. > > >> >> >> >> Does this test only check for Mercury does anyone know? I also am >> >> trying >> >> to >> >>understand something my daughter is 2.5 and if she does have high >> >> mercury >> >> how is >> >>that possible??? Her titers are high for 6 different shots..with Rubella >> >> being >> >>385.3 but I thought that all mercury was removed from shots in 2000? My >> >> daughter >> >>never had a flu shot nor have I. I would think that my dan would be >> >> checking for >> >>other metals not mercury but from what I am reading Porphyrins only >> >> covers >> >>mercury..I'm more worried about Aluminum.We did a blood test for lead >> >> and >> >> she >> >>was fine...just trying to understand. >> >> >> >> >> >> >> >> Thanks, >> >> >> >> >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011  Chelation then also would take the virus then right? ________________________________ From: Cotter <cotter.mary1@...> Sent: Wed, February 16, 2011 3:44:50 PM Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data  Metals are bound to viruses so i suppose when you get rid of virus metals are moved to On 2/16/11, noaholiviaian <phaselow@...> wrote: > Valtrex is not a chelator. > > >> >> >> >> Does this test only check for Mercury does anyone know? I also am >> >> trying >> >> to >> >>understand something my daughter is 2.5 and if she does have high >> >> mercury >> >> how is >> >>that possible??? Her titers are high for 6 different shots..with Rubella >> >> being >> >>385.3 but I thought that all mercury was removed from shots in 2000? My >> >> daughter >> >>never had a flu shot nor have I. I would think that my dan would be >> >> checking for >> >>other metals not mercury but from what I am reading Porphyrins only >> >> covers >> >>mercury..I'm more worried about Aluminum.We did a blood test for lead >> >> and >> >> she >> >>was fine...just trying to understand. >> >> >> >> >> >> >> >> Thanks, >> >> >> >> >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 April, Thank you for the complement. You said traditional, and I am assuming you are doing it orally. the only thing that concerns me is the dosage. For a child of 63 lbs. the recommended dosage is 1/8 to 1/2 mg per pound of body wieght. The ALA dose is fine, but I worry about the 100 mg of DMSA each dose. DMSA is hard on the liver, so surely your DAN is keeping tabs on liver function? ALA can increase copper (causes the body to retain more copper. We have to watch this in my son who had very high copper in the beginning. Did your DAN just start him out at that high of a dose of DMSA? Please, just keep an eye on liver function. My son should be getting about 18 mg for his weight, but we started low at 12.5. I still see yeast a problem with yeast at this dose, so we will wait before raising it. Moria Merriweather is very knowledgeable. She was on this list when we first came here years ago, and she helped me a lot. I think she has a website, and there summarizes these things. I don't want to scare you, but these are still powerful substances. I'm simply wondering the rationale on a dosage of DMSA that high. I am glad your child is doing so well, but I am compelled to caution you about that dosage. More is not always better. perhaps someone here more knowledgeable will comment on this? There are many substances used -- some daily that are hard on the liver, Tylenol being the best known. There are people who think taking more Tylenol -- 2, 3, 4 times the recommended dose is better, but this can cause serious liver damage, even liver failure. You do have to be careful. Did the doc explain why that high? It is only my opinion, but did you try or start out at a lower dose of DMSA and saw no gains? I hope you don't mind my asking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Rochelle, I bought the test through my dan and sent it off on Tuesday so what is done is done. I am just trying to understand why we would only test for mercury and nothing else but maybe she just wants to rule it out. We have been working with Dr Chandra at Dr Usman's office since August and after my daughter's titers lab came back in November she wanted us to start seeing Dr Usman (Rubella is 385.3). On 02/03 was our first appointment with Dr Usman she seemed nice enough and I didn't get the feeling she was trying to scam us at all in fact she rush us alittle so that we would only be chanrged for a hr. When she brought up the test I just thought it would test for all the metals but after getting home and researching I found out different. In my daughter cause because she is so young and because I thought that mercury was out of the shots since 2001..I was confused as to why she would choose the Porphyrins test. I guess I could call and ask a her but I just thought I would ask someone on the board.Now that I think of it maybe it's because she thinks my daughter might have a mitochondrial disorder based on some high/low acids and the test also checks creatinine right? I guess if we are doing the test to rule out mercury and a mito disorder then it's worth the money..even if she needs to do another test for the other metals. Also athought I am reserching like crazy and I'm on many boards I am not " soaking " the information like most parents are..really you people are really smart.I need someone to guide me so I hope that's what Dr Usman is in the business for.. to help and guide a parent so that they can help their child. Thanks, > > > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Dear , All DAN doctors including Dr. Usman and her associate Dr. Chandra are in the business of making money. Even if my child high rubella titers I would never give him herpes medication Valtrex or nystatin or diflucan. The allopathic system has done enough damage to my son and i am not interested in exacerbating it by adding some more drugs. But thats just me. If you mention Andy Cuttler protocol to any of the DANs they get angry because their way is the best way and since children get better they would loose their source of income. Atleast thats what ive understood from my 1+ years of lurking in this forum. There is no way that you can tell whether someone has mitochondrial dysfunction without doing a muscle biopsy. You can only suspect that a child has mito-disorder and order mito-cocktail. I can tell you what a mito-cocktail is in details with dosage. Think of it this way. When you see dr. Usman you pay 450/hr. If i was her and the meeting exceeded 1 hr by 5 minutes i would be loosing money because i have to see a patient right after you. I would rush you too so that i can go about and make some more money by seeing the next patient. Rochelle. > > > > > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > > > > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 I like you..you bring up some good points!! You have my husband way of thinking. I don't know what approach she uses on metals we never talked about it.So did you want to AC and she said no..I know another child who is being seen by Dr Usman and through her mom's blog I have read that she does AC with Usman but maybe she pushed for it. Are you local? ________________________________ From: rochelle b <mcroche2002@...> Sent: Thu, February 17, 2011 1:03:53 AM Subject: [ ] Re: Porphyrins, Urine through Doctor Data  Dear , All DAN doctors including Dr. Usman and her associate Dr. Chandra are in the business of making money. Even if my child high rubella titers I would never give him herpes medication Valtrex or nystatin or diflucan. The allopathic system has done enough damage to my son and i am not interested in exacerbating it by adding some more drugs. But thats just me. If you mention Andy Cuttler protocol to any of the DANs they get angry because their way is the best way and since children get better they would loose their source of income. Atleast thats what ive understood from my 1+ years of lurking in this forum. There is no way that you can tell whether someone has mitochondrial dysfunction without doing a muscle biopsy. You can only suspect that a child has mito-disorder and order mito-cocktail. I can tell you what a mito-cocktail is in details with dosage. Think of it this way. When you see dr. Usman you pay 450/hr. If i was her and the meeting exceeded 1 hr by 5 minutes i would be loosing money because i have to see a patient right after you. I would rush you too so that i can go about and make some more money by seeing the next patient. Rochelle. > > > > > > Does this test only check for Mercury does anyone know? I also am trying to >understand something my daughter is 2.5 and if she does have high mercury how is >that possible??? Her titers are high for 6 different shots..with Rubella being >385.3 but I thought that all mercury was removed from shots in 2000? My daughter >never had a flu shot nor have I. I would think that my dan would be checking for >other metals not mercury but from what I am reading Porphyrins only covers >mercury..I'm more worried about Aluminum.We did a blood test for lead and she >was fine...just trying to understand. > > > > > > > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Yes, I am local. Email me privately. > > > > > > > > Does this test only check for Mercury does anyone know? I also am trying to > >understand something my daughter is 2.5 and if she does have high mercury how is > >that possible??? Her titers are high for 6 different shots..with Rubella being > >385.3 but I thought that all mercury was removed from shots in 2000? My daughter > >never had a flu shot nor have I. I would think that my dan would be checking for > >other metals not mercury but from what I am reading Porphyrins only covers > >mercury..I'm more worried about Aluminum.We did a blood test for lead and she > >was fine...just trying to understand. > > > > > > > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Unfortunately, I have a very similar feeling about doctors. And I don't think they intentionally pull the wool over our eyes, I truly think it's their education that is suffering in this area. With that said, they do help with testing. Treatment however, I take full responsibility for that. I will listen to a doctor respectfully, then go home and do my own research. The results often differ greatly. I prefer to avoid prescription medication too. I tried this route with Clostridia/yeast and I swear the beasts grew harder to manage!! When I took things into my own hands and chose a modified biofilm protocol (because it made sense and I removed EDTA, because I have a mercury toxic kid) and I chose all natural antimicrobials, plus did Andy Cutler chelation....we now have a clean DNA stool test!! Totally clean, NOTHING pathogenic, only good bacteria to speak of!! Now, this doesn't mean we don't still have work ahead of us, because we still have a ton of chelation to do and I believe we have viruses to clear which we are also working on, BUT this is HUGE for us!! In the past his Clostridia was three times the normal high and he had moderate yeast. Feel free to visit my blog for our story - http://grayson-youarewhatyoueat.blogspot.com/ > > > > > > > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > > > > > > > > > > > > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Good observation. I concur, how respectful that is of professionals first, vs., being a true volunteer first (or Individual/person first) I suppose.. . Glavic > > > > > > > > > > Does this test only check for Mercury does anyone know? I also am trying to understand something my daughter is 2.5 and if she does have high mercury how is that possible??? Her titers are high for 6 different shots..with Rubella being 385.3 but I thought that all mercury was removed from shots in 2000? My daughter never had a flu shot nor have I. I would think that my dan would be checking for other metals not mercury but from what I am reading Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood test for lead and she was fine...just trying to understand. > > > > > > > > > > > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Hi Haven, Thank you for your concern and you are welcome No, we didn't start off at a lower dose. My son is always a slow responder and I was ok with a higher dose from the beginning. We did talk about doing some test later to check his liver function (forgot the name of the test). However, before you warned me about his high DMSA dose, I was already contemplating to remove it from the protocol. In the challenge test done in mid January, the result showed that he had slightly elevated lead level (8.6) and much higher mercury level (23). Since his mercury is high which apparently is the main cause for his neurological dysfunction and I want to focus on getting it out of his body first. Plus, with the tendency of yeast flare-up from DMSA, it is just not worth the fight when we are dealing with a chronicle yeast/bacteria battle. For us, the priority should be mercury out first. I do like my DAN and believe he truly cares about his patients. He might not be the ultimate go-to doctor (he even jokingly admitted that I sometimes know more than he does) but his laid back bedside manner and reasonable fee ($190 per visit) keep me coming back BTW, he never charges me for anything else. I get all the supplements he recommends from either local health food stores or online retailers. I guess he is an exception. Thanks again for your insight. April Re: [ ] Porphyrins, Urine through Doctor Data April, Thank you for the complement. You said traditional, and I am assuming you are doing it orally. the only thing that concerns me is the dosage. For a child of 63 lbs. the recommended dosage is 1/8 to 1/2 mg per pound of body wieght. The ALA dose is fine, but I worry about the 100 mg of DMSA each dose. DMSA is hard on the liver, so surely your DAN is keeping tabs on liver function? ALA can increase copper (causes the body to retain more copper. We have to watch this in my son who had very high copper in the beginning. Did your DAN just start him out at that high of a dose of DMSA? Please, just keep an eye on liver function. My son should be getting about 18 mg for his weight, but we started low at 12.5. I still see yeast a problem with yeast at this dose, so we will wait before raising it. Moria Merriweather is very knowledgeable. She was on this list when we first came here years ago, and she helped me a lot. I think she has a website, and there summarizes these things. I don't want to scare you, but these are still powerful substances. I'm simply wondering the rationale on a dosage of DMSA that high. I am glad your child is doing so well, but I am compelled to caution you about that dosage. More is not always better. perhaps someone here more knowledgeable will comment on this? There are many substances used -- some daily that are hard on the liver, Tylenol being the best known. There are people who think taking more Tylenol -- 2, 3, 4 times the recommended dose is better, but this can cause serious liver damage, even liver failure. You do have to be careful. Did the doc explain why that high? It is only my opinion, but did you try or start out at a lower dose of DMSA and saw no gains? I hope you don't mind my asking. Quote Link to comment Share on other sites More sharing options...
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