Jump to content
RemedySpot.com

Re: Porphyrins, Urine through Doctor Data

Rate this topic


Guest guest

Recommended Posts

Dont waste your time with poryphirin tests through DAN. From all you know it

might just be a scam. what are your daughters symptoms. Chelate using ANDY

CUTTLER protocol. It will chelate almunium as well as mercury.

Rochelle.

>

> Does this test only check for Mercury does anyone know? I also am trying to

understand something my daughter is 2.5 and if she does have high mercury how is

that possible??? Her titers are high for 6 different shots..with Rubella being

385.3 but I thought that all mercury was removed from shots in 2000? My daughter

never had a flu shot nor have I. I would think that my dan would be checking for

other metals not mercury but from what I am reading Porphyrins only covers

mercury..I'm more worried about Aluminum.We did a blood test for lead and she

was fine...just trying to understand.

>

>

>

> Thanks,

>

>

Link to comment
Share on other sites

Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a

good doctor and I hope she isn't doing a test that is of no good. My daughter

symptoms are

poor eye contact

2 words at 30 months no point or repeating

hand stimming..more like a wawe

hard to engage

repetitive play

I bought the test from Usman for 140 and sent it off today..we have been doing

biomedical how for 6 months..diets..basic supplements..B12..last appointment she

said that we can start working on my daughter viral issues..she has high titers

for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex and

Difulcan and await the test results..if she does well with Valtrex and has low

metals... I wasn't going to go after the metals..but if the test only shows

mercury then I am going to test for the others. I just don't want to keep taking

blood, urine from her you know.

________________________________

From: rochelle b <mcroche2002@...>

Sent: Wed, February 16, 2011 12:11:21 AM

Subject: [ ] Re: Porphyrins, Urine through Doctor Data

 

Dont waste your time with poryphirin tests through DAN. From all you know it

might just be a scam. what are your daughters symptoms. Chelate using ANDY

CUTTLER protocol. It will chelate almunium as well as mercury.

Rochelle.

>

> Does this test only check for Mercury does anyone know? I also am trying to

>understand something my daughter is 2.5 and if she does have high mercury how

is

>that possible??? Her titers are high for 6 different shots..with Rubella being

>385.3 but I thought that all mercury was removed from shots in 2000? My

daughter

>never had a flu shot nor have I. I would think that my dan would be checking

for

>other metals not mercury but from what I am reading Porphyrins only covers

>mercury..I'm more worried about Aluminum.We did a blood test for lead and she

>was fine...just trying to understand.

>

>

>

> Thanks,

>

>

Link to comment
Share on other sites

We use labbio in france they send you kit you get results posted and

emailed to yourself. If you do start valtrex send base line urine for

metal testing valtrex pulled so much metals from our son and that was

on a daily basis. Metals bind to the viruses not sure if works other

way around and chelation helps remove viruses does anyone know

On 2/16/11, <ginger82099@...> wrote:

> Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a

> good doctor and I hope she isn't doing a test that is of no good. My

> daughter

> symptoms are

> poor eye contact

> 2 words at 30 months no point or repeating

> hand stimming..more like a wawe

> hard to engage

> repetitive play

>

>

>

> I bought the test from Usman for 140 and sent it off today..we have been

> doing

> biomedical how for 6 months..diets..basic supplements..B12..last appointment

> she

> said that we can start working on my daughter viral issues..she has high

> titers

> for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex

> and

> Difulcan and await the test results..if she does well with Valtrex and has

> low

> metals... I wasn't going to go after the metals..but if the test only shows

> mercury then I am going to test for the others. I just don't want to keep

> taking

> blood, urine from her you know.

>

>

>

>

>

> ________________________________

> From: rochelle b <mcroche2002@...>

>

> Sent: Wed, February 16, 2011 12:11:21 AM

> Subject: [ ] Re: Porphyrins, Urine through Doctor Data

>

>

> Dont waste your time with poryphirin tests through DAN. From all you know it

> might just be a scam. what are your daughters symptoms. Chelate using ANDY

> CUTTLER protocol. It will chelate almunium as well as mercury.

> Rochelle.

>

>

>>

>> Does this test only check for Mercury does anyone know? I also am trying

>> to

>>understand something my daughter is 2.5 and if she does have high mercury

>> how is

>>that possible??? Her titers are high for 6 different shots..with Rubella

>> being

>>385.3 but I thought that all mercury was removed from shots in 2000? My

>> daughter

>>never had a flu shot nor have I. I would think that my dan would be

>> checking for

>>other metals not mercury but from what I am reading Porphyrins only covers

>>mercury..I'm more worried about Aluminum.We did a blood test for lead and

>> she

>>was fine...just trying to understand.

>>

>>

>>

>> Thanks,

>>

>>

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

Did you see any gains from Valtrex?

________________________________

From: Cotter <cotter.mary1@...>

Sent: Wed, February 16, 2011 2:38:18 AM

Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data

 

We use labbio in france they send you kit you get results posted and

emailed to yourself. If you do start valtrex send base line urine for

metal testing valtrex pulled so much metals from our son and that was

on a daily basis. Metals bind to the viruses not sure if works other

way around and chelation helps remove viruses does anyone know

On 2/16/11, <ginger82099@...> wrote:

> Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a

> good doctor and I hope she isn't doing a test that is of no good. My

> daughter

> symptoms are

> poor eye contact

> 2 words at 30 months no point or repeating

> hand stimming..more like a wawe

> hard to engage

> repetitive play

>

>

>

> I bought the test from Usman for 140 and sent it off today..we have been

> doing

> biomedical how for 6 months..diets..basic supplements..B12..last appointment

> she

> said that we can start working on my daughter viral issues..she has high

> titers

> for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex

> and

> Difulcan and await the test results..if she does well with Valtrex and has

> low

> metals... I wasn't going to go after the metals..but if the test only shows

> mercury then I am going to test for the others. I just don't want to keep

> taking

> blood, urine from her you know.

>

>

>

>

>

> ________________________________

> From: rochelle b <mcroche2002@...>

>

> Sent: Wed, February 16, 2011 12:11:21 AM

> Subject: [ ] Re: Porphyrins, Urine through Doctor Data

>

>

> Dont waste your time with poryphirin tests through DAN. From all you know it

> might just be a scam. what are your daughters symptoms. Chelate using ANDY

> CUTTLER protocol. It will chelate almunium as well as mercury.

> Rochelle.

>

>

>>

>> Does this test only check for Mercury does anyone know? I also am trying

>> to

>>understand something my daughter is 2.5 and if she does have high mercury

>> how is

>>that possible??? Her titers are high for 6 different shots..with Rubella

>> being

>>385.3 but I thought that all mercury was removed from shots in 2000? My

>> daughter

>>never had a flu shot nor have I. I would think that my dan would be

>> checking for

>>other metals not mercury but from what I am reading Porphyrins only covers

>>mercury..I'm more worried about Aluminum.We did a blood test for lead and

>> she

>>was fine...just trying to understand.

>>

>>

>>

>> Thanks,

>>

>>

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

If I am honest we did not see gains,but our son is also dealing with lymes

and its co infections ,what i liked about valtrex was we were

getting rid of virsuses and metals,i now believe we didnt continue on long

enough,also we prob should have rotated the anti virals,he tested positive

for EBV CMV coxsackie measles rubella varcilla so virsuses are big issue, he

also has high levels of metals,we carried out chelation re DAN protocol but

he just got sicker,i am really intrested in trying AC protocol,and intend to

start this weekend,am nervous because everytime we start new thing we see

regression and no gains,his detox or lymph drainage is not working despite

being on numerous draiange remedies.good luck if you try valtex i am honsely

thinking of revisiting it ,

On Wed, Feb 16, 2011 at 8:44 AM, <ginger82099@...> wrote:

>

>

> Did you see any gains from Valtrex?

>

> ________________________________

> From: Cotter <cotter.mary1@...>

>

>

> Sent: Wed, February 16, 2011 2:38:18 AM

> Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data

>

>

>

> We use labbio in france they send you kit you get results posted and

> emailed to yourself. If you do start valtrex send base line urine for

> metal testing valtrex pulled so much metals from our son and that was

> on a daily basis. Metals bind to the viruses not sure if works other

> way around and chelation helps remove viruses does anyone know

>

> On 2/16/11, <ginger82099@...> wrote:

> > Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she

> was a

> > good doctor and I hope she isn't doing a test that is of no good. My

> > daughter

> > symptoms are

> > poor eye contact

> > 2 words at 30 months no point or repeating

> > hand stimming..more like a wawe

> > hard to engage

> > repetitive play

> >

> >

> >

> > I bought the test from Usman for 140 and sent it off today..we have been

> > doing

> > biomedical how for 6 months..diets..basic supplements..B12..last

> appointment

> > she

> > said that we can start working on my daughter viral issues..she has high

> > titers

> > for 6 different shots..rubella is 385.3 sky high so we are starting

> Valtrex

> > and

> > Difulcan and await the test results..if she does well with Valtrex and

> has

> > low

> > metals... I wasn't going to go after the metals..but if the test only

> shows

> > mercury then I am going to test for the others. I just don't want to keep

> > taking

> > blood, urine from her you know.

> >

> >

> >

> >

> >

> > ________________________________

> > From: rochelle b <mcroche2002@...>

> >

> > Sent: Wed, February 16, 2011 12:11:21 AM

> > Subject: [ ] Re: Porphyrins, Urine through Doctor Data

> >

> >

> > Dont waste your time with poryphirin tests through DAN. From all you know

> it

> > might just be a scam. what are your daughters symptoms. Chelate using

> ANDY

> > CUTTLER protocol. It will chelate almunium as well as mercury.

> > Rochelle.

> >

> >

> >>

> >> Does this test only check for Mercury does anyone know? I also am trying

> >> to

> >>understand something my daughter is 2.5 and if she does have high mercury

> >> how is

> >>that possible??? Her titers are high for 6 different shots..with Rubella

> >> being

> >>385.3 but I thought that all mercury was removed from shots in 2000? My

> >> daughter

> >>never had a flu shot nor have I. I would think that my dan would be

> >> checking for

> >>other metals not mercury but from what I am reading Porphyrins only

> covers

> >>mercury..I'm more worried about Aluminum.We did a blood test for lead and

> >> she

> >>was fine...just trying to understand.

> >>

> >>

> >>

> >> Thanks,

> >>

> >>

> >

> >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Hair tests are less expensive and tell you what you need to know, but you have

to read it using the counting rules. Many doctors do not read them using the

counting rules and feel that they are useless. If your child has metal, use AC

cheltaion.

Dr. Suzanne DaSilva

www.biomedicaldoc.com

> > >>

> > >> Does this test only check for Mercury does anyone know? I also am trying

> > >> to

> > >>understand something my daughter is 2.5 and if she does have high mercury

> > >> how is

> > >>that possible??? Her titers are high for 6 different shots..with Rubella

> > >> being

> > >>385.3 but I thought that all mercury was removed from shots in 2000? My

> > >> daughter

> > >>never had a flu shot nor have I. I would think that my dan would be

> > >> checking for

> > >>other metals not mercury but from what I am reading Porphyrins only

> > covers

> > >>mercury..I'm more worried about Aluminum.We did a blood test for lead and

> > >> she

> > >>was fine...just trying to understand.

> > >>

> > >>

> > >>

> > >> Thanks,

> > >>

> > >>

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

Link to comment
Share on other sites

Don't bother with a porphyrins test. Use the Doctor's Data Hair Elements

test, and apply the rules of counting per the Dr. Andy Cutler Protocol, and

stop letting a DAN milk away your money having you pay for meaningless tests

and frivolous supplements -- many of which don't work. (What I would give to

have all t hat money back).

My son in now eleven. I admit that we have been lucky. The very basic

things we did: diet (gf/cf/sf) and metabolic supports: vitamins, minerals,

amino acids along with therapeutic interventions helped our son quite a bit.

We were scared and not knowledgeable the beginning and thought we had to

have a doc on board to do AC, and of course DANS steered us away from that

as they can't make enough money off it, so we were steered toward IV

chelation which caused regressions and serious respiratory reactions in our

son.

What you may wind up finding happens with a DAN (and I am not saying this is

a definite) is that they try or have you try all these different things, and

then when none of it works, then they will tell you maybe you ought to put

the child on psychotropics after all. Well, for us, we were not going to

put our son on Prozac just because he was stimming and had hyperactivity.

What was more important to us was WHY the stimming came back (probably due

to IV chelation) and why the hyperactivity came back (probably doing IV

again). Then I remembered how those close to the AC Protocol had helped

put us on the right track in the beginning, and I found myself wishing I had

listened to Dr. Cutler all those years ago as anything he had told me to do

helped. But we didn't listen at that time about the proper way to chelate

heavy metals.

You need to do a hair test on your child and apply the rules of counting.

If your child has received any vaccine sin the last thirty years, your child

has been injected with both mercury and aluminum - among many other toxic

chemicals like antifreeze and formaldehyde.

They did not take the mercury out. My son received 67.5mcg mercury via

vaccines on March 7, 2001, and IMMEDIATELY lost all speech and began a

downward spiral behaviorally, digestively, immunologically, and

neurologically. Even if they had actually taken it out and been truthful

with the public, the FDA NEVER recalled the thimerosal-containing vials

still on the shelves -- a supply which may well still be out there but

minimally would have lasted an additional seven years.

The flu, combo flu this year, tetanus, and rabies shots all still contain

the full complement of mercury. ALL non-live virus vaccine are still MADE

(manufactured) using thimerosal. They told the public they took it out, but

they supposedly take it out AFTER it is manufactured with it. They

supposedly extract it out after the manufacturing process. HA-Ha.

Mercury hides. Mercury bind TIGHTLY to protein (and fat) and as any parent

who has ever tried to get it out of their child can attest, mercury is very

difficult to unbind. It does not reside in the blood for long. Any

exposure not excreted by the body will reside in the fatty tissues in the

body: the brain, the kidneys, the liver, the lining of the intestine. It is

really they only thing that can cause abnormal mineral transport int he

body. so if you look to see whether there is abnormal mineral transport in

the body. therefore it has the power to disrupt myriad biochemical reactions

in the body.

All vaccines are made with animal protein -- ah, something for the mercury

to bind tightly to. And who polices the extraction of mercury from the

product? Well, our government allows the pharmaceutical industry to police

itself! Maybe because this industry contributes heavily to their

campaigns. You think?

In addition, the vaccines are still sold in multi-dose vials rather than

safer one dose vials (which would not require a preservative). Many factors

can play a roll in how much mercury an individual child receives. Sometimes

it can be that the nurse doesn't shake the bottle well enough, so one child

gets much more mercury than the next child.

In some vaccine, mercury and aluminum are in there together. The aluminum

acts as a catalyst and makes whatever mercury is in there even more toxic.

In vaccines where they " took the mercury out, " they added aluminum as the

primary preservative. Aluminum- a substance known to cause neuronal cell

death and suspect in contributing to breast cancer and Alzheimer's. No

wonder autism has continued to rise, given the number of vaccines and the

amount of mercury and aluminum children are still getting via vaccines.

In all this, mercury is still the primary problem. They try to comfort the

public by saying that it is ethyl-mercury and not methyl. Big whoopee-do.

it is STILL the second most toxic substance on the face of the Earth. No

safety studies were ever done on infants using methyl mercury (unless you

count the massive human experimentation on our children over the last thirty

or forty years). They " guessed. " They based its efficacy and safety on

several men who were dying of meningitis who they injected with thimerosal,

and when the men died, the cause of death was listed as meningitis and

thimerosal was pronounced safe.

Did your child receive the Hib shot? This is a type of flu shot.

You need to buy Andy Cutler's book " Amalgam Illness, " Study it. Get your

DAN to order a Doctor's Data Hair elements test and apply the rules of

counting to determine if your child is mercury toxic. If so, then your

child is probably toxic in other heavy metals too, as mercury disrupts the

detoxification system in the body. If you get the mercury out, the other

metals will follow.

Our environment is filled with this stuff! so our children with depressed

detoxification systems are picking more of it up elsewhere, as well, and it

is cumulative in the body. it is in batteries, lights, electronics, the

air, the water, and in the food supply. It is " pervasive. "

I suggest you use the AC Protocol for chelation. It will take 100 to 300

rounds to get the mercury out, so you are looking at from a little over two

years to six years. But this is a very safe -- low and slow method of

chelation. DO NOT allow yourself to get talked into IV chelation, which I

now believe to be dangerous.

You can still use your DAN to do certain tests when they are warranted such

as re-checking for yeast (which you can tell by behavior usually) and you

can test for neutrophil count and once in a while for kidney/liver function.

In case you have not done so yet, I hope you have done a copper check. Many

of these children can have abnormal levels of copper and disrupted

copper/zinc in the body due to the abnormal mineral transport. High levels

of copper over time can cause permanent brain damage, so I think all

children with this condition should be checked for high copper ASAP. Zinc

chelates copper. My son's levels were so high after vaccine reaction that

they thought he had 's disease (a genetic disorder), but of course it

wasn't 's, but he has needed to be on extra zinc ever since to keep

his copper levels in check.

As I said, we were very lucky. Perhaps my son's own detoxification system

was not as damaged as other children, so doing the gf/cf/sf diet and adding

metabolic supports helped him tremendously and brought back functional

language. Later, he regained expressive speech and two years ago,

reciprocal speech emerged, and now he has all forms of speech, though about

five years delayed.

By age four, all stimming had ceased, his SID and OCD were all but gone but

then at age six we got persuaded to do IV chelation, and the SID, stimming,

and OCD returned.

His immune system was severely damaged by the reaction to vaccines. He

began getting sick all the time. From age fifteen months on, he would

develop an infection with fever roughly every two weeks like clock work.

these were usually respiratory. He has had pneumonia eight times, countless

bouts of bronchitis, and they told us he had asthma. He was sick so much we

finally put him on steroids, which made him gain a lot of weight and only

reduced his illnesses by half.

Then he developed an inability to fight off the bacteria that gets

introduced when an insect bites him, so every time he gets bitten, he will

develop radiating staph from each and every bite site. Fire ant bites cause

anaphylaxis, and allergy shots did nothing to reduce the allergic response.

Then after some events that occurred at our DANS last summer, I took a step

back and reassessed and remembered that in the beginning, the A-M group had

helped us a great deal, so I came back, and from here I learned about the

RFA group, which has helped tremendously, an we began the AC Protocol a

little over a month ago.

I learned that very often asthma symptoms can really be a sign/symptom of

adrenal fatigue (another lovely gift of mercury poisoning as mercury likes

to settle there, as well). A little over a month ago, I started giving my

son ACE (Adrenal Cortex Extract). My son is being chelated using ALA only

due to his being a very reactive kid. Since beginning this protocol, my son

has needed NO asthma medications. He has not needed his rescue inhaler even

once! He has not been sick.

This is the longest my son has gone without being sick in over nine years!

On rounds he is more focused and there is less stimming, SID, OCD. About

days 2 and three off rounds, the yeast flares up, and we are trying to fight

this with biotin and GSE, but yeast is a big problem for most of these

children. We will prevail.

I urge you to give the AC Protocol consideration.

My son was moderate/severe in the beginning. He is high functioning now.

He is bright, funny, imaginative and very well behaved. We home school now,

and at the beginning of that I was worried we might get sick of being

together all the time, but this has been a wonderful experience, and I love

being with him. It gets hectic, but he is making up a lot of ground lost

due to societies preconceived notions regarding autism. I firmly believe

that with continued AC chelation, my son will continue to improve and

healing is very possible. Three years form now, we will know for sure, but

we KNOW our son is mercury toxic, and getting the mercury out can only

help. I am just still walking on cloud nine that he has not been sick, has

not shown signs of asthma, and has not needed steroids in over a month.

I am not a doctor. I am just a mom who has studied, researched, and worked

her @$$ off to get her son back.

Hope this helps you.

Haven

Link to comment
Share on other sites

,

We've used porphyrin tests from Labbio in France and have found them helpful

(only two, over a period of 4 years, so not testing all the time). The reason

why I bothered to do it was because my son hasn't progressed like many children

do, and I had lots of questions as to why.

Do know that these tests can give false negatives, and that some people have

tested negative, chelated a few rounds, and then tested positive. Also, if you

are chelating, you need to wait four weeks after the last round in order not to

get a falsely elevated result. You must handle the sample carefully too.

There are a couple good papers in the files section here at AM which can tell

you what metals the test will cover.

Anita

>

> Does this test only check for Mercury does anyone know? I also am trying to

understand something my daughter is 2.5 and if she does have high mercury how is

that possible??? Her titers are high for 6 different shots..with Rubella being

385.3 but I thought that all mercury was removed from shots in 2000? My daughter

never had a flu shot nor have I. I would think that my dan would be checking for

other metals not mercury but from what I am reading Porphyrins only covers

mercury..I'm more worried about Aluminum.We did a blood test for lead and she

was fine...just trying to understand.

>

>

>

> Thanks,

>

>

Link to comment
Share on other sites

,

We went to Anju Usman too for a year. We saw no improvements whatsoever in any

area. My child who is 2.8 year old still has all the symptoms.Please send me a

private email so that we can discuss.

Thanks

Rochelle.

> >

> > Does this test only check for Mercury does anyone know? I also am trying to

> >understand something my daughter is 2.5 and if she does have high mercury how

is

> >that possible??? Her titers are high for 6 different shots..with Rubella

being

> >385.3 but I thought that all mercury was removed from shots in 2000? My

daughter

> >never had a flu shot nor have I. I would think that my dan would be checking

for

> >other metals not mercury but from what I am reading Porphyrins only covers

> >mercury..I'm more worried about Aluminum.We did a blood test for lead and she

> >was fine...just trying to understand.

> >

> >

> >

> > Thanks,

> >

> >

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

My 2 cents. I personally think the urine porphorine test was the best gage of

mercury I did for my son. They offer other tests. Since it's hard to assess all

around, this test just gives you a look from a different angle. And Dr. Usman

is great, do trust her. With these kids, she IS the one who knows. It is really

hard with little kids because they are going to develop regardless what

supplement, therapy, chelation protocal you might try. Looking back, I think

it's a matter of stick to it ness. I dropped things too soon, didn't do it

correctly...it's a tricky process.

The Dr.s I do not trust are mainstream denialists. They aren't worth a crap.

So what if insurance pays, they generally offer nothing and take a huge sum of

money. Let'em starve!

I would to the porphyrin test through the French Lab

I repeat...Dr. Usman and the word scam to NOT belong together. That woman is

the real deal and you are lucky to even get time with her.

>

> Does this test only check for Mercury does anyone know? I also am trying to

understand something my daughter is 2.5 and if she does have high mercury how is

that possible??? Her titers are high for 6 different shots..with Rubella being

385.3 but I thought that all mercury was removed from shots in 2000? My daughter

never had a flu shot nor have I. I would think that my dan would be checking for

other metals not mercury but from what I am reading Porphyrins only covers

mercury..I'm more worried about Aluminum.We did a blood test for lead and she

was fine...just trying to understand.

>

>

>

> Thanks,

>

>

Link to comment
Share on other sites

You can contact me privately about Dr. Usman, also. I took my son to see her

between 2004-2007. Overtesting is a DAN!-wide issue, not just Dr. Usman.

Pam

> > >

> > > Does this test only check for Mercury does anyone know? I also am trying

to

> > >understand something my daughter is 2.5 and if she does have high mercury

how is

> > >that possible??? Her titers are high for 6 different shots..with Rubella

being

> > >385.3 but I thought that all mercury was removed from shots in 2000? My

daughter

> > >never had a flu shot nor have I. I would think that my dan would be

checking for

> > >other metals not mercury but from what I am reading Porphyrins only covers

> > >mercury..I'm more worried about Aluminum.We did a blood test for lead and

she

> > >was fine...just trying to understand.

> > >

> > >

> > >

> > > Thanks,

> > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

valtrex pulled metals?!

From: Cotter

Sent: Wednesday, February 16, 2011 1:38 AM

Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data

We use labbio in france they send you kit you get results posted and

emailed to yourself. If you do start valtrex send base line urine for

metal testing valtrex pulled so much metals from our son and that was

on a daily basis. Metals bind to the viruses not sure if works other

way around and chelation helps remove viruses does anyone know

On 2/16/11, <ginger82099@...> wrote:

> Scam? Man o man who to trust anymore..my dan is Dr Usman I thought she was a

> good doctor and I hope she isn't doing a test that is of no good. My

> daughter

> symptoms are

> poor eye contact

> 2 words at 30 months no point or repeating

> hand stimming..more like a wawe

> hard to engage

> repetitive play

>

>

>

> I bought the test from Usman for 140 and sent it off today..we have been

> doing

> biomedical how for 6 months..diets..basic supplements..B12..last appointment

> she

> said that we can start working on my daughter viral issues..she has high

> titers

> for 6 different shots..rubella is 385.3 sky high so we are starting Valtrex

> and

> Difulcan and await the test results..if she does well with Valtrex and has

> low

> metals... I wasn't going to go after the metals..but if the test only shows

> mercury then I am going to test for the others. I just don't want to keep

> taking

> blood, urine from her you know.

>

>

>

>

>

> ________________________________

> From: rochelle b <mcroche2002@...>

>

> Sent: Wed, February 16, 2011 12:11:21 AM

> Subject: [ ] Re: Porphyrins, Urine through Doctor Data

>

>

> Dont waste your time with poryphirin tests through DAN. From all you know it

> might just be a scam. what are your daughters symptoms. Chelate using ANDY

> CUTTLER protocol. It will chelate almunium as well as mercury.

> Rochelle.

>

>

>>

>> Does this test only check for Mercury does anyone know? I also am trying

>> to

>>understand something my daughter is 2.5 and if she does have high mercury

>> how is

>>that possible??? Her titers are high for 6 different shots..with Rubella

>> being

>>385.3 but I thought that all mercury was removed from shots in 2000? My

>> daughter

>>never had a flu shot nor have I. I would think that my dan would be

>> checking for

>>other metals not mercury but from what I am reading Porphyrins only covers

>>mercury..I'm more worried about Aluminum.We did a blood test for lead and

>> she

>>was fine...just trying to understand.

>>

>>

>>

>> Thanks,

>>

>>

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

Valtrex is not a chelator.

> >>

> >> Does this test only check for Mercury does anyone know? I also am trying

> >> to

> >>understand something my daughter is 2.5 and if she does have high mercury

> >> how is

> >>that possible??? Her titers are high for 6 different shots..with Rubella

> >> being

> >>385.3 but I thought that all mercury was removed from shots in 2000? My

> >> daughter

> >>never had a flu shot nor have I. I would think that my dan would be

> >> checking for

> >>other metals not mercury but from what I am reading Porphyrins only covers

> >>mercury..I'm more worried about Aluminum.We did a blood test for lead and

> >> she

> >>was fine...just trying to understand.

> >>

> >>

> >>

> >> Thanks,

> >>

> >>

> >

> >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Hi Haven,

I can't tell you how much I appreciate your feedback on AC chelation. You

always provide great insight, detailed information and extreme enthusiasm. I

just want to say thank you for taking the time to help us parents who are facing

doubts, anxiety and uncertainty about implementing a protocol without doctor's

instructions but yet it's been proven to be working and safe for most children.

Your encouragement definitely plays a crucial part in our decision making.

However, I have a different situation and would like to share with others so

that for those who just can't follow the schedule will have an option without

completely giving up the treatment. My son is 10 and we just started chelation

the end of last December, under our DAN'S supervision. We are doing 3 days on

and 11 days off with DMSA and ALA. The dosage is 100 mg x3/day for DMSA and 33

mgx3/day for ALA. He weighs 63 lb and does not have any side effect/die off to

the dose and schedule, except yeast and/or bacteria. So far, he has been making

steady progress in behaviors, speech, concentration, play skills, etc. I am

really thrilled to hear his aide's and play guide's good report everyday!

I am a fairly new member to this group and have learned a lot from fellow

parents here. I know the majority of you follow AC protocol and am really happy

to learn that most of you see great results from it. I would have tried his

method if I were 10 years younger :( I am in my late 40s and just can't

function well during the day if I don't get a good quality of sleep at night.

In my house, if I get grumpy and grouchy, EVERYONE else will suffer too :)

Luckily, as I said, my son responds well to the more traditional chelation

treatment and I am very grateful for that.

Chelation or not is really a personal choice after all. I was told to chelate

my son back in 2006 by a different DAN and at that time, chelation was the last

thing on my mind. I didn't want to take the risk and I was not ready to put

some " drug " in my son's body. I was willing to try diet, therapy, intervention,

etc. Just NO DRUG. We have tried many things and gone through ups and downs.

Five years later, we are finally ready to start this journey. If I could do it

all over again, would I do it differently? Probably not. I still believe the

reason my son responds so well to the typical chelation schedule is due to his

age and all the years of dieting and supplementing. He is just in a better

condition now for chelation than 5 years ago, IMHO.

As I mentioned above, this board has provided me wealth of information and tips

and I look forward to continue the journey with you all.

April

Re: [ ] Porphyrins, Urine through Doctor Data

Don't bother with a porphyrins test. Use the Doctor's Data Hair Elements

test, and apply the rules of counting per the Dr. Andy Cutler Protocol, and

stop letting a DAN milk away your money having you pay for meaningless tests

and frivolous supplements -- many of which don't work. (What I would give to

have all t hat money back).

My son in now eleven. I admit that we have been lucky. The very basic

things we did: diet (gf/cf/sf) and metabolic supports: vitamins, minerals,

amino acids along with therapeutic interventions helped our son quite a bit.

We were scared and not knowledgeable the beginning and thought we had to

have a doc on board to do AC, and of course DANS steered us away from that

as they can't make enough money off it, so we were steered toward IV

chelation which caused regressions and serious respiratory reactions in our

son.

What you may wind up finding happens with a DAN (and I am not saying this is

a definite) is that they try or have you try all these different things, and

then when none of it works, then they will tell you maybe you ought to put

the child on psychotropics after all. Well, for us, we were not going to

put our son on Prozac just because he was stimming and had hyperactivity.

What was more important to us was WHY the stimming came back (probably due

to IV chelation) and why the hyperactivity came back (probably doing IV

again). Then I remembered how those close to the AC Protocol had helped

put us on the right track in the beginning, and I found myself wishing I had

listened to Dr. Cutler all those years ago as anything he had told me to do

helped. But we didn't listen at that time about the proper way to chelate

heavy metals.

You need to do a hair test on your child and apply the rules of counting.

If your child has received any vaccine sin the last thirty years, your child

has been injected with both mercury and aluminum - among many other toxic

chemicals like antifreeze and formaldehyde.

They did not take the mercury out. My son received 67.5mcg mercury via

vaccines on March 7, 2001, and IMMEDIATELY lost all speech and began a

downward spiral behaviorally, digestively, immunologically, and

neurologically. Even if they had actually taken it out and been truthful

with the public, the FDA NEVER recalled the thimerosal-containing vials

still on the shelves -- a supply which may well still be out there but

minimally would have lasted an additional seven years.

The flu, combo flu this year, tetanus, and rabies shots all still contain

the full complement of mercury. ALL non-live virus vaccine are still MADE

(manufactured) using thimerosal. They told the public they took it out, but

they supposedly take it out AFTER it is manufactured with it. They

supposedly extract it out after the manufacturing process. HA-Ha.

Mercury hides. Mercury bind TIGHTLY to protein (and fat) and as any parent

who has ever tried to get it out of their child can attest, mercury is very

difficult to unbind. It does not reside in the blood for long. Any

exposure not excreted by the body will reside in the fatty tissues in the

body: the brain, the kidneys, the liver, the lining of the intestine. It is

really they only thing that can cause abnormal mineral transport int he

body. so if you look to see whether there is abnormal mineral transport in

the body. therefore it has the power to disrupt myriad biochemical reactions

in the body.

All vaccines are made with animal protein -- ah, something for the mercury

to bind tightly to. And who polices the extraction of mercury from the

product? Well, our government allows the pharmaceutical industry to police

itself! Maybe because this industry contributes heavily to their

campaigns. You think?

In addition, the vaccines are still sold in multi-dose vials rather than

safer one dose vials (which would not require a preservative). Many factors

can play a roll in how much mercury an individual child receives. Sometimes

it can be that the nurse doesn't shake the bottle well enough, so one child

gets much more mercury than the next child.

In some vaccine, mercury and aluminum are in there together. The aluminum

acts as a catalyst and makes whatever mercury is in there even more toxic.

In vaccines where they " took the mercury out, " they added aluminum as the

primary preservative. Aluminum- a substance known to cause neuronal cell

death and suspect in contributing to breast cancer and Alzheimer's. No

wonder autism has continued to rise, given the number of vaccines and the

amount of mercury and aluminum children are still getting via vaccines.

In all this, mercury is still the primary problem. They try to comfort the

public by saying that it is ethyl-mercury and not methyl. Big whoopee-do.

it is STILL the second most toxic substance on the face of the Earth. No

safety studies were ever done on infants using methyl mercury (unless you

count the massive human experimentation on our children over the last thirty

or forty years). They " guessed. " They based its efficacy and safety on

several men who were dying of meningitis who they injected with thimerosal,

and when the men died, the cause of death was listed as meningitis and

thimerosal was pronounced safe.

Did your child receive the Hib shot? This is a type of flu shot.

You need to buy Andy Cutler's book " Amalgam Illness, " Study it. Get your

DAN to order a Doctor's Data Hair elements test and apply the rules of

counting to determine if your child is mercury toxic. If so, then your

child is probably toxic in other heavy metals too, as mercury disrupts the

detoxification system in the body. If you get the mercury out, the other

metals will follow.

Our environment is filled with this stuff! so our children with depressed

detoxification systems are picking more of it up elsewhere, as well, and it

is cumulative in the body. it is in batteries, lights, electronics, the

air, the water, and in the food supply. It is " pervasive. "

I suggest you use the AC Protocol for chelation. It will take 100 to 300

rounds to get the mercury out, so you are looking at from a little over two

years to six years. But this is a very safe -- low and slow method of

chelation. DO NOT allow yourself to get talked into IV chelation, which I

now believe to be dangerous.

You can still use your DAN to do certain tests when they are warranted such

as re-checking for yeast (which you can tell by behavior usually) and you

can test for neutrophil count and once in a while for kidney/liver function.

In case you have not done so yet, I hope you have done a copper check. Many

of these children can have abnormal levels of copper and disrupted

copper/zinc in the body due to the abnormal mineral transport. High levels

of copper over time can cause permanent brain damage, so I think all

children with this condition should be checked for high copper ASAP. Zinc

chelates copper. My son's levels were so high after vaccine reaction that

they thought he had 's disease (a genetic disorder), but of course it

wasn't 's, but he has needed to be on extra zinc ever since to keep

his copper levels in check.

As I said, we were very lucky. Perhaps my son's own detoxification system

was not as damaged as other children, so doing the gf/cf/sf diet and adding

metabolic supports helped him tremendously and brought back functional

language. Later, he regained expressive speech and two years ago,

reciprocal speech emerged, and now he has all forms of speech, though about

five years delayed.

By age four, all stimming had ceased, his SID and OCD were all but gone but

then at age six we got persuaded to do IV chelation, and the SID, stimming,

and OCD returned.

His immune system was severely damaged by the reaction to vaccines. He

began getting sick all the time. From age fifteen months on, he would

develop an infection with fever roughly every two weeks like clock work.

these were usually respiratory. He has had pneumonia eight times, countless

bouts of bronchitis, and they told us he had asthma. He was sick so much we

finally put him on steroids, which made him gain a lot of weight and only

reduced his illnesses by half.

Then he developed an inability to fight off the bacteria that gets

introduced when an insect bites him, so every time he gets bitten, he will

develop radiating staph from each and every bite site. Fire ant bites cause

anaphylaxis, and allergy shots did nothing to reduce the allergic response.

Then after some events that occurred at our DANS last summer, I took a step

back and reassessed and remembered that in the beginning, the A-M group had

helped us a great deal, so I came back, and from here I learned about the

RFA group, which has helped tremendously, an we began the AC Protocol a

little over a month ago.

I learned that very often asthma symptoms can really be a sign/symptom of

adrenal fatigue (another lovely gift of mercury poisoning as mercury likes

to settle there, as well). A little over a month ago, I started giving my

son ACE (Adrenal Cortex Extract). My son is being chelated using ALA only

due to his being a very reactive kid. Since beginning this protocol, my son

has needed NO asthma medications. He has not needed his rescue inhaler even

once! He has not been sick.

This is the longest my son has gone without being sick in over nine years!

On rounds he is more focused and there is less stimming, SID, OCD. About

days 2 and three off rounds, the yeast flares up, and we are trying to fight

this with biotin and GSE, but yeast is a big problem for most of these

children. We will prevail.

I urge you to give the AC Protocol consideration.

My son was moderate/severe in the beginning. He is high functioning now.

He is bright, funny, imaginative and very well behaved. We home school now,

and at the beginning of that I was worried we might get sick of being

together all the time, but this has been a wonderful experience, and I love

being with him. It gets hectic, but he is making up a lot of ground lost

due to societies preconceived notions regarding autism. I firmly believe

that with continued AC chelation, my son will continue to improve and

healing is very possible. Three years form now, we will know for sure, but

we KNOW our son is mercury toxic, and getting the mercury out can only

help. I am just still walking on cloud nine that he has not been sick, has

not shown signs of asthma, and has not needed steroids in over a month.

I am not a doctor. I am just a mom who has studied, researched, and worked

her @$$ off to get her son back.

Hope this helps you.

Haven

Link to comment
Share on other sites

i know, thats why I was asking for the clarification.

From: noaholiviaian

Sent: Wednesday, February 16, 2011 12:52 PM

Subject: [ ] Re: Porphyrins, Urine through Doctor Data

Valtrex is not a chelator.

> >>

> >> Does this test only check for Mercury does anyone know? I also am trying

> >> to

> >>understand something my daughter is 2.5 and if she does have high mercury

> >> how is

> >>that possible??? Her titers are high for 6 different shots..with Rubella

> >> being

> >>385.3 but I thought that all mercury was removed from shots in 2000? My

> >> daughter

> >>never had a flu shot nor have I. I would think that my dan would be

> >> checking for

> >>other metals not mercury but from what I am reading Porphyrins only covers

> >>mercury..I'm more worried about Aluminum.We did a blood test for lead and

> >> she

> >>was fine...just trying to understand.

> >>

> >>

> >>

> >> Thanks,

> >>

> >>

> >

> >

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Metals are bound to viruses so i suppose when you get rid of virus

metals are moved to

On 2/16/11, noaholiviaian <phaselow@...> wrote:

> Valtrex is not a chelator.

>

>

>> >>

>> >> Does this test only check for Mercury does anyone know? I also am

>> >> trying

>> >> to

>> >>understand something my daughter is 2.5 and if she does have high

>> >> mercury

>> >> how is

>> >>that possible??? Her titers are high for 6 different shots..with Rubella

>> >> being

>> >>385.3 but I thought that all mercury was removed from shots in 2000? My

>> >> daughter

>> >>never had a flu shot nor have I. I would think that my dan would be

>> >> checking for

>> >>other metals not mercury but from what I am reading Porphyrins only

>> >> covers

>> >>mercury..I'm more worried about Aluminum.We did a blood test for lead

>> >> and

>> >> she

>> >>was fine...just trying to understand.

>> >>

>> >>

>> >>

>> >> Thanks,

>> >>

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

Link to comment
Share on other sites

 Chelation then also would take the virus then right?

________________________________

From: Cotter <cotter.mary1@...>

Sent: Wed, February 16, 2011 3:44:50 PM

Subject: Re: [ ] Re: Porphyrins, Urine through Doctor Data

 

Metals are bound to viruses so i suppose when you get rid of virus

metals are moved to

On 2/16/11, noaholiviaian <phaselow@...> wrote:

> Valtrex is not a chelator.

>

>

>> >>

>> >> Does this test only check for Mercury does anyone know? I also am

>> >> trying

>> >> to

>> >>understand something my daughter is 2.5 and if she does have high

>> >> mercury

>> >> how is

>> >>that possible??? Her titers are high for 6 different shots..with Rubella

>> >> being

>> >>385.3 but I thought that all mercury was removed from shots in 2000? My

>> >> daughter

>> >>never had a flu shot nor have I. I would think that my dan would be

>> >> checking for

>> >>other metals not mercury but from what I am reading Porphyrins only

>> >> covers

>> >>mercury..I'm more worried about Aluminum.We did a blood test for lead

>> >> and

>> >> she

>> >>was fine...just trying to understand.

>> >>

>> >>

>> >>

>> >> Thanks,

>> >>

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

Link to comment
Share on other sites

April,

Thank you for the complement.

You said traditional, and I am assuming you are doing it orally. the only

thing that concerns me is the dosage. For a child of 63 lbs. the

recommended dosage is 1/8 to 1/2 mg per pound of body wieght. The ALA dose

is fine, but I worry about the 100 mg of DMSA each dose. DMSA is hard on

the liver, so surely your DAN is keeping tabs on liver function?

ALA can increase copper (causes the body to retain more copper. We have to

watch this in my son who had very high copper in the beginning. Did your

DAN just start him out at that high of a dose of DMSA?

Please, just keep an eye on liver function. My son should be getting about

18 mg for his weight, but we started low at 12.5. I still see yeast a

problem with yeast at this dose, so we will wait before raising it.

Moria Merriweather is very knowledgeable. She was on this list when we

first came here years ago, and she helped me a lot. I think she has a

website, and there summarizes these things.

I don't want to scare you, but these are still powerful substances. I'm

simply wondering the rationale on a dosage of DMSA that high. I am glad

your child is doing so well, but I am compelled to caution you about that

dosage. More is not always better. perhaps someone here more knowledgeable

will comment on this?

There are many substances used -- some daily that are hard on the liver,

Tylenol being the best known. There are people who think taking more

Tylenol -- 2, 3, 4 times the recommended dose is better, but this can cause

serious liver damage, even liver failure. You do have to be careful. Did

the doc explain why that high? It is only my opinion, but did you try or

start out at a lower dose of DMSA and saw no gains?

I hope you don't mind my asking.

Link to comment
Share on other sites

Rochelle,

I bought the test through my dan and sent it off on Tuesday so what is done is

done. I am just trying to understand why we would only test for mercury and

nothing else but maybe she just wants to rule it out. We have been working with

Dr Chandra at Dr Usman's office since August and after my daughter's titers lab

came back in November she wanted us to start seeing Dr Usman (Rubella is 385.3).

On 02/03 was our first appointment with Dr Usman she seemed nice enough and I

didn't get the feeling she was trying to scam us at all in fact she rush us

alittle so that we would only be chanrged for a hr. When she brought up the test

I just thought it would test for all the metals but after getting home and

researching I found out different. In my daughter cause because she is so young

and because I thought that mercury was out of the shots since 2001..I was

confused as to why she would choose the Porphyrins test.

I guess I could call and ask a her but I just thought I would ask someone on

the board.Now that I think of it maybe it's because she thinks my daughter might

have a mitochondrial disorder based on some high/low acids and the test also

checks creatinine right?

I guess if we are doing the test to rule out mercury and a mito disorder then

it's worth the money..even if she needs to do another test for the other metals.

Also athought I am reserching like crazy and I'm on many boards I am not

" soaking " the information like most parents are..really you people are really

smart.I need someone to guide me so I hope that's what Dr Usman is in the

business for.. to help and guide a parent so that they can help their child.

Thanks,

> >

> > Does this test only check for Mercury does anyone know? I also am trying to

understand something my daughter is 2.5 and if she does have high mercury how is

that possible??? Her titers are high for 6 different shots..with Rubella being

385.3 but I thought that all mercury was removed from shots in 2000? My daughter

never had a flu shot nor have I. I would think that my dan would be checking for

other metals not mercury but from what I am reading Porphyrins only covers

mercury..I'm more worried about Aluminum.We did a blood test for lead and she

was fine...just trying to understand.

> >

> >

> >

> > Thanks,

> >

> >

>

Link to comment
Share on other sites

Dear ,

All DAN doctors including Dr. Usman and her associate Dr. Chandra are in the

business of making money. Even if my child high rubella titers I would never

give him herpes medication Valtrex or nystatin or diflucan. The allopathic

system has done enough damage to my son and i am not interested in exacerbating

it by adding some more drugs. But thats just me. If you mention Andy Cuttler

protocol to any of the DANs they get angry because their way is the best way and

since children get better they would loose their source of income. Atleast thats

what ive understood from my 1+ years of lurking in this forum.

There is no way that you can tell whether someone has mitochondrial dysfunction

without doing a muscle biopsy. You can only suspect that a child has

mito-disorder and order mito-cocktail. I can tell you what a mito-cocktail is in

details with dosage.

Think of it this way. When you see dr. Usman you pay 450/hr. If i was her and

the meeting exceeded 1 hr by 5 minutes i would be loosing money because i have

to see a patient right after you. I would rush you too so that i can go about

and make some more money by seeing the next patient.

Rochelle.

> > >

> > > Does this test only check for Mercury does anyone know? I also am trying

to understand something my daughter is 2.5 and if she does have high mercury how

is that possible??? Her titers are high for 6 different shots..with Rubella

being 385.3 but I thought that all mercury was removed from shots in 2000? My

daughter never had a flu shot nor have I. I would think that my dan would be

checking for other metals not mercury but from what I am reading Porphyrins only

covers mercury..I'm more worried about Aluminum.We did a blood test for lead and

she was fine...just trying to understand.

> > >

> > >

> > >

> > > Thanks,

> > >

> > >

> >

>

Link to comment
Share on other sites

I like you..you bring up some good points!! You have my husband way of thinking.

I don't know what approach she uses on metals we never talked about it.So did

you want to AC and she said no..I know another child who is being seen by Dr

Usman and through her mom's blog I have read that she does AC with Usman but

maybe she pushed for it. Are you local?

________________________________

From: rochelle b <mcroche2002@...>

Sent: Thu, February 17, 2011 1:03:53 AM

Subject: [ ] Re: Porphyrins, Urine through Doctor Data

 

Dear ,

All DAN doctors including Dr. Usman and her associate Dr. Chandra are in the

business of making money. Even if my child high rubella titers I would never

give him herpes medication Valtrex or nystatin or diflucan. The allopathic

system has done enough damage to my son and i am not interested in exacerbating

it by adding some more drugs. But thats just me. If you mention Andy Cuttler

protocol to any of the DANs they get angry because their way is the best way and

since children get better they would loose their source of income. Atleast thats

what ive understood from my 1+ years of lurking in this forum.

There is no way that you can tell whether someone has mitochondrial dysfunction

without doing a muscle biopsy. You can only suspect that a child has

mito-disorder and order mito-cocktail. I can tell you what a mito-cocktail is in

details with dosage.

Think of it this way. When you see dr. Usman you pay 450/hr. If i was her and

the meeting exceeded 1 hr by 5 minutes i would be loosing money because i have

to see a patient right after you. I would rush you too so that i can go about

and make some more money by seeing the next patient.

Rochelle.

> > >

> > > Does this test only check for Mercury does anyone know? I also am trying

to

>understand something my daughter is 2.5 and if she does have high mercury how

is

>that possible??? Her titers are high for 6 different shots..with Rubella being

>385.3 but I thought that all mercury was removed from shots in 2000? My

daughter

>never had a flu shot nor have I. I would think that my dan would be checking

for

>other metals not mercury but from what I am reading Porphyrins only covers

>mercury..I'm more worried about Aluminum.We did a blood test for lead and she

>was fine...just trying to understand.

> > >

> > >

> > >

> > > Thanks,

> > >

> > >

> >

>

Link to comment
Share on other sites

Yes, I am local. Email me privately.

> > > >

> > > > Does this test only check for Mercury does anyone know? I also am trying

to

> >understand something my daughter is 2.5 and if she does have high mercury how

is

> >that possible??? Her titers are high for 6 different shots..with Rubella

being

> >385.3 but I thought that all mercury was removed from shots in 2000? My

daughter

> >never had a flu shot nor have I. I would think that my dan would be checking

for

> >other metals not mercury but from what I am reading Porphyrins only covers

> >mercury..I'm more worried about Aluminum.We did a blood test for lead and she

> >was fine...just trying to understand.

> > > >

> > > >

> > > >

> > > > Thanks,

> > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

>

Link to comment
Share on other sites

Unfortunately, I have a very similar feeling about doctors. And I don't think

they intentionally pull the wool over our eyes, I truly think it's their

education that is suffering in this area. With that said, they do help with

testing. Treatment however, I take full responsibility for that. I will listen

to a doctor respectfully, then go home and do my own research. The results

often differ greatly.

I prefer to avoid prescription medication too. I tried this route with

Clostridia/yeast and I swear the beasts grew harder to manage!! When I took

things into my own hands and chose a modified biofilm protocol (because it made

sense and I removed EDTA, because I have a mercury toxic kid) and I chose all

natural antimicrobials, plus did Andy Cutler chelation....we now have a clean

DNA stool test!! Totally clean, NOTHING pathogenic, only good bacteria to speak

of!! Now, this doesn't mean we don't still have work ahead of us, because we

still have a ton of chelation to do and I believe we have viruses to clear which

we are also working on, BUT this is HUGE for us!! In the past his Clostridia

was three times the normal high and he had moderate yeast.

Feel free to visit my blog for our story -

http://grayson-youarewhatyoueat.blogspot.com/

> > > >

> > > > Does this test only check for Mercury does anyone know? I also am trying

to understand something my daughter is 2.5 and if she does have high mercury how

is that possible??? Her titers are high for 6 different shots..with Rubella

being 385.3 but I thought that all mercury was removed from shots in 2000? My

daughter never had a flu shot nor have I. I would think that my dan would be

checking for other metals not mercury but from what I am reading Porphyrins only

covers mercury..I'm more worried about Aluminum.We did a blood test for lead and

she was fine...just trying to understand.

> > > >

> > > >

> > > >

> > > > Thanks,

> > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Good observation. I concur, how respectful that is of professionals first, vs.,

being a true volunteer first (or Individual/person first) I suppose.. .

Glavic

> > > > >

> > > > > Does this test only check for Mercury does anyone know? I also am

trying to understand something my daughter is 2.5 and if she does have high

mercury how is that possible??? Her titers are high for 6 different shots..with

Rubella being 385.3 but I thought that all mercury was removed from shots in

2000? My daughter never had a flu shot nor have I. I would think that my dan

would be checking for other metals not mercury but from what I am reading

Porphyrins only covers mercury..I'm more worried about Aluminum.We did a blood

test for lead and she was fine...just trying to understand.

> > > > >

> > > > >

> > > > >

> > > > > Thanks,

> > > > >

> > > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Hi Haven,

Thank you for your concern and you are welcome :)

No, we didn't start off at a lower dose. My son is always a slow responder and

I was ok with a higher dose from the beginning. We did talk about doing some

test later to check his liver function (forgot the name of the test). However,

before you warned me about his high DMSA dose, I was already contemplating to

remove it from the protocol. In the challenge test done in mid January, the

result showed that he had slightly elevated lead level (8.6) and much higher

mercury level (23). Since his mercury is high which apparently is the main

cause for his neurological dysfunction and I want to focus on getting it out of

his body first. Plus, with the tendency of yeast flare-up from DMSA, it is just

not worth the fight when we are dealing with a chronicle yeast/bacteria battle.

For us, the priority should be mercury out first.

I do like my DAN and believe he truly cares about his patients. He might not be

the ultimate go-to doctor (he even jokingly admitted that I sometimes know more

than he does) but his laid back bedside manner and reasonable fee ($190 per

visit) keep me coming back :) BTW, he never charges me for anything else. I

get all the supplements he recommends from either local health food stores or

online retailers. I guess he is an exception.

Thanks again for your insight.

April

Re: [ ] Porphyrins, Urine through Doctor Data

April,

Thank you for the complement.

You said traditional, and I am assuming you are doing it orally. the only

thing that concerns me is the dosage. For a child of 63 lbs. the

recommended dosage is 1/8 to 1/2 mg per pound of body wieght. The ALA dose

is fine, but I worry about the 100 mg of DMSA each dose. DMSA is hard on

the liver, so surely your DAN is keeping tabs on liver function?

ALA can increase copper (causes the body to retain more copper. We have to

watch this in my son who had very high copper in the beginning. Did your

DAN just start him out at that high of a dose of DMSA?

Please, just keep an eye on liver function. My son should be getting about

18 mg for his weight, but we started low at 12.5. I still see yeast a

problem with yeast at this dose, so we will wait before raising it.

Moria Merriweather is very knowledgeable. She was on this list when we

first came here years ago, and she helped me a lot. I think she has a

website, and there summarizes these things.

I don't want to scare you, but these are still powerful substances. I'm

simply wondering the rationale on a dosage of DMSA that high. I am glad

your child is doing so well, but I am compelled to caution you about that

dosage. More is not always better. perhaps someone here more knowledgeable

will comment on this?

There are many substances used -- some daily that are hard on the liver,

Tylenol being the best known. There are people who think taking more

Tylenol -- 2, 3, 4 times the recommended dose is better, but this can cause

serious liver damage, even liver failure. You do have to be careful. Did

the doc explain why that high? It is only my opinion, but did you try or

start out at a lower dose of DMSA and saw no gains?

I hope you don't mind my asking.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...