Re: Porphyrins, Urine through Doctor Data

[Guest guest]

One of the exceptions! We also have a very good DAN. He's affordable, not test

happy, and doesnt act like Ive offended the gods if I turn down his

reccomendations and choose another path. He was however, very hard to find.

Karla

>

> Hi Haven,

>

> Thank you for your concern and you are welcome

>

> No, we didn't start off at a lower dose. My son is always a slow responder

and I was ok with a higher dose from the beginning. We did talk about doing

some test later to check his liver function (forgot the name of the test).

However, before you warned me about his high DMSA dose, I was already

contemplating to remove it from the protocol. In the challenge test done in mid

January, the result showed that he had slightly elevated lead level (8.6) and

much higher mercury level (23). Since his mercury is high which apparently is

the main cause for his neurological dysfunction and I want to focus on getting

it out of his body first. Plus, with the tendency of yeast flare-up from DMSA,

it is just not worth the fight when we are dealing with a chronicle

yeast/bacteria battle. For us, the priority should be mercury out first.

>

> I do like my DAN and believe he truly cares about his patients. He might not

be the ultimate go-to doctor (he even jokingly admitted that I sometimes know

more than he does) but his laid back bedside manner and reasonable fee ($190 per

visit) keep me coming back BTW, he never charges me for anything else. I

get all the supplements he recommends from either local health food stores or

online retailers. I guess he is an exception.

>

> Thanks again for your insight.

>

> April

>

>

[Guest guest]

Karla, Can I ask what state your DAN is located? Thanks

Sent from my iPhone

On Feb 17, 2011, at 1:36 PM, " wiersmak " <wiersmak@...> wrote:

> One of the exceptions! We also have a very good DAN. He's affordable, not test

happy, and doesnt act like Ive offended the gods if I turn down his

reccomendations and choose another path. He was however, very hard to find.

>

> Karla

>

>

> >

> > Hi Haven,

> >

> > Thank you for your concern and you are welcome

> >

> > No, we didn't start off at a lower dose. My son is always a slow responder

and I was ok with a higher dose from the beginning. We did talk about doing some

test later to check his liver function (forgot the name of the test). However,

before you warned me about his high DMSA dose, I was already contemplating to

remove it from the protocol. In the challenge test done in mid January, the

result showed that he had slightly elevated lead level (8.6) and much higher

mercury level (23). Since his mercury is high which apparently is the main cause

for his neurological dysfunction and I want to focus on getting it out of his

body first. Plus, with the tendency of yeast flare-up from DMSA, it is just not

worth the fight when we are dealing with a chronicle yeast/bacteria battle. For

us, the priority should be mercury out first.

> >

> > I do like my DAN and believe he truly cares about his patients. He might not

be the ultimate go-to doctor (he even jokingly admitted that I sometimes know

more than he does) but his laid back bedside manner and reasonable fee ($190 per

visit) keep me coming back BTW, he never charges me for anything else. I get

all the supplements he recommends from either local health food stores or online

retailers. I guess he is an exception.

> >

> > Thanks again for your insight.

> >

> > April

> >

> >

>

>

[Guest guest]

Karla

I don't have a personal concern with Dr Usman..she has never given me a reason

too. I don't think that she is doing test just to do them as most test we did

through our health insurance so she isn't gaining anything from it..we had the

blood taken at a local children's Hospital.So far the only test that we did that

was not local was the stool but I think thats across the board.

I can't find what the turn around time is on the Porphyrins test does anyone

know?

> >

> > Hi Haven,

> >

> > Thank you for your concern and you are welcome

> >

> > No, we didn't start off at a lower dose. My son is always a slow responder

and I was ok with a higher dose from the beginning. We did talk about doing

some test later to check his liver function (forgot the name of the test).

However, before you warned me about his high DMSA dose, I was already

contemplating to remove it from the protocol. In the challenge test done in mid

January, the result showed that he had slightly elevated lead level (8.6) and

much higher mercury level (23). Since his mercury is high which apparently is

the main cause for his neurological dysfunction and I want to focus on getting

it out of his body first. Plus, with the tendency of yeast flare-up from DMSA,

it is just not worth the fight when we are dealing with a chronicle

yeast/bacteria battle. For us, the priority should be mercury out first.

> >

> > I do like my DAN and believe he truly cares about his patients. He might

not be the ultimate go-to doctor (he even jokingly admitted that I sometimes

know more than he does) but his laid back bedside manner and reasonable fee

($190 per visit) keep me coming back BTW, he never charges me for anything

else. I get all the supplements he recommends from either local health food

stores or online retailers. I guess he is an exception.

> >

> > Thanks again for your insight.

> >

> > April

> >

> >

>

[Guest guest]

Colorado

> > >

> > > Hi Haven,

> > >

> > > Thank you for your concern and you are welcome

> > >

> > > No, we didn't start off at a lower dose. My son is always a slow responder

and I was ok with a higher dose from the beginning. We did talk about doing some

test later to check his liver function (forgot the name of the test). However,

before you warned me about his high DMSA dose, I was already contemplating to

remove it from the protocol. In the challenge test done in mid January, the

result showed that he had slightly elevated lead level (8.6) and much higher

mercury level (23). Since his mercury is high which apparently is the main cause

for his neurological dysfunction and I want to focus on getting it out of his

body first. Plus, with the tendency of yeast flare-up from DMSA, it is just not

worth the fight when we are dealing with a chronicle yeast/bacteria battle. For

us, the priority should be mercury out first.

> > >

> > > I do like my DAN and believe he truly cares about his patients. He might

not be the ultimate go-to doctor (he even jokingly admitted that I sometimes

know more than he does) but his laid back bedside manner and reasonable fee

($190 per visit) keep me coming back BTW, he never charges me for anything

else. I get all the supplements he recommends from either local health food

stores or online retailers. I guess he is an exception.

> > >

> > > Thanks again for your insight.

> > >

> > > April

> > >

> > >

> >

> >

>

>

>

[Guest guest]

I have a dear friend who works for the Colorado Springs school district,a nd

she says they take autism seriously up there. I have heard good things

about Colorado regarding autism. I wish Texas would get on board.

[Guest guest]

They do. I live in C. Springs and our school and district are fantastic. My

son spends 90% of the time in General Ed and is doing well. He is expected to

do the same work as his peers and they hold him accountable. Self regulation was

the big issue and they've worked really hard on helping him find appropriate

ways to deal with stress while still holding him accountable for his behavior.

He's made really good gains in this area

In the areas where he struggles academically, they work with him individually or

in a small group. They dont hold him back in the areas where he excels. His

teachers as well as the autism specialists communicate with me regularly on how

he's doing, what areas he's doing well in and what areas they want me to work on

or reinforce at home. They are also very receptive to my inputs. Budgets are

tight, but if there is something specific that they cant do because of funding,

they provide me with 2-3 alternatives.

They are great about his diet and thankfully the head of the Autism Program is

familiar with PANDAS, they know what to look for behaviorally.

Ive heard horror stories about dealing with the schools, but its been a very

positive experience for us.

Karla

>

> I have a dear friend who works for the Colorado Springs school district,a nd

> she says they take autism seriously up there. I have heard good things

> about Colorado regarding autism. I wish Texas would get on board.

>

>

>

[Guest guest]

Somewhat of a wrap on what you've said and my being here.

People by and large don't like to take responsibility for the situation, (and be

told?) that if there is any negligence, incompetence or abuse (injustice?) we

are all somewhat responsible for that. (Of our being our brother's keeper, that

that isn't how justice works, and that that doesn't or shouldn't start in the

home if not at home [if not in the heart] as for one and all, Thereof. You could

say I'm working on that.. .

I can't even consider my daughter a *friend* these days, (More a friend than a

daughter? No, thank-you, Ray Cyrus?!. and Milly) and I aim to tell her so,

if not everyone else.. . how many true friends I have? .. . (That I should care?

for what passes as friendship these days. That I should assume I need them more

than they need me?!. I figure the world needs me as much as I need the world,

call me your enemy in that respect if you'd like.. . I'm not so much about

watching what I say, as watching what I Feel.. . that that don't get me to say

as much as I'm about, and what I wish for my children

I'm dealing with a situation like that with my wife. What situation? Too much

*friendship* (BS?) there, with my daughter and my wife, (if you know what I

mean, 'bout lies, [and censorhsip] mostly, it seems) and with our daughter

treating our special-needs son (her older brother) like a *pet,* sheesh? beware?

(I tell her not to. It slowly sinks in that way I figure, [and by practicing the

more meaningful example, of Communication? .. .] of asking her to put herself in

his shoes to see if she'd like to be treated like that) Beware the dangers of

politics? and classifying people other than what you hear of them and can make

sense of them more directly for your self, by as much, I will advise(of the

truer friendship?) That would be my policy, more and more as time goes by, what

I believe about what people say (Not much where conflicts of interest seem to be

at stake! and unresolved, if that ain't about the primary abuse of politics

itself.. . I figue I'm beyond that now, if not by as much, as I Am, for Justice.

Lying (and its corresponding censorship) is rampant with groups of people and

politics (individuals of as much) I have found, of the nature of politics (and

injustice) I presume? .. . I have found. I find indiscriminate knowledge (as the

thing?) also very much of such problem, how people lie and distort things for

ulterior motives? ulterior to Justness (That we shouldn't be focusing on

*justice,* such justice, to have It.. . I figure I have It right there,

somewhat, by doing as much, no less

I'm finding the kind of friendship I'm looking for seldom truly earned. (Where

it matters?) I'll settle for *justice,* thank-you (That those who don't believe

in as much and act accordingly aren't my true friends, [not *lovers*, no] that I

need friends of conspiracy and abuse? Not, I Feel as understand, even if it

should get me free stuff towards chelating for health, that we would understand

what health truly is where not for justice, [me, of me?] if not the justice of

as much.. .) I hope that works for everyone, of my being that sort of friend

Up here in the north I find a different kind of situation, as much as I love the

south.. . I suppose I only know it as a place to holiday, (how superficial that

is?) the south, what I truly know of the south.. . I suppose you down there are

working with what you've got? .. . just like us up here, but what else. Those

who have more should do more, I Figure.. . Pressure can do that to people (if

not everyone) I also (if not Especially) Figure

I figure I'd kill or harm myself before I'd kill or harm anyone else, but that

would be just me now. I haven't been put under the *pressure* of getting myself

killed yet, though I am aware of harming myself, relative to harming others

instead, I Figure? .. . by as much, that there would be more to figuring, for my

self, and such justice, that there would be any other.

That's the sort of responsibility and sacrifice I figure is involved in getting

The job done! (of what also works best for my children? Yup, I Feel) Justice

should apply to the north and south, of one and All, where there would be

justice at all, that I should be concerned about anything else.. . I wish as

much for you? .. .

Just call bigots bigots in dealing with as much I figure, or be a bigot

otherwise? .. . People who don't like hearing that I figure are the *real*

bigots.. . I don't mind being called a bigot, or liar, or sinner, (I find my

wife too social for that.; still) as compared to what could be more reasonable,

and perfect (as God?) and figure that is necessary (to wake us all up?) in

getting the job *done,* how delusional I find people otherwise, that our

intelligence is related/relative to a higher intelligence (of purpose?) and that

those who haven't grasped that are the real retarded ones (those so abusive not

to try for as much? of the understandingmore of justice, my criteria of what is

not retarded and is, and whether chelation is working or not, too, or be so

sure, Thereof? .. .

Not a language class.. . I'm more about what to say in saying It, and being so

true, as I Am, as I Feel I Am, in being so just, Thereof

Might give you a sense of what I mean by saying I feel it's a jungle out there

otherwise.. (I really do find it abusive otherwise of me of as much, out there.

Don't you? Where you're not part of the problem, to as much?) I treat It so, and

act accordingly, (and seem to be doing alright by It, yes, with what I have in

that/this respect) that my children would understand as much, as they can, and

do, that there would be the *justice* of as much, that everything else would

matter, that I would have any use even for a social otherwise.. . [Not] if you

know what I mean by as much, but how could you, otherwise, (of such facts?) is

not so much a question for me alone, if not so alone, Thereof

I'd say we still have got a long way to go to deal with the jungle otherwise.. .

that I haven't got a handle on as much

Best wishes in that respect, and not so much for the editing job of BS,

otherwise

I may have helped enough? Let's see if I live another day in that respect.. .

Glavic

On How Everything Connects, where you make the justice of understandingmore your

thing?/purpose? .. . Of what would be so fair? .. . That there would even be a

*true* social (or friendship, or intelligence) at All? .. .

I like friends like that, how many I truly have.. that I would even need more

than one.

That'd be for *Justice,* of including everything as being a matter of and for

justice, of more reasonable [and less abusive] *consideration,* that anything

and everyting could be so meaningful, and just, and that's a period [.] LOL

I figure this goes as far as It goes (tends to go?) with normal people.. . You

might be *normal* in that respect? (want to be more normal in other respects?)

... . I'm aiming for more meaningful and just

Who knows, *chelation* might help in that respect.. . Here's more than hoping

so, of my being here.

BWT

>

> I have a dear friend who works for the Colorado Springs school district,a nd

> she says they take autism seriously up there. I have heard good things

> about Colorado regarding autism. I wish Texas would get on board.

>

>

>

[Guest guest]

Karla,

Great to hear you have such positive experience. Mine is the same. I thank God

everyday for what a fantastic team we have: specialists, aides, staff, and his

peers! My team knows all about his issues (diets, stims, OCDs, therapy, etc)

and his friends gave him fruits and nuts for Valentine's Day! I don't know if

this is true or not, but my aide told me that my devotion and involvement made

big difference in my son's school performance and they love to work with parents

like me. I guess all the volunteering and responsive communication really pay

off

It will be good to hear others' positive experiences as well. Sometimes,

sharing good news can be uplifting for parents who are fighting autism day in

and day out.......

April

[ ] Re: Porphyrins, Urine through Doctor Data

They do. I live in C. Springs and our school and district are fantastic. My

son spends 90% of the time in General Ed and is doing well. He is expected to do

the same work as his peers and they hold him accountable. Self regulation was

the big issue and they've worked really hard on helping him find appropriate

ways to deal with stress while still holding him accountable for his behavior.

He's made really good gains in this area

In the areas where he struggles academically, they work with him individually

or in a small group. They dont hold him back in the areas where he excels. His

teachers as well as the autism specialists communicate with me regularly on how

he's doing, what areas he's doing well in and what areas they want me to work on

or reinforce at home. They are also very receptive to my inputs. Budgets are

tight, but if there is something specific that they cant do because of funding,

they provide me with 2-3 alternatives.

They are great about his diet and thankfully the head of the Autism Program is

familiar with PANDAS, they know what to look for behaviorally.

Ive heard horror stories about dealing with the schools, but its been a very

positive experience for us.

Karla

>

> I have a dear friend who works for the Colorado Springs school district,a nd

> she says they take autism seriously up there. I have heard good things

> about Colorado regarding autism. I wish Texas would get on board.

>

>

>

[Guest guest]

What was I thinking? .. . Sorry for rambling on.

Mike

>

> Somewhat of a wrap on what you've said and my being here.

>

> People by and large don't like to take responsibility for the situation, (and

be told?) that if there is any negligence, incompetence or abuse (injustice?) we

are all somewhat responsible for that. (Of our being our brother's keeper, that

that isn't how justice works, and that that doesn't or shouldn't start in the

home if not at home [if not in the heart] as for one and all, Thereof. You could

say I'm working on that.. .

>snipped<