Re: Turning a corner: thoughts on amazing gainsand the AC protocol

March 7, 2011

Have to second this. I defer to Haven on the actual experience with IV

chelation. It seems more enticing I am sure - high dose, quicker, but the

reality for many is as Haven's son experienced it. Look - I had my son up to

the AC maximum for body weight for many rounds, and at one point just went up

about 2.5 mg above that because, I was having trouble compounding an odd amount

of dmsa- and I think this may have led to my son's low neutrophils. I shudder

to think what would have happened if I would have done IV or even done the ultra

high dose oral protocol our one time DAN! When I or my son even raise our doses

by a couple of mg - sometimes, well, I can say, I feel like my head is going to

explode, and I am so run down, I just feel horrible. At least with AC you can

lower the dose right back down to what is tolerable.

This is a really low and slow process, heck, some days, I am only human too and

think, will there ever be an end, should we throw in the towel? (when my

adrenals get run down from lack of sleep!) But then I look at the healthier,

happier, more normal boy I have now who talks and makes jokes, compared to the

little guy who used to rock in the corner and stare at the ceiling fan with

chronic diarrhea and constipation and eczema, and I think, I can get up, even if

it has to be for the next 180 weekends of my life. He may never be completely NT

- but I want to get him as close to there as possible, and have him be metal

free. My son was very toxic (26 shots, including multiple flu shots) by 18

months. I feel a responsibility to reverse the damage as much as is humanly

possible and give him a chance at a normal, healthy life. You may not want to

hear this, but AC chelation works - it may be the safest, and slowest option out

there, but it works. It carries none of the risk of things like IV chelation.

Irene

>

> yes I do think it will work but it is going to take time and committeemen.

> My son was very toxic when he was younger. He definitely still is but not

> as much as he was in the first few years after in happened. I think it will

> work no matter how toxic but this is a protocol that requires patience.

>

> I saw frightening things with my child when doing IV, and I could never do

> that again and risk it. I'm fine with committing to 300 weekends doing it

> this way. He is much more comfortable and I thnk safer. IV alwasy made me

> a nervous wreck. I don't like needles being stuck in my child.

>

> Everything Andy told me in the beginning, what I saw when doing IV -- it

> just made a light bulb go off in my head. I decided that Andy's words made

> the most sense.

>

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