Rash

[Guest guest]

Jessie,

Rashes are one problem I didn't have while on combo (thankfully!).

I know it can be a side effect of the ribavirin. Have you tried benadryl?

If I find out anything else I'll let you know. By the way, I think you are

doing the best thing to stay on longer.

Claudine

>From: jessiefromchino@...

>Hi Claudine, I went to the doc. on mom. I thought I would be off

>treatment July. He said to stay on till Jan. and all the stuff I read

>says a year is better than 6 months. But I have this rash all over my

>body told the doc. he blew it off as nothing. I use Aveeno oat meal bath

>oil and itch creams of all kinds. Do you have any suggestions? I am a

>manicurist I am just wondering if it is the powder I am in, never happen

>before. My white count is back up and I am feeling good. Hope

>everything is going well with you. Jessie

>

>EZ-DOES IT

>

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[Guest guest]

To

Try cocoa butter hand and body lotion ,worked for me .I did the 48

week, on combo with no resp.It been 6 month that i been off, i

had all the the skin problem untill 2 month ago when i started the cocoa

butter and it really help me .Before the cocoa butter i try everything i

could get my hand on charley

[Guest guest]

To

Try cocoa butter hand and body lotion ,worked for me .I did the 48

week, on combo with no resp.It been 6 month that i been off, i

had all the the skin problem untill 2 month ago when i started the cocoa

butter and it really help me .Before the cocoa butter i try everything i

could get my hand on charley

[Guest guest]

To

Try cocoa butter hand and body lotion ,worked for me .I did the 48

week, on combo with no resp.It been 6 month that i been off, i

had all the the skin problem untill 2 month ago when i started the cocoa

butter and it really help me .Before the cocoa butter i try everything i

could get my hand on charley

[Guest guest]

To

Try cocoa butter hand and body lotion ,worked for me .I did the 48

week, on combo with no resp.It been 6 month that i been off, i

had all the the skin problem untill 2 month ago when i started the cocoa

butter and it really help me .Before the cocoa butter i try everything i

could get my hand on charley

[Guest guest]

Hello everyone, I notice that many of you speak of the jra rash often.

When my son had his first initial onset of systemic jra 5 years ago he had

the classic jra rash for about 3 months. Since then he has never had it

again,I wonder why that is.He has had his share of flare ups but never the

rash again. Do all the kids on the list get the rash every flare? sometimes?

only once? Jane (mother to age )

[Guest guest]

n had the rash everyday for eight months. It can still come and go,

and it seems to come back when she overdoes. It definitely comes back when

she flares: it will cover her entire body when she is in a flare.

>From: Jitz45@...

>Reply- egroups

> egroups

>Subject: Re: rash

>Date: Wed, 13 Sep 2000 20:21:26 EDT

>

>

>Hello everyone, I notice that many of you speak of the jra rash often.

>When my son had his first initial onset of systemic jra 5 years ago he had

>the classic jra rash for about 3 months. Since then he has never had it

>again,I wonder why that is.He has had his share of flare ups but never the

>rash again. Do all the kids on the list get the rash every flare?

>sometimes?

>only once? Jane (mother to age )

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

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[Guest guest]

hasd a rash on her left leg (near the knee with the arthritis). The

rheumy said it wasnt related to the arthritis. Isn't it funny thigh that

s doing great and the rash is gone? I think the rash was due to the jra.

Teri

[Guest guest]

Hi Jane:

Not sure about anyone else. My daughter Mickey (now 6) was diagnosed at 3,

but had been having symptoms for a year prior - fevers, periodic rash,

apathy, lack of appetite, extreme lethargy, and difficulty walking, though

she only ever said it was because her legs didn't " feel like " walking

anymore. Since diagnosis though, she has not had the rash to any noticeable

degree. When she is in the hot tub for physiotherapy, a " ghost " rash, very

faint, shows up, but dissipates once she is cool again. So, no, we nearly

never see the rash, and then only in a faint way that the doctors aren't

interested in.

Lynn

Re: rash

Hello everyone, I notice that many of you speak of the jra rash often.

When my son had his first initial onset of systemic jra 5 years ago he had

the classic jra rash for about 3 months. Since then he has never had it

again,I wonder why that is.He has had his share of flare ups but never the

rash again. Do all the kids on the list get the rash every flare? sometimes?

only once? Jane (mother to age )

For links to websites with JRA info visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Could the rash be the skins response to swelling ?? Or perhaps temp change of

the joint ?

Marcie

[Guest guest]

Marcie,

Funny you should say this...

As the Skin is the largest organ, I have often though this is the case myself.

In Skylers case the rash actually migrates across his body over the course of a few hours. If the rash is really dark it will leave a sort of shadow for a few days after it is gone, as though it has slightly damaged the skin cells. It is certainly a form of inflamation and it is definately related to reactions of the disease. I think we just tend to separate in our minds the difference between a rash and inflamation.

Re: rash

Could the rash be the skins response to swelling ?? Or perhaps temp change of the joint ?Marcie For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

To my knowledge there isn't anything that will help. The way I've understood

the rash is to be when the disease is " active " . The things that I've learned

that will make my daughters rash appear is: a warm bath, or when she is

over-tired. Hopefully, this will help you a little. All in all, the rash is

just part of the disease.

[Guest guest]

Depends on which version of the rash he has. If there is any type of swelling

associated you can use a cortisone cream. If there are lesions or blisters you

can use topical antibiotic or aloe.

Heat will make it worse as will sweat.

Good luck

[ & Skyler]

rash

My son ryan 6 systemic jra his rash is comming up more often now we

have our next appointment in about a week.does anyone know if any

lotions will help the rash or does it need to be treated with the

meds.

we are new since ryan was just diagnosed last month and are only on

naproxen at this time.

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For links to websites about JRA:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

I'm sorry to hear about Amy. I know that "flare ups" are very discouraging. We are going through one ourselvers with our daughter.

As for the rash, it is a "salmon" color-almost a pinkish (my daughter has a very fair complexion) and hers does not "itch" or "raise". The most common time that it appears is after her bath, but it will show up during a flare up or if she's sick. Usually her rash is on her chest, bottom and her thighs which I think are very common places for this rash.

Sorry I don't have a whole lot of information to give you, but I hope this will help you in some way. I hope your daughter starts to feeling better soon and good luck with her dr's. appt.

Sincerely,

[Guest guest]

hi

melissa never did get a rash she has poly but about 2 months ago she

noticed

the rash of white spots that itched on her arms and leg a year ago she had a

small rash on her hand but that was said to be due to hand lotion lolol shes

always used that hand lotion after that the rash came and went

now this rash is white raised spots along with some blood spots like needle

pricks

when this itching started it not only was on her skin but in her scalp and

neck

the doctor did look for lice but thats not the reason shes lice free

somehow i think its related to JRA

like with JRA its all puzzleing

Robbin

[Guest guest]

Robbie's rash did come and go (sometimes very quickly - it would be gone again

in a few short hours and appear somewhere else or stay away entirely) - and

never appeared to give him any discomfort or itching. It could be that this

rash is something else? Good luck at the appt.

Val

Rob's Mom (4, systemic)

In a message dated Tue, 4 Dec 2001 5:05:07 PM Eastern Standard Time,

contessa123992000@... writes:

> My daughter Amy has systemic JRA, but she has never had " the rash "

> associated with it, until last week. I guess she is starting a new

> flare, which is very discouraging. She has started to wet the bed at

> night, which happened before the last two flares, she is so exhausted

> at night, she fails to wake up to use the rest room.

>

> We go to San Francisco on Thursday for her regular check up. I have

> a question.

>

> Because she never had the rash, can anyone help me with a

> description. Amy's rash looks like she has small grains of salt

> under her skin and its very itchy. They have put her back on

> Prednisone to combat the itching. It has helped some. Her rash is

> not red and it goes from just under her chest line to right above her

> knees. With a few eruptions on her feet. It does not come and go

> and at this point its a bunch of little scabs due to her scratching

> to the point of them bleeding.

>

>

>

> For links to websites about arthritis and JRA, visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

My son Jordan (5) has had stills for a year now, with the rash being

present right before his temp would soar, then after getting the

fever down, the rash would almost dissappear as quickly as it came.

It was mostly on the trunk of his body, down his legs and on his

shoulders. He never complained of it being itchy, but that was our

sign of fever about to spike again. Since having his injections and

starting on MTX the end of Feb 2000, he hasn't had a fever and is

running around like a 5 yr old should. He's now off indocin which he

took 3 x's a day for a year too, and so far so good. Our ped here

called it a Salmon rash as one of the other moms said, and that was

his clue that Jordan could have JRA when he was first in hospital

stumping all the docs.

Good luck with the rheumy on Thursday

Lori & Jordan - 5 - systemic/stills

> My daughter Amy has systemic JRA, but she has never had " the rash "

> associated with it, until last week. I guess she is starting a new

> flare, which is very discouraging. She has started to wet the bed

at

> night, which happened before the last two flares, she is so

exhausted

> at night, she fails to wake up to use the rest room.

>

> We go to San Francisco on Thursday for her regular check up. I

have

> a question.

>

> Because she never had the rash, can anyone help me with a

> description. Amy's rash looks like she has small grains of salt

> under her skin and its very itchy. They have put her back on

> Prednisone to combat the itching. It has helped some. Her rash is

> not red and it goes from just under her chest line to right above

her

> knees. With a few eruptions on her feet. It does not come and go

> and at this point its a bunch of little scabs due to her scratching

> to the point of them bleeding.

[Guest guest]

,

You are right about eczema - it is the most miserable itch - I have had it for

about two years - my skin ends up looking like a patch of leather and it cracks

and bleeds. I use a steriod cream during a flare & then use lots of creams year

round to try to prevent reoccurence.

Val

Rob's Mom (4, systemic)

In a message dated Wed, 5 Dec 2001 11:56:59 AM Eastern Standard Time, " W and C

Price " <immasche@...> writes:

> My daughter, age 12-n, has systemic Jra. She has the typical systemic

> rash as described earlier, but hers itched terribly. I consider myself the

> pro on itching. She has had problems for two straight years, and we never

> could get any answers. I think we finally got an answer recently after

> visiting a new doctor-a second dermatologist. Along with her rash, and it

> started at the exact same time--she has exzema. The dermatologist said that

> sometimes you can't even see it, but it can be there--and itch terribly.

> This fall it got so bad, she was covered from neck to foot with exzema, and

> she had sores where she scratched so much. Hers comes in patches

> -circular-of little rough skin. It is a bit raised. I told the doctor that

> I did not want to start down the road of prednisone knowing how these kids

> get stuck on it. I didn't even want the steroid cream. There is a new

> medication out from Japan called Protopic that we have started using with

> good results. n says that it has helped with the itching. We put it

> on twice a day, especially after a bath, and then cover it with Cetaphil(an

> over the counter cream). It is very expensive-140 dollars for a small tube,

> but worth every penny. The dermatologist said we may have to use it

> everyday for about a month, and then only a few times a week, but for the

> foreseeable future she will be on it. Also, thru all of our trials and

> tribulations with the itching, I have found the rheumy to be of little help

> with it. We had to move to a dermatologist. Good luck.

>

>

> >From: contessa123992000@...

> >Reply-

> >

> >Subject: rash

> >Date: Tue, 04 Dec 2001 20:25:12 -0000

> >

> >My daughter Amy has systemic JRA, but she has never had " the rash "

> >associated with it, until last week. I guess she is starting a new

> >flare, which is very discouraging. She has started to wet the bed at

> >night, which happened before the last two flares, she is so exhausted

> >at night, she fails to wake up to use the rest room.

> >

> >We go to San Francisco on Thursday for her regular check up. I have

> >a question.

> >

> >Because she never had the rash, can anyone help me with a

> >description. Amy's rash looks like she has small grains of salt

> >under her skin and its very itchy. They have put her back on

> >Prednisone to combat the itching. It has helped some. Her rash is

> >not red and it goes from just under her chest line to right above her

> >knees. With a few eruptions on her feet. It does not come and go

> >and at this point its a bunch of little scabs due to her scratching

> >to the point of them bleeding.

> >

> >

> >

> >For links to websites about arthritis and JRA, visit:

> >http://www.geocities.com/Heartland/Village/8414/Links.html

> >

> >

[Guest guest]

I can't exactly remember the rash, it came on very suddenly and I always thought it was like a "prickly heat rash". Small bumps and just large red patches. It actually went away while we were at the hospital, 3 weeks, and it hasn't come back since.

Pat & (1 year Systemic)

[Guest guest]

My daughter, age 12-n, has systemic Jra. She has the typical systemic

rash as described earlier, but hers itched terribly. I consider myself the

pro on itching. She has had problems for two straight years, and we never

could get any answers. I think we finally got an answer recently after

visiting a new doctor-a second dermatologist. Along with her rash, and it

started at the exact same time--she has exzema. The dermatologist said that

sometimes you can't even see it, but it can be there--and itch terribly.

This fall it got so bad, she was covered from neck to foot with exzema, and

she had sores where she scratched so much. Hers comes in patches

-circular-of little rough skin. It is a bit raised. I told the doctor that

I did not want to start down the road of prednisone knowing how these kids

get stuck on it. I didn't even want the steroid cream. There is a new

medication out from Japan called Protopic that we have started using with

good results. n says that it has helped with the itching. We put it

on twice a day, especially after a bath, and then cover it with Cetaphil(an

over the counter cream). It is very expensive-140 dollars for a small tube,

but worth every penny. The dermatologist said we may have to use it

everyday for about a month, and then only a few times a week, but for the

foreseeable future she will be on it. Also, thru all of our trials and

tribulations with the itching, I have found the rheumy to be of little help

with it. We had to move to a dermatologist. Good luck.

>From: contessa123992000@...

>Reply-

>

>Subject: rash

>Date: Tue, 04 Dec 2001 20:25:12 -0000

>

>My daughter Amy has systemic JRA, but she has never had " the rash "

>associated with it, until last week. I guess she is starting a new

>flare, which is very discouraging. She has started to wet the bed at

>night, which happened before the last two flares, she is so exhausted

>at night, she fails to wake up to use the rest room.

>

>We go to San Francisco on Thursday for her regular check up. I have

>a question.

>

>Because she never had the rash, can anyone help me with a

>description. Amy's rash looks like she has small grains of salt

>under her skin and its very itchy. They have put her back on

>Prednisone to combat the itching. It has helped some. Her rash is

>not red and it goes from just under her chest line to right above her

>knees. With a few eruptions on her feet. It does not come and go

>and at this point its a bunch of little scabs due to her scratching

>to the point of them bleeding.

>

>

>

>For links to websites about arthritis and JRA, visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

I agree that colloidal silver could work or oil of oregano. What about

MSM lotion? I've also read that you can mix colostrum in water and put

it on your skin.

If you are doing some kind of cleanse or detox, this could be your

body's way of expelling toxins. Supposely, you detox in the reverse

order of when/how you became toxic.

Marsha

[Guest guest]

In a message dated 3/29/2002 4:04:41 PM Eastern Standard Time,

lambchop_71@... writes:

<< Take cool baths. Not cold, just barely warm, and add

some baking soda to the water, maybe 1/3 of a box and

mix it well before getting in the tub. See what that

does for him.

susan k >>

I passed this on. Will this " cure " it?

Max

[Guest guest]

Take cool baths. Not cold, just barely warm, and add

some baking soda to the water, maybe 1/3 of a box and

mix it well before getting in the tub. See what that

does for him.

susan k

--- Maddviking@... wrote:

> My brother-in-law has a skin rash. Doctors have

> told him it is excema. When

> he gets in any kind of heated water (like a bath or

> hot tube) it flares up

> immediately and itches like crazy. Left unchecked,

> his legs will swell. It

> never gets on his face, hands or upper back. Mainly

> on front torso, legs and

> a little on his arms. He's fouhgt this for about a

> year or so. Shockingly,

> the doctors have not helped much except in reducing

> his bank account.

>

> Any ideas or miracle cures out there?

> Max

>

__________________________________________________

[Guest guest]

Sometimes this is enough. If it doesn't work then the

person needs to think about anything different in

their life. New medicine? Too much antibiotics etc.

Be careful to stick to the BTD l00% of the time until

all symptoms are gone!!

K.

--- Maddviking@... wrote:

> In a message dated 3/29/2002 4:04:41 PM Eastern

> Standard Time,

> lambchop_71@... writes:

>

> << Take cool baths. Not cold, just barely warm, and

> add

> some baking soda to the water, maybe 1/3 of a box

> and

> mix it well before getting in the tub. See what

> that

> does for him.

> susan k >>

> I passed this on. Will this " cure " it?

> Max

>

__________________________________________________

[Guest guest]

did anybody ever check the reason for his excema ?

there allways is a wroot to find and fight behind excema - I have it

when I eat avoids - is he doing ER ?

he could do a bio-feedback-allegy-test - it's much quicker and less

expensive as the " normal " one with a month of all kinds of things put in

a row into your arms and back ...

love

Maddviking@... wrote:

> My brother-in-law has a skin rash. Doctors have told him it is excema. When

> he gets in any kind of heated water (like a bath or hot tube) it flares up

> immediately and itches like crazy. Left unchecked, his legs will swell. It

> never gets on his face, hands or upper back. Mainly on front torso, legs and

> a little on his arms. He's fouhgt this for about a year or so. Shockingly,

> the doctors have not helped much except in reducing his bank account.

>

> Any ideas or miracle cures out there?

> Max

>

>

>