Guest guest Posted March 16, 2011 Report Share Posted March 16, 2011 Good luck with puberty! Im dreading it. And congratulations on the gains your seeing. Ive been following your posts as youve struggled through the stall period and found your perservance to be very inspiring. Im so happy for you and your family that all the patience and perserverance have paid off! God bless. Karla > > > > > > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping > some of the folks with older kids may comment on. Perhaps some one who may have > over #150 rounds under there belt. > > > > O how I miss all you guys dearly. Don't post much but read everyday .It is > still very encouraging to read stories of kids who are making gains using the AC > protocol. No doubt slow and steady is safe and effective. In addition you can > chelate safely on your own. We been at this for years (total of 8) last 5 have > been on our own. Words can not express how far a long we have come. At times we > even saw a glimpse of the light, however as my child gets older it's hard to > tell how much further he can go. Another words (plainly he still has autism). > Some back round. We started to chelate consistently when my child was 6.5 using > Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We > chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My > son has made huge gains (too many to list). However many of them were within > the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, > but of course keep plugging away. Thereafter is been so hard to tell whats- > what?? Thats where id like to hear from you folks. > > > > There is no doubt my son responded favorably to chelation, but after that > stall (also considering my son is 11) it's so hard to tell. > > This is why it is incredibly useful to keep a video or written diary - or both - > perhaps every month. Then you can very easily compare him to how he was 6 > months or a year ago and see how progress is going. > > >Btw during that time we took a chelation break and introduced a few antiviral > protocols to see if he was a responder. Mostly rule out any viral component > that may been underneath. He did not respond to antiviral positive or negatively > during the trials. > > This was a reasonable thing to do. It does seem likely that this has ruled out > any viral component to the problem. > > > I wrote Andy way back when around the #90-100 chelation round mark asking > about the stall in how long it lasts. . He said something to the effect. That > it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to > see things. > > > I think you've confused 2 answers. > > The stall lasts however long it lasts, seldom more than a year, often 6 months > or so. > > AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ > rounds in, what you used to see in 1-2 rounds might now take 5-10 before it > happens. > > Chelation is an exponential decay towards 'normalcy.' It is like one of those > problems where you can only get half way towards where you are going every time > you take a step. But as in the joke about the engineer and mathematician > tempted by beautiful women beckoning to them and told every step would only > bring them half the remaining distance, while the mathematician just stood there > because he'd never actually get to the woman, the engineer started walking > vigorously because he could get close enough to do what he wanted to. > > After enough chelation your kid may get close enough to normal to not matter > even if a few extra mercury ions are still floating around. > > >Totally understood and went back to business as usual. I know gains may be > subtle and we have to look at the whole picture. > > Which is easiest to do using those diaries. > > >But in all honesty that was over #50 rounds ago Not sure we are still > responding today??? . > > > It is very hard to tell without a video diary, or good description of his > behaviors in writing. People's memories tend to filter out the bad stuff, it is > very hard to tell if your id is improving when you forget the bad behaviors from > 6 months ago. > > >There is no doubt my kid is/ was a chelation responder from the beginning, but > im not sure today we are still making gains. > > > Start the diary. Take video on a given day per month, under similar > circumstances each time. Look over all the videos in 6 months or a year. > > > We will continue as we have always done so. But love to hear back from some > parents who have older kids or those who have #150-300 rounds under their belt. > Perhaps share some of your experience to hold on to as we continue to chelate. > Sorry so long . Thank you so much God bless you all. > > > > My Best as always > > Kenny V > > Father to > > > Andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Just wanted to share quick update have a great story to share too. We visited another biomed fam a few weeks ago. We been friends last 5 years so we both try to visit each other a few times a year. We swap notes, break bread together and fellowship . Well my wife and the other mom went out shoping while me and her husband stayed with the kids most of the afternoon . Wanted to note that they lived in a close community. Like condos and next door on both sides had a bunch of friends all playing in and out of each others house and yards. All the kids were playing together for a few hours. My son spent all day playing with these kids and not one of the neighbors and adults had suspected or noticed anything all day. I only had to keep an eye from a distance while enjoying the fellowship with the other dad. Its amazing how far we all have come . It was a wonderful day and I suspect we are one step closer . For all the newbies to biomed rem stick it out better days are coming . It all gets easier as you start healing your kid. Just have the faith as a mustard seed and you will be able to move mountains. " Slow and Steady " May God bless all our kiddo's and guide the parents in making informed choices. Kenny V Father to Recovering from Autism > > > > > > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping > some of the folks with older kids may comment on. Perhaps some one who may have > over #150 rounds under there belt. > > > > O how I miss all you guys dearly. Don't post much but read everyday .It is > still very encouraging to read stories of kids who are making gains using the AC > protocol. No doubt slow and steady is safe and effective. In addition you can > chelate safely on your own. We been at this for years (total of 8) last 5 have > been on our own. Words can not express how far a long we have come. At times we > even saw a glimpse of the light, however as my child gets older it's hard to > tell how much further he can go. Another words (plainly he still has autism). > Some back round. We started to chelate consistently when my child was 6.5 using > Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We > chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My > son has made huge gains (too many to list). However many of them were within > the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, > but of course keep plugging away. Thereafter is been so hard to tell whats- > what?? Thats where id like to hear from you folks. > > > > There is no doubt my son responded favorably to chelation, but after that > stall (also considering my son is 11) it's so hard to tell. > > This is why it is incredibly useful to keep a video or written diary - or both - > perhaps every month. Then you can very easily compare him to how he was 6 > months or a year ago and see how progress is going. > > >Btw during that time we took a chelation break and introduced a few antiviral > protocols to see if he was a responder. Mostly rule out any viral component > that may been underneath. He did not respond to antiviral positive or negatively > during the trials. > > This was a reasonable thing to do. It does seem likely that this has ruled out > any viral component to the problem. > > > I wrote Andy way back when around the #90-100 chelation round mark asking > about the stall in how long it lasts. . He said something to the effect. That > it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to > see things. > > > I think you've confused 2 answers. > > The stall lasts however long it lasts, seldom more than a year, often 6 months > or so. > > AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ > rounds in, what you used to see in 1-2 rounds might now take 5-10 before it > happens. > > Chelation is an exponential decay towards 'normalcy.' It is like one of those > problems where you can only get half way towards where you are going every time > you take a step. But as in the joke about the engineer and mathematician > tempted by beautiful women beckoning to them and told every step would only > bring them half the remaining distance, while the mathematician just stood there > because he'd never actually get to the woman, the engineer started walking > vigorously because he could get close enough to do what he wanted to. > > After enough chelation your kid may get close enough to normal to not matter > even if a few extra mercury ions are still floating around. > > >Totally understood and went back to business as usual. I know gains may be > subtle and we have to look at the whole picture. > > Which is easiest to do using those diaries. > > >But in all honesty that was over #50 rounds ago Not sure we are still > responding today??? . > > > It is very hard to tell without a video diary, or good description of his > behaviors in writing. People's memories tend to filter out the bad stuff, it is > very hard to tell if your id is improving when you forget the bad behaviors from > 6 months ago. > > >There is no doubt my kid is/ was a chelation responder from the beginning, but > im not sure today we are still making gains. > > > Start the diary. Take video on a given day per month, under similar > circumstances each time. Look over all the videos in 6 months or a year. > > > We will continue as we have always done so. But love to hear back from some > parents who have older kids or those who have #150-300 rounds under their belt. > Perhaps share some of your experience to hold on to as we continue to chelate. > Sorry so long . Thank you so much God bless you all. > > > > My Best as always > > Kenny V > > Father to > > > Andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hi Ken, What was the age of your son when you started chelating him and what was his stage (in terms of autism severity) right before you started? Thanks for enlightening us and giving us more hope, parents with older children. Mom of Aisha Sent from my BlackBerry® wireless device via Vodafone-Celcom Mobile. [ ] Re: Older kids still making gains / chelation responder- Update yea!! Just wanted to share quick update have a great story to share too. We visited another biomed fam a few weeks ago. We been friends last 5 years so we both try to visit each other a few times a year. We swap notes, break bread together and fellowship . Well my wife and the other mom went out shoping while me and her husband stayed with the kids most of the afternoon . Wanted to note that they lived in a close community. Like condos and next door on both sides had a bunch of friends all playing in and out of each others house and yards. All the kids were playing together for a few hours. My son spent all day playing with these kids and not one of the neighbors and adults had suspected or noticed anything all day. I only had to keep an eye from a distance while enjoying the fellowship with the other dad. Its amazing how far we all have come . It was a wonderful day and I suspect we are one step closer . For all the newbies to biomed rem stick it out better days are coming . It all gets easier as you start healing your kid. Just have the faith as a mustard seed and you will be able to move mountains. " Slow and Steady " May God bless all our kiddo's and guide the parents in making informed choices. Kenny V Father to Recovering from Autism > > > > > > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping > some of the folks with older kids may comment on. Perhaps some one who may have > over #150 rounds under there belt. > > > > O how I miss all you guys dearly. Don't post much but read everyday .It is > still very encouraging to read stories of kids who are making gains using the AC > protocol. No doubt slow and steady is safe and effective. In addition you can > chelate safely on your own. We been at this for years (total of 8) last 5 have > been on our own. Words can not express how far a long we have come. At times we > even saw a glimpse of the light, however as my child gets older it's hard to > tell how much further he can go. Another words (plainly he still has autism). > Some back round. We started to chelate consistently when my child was 6.5 using > Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We > chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My > son has made huge gains (too many to list). However many of them were within > the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, > but of course keep plugging away. Thereafter is been so hard to tell whats- > what?? Thats where id like to hear from you folks. > > > > There is no doubt my son responded favorably to chelation, but after that > stall (also considering my son is 11) it's so hard to tell. > > This is why it is incredibly useful to keep a video or written diary - or both - > perhaps every month. Then you can very easily compare him to how he was 6 > months or a year ago and see how progress is going. > > >Btw during that time we took a chelation break and introduced a few antiviral > protocols to see if he was a responder. Mostly rule out any viral component > that may been underneath. He did not respond to antiviral positive or negatively > during the trials. > > This was a reasonable thing to do. It does seem likely that this has ruled out > any viral component to the problem. > > > I wrote Andy way back when around the #90-100 chelation round mark asking > about the stall in how long it lasts. . He said something to the effect. That > it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to > see things. > > > I think you've confused 2 answers. > > The stall lasts however long it lasts, seldom more than a year, often 6 months > or so. > > AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ > rounds in, what you used to see in 1-2 rounds might now take 5-10 before it > happens. > > Chelation is an exponential decay towards 'normalcy.' It is like one of those > problems where you can only get half way towards where you are going every time > you take a step. But as in the joke about the engineer and mathematician > tempted by beautiful women beckoning to them and told every step would only > bring them half the remaining distance, while the mathematician just stood there > because he'd never actually get to the woman, the engineer started walking > vigorously because he could get close enough to do what he wanted to. > > After enough chelation your kid may get close enough to normal to not matter > even if a few extra mercury ions are still floating around. > > >Totally understood and went back to business as usual. I know gains may be > subtle and we have to look at the whole picture. > > Which is easiest to do using those diaries. > > >But in all honesty that was over #50 rounds ago Not sure we are still > responding today??? . > > > It is very hard to tell without a video diary, or good description of his > behaviors in writing. People's memories tend to filter out the bad stuff, it is > very hard to tell if your id is improving when you forget the bad behaviors from > 6 months ago. > > >There is no doubt my kid is/ was a chelation responder from the beginning, but > im not sure today we are still making gains. > > > Start the diary. Take video on a given day per month, under similar > circumstances each time. Look over all the videos in 6 months or a year. > > > We will continue as we have always done so. But love to hear back from some > parents who have older kids or those who have #150-300 rounds under their belt. > Perhaps share some of your experience to hold on to as we continue to chelate. > Sorry so long . Thank you so much God bless you all. > > > > My Best as always > > Kenny V > > Father to > > > Andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Thanks for the hope and god bless.It makes us glad to know there is hope Kara ________________________________ From: ken <KEN@...> Sent: Mon, March 28, 2011 12:48:12 PM Subject: [ ] Re: Older kids still making gains / chelation responder- Update yea!! Just wanted to share quick update have a great story to share too. We visited another biomed fam a few weeks ago. We been friends last 5 years so we both try to visit each other a few times a year. We swap notes, break bread together and fellowship . Well my wife and the other mom went out shoping while me and her husband stayed with the kids most of the afternoon . Wanted to note that they lived in a close community. Like condos and next door on both sides had a bunch of friends all playing in and out of each others house and yards. All the kids were playing together for a few hours. My son spent all day playing with these kids and not one of the neighbors and adults had suspected or noticed anything all day. I only had to keep an eye from a distance while enjoying the fellowship with the other dad. Its amazing how far we all have come . It was a wonderful day and I suspect we are one step closer . For all the newbies to biomed rem stick it out better days are coming . It all gets easier as you start healing your kid. Just have the faith as a mustard seed and you will be able to move mountains. " Slow and Steady " May God bless all our kiddo's and guide the parents in making informed choices. Kenny V Father to Recovering from Autism > > > > > > > > > > Hi guys been a while. Wanted to put a few Q's and comments out there hoping > some of the folks with older kids may comment on. Perhaps some one who may have > over #150 rounds under there belt. > > > > O how I miss all you guys dearly. Don't post much but read everyday .It is > still very encouraging to read stories of kids who are making gains using the >AC > protocol. No doubt slow and steady is safe and effective. In addition you can > chelate safely on your own. We been at this for years (total of 8) last 5 have > been on our own. Words can not express how far a long we have come. At times we > even saw a glimpse of the light, however as my child gets older it's hard to > tell how much further he can go. Another words (plainly he still has autism). > Some back round. We started to chelate consistently when my child was 6.5 using > Andy's protocol ALA/DMSA. Prior we did 20 rounds and stopped (LONG STORY) We > chelated up to #160 rounds he is now 11 years old, and will be 12 in March. My > son has made huge gains (too many to list). However many of them were within > the first 40-70- rounds. Then we hit a long lasting stall from rounds #70-100, > but of course keep plugging away. Thereafter is been so hard to tell whats- > what?? Thats where id like to hear from you folks. > > > > There is no doubt my son responded favorably to chelation, but after that > stall (also considering my son is 11) it's so hard to tell. > > This is why it is incredibly useful to keep a video or written diary - or both >- > perhaps every month. Then you can very easily compare him to how he was 6 > months or a year ago and see how progress is going. > > >Btw during that time we took a chelation break and introduced a few antiviral > protocols to see if he was a responder. Mostly rule out any viral component > that may been underneath. He did not respond to antiviral positive or >negatively > during the trials. > > This was a reasonable thing to do. It does seem likely that this has ruled out > any viral component to the problem. > > > I wrote Andy way back when around the #90-100 chelation round mark asking > about the stall in how long it lasts. . He said something to the effect. That > it's hard to tell, what you may have seen in 1-2 rounds early may take 5-10, to > see things. > > > I think you've confused 2 answers. > > The stall lasts however long it lasts, seldom more than a year, often 6 months > or so. > > AFTER THE STALL IS OVER, and after some good catch up progress, e. g. 100+ > rounds in, what you used to see in 1-2 rounds might now take 5-10 before it > happens. > > Chelation is an exponential decay towards 'normalcy.' It is like one of those > problems where you can only get half way towards where you are going every time > you take a step. But as in the joke about the engineer and mathematician > tempted by beautiful women beckoning to them and told every step would only > bring them half the remaining distance, while the mathematician just stood >there > because he'd never actually get to the woman, the engineer started walking > vigorously because he could get close enough to do what he wanted to. > > After enough chelation your kid may get close enough to normal to not matter > even if a few extra mercury ions are still floating around. > > >Totally understood and went back to business as usual. I know gains may be > subtle and we have to look at the whole picture. > > Which is easiest to do using those diaries. > > >But in all honesty that was over #50 rounds ago Not sure we are still > responding today??? . > > > It is very hard to tell without a video diary, or good description of his > behaviors in writing. People's memories tend to filter out the bad stuff, it is > very hard to tell if your id is improving when you forget the bad behaviors >from > 6 months ago. > > >There is no doubt my kid is/ was a chelation responder from the beginning, but > im not sure today we are still making gains. > > > Start the diary. Take video on a given day per month, under similar > circumstances each time. Look over all the videos in 6 months or a year. > > > We will continue as we have always done so. But love to hear back from some > parents who have older kids or those who have #150-300 rounds under their belt. > Perhaps share some of your experience to hold on to as we continue to chelate. > Sorry so long . Thank you so much God bless you all. > > > > My Best as always > > Kenny V > > Father to > > > Andy > Quote Link to comment Share on other sites More sharing options...
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