Chelation

August 15, 2003

Cathie, What is chelation therapy (briefly) I have heard of it but do not

recall what it is...

Thanks, Patty

[ ] chelation

Dear all, Has anybody done chelation therapy? Does it help? My

hepatologist says that it won't hurt, (he also says it won't help, but oh

well). Is anyone familiar with this process? Cathie PS my hepatologist

just accepted a position at Baylor, lucky for anyone in Dallas, but it

leaves San again with no hepatologist. I guess it's back to my GP.

Oh well.

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August 16, 2003

Hi::: What is chelation therapy? I am curious.

Also, a friend I met on the internet, we have not met..

But, we are close, she went for her liver tx yesterday.. She is at Baylor. We are praying for her and her family.

take care, Gaynel

December 1, 2003

Chelation was one of the more helpful treatments my son has done over the

years. It made a very dramatic difference in all areas, most specifically

language, auditory processing, visual function, sensory overload and

excitability,

and attention. It has also dramatically improved his overall health.

However, he did this long before it became a DAN-recommended treatment and the

protocol he used was different from what DAN docs tend to recommend. He also

had

arsenic poisoning from a golf course we used to live on.

He also took an individualized amino acid formula that had similar

ingredients to the MT promoter they later came up with. It was helpful for

awhile but

as he healed and detoxed, it wasn't as helpful.

Gaylen

December 1, 2003

Chelation was one of the more helpful treatments my son has done over the

years. It made a very dramatic difference in all areas, most specifically

language, auditory processing, visual function, sensory overload and

excitability,

and attention. It has also dramatically improved his overall health.

However, he did this long before it became a DAN-recommended treatment and the

protocol he used was different from what DAN docs tend to recommend. He also

had

arsenic poisoning from a golf course we used to live on.

He also took an individualized amino acid formula that had similar

ingredients to the MT promoter they later came up with. It was helpful for

awhile but

as he healed and detoxed, it wasn't as helpful.

Gaylen

May 3, 2004

Thank you Rich!

---------------------------

Rich wrote:

The word " chelation " in chemistry comes from the Greek

word

for " claw. " The idea is that in chelation a metal ion

is bound to

two or more polar groupings in a single molecule. In

other words,

the molecule acts sort of like a crab holding onto

something with

two separate claws at the same time.

On this list, we read about chelation frequently in

both the

contexts that you mentioned: as a way of carrying

essential metal

nutrients into the body, and as a way of binding toxic

metals so as

to help to remove them from the body.

Rich

=====

Onwards and upwards...sometimes...

......................................................

, Barcelona

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August 24, 2005

I spoke to some people very close to this situation. The child had an immediate allergic reaction to a rarely used IV. Most state of the art chelators are transdermal they go on the skin and bypass the GI tract. This was an unfortunate event, but chelation has come along way and their are better alteranatives than IV. The type of chelator used was EDTA which is used for chelating lead and is not the same as DMSA or DMPS used for chelating Mercury from vaccines. The doctor stated was not a DAN doctor either. DAN has a specific protocol for safe chelation. We have been chelating for a year with awesome results. My child is now verbal and higher functioning thanks to Mercury removal. This unfortunate incident is not characteristic of typical chelation.

cpsmlj <55thunderbird@...> wrote:

Brought to you by AutismLink - Autistic boy dies during controversialtreatmenthttp://www.post-gazette.com/pg/05236/559444.stmWednesday, August 24, 2005By Kane and Virginia Linn, Pittsburgh Post-GazetteA 5-year-old Monroeville boy died this week during a medical treatmentthat's being touted by some as a cure for autism.The autistic boy died while receiving chelation -- an intravenousinjection of a synthetic amino acid known as EDTA, for ethylenediamine tetraacetic acid. The Food and Drug Administration hasapproved the practice only to treat heavy metal (such as lead)poisoning. The treatment is becoming increasingly popular, thoughstill controversial, for autism.Police are investigating the boy's death, which occurred Tuesdaymorning in the

office of Dr. Roy Kerry in Portersville. Kerry did notreturn calls today.An autopsy conducted today was inconclusive. Results on the cause andmanner of death are pending additional testing that could take up tofive months to complete, authorities said.__________________________________________________

September 25, 2005

We use Dr. Jerry Kartzinel (was in Florida now moving

to Texas) and do telephone appointments with an in

person visit once per year. Due to gastro issues with

oral DMSA, we began chelating three yrs. ago with

transdermal TTFD, B12 and glutathione. We changed to

transdermal DMPS 6 months ago and my son over the last

three years has made miraculous improvements. At age

two he was diagnosed at Emory Autism Center with

moderate to severe autism, self injurous, non-verbal

and a mentally retarded IQ. We just re-tested two

months ago and he now test as " borderline " autistic

with a normal IQ. We are from GA but moved to NC for

funding for services and still live in NC. After the

school system tested him this summer, they agreed he

should be mainstreamed and we were told that he is so

high functioning now that we would have a hard time

even arguing for a shadow to help him in his

mainstream classroom. He's doing great now in

kindergarten. Chelation and the biomedical route for

my son has made an incredible diffence and finding a

good DAN dr. who can help you with the process is

crucial. Telephone consultations and once per year in

person visits worked very well for us. Most important

is that you find a dr. with a great track record in

recovering our little guys and one that is on top of

the best and fastest way to get there. Attending a

DAN conference gave us the opportunity to talk with

several of the speakers/DAN physicians present and

gave us the info we needed to choose the physician

that we felt was the best match. Hope this info

helps. You are welcome to e-mail me off line if you

have any questions.

Cyndi

--- l1collier <lanaecollier@...> wrote:

>

> Other than son-Lippett, which Doctors are

> chelating? Does

> anyone have a moderate or severe autistic that used

> one of the

> chelation methods?

>

__________________________________________________

December 28, 2005

This got bounced, so I am resending.

chelation

> Hi Everybody:

>

> As many of you know, I've been totally bedridden with CFIDS for 25 years.

> I'm trying the Blaisi Protocol (I'm on my eighth month with no

improvement),

> innumerable meds )I'm now taking acetyl-l-carnitine with no effect) and

I'm

> getting IV glutathione (it seems to make me worse for about 2 days after

the

> drip, and then, nothing.) Like all of us, I'm desperate to improve. A

nurse

> suggested chelation therapy. I used to eat tuna fish every day for lunch

for

> years, so it's quite possible that I have too much mercury in my blood.

What

> do people know about how one goes about arranging for this procedure? Has

> anybody seen improvement after trying it? Please forgive me if this has

> already been discussed. My husband prints out email for me, and doesn't

> always print out everything that's posted.

>

> Naomi Weisstein

>

December 29, 2005

Why not try to boost Glatathione levels first via Whey protein isolate !

regards

CS

March 1, 2006

Okay Jim, I now have a little more time to answer

you line-for-line.

--- Mr Butterbur <not.athome@...> wrote:

> Dear Ms. Debi H.

>

> If you post views in a public forum then you

> should eventually expect a response from

> persons unknown to you, asking for

> clarification. As such, your priniciples,

> positions, and beliefs may, in fact, even be

> challenged.

>

From the air of your first email, you have no

desire in learning more or clarifying, only

asserting your opinion.

> Your response indicates that you grasped some

> on the principles of obtaining empirical

> (experimental) evidence, that any such evidence

> must be peer-reviewed to criticize the data

> collection methods, data analysis, and

> conclusions; and optimally, replicated for

> reliability. So many people, sadly enough, do

> not have such understanding, and spend years

> chasing down empty promises. For example, the

> promises of the Tomatis Method or the Berard

> auditory integration methods for treating

> autism, and subsequently, the glowing anecdotal

> reports of benefit. Coffee enemas in Mexico for

> brain cancer are another extreme example.

I do not recall ever asserting understanding or

knowledge of Tomatis Method, though many parents

have reported success. I know nothing of the

Berard auditory or coffee enemas.

>

> As for chelation, it has proven benefit for

> removing heavy metals (also for depleting other

> useful minerals). But, many parents are freely

> willing to assume that chelation will somehow

> dramatically improve symptoms of autism, and

> it's safe to presume that a fair number of

> parents are looking for an outright cure.

I cannot speak for anyone but myself, your email

asserted that I have stated chelation cures

autism. To assert anyone else's thoughts or

seekings are the same as mine is grossly

generalizing and potentially wrong. As well, you

have yet to reference a posting that you stated

you saw regarding chelatio and my comments. For

the third time, is it, please reference the

specific posting you referenced.

>

> Such desires are so strong that

> well-intentioned parents are willing to

> restrain their children for 40+ treatments from

> misguided health providers who have " scientific

> evidence " . If I was such a child, I would

> immediatly learn to associate chelation

> " treatments " with a lot of physical pain

> (needles). As for " safety " , yes, I agree with

> your statement that a treatement done " safely "

> is " safe " . My issue is with the discomfort

> (pain).

Again, I do not recall ever discussing needles.

Again, please reference the posting in which I

reference chelation using needles. Clearly you

have no concept of my understanding of chelation

or methodology, further asserting you behave

suspiciously as the obsessive Rev. Jim. That

said, I'm sure type 1 diabetics associate pain

with their insulin, so based on your argument, we

should stop giving insulin to type 1 diabetics

because it's discomforting.

>

> So, dear lady, I don't endeavour to change

> your mind about any treatment that has

> convinced you of " scientific " benefit. I'm sure

> you love your child as deeply as any parent

> can, and expend enormous resources in the

> effort to help him/her.

My child is none of your business.

>

> But I do wonder, if one observes improvment

> in achild over 2-3 years of chelation, can you

> attribute it to a reduction of a miniscule

> amount of mecury (if in fact mercury is present

> at a toxic level) or would perceptions of

> improvement result in the child incidentally,

> from maturity plus all the love and treatments

> and social interactions you provide over the

> same period?

Here again, you make the assertion that

scienfitic study has yet to prove mercury

toxicity. There are hundreds of studies out

there. Again, I forwarded your email to many

people who hopefully will provide you with those

references. As well, you fail to reference the

flaws of the studies quackwatch uses, which again

asserts your desire to shy away from legitimate

scientific study and a desire to seek what

outcome you wish.

For when a child is their as their

> own " control " then it becomes almost impossible

> to state that any observed behavioral change

> occurred solely as the result of the treatment,

> when in fact, said child also benefits from the

> other interventions previously mentioned. And

> if there is no proven benefit, why do it?

Again, there is documented scientific evidence.

As well, there is antedotal evidence. Because

there legitimate evidence, antedotal evidence,

and epidemiological evidence, that is why there

is a proven benefit and yet another reason to do

it. Another reason would be a cost/benefit

analysis. If a treatment is reasonably safe,

reasonable outcomes, and those outcomes are

measureable, you then compare it to the cost of

minute risk of danger to health against long-term

risk of an individual who cannot have a quality

of life. Wasn't it those for the death of Terri

Shiavo who used this very argument, quality of

life? How much more so then is this argument for

a treatment relatively safe with good outcomes.

I would suggest if you truly have a desire to

learn more, you seek Great Plains Laboratory. The

have the largest database in the nation of lab

tests of people with autism. I believe it's the

NIH who uses GPL data for studying those with

autism.

>

> One way to " prove it " (rather draconian)

> would be to take a large group of autistic

> children with proven heavy-metal toxicity and

> randomly assign each to a control or

> experimental group, one treated with chelation

> and the other with plain plasma or saline, and

> the outcome determined after several years of

> such treatments. Or, include a third group of

> autistic children and provide no therapy at

> all, but stick them with the needle anyway,

> while the other two groups recieve their usual

> behavioral + social interventions. Is such a

> situation, one would have empirical, scientific

> evidence. But would it be done? Of course not,

> as the potential harm is indeed very tangible

> for the two unwitting control groups.

Again, I ask you to reference the posting I made

regarding the use of needles. you seem to have

little knowledge regarding chelation methods.

Again, the study you reference has been done, but

the chelation method was not using IV type

chelators. Therefore, there is evidence you state

there needs to be, but again, you lack knowledge

of understanding chelation or the scientific

studies used.

The

> downside is that then, there is no way to

> collect the " scientific evidence " that is so

> desperately required. So, here is one reason

> why so many glowing reports about perceived

> benefit from a questionable treatment are

> anecdotal,and why parents have to be so very

> watchful and

> careful for their children, especially when

> the treatments are expensive or

> exotic-sounding. A " treatment du jour " .

Again, there has been the scientific evidence you

propose, but not using the IV method you seem to

prefer.

>

> In closing, please don't presume that since I

> am a stranger to you (and who may seem

> irksome by addressing issues if my point of

> view does not coincide with yours) that I am

> entirely ignorant or devoid of training or

> credentials on the topic. I have no desire to

> be confrontational or ask you to defend a

> position. People learn from one another in a

> dialogue, but I have gone on longer than

> intended. I did not intend to launch on a

> discussion of empirical methodology.

I do not presume that you are a supposed stranger

and ignorant of this topic, I assume you have

little knowledge because you do reference a

posting that I supposedly made without providing

reference to that posting and discuss a topic I

do not recall ever posting about, and you in your

postings show you do not know much about it. I'm

all for conversing and exchanging ideas. Your

initial email as well as this email is not one

seeking information, it's one telling me what I

said that I never said and telling my why that's

wrong. So far your emails make little sense. One

who's trying to learn asks questions, not issuing

decrees.

>

> My concern was with the pain associated with

> the procedure. Since there is undoubtably pain

> from sticking a needle into a vein, repeatedly,

> over years, my position is that I don't think

> that chelation treatment is entirely benign.

> Given the lack of empirical evidence of

> benefit, it may very well be unneccessary.

>

Again, I ask you, what posting did I make

regarding the use of needles. Again, I state

since needles are painful, based on your own

arguments, we should stop injecting insulin into

type 1 diabetic children. Again, there is not a

lack of evidence, there is a lack of those

wanting to seek the evidence and a lack of those

seeking the truth, not their version of what they

hope the truth is.

> It would be nice to be able to ask the

> children their point of view.

Yes, there are about 3 million parents in this

nation alone who would love to ask their children

their point of view. Unfortunately, the vast

majority are unable to express their thoughts

because they have something called " AUTISM " .

Clearly you enjoy twisting the knife in the

wounds of those parents to make such an assine

statement.

>

> Peace to you, too.

>

> Mr. Butterbur

>

> " Debi H. " <fightingautism@...> wrote:

> May I ask to which posting you are referring?

>

> As well, I do not recall ever stating I am

> seeking a cure for my child. As well, I do not

> recall ever stating chelation cures autism. As

> well, quackwatch is a waste of internet space.

> They don't have a fat clue what true science

> is.

> True scientific method seeks an unbiased

> result,

> with outcomes that can be replicated. As well,

> scientific method seeks to control groups, not

> change data 3 different times, as in a danish

> study regarding mmr. As well, chelation, when

> done safely, is relatively safe, especially

> compared to the safety of mercury sitting in

> one's brain.

>

> As well, I don't know you from adam, I'm sure

> to

> listen to trained medical professionals with

> years of experience and leading scientific

> researchers than one stranger.

>

> peace back at cha

>

> --- Mr Butterbur wrote:

>

> >

>

http://www.quackwatch.org/01QuackeryRelatedTopics/chelation.html

> >

> > I saw your sad posting.

> >

> > Chelation will not cure autism. And I'm sure

> > it hurts.

> >

> > Peace

> >

> > Mr. Butterbur

> >

> > ---------------------------------

> >

> > Bring photos to life! New PhotoMail makes

> > sharing a breeze.

>

> 's Little Sister ISBN 1-4137-1724-1

>

> Wanna know my latest praises and gripes? Check

> out my blog http://debityree.blogspot.com/

>

> ---------------------------------

>

> Bring photos to life! New PhotoMail makes

> sharing a breeze.

's Little Sister ISBN 1-4137-1724-1

Wanna know my latest praises and gripes? Check out my blog

http://debityree.blogspot.com/

March 1, 2006

Mr. Butterbrain disgorges a lot of high-minded text

for someone who's never heard of oral chelation.

More lurid creative fiction from Hubris Central.

Good point-by-point rebuttal, Debi.

Hokkanen

Minneapolis

> >

> > >

> >

> http://www.quackwatch.org/01QuackeryRelatedTopics/chelation.html

> > >

> > > I saw your sad posting.

> > >

> > > Chelation will not cure autism. And I'm sure

> > > it hurts.

> > >

> > > Peace

> > >

> > > Mr. Butterbur

> > >

> > > ---------------------------------

> > >

> > > Bring photos to life! New PhotoMail makes

> > > sharing a breeze.

> >

> > 's Little Sister ISBN 1-4137-1724-1

> >

> > Wanna know my latest praises and gripes? Check

> > out my blog http://debityree.blogspot.com/

> >

> > ---------------------------------

> >

> > Bring photos to life! New PhotoMail makes

> > sharing a breeze.

>

> 's Little Sister ISBN 1-4137-1724-1

>

> Wanna know my latest praises and gripes? Check out my blog

http://debityree.blogspot.com/

>

March 22, 2006

Thanks for the info.

I'm still wondering about specific studies about chelation and effect on autism or other heavy metal-related health problems. Would you know if any have been made?

Inger

Re: Suggestions for autism-advocacyI would like for there to be more known about chelation and autism. Iam someone with heavy metal poisoning and an error in a gene fordetoxification. Should the metals come out or not? They can do damagein, though the body tries to store them in innocuous places like fat,they do displace minerals in bone and tissue and lodge in the brain.They can do damage coming out and may resettle anyway. They weremaking me sick, giving me candida for one thing and I was sufferingwith severe mineral and nutrient deficiencies. I may not have knownabout them because metals don't show up on tests unless your body isreleasing them or they are circulating through your body. In storageyou will not know. After I lost my child in the womb which may havebeen because of the metals or partially because of them, they begancoming out on their own and I had to chelate to get them out as bestas possible. It will be awhile before they are all out (if ever) andI go through periodic detoxes as my body releases them, rests, andrereleases (on it's own). So will what happened me happen later to achild who now has heavy metal poisoning? Is it better to get them outas a child? I would like to know if these stories are true abouttheir children getting better after chelation.

Brings words and photos together (easily) withPhotoMail - it's free and works with .

March 22, 2006

LOL!

Re: Chelation (was: Suggestions for

autism-advocacy)

On 21 Mar 2006 a name wrote:

> There is a deficiency of sulfurotransferase.

This especially affects Borgs who participate in BDSM.

March 22, 2006

It's not just autism/mercury. Lead, cadmium,nickel,antimony, aluminum, and a few others are responsible for health problems ranging from physiological to psychological depending on if it crosses the blood-brain barrier. http://www.findarticles.com/p/articles/mi_qa4101/is_200503/ai_n13510963 Here is one study involving pharmaceutical chelators. It also describes a small amount of information about what to expect if one has toxic build-up. Inger Lorelei <inglori@...> wrote: Thanks for the info. I'm still wondering about specific studies about

chelation and effect on autism or other heavy metal-related health problems. Would you know if any have been made? Inger Re: Suggestions for autism-advocacyI would like for there to be more known about chelation and autism. Iam someone with heavy metal poisoning and an error in a gene fordetoxification. Should the metals come out or not? They

can do damagein, though the body tries to store them in innocuous places like fat,they do displace minerals in bone and tissue and lodge in the brain.They can do damage coming out and may resettle anyway. They weremaking me sick, giving me candida for one thing and I was sufferingwith severe mineral and nutrient deficiencies. I may not have knownabout them because metals don't show up on tests unless your body isreleasing them or they are circulating through your body. In storageyou will not know. After I lost my child in the womb which may havebeen because of the metals or partially because of them, they begancoming out on their own and I had to chelate to get them out as bestas possible. It will be awhile before they are all out (if ever) andI go through periodic detoxes as my body releases them, rests, andrereleases (on it's own). So will what happened me happen later to achild who now has heavy metal poisoning? Is it better

to get them outas a child? I would like to know if these stories are true abouttheir children getting better after chelation. Brings words and photos together (easily) withPhotoMail - it's free and works with .

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

March 22, 2006

Thanks Nick!

And Dan as well!

Glad to have such resourceful people here to ask. :-)

Inger

Re: Re: Chelation

It's not just autism/mercury. Lead, cadmium,nickel,antimony, aluminum, and a few others are responsible for health problems ranging from physiological to psychological depending on if it crosses the blood-brain barrier. http://www.findarticles.com/p/articles/mi_qa4101/is_200503/ai_n13510963

Here is one study involving pharmaceutical chelators. It also describes a small amount of information about what to expect if one has toxic build-up.

March 27, 2006

In a message dated 3/27/2006 10:01:57 P.M. Eastern Standard Time,

lynnovale@... writes:

One of the mom's on this site has been thru chelation

with her child to remove metals which her child

apparently had built up due to vaccines and other

toxins in their environment. She said the OCD had

pretty much gone away after the chelation process.

Lynn -

I'd be interested in hearing about any experience with this as well -- I

looked it up on the Internet & couldn't really find anything that explained

specifically what the process/procedure is. There are several websites that

talk

about it - but none of them really go into detail on what the treatment

actually is & how it's done. If anyone on the board can go into detail on

this,

that would be great.

LT

March 28, 2006

It has been gone into but I lost the email from the

helpful mom. She said it's all in the files but I

took a quick look in the alphabetical list and

nothing. Not sure I know how to use the files. She

is a nutritionist.

Lynn

--- jtlt@... wrote:

---------------------------------

In a message dated 3/27/2006 10:01:57 P.M. Eastern

Standard Time,

lynnovale@... writes:

One of the mom's on this site has been thru chelation

with her child to remove metals which her child

apparently had built up due to vaccines and other

toxins in their environment. She said the OCD had

pretty much gone away after the chelation process.

Lynn -

I'd be interested in hearing about any experience with

this as well -- I

looked it up on the Internet & couldn't really find

anything that explained

specifically what the process/procedure is. There are

several websites that talk

about it - but none of them really go into detail on

what the treatment

actually is & how it's done. If anyone on the board

can go into detail on this,

that would be great.

LT

March 28, 2006

Do a " search " through the posts for lmb558 to pull up 's posts

( in MA). She's done the chelation and other info on nutrition,

etc. You'll have to read through them to find the one with the info

about it though!

>

> ---------------------------------

>

> In a message dated 3/27/2006 10:01:57 P.M. Eastern

> Standard Time,

> lynnovale@... writes:

>

> One of the mom's on this site has been thru chelation

> with her child to remove metals which her child

> apparently had built up due to vaccines and other

> toxins in their environment. She said the OCD had

> pretty much gone away after the chelation process.

>

> Lynn -

>

> I'd be interested in hearing about any experience with

> this as well -- I

> looked it up on the Internet & couldn't really find

> anything that explained

> specifically what the process/procedure is. There are

> several websites that talk

> about it - but none of them really go into detail on

> what the treatment

> actually is & how it's done. If anyone on the board

> can go into detail on this,

> that would be great.

> LT

>

April 3, 2006

,

We've done chelation with both my daughters (one is on the spectrum,

the other had developmental delays). We began chelation when my

girls were three & used Metal Free. The tests we had done showed

Metal Free was removing the toxic metals from their systems. We

also noticed a big improvement with speech in both girls. My

daughter that is on the spectrum seem to start catching on to new

concepts at preschool & at home much quicker. We did chelation for

about a year & the last test showed no high levels of toxic metals.

I do want to say I can't say with 100% certainty that these

improvements were from chelation. We were also doing a lot of other

therapies & treatments. However we did see these improvements after

chelation was started. My daughter on the spectrum didn't have any

side effects, but my other daughter did. She broke out in a rash on

her stomach & legs two days after starting Metal Free. We stopped

it & waited until the rash was gone before trying again. The second

time around she didn't have any type of reaction.

Wendie

>

> Has anyone tried chelation therapy for his child? i want to know

someone who has noticed improvement in an autistic child.

> thahk you .

>

> , mother of Nacho 8 yrs old, autistic

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

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April 3, 2006