Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Beverly, We have not done challenges or frequent testing (other than RBC). Just going by the great gains we are getting. CyndiBeverly Chase <chasingjake@...> wrote: Cyndi, Did you do a DMPS challenge prior to starting it? The reason I ask is my son saw Dr. Bradstreet and he did metals testing (blood) and also and IV DMPS challenge and there was no mercury according to either result. Therefore we have not pursued chelation. However, I recently had someone tell me that his results may just mean that the mercury is in the brain and tissue and that he may start excreting a lot of mercury after some time being chelated. I was just wondering what your (or anyone's) thoughts or experiences were w/this? TIA, Beverly cyndi bramblett <cyndibramblett@...> wrote: We have been chelating with TD-Dmps since last May with amazing results. My son's gains have been in language, awareness, and social skills. HIs pretend skills emerged and are now age appropriate. Great gains!!CyndiMissy Feldhaus <itchy10@...> wrote: I don't anyone personally who has done chelation. Missy- SAHM & Angel to Warrior !! I am who I am because that's who I am, --, 6 Aspergers, LKS All Kids are gifted, some just open their packages earlier than others-- Carr http://www.iditarace4autism.com/index.html Race for Autismhttp://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfrench Stop by and say hi to my Warrior!! chelation Has anyone tried chelation therapy for his child? i want to know someone who has noticed improvement in an autistic child. thahk you . , mother of Nacho 8 yrs old, autistic Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I can't tell you for myself, but a friend of mine who takes her son to Bradstreet-was there last month and that's what he did-IV provoked challenge-but with DMSA and then later EDTA. I think it's a preference for certain doctors now-but not all DAN doctors. She said she didn't see any change in child since it was done-for better or worse. But again that is one child only....so who knows.deltaskymiles2317 <tracy@...> wrote: Hi, It has been a few months since I have been on this site. We thought wewere through chelating and now we are wondering if we got a falsenegative on our last urine challenge. We have a new DAN doc as we moved across the country. He suggestsdoing a provoked challenge with a DMPS intravaneous. That sounds alittle scary to me. He also said that the more favorite way to chelatenow is Iv over DMPS transdermal. Lots has changed in 6 months. ANyway,can anyone share with me who has either chelated this way or done aprovoked challenge in this manner. Was there more regression etc.stronger reactions etc. I would greatly appreciate any help anyonecould offer me. Thanks a ton!! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I can't tell you for myself, but a friend of mine who takes her son to Bradstreet-was there last month and that's what he did-IV provoked challenge-but with DMSA and then later EDTA. I think it's a preference for certain doctors now-but not all DAN doctors. She said she didn't see any change in child since it was done-for better or worse. But again that is one child only....so who knows.deltaskymiles2317 <tracy@...> wrote: Hi, It has been a few months since I have been on this site. We thought wewere through chelating and now we are wondering if we got a falsenegative on our last urine challenge. We have a new DAN doc as we moved across the country. He suggestsdoing a provoked challenge with a DMPS intravaneous. That sounds alittle scary to me. He also said that the more favorite way to chelatenow is Iv over DMPS transdermal. Lots has changed in 6 months. ANyway,can anyone share with me who has either chelated this way or done aprovoked challenge in this manner. Was there more regression etc.stronger reactions etc. I would greatly appreciate any help anyonecould offer me. Thanks a ton!! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 , I've not done this, but I have read a number of terrible regresssion stories from people who have, a few of them very recently. Also, my listmates who follow the adult chelation lists report many adults who have experienced severe regressions from IV DMPS. I would not do this with my child. There are safe ways to chelate. Ways that take into account the fact that the body can only excrete so much metal at a time. Ways that take into account the pharmacalogical properties of chelators. Yes, the latest buzz from the DAN! conference is that some doctors are suggesting IV's and suppositories are the only way to go. Keep in mind that only a couple years ago the latest buzz was that TDs were the only way to go. IMO, challenge tests are useless and risky. We should decide on when chelation is finished in other ways. Best wishes, Anita > > Hi, > > It has been a few months since I have been on this site. We thought we > were through chelating and now we are wondering if we got a false > negative on our last urine challenge. > We have a new DAN doc as we moved across the country. He suggests > doing a provoked challenge with a DMPS intravaneous. That sounds a > little scary to me. He also said that the more favorite way to chelate > now is Iv over DMPS transdermal. Lots has changed in 6 months. ANyway, > can anyone share with me who has either chelated this way or done a > provoked challenge in this manner. Was there more regression etc. > stronger reactions etc. I would greatly appreciate any help anyone > could offer me. > > Thanks a ton!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 , I've not done this, but I have read a number of terrible regresssion stories from people who have, a few of them very recently. Also, my listmates who follow the adult chelation lists report many adults who have experienced severe regressions from IV DMPS. I would not do this with my child. There are safe ways to chelate. Ways that take into account the fact that the body can only excrete so much metal at a time. Ways that take into account the pharmacalogical properties of chelators. Yes, the latest buzz from the DAN! conference is that some doctors are suggesting IV's and suppositories are the only way to go. Keep in mind that only a couple years ago the latest buzz was that TDs were the only way to go. IMO, challenge tests are useless and risky. We should decide on when chelation is finished in other ways. Best wishes, Anita > > Hi, > > It has been a few months since I have been on this site. We thought we > were through chelating and now we are wondering if we got a false > negative on our last urine challenge. > We have a new DAN doc as we moved across the country. He suggests > doing a provoked challenge with a DMPS intravaneous. That sounds a > little scary to me. He also said that the more favorite way to chelate > now is Iv over DMPS transdermal. Lots has changed in 6 months. ANyway, > can anyone share with me who has either chelated this way or done a > provoked challenge in this manner. Was there more regression etc. > stronger reactions etc. I would greatly appreciate any help anyone > could offer me. > > Thanks a ton!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 > > > > Hi, > > > > It has been a few months since I have been on this site. We > thought we > > were through chelating and now we are wondering if we got a false > > negative on our last urine challenge. > > We have a new DAN doc as we moved across the country. He suggests > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > little scary to me. He also said that the more favorite way to > chelate > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > ANyway, > > can anyone share with me who has either chelated this way or done a > > provoked challenge in this manner. Was there more regression etc. > > stronger reactions etc. I would greatly appreciate any help anyone > > could offer me. > > > > Thanks a ton!! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 > > > > Hi, > > > > It has been a few months since I have been on this site. We > thought we > > were through chelating and now we are wondering if we got a false > > negative on our last urine challenge. > > We have a new DAN doc as we moved across the country. He suggests > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > little scary to me. He also said that the more favorite way to > chelate > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > ANyway, > > can anyone share with me who has either chelated this way or done a > > provoked challenge in this manner. Was there more regression etc. > > stronger reactions etc. I would greatly appreciate any help anyone > > could offer me. > > > > Thanks a ton!! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 > > > > Hi, > > > > It has been a few months since I have been on this site. We > thought we > > were through chelating and now we are wondering if we got a false > > negative on our last urine challenge. > > We have a new DAN doc as we moved across the country. He suggests > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > little scary to me. He also said that the more favorite way to > chelate > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > ANyway, > > can anyone share with me who has either chelated this way or done a > > provoked challenge in this manner. Was there more regression etc. > > stronger reactions etc. I would greatly appreciate any help anyone > > could offer me. > > > > Thanks a ton!! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 hi, we have been doing iv chelation with our DAN! doc, whose partner is on the chelation panel, think tank for DAN! it has definitely been nerve wracking to know what is right, because if you read any of andy cutler's opinions, he says IV's no way! anyways, we have had good results and no regression. our son has had high lead so we are working on getting that out. that's just our experience. :0) Hope -------------- Original message -------------- From: "deltaskymiles2317" <tracy@...> > >> > Hi, > > > > It has been a few months since I have been on this site. We > thought we> > were through chelating and now we are wondering if we got a false> > negative on our last urine challenge. > > We have a new DAN doc as we moved across the country. He suggests> > doing a provoked challenge with a DMPS intravaneous. That sounds a> > little scary to me. He also said that the more f avorite way to > chelate> > now is Iv over DMPS transdermal. Lots has changed in 6 months. > ANyway,> > can anyone share with me who has either chelated this way or done a> > provoked challenge in this manner. Was there more regression etc.> > stronger reactions etc. I would greatly appreciate any help anyone> > could offer me. > > > > Thanks a ton!!> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 hi, we have been doing iv chelation with our DAN! doc, whose partner is on the chelation panel, think tank for DAN! it has definitely been nerve wracking to know what is right, because if you read any of andy cutler's opinions, he says IV's no way! anyways, we have had good results and no regression. our son has had high lead so we are working on getting that out. that's just our experience. :0) Hope -------------- Original message -------------- From: "deltaskymiles2317" <tracy@...> > >> > Hi, > > > > It has been a few months since I have been on this site. We > thought we> > were through chelating and now we are wondering if we got a false> > negative on our last urine challenge. > > We have a new DAN doc as we moved across the country. He suggests> > doing a provoked challenge with a DMPS intravaneous. That sounds a> > little scary to me. He also said that the more f avorite way to > chelate> > now is Iv over DMPS transdermal. Lots has changed in 6 months. > ANyway,> > can anyone share with me who has either chelated this way or done a> > provoked challenge in this manner. Was there more regression etc.> > stronger reactions etc. I would greatly appreciate any help anyone> > could offer me. > > > > Thanks a ton!!> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Id like to add onto what Anita said, and hopefully at least open up a few things to consider on the chelation /test/ when your done side. Im not at all fond at all with Iv chelation and my son now is eight and we just came back aboard the chelation journey a year ago. But from what I have learned I am still in not in a hurry because we are doing well and the key is still gaining progress with every round. That's the lesson I would like to share. Imo watch the child not the test. A big lesson I had learned and wouldn't want anyone to have to learn it the hard way as we did. We lost 2.5 years of chelation because of a doc and a test. I posted this on another board but you may find some info helpful in your situation. It was related to reading tests results or misreading for that matter. One thing that I will comment on if you have a safe chelation protocol in place your child is doing well and you are moving forward than that is what I would stay with. IMO proper chelation takes dedication and time. I do not believe in any short cuts when it comes to removal of heavy metals out of my son's body. Here are a few comments below related to testing you might find helpful. Q? We have been chelating since October with td-dmsa, great gains for (name) , but we have never seen anything in elevated ranges. Are we pulling metals? Is mercury high enough/close enough to elevated ranges to tell us that (name) does have high levels of mercury in his system? I know we like to see metals coming out and the fact that you see some of them on the chart are a good sign. . But this can fluctuate and remember Hg hides and many false negatives when only looking at ranges on these sort of tests. Often times you may not see mercury for 6 months then all of a sudden your child may start dumping. That is why choosing a correct chelator can be tricky or maybe need to be modified to your child's specific Hm burden. Stay with you chelation protocol if it is going well … it sounds things are going well for you. Chelation this takes a long time and commitment keep going, keep seeing results Ultimately Your kiddo will be the tell tale if he is eliminating / excreting and responding to chelation Kenny v Testing reply By Only. Interpreting a toxic testing can be dangerous into thinking you are done or thinks you may not still have a HM burden. (That's what hap to us 3 years ago). So I will not comment on your ranges, as there is more to interpretation than just toxic elements. One must look at all the essential elements as well and start looking for their levels to normalize as you relive the Hm Burden. That is why I mention not to get all caught op in what only tests show/ reveal, like all things they are only tools which need to be used properly to be effective Some one wrote: Name Wrote : Have you done a fecal toxic metals test? We have found that many patients excrete a lot more in the fecal than in the urine. Also depends on which form of chelation oral transdermal etc….. And or chelating agent. Also when you obtained the test, (timed / challenge) How much time during, after any given chelator. Another words 4 hours-2nd day 3-rd day. Day after round. …. Other examples may be first morning urine 2nd day stool and so on. Lots of factors to consider when looking at tests How about comparing tests? Again if you are only looking at TEST results you must also consider. If doing this for a second test and you want to COPARE this to a base line. Well you must also ask your self how did I obtain my first test. And how you obtained this test and what you may be comparing it to will also be something to consider as you are looking only at tests results Something I pondered when we were told by a test and a doctor we were finished chelation over 3 years ago. HTH Kenny V Always Hope For Recovery > > >> > > Hi, > > > > > > It has been a few months since I have been on this site. We > > thought we> > > were through chelating and now we are wondering if we got a false> > > negative on our last urine challenge. > > > We have a new DAN doc as we moved across the country. He suggests> > > doing a provoked challenge with a DMPS intravaneous. That sounds a> > > little scary to me. He also said that the more favorite way to > > chelate> > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > ANyway,> > > can anyone share with me who has either chelated this way or done a> > > provoked challenge in this manner. Was there more regression etc.> > > stronger reactions etc. I would greatly appreciate any help anyone> > > could offer me. > > > > > > Thanks a ton!!> > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Id like to add onto what Anita said, and hopefully at least open up a few things to consider on the chelation /test/ when your done side. Im not at all fond at all with Iv chelation and my son now is eight and we just came back aboard the chelation journey a year ago. But from what I have learned I am still in not in a hurry because we are doing well and the key is still gaining progress with every round. That's the lesson I would like to share. Imo watch the child not the test. A big lesson I had learned and wouldn't want anyone to have to learn it the hard way as we did. We lost 2.5 years of chelation because of a doc and a test. I posted this on another board but you may find some info helpful in your situation. It was related to reading tests results or misreading for that matter. One thing that I will comment on if you have a safe chelation protocol in place your child is doing well and you are moving forward than that is what I would stay with. IMO proper chelation takes dedication and time. I do not believe in any short cuts when it comes to removal of heavy metals out of my son's body. Here are a few comments below related to testing you might find helpful. Q? We have been chelating since October with td-dmsa, great gains for (name) , but we have never seen anything in elevated ranges. Are we pulling metals? Is mercury high enough/close enough to elevated ranges to tell us that (name) does have high levels of mercury in his system? I know we like to see metals coming out and the fact that you see some of them on the chart are a good sign. . But this can fluctuate and remember Hg hides and many false negatives when only looking at ranges on these sort of tests. Often times you may not see mercury for 6 months then all of a sudden your child may start dumping. That is why choosing a correct chelator can be tricky or maybe need to be modified to your child's specific Hm burden. Stay with you chelation protocol if it is going well … it sounds things are going well for you. Chelation this takes a long time and commitment keep going, keep seeing results Ultimately Your kiddo will be the tell tale if he is eliminating / excreting and responding to chelation Kenny v Testing reply By Only. Interpreting a toxic testing can be dangerous into thinking you are done or thinks you may not still have a HM burden. (That's what hap to us 3 years ago). So I will not comment on your ranges, as there is more to interpretation than just toxic elements. One must look at all the essential elements as well and start looking for their levels to normalize as you relive the Hm Burden. That is why I mention not to get all caught op in what only tests show/ reveal, like all things they are only tools which need to be used properly to be effective Some one wrote: Name Wrote : Have you done a fecal toxic metals test? We have found that many patients excrete a lot more in the fecal than in the urine. Also depends on which form of chelation oral transdermal etc….. And or chelating agent. Also when you obtained the test, (timed / challenge) How much time during, after any given chelator. Another words 4 hours-2nd day 3-rd day. Day after round. …. Other examples may be first morning urine 2nd day stool and so on. Lots of factors to consider when looking at tests How about comparing tests? Again if you are only looking at TEST results you must also consider. If doing this for a second test and you want to COPARE this to a base line. Well you must also ask your self how did I obtain my first test. And how you obtained this test and what you may be comparing it to will also be something to consider as you are looking only at tests results Something I pondered when we were told by a test and a doctor we were finished chelation over 3 years ago. HTH Kenny V Always Hope For Recovery > > >> > > Hi, > > > > > > It has been a few months since I have been on this site. We > > thought we> > > were through chelating and now we are wondering if we got a false> > > negative on our last urine challenge. > > > We have a new DAN doc as we moved across the country. He suggests> > > doing a provoked challenge with a DMPS intravaneous. That sounds a> > > little scary to me. He also said that the more favorite way to > > chelate> > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > ANyway,> > > can anyone share with me who has either chelated this way or done a> > > provoked challenge in this manner. Was there more regression etc.> > > stronger reactions etc. I would greatly appreciate any help anyone> > > could offer me. > > > > > > Thanks a ton!!> > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hi Hope, I have no personal experience with IV chelation, but I do know a number of doctors who use it and swear by it. After the incident in PA there are more people nervious about it, but they used the wrong type in PA, so as long as you are not using the wrong EDTA, IV Chelation still has a strong track record of safety as I understand. - Stan > > > > > > Hi, > > > > > > It has been a few months since I have been on this site. We > > thought we > > > were through chelating and now we are wondering if we got a false > > > negative on our last urine challenge. > > > We have a new DAN doc as we moved across the country. He suggests > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > little scary to me. He also said that the more favorite way to > > chelate > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > ANyway, > > > can anyone share with me who has either chelated this way or done a > > > provoked challenge in this manner. Was there more regression etc. > > > stronger reactions etc. I would greatly appreciate any help anyone > > > could offer me. > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Hi Hope, I have no personal experience with IV chelation, but I do know a number of doctors who use it and swear by it. After the incident in PA there are more people nervious about it, but they used the wrong type in PA, so as long as you are not using the wrong EDTA, IV Chelation still has a strong track record of safety as I understand. - Stan > > > > > > Hi, > > > > > > It has been a few months since I have been on this site. We > > thought we > > > were through chelating and now we are wondering if we got a false > > > negative on our last urine challenge. > > > We have a new DAN doc as we moved across the country. He suggests > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > little scary to me. He also said that the more favorite way to > > chelate > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > ANyway, > > > can anyone share with me who has either chelated this way or done a > > > provoked challenge in this manner. Was there more regression etc. > > > stronger reactions etc. I would greatly appreciate any help anyone > > > could offer me. > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 --Stan, Do you know what went wrong in PA?. I have not heard ths story. YOu mentioned they used the wrong chelater. Do you know what they used? THanks mb12 valtrex , " Stan Kurtz " <kurtzstan@...> wrote: > > Hi Hope, > > I have no personal experience with IV chelation, but I do know a number of doctors who > use it and swear by it. After the incident in PA there are more people nervious about it, > but they used the wrong type in PA, so as long as you are not using the wrong EDTA, IV > Chelation still has a strong track record of safety as I understand. > > - Stan > > > > > > > > > > Hi, > > > > > > > > It has been a few months since I have been on this site. We > > > thought we > > > > were through chelating and now we are wondering if we got a false > > > > negative on our last urine challenge. > > > > We have a new DAN doc as we moved across the country. He suggests > > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > > little scary to me. He also said that the more favorite way to > > > chelate > > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > > ANyway, > > > > can anyone share with me who has either chelated this way or done a > > > > provoked challenge in this manner. Was there more regression etc. > > > > stronger reactions etc. I would greatly appreciate any help anyone > > > > could offer me. > > > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 --Stan, Do you know what went wrong in PA?. I have not heard ths story. YOu mentioned they used the wrong chelater. Do you know what they used? THanks mb12 valtrex , " Stan Kurtz " <kurtzstan@...> wrote: > > Hi Hope, > > I have no personal experience with IV chelation, but I do know a number of doctors who > use it and swear by it. After the incident in PA there are more people nervious about it, > but they used the wrong type in PA, so as long as you are not using the wrong EDTA, IV > Chelation still has a strong track record of safety as I understand. > > - Stan > > > > > > > > > > Hi, > > > > > > > > It has been a few months since I have been on this site. We > > > thought we > > > > were through chelating and now we are wondering if we got a false > > > > negative on our last urine challenge. > > > > We have a new DAN doc as we moved across the country. He suggests > > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > > little scary to me. He also said that the more favorite way to > > > chelate > > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > > ANyway, > > > > can anyone share with me who has either chelated this way or done a > > > > provoked challenge in this manner. Was there more regression etc. > > > > stronger reactions etc. I would greatly appreciate any help anyone > > > > could offer me. > > > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Deaths Associated With Hypocalcemia From Chelation Therapy—Texas, Pennsylvania, and Oregon, 2003-2005 http://jama.ama-assn.org/cgi/content/full/295/18/2131 > > > > > > > > > > Hi, > > > > > > > > > > It has been a few months since I have been on this site. We > > > > thought we > > > > > were through chelating and now we are wondering if we got a false > > > > > negative on our last urine challenge. > > > > > We have a new DAN doc as we moved across the country. He suggests > > > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > > > little scary to me. He also said that the more favorite way to > > > > chelate > > > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > > > ANyway, > > > > > can anyone share with me who has either chelated this way or > done a > > > > > provoked challenge in this manner. Was there more regression etc. > > > > > stronger reactions etc. I would greatly appreciate any help anyone > > > > > could offer me. > > > > > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Deaths Associated With Hypocalcemia From Chelation Therapy—Texas, Pennsylvania, and Oregon, 2003-2005 http://jama.ama-assn.org/cgi/content/full/295/18/2131 > > > > > > > > > > Hi, > > > > > > > > > > It has been a few months since I have been on this site. We > > > > thought we > > > > > were through chelating and now we are wondering if we got a false > > > > > negative on our last urine challenge. > > > > > We have a new DAN doc as we moved across the country. He suggests > > > > > doing a provoked challenge with a DMPS intravaneous. That sounds a > > > > > little scary to me. He also said that the more favorite way to > > > > chelate > > > > > now is Iv over DMPS transdermal. Lots has changed in 6 months. > > > > ANyway, > > > > > can anyone share with me who has either chelated this way or > done a > > > > > provoked challenge in this manner. Was there more regression etc. > > > > > stronger reactions etc. I would greatly appreciate any help anyone > > > > > could offer me. > > > > > > > > > > Thanks a ton!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi : We have been chelating our 5-year-old ASD son since the end of June. We do DMSA suppositories - 3 days on and 11 days off - because our DAN! doctor thinks they are the most effective method other than IV (which we don't have access to). I haven't noticed any differences in Jimmy while chelating other than his urine stinks the next day (smells like burnt engine oil). Our DAN! doctor says he has patients who are much improved behaviorally while chelating. On a side note, I found it refreshing that you referred to your son as " mild. " Our son is also essentially non-verbal (but will blurt out clear words and even whole phrases occasionally) and also has great eye contact, is affectionate, and enjoys doing things with people (primarily adults) rather than doing things alone. Our son also points and has great joint attention, but like your son, he doesn't have much pretend play nor does he wave bye-bye. But the reason I found your calling that " mild " refreshing is because everyone always calls my son " severe " or " moderate " at best, mainly because he is nonverbal and not potty trained (at age 5...obviously a big difference from a 2-year- old doing the same). Anyway, thanks for making my evening! - Jimmy 10/12/2001 > > Hi. I was just wondering if anyone here has ever tried chelation > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > and on the mild end of the spectrum. We are doing ABA, speech, and > vitamin therapy right now. All of which have seemed to help. He is > happy, affectionate, has good eye contact, and enjoys being around > people, especially other children. His main thing is that he is still > non verbal. He has about 5 word approximations that he uses very > sparingly, and he can say bye bye. He also doesn't point to things, > wave bye bye, or pretend play. He has troble with imitation, but is > getting better with the motor imitation. I am worried that the > chelation will make him worse before he gets better and > temporarily " undo " all the progress he has made so far. But at the > same time, I am worried about not doing it. Does anyone have an > experience with this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi : We have been chelating our 5-year-old ASD son since the end of June. We do DMSA suppositories - 3 days on and 11 days off - because our DAN! doctor thinks they are the most effective method other than IV (which we don't have access to). I haven't noticed any differences in Jimmy while chelating other than his urine stinks the next day (smells like burnt engine oil). Our DAN! doctor says he has patients who are much improved behaviorally while chelating. On a side note, I found it refreshing that you referred to your son as " mild. " Our son is also essentially non-verbal (but will blurt out clear words and even whole phrases occasionally) and also has great eye contact, is affectionate, and enjoys doing things with people (primarily adults) rather than doing things alone. Our son also points and has great joint attention, but like your son, he doesn't have much pretend play nor does he wave bye-bye. But the reason I found your calling that " mild " refreshing is because everyone always calls my son " severe " or " moderate " at best, mainly because he is nonverbal and not potty trained (at age 5...obviously a big difference from a 2-year- old doing the same). Anyway, thanks for making my evening! - Jimmy 10/12/2001 > > Hi. I was just wondering if anyone here has ever tried chelation > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > and on the mild end of the spectrum. We are doing ABA, speech, and > vitamin therapy right now. All of which have seemed to help. He is > happy, affectionate, has good eye contact, and enjoys being around > people, especially other children. His main thing is that he is still > non verbal. He has about 5 word approximations that he uses very > sparingly, and he can say bye bye. He also doesn't point to things, > wave bye bye, or pretend play. He has troble with imitation, but is > getting better with the motor imitation. I am worried that the > chelation will make him worse before he gets better and > temporarily " undo " all the progress he has made so far. But at the > same time, I am worried about not doing it. Does anyone have an > experience with this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 Hi : We have been chelating our 5-year-old ASD son since the end of June. We do DMSA suppositories - 3 days on and 11 days off - because our DAN! doctor thinks they are the most effective method other than IV (which we don't have access to). I haven't noticed any differences in Jimmy while chelating other than his urine stinks the next day (smells like burnt engine oil). Our DAN! doctor says he has patients who are much improved behaviorally while chelating. On a side note, I found it refreshing that you referred to your son as " mild. " Our son is also essentially non-verbal (but will blurt out clear words and even whole phrases occasionally) and also has great eye contact, is affectionate, and enjoys doing things with people (primarily adults) rather than doing things alone. Our son also points and has great joint attention, but like your son, he doesn't have much pretend play nor does he wave bye-bye. But the reason I found your calling that " mild " refreshing is because everyone always calls my son " severe " or " moderate " at best, mainly because he is nonverbal and not potty trained (at age 5...obviously a big difference from a 2-year- old doing the same). Anyway, thanks for making my evening! - Jimmy 10/12/2001 > > Hi. I was just wondering if anyone here has ever tried chelation > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > and on the mild end of the spectrum. We are doing ABA, speech, and > vitamin therapy right now. All of which have seemed to help. He is > happy, affectionate, has good eye contact, and enjoys being around > people, especially other children. His main thing is that he is still > non verbal. He has about 5 word approximations that he uses very > sparingly, and he can say bye bye. He also doesn't point to things, > wave bye bye, or pretend play. He has troble with imitation, but is > getting better with the motor imitation. I am worried that the > chelation will make him worse before he gets better and > temporarily " undo " all the progress he has made so far. But at the > same time, I am worried about not doing it. Does anyone have an > experience with this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Have either of you ever had your child evaluated for apraxia with a speech therapist who works with apraxic children? Your sons sound somewhat similar to my daughter who has apraxia rather than ASD. (That's not to say that you can't have ASD & apraxia together. Many kids do! My daughter just lacks the relational deficits of a child with autism.) I'm not a speech therapist or an O.T., so what I say I've just learned through experience with my own children, one who is clearly on the spectrum (although always somewhat verbal) and one who was severely speech delayed but wasn't officially spectrum. My daughter only started talking 1 year ago and she is turning 6. Prior to that she would also blurt out words and phrases. She potty trained at 3 but still occasionally will have an accident. I think it's not uncommon for dyspraxic children to have sensory issues that make it difficult to actually feel when they have to go. I find for some reason when I experiment with cultured dairy my daughter really starts having wetting accidents. Also, her original diagnosis at age 15 months was ASD because she didn't point. Looking back now, I wonder if the lack of pointing was a motor planning issue because poor motor planning is just such a huge part of all of her issues. (Now all of her therapists and doctors agree that she is definitely not ASD.) Her motor imitation is terrible. She still can't do the hand motions to the " Wheels on the bus " . I found that if we were doing a song together like " I'm a Little Tea Pot " and I told her verbally to put her hand on her hip, she could do it much more easily than just watching and imitating. For her the thing that brought her speech out was chelation but it wasn't the sulfury chelators that it sounds like you are using. It was Calcium EDTA infusions. We drove 6 hours one way to get them and are hoping to relocate somewhere where they are more easily accessible. You're right. Dr Gutstein would say that " Speech is Overrated " . It's the communication that's important. Now , even though her speech isn't really clear, will sit and listen as her 3rd grade brother goes over his school work and answer some of his questions! It's amazing how many teachers treated as if she were retarded because she couldn't speak for so long. She still has a way to go as she has some visual processing issues and fine motor issues, which have affected her ability to write but even that is getting better. I personally feel that a lot of the non-verbal autistic kids are apraxic as well as autistic but that's just a theory as well as a gut feeling of mine. I have nothing scientific to back this theory up with other than lots of Mom experience. Vicki > > On a side note, I found it refreshing that you referred to your son > as " mild. " Our son is also essentially non-verbal (but will blurt out > clear words and even whole phrases occasionally) and also has great eye > contact, is affectionate, and enjoys doing things with people > (primarily adults) rather than doing things alone. Our son also points > and has great joint attention, but like your son, he doesn't have much > pretend play nor does he wave bye-bye. But the reason I found your > calling that " mild " refreshing is because everyone always calls my > son " severe " or " moderate " at best, mainly because he is nonverbal and > not potty trained (at age 5...obviously a big difference from a 2- year- > old doing the same). > > Anyway, thanks for making my evening! > > - > > Jimmy 10/12/2001 > > > > > > Hi. I was just wondering if anyone here has ever tried chelation > > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > > and on the mild end of the spectrum. We are doing ABA, speech, and > > vitamin therapy right now. All of which have seemed to help. He is > > happy, affectionate, has good eye contact, and enjoys being around > > people, especially other children. His main thing is that he is still > > non verbal. He has about 5 word approximations that he uses very > > sparingly, and he can say bye bye. He also doesn't point to things, > > wave bye bye, or pretend play. He has troble with imitation, but is > > getting better with the motor imitation. I am worried that the > > chelation will make him worse before he gets better and > > temporarily " undo " all the progress he has made so far. But at the > > same time, I am worried about not doing it. Does anyone have an > > experience with this? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Have either of you ever had your child evaluated for apraxia with a speech therapist who works with apraxic children? Your sons sound somewhat similar to my daughter who has apraxia rather than ASD. (That's not to say that you can't have ASD & apraxia together. Many kids do! My daughter just lacks the relational deficits of a child with autism.) I'm not a speech therapist or an O.T., so what I say I've just learned through experience with my own children, one who is clearly on the spectrum (although always somewhat verbal) and one who was severely speech delayed but wasn't officially spectrum. My daughter only started talking 1 year ago and she is turning 6. Prior to that she would also blurt out words and phrases. She potty trained at 3 but still occasionally will have an accident. I think it's not uncommon for dyspraxic children to have sensory issues that make it difficult to actually feel when they have to go. I find for some reason when I experiment with cultured dairy my daughter really starts having wetting accidents. Also, her original diagnosis at age 15 months was ASD because she didn't point. Looking back now, I wonder if the lack of pointing was a motor planning issue because poor motor planning is just such a huge part of all of her issues. (Now all of her therapists and doctors agree that she is definitely not ASD.) Her motor imitation is terrible. She still can't do the hand motions to the " Wheels on the bus " . I found that if we were doing a song together like " I'm a Little Tea Pot " and I told her verbally to put her hand on her hip, she could do it much more easily than just watching and imitating. For her the thing that brought her speech out was chelation but it wasn't the sulfury chelators that it sounds like you are using. It was Calcium EDTA infusions. We drove 6 hours one way to get them and are hoping to relocate somewhere where they are more easily accessible. You're right. Dr Gutstein would say that " Speech is Overrated " . It's the communication that's important. Now , even though her speech isn't really clear, will sit and listen as her 3rd grade brother goes over his school work and answer some of his questions! It's amazing how many teachers treated as if she were retarded because she couldn't speak for so long. She still has a way to go as she has some visual processing issues and fine motor issues, which have affected her ability to write but even that is getting better. I personally feel that a lot of the non-verbal autistic kids are apraxic as well as autistic but that's just a theory as well as a gut feeling of mine. I have nothing scientific to back this theory up with other than lots of Mom experience. Vicki > > On a side note, I found it refreshing that you referred to your son > as " mild. " Our son is also essentially non-verbal (but will blurt out > clear words and even whole phrases occasionally) and also has great eye > contact, is affectionate, and enjoys doing things with people > (primarily adults) rather than doing things alone. Our son also points > and has great joint attention, but like your son, he doesn't have much > pretend play nor does he wave bye-bye. But the reason I found your > calling that " mild " refreshing is because everyone always calls my > son " severe " or " moderate " at best, mainly because he is nonverbal and > not potty trained (at age 5...obviously a big difference from a 2- year- > old doing the same). > > Anyway, thanks for making my evening! > > - > > Jimmy 10/12/2001 > > > > > > Hi. I was just wondering if anyone here has ever tried chelation > > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > > and on the mild end of the spectrum. We are doing ABA, speech, and > > vitamin therapy right now. All of which have seemed to help. He is > > happy, affectionate, has good eye contact, and enjoys being around > > people, especially other children. His main thing is that he is still > > non verbal. He has about 5 word approximations that he uses very > > sparingly, and he can say bye bye. He also doesn't point to things, > > wave bye bye, or pretend play. He has troble with imitation, but is > > getting better with the motor imitation. I am worried that the > > chelation will make him worse before he gets better and > > temporarily " undo " all the progress he has made so far. But at the > > same time, I am worried about not doing it. Does anyone have an > > experience with this? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Have either of you ever had your child evaluated for apraxia with a speech therapist who works with apraxic children? Your sons sound somewhat similar to my daughter who has apraxia rather than ASD. (That's not to say that you can't have ASD & apraxia together. Many kids do! My daughter just lacks the relational deficits of a child with autism.) I'm not a speech therapist or an O.T., so what I say I've just learned through experience with my own children, one who is clearly on the spectrum (although always somewhat verbal) and one who was severely speech delayed but wasn't officially spectrum. My daughter only started talking 1 year ago and she is turning 6. Prior to that she would also blurt out words and phrases. She potty trained at 3 but still occasionally will have an accident. I think it's not uncommon for dyspraxic children to have sensory issues that make it difficult to actually feel when they have to go. I find for some reason when I experiment with cultured dairy my daughter really starts having wetting accidents. Also, her original diagnosis at age 15 months was ASD because she didn't point. Looking back now, I wonder if the lack of pointing was a motor planning issue because poor motor planning is just such a huge part of all of her issues. (Now all of her therapists and doctors agree that she is definitely not ASD.) Her motor imitation is terrible. She still can't do the hand motions to the " Wheels on the bus " . I found that if we were doing a song together like " I'm a Little Tea Pot " and I told her verbally to put her hand on her hip, she could do it much more easily than just watching and imitating. For her the thing that brought her speech out was chelation but it wasn't the sulfury chelators that it sounds like you are using. It was Calcium EDTA infusions. We drove 6 hours one way to get them and are hoping to relocate somewhere where they are more easily accessible. You're right. Dr Gutstein would say that " Speech is Overrated " . It's the communication that's important. Now , even though her speech isn't really clear, will sit and listen as her 3rd grade brother goes over his school work and answer some of his questions! It's amazing how many teachers treated as if she were retarded because she couldn't speak for so long. She still has a way to go as she has some visual processing issues and fine motor issues, which have affected her ability to write but even that is getting better. I personally feel that a lot of the non-verbal autistic kids are apraxic as well as autistic but that's just a theory as well as a gut feeling of mine. I have nothing scientific to back this theory up with other than lots of Mom experience. Vicki > > On a side note, I found it refreshing that you referred to your son > as " mild. " Our son is also essentially non-verbal (but will blurt out > clear words and even whole phrases occasionally) and also has great eye > contact, is affectionate, and enjoys doing things with people > (primarily adults) rather than doing things alone. Our son also points > and has great joint attention, but like your son, he doesn't have much > pretend play nor does he wave bye-bye. But the reason I found your > calling that " mild " refreshing is because everyone always calls my > son " severe " or " moderate " at best, mainly because he is nonverbal and > not potty trained (at age 5...obviously a big difference from a 2- year- > old doing the same). > > Anyway, thanks for making my evening! > > - > > Jimmy 10/12/2001 > > > > > > Hi. I was just wondering if anyone here has ever tried chelation > > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > > and on the mild end of the spectrum. We are doing ABA, speech, and > > vitamin therapy right now. All of which have seemed to help. He is > > happy, affectionate, has good eye contact, and enjoys being around > > people, especially other children. His main thing is that he is still > > non verbal. He has about 5 word approximations that he uses very > > sparingly, and he can say bye bye. He also doesn't point to things, > > wave bye bye, or pretend play. He has troble with imitation, but is > > getting better with the motor imitation. I am worried that the > > chelation will make him worse before he gets better and > > temporarily " undo " all the progress he has made so far. But at the > > same time, I am worried about not doing it. Does anyone have an > > experience with this? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2007 Report Share Posted September 6, 2007 Hello , I am currently chelating 2 of my sons. One has ADD the other Autism. We are using TD-DMPS every other day. (drops). Also, oral EDTA. We also do the IV chelation of DMPS and EDTA every 2 weeks. I have seen HUGE results with my son who has ADD, age 8 1/2. My son with autism is 4, is progressing, but not as fast as his brother. Watch this clip from Dr. Buttar who created the DMPS http://autismmedia.org/media1.html You will find Dr. Buttar under Metal Detoxification. Last year through another DAN! dr. we tried TD-DMSA which was horrible for my son with autism. For some kids it might work, but did NOT for my son. I was scared to try DMPS, but found that works for him. On the days we don't chelate, we replenish the body with minerals. Chelation is safe, but there's a protocol you have to follow depending on your childs needs. (followed by frequent labs we do at Care Clinics in Austin, TX). I hope this helps. Mirielle pinkie6@... > > > > > > Hi. I was just wondering if anyone here has ever tried chelation > > therapy. Our DAN doctor wants to try a cream on my son. He's almost 3 > > and on the mild end of the spectrum. We are doing ABA, speech, and > > vitamin therapy right now. All of which have seemed to help. He is > > happy, affectionate, has good eye contact, and enjoys being around > > people, especially other children. His main thing is that he is still > > non verbal. He has about 5 word approximations that he uses very > > sparingly, and he can say bye bye. He also doesn't point to things, > > wave bye bye, or pretend play. He has troble with imitation, but is > > getting better with the motor imitation. I am worried that the > > chelation will make him worse before he gets better and > > temporarily " undo " all the progress he has made so far. But at the > > same time, I am worried about not doing it. Does anyone have an > > experience with this? > > > > > Quote Link to comment Share on other sites More sharing options...
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