Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 How much does a home unit cost? And how much does it cost to operate it? Is it hard to maintain the unit? ===================================================== > Well, I can add a little to what I wrote in the article. > > For example, in January I flew out to Tucson. Flying, especially a > stopover, is not good for lyme (hypoxia, lower pressure). I > developed what I call a " lymegraine " . I hadn't had one since late > AUgust, again while travelling. My home chamber has basically rid me > of them and if I ever start to get one, I get in the chamber for 20- > 30 minutes. > > So there I was in Tucson, on an assignment at a horse ranch, and > totally screwed up by a lymegraine. So I called Lance (who posted > here) and said, please, find me someone in Tucson with a chamber so I > can get in for half an hour and get rid of my lymegraine. And within > an hour I had two names. I went over to a doctor's (she has one in > her home for self treatment of m.s.) and she kindly put me in it for > half an hour, and my lymegraine slowly receded and within a few hours > was a mere whisper of a headache. > > I was very grateful. > > I use my chamber as a kind of adjunctive boost. If I know I have to > do something, like travel, or go to a business dinner, I make sure to > get in. Otherwise I use it about every 4-5 days. But there are > times I am more stressed and need it more often. It has not cured my > lyme but it has greatly helped my quality of life. > > I know that on our lyme and hyperbaric list, that " noodlydoo " got one > for his lyme, he also does antibiotics, and he feels its very > helpful. You can also read the list moderator's postings, early on, > about how it helped him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 For costs, you can go to the website (www.Vita02.com) I'm sure its all on there. It doesn't cost anything to operate. There's not maintenance except for keeping it clean. I have sheets and pillows in there, but I haven't laundered them in a while because I'm the only one going in mhy chamber. - -- In , " bhp355 " <zippy890@j...> wrote: > How much does a home unit cost? > > And how much does it cost to operate it? > > Is it hard to maintain the unit? > > ===================================================== > > > > > Well, I can add a little to what I wrote in the article. > > > > For example, in January I flew out to Tucson. Flying, especially a > > stopover, is not good for lyme (hypoxia, lower pressure). I > > developed what I call a " lymegraine " . I hadn't had one since late > > AUgust, again while travelling. My home chamber has basically rid > me > > of them and if I ever start to get one, I get in the chamber for 20- > > 30 minutes. > > > > So there I was in Tucson, on an assignment at a horse ranch, and > > totally screwed up by a lymegraine. So I called Lance (who posted > > here) and said, please, find me someone in Tucson with a chamber so > I > > can get in for half an hour and get rid of my lymegraine. And > within > > an hour I had two names. I went over to a doctor's (she has one in > > her home for self treatment of m.s.) and she kindly put me in it > for > > half an hour, and my lymegraine slowly receded and within a few > hours > > was a mere whisper of a headache. > > > > I was very grateful. > > > > I use my chamber as a kind of adjunctive boost. If I know I have > to > > do something, like travel, or go to a business dinner, I make sure > to > > get in. Otherwise I use it about every 4-5 days. But there are > > times I am more stressed and need it more often. It has not cured > my > > lyme but it has greatly helped my quality of life. > > > > I know that on our lyme and hyperbaric list, that " noodlydoo " got > one > > for his lyme, he also does antibiotics, and he feels its very > > helpful. You can also read the list moderator's postings, early > on, > > about how it helped him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Nope. No prices-as far as I could find. They want you to call them. When an online retailer won't list their prices you KNOW they are thinking of big sums of money. :-). Ah, well.... Adrienne Re: HBOT For costs, you can go to the website (www.Vita02.com) I'm sure its all on there. It doesn't cost anything to operate. There's not maintenance except for keeping it clean. I have sheets and pillows in there, but I haven't laundered them in a while because I'm the only one going in mhy chamber. - -- In , " bhp355 " <zippy890@j...> wrote: > How much does a home unit cost? > > And how much does it cost to operate it? > > Is it hard to maintain the unit? > > ===================================================== > > > > > Well, I can add a little to what I wrote in the article. > > > > For example, in January I flew out to Tucson. Flying, especially a > > stopover, is not good for lyme (hypoxia, lower pressure). I > > developed what I call a " lymegraine " . I hadn't had one since late > > AUgust, again while travelling. My home chamber has basically rid > me > > of them and if I ever start to get one, I get in the chamber for 20- > > 30 minutes. > > > > So there I was in Tucson, on an assignment at a horse ranch, and > > totally screwed up by a lymegraine. So I called Lance (who posted > > here) and said, please, find me someone in Tucson with a chamber so > I > > can get in for half an hour and get rid of my lymegraine. And > within > > an hour I had two names. I went over to a doctor's (she has one in > > her home for self treatment of m.s.) and she kindly put me in it > for > > half an hour, and my lymegraine slowly receded and within a few > hours > > was a mere whisper of a headache. > > > > I was very grateful. > > > > I use my chamber as a kind of adjunctive boost. If I know I have > to > > do something, like travel, or go to a business dinner, I make sure > to > > get in. Otherwise I use it about every 4-5 days. But there are > > times I am more stressed and need it more often. It has not cured > my > > lyme but it has greatly helped my quality of life. > > > > I know that on our lyme and hyperbaric list, that " noodlydoo " got > one > > for his lyme, he also does antibiotics, and he feels its very > > helpful. You can also read the list moderator's postings, early > on, > > about how it helped him. This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Geez you're right, I just checked. PRices used to be on there before. Well, brand new they range from about $10,000 on up.Sometimes you can get demo or used models for less. Definitely expensive, though for some of us well worth it if you average it out over the long haul. They used to have leasing plans that ran from around $250 to $400/mo...those were lease to buy type plans. > Nope. No prices-as far as I could find. They want you to call them. When an online retailer won't list their prices you KNOW they are thinking of big sums of money. :-). Ah, well.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 The inflatable chambers have a medical passthrough which can be used with oxygen under a doctor's guidance. You know this, . In fact, you were hoping to work with the chamber manufacturers yourself at one point and that fell apart, from what I've heard through the grapevine. The proof is in the pudding for home users of chambers, most of whom are much improved. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 I suppose all the Pro Atheletes currently using Chambers will testify to there benifits after this season. I have first hand knowledge of how benifical they have proven to be.My Mother going from 5 Vicodins a day to some Tylenol(with suggested supplements) BTW My Brother sells the Chambers from his Atlanta facility and we also sell in Cal.I have not sold one.Everybody justs wants to come over and use mine.Yes you do need a script for O2..I have a script and make sure anyone wanting O2 gets one.Not to hard from the Chiro. After my first time in a Chamber I wanted so much to expierence it again I made an appt. ten minutes after leaving the clinic. Gosh, Anyone in cronic pain or suffering sports injuries I pray they have the oppertunity to benifit from there use. There is an FDA for O2 administration. When my Brother, who visits often,the first thing he does in the morning is to get in my chamber.No BS.and it's his enterprise.Since I really have little involvement in their marketing(only 50 percent)just joking .I hope and Pray more of us can benifit. rhartsoe <rhartsoe@...> wrote: Lance sells inflatable soft shelled chambers which work without administering oxygen in addition. This is a clear indication he probably can not or will not give you all the facts on Hyperbaric Oxygen and how it works. The inflatable chambers only go to 1.3 ATA and do not use oxygen but only room air. As the red blood cells are the carriers used to take oxygen to every cell in the body, and the fact that they operate at an average 97% capacity already, hyperbaric pressure is the ONLY way to increase the flow of oxygen to the injured cells which need healing. The added pressure creates saturation of body fluids such as all plasma and cerebral and spinal fluids. If you breath normal air which is 21% oxygen at regular sea level pressure of 14.7 psi which equals 1.0 ATA. Thus: At 1.0 ATA (sea level ) , 21% oxygen ( air ) , PO2 = 760 mmHg x 0.21=159.6mmHg In an inflatable chamber which uses room air the scientific equation is as follows: At 1.3 ATA , 21% Oxygen, PO2 = 760 mmHg x 1.3 x 0.21 O2 = 207.48 mmHg which is an increase of less than 30% over room air If you add 100% oxygen and go to 1.5 ATA in a regular chamber capable of higher pressure you get the following: At l.5 ATA ,100% Oxygen, PO2= 760 mmHg x 1.5 x 1.00 O2 = 1140 mmHg As you can see the amount of oxygen is over 700% higher than room air and 550% higher than the chamber at 1.3 ata and room air and is clearly more effective in delivering additional oxygen. Will 1.3 ATA with room air oxygen help? Of course, it will. However, the inflatable chambers start at $9500 for the smallest one and are $15000 and $20000 for the 2 larger models. Inflatable chambers are a good support therapy but will not replace or should not be construed to be the same as HBO with 100% oxygen. Depending on the diagnosis being treated, it may or may not show improvement. Considering the fact that you can recieve 120 treatments of the " real thing " for the price of an inflatable chamber, which is going to give the most for the buck? If you are talking about an open wound or injury or infection, there is no question. Dollar for Dollar, do regular hbot in a regular chamber with 100% oxygen which not only heals but creates new capillary growth, new neuronal cell growth and development and the side effects are improvements to all areas of the body. The proof is in the pudding. And the proof is scientific based. $100 per session is actually a bargain for HBOT as hospitals charge $800 and up. There are a couple of centers in the USA which charge less than $100 and they include at Rapid Recovery in California, and our clinic in NC. Both and myself started our clinics because of the results we saw with hbot and our loved ones. Do not consider this a commercial because we both stay booked without advertising. We are presently booked 3 to 4 months in advance and could easily raise our prices. We get results. , feel free to add your comments. The important thing here is to learn and understand the difference and how hbot works. An inflatable chamber is better than nothing, but if you can afford an inflatable chamber why not do the ultimate? Do regular hbot and use the inflatable chamber to maintain and continue improvements. There has not been a single therapy that can scientifically prove to put more oxygen into your system than Hyperbaric Oxygen. There are others that can help. It depends on what you need and how bad you need it. In the areas of wounds which will not heal, radiation damage, especially in the areas of the mouth and throat, brain injury especially stroke, near drowning, etc. DON'T FOOL AROUND, DO IT RIGHT. Your life may very well depend on it. If using hyperbarics just for health maintenance is a different story and an inflatable chamber may be just what you need. The best place to ask questions and get unbiased answers about hbot is on the NeuroHBOT group located at NeuroHBOT/ or you can subscribe by sending a blank email to neurohbot-subscribe Hartsoe, www.miraclemountain.org best pressures for hyperbaric treatment > Date: Sun, 20 Jun 2004 06:32:28 -0000 > Hi everybody, > Hi Jill, Thanks for hooking me up! > I have a very sick friend that has recently started doing hyperbaric > o2 with a practicioner in Lake Havasu,Az and it is helping her. I > have considered purchasing a hyperbaric chamber for a while myself > and she is interested in buying one as she pays $100. a pop there. We > want to set up a therapy room with my O3 sauna, an L.B.G., Chi > machine, ect. But her practicioner there told her that most portable > home hyperbaric chambers aren't effective because they don't go up to > adequate pressures. That they are good at keeping you healthy but not > if your already very sick. My impression was that this sounded like > a bit of sales hype. But then I'm not sure. I'm ozone literate but > not hyperbaric literate. Still learning. > So I'd like someone to weigh in on this that knows. What are the > ideal pressures to do H.B.O.T.? Anybody know any good science on this > subject? She has a pretty bad jaw infection, so I don't want her to > run out and buy a unit that won't treat it. Thanx > Jack > > _________________________________________________________________ > Watch the online reality show Mixed Messages with a friend and enter to win > a trip to NY > http://www.msnmessenger-download.click-url.com/go/onm00200497ave/direct/01/ > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 They are listed. Re: [ ] hbot > > In a message dated 8/3/2004 1:49:13 AM Central Daylight Time, > rhartsoe@... writes: > > www.hbotproviders.com > > > > > thank you so much. This is very informative to the parents. Im not > sure if you know but Texas has a wonderfull clinic called Lufkin Hyperbarics > _www.lufkinhyperbarics.com_ (http://www.lufkinhyperbarics.com) would you also > include them on you page. It would be deeply apreciiated. I think what you > have done is wonderfull. Keep up the good work. > Darin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 In a message dated 8/3/2004 1:49:13 AM Central Daylight Time, rhartsoe@... writes: www.hbotproviders.com thank you so much. This is very informative to the parents. Im not sure if you know but Texas has a wonderfull clinic called Lufkin Hyperbarics _www.lufkinhyperbarics.com_ (http://www.lufkinhyperbarics.com) would you also include them on you page. It would be deeply apreciiated. I think what you have done is wonderfull. Keep up the good work. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 That is a great , resourceful site. thanks for putting it together.when my son was first injured i had such a difficult time finding any providers. florence > I just wanted to pass on the website to find the most comprehensive > listing of hyperbaric oxygen providers on the internet. > > www.hbotproviders.com > > It includes listings all over the world as well as the USA > > Hartsoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 I also did HBOT, I also felt like it has helped the fight with lyme. I feel like my brain functions better since doing them, there is proof that HBOT improves spect scans. But, I have not had any weird events while in the chamber like you mentioned. I am always in the chamber with other people and we watch a movie. It is a 1hr drive for me to the chamber, but I drive myself home, no problem. I do maintance dives every 7-10 days, which works best for me. I would recommend it, it has helped alot, but no cure. eric_s11050 <eric_s11050@...> wrote: I have done three sets for hbot and i have to say that i think that it is working.after i get out of the chamber i feel like a pile of lead and my brain usualy feels funny. while I am in the tank my anxiety goes thru the roof and alot of psycho problems and paranoia emerge. when in the tank and im watching tv i feel that I am reacting emotionally to what im watching as if the hbot stirs up the spirochetes that are deep in the brain. so far I have alot of tissue damage and the hbot is reversing my spect scan by flooding the tissue with 100% oxegen.also flooding the spinal cord with oxegen so that the spinal nerves can heal. some feel that for the nerves system to heal that this is the way. im in a monochamber wich is the best they say for lyme as it is realy intense.but you may have to trust your technician to make sure you are safe.I know that i was really scared the first time. but i did it and she held my hand thru the whole thing. taking my mind off what was going on so I would not worry. so far my right eye has gotten much better since hbot. eric Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 I have no proof of this but I think there are 2 possibilities to 's reaction: 1) A herx--I remember one guy who " dove " w/ us in the multichamber, had had very bad neurolyme, and would sometimes have panics during treatment that were thought to be herx-related 2) Maybe it's too much oxygen. I know that when I did 90 minuts at 2.5 ata, that my brain would start to feel gluggy and I'd feel depressed. It was too much 02, too long a dive, and too deep a pressure. Tho they won't advocate it you could try 1.5 ata and see how that works, then 2.0 etc...find the pressure that is right for you, that helps without harming. > > > I have done three sets for hbot and i have to say that i think that it > is working.after i get out of the chamber i feel like a pile of lead > and my brain usualy feels funny. while I am in the tank my anxiety > goes thru the roof and alot of psycho problems and paranoia emerge. > when in the tank and im watching tv i feel that I am reacting > emotionally to what im watching as if the hbot stirs up the > spirochetes that are deep in the brain. > so far I have alot of tissue damage and the hbot is reversing my spect > scan by flooding the tissue with 100% oxegen.also flooding the spinal > cord with oxegen so that the spinal nerves can heal. some feel that > for the nerves system to heal that this is the way. im in a > monochamber wich is the best they say for lyme as it is realy > intense.but you may have to trust your technician to make sure you are > safe.I know that i was really scared the first time. but i did it and > she held my hand thru the whole thing. taking my mind off what was > going on so I would not worry. so far my right eye has gotten much > better since hbot. > eric > > > > > > > Questions and/or comments can be directed to the list owner at Lyme- Aid-Owner@Y... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 eric, are you sure you are at 1.5 ata? That is NOT the usual pressure used for lyme in clinics, they go to 2.4 or 2.5 ata. 1.5 is used for cerebral palsy, brain trauma etc. I personally think 1.5 is healthier and does as good a job at suppressing the spirochete and is useful longterm. (I have a home chamber that goes to about 1.35 which is very close in terms of tissue saturation to 1.5). If it's half an hour into your time, I'd think it was some kind of herx. You just have to ride it out, therefore. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Hi Sandy The place I went to for the HBOT is in Webster, Tx. South area of Houston, on the way to Galveston (45 South) They are getting a group of lymies together for a group lyme dive (at reduced rates) starting March 21 and will go for 5wks. If you are interested call South Coast Hyperbaric 281-554-8848 Speak with Melinda and tell her you spoke with me ( Lucher) This place is about 15mi. from Hobby Airport and there is a motel near by with cheap rates. Melinda can give you the details. My doctor that is starting the CS IV treatments is here in Houston also. There is also a Fibro and Fatigue Center in Houston who is using CS IV for CFS, Lyme, etc. Email me direct for their ph# sandy <irishdrought2003@...> wrote: --where do you find a Dr that can do HBOT and the CS IV's? I live in TN and would travel but I don't think there is anybody in this state that does these. Can any Dr do them or are they legal in every state? Sandy - In , Lucher wrote: > > HBOT - Hyperbaric Oxygen Treatment > I use the Soverign Silver from www.natural-immunogenics. They do also sell a IV CS that my D.O. Doc has looked into. She can/will give them to me but right now I am having to save my veins for the IVIG treatments. My veins are very tricky/fragile from having lyme for 30yrs. > > > sandy wrote: > > > --What is HBOT? I have seen this mentioned other places but don't > know what it is. Also are you taking CS IV'S. > If so could I ask where you can get them? > > CS has been something that has helped me. I use to buy is in the > local health food store but I bought a Silver Pulsar that you use on > your wrist and it is an electrical device that helps clear pathogens > out of your blood. This device will also make CS and that is what I > do now. I believe it is a very helpful thing. I give it to my > animals and have drank a pint jar in a day and never had any problems. > > Thanks Sandy Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Sorry for the second post but I did not remeber that you had already mentioned the cs iv's. I get my posts mixed up . I am not sure now after rereading that a group was going to do a group dive. I know what hyperbiarc is or I thought I did. I use to be a scuba diver and I knew that this is where you go if you get the bends but without the bends I didn't know you went under water I just thought it was a compression chamber. I would like to do anything to help same some money. I will call the hyperbaric place tomarrow. I also went back and read your other posts and saw that you were sick a long time also so that was one of the questions I had ask in the prior post. I go to every forum I can that has to do with lyme and I cannot keep one group straight much less making so many rounds. Thanks, SAndy > > > > > > --What is HBOT? I have seen this mentioned other places but don't > > know what it is. Also are you taking CS IV'S. > > If so could I ask where you can get them? > > > > CS has been something that has helped me. I use to buy is in the > > local health food store but I bought a Silver Pulsar that you use > on > > your wrist and it is an electrical device that helps clear > pathogens > > out of your blood. This device will also make CS and that is what I > > do now. I believe it is a very helpful thing. I give it to my > > animals and have drank a pint jar in a day and never had any > problems. > > > > Thanks Sandy > > > > > > > Questions and/or comments can be directed to the list owner at Lyme- Aid-Owner@Y... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 Good idea Margaret, we have MS chamber about 20 miles too. Just trying to find out their details so I can contact them. I feel that this is the BIG one thats out of my reach right now, makes getting TD DMPS and MB12 seem easy!! Mandi x have e-mailed the local branch (Huntingdon) of the MS association, as I know they have a chamber but are having trouble finding the funds to operate it and have been saying they may have to lose the facility, to suggest a shared use with autistic children - BUT we would then have to find the money: grant making charitable trusts? Certainly cheaper than going to the USA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Dear All, I have been reading all these posts about Hyperbaric Oxygen Treatment with great interest. i know it is used to treat the bends in divers but dont know anything about it in relation to our kids. Can you fill me in or point me in the right direction to find out more. TIA Caroline Traa Aberdeenshire x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 This site has good links www.miraclemountain.org Mandi x have been reading all these posts about Hyperbaric Oxygen Treatment with great interest. i know it is used to treat the bends in divers but dont know anything about it in relation to our kids. Can you fill me in or point me in the right direction to find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Lorene, Excellent news that you have found this for Lloyd. Really hope it goes well for you, please keep us posted on developments! All best wishes Pamela Re: HBOTI have been looking into this too; my son LLoyd was recently found to have hypoperfusin, something reported in autism (published) and together with a non-epileptic origin of seizure, we are pretty keen to get this going. I have been in touch with P in Dundee, very nice (actually not him directly but a lady very informed who has sent me several papers.I have visited this morning the hyperbaric chamber in Edinburgh at a MS center; LLoyd will be starting soon, three weeks treatment, every day 1hr (I will be with him in the chamber together with 6 other people). Very nice, friendly supportive and cheap! Just ask for a £7 donation! in US it is $100/session.Apparently there are 60 centers like this throughout UK... and in France for those who lives there it is done in hospitals.I think it is on this list that I have read that the second part of the Buttar protocol can be done with hyperbaric oxygen, is that you Mandy who wrote some clarifications recently about this issue? I have lost the e-mail, can someone help me to trace it?BestLorene--On 9 Apr 05, at 14:31, Mum231ASD@... wrote:> Good idea Margaret, we have MS chamber about 20 miles too. Just trying to > find out their details so I can contact them.> > I feel that this is the BIG one thats out of my reach right now, makes > getting TD DMPS and MB12 seem easy!!> Mandi x> > have e-mailed the local branch (Huntingdon) of the MS association, as I know > they have a chamber but are having trouble finding the funds to operate it > and have been saying they may have to lose the facility, to suggest a shared > use with autistic children - BUT we would then have to find the money: grant > making charitable trusts? Certainly cheaper than going to the USA.> > > LegaciesLegacies make a great deal of what we do possible. To find out more about this type of giving please contact 0845 300 1128 or click hereIf you have received this email in error and are not the intended recipient please notify the Email Administrator using the email address: postmaster@.... Please note that access to this email by anyone other than the intended recipient is unauthorised, and we would appreciate you respecting our privacy. Any disclosure, copying or distribution of a message by an unintended recipient may be unlawful.Church of England Children's Society Company No. 40004-C Charity Registration No. 221124Subsidiary Companies: The Children's Society (Services) Ltd Company No. 4545124, The Children's Society (Trading) Ltd Company No. 885496Registered Office: Rudolf House, Margery Street, London WC1X 0JL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Hi Mandi Thanx for the links. Very interesting have been looking thru bits. Didnt really know anything about this stuff but felt sure you'd put me right. Keen to know how people get on. Are many people trying this with their kids here in UK. I could tell there are problems getting places etc. Good Luck with it all your end. BFN Caroline x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 I have been looking into this too; my son LLoyd was recently found to have hypoperfusin, something reported in autism (published) and together with a non-epileptic origin of seizure, we are pretty keen to get this going. I have been in touch with P in Dundee, very nice (actually not him directly but a lady very informed who has sent me several papers. I have visited this morning the hyperbaric chamber in Edinburgh at a MS center; LLoyd will be starting soon, three weeks treatment, every day 1hr (I will be with him in the chamber together with 6 other people). Very nice, friendly supportive and cheap! Just ask for a £7 donation! in US it is $100/session. Apparently there are 60 centers like this throughout UK... and in France for those who lives there it is done in hospitals. I think it is on this list that I have read that the second part of the Buttar protocol can be done with hyperbaric oxygen, is that you Mandy who wrote some clarifications recently about this issue? I have lost the e-mail, can someone help me to trace it? Best Lorene -- On 9 Apr 05, at 14:31, Mum231ASD@... wrote: > Good idea Margaret, we have MS chamber about 20 miles too. Just trying to > find out their details so I can contact them. > > I feel that this is the BIG one thats out of my reach right now, makes > getting TD DMPS and MB12 seem easy!! > Mandi x > > have e-mailed the local branch (Huntingdon) of the MS association, as I know > they have a chamber but are having trouble finding the funds to operate it > and have been saying they may have to lose the facility, to suggest a shared > use with autistic children - BUT we would then have to find the money: grant > making charitable trusts? Certainly cheaper than going to the USA. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 well after Lorenes post I am thinking Scotland is closer than the Blue Ridge Mountians of Virginia LOL, and...who do I know in Scotland - Caroline! Only joking! Mandi Thanx for the links. Very interesting have been looking thru bits. Didnt really know anything about this stuff but felt sure you'd put me right. Keen to know how people get on. Are many people trying this with their kids here in UK. I could tell there are problems getting places etc. Good Luck with it all your end. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Hi Lorene I think the guy that wrote about it is Hardy?? Buttar recommended HBOt in the second stage of TD DMPS I think in his congressional testimony - straining my brain cells here. Will have another think tomorrow after some sleep. Mandi think it is on this list that I have read that the second part of the Buttar protocol can be done with hyperbaric oxygen, is that you Mandy who wrote some clarifications recently about this issue? I have lost the e-mail, can someone help me to trace it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Well you know Mandi I was thinking wow Dundee is not far from me. We are half way between Aberdeen and Dundee so shop in both places. You are very welcome for a visit any time. Repay all this info you've supplied me over the years :-) Lovely rural location, you'd like it its cool.... So you never know maybe I'll be starting a little B & B Sonn for all these families BFN and have a nice day Caroline x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Hi Caroline Sounds attractive ..... get that B & B sign up - we'll all be visiting!! TinaCarolineTraa@... wrote: Well you know Mandi I was thinking wow Dundee is not far from me. We are half way between Aberdeen and Dundee so shop in both places. You are very welcome for a visit any time. Repay all this info you've supplied me over the years :-) Lovely rural location, you'd like it its cool.... So you never know maybe I'll be starting a little B & B Sonn for all these families BFN and have a nice day Caroline x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2005 Report Share Posted April 27, 2005 Joy, I'm just now getting around to reading old emails. Sorry! We've considered Hyperbaric treatments for , but we're choosing the biomedical approach and others before we go that route. I have a friend who has a 22 yr old son (Aspergers) who has been through the treatments several times. They saw some results, most of which outsiders didn't notice, but she and her husband saw some changes. She actually showed me Hank's before & after SPEC (sp?) scans of the brain. I was impressed. If you'd like to speak with her, email me privately and I'll give you her information. I'm unsure of the success rate with HBO and autistics, but she met many CP patients who improved a good bit from HBO. HBOT Have any of you tried Hyperbaric Oxygen Therapy for your autistic child? I am especially interested if any have tried the portable chambers? Any info would be helpful. Thanks! Joy Quote Link to comment Share on other sites More sharing options...
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