Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 , Great post! You said it all! I'd be interested to know how you found out about/acquired treatments from other countries. Joan ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 In a message dated 98-11-17 11:02:19 EST, you write: << Great post! You said it all! I'd be interested to know how you found out about/acquired treatments from other countries. >> Hi I discovered a company in Great Britain that carries a lot of medications from different parts of Europe called IAS (International Anti-aging Services). They have a dessicated thyroid that 2 tablets are the equivilant of 1 Armour. Many drugs that we have to have a prescription for here are over the counter in Europe. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 , Thanks for the info. Joan ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 1999 Report Share Posted March 31, 1999 Leisa, Where in CT do you live? My sister in CT is due to give birth with her first child in April and I believe she would love to know the name of a Ped. with an attitude such as the one you have described. Congrats in finding the right one...Kindly inform. Blessings, Nadine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 1999 Report Share Posted May 10, 1999 I just returned from my DR's visit and got good news. I am in remission! I read Elena and Sue's letter and it was great timing. I was very frustrated with my DR visit. He seemed annoyed with my questions and almost patronizing. I left feeling frustrated and like my questions weren't answered but more like I was put off. Like " I'm the Doctor , I'll worry about that stuff. You just follow my directions and don't worry about anything. " I feel like it is time for me to at least look into seeing another doctor. I would like one I can talk to about my concerns and ask questions of. I like to know why I am taking certain meds and what they will do, etc... That doesn't seem like too much to ask. How does one go about finding a good doctor? I know this is a rare disease and I don;t want to leave my life in anyone's hands. I always hear people say things " He's one of the top doctors in his field. " How do they know that? Is there some list of the top doctor's like there is for businessmen? Any help or suggestions would be appreciated! Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Its just as if I wrote this E-mail, it was exactly the same as my experience with my doctor. Take Care Elena --- Chollyfam@... wrote: > From: Chollyfam@... > > I just returned from my DR's visit and got good > news. I am in remission! I > read Elena and Sue's letter and it was great timing. > I was very frustrated > with my DR visit. He seemed annoyed with my > questions and almost > patronizing. I left feeling frustrated and like my > questions weren't > answered but more like I was put off. Like " I'm the > Doctor , I'll worry > about that stuff. You just follow my directions and > don't worry about > anything. " I feel like it is time for me to at > least look into seeing > another doctor. I would like one I can talk to > about my concerns and ask > questions of. I like to know why I am taking > certain meds and what they will > do, etc... That doesn't seem like too much to ask. > How does one go about > finding a good doctor? I know this is a rare > disease and I don;t want to > leave my life in anyone's hands. I always hear > people say things " He's one of > the top doctors in his field. " How do they know > that? Is there some list of > the top doctor's like there is for businessmen? Any > help or suggestions > would be appreciated! > > Tami > > ------------------------------------------------------------------------ > The Final Countdown is here! > http://www.ONElist.com > Join the " Star Wars " craze at ONElist. > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > > > 1.) To subscribe send e-mail to > -subscribeonelist > > 2.) To UNsubscribe send to > -unsubscribeonelist > > 3.) Digest e-mail format send to > -digestonelist > > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 1999 Report Share Posted May 22, 1999 I am also looking for Dr.'s in NY state who are pro-choice with vaccinations. Does anyone know of any? (especially in the south-western part of the state) Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 1999 Report Share Posted June 7, 1999 Hello All, I have had major computer problems and have missed the last posts. I agree that doctors don't have a clue they have told me so, They can only do or say what they are told to so who tells them what to say that's the one we need to talk to. Just read something very interesting you know that hole in the ozone? Well come to find out the air conditioners and cars don't and did not cause this problem it was the government. Well comes to find out it was there nuclear weapons test in the pacific and when they exploded a nuclear bomb they caught the ozone on fire and destroyed it It was not our flat they can not put the blame on us our government is destroying the earth!!!!!! They tell the doctors what to say also!! Raven ------------------------------------------------------------------------ eGroups.com home: hyperthyroidism - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 jody, I also wonder it they dont do tests because wont get full pay for it. My doc talked about doing ercp, but changed his mind. My insurance is medicaid and it doesnt pay much. I would hate to really believe that this is so. J >From: Jody Compton <compton_61@...> >Reply- onelist > onelist >Subject: Re: [ ] fatigue >Date: Thu, 12 Aug 1999 10:58:41 -0700 (PDT) >MIME-Version: 1.0 >From errors-165537-5128-shireen42 Thu Aug 12 10:58:50 1999 >Received: from [209.207.164.211] by hotmail.com (2.1) with ESMTP id >MHotMailB97C5659000DD82197B8D1CFA4D331EC0; Thu Aug 12 10:58:50 1999 >Received: (qmail 16412 invoked by alias); 12 Aug 1999 17:59:08 -0000 >Received: (qmail 16129 invoked from network); 12 Aug 1999 17:58:58 -0000 >Received: from unknown (HELO web1301.mail.) (128.11.23.151) by >pop.onelist.com with SMTP; 12 Aug 1999 17:58:58 -0000 >Message-ID: <19990812175841.16403.rocketmail@...> >Received: from [206.15.84.29] by web1301.mail.; Thu, 12 Aug 1999 >10:58:41 PDT >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Jody Compton <compton_61@...> > >Doctors either baffle you with bullshit or try to scare you out of >wanting testing done. Arrogance = stupidity coupled with a misguided >sense of superiority. >Jody > >--- " Albert J. Bentley " <jordent@...> wrote: > > From: " Albert J. Bentley " <jordent@...> > > > > At 15:16 11/08/99 -0700, you wrote: > > >From: Lynn <CEN32195@...> > > > > > >Janelle, I had soooo much fatigue before I was > > diagnosed and put on Imuran, > > >that is one reason I went to the Dr. was because I > > was tired of it! For me I > > >really fell the Imuran is no part of it. Lynn AIH > > >88888888888888888888888888888888888888888888888888888888888888888888888888888 > > Dear Janelle, I have been researching the question > > of Fatigue in health and > > in > > autoimmune diseases when I have a little time It > > seems a lot is written but > > not > > much in the way explanination. If your " doctor " is a > > doctor, he could say a > > lot > > more than " I guess it's just something you will have > > to get used to, " . Is > > he ignorant > > of any explanition or is he showing contempt for > > your intelligence. The > > possible > > reason for his stupid statement is that he will not > > take the time for you, > > since he > > wants to cycle as many patients as possibile to > > collect as much mony as > > possible. > > In any case he does not deserve you as a patient. > > His favorit word seems to be " maybe " . Medicine is an > > art and a science. He > > does not > > seem to grasp either. Why is he posing as a > > professional? Need I say more? > > Regards, Albert > > > > >Janelle Asplund wrote: > > > > > >> From: Janelle Asplund <jasplund@...> > > >> > > >> Has anyone else's doctor suggested a relation > > between Imuran and fatigue? I > > >> was complaining to my GI about how darn tired I > > am all the time, and said > > >> something to the effect of, " I guess it's just > > something I'll have to get > > >> used to, " since fatigue and liver disease go hand > > in hand. But he seems to > > >> think that since my levels look good, I should be > > feeling more energetic, > > >> and suggested that maybe the fatigue has to do > > with the Imuran. I do > > >> remember that 3 days after I went on it, I felt > > sooooper doooooper tired, > > >> although fatigue was also one of the first > > symptoms of my AIH before I > > >> started any meds. So confusing... > > >> > > >> Janelle AIH > > >> Seattle > > >> > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 , Unfortunately it is true. Medicine has become a business not a patient oriented profession. Everything revolves around the dollar. I do NOT have and HMO and wouldnt have that type of coverage if my life depended on it. I know many doctors who base their decisions about your care on the money they can get from the Insurance companies or medi-cal or medicaid or even now medicare. Medicare has become so bad that some doctors refuse to take patients who have it. I have a PPO plan and so have the flexability to see who I want. If I see a doctor out of plan then I pay 20% versus the 10% if they are in plan. Its a very sad state of affairs our medical system in this country. Ive been in it for over 15 yrs and have watched its decline. jody --- susan johnson <shireen42@...> wrote: > From: " susan johnson " <shireen42@...> > > jody, > > I also wonder it they dont do tests because wont get > full pay for it. My > doc talked about doing ercp, but changed his mind. > My insurance is medicaid > and it doesnt pay much. I would hate to really > believe that this is so. > > J > > > >From: Jody Compton <compton_61@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] fatigue > >Date: Thu, 12 Aug 1999 10:58:41 -0700 (PDT) > >MIME-Version: 1.0 > >From errors-165537-5128-shireen42 Thu Aug 12 > 10:58:50 1999 > >Received: from [209.207.164.211] by hotmail.com > (2.1) with ESMTP id > >MHotMailB97C5659000DD82197B8D1CFA4D331EC0; Thu Aug > 12 10:58:50 1999 > >Received: (qmail 16412 invoked by alias); 12 Aug > 1999 17:59:08 -0000 > >Received: (qmail 16129 invoked from network); 12 > Aug 1999 17:58:58 -0000 > >Received: from unknown (HELO > web1301.mail.) (128.11.23.151) by > >pop.onelist.com with SMTP; 12 Aug 1999 17:58:58 > -0000 > >Message-ID: > <19990812175841.16403.rocketmail@...> > >Received: from [206.15.84.29] by > web1301.mail.; Thu, 12 Aug 1999 > >10:58:41 PDT > >Mailing-List: list onelist; > contact > > -owneronelist > >Delivered-mailing list > onelist > >Precedence: bulk > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > >From: Jody Compton <compton_61@...> > > > >Doctors either baffle you with bullshit or try to > scare you out of > >wanting testing done. Arrogance = stupidity coupled > with a misguided > >sense of superiority. > >Jody > > > >--- " Albert J. Bentley " <jordent@...> > wrote: > > > From: " Albert J. Bentley " > <jordent@...> > > > > > > At 15:16 11/08/99 -0700, you wrote: > > > >From: Lynn <CEN32195@...> > > > > > > > >Janelle, I had soooo much fatigue before I was > > > diagnosed and put on Imuran, > > > >that is one reason I went to the Dr. was > because I > > > was tired of it! For me I > > > >really fell the Imuran is no part of it. Lynn > AIH > > > > >88888888888888888888888888888888888888888888888888888888888888888888888888888 > > > Dear Janelle, I have been researching the > question > > > of Fatigue in health and > > > in > > > autoimmune diseases when I have a little time It > > > seems a lot is written but > > > not > > > much in the way explanination. If your " doctor " > is a > > > doctor, he could say a > > > lot > > > more than " I guess it's just something you will > have > > > to get used to, " . Is > > > he ignorant > > > of any explanition or is he showing contempt for > > > your intelligence. The > > > possible > > > reason for his stupid statement is that he will > not > > > take the time for you, > > > since he > > > wants to cycle as many patients as possibile to > > > collect as much mony as > > > possible. > > > In any case he does not deserve you as a > patient. > > > His favorit word seems to be " maybe " . Medicine > is an > > > art and a science. He > > > does not > > > seem to grasp either. Why is he posing as a > > > professional? Need I say more? > > > Regards, Albert > > > > > > >Janelle Asplund wrote: > > > > > > > >> From: Janelle Asplund <jasplund@...> > > > >> > > > >> Has anyone else's doctor suggested a relation > > > between Imuran and fatigue? I > > > >> was complaining to my GI about how darn tired > I > > > am all the time, and said > > > >> something to the effect of, " I guess it's > just > > > something I'll have to get > > > >> used to, " since fatigue and liver disease go > hand > > > in hand. But he seems to > > > >> think that since my levels look good, I > should be > > > feeling more energetic, > > > >> and suggested that maybe the fatigue has to > do > > > with the Imuran. I do > > > >> remember that 3 days after I went on it, I > felt > > > sooooper doooooper tired, > > > >> although fatigue was also one of the first > > > symptoms of my AIH before I > > > >> started any meds. So confusing... > > > >> > > > >> Janelle AIH > > > >> Seattle > > > >> > > > >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 Has anyone heard of Dr. Conn associated with the Jefferson Hospital Transplant team in Philadelphia? J >From: nebaz@... (Leona ) >Reply- onelist > onelist >Subject: Re: [ ] good news >Date: Mon, 30 Aug 1999 09:44:49 -0700 (MST) >MIME-Version: 1.0 >From errors-165537-5727-shireen42 Mon Aug 30 09:44:22 1999 >Received: from [209.207.164.221] by hotmail.com (2.1) with ESMTP id >MHotMailB993FFDE0083D820F3A4D1CFA4DD09BA0; Mon Aug 30 09:44:22 1999 >Received: (qmail 26832 invoked by alias); 30 Aug 1999 16:45:20 -0000 >Received: (qmail 26808 invoked from network); 30 Aug 1999 16:45:20 -0000 >Received: from unknown (HELO mailsorter-105-1.bryant.webtv.net) >(209.240.198.119) by pop.onelist.com with SMTP; 30 Aug 1999 16:45:20 -0000 >Received: from postoffice-163.iap.bryant.webtv.net >(postoffice-163.iap.bryant.webtv.net [209.240.198.176]) by >mailsorter-105-1.bryant.webtv.net (8.8.8/ms.gso.08Dec97) with ESMTP id >JAA18253; Mon, 30 Aug 1999 09:44:49 -0700 (PDT) >Received: (from production@localhost) by >postoffice-163.iap.bryant.webtv.net (8.8.8/po.gso.24Feb98) id JAA04079; >Mon, 30 Aug 1999 09:44:49 -0700 (PDT) >X-WebTV-Signature: 1 >ETAtAhRE2NLZtTpLdXHChC5J32zucu9j8wIVAIQjMpTpRhWm3awKYL4fsvB3KxXM >Message-ID: <13724-37CAB501-14343@...> >In-Reply-CREE8V1@...'s message of Mon, 30 Aug 1999 12:20:34 EDT >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: nebaz@... (Leona ) > >Roxanne, I'm envious. I believe we started reducing prednisone about the >same time did'nt we? I started in March but 3 wks after my last pill May >5th I started not feeling well. Dr did another biopsy Jul 30th after >increased lft's of lab results so now he has me back on 10mg with >intentions of reducing to 5 & there I will be forever. He increased the >azathioprine from 50 to 100 when I started decreasing prednisone & I am >still on 100. I hope that will be decreased eventually but he said we >will see. Someone in this group has been to Mayo sdale & I was >thinking it might be you. If so who was your Dr? Mine is Dr on. >I am happy for you & hope you continue well. Whats your secret?:-) >Leona M. > > > > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 1999 Report Share Posted September 3, 1999 Lynn wrote: > Sometimes > I think they ought to test these Drs. before they renew their licenses. Just because they are Drs., doesn't mean they graduated at the top of their class. Right? I even read one time that you should always ask your new doctor what percentage of the class he/she graduated in. But being Drs., they'd probably lie. :-) Nina PBC in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 1999 Report Share Posted October 17, 1999 Dear Elena and all, Speaking of doctors, I dread to see mine on my Tues appt. Last time I was there he yelled at me. We were looking at a picture of the inside of my stomach. He started to explaing a hiatal hernia to me. I said I know what that is, and he yelled " NO YOU DONT KNOW " . Well, I did know, but wasnt about to argue with him. It was late in the day and he had had a long tiring day. I hope that is all it was. But I dont like being yelled at and treated as a no nothing. J >From: Elena P <brit71@...> >Reply- onelist > onelist >Subject: Re: [ ] What a laugh! >Date: Sun, 17 Oct 1999 15:02:28 -0700 (PDT) >MIME-Version: 1.0 >From errors-165537-7452-shireen42=hotmail.comonelist Sun Oct 17 >15:02:03 1999 >Received: (qmail 18411 invoked by alias); 17 Oct 1999 22:00:47 -0000 >Received: (qmail 17930 invoked from network); 17 Oct 1999 22:00:38 -0000 >Received: from unknown (209.207.164.239) by pop.onelist.com with QMQP; 17 >Oct 1999 22:00:38 -0000 >Received: from unknown (HELO web109.mail.com) (205.180.60.76) by >mta1.onelist.com with SMTP; 17 Oct 1999 22:01:04 -0000 >Message-ID: <19991017220229.12507.rocketmail@...> >Received: from [63.27.130.95] by web109.mail.com; Sun, 17 Oct 1999 >15:02:28 PDT >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >Hi Geri, >Thanks for your kind note. Things arent too bad, apart >from the frustration of of dealing with doctors. Im >going to have to look for a new one, and thats a full >time job right there. >I could be a lot worse off, as atleast (as far as i >know) I have my health. I hope you are well. >Robocop > >--- Geri Spang <spangs@...> wrote: > > Elena, > > Just when I thought that things were going well for > > you, it sounds like > > there have been a few kinks you've had to deal with. > > Your doctor sounds a > > little emotional to be dealing with people who have > > potential life > > threatening diseases. You're better off without > > him, but now you have to > > deal with the possibility he'll pass along > > subjective observations. Hope > > that doesn't happen. You aren't going to Scripps > > anymore, are you? Hope > > you don't need to, but that's always an option if > > you begin to get really > > sick. If you need a referral outside of Scripps, > > you can always call them > > and ask them to refer you to a Hepatologist more > > convenient to where you > > live. Anyhow, we're all behind you, betting that > > you won't need any urgent > > care. > > > > Are you doing okay now? I'm looking forward to > > being able to call you > > Officer Elena. > > Take care, > > Geri > > > > > > > > > > >------------------------------------------------------------------------ > > Please support the American Liver Foundation! > > > > 1.) To subscribe send e-mail to > > -subscribeonelist > > 2.) To UNsubscribe send to > > -unsubscribeonelist > > 3.) Digest e-mail format send to > > -digestonelist > > 4.) Normal e-mail format send to > > -normalonelist > > ><HR> ><html> > > > > >===== >Elena AIH >San Diego, CA >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Kathy, thanks for the post, it gave me a good chuckle and as they say, laughter is the best medicine. J >From: KATBERCOO@... >Reply- onelist > onelist >Subject: Re: [ ] doctors >Date: Mon, 18 Oct 1999 12:56:05 EDT >MIME-Version: 1.0 >From errors-165537-7462-shireen42=hotmail.comonelist Mon Oct 18 >09:56:21 1999 >Received: (qmail 29963 invoked by alias); 18 Oct 1999 16:56:24 -0000 >Received: (qmail 29899 invoked from network); 18 Oct 1999 16:56:23 -0000 >Received: from unknown (209.207.164.239) by pop4.onelist.com with QMQP; 18 >Oct 1999 16:56:23 -0000 >Received: from unknown (HELO imo-d01.mx.aol.com) (205.188.157.33) by >mta1.onelist.com with SMTP; 18 Oct 1999 16:56:15 -0000 >Received: from KATBERCOO@... by imo-d01.mx.aol.com (mail_out_v23.6.) id >hEUA06gVou (4216) for < onelist>; Mon, 18 Oct 1999 >12:56:05 -0400 (EDT) >Message-ID: <0.78d7250f.253cab25@...> >X-Mailer: Windows AOL sub 41 >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >Dear J: > >I've been yelled at by my doctor, too. I was all doped up getting ready >for >my endoscopy and I asked him about something I'd read in my chart. He got >all mad that I'd looked into my chart when he wasn't looking and argued >about >a question I asked him. I finally said, " Don't yell at me when I'm doped >up! " He finally seemed to realize what he was doing and shut up! It is >very >frustrating to be treated like little kids by men and women that are either >younger or around the same age. The last time I talked to my doctor on the >phone, I stated something obvious to him and he said " well, DUH! " in a real >sarcastic voice. If he ever does that again I'm going to tell him that >when >my daughter says that to me she gets grounded, what shall I do to him? >I've >vowed to never let him talk to me that way again. I'm going to keep my >cool >and state very politely that it's unacceptable. If he sends me on my way, >then so be it. I'm tired of it. I've been feeling just grouchy enough to >do >something about it, too! Don't feel scared of him. He's just a guy. He >probably farts in bed and gets up with 'bed hair' just like the rest of us. >Poop on those that insist on an air of " I AM LORD OF ALL THAT I SURVEY (or >at >least this 8x8 exam room)! " You're a nurse and deserve just as much >respect >as he does, AND you are paying him for his services. > >Well, thanks for listening to me rant and rave (whew! I needed that!). I >hope everyone has a good week! > >Kathy (AIH) >Seattle area > >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Dear J: I've been yelled at by my doctor, too. I was all doped up getting ready for my endoscopy and I asked him about something I'd read in my chart. He got all mad that I'd looked into my chart when he wasn't looking and argued about a question I asked him. I finally said, " Don't yell at me when I'm doped up! " He finally seemed to realize what he was doing and shut up! It is very frustrating to be treated like little kids by men and women that are either younger or around the same age. The last time I talked to my doctor on the phone, I stated something obvious to him and he said " well, DUH! " in a real sarcastic voice. If he ever does that again I'm going to tell him that when my daughter says that to me she gets grounded, what shall I do to him? I've vowed to never let him talk to me that way again. I'm going to keep my cool and state very politely that it's unacceptable. If he sends me on my way, then so be it. I'm tired of it. I've been feeling just grouchy enough to do something about it, too! Don't feel scared of him. He's just a guy. He probably farts in bed and gets up with 'bed hair' just like the rest of us. Poop on those that insist on an air of " I AM LORD OF ALL THAT I SURVEY (or at least this 8x8 exam room)! " You're a nurse and deserve just as much respect as he does, AND you are paying him for his services. Well, thanks for listening to me rant and rave (whew! I needed that!). I hope everyone has a good week! Kathy (AIH) Seattle area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Elena, the problem is I am on medicaid and not all docs take medicaid. Plus, I have been with this doc for years, and I guess I can let him have one bad day. He is usually a teddy bear. J >From: Elena P <brit71@...> >Reply- onelist > onelist >Subject: Re: [ ] doctors >Date: Mon, 18 Oct 1999 20:15:53 -0700 (PDT) >MIME-Version: 1.0 >From errors-165537-7469-shireen42 Mon Oct 18 20:15:55 1999 >Received: from [209.207.164.223] by hotmail.com (3.2) with ESMTP id >MHotMailB9D52D6A00A5D82197D7D1CFA4DF19F80; Mon Oct 18 20:15:55 1999 >Received: (qmail 7893 invoked by alias); 19 Oct 1999 03:16:24 -0000 >Received: (qmail 7865 invoked from network); 19 Oct 1999 03:16:23 -0000 >Received: from unknown (209.207.164.241) by pop1.onelist.com with QMQP; 19 >Oct 1999 03:16:23 -0000 >Received: from unknown (HELO web113.mail.com) (205.180.60.84) by >mta2.onelist.com with SMTP; 19 Oct 1999 03:21:23 -0000 >Message-ID: <19991019031553.12011.rocketmail@...> >Received: from [63.27.132.30] by web113.mail.com; Mon, 18 Oct 1999 >20:15:53 PDT >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >Aggh! I thing I would have kicked his ..... right >there. No really, im usually a nice mellow person, but >these doctors are just too much. You know, you can >always make an official complaint. I think its too the >medical review board or something similar. When it >goes to far, thats always something too think about. >Give him a boot for me, >Thanks >Elena > >--- susan johnson <shireen42@...> wrote: > > Dear Elena and all, > > > > Speaking of doctors, I dread to see mine on my Tues > > appt. Last time I was > > there he yelled at me. We were looking at a picture > > of the inside of my > > stomach. He started to explaing a hiatal hernia to > > me. I said I know what > > that is, and he yelled " NO YOU DONT KNOW " . Well, I > > did know, but wasnt > > about to argue with him. It was late in the day and > > he had had a long > > tiring day. I hope that is all it was. But I dont > > like being yelled at and > > treated as a no nothing. > > > > J > > > > > > >From: Elena P <brit71@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ] What a laugh! > > >Date: Sun, 17 Oct 1999 15:02:28 -0700 (PDT) > > >MIME-Version: 1.0 > > >From > > errors-165537-7452-shireen42=hotmail.comonelist > > Sun Oct 17 > > >15:02:03 1999 > > >Received: (qmail 18411 invoked by alias); 17 Oct > > 1999 22:00:47 -0000 > > >Received: (qmail 17930 invoked from network); 17 > > Oct 1999 22:00:38 -0000 > > >Received: from unknown (209.207.164.239) by > > pop.onelist.com with QMQP; 17 > > >Oct 1999 22:00:38 -0000 > > >Received: from unknown (HELO web109.mail.com) > > (205.180.60.76) by > > >mta1.onelist.com with SMTP; 17 Oct 1999 22:01:04 > > -0000 > > >Message-ID: > > ><19991017220229.12507.rocketmail@...> > > >Received: from [63.27.130.95] by > > web109.mail.com; Sun, 17 Oct 1999 > > >15:02:28 PDT > > >Mailing-List: list onelist; > > contact > > > -owneronelist > > >Delivered-mailing list > > onelist > > >Precedence: bulk > > >List-Unsubscribe: > > <mailto: -unsubscribeONElist> > > > > > >Hi Geri, > > >Thanks for your kind note. Things arent too bad, > > apart > > >from the frustration of of dealing with doctors. Im > > >going to have to look for a new one, and thats a > > full > > >time job right there. > > >I could be a lot worse off, as atleast (as far as i > > >know) I have my health. I hope you are well. > > >Robocop > > > > > >--- Geri Spang <spangs@...> wrote: > > > > Elena, > > > > Just when I thought that things were going well > > for > > > > you, it sounds like > > > > there have been a few kinks you've had to deal > > with. > > > > Your doctor sounds a > > > > little emotional to be dealing with people who > > have > > > > potential life > > > > threatening diseases. You're better off without > > > > him, but now you have to > > > > deal with the possibility he'll pass along > > > > subjective observations. Hope > > > > that doesn't happen. You aren't going to > > Scripps > > > > anymore, are you? Hope > > > > you don't need to, but that's always an option > > if > > > > you begin to get really > > > > sick. If you need a referral outside of > > Scripps, > > > > you can always call them > > > > and ask them to refer you to a Hepatologist more > > > > convenient to where you > > > > live. Anyhow, we're all behind you, betting > > that > > > > you won't need any urgent > > > > care. > > > > > > > > Are you doing okay now? I'm looking forward to > > > > being able to call you > > > > Officer Elena. > > > > Take care, > > > > Geri > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------------------------------------------ > > > > Please support the American Liver Foundation! > > > > > > > > 1.) To subscribe send e-mail to > > > > -subscribeonelist > > > > 2.) To UNsubscribe send to > > > > -unsubscribeonelist > > > > 3.) Digest e-mail format send to > > > > -digestonelist > > > > 4.) Normal e-mail format send to > > > > -normalonelist > > > > > > ><HR> > > ><html> > > > > > > > > > > > > >===== > > >Elena AIH > > >San Diego, CA > > > >------------------------------------------------------------------------ > > >Please support the American Liver Foundation! > > > > > >1.) To subscribe send e-mail to > > -subscribeonelist > > >2.) To UNsubscribe send to > > -unsubscribeonelist > > >3.) Digest e-mail format send to > > -digestonelist > > >4.) Normal e-mail format send to > > -normalonelist > > ><< text3.html >> > > > > >------------------------------------------------------------------------ > > Please support the American Liver Foundation! > > > > 1.) To subscribe send e-mail to > > -subscribeonelist > > 2.) To UNsubscribe send to > > -unsubscribeonelist > > 3.) Digest e-mail format send to > > -digestonelist > > 4.) Normal e-mail format send to > > -normalonelist > > ><HR> ><html> > > > > >===== >Elena AIH >San Diego, CA >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Aggh! I thing I would have kicked his ..... right there. No really, im usually a nice mellow person, but these doctors are just too much. You know, you can always make an official complaint. I think its too the medical review board or something similar. When it goes to far, thats always something too think about. Give him a boot for me, Thanks Elena --- susan johnson <shireen42@...> wrote: > Dear Elena and all, > > Speaking of doctors, I dread to see mine on my Tues > appt. Last time I was > there he yelled at me. We were looking at a picture > of the inside of my > stomach. He started to explaing a hiatal hernia to > me. I said I know what > that is, and he yelled " NO YOU DONT KNOW " . Well, I > did know, but wasnt > about to argue with him. It was late in the day and > he had had a long > tiring day. I hope that is all it was. But I dont > like being yelled at and > treated as a no nothing. > > J > > > >From: Elena P <brit71@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] What a laugh! > >Date: Sun, 17 Oct 1999 15:02:28 -0700 (PDT) > >MIME-Version: 1.0 > >From > errors-165537-7452-shireen42=hotmail.comonelist > Sun Oct 17 > >15:02:03 1999 > >Received: (qmail 18411 invoked by alias); 17 Oct > 1999 22:00:47 -0000 > >Received: (qmail 17930 invoked from network); 17 > Oct 1999 22:00:38 -0000 > >Received: from unknown (209.207.164.239) by > pop.onelist.com with QMQP; 17 > >Oct 1999 22:00:38 -0000 > >Received: from unknown (HELO web109.mail.com) > (205.180.60.76) by > >mta1.onelist.com with SMTP; 17 Oct 1999 22:01:04 > -0000 > >Message-ID: > <19991017220229.12507.rocketmail@...> > >Received: from [63.27.130.95] by > web109.mail.com; Sun, 17 Oct 1999 > >15:02:28 PDT > >Mailing-List: list onelist; > contact > > -owneronelist > >Delivered-mailing list > onelist > >Precedence: bulk > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > >Hi Geri, > >Thanks for your kind note. Things arent too bad, > apart > >from the frustration of of dealing with doctors. Im > >going to have to look for a new one, and thats a > full > >time job right there. > >I could be a lot worse off, as atleast (as far as i > >know) I have my health. I hope you are well. > >Robocop > > > >--- Geri Spang <spangs@...> wrote: > > > Elena, > > > Just when I thought that things were going well > for > > > you, it sounds like > > > there have been a few kinks you've had to deal > with. > > > Your doctor sounds a > > > little emotional to be dealing with people who > have > > > potential life > > > threatening diseases. You're better off without > > > him, but now you have to > > > deal with the possibility he'll pass along > > > subjective observations. Hope > > > that doesn't happen. You aren't going to > Scripps > > > anymore, are you? Hope > > > you don't need to, but that's always an option > if > > > you begin to get really > > > sick. If you need a referral outside of > Scripps, > > > you can always call them > > > and ask them to refer you to a Hepatologist more > > > convenient to where you > > > live. Anyhow, we're all behind you, betting > that > > > you won't need any urgent > > > care. > > > > > > Are you doing okay now? I'm looking forward to > > > being able to call you > > > Officer Elena. > > > Take care, > > > Geri > > > > > > > > > > > > > > > > >------------------------------------------------------------------------ > > > Please support the American Liver Foundation! > > > > > > 1.) To subscribe send e-mail to > > > -subscribeonelist > > > 2.) To UNsubscribe send to > > > -unsubscribeonelist > > > 3.) Digest e-mail format send to > > > -digestonelist > > > 4.) Normal e-mail format send to > > > -normalonelist > > > > ><HR> > ><html> > > > > > > > > >===== > >Elena AIH > >San Diego, CA > >------------------------------------------------------------------------ > >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to > -subscribeonelist > >2.) To UNsubscribe send to > -unsubscribeonelist > >3.) Digest e-mail format send to > -digestonelist > >4.) Normal e-mail format send to > -normalonelist > ><< text3.html >> > > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > 1.) To subscribe send e-mail to > -subscribeonelist > 2.) To UNsubscribe send to > -unsubscribeonelist > 3.) Digest e-mail format send to > -digestonelist > 4.) Normal e-mail format send to > -normalonelist > <HR> <html> > ===== Elena AIH San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1999 Report Share Posted October 22, 1999 Hi Kathy, I know I am on the wrong line here but I am just learning to run a computer so bare with me. I was yelled at by one of my many doctors as I am comming out of a coma and morphine laced stupor, I have no clue of what he said or why. I do know as I have been told that I got my licks in to him and even the nurses turned this doctor in and he is the proffessor at the hospital. This doctor even got in a fight with me because I tried to refuse a liver biopsy. I had fallen the night before and landed on my wound I was hurting so bad from that then they do a biopsy, well he threw the paper I needed to sign at me yelled again and ran out of my room to give me time to think. Needless to say the doctor won. However since this time he and I have become friends. Even when I had to be put in the hospital in September for pnumonia this doctor came to say hi to me. Don " t let the doctors intimidate you at any time. These doctors may be well educated. But they will never know what we actually go through. They will never know our deep thoughts or pain, do you ever feel as though when you come to your appointments and they ask how you are doing that you are just to say ok? Do you ever feel you are caught up the the clinics rush because there are so many of us and we need such extensive care that sometimes they forget things that still need to be ordered or done and you have to remind them continuously? Maybe this will help as well. I am seeing the lung clinic for lung damage and asthma. The lung clinic and the liver clinic fight with each other. Another hospital visit I had both clinic doctors were out in the hall fighting over wether to send me home, I settled that argument and told both sets of doctors I was going home deal with my lungs later. The liver clinic would not send me home with oxygen from my original hospital stay of 5 weeks. Well I won that one too I need oxygen. I am so glad we are able to write these letters to each other I have felt so much better being a part of this group. I have actually been able to see a faster healing process within myself because of all of you shareing your life, I can now say its ok to feel bad or good because I have something to go by. Information the doctors are not going to give you. gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Mt daughter sees Dr. Ain about 2-4 times a month. If you need his number email me......He is great, and I would recommend him to anyone. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Anybody in this group go to Dr. Black at Temple University? I ask this because I feel like this group is great. But I would really enjoy meeting some people and getting to know. Its so hard to write when you can't put a face with the person you are writing to. Any suggestions? AMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Amy, Go to the Foxdiana web sight. Joan has it set up. She has pictures of some of the members here. gayle/trans.6-99 galye@... ^0^ ` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 In a message dated 11/3/00 3:04:27 PM Eastern Standard Time, hsmomof4@... writes: << I want to find a doctor in the Tulsa area who is respectful about our parenting decisions which are not mainstream. Decisions such as non vax, homeschooling, breastfeeding past 1, etc. What is the best way to go about this? I take my kids in when they really need it, but hesitate to take them in for physicals, etc. because I get tired of being treated like an idiot for making well informed decisions and not following what the Dr. (who also thinks he is God) thinks. >> try www.FindHealer.com for doctors into the " alternative " ways. =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 I live in the Detroit, Michigan area and I too would like to know how to find a decent care provider. You are right, doctors think they are God and they do not care that you know your family better than they and heaven forbid you know something about the problem. Margaret White Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Some pediatricians are not so bad. My pediatrician is very excited that we breastfeed past age 1. He is a little forceful on the vaccination issue, but he has other families who don't vaccinate. My biggest problem is that we did vaccinate up until I started researching, so they have a hard time understanding why you would change your mind. I recommend " The Holistic Pediatrician " by Kemper to find out about child-friendly alternative holistic medicine. There are some good resources in the book to help you find what you are looking for. You may want to look into seeing a homeopath. Doing a search on the internet will lead you to several sites. I'm sure there are list members who have sites they like best and could suggest some. Using one of them I found a homeopath in my area, but I don't know how to find out if he's really good or not. HTH Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 I would find a midwife or doula or some sort of alternative health care practitioner - and ask them. S. Joan S wrote: > I want to find a doctor in the Tulsa area who is respectful about our > parenting decisions which are not mainstream. Decisions such as non > vax, homeschooling, breastfeeding past 1, etc. What is the best way > to go about this? I take my kids in when they really need it, but > hesitate to take them in for physicals, etc. because I get tired of > being treated like an idiot for making well informed decisions and not > following what the Dr. (who also thinks he is God) thinks. BTW, thanks > for the url to the package inserts. :c) Joan S. ~ Wife, Mom, Teacher, > Chief Cook and Breastfeeder > To find out why I love Jesus, breastfeed, homeschool, adopted, don't > spank, don't vaccinate and other radical information, go to: > http://www.suite101.com/myhome.cfm/hsmomof4 or > http://www.suite101.com/myhome.cfm/themestreamarticles " Things which > matter most must never be at the mercy of things which matter least. " > Goethe > > > eGroups Sponsor > -- ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Everyone has the right to believe and accept what they want, but reality doesn't discriminate. Reality is not different for different people. Not once has reality excused anyone for good intentions ignorance or stubbornness. Reality shows no mercy, accepts no excuses, and issues no pardons. Reality does not " turn the other cheek. " This does not mean that reality is cruel, it just means that reality is. You medical people will have more lives to answer for in the other world than even we generals. - Napoleon Bonaparte The reason doctors are so dangerous is that they believe in what they're doing. - S. Mendelsohn ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
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