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I called Family Health and Wellness Clinic in Tulsa and am waiting for the nurse to call me back so I can ask some questions. They are famous through out the entire US for alternative health care. I know people who have been there. I don't know why I did not think of that til you all reminded me of alt healthcare. They have an ND and a DO so I think they can take insurance.

Thanks-I will let you know the outcome...

Joan

Re: Doctors

I would find a midwife or doula or some sort of alternative health carepractitioner - and ask them.S.Joan S wrote:> I want to find a doctor in the Tulsa area who is respectful about our> parenting decisions which are not mainstream. Decisions such as non> vax, homeschooling, breastfeeding past 1, etc. What is the best way> to go about this? I take my kids in when they really need it, but> hesitate to take them in for physicals, etc. because I get tired of> being treated like an idiot for making well informed decisions and not> following what the Dr. (who also thinks he is God) thinks. BTW, thanks> for the url to the package inserts. :c) Joan S. ~ Wife, Mom, Teacher,> Chief Cook and Breastfeeder> To find out why I love Jesus, breastfeed, homeschool, adopted, don't> spank, don't vaccinate and other radical information, go to:> http://www.suite101.com/myhome.cfm/hsmomof4 or> http://www.suite101.com/myhome.cfm/themestreamarticles "Things which> matter most must never be at the mercy of things which matter least."> Goethe>>> eGroups Sponsor>--~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Everyone has the right to believe and accept what they want,but reality doesn't discriminate. Reality is not differentfor different people. Not once has reality excused anyonefor good intentions ignorance or stubbornness. Realityshows no mercy, accepts no excuses, and issues no pardons.Reality does not "turn the other cheek." This does not meanthat reality is cruel, it just means that reality is.You medical people will have more lives to answer forin the other world than even we generals.- Napoleon BonaparteThe reason doctors are so dangerous is that they believein what they're doing.- S. Mendelsohn~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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On Fri, 3 Nov 2000 14:02:23 -0600 " Joan S " <hsmomof4@...> writes:

> I want to find a doctor in the Tulsa area who is respectful about our

> parenting decisions which are not mainstream.

>I live in the Detroit, Michigan area and I too would like to know how to

find a decent care provider.

******

Joan/Margaret,

Get to know La Leche League - generally attracts at least a few on the

" natural " side of the health issue. Get to know a chiropractor,

homeopath or other " alternative " health care provider - especially one

who has kids. You don't even generally have to go see them, just call up

and say you're interested in finding such a pediatrician and someone

suggested contacting a provider like them. Usually, they will be more

than happy to say something to try and help.

Also, below are pro-vaccine choice contacts in your states that

posted previously to the list. These contacts probably can help you with

some names of doctors in/near your area. If not, be sure and let them

know who has NOT been supportive of your decision so they can make note

for other parents. If nothing else, they should probably be able to

point you to someone they believe to have info to help you.

>Oklahoma Oklahoma Vaccine Information Network

Rott

(405)830-0494

OkVacInfoNet@...

>Michigan Michigan Opposing Mandatory Vaccines (MOM)

Sue Waltman

P.O. Box 1121

Troy, MI 48099-1121

(810)447-2418

http://www.salineguide.com/mom

Vaccine Informed Parents

Contact: Nanci

270 Homer Lane

sville, MI 49404

groneys@...

(616) 837 - 1842

________________________________________________________________

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I used to go to a wonderful homeopath near Warren, that shouldn't be too far away from you. Can't remember her name, but she was in the phone book. I'll try to remember or look her up if you are interested.

Annette

Good parents make informed decisions concerning their children's health, education and well being.

http://www.nccn.net/~wwithin/vaccine.htm

-----Original Message-----From: margaret.white@... [mailto:margaret.white@...]Sent: Friday, November 03, 2000 12:13 PMVaccinationsegroupsSubject: Re: DoctorsI live in the Detroit, Michigan area and I too would like to know how tofind a decent care provider. You are right, doctors think they are God andthey do not care that you know your family better than they and heavenforbid you know something about the problem.Margaret White

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In a message dated 11/3/00 8:15:47 PM Eastern Standard Time,

Vaccinationsegroups writes:

<< I live in the Detroit, Michigan area and I too would like to know how to

find a decent care provider. You are right, doctors think they are God and

they do not care that you know your family better than they and heaven

forbid you know something about the problem. >>

There are SOME doctors who are not like this,,,,My Dad,

Dr. V. , is one of them. He's an M.D. who

specializes in nutrition, allergies, and preventative medicine.

He's the one who told me not to vax my kids, is totally into

extended breasfeeding, family bed, etc,,,,

If anyone lives in the Kent, WA area, I would highly recommend

him! Here's a link to his webpage: <A HREF= " http://www.tahomaclinic.com " >

http://www.tahomaclinic.com</A>

Also, you might want to check this out: <A HREF= " http://www.drwright.org " >

http://www.drwright.org</A>

He's running for Congress. Yes, I was surprised myself!! Go DAD!

He wants to change things so that people have freedom of choice

in healthcare.

Kim :-)

Full Time Mommy to

Aelan 2/16/96

8/31/99

Emerson, NJ

~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

68 million people search the Internet for health

related information! Where can they go to find it?

2000 Inc. 500 Company launches Healthvoyage!

<A HREF= " http://www.dreamworking.com/healthvoyage.ppt " >

http://www.dreamworking.com/healthvoyage.ppt</A>

~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

<A HREF= " Multicultural_Families " >

Multicultural_Familiesegroups</A>

Multicultural_Families

<A HREF= " NorthEastJerseyMoms " >

NorthEastJerseyMomsegroups</A>

NorthEastJerseyMoms

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In a message dated 11/6/00 4:44:53 PM Eastern Standard Time,

NaturalOrganics@... writes:

<< Also, you might want to check this out: <A HREF= " http://www.drwright.org " >

http://www.drwright.org</A>

He's running for Congress. Yes, I was surprised myself!! Go DAD!

He wants to change things so that people have freedom of choice

in healthcare. >>

alright--GO dad GO! :o)

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Dear ,

You are so lucky to have him for a dad! He is very famous! I admire him so

much, wish he was closer to me, I live in San .

You are so lucky he warned you about the vax.

mom to " autistic " (vax damaged) boy, 8 years old

>There are SOME doctors who are not like this,,,,My Dad,

>Dr. V. , is one of them. He's an M.D. who

>specializes in nutrition, allergies, and preventative medicine.

>He's the one who told me not to vax my kids, is totally into

>extended breasfeeding, family bed, etc,,,,

>

>If anyone lives in the Kent, WA area, I would highly recommend

>him! Here's a link to his webpage: <A HREF= " http://www.tahomaclinic.com " >

>http://www.tahomaclinic.com</A>

>

>Also, you might want to check this out: <A HREF= " http://www.drwright.org " >

>http://www.drwright.org</A>

>He's running for Congress. Yes, I was surprised myself!! Go DAD!

>He wants to change things so that people have freedom of choice

>in healthcare.

>

>

> Kim :-)

>Full Time Mommy to

> Aelan 2/16/96

> 8/31/99

>Emerson, NJ

>

>~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

>68 million people search the Internet for health

>related information! Where can they go to find it?

>2000 Inc. 500 Company launches Healthvoyage!

><A HREF= " http://www.dreamworking.com/healthvoyage.ppt " >

>http://www.dreamworking.com/healthvoyage.ppt</A>

>~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

>

>^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

><A HREF= " Multicultural_Families " >

>Multicultural_Familiesegroups</A>

>Multicultural_Families

>

><A HREF= " NorthEastJerseyMoms " >

>NorthEastJerseyMomsegroups</A>

>NorthEastJerseyMoms

>^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~^~

>

>

>

>

>

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Margaret,

We recently moved from Huntington Woods, MI to Minneapolis. Brink

is one excellent resource in Royal Oak (248-544-2022). His practice is

called Natural Healing Arts and he does Acupuncture among other things,

remedies, herbs etc. There is also a Homeopath in West Bloomfield who I do

not know personally but who has helped a friend of mine tremendously, her

name is Gannon 248-203-7123. Todd Kirshner is an excellent

Chiropractor in Ann Arbor and so is Kirsch in Birmingham. Also,

before I moved I was just told about a wonderful homeopathic practice in

West Bloomfield. If you are interested e-mail me back and I will call a few

friends and see if I can find out who they are. There is a big one in Ann

Arbor too.

Re: Doctors

>

> I live in the Detroit, Michigan area and I too would like to know how to

> find a decent care provider. You are right, doctors think they are God

and

> they do not care that you know your family better than they and heaven

> forbid you know something about the problem.

>

> Margaret White

>

>

>

>

>

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  • 2 weeks later...

I just had a horrible experience with my Hepatologist. I just started the

predinsone and I had a bad reaction to the medicine. The Hep. totally blew me

off and told me to speak to my GI. It turned into a blessing in disguise

because I found a wonderful Hep who saw me the same day. I was in his office

for over an hour. He was attentive, concerned and answered all my questions.

For once, I left the office without feeling rushed. I told him about this

group and he said if anyone one has any questions, they can e-mail him at:

drbasu@.... He answers all his e-mails on Sundays.

I am scheduled for an endoscopy in a couple of weeks. What is this like? I

can't imagine a tube down the throat is a pleasant experience. If anyone can

describe their experience I would really appreciate it.

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,

I have had endoscopy done every two weeks since June. The only thing I

hate is the taste of the Lydocaine. I have attached an adverse response to

it and once saw my OR nurse at my place of work one day and as a result due

to association I smelled Lydocaine for the rest of the day....

A little Versed and Demerol. I remember nothing of the procedure. I am

told I am combative but I never remember. I have no discomfort afterwards

and take a nice nap when I get home.....

My treat after the procedure is a soft serve ice cream cone after I

leave the faciity. I also like to have freeze pops or popsicles handy when I

wake up at home. The Versed makes you take a nice nap.....

What are you having the endoscopy done for anyway?

Jen :)

On Wed, 15 Nov 2000 20:39:18 EST, egroups wrote:

> I just had a horrible experience with my Hepatologist. I just started the

> predinsone and I had a bad reaction to the medicine. The Hep. totally

blew me

> off and told me to speak to my GI. It turned into a blessing in disguise

> because I found a wonderful Hep who saw me the same day. I was in his

office

> for over an hour. He was attentive, concerned and answered all my

questions.

> For once, I left the office without feeling rushed. I told him about this

> group and he said if anyone one has any questions, they can e-mail him

at:

> drbasu@.... He answers all his e-mails on Sundays.

>

> I am scheduled for an endoscopy in a couple of weeks. What is this like?

I

> can't imagine a tube down the throat is a pleasant experience. If anyone

can

> describe their experience I would really appreciate it.

>

>

_______________________________________________________

Tired of slow Internet? Get @Home Broadband Internet

http://www.home.com/xinbox/signup.html

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Hi

I have had several endoscopies and they are nothing to worry about if you

have sedation like I did. You lay on your left side, a plastic mouth piece

is placed between your teeth to stop you biting the tube, then you have a

small injection. Just as you start to think 'I should be asleep by now' you

are slowly waking up and its all over. You rest for a while in the recovery

room and if you are lucky you may get a cup of tea and a biscuit! At least,

that's how it is for me in the UK.

I am due for a regular endoscopy every 6 months since my bleed - to check to

see if more varices have formed - and I am not worried one bit about having

the procedure.

Good luck with yours

Janet

UK

[ ] Re: Doctors

> I just had a horrible experience with my Hepatologist. I just started the

> predinsone and I had a bad reaction to the medicine. The Hep. totally blew

me

> off and told me to speak to my GI. It turned into a blessing in disguise

> because I found a wonderful Hep who saw me the same day. I was in his

office

> for over an hour. He was attentive, concerned and answered all my

questions.

> For once, I left the office without feeling rushed. I told him about this

> group and he said if anyone one has any questions, they can e-mail him at:

> drbasu@.... He answers all his e-mails on Sundays.

>

> I am scheduled for an endoscopy in a couple of weeks. What is this like? I

> can't imagine a tube down the throat is a pleasant experience. If anyone

can

> describe their experience I would really appreciate it.

>

>

>

>

>

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  • 5 months later...
Guest guest

... <sigh> this is *exactly* why I don't go to docs anymore. The last

one I went to all in all gave me a 'stack' of 6-8 prescriptions by the time

he was through (2 appts.)... he also injected me with cortisone in my neck

(when I wasnt' looking - and also did NOT ask me if he could do so!!! - i

DIDN'T want it!) and then later when he tried to give me some drug samples

and I said I didn't want them he told me " you're afraid of pills " ... " you

have a neurological disorder " ... ARGGHHHH! He also told me later that he

was sure that I " hated men " ... LOL - i told him I was 'married to one?? ...

so how does that work?'

I know there are a 'few' good ones out there... but for those of us who are

LIVING " in " sickness or problems and do our own homework - we are a 'threat'

to them - and possibly we have learned more about ourselves on our own. I

stick with my instincts now and have not gone wrong yet - i try to study

every single thing out before I do it... and am feeling i am definitely

progressing. This is a good quote from a book I have:

" ...Since medicine is not an exact science but rather an art, and much of

the success or failure of a treatment depends on the competency and

experience of the physician, it is up to each patient to take an active role

in his or her own health care and to become an activated patient. While

medical schools and practical experience seek to prepare aspiring doctors

for a career in handling illnesses and diseases, much of how a physician

attacks and solves problems depends on each physician's attitudes and

judgments. Physicians frequently have vastly different opinions on not only

how to treat illnesses, but even on what the illness they are treating is.

Although doctors are often your best source of information, they may not

have all the answers all the time. One example appears below:

A study performed by a Ralph Nader organization called the Center for

Science in the Public Interest (CSPI), which puts out a monthly nutrition

newsletter, showed just how little some physicians actually know about

nutrition. CSPI gave a basic nutrition quiz to physicians with M.D. degrees

and to their receptionists. " The results were shocking if not alarming " ,

observed Drs. Schmidt, , and Sehnert. " Nearly all the receptionists

passed with flying colors. We won't mention who flunked most of the time! "

What this information proves is that while it may be necessary to work with

your doctor to reach a diagnosis and determine treatment, it is unwise to

place COMPLETE and sole control of your health in the hands of anyone,

including your doctor. " Enter into a health partnership with your doctor

rather than surrender your control to the doctor " , write Drs. Schmidt,

and Sehnert. "

from: Candida Related Complex - by Winderlin

doctors

well, I went to the doctor again today - must admit to feeling like a

paranoiac woman. I guess I have a feeling that most doctors don't listen to

us (this one included) and the minute we say something, we get that " oh no,

a hypochondriac " , look from them. Or a yes, yes, just take your pills......

It is a shame as I feel he is quite good, but just doesn't LISTEN TO ME. If

only we could work together...why do doctors seem to feel they have to have

all the answers by themselves, and we couldn't possibly know anything, is a

question I haven't worked out yet. Perhaps they still have that " playing

God " mentality handed down by their elders!

Anyway, I did squeeze in that I wasn't too great this last week, (felt bad

like I had let him down somehow) in saying that, but did anyway....and told

him that I thought wheat was a problem, and even though he thought pasta was

o.k.... I did not. So he tested me for wheat and gluten, and voila! I am

intolerant to both, and oats, which of course I have every morning! (darn

it).... so, went out and brought a rice cereal for tomorrow mornings yummy

breakky (not), and some crushed linseed, sunflowers and almonds to sprinkle

on top. Oh well, at least now I know, and cannot fool myself any longer....

What do you guys eat for breakfast again? Tell me something is delicious

please!!!!

I just figured out something today - 2, no three, things I hated eating as

a kid - bread and milk and cheese. Turns out I am intolerant to these three

majorly. Sometimes (I was told this) children know instinctively what they

are allergic/intolerant to, so don't force feed your child - he/she may be

trying to tell you something <grin>,

Also, something I wanted to ask as well - (hope you are all taking notes :)

my doctor told me (and this got up my nose) that I didn't have candida very

severely at all. In fact, it was only acute, and was only in my mucous

membranes. I asked him " but is it not in my intestines? He said maybe a

little, but the problem is in my mucous membranes. Does this make sense? I

do know that I don't get problems with wind, belching etc, so I don't think

my tummy is affected by the candida as much, but SURELY it is all over the

place, since I have had it for 10 years? I get the feeling he is learning,

and is still indoctrinated with medical crap, instead of yes....listening to

the patients.... I could be wrong, but all I have learned about candida, is

that when you have had it for 10 years, it is not easy to get rid of,

because you have it everywhere, and it have mutated to the nasty type. He

also said (when I told him I felt yuck and it was probably die-off) oh

no...I don't think so, as the treatment is not going to do that. I thought

" great " ...then what IS it doing? He said maybe in Auckland where the

climate is more humid you would expect to see that happen, but not down

here....since when did humidity have anything to do with die-off..... I am

plain frustrated with him. But I will continue to finish the course of

treatment (about $500 dollars later), and I had better be better that when I

started.....oh yes of course..then the amalgams will be the problem and

that's another $3000+.... where do they come from.... la, la land......

Sorry to moan... I am just feeling frustrated at him for not knowing more

about candida thanhis medical mind will let him.

Should have gone to your doctor Becs......oh well, I still feel positive as

he can test me for allergies etc and tell me what I shouldn't be eating so

that is helpful..... At least I know what I am dealing with..... I may at

some stage be sending a SOS for some of that stuff you use with

Caprilic acid/Psyllium and Bentonite in it. How much does it cost again? I

will convert it plus add postage.....

Thanks again for bearing with me

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

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Guest guest

I'm sorry you're frustrated. I am too. It seems you need to do tons

of research yourself on this. UGH! You might want to take a look at

modernherbalist.com. Has some good info on treating severe cases.

Becca

> well, I went to the doctor again today - must admit to feeling like

a

> paranoiac woman. I guess I have a feeling that most doctors don't

listen to

> us (this one included) and the minute we say something, we get

that " oh no,

> a hypochondriac " , look from them. Or a yes, yes, just take your

pills......

>

> It is a shame as I feel he is quite good, but just doesn't LISTEN

TO ME. If

> only we could work together...why do doctors seem to feel they have

to have

> all the answers by themselves, and we couldn't possibly know

anything, is a

> question I haven't worked out yet. Perhaps they still have

that " playing

> God " mentality handed down by their elders!

>

> Anyway, I did squeeze in that I wasn't too great this last week,

(felt bad

> like I had let him down somehow) in saying that, but did

anyway....and told

> him that I thought wheat was a problem, and even though he thought

pasta was

> o.k.... I did not. So he tested me for wheat and gluten, and

voila! I am

> intolerant to both, and oats, which of course I have every morning!

(darn

> it).... so, went out and brought a rice cereal for tomorrow

mornings yummy

> breakky (not), and some crushed linseed, sunflowers and almonds to

sprinkle

> on top. Oh well, at least now I know, and cannot fool myself any

longer....

>

> What do you guys eat for breakfast again? Tell me something is

delicious

> please!!!!

>

> I just figured out something today - 2, no three, things I hated

eating as

> a kid - bread and milk and cheese. Turns out I am intolerant to

these three

> majorly. Sometimes (I was told this) children know instinctively

what they

> are allergic/intolerant to, so don't force feed your child - he/she

may be

> trying to tell you something <grin>,

>

> Also, something I wanted to ask as well - (hope you are all taking

notes :)

> my doctor told me (and this got up my nose) that I didn't have

candida very

> severely at all. In fact, it was only acute, and was only in my

mucous

> membranes. I asked him " but is it not in my intestines? He said

maybe a

> little, but the problem is in my mucous membranes. Does this make

sense? I

> do know that I don't get problems with wind, belching etc, so I

don't think

> my tummy is affected by the candida as much, but SURELY it is all

over the

> place, since I have had it for 10 years? I get the feeling he is

learning,

> and is still indoctrinated with medical crap, instead of

yes....listening to

> the patients.... I could be wrong, but all I have learned about

candida, is

> that when you have had it for 10 years, it is not easy to get rid

of,

> because you have it everywhere, and it have mutated to the nasty

type. He

> also said (when I told him I felt yuck and it was probably die-off)

oh

> no...I don't think so, as the treatment is not going to do that. I

thought

> " great " ...then what IS it doing? He said maybe in Auckland where

the

> climate is more humid you would expect to see that happen, but not

down

> here....since when did humidity have anything to do with die-

off..... I am

> plain frustrated with him. But I will continue to finish the

course of

> treatment (about $500 dollars later), and I had better be better

that when I

> started.....oh yes of course..then the amalgams will be the problem

and

> that's another $3000+.... where do they come from.... la, la

land......

>

> Sorry to moan... I am just feeling frustrated at him for not

knowing more

> about candida thanhis medical mind will let him.

>

> Should have gone to your doctor Becs......oh well, I still feel

positive as

> he can test me for allergies etc and tell me what I shouldn't be

eating so

> that is helpful..... At least I know what I am dealing with..... I

may at

> some stage be sending a SOS for some of that stuff you use

with

> Caprilic acid/Psyllium and Bentonite in it. How much does it cost

again? I

> will convert it plus add postage.....

>

> Thanks again for bearing with me

>

>

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  • 3 months later...
Guest guest

Subject: Doctors

I have had great experience with the local Orthopedic surgeon here

in Rapid City, SD. I was surprised to learn that he teaches at

Black Hills State University in Spearfish, SD, and was aware of

Dwarfism. He understood all that I was going through, and

explained the

options to me so that I could under stand.

I was born with out a ball joint, a hip joint & five deformed

vertebras in the lower spine A normal MD, thinks I need immediate

surgery, but all the Orthopedic surgeons I have seen, and I have

seen a bunch of them, say different.

My father went up to the LPA doctors, for a problem with his neck.

I have wrote of this, so I will not go into it in details. But,

he found out that even The top Doctors with in the LPA circle will

disagree with the options, or types of treatment.

Pop, my Father, had his surgery done by an ordinary Orthopedic

surgeon at the Mayo Clinic, and has had no problems from the

surgery. He didn't have to take a year off, as the Top wanted,

and he didn't have to pay through the nose either!

I am NOT knocking the LPA medical board, but just because we are

dwarfs, doesn't mean that a competent Doctor can not treat me!

And if I want to have my legs stretched around my head, then that

should be MY CHOICE not the LPA or this list!

If you where in an auto accident, and your super doctors where not

available, what would you do? There are thousands of emergency

Orthopedic surgeons in this country who do miracles on damaged

bodies, ever minute of the day. This is done with out a book, and

with out time to prepare. They are professionals at what they all

do. And I will bet, they have better odds at what they do??? Any

takers???

As for the list, of the new doctors, and the services they

provide. I would suggest that the ones of you who see it as and

advertisement, go back and read it again. Back between the lines

(I'm shaking my head). You know, if they had left out the

stretching thing, you wouldn't of cared??? Could someone explain

that to me. No, please don't.

ph A. Hagler

Jeweler & Gemologist P.J.C.

joey_hagler@...

http://members.tripod.com/adesignerofgold/

http://www.fortunecity.com/skyscraper/patch/574/

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Guest guest

A suggestion about finding competent doctors, inside LPA and/or out. There

is a book, which can be found at your local library in reference, called " The

Best Doctors in America. " I highly recommend it. There is also one called,

" The Best Lawyers in America. " I recommend both of these books highly, and

wouldn't make a decision without using them.

Telesca

hometown.aol.com/suzannat

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His name is: Mark L. Harlow, 2805 Fifth Street, Suite 120 Rapid

City, South Dakota 57701, 605-341-1414, Fax 605-341-7062, Toll

Free 1-800-446-9556.

His practice is in Rapid City, SD. He teaches in Spearfish, SD

@ Black Hills State University.

Re: Fw: Doctors

Joe, who is the ortho doc in Spearfish??

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  • 1 month later...

Ruby

I am talking about my own experience and what I have found out myself. I have

written proof of what I'm saying. This isn't self-dramatization and it's only

a smidgeon of what has been going on, half of which I've probably forgotten

and haven't got any documentary proof. I am not saying that other people

haven't had other experiences. This is why I've emphasized that I am not a

member of any organizations or being paid by any organisation.

I am sitting here and just seeing pictures of the unspeakable events at the

World Trade Centre and the Pentagon. I have relatives in New York and Boston.

It's just terrible and beyond words ... May the people who have originally

set up the people who did this thing be exposed for what they are.

Alice

In a message dated 9/11/01 2:03:06 PM, rubyring@... writes:

<< My! What evil things doctors are!

I am pretty discouraged to hear such stuff on a list that makes doctors out

to be so bad. There are bad and good doctors like there are bad and good

cops. Any profession that takes as much abuse as they do to serve mankind is

bound to be considered the cause of all our ills.

Doctors don't start out wanting to cause us ills. Most men and women who

become doctors start with a firm commitment to healing. If someone comes in

and says they feel fatigued and ill...just how many diseases do you think

that could be the symptom of? They have to rule out many things before

coming up with a diagnosis. Drug companies are a business, yes they are

SUPPOSED to make a profit. And who better than to encourage doctors to

prescribe THEIR brand? It's bound to influence a few doctors when it comes

to perks. Doctors are not gods, they are human.

Since drug companies can now advertise, I can imagine the frustrations

doctors must feel when we go in demanding drugs for diseases we believe we

have. We have a responsibility to use the guidance of a doctor along with

common sense for our own health. We can do all kinds of research on our

own, but we can be misled too.

It makes me very uneasy whenever I read extremes. News articles and TV

programs WANT us to get worked up so that we come back for more. They are a

business too! For the best healthcare, consult a doctor, do a little

research and most of all listen to your body. Filling your body up with

herbal remedies and supplements is just as bad as what the drug companies

come up with.....don't be fooled by health food store claims...you got it,

their a business too. Every business needs to make a profit in order to stay

in business.

I hear time and time again that they can't stick to a diet. Eating the

correct foods is the very foundation of repair faltering health. Supplements

should enhance, not replace real food. For those of you with bad experiences

with doctors, keep looking! I found a wonderfully supportive and

experimental doctor who has helped me through quite an ordeal of illness.

Ruby

>>

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Golly Gloria, you have been through the mill! SO very very sorry! I cannot believe that you have had it for so long...however, I know that I have had AIH since at least April of 2000. I saw a rheumatologist and he did the Lupus workup on me. Well, the ANA came back negative, but the SM muscle came back very elevated. Since I have been taking a mediciation that COULD have caused drug induced Lupus, that was the dx he gave me. BUT, he did not take into account that AIH could have been the problem even though the report on the blood workup said it could have been the problem. However, at that point, my liver enzymes were not that high, in fact. My dermatologist sent me to this rheumatologist because she thought there was something that was NOT right with me...I had been too sick, but since she was not my primary care physician, she could not make that decision.

SO....I went to another rheumatologist and he kept saying that he didn't think I had Lupus, and was on the right track with Hepatitis. However, the panels for the normal screens were never positive.

So, when I finally consented to have the gall bladder surgery that was when the surgeon was horrified to find out that it was hepatitis.

Now, tomorrow I will find out from this new GI what the problem is in her opinion! She said the dx of Acute Autoimmune Hepatitis is inconsistent, because AIH is a chronic condition and she doesn't understand why the pathology report states Acute rather than Chronic. I will be interested in finding out her reasoning. I am hoping that she will let me go off the prednisone too. I just want to get my life back!

debby

[ ] Doctors

Hi! Jan, nne and Debbie, I to have autoimmune hepatitis,I've had it for a year andfive monthes, When I fisrt noticed some thing was wrong, my stomach hurt all of the time and kept getting worse and I was constantly bloated and lost weight and was vomiting,I kept thinking I was having recurrent flu symtoms, one morning getting ready for work I noticed my eyes were a little yellow in the corners but I thought nothing of it, just thought it was because I did not have a gallbladder, But that night at work, I found out differently, I looked in a mirror and my eyes were completely yellow, and my skin was kind of olive colored one of the ladies asked me if my skin was always so dark, and I said I guess so, I thouht it was some italian in me, Well my husband took me to the E.R. and they admitted me, the nurses would not come in my room unless they absolutely had to they said we'll get her last she is islotation,it took two weeks and aliver biopsy to show I had AIH. They kept asking do you drink, take drugs and have you had more than one sexual partner, every thing was no! my only response was I smoke cigs, and I'm a work acoholiic, I was in issolation for three days and they sent me home, The flare up almost cost me my life at home,I got continually worse, Than the biopsy done two weeks later confirmed what was wrong, I was than put on the prednisone,40mg. but had constant flare ups,finally after seeing the doctor at the university of michigan, life started to get a little better, I am now on 5mg,of prednisone and 100mg. of imuran, Suffering now with a kidney stone, and bronchitis, have another stone in my other kidney, they say is bigger, and I have to go for a renal ultra sound tomorrow and see a uroligist to see if there is some other alternative to get rid of the second stone, but I am always constantly getting sick! I just put it in gods hands and pray for the best. gloriagauss@...

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  • 2 months later...

Hi Bethanne this is your body you need to no what is going on. My doctor phones me everytime I have anything done to let me know the results.

Jeanette UK

Dx AIH 1998 Cirrhosis 2001

Bethanne <bamrand@...> wrote: Hi everyone!! I have a question. When you get yourbloodwork done does someone from the doc's office callwith the results every time, do you call them, or dothey only call you if they change? I'm a littlefrustrated with my doctor's office. They told myhusband that I beat them down for information. Hetold them that info is what I needed right now, but itreally ticked me off. At that time I was also waitingfor results from a chest x-ray that I had taken twodays before. Any input would help. By the way, Ihave a consultation with a new doc on January 3rd. Iwas just wondering if maybe my expectations are toohigh. He has also lowered my pred twice. I went from30 to 10 and all he is checking is my wbc. Still newand still learning. Any input would be helpful. Thanks, I hope all is feeling well.BethanneAIH 9/01__________________________________________________

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I get a copy of my bloodwork from my dr. I had asked for it a long time ago and since then she writes on it to make sure I get one. I usually get a call to let me know how my bloodwork is doing and sometimes I just get a call checking on how I'm feeling. Sometimes I have to call to get results from different tests I take thats only because she hasn't read them yet or they haven't come in. They usually get right back to me with the results. You have a right to know what your results are. Ask them to give you a copy of them or maybe where you have your bloodwork done that will send you a copy. Good Luck Ann [ ] Doctors Hi everyone!! I have a question. When you get yourbloodwork done does someone from the doc's office callwith the results every time, do you call them, or dothey only call you if they change? I'm a littlefrustrated with my doctor's office. They told myhusband that I beat them down for information. Hetold them that info is what I needed right now, but itreally ticked me off. At that time I was also waitingfor results from a chest x-ray that I had taken twodays before. Any input would help. By the way, Ihave a consultation with a new doc on January 3rd. Iwas just wondering if maybe my expectations are toohigh. He has also lowered my pred twice. I went from30 to 10 and all he is checking is my wbc. Still newand still learning. Any input would be helpful.Thanks, I hope all is feeling well.BethanneAIH 9/01__________________________________________________

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Hi Bethane,

My doctor signs to have the lab fax me the results also. They send the results to me even if I have a doctor appointment. It is really helpful for my slow processing.

My husband puts it on a spreadsheet and I give one to my gastro--she really likes it.

Sue (Oregon)

-----Original Message-----From: Jeanette Carpenter [mailto:jeanette_cuk@...]Sent: Monday, November 19, 2001 5:19 AM Subject: Re: [ ] Doctors

Hi Bethanne this is your body you need to no what is going on. My doctor phones me everytime I have anything done to let me know the results. Jeanette UK Dx AIH 1998 Cirrhosis 2001 Bethanne <bamrand@...> wrote: Hi everyone!! I have a question. When you get yourbloodwork done does someone from the doc's office callwith the results every time, do you call them, or dothey only call you if they change? I'm a littlefrustrated with my doctor's office. They told myhusband that I beat them down for information. Hetold them that info is what I needed right now, but itreally ticked me off. At that time I was also waitingfor results from a chest x-ray that I had taken twodays before. Any input would help. By the way, Ihave a consultation with a new doc on January 3rd. Iwas just wondering if maybe my expectations are toohigh. He has also lowered my pred twice. I went from30 to 10 and all he is checking is my wbc. Still newand still learning. Any input would be helpful. Thanks, I hope all is feeling well.BethanneAIH 9/01__________________________________________________

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> Hi everyone!! I have a question. When you get your

> bloodwork done does someone from the doc's office call

> with the results every time, do you call them, or do

> they only call you if they change? I'm a little

> frustrated with my doctor's office. They told my

> husband that I beat them down for information. He

> told them that info is what I needed right now, but it

> really ticked me off. At that time I was also waiting

> for results from a chest x-ray that I had taken two

> days before. Any input would help. By the way, I

> have a consultation with a new doc on January 3rd. I

> was just wondering if maybe my expectations are too

> high. He has also lowered my pred twice. I went from

> 30 to 10 and all he is checking is my wbc. Still new

> and still learning. Any input would be helpful.

>

> Thanks, I hope all is feeling well.

> Bethanne

> AIH 9/01

I always get a letter about 3 or 4 days afterwards. I regard not

hearing by phone as in the " no news is good news " category. When I

first was tested with this disease, Dr. was on the phone almost as I

walked back in the door at home. I am off pred altogether and they

do LFT's and blood count every three months. However, I have never

heard of a Dr.s office complaining about requests for information--I

have to admit that seems odd. Jean

>

> __________________________________________________

>

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In a message dated 11/19/01 4:30:13 AM Pacific Standard Time, bamrand@... writes:

Hi everyone!! I have a question. When you get your

bloodwork done does someone from the doc's office call

with the results every time, do you call them, or do

they only call you if they change? I'm a little

frustrated with my doctor's office. They told my

husband that I beat them down for information. He

told them that info is what I needed right now, but it

really ticked me off. At that time I was also waiting

for results from a chest x-ray that I had taken two

days before. Any input would help. By the way, I

have a consultation with a new doc on January 3rd. I

was just wondering if maybe my expectations are too

high. He has also lowered my pred twice. I went from

30 to 10 and all he is checking is my wbc. Still new

and still learning. Any input would be helpful.

Thanks, I hope all is feeling well.

Bethanne

AIH 9/01

You are entitled to, and need, all the available information. Push for it. You're the customer.

Harper

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Bethann,

It is my experience being in transplant is they won't call you unless they see something that should be taken care before your next appointment. I have a very low thyroid the docs ordered a TSH and they never did anything nor call me back found out today my Thyroid is too low and should have been changed.

gayle trans/6-99 ^oo^

galye@...

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In a message dated 11/19/01 9:30:26 PM Pacific Standard Time, galye@... writes:

Bethann, It is my experience being in transplant is they won't call you unless they see something that should be taken care before your next appointment. I have a very low thyroid the docs ordered a TSH and they never did anything nor call me back found out today my Thyroid is too low and should have been changed.

I think you can insist on getting the results. If something serious happens to your body due to an oversight, "oops" isn't good enough from your point of view.

Harper

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