Doctors

[Guest guest]

Harper,

I can get very mean and get the results and have but this is crazy why when it is our bodies we want to know. Which has me doing thorough research until I understand then the docs know I know? The docs want to start me on a drug for my women's problems called Lupron only given by injection. Sounds like a dangerous drug and I really don't want to go through more reactions especially.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

In a message dated 11/19/01 10:37:30 PM Mountain Standard Time, flatcat9@... writes:

oops" isn't

This is how I ended up with a liver transplant that dumbass doctor knew my liver ct was high in the 2000 mark oops you need an emergency surgery oops if we don"t find a liver in the next 36 hours you will dye. I am still pissed. The rest of my body is going to hell and I live as a high maintenance science project oop.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Bethanne,

I think it's important you 'beat them down'. Good for you. I am compulsive

about results. My transplant coordinator always calls the same day with the

results. The problem is that they call home first, if my husband is home

they leave the info with him. Nothing is worse than... her labs are better!

I wan't to know exactly what they are!. I end up harrassing him about

details. I have told them call me, It is not fair to Karl, I have an office

phone, and a cell phone, there is no reason not to be able to get in touch

with me. They will also email the results.

Don't stop.

Patty (Miami)

[ ] Doctors

Hi everyone!! I have a question. When you get your

bloodwork done does someone from the doc's office call

with the results every time, do you call them, or do

they only call you if they change? I'm a little

frustrated with my doctor's office. They told my

husband that I beat them down for information. He

told them that info is what I needed right now, but it

really ticked me off. At that time I was also waiting

for results from a chest x-ray that I had taken two

days before. Any input would help. By the way, I

have a consultation with a new doc on January 3rd. I

was just wondering if maybe my expectations are too

high. He has also lowered my pred twice. I went from

30 to 10 and all he is checking is my wbc. Still new

and still learning. Any input would be helpful.

Thanks, I hope all is feeling well.

Bethanne

AIH 9/01

__________________________________________________

[Guest guest]

Ann,

Yes, Lupron is also used to dry up the ovaries and to try to shrink fibroid tumors. I am a little nervous because this is injections used to treat men with cancer. My research says it is a harsh drug with some powerful side effects. I have reactions to drugs that I had anaphylactic shock something I will never forget. I am calling transplant to see if this is OK.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

Ann,

I did stop going to that doctor I tried to sue him but not one lawyer in Colorado would take the case.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

My dr. won't give the results to anyone but me. If she calls and I'm not home she'll leave a message for me to get back to her. I've left my work phone, but for some reason they sometimes forget it. Ann [ ] DoctorsHi everyone!! I have a question. When you get yourbloodwork done does someone from the doc's office callwith the results every time, do you call them, or dothey only call you if they change? I'm a littlefrustrated with my doctor's office. They told myhusband that I beat them down for information. Hetold them that info is what I needed right now, but itreally ticked me off. At that time I was also waitingfor results from a chest x-ray that I had taken twodays before. Any input would help. By the way, Ihave a consultation with a new doc on January 3rd. Iwas just wondering if maybe my expectations are toohigh. He has also lowered my pred twice. I went from30 to 10 and all he is checking is my wbc. Still newand still learning. Any input would be helpful.Thanks, I hope all is feeling well.BethanneAIH 9/01__________________________________________________

[Guest guest]

In a message dated 11/20/01 9:38:46 AM Pacific Standard Time, galye@... writes:

anaphylactic shock something I will never forget.

Yeah, that's a really interesting sensation, isn't it? I had it during a heavy snowstorm, in Boston. Getting to a hospital involved a lot of redlight-running and hoping a policeman would see us, for the sake of their siren. I didn't think there was a chance in the world that I'd be alive at the end of the drive, but I was.

Harper

[Guest guest]

I had gone through a rough time with thyroid medication. Ended up in the emergency room one night because my heart was beating so fast that I thought I was having an attack. It turned out that my thyroid medication was too much and my TSH was so low that it hardly had any reading. My doctor did call me back right away and changed it and I had to take more bloodwork until I was stable. Meds were changed three times before they found one that I needed. Ann Re: [ ] Doctors In a message dated 11/19/01 9:30:26 PM Pacific Standard Time, galye@... writes: Bethann, It is my experience being in transplant is they won't call you unless they see something that should be taken care before your next appointment. I have a very low thyroid the docs ordered a TSH and they never did anything nor call me back found out today my Thyroid is too low and should have been changed. I think you can insist on getting the results. If something serious happens to your body due to an oversight, "oops" isn't good enough from your point of view. Harper

[Guest guest]

Lupron - Is that when they give you an injection which last a month and to stop your cycle? Re: [ ] Doctors Harper, I can get very mean and get the results and have but this is crazy why when it is our bodies we want to know. Which has me doing thorough research until I understand then the docs know I know? The docs want to start me on a drug for my women's problems called Lupron only given by injection. Sounds like a dangerous drug and I really don't want to go through more reactions especially. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

I would have changed dr right away. Doesn't sound like his or she's on top of things. Ann Re: [ ] Doctors In a message dated 11/19/01 10:37:30 PM Mountain Standard Time, flatcat9@... writes: oops" isn't This is how I ended up with a liver transplant that dumbass doctor knew my liver ct was high in the 2000 mark oops you need an emergency surgery oops if we don"t find a liver in the next 36 hours you will dye. I am still pissed. The rest of my body is going to hell and I live as a high maintenance science project oop. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

In a message dated 11/20/01 10:48:56 AM Pacific Standard Time, bamrand@... writes:

I get really anxious after my blood is drawn and I don't think I could wait a month to find out the results. At my next appointment I'm going to see what I need to do for the lab to fax me results.

Thanks for the input!!

Bethanne

I get my results by mail, usually three days after the test. I haven't asked for them to be faxed.

Harper

[Guest guest]

I get really anxious after my blood is drawn and I don't think I

could wait a month to find out the results. At my next appointment

I'm going to see what I need to do for the lab to fax me results.

Thanks for the input!!

Bethanne

> Bethann,

> It is my experience being in transplant is they won't call you

unless they

> see something that should be taken care before your next

appointment. I have

> a very low thyroid the docs ordered a TSH and they never did

anything nor

> call me back found out today my Thyroid is too low and should have

been

> changed.

>

> gayle trans/6-99 ^oo^

> galye@a...

[Guest guest]

I would have that when I would get stung by a bee! Rather frightening to know you are going to stop breathing soon! YIKES......have not tangled with a bee for many many years and hope never to again!!!!!

debby

Re: [ ] Doctors

In a message dated 11/20/01 9:38:46 AM Pacific Standard Time, galye@... writes:

anaphylactic shock something I will never forget.Yeah, that's a really interesting sensation, isn't it? I had it during a heavy snowstorm, in Boston. Getting to a hospital involved a lot of redlight-running and hoping a policeman would see us, for the sake of their siren. I didn't think there was a chance in the world that I'd be alive at the end of the drive, but I was. Harper

[Guest guest]

I'm glad you're no longer seeing that doctor. Hope your new one is better. I changed once but it was because I prefer a woman doctor than a man. Ann Re: [ ] Doctors Ann, I did stop going to that doctor I tried to sue him but not one lawyer in Colorado would take the case. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

The reason I asked was before I had my hysterectomy I was given which I believe was Lupron for a couple of months to see if my problems stopped. They did which means my uterous wasn't working properly and which is why I had the hysterectomy. It really didn't bother me in fact I felt really good for the first time in a couple of years. Ann Re: [ ] Doctors Ann, Yes, Lupron is also used to dry up the ovaries and to try to shrink fibroid tumors. I am a little nervous because this is injections used to treat men with cancer. My research says it is a harsh drug with some powerful side effects. I have reactions to drugs that I had anaphylactic shock something I will never forget. I am calling transplant to see if this is OK. gayle trans/6-99 ^oo^ galye@...

[Guest guest]

Hi Bethanne,

I asked my drs. to send me a copy of my bloodwork and they faithfully

do it for me. I have also asked for transcripts on all tests, but

haven't got those yet. I may have to restate what I want there.

The information is yours, you have a right to have copies. Don't be

afraid to ask for even demand them. You pay for them, not the drs.

I have found that sometimes you have to do a little browbeating to

get that information.

Joanna

AIH 08/01

> Hi everyone!! I have a question. When you get your

> bloodwork done does someone from the doc's office call

> with the results every time, do you call them, or do

> they only call you if they change? I'm a little

> frustrated with my doctor's office. They told my

> husband that I beat them down for information. He

> told them that info is what I needed right now, but it

> really ticked me off. At that time I was also waiting

> for results from a chest x-ray that I had taken two

> days before. Any input would help. By the way, I

> have a consultation with a new doc on January 3rd. I

> was just wondering if maybe my expectations are too

> high. He has also lowered my pred twice. I went from

> 30 to 10 and all he is checking is my wbc. Still new

> and still learning. Any input would be helpful.

>

> Thanks, I hope all is feeling well.

> Bethanne

> AIH 9/01

>

> __________________________________________________

>

[Guest guest]

That's ironic, because I was going to ask you where you research this

stuff. Mr Research is what we should call you. Thanks for helping all

of us lazy slobs. Only speaking for myself... really! <smile>

E Long

> Hi all,

>

> I've got a big paper due tomorrow and a busy weekend out-of-town.

If

> you want to wait, I will get back to you next week on the

referrals. In

> the meantime, however, you may want to check out the following

pages in

> the order listed and search for a doc in your area yourself (whoa!

what

> a concept!):

>

> http://www.dadamo.com/directory/pract.htm

> http://www.healthy.net/aanp/aanpsearch.htm

> http://www.worldhealth.net/cgi-

> local/DB_Search/db_search.cgi?setup_file=whn.setupa.cgi

> http://www.healthy.net/asp/templates/center.asp?centerid=53

>

> Cheers,

>

>

>

> P.S. I know. I know. I'm just a little stressed.

[Guest guest]

I know that people have been having trouble with the doctor's in the past. I quit my treatments last year because i could not keep a doctor. We need more professional help from these doctor's. This is the first time i heard of a waiting list for mediciation. I think we need to find Doctor's who know about this illness and are willing to help. Some doctor's refuse to treatment hepC because they are scared just like us. I have no answer for the problems except keep searching for a understanding doctor i know they are out there. Most of remember we are not alone we are all here hoping and prayer for each of you as well as oursleves. God bless.

[Guest guest]

Wow,

Judy, I thought I had it bad being sent from Doctor to

Doctor being diagnoised and undiagnosed with

everything under the sun. But yours take the cake!!

May I ask what type of insurance you have? This all

sounds crazy to me. I thought only GI's and

Hepatologist took care of the liver and Hep C. I am

on an HMO and live in PA, and I know there crazy, but

they do refer you to specialist to take care of what

is wrong with you. Just a regular MD is not trained

in specialized field that I know of. Hell, even some

of the GI's and Hepatologist have conflicting

information about HepC. Wow, hope things get better.

I am assuming that you may of never even had a

Biopsy?? Hope things get better. Hugs Dana

--- Judy Mckee <tmckee@...> wrote:

> I just got a call from , my family doctor.

> She is pretty perturbed

> to say the least with my liver doctor. She tried

> calling the liver doctor

> and he never returned her call.she says she can

> order the medication I need

> but needs to know the dosage. She just found out

> that the liver doctor is

> not going to send a representative to her office to

> teach anything.she is to

> take care of everything. She also just found out

> that I will be put on a

> waiting list to get my medicine, a waiting list of 3

> or more months. I could

> have told her that three months ago. I came so close

> to asking her if she

> wanted me to look in the PDR and get the correct

> dosage.it all has to do

> with so much medicine per kg of weight. This all

> comes from the way family

> doctors are trained or should I say not trained in

> medical school. It has

> been almost 6 months since I was diagnosed and will

> be another 3 or more

> months till I can start treatment. This is not

> right. The liver is being

> damaged more each day we wait to start treatment. I

> called Dr Kipfer's (the

> liver doctor) office and talked with his nurse. She

> says he orders the

> tests, that's all. The family doctor takes care of

> everything else. He didn'

> t do one thing that couldn't have been done by the

> family doctor. His nurse

> stated, he does not treat hepatitis, he will not

> send the representative, he

> does not order the medication but she will have him

> call my family doctor on

> Monday to straighten them out. He is only a

> consultant. What a mess. A

> person could croak waiting for these doctors to

> communicate. I could scream

> if it would do any good..judy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Wow,

Judy, I thought I had it bad being sent from Doctor to

Doctor being diagnoised and undiagnosed with

everything under the sun. But yours take the cake!!

May I ask what type of insurance you have? This all

sounds crazy to me. I thought only GI's and

Hepatologist took care of the liver and Hep C. I am

on an HMO and live in PA, and I know there crazy, but

they do refer you to specialist to take care of what

is wrong with you. Just a regular MD is not trained

in specialized field that I know of. Hell, even some

of the GI's and Hepatologist have conflicting

information about HepC. Wow, hope things get better.

I am assuming that you may of never even had a

Biopsy?? Hope things get better. Hugs Dana

--- Judy Mckee <tmckee@...> wrote:

> I just got a call from , my family doctor.

> She is pretty perturbed

> to say the least with my liver doctor. She tried

> calling the liver doctor

> and he never returned her call.she says she can

> order the medication I need

> but needs to know the dosage. She just found out

> that the liver doctor is

> not going to send a representative to her office to

> teach anything.she is to

> take care of everything. She also just found out

> that I will be put on a

> waiting list to get my medicine, a waiting list of 3

> or more months. I could

> have told her that three months ago. I came so close

> to asking her if she

> wanted me to look in the PDR and get the correct

> dosage.it all has to do

> with so much medicine per kg of weight. This all

> comes from the way family

> doctors are trained or should I say not trained in

> medical school. It has

> been almost 6 months since I was diagnosed and will

> be another 3 or more

> months till I can start treatment. This is not

> right. The liver is being

> damaged more each day we wait to start treatment. I

> called Dr Kipfer's (the

> liver doctor) office and talked with his nurse. She

> says he orders the

> tests, that's all. The family doctor takes care of

> everything else. He didn'

> t do one thing that couldn't have been done by the

> family doctor. His nurse

> stated, he does not treat hepatitis, he will not

> send the representative, he

> does not order the medication but she will have him

> call my family doctor on

> Monday to straighten them out. He is only a

> consultant. What a mess. A

> person could croak waiting for these doctors to

> communicate. I could scream

> if it would do any good..judy

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

This all sounds so familiar....my "GI" also said he was only a consultant and that for him to fill out any special paper work needs to go thru my regular MD. Thank God she has been very understanding.....but she's pist off too...these damn doctors make a mint, but they definetly do not want to do any more than they have too. I would like to meet a Liver Doctor being treated for Hep-C themselves and see what they have to say. Good Luck with everything Judy, my prayers are with you.

Love Terri

Judy Mckee <tmckee@...> wrote:

I just got a call from , my family doctor. She is pretty perturbed to say the least with my liver doctor. She tried calling the liver doctor and he never returned her call…she says she can order the medication I need but needs to know the dosage. She just found out that the liver doctor is not going to send a representative to her office to teach anything…she is to take care of everything. She also just found out that I will be put on a waiting list to get my medicine, a waiting list of 3 or more months. I could have told her that three months ago. I came so close to asking her if she wanted me to look in the PDR and get the correct dosage…it all has to do with so much medicine per kg of weight. This all comes from the way family doctors are trained or should I say not trained in medical school. It has been almost 6 months since I was diagnosed and will be another 3 or more months till I can start treatment. This is not right. The liver is being damaged more each day we wait to start treatment. I called Dr Kipfer’s (the liver doctor) office and talked with his nurse. She says he orders the tests, that’s all. The family doctor takes care of everything else. He didn’t do one thing that couldn’t have been done by the family doctor. His nurse stated, he does not treat hepatitis, he will not send the representative, he does not order the medication but she will have him call my family doctor on Monday to straighten them out. He is only a consultant. What a mess. A person could croak waiting for these doctors to communicate. I could scream if it would do any good….judy

[Guest guest]

It seems to me that it is all Sherring Plough's fault. I have been on the waiting list for three months now. My viral load has gone up from 122000 to 831000 in three months how can we get the cure if we can't get the medication. Somehow we need more power over the suituation. it really ticks me off....

Pamela Davey

-- Re: Doctors

This all sounds so familiar....my "GI" also said he was only a consultant and that for him to fill out any special paper work needs to go thru my regular MD. Thank God she has been very understanding.....but she's pist off too...these damn doctors make a mint, but they definetly do not want to do any more than they have too. I would like to meet a Liver Doctor being treated for Hep-C themselves and see what they have to say. Good Luck with everything Judy, my prayers are with you. Love Terri Judy Mckee <tmckee@...> wrote:

I just got a call from , my family doctor. She is pretty perturbed to say the least with my liver doctor. She tried calling the liver doctor and he never returned her call…she says she can order the medication I need but needs to know the dosage. She just found out that the liver doctor is not going to send a representative to her office to teach anything…she is to take care of everything. She also just found out that I will be put on a waiting list to get my medicine, a waiting list of 3 or more months. I could have told her that three months ago. I came so close to asking her if she wanted me to look in the PDR and get the correct dosage…it all has to do with so much medicine per kg of weight. This all comes from the way family doctors are trained or should I say not trained in medical scho! ol. It has been almost 6 months since I was diagnosed and will be another 3 or more months till I can start treatment. This is not right. The liver is being damaged more each day we wait to start treatment. I called Dr Kipfer’s (the liver doctor) office and talked with his nurse. She says he orders the tests, that’s all. The family doctor takes care of everything else. He didn’t do one thing that couldn’t have been done by the family doctor. His nurse stated, he does not treat hepatitis, he will not send the representative, he does not order the medication but she will have him call my family doctor on Monday to straighten them out. He is only a consultant. What a mess. A person could croak waiting for these doctors to communicate. I could scream if it would do any good….judy

[Guest guest]

Hi Judy

This is Pamela I also have hep-c. I have been recieving email from you I don't know if I am the one you are sending to. But I like hearing from other hepper's. I too am having problems with the waiting list if you are not on it you'd better get on it fast. I have been on it for three months now and I'm still waiting. Im so pissed off. I need to start my medication. My viral load has gone up from 122000 to 831000 during the last three months. I wish there was something we could do about this. Sherring is the only company that makes the only medicine that we need..........Well nice to meet you. Hope things get better for you also.

God Bless you

Pamela Rae

-- Doctors

I just got a call from , my family doctor. She is pretty perturbed to say the least with my liver doctor. She tried calling the liver doctor and he never returned her call…she says she can order the medication I need but needs to know the dosage. She just found out that the liver doctor is not going to send a representative to her office to teach anything…she is to take care of everything. She also just found out that I will be put on a waiting list to get my medicine, a waiting list of 3 or more months. I could have told her that three months ago. I came so close to asking her if she wanted me to look in the PDR and get the correct dosage…it all has to do with so much medicine per kg of weight. This all comes from the way family doctors are trained or should I say not trained in medical school. It has been almost 6 months since I was diagnosed and will be another 3 or more months till I can start treatment. This is not right. The liver is being damaged more each day we wait to start treatment. I called Dr Kipfer’s (the liver doctor) office and talked with his nurse. She says he orders the tests, that’s all. The family doctor takes care of everything else. He didn’t do one thing that couldn’t have been done by the family doctor. His nurse stated, he does not treat hepatitis, he will not send the representative, he does not order the medication but she will have him call my family doctor on Monday to straighten them out. He is only a consultant. What a mess. A person could croak waiting for these doctors to communicate. I could scream if it would do any good….judy

[Guest guest]

They don't get any training in this area - if they have one two hour lecture

on the shole endocrine system they are lucky - bye

doctors

Hi Gracia,

Your opinion of doctors is well justified.

I have seen a few doctors and found most to be

uncaring and incompetent with closed minds.

A caring incompetent doctor,even, is a rare find. The

necessity of a Top Doc List bears this out.

I don't understand why some on this list are so

critical of some of your views.

" Diabetic thinking " and " T4 head " sound interesting

but I'm sure they can't be explained in a few lines of

an email.

Ron

__________________________________________________

[Guest guest]

that's just not true. They have to take a intensive course in preclinical

on human systems which includes the endocrine system.

----Original Message Follows----

From: " sue " <admin@...>

Reply-hypothyroidism

<hypothyroidism >

Subject: RE: doctors

Date: Mon, 1 Jul 2002 13:30:30 +0100

They don't get any training in this area - if they have one two hour lecture

on the shole endocrine system they are lucky - bye

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