Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Well, I know someone who trained as a doctor and the system is that they cram a particular subject, take the exam and may never look at that book again in their life!! The major problems start when the doctor is a junior at a hospital, that particular hospital will imbue all its juniors with its good or bad habits and, as we all know, way too many of them are under the sway of the BTA!!! > > Are we all presuming that our doctor was in the top 10 of his class and passed with very high marks and therefore it must only be lack of eduction that makes him say the things he does. > > Could be, combined with a certain lack of education a lot of the doctors might have only scraped through their exams and came nowhere near the top 10. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 That is pretty funny Jane... I actually just told my Primary Care Doctor if I could just be under his care for my AS. My Rheumy is so flaky and I find it a waist of my time to pay the $25 every 6 months to sit and talk with her just to get Enbrel. She NEVER ran ANY blood work and NEVER even checked my joints. It was kind of like going to a therepist. Not really sure she knew what was going on because when I first was refered to her (as to she is the only Rheumy in my area) she told me that because I was a woman, she thought that I was misdiagnosed as to " WOMENT DONT GET AS " . Nice......My Primary Care Doctor has done more for my flare-ups and helping me get my meds than my Rheumy ever did. I see him every 4 weeks and it is perfect. He runs all of my blood work and checks my joints and seems to be very in tune with me and my disease and my flare ups. I feel lucky. Jane Pollock <janepollock@...> wrote: I hope this doesnt sound too bad, but I'm wondering if rheumatologists are flaky by nature or am I just the lucky soul to have found 2 right off the bat? No, your doctor's actions are right in line with what I have found for years. It is my suspicion that since they don't know how to treat us, they refuse to make a diagnosis. The doctor may not really know what is wrong or he may think he is protecting us from the insurance companies. After so many years, I try not to think about it. However, my medical problems made it much easier for the rhemy to diagnose my son's AS. Even though the treatment is questionable, he is able to get up and go to work. I try to look for the positive. I do hope things get better for you. --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Stolla <sillyhil@...> wrote: That is pretty funny Jane... I actually just told my Primary Care Doctor if I could just be under his care for my AS. My Rheumy is so flaky and I find it a waist of my time to pay the $25 every 6 months to sit and talk with her just to get Enbrel. , I have a marvelous rhemy but I just got lucky. I have also been told that I could have Reiters because it's a man's disease. . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Boy, did I goof...............I have been told I could not have Reiters because it is a man's disease. Jane Jane Pollock <janepollock@...> wrote: From: Jane Pollock <janepollock@...> Date: Thu, 7 Feb 2008 16:28:11 -0800 (PST) Subject: Re: doctors Stolla <sillyhil@...> wrote: That is pretty funny Jane... I actually just told my Primary Care Doctor if I could just be under his care for my AS. My Rheumy is so flaky and I find it a waist of my time to pay the $25 every 6 months to sit and talk with her just to get Enbrel. , I have a marvelous rhemy but I just got lucky. I have also been told that I could have Reiters because it's a man's disease. .. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I wondered about that Jane, but there are some guys these days named Jane,you know the Hollywood croud.LOL You should give your dr this site address, and tell him to take a poll. Not so much a mans disease.I was told AS is a mans disease, but both of my female cousins have it, as well as my brother and son. I don't think these diseases care about gender. Just like gout.In the old,old days men mostly got it, but things have changed and we live different life styles than we did back then. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 When I was first diagnosed with having Reiter's Syndrome, I too was told it was really rare for a woman to have it because of the fact that it was a disease that normally effected men. Not trying to be ugly or anything. My reply to the doc was I always knew I had a bigger set of #$@! than most men. LOL. Barbara > From: Jane Pollock <janepollock@...> > Date: Thu, 7 Feb 2008 16:28:11 -0800 (PST) > Subject: Re: doctors > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 I have sent you the list of doctors off-list Jane. luv - Sheila > > hi sheila; would you please let me know if there are any endos in the > west sussex area that would be good to see. i have my next gp's > appointment in a few weeks and would like to have a name ready should > consultant referrals come up. kind regards jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 thanks sheila; your a star !! > > I have sent you the list of doctors off-list Jane. > > luv - Sheila > > > > > hi sheila; would you please let me know if there are any endos in > the > > west sussex area that would be good to see. i have my next gp's > > appointment in a few weeks and would like to have a name ready should > > consultant referrals come up. kind regards jane > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Many doctors are only there to prescribe pharmaceutical drugs like the books and university taught them or surgery. I met around 10 doctors are they are all crap in their own special way Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 My GP used to be very thorough with my asthma and would write out a script if I phoned and said I needed one. We had a good plan in place for keeping it under control. Unfortunately he moved on to another area and the new one who took his place refuses to give out scripts via a phone call (he doesn’t get the government kick back if he does that) and as far as monitoring my asthma? What a joke. Last time I visited him with shortness of breath, he prescribed anti depressants and didn’t even bother to put me on that test that registers the lung readings (?) Then it was ‘next patient please’. In and out in about 3 minutes. Unfortunately there are no other GP’s in the near vicinity. Oh how I wish my previous GP who had been here for many years was still around. So Steve? I’m inclined to agree there. Whatever happened to the caring type of doctor who was more concerned about the patient than writing scripts. From: Steve [mailto:skunkburner@...] Sent: Monday, 16 June 2008 11:45 PM samters Subject: RE: Doctors Importance: High Many doctors are only there to prescribe pharmaceutical drugs like the books and university taught them or surgery. I met around 10 doctors are they are all crap in their own special way No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 6/16/2008 7:20 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Have you seen the new "concierge doctors" (the GP who treats you for everything) who charges $1500 annually to get into their practice and then the regular fees? They are "on call 24/7" and have a maximum of 600 patience. It's a heck of an idea but I don't know too many of us who can afford this with all our other meds and appointments. Something new -- not like having different doctors for GP, ENT, and Pulmonary where there is no communication between them and trying to get refills from the "correct doctor" is a nightmare. From: <soniarobins@...>Subject: RE: RE: Doctorssamters Date: Monday, June 16, 2008, 7:04 PM My GP used to be very thorough with my asthma and would write out a script if I phoned and said I needed one. We had a good plan in place for keeping it under control. Unfortunately he moved on to another area and the new one who took his place refuses to give out scripts via a phone call (he doesn¢t get the government kick back if he does that) and as far as monitoring my asthma? What a joke. Last time I visited him with shortness of breath, he prescribed anti depressants and didn¢t even bother to put me on that test that registers the lung readings (?) Then it was ¡next patient please¢. In and out in about 3 minutes. Unfortunately there are no other GP¢s in the near vicinity. Oh how I wish my previous GP who had been here for many years was still around. So Steve? I¢m inclined to agree there. Whatever happened to the caring type of doctor who was more concerned about the patient than writing scripts. From: Steve [mailto:skunkburner @.co. uk] Sent: Monday, 16 June 2008 11:45 PMsamters@groups .comSubject: RE: DoctorsImportance: High Many doctors are only there to prescribe pharmaceutical drugs like the books and university taught them or surgery. I met around 10 doctors are they are all crap in their own special way No virus found in this incoming message.Checked by AVG.Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 6/16/2008 7:20 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 , I went to a psychopharmacologist and had a 1 hour appointment with him. I found that my internist, although he believe FM and CFS are real illnesses, would prescribe anti d's for me but they don't really know as much about them as the psychopharmacologists who can combine meds, help you through the initial phases of taking a new med and, IMHO, know what they are doing as long as you find a right fit with personality as well as experience. I too was jumping out of my skin and I was very depressed once I began the peri menopause phase. I do think hormones play a part but mostly I was depressed because I was afraid of the anxiety issues. I hope this helps and perhaps someone else on the list has something else to suggest. Blog: http://maria165.vox.com/ Words In My Wine Glass-Ink In My Mug Moderator of Womens Weight Loss Journey WomensWeightLossJourney > From: Brecker <davidbrecker@...> > Subject: doctors > dominie , Fibromyalgia-Crochet > Date: Monday, September 22, 2008, 2:48 AM > hi howdo i get a doc to listen to me i feel as if i am going > crazy flipping out over stupid things and high level of > anxiety and at the last appointment doc says lets go back > on elavil nd i told him that it was tried in the past and it > put me in the hospital with migraines and they tried upping > my effexor before and that put me in the hospital. i have > tried paxil, prozac, cymbalta, elavil and one other and they > all gave me migraines and i am a migraine suffer and have > been for 20 years now. mychildhood depression is reliving > itself and i am going out of my mind. my husband wants me to > change doctors and get with someone that has a heart and > reads my records and listens to me for once. > what are any suggestions > shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Hi , You sound a lot like me! I'm VERY sensitive to meds. and when you have a doctor who doesn't listen,believe, & have some heart for what you're going through,then maybe it is a good idea to find another doctor. I know a "GOOD" one is hard to find,but I really feel,from the sounds of it,that's your only choice at this point?! I had/have horrid depression problems as a child as well! I always say 4 yrs old it started because my mom always told me it started before I ever went to school. I really feel for you! I truly do! I hope I've helped & I hope you can find the correct help that you deserve! Take care,Pam Silvis http://www.zazzle.com/pammys* Fibromyalgia Awareness Items,etc... doctors hi howdo i get a doc to listen to me i feel as if i am going crazy flipping out over stupid things and high level of anxiety and at the last appointment doc says lets go back on elavil nd i told him that it was tried in the past and it put me in the hospital with migraines and they tried upping my effexor before and that put me in the hospital. i have tried paxil, prozac, cymbalta, elavil and one other and they all gave me migraines and i am a migraine suffer and have been for 20 years now. mychildhood depression is reliving itself and i am going out of my mind. my husband wants me to change doctors and get with someone that has a heart and reads my records and listens to me for once. what are any suggestions shelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 - many think that the best CLL guy in the SF area is Dr. Coutre at Stanford - Nothing says I love you like flowers! Find a florist near you now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Thanks, . I know about Coutre, also that he is not, alas, in a contractual relationship with any HMO's, including mine, so it would be self-pay--i.e., an arm and a leg--to see him, which I feel I can't afford to do at the moment. I was hoping that " second best, " as Wolf put it-- my former hematologist who's now a melanoma researcher at UCSF-- might be one of the two CLL docs he recommended there--the ones I mentioned. Jeff thinks Coutre is the best in northern CA, by the way! Having heard him just last week at the ASH conference in SF, I can see where he might be. I liked him a lot. I have no idea at this point whether my HMO (Health Net Seniority Plus) would " process " (as they say--such a cold word!) a request to see Lawrence Kaplan, for example, at UCSF. I haven't gotten to that point yet. If I get just one crack at a second opinion " out of plan, " I want to make it good! Fortunately, right now I'm not in need of treatment, so perhaps I have a little while (or longer, I hope) to puzzle this out. But somewhere along the line I want a specialist in my corner. By the way, you and I met briefly in NY at the conference Rick Furman ran. He's my sister Ellen's doc. All the best, and thanks for your response. On Friday, February 6, 2009, at 03:10 PM, jb50192@... wrote: > - many think that the best CLL guy in the SF area is Dr. > Coutre at Stanford - > <image.tiff> > > Nothing says I love you like flowers! Find a florist near you now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Re: the email below: I thought I was sending it to Balan only. Now that I realize it went to the whole group, let me add that it was Dr. Furman who first gave me Coutre's name, so he gets first thanks! I hope I will be able to consult with Dr. Coutre some day. Begin forwarded message: > From: Friedman <msvoc@...> > Date: Fri Feb 6, 2009 3:23:19 PM US/Pacific > > Subject: Re: doctors > > Thanks, . I know about Coutre, also that he is not, alas, in a > contractual relationship with any HMO's, including mine, so it would > be self-pay--i.e., an arm and a leg--to see him, which I feel I can't > afford to do at the moment. > > I was hoping that " second best, " as Wolf put it-- my former > hematologist who's now a melanoma researcher at UCSF-- might be one of > the two CLL docs he recommended there--the ones I mentioned. > > Jeff thinks Coutre is the best in northern CA, by the way! Having > heard him just last week at the ASH conference in SF, I can see where > he might be. I liked him a lot. > > I have no idea at this point whether my HMO (Health Net Seniority > Plus) would " process " (as they say--such a cold word!) a request to > see Lawrence Kaplan, for example, at UCSF. I haven't gotten to that > point yet. If I get just one crack at a second opinion " out of plan, " > I want to make it good! > > Fortunately, right now I'm not in need of treatment, so perhaps I have > a little while (or longer, I hope) to puzzle this out. But somewhere > along the line I want a specialist in my corner. > > By the way, you and I met briefly in NY at the conference Rick Furman > ran. He's my sister Ellen's doc. > > All the best, and thanks for your response. > > > > On Friday, February 6, 2009, at 03:10 PM, jb50192@... wrote: > >> - many think that the best CLL guy in the SF area is Dr. >> Coutre at Stanford - >> > <image.tiff> >> >> Nothing says I love you like flowers! Find a florist near you now. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2009 Report Share Posted September 2, 2009 Hi. Another good treatment for Fibro is the muscle relaxer Soma. Hope this helps some body. ?Harv Doctors It is so frustrating sometimes. I remember the time and it wasn't that long ago that the official stance in the medical community was that fibromyalgia pain was all in your head. I don't think it has been ten years yet that medical science has proved that fibromyalgia is a real disease and the pain is very real. But some Physicians still beleive that fibromyalgia pain is not real because that is what they were taught in school. Also medicine is different in different countries. I had a real bad fibromyalgia attack when visiting Sweden. The Doctor gave my diazepam (Valium) and within an hour the pain was gone. I had never seen that in North America, even morphine-based painkillers didn't do as good as job for fibro pain. But when I got back to North America and asked for diazepam for fibro pain, I was treated like I was an addict looking for a fix. Fortunately I did find a Physician who did believe me when I told him it worked. He doesn't give me enough diazepam to take every day, but what he does do is that he gives me enough so when I am experiencing real bad fibromyalgia pain, I can enough diazepam to get relief. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I would put up with this doctor if he is prescribing you Armour. He is a very rare doctor indeed. You will find it very difficult to get another doctor to prescribe it, unless he is being told to by an endocrinologist of course. All doctors discuss cases they are not certain of, or for some other reason, with their colleagues, not usually mentioning the name of the patient. They should not be discussing a case with a receptionist, nor with their relatives - wives included. I would take exception to that if that is the case. Lilian would you change your doctor ? i dont think i could go see him again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Dear Marie Tell them that as they are so curious to know the facts about Armour Thyroid, they had better read the Statement written by the British Thyroid Association, and the rebuttal written to them b y TPA-UK to show the BTA statement was both misleading, and in parts incorrect (again on the Internet, dear oh dear oh dear!!!). They will see that their own organisation is not to be trusted with the FACTS regarding natural thyroid extract, and they should be asking why. If they did a little research on the Internet, they would learn a lot. Sorry the rebuttal is so long, but I would challenge this husband and wife team to find something in it that was incorrect. We have to face these people and let them know we are no longer prepared to sit back and believe every word they say - tell them that ALL the latest research is on the Internet, including all the up to date Medical Journals - and this is why you use the Internet. Let them know you are not a kid who doesn't know what is good and what's not. Doctors don't like us going to the Internet because we might be finding facts that they are not aware of, and when we face them with these, they become totally embarrassed because we know something they don't, so they retaliate by telling us that the Internet information is 'fatal'. Actually, this doctor should be ashamed of herself. Stick to what you believe and carry on doing your own research - because to be honest, if we left our health completely to the doctors of today, we would probably be dead - well, I know that I would have been had I stayed with the NHS. Stay looking pretty and smart with your thyroid extract - without it, you would probably look like Zombie. Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of mariesimpson1248 Sent: 04 September 2009 19:58 thyroid treatment Subject: doctors Hi Sheila and every one if you can recall i had to have bendrofluiazide stopped as it could be this causing my rash and clinical nurse said to ask for a different diuretic and my doctor did not give me one. i did ask for another and he said no. (still says it is not them that is causing rash )and he started asking me what armour had done for me etc i felt as if i was having a carrot dangled in front of me and i feel he had taken umbrage over the fact i told the specialist nurse i had told him i thought the bendrofluazide. he denied i had told him. Today i had to go and pick up my prescription for my armour and the receptionist who happens to be his wife (whom he had an affair with while married to some one else)asked me in a manner i cant explain like she was being chatty but probing for information but it is not her usual manner how i found out about Armour and i told her about the group and she replied oh the internet its fatal so i told her british heart foundation have a web site as well is that fateful. then she asked what had armour done for me so i just said to many things to mention just look at me dont i look good and she said oh yes. but i feel like i am being discussed by my doctor and his wife and i am starting to feel imtimidated i am thinking of looking for another doctor .i went to town with my hubby and would you believe 2japanese students asked me if they could take a photo of me for their project as i looked so smart and pretty wished doctor was behind me then(i said yes of course)18months ago they would not of looked at me. would you change your doctor ? i dont think i could go see him again. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.13.76/2342 - Release Date: 09/04/09 05:51:00 1 of 1 File(s) resp_bta_armour.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 ,  I hate to hear you're in pain.  You may or may not have run across this, but from everything I can find, neither Burkus nor Horton specialize in revisions.  Based on what I've heard from former patients, Bridwell (St. Louis), Boachie (NYC), and Rand (Boston) could easily be considered among the top U.S. revision specialists.  I've yet to see anything but positive feedback from anyone who's used these 3 for various complexities of revisions.  LaGrone (Amarillo) is another one commonly mentioned on one of the other boards, but I've seen mixed feedback on him.  You mentioned horrible hospital care, and that's one thing I've repeatedly heard about the Hospital for Special Surgery (HSS ... where Boachie operates). People sometimes opt for private nurses to get around this obstacle. Although he's one of the best, there are more than a few obstacles to having surgery with Boachie:  The largest would probably be that he doesn't participate in ANY insurance plan (although many plans will cover him at the out-of-network rate). His office staff also receives awful reviews from patients/potential patients. He, on the other hand, gets *glowing* reviews for talent and bedside manner ...  If it were me, I'd look at scheduling a consult with one the first 3 surgeons. The results they've achieved are very, very encouraging ...  I hope you find an answer soon!  Best regards, Pam  -- Very proud Marine Mom of Cpl. Jett, 3rd generation USMC VMGR-152 Marine of the Quarter (Q2/09), promoted by MAG-40 Meritorious Board (06/09) VMGR-152 (KC-130J Avionics) Futenma, Okinawa Currently deployed to southern Afghanistan  From: kelizrm <kelizrm@...> Subject: Doctors Scoliosis Treatment Date: Sunday, September 13, 2009, 1:38 PM  Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 , I can thow in my .02 worth about Dr. Bridwell in St. Louis, MO. He was going to do surgery for a slipped disc on my son, Bradley, who is 32 and has Down Syndrome.  He was very through, ordering all kinds of cardiac testing, x-rays, mylogram, CT Scan, blood work, treadmill test, and stationary bike test.  Bradley did so well on the treadmill and bike--no pain that Dr. Bridwell questioned whether or not the needed surgery, so we've put it off for now. He's doing remarkedly well and having no pain. I admire a surgeon who will question if a patient needs surgery. Most are all gun ho on operating. Bradley also has scoliosis in the upper spine but Dr. Bridwell said that is the least of his problems. If he ends up needing the surgery for either the slipped disc or the scoliosis I would run back to Dr. Bridwell. Also, a lady in my church has had to scoliosis surgeries done by Dr. Bridwell and she swears by him.  Young gatewaysspin@... www.gatewaysspinone.com CH Ecco Domani Gateways Daisy Mae,JH,CGC CH Gateway's Lucina, JH, CGC, NA Prize III Gateway's Angelina, JH CH Gateway's Camilla, JH, RN, NA Prize I Olivechi Mundi ________________________________ From: Pam <pamelicious2k4@...> Scoliosis Treatment Sent: Sunday, September 13, 2009 3:31:56 PM Subject: Re: Doctors  ,  I hate to hear you're in pain.  You may or may not have run across this, but from everything I can find, neither Burkus nor Horton specialize in revisions.  Based on what I've heard from former patients, Bridwell (St. Louis), Boachie (NYC), and Rand (Boston) could easily be considered among the top U.S. revision specialists.  I've yet to see anything but positive feedback from anyone who's used these 3 for various complexities of revisions.  LaGrone (Amarillo) is another one commonly mentioned on one of the other boards, but I've seen mixed feedback on him.  You mentioned horrible hospital care, and that's one thing I've repeatedly heard about the Hospital for Special Surgery (HSS ... where Boachie operates). People sometimes opt for private nurses to get around this obstacle. Although he's one of the best, there are more than a few obstacles to having surgery with Boachie:  The largest would probably be that he doesn't participate in ANY insurance plan (although many plans will cover him at the out-of-network rate). His office staff also receives awful reviews from patients/potential patients. He, on the other hand, gets *glowing* reviews for talent and bedside manner ...  If it were me, I'd look at scheduling a consult with one the first 3 surgeons. The results they've achieved are very, very encouraging ...  I hope you find an answer soon!  Best regards, Pam  -- Very proud Marine Mom of Cpl. Jett, 3rd generation USMC VMGR-152 Marine of the Quarter (Q2/09), promoted by MAG-40 Meritorious Board (06/09) VMGR-152 (KC-130J Avionics) Futenma, Okinawa Currently deployed to southern Afghanistan  From: kelizrm <kelizrm (DOT) com> Subject: Doctors Scoliosis Treatment Date: Sunday, September 13, 2009, 1:38 PM  Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 I will again recommend Dr. Tribus in Madison WI. He's talented and a good listener. He's conservative in that he does the least amount of surgery possible. This isn't necessarily the best way, if you end up having more surgeries, but it would be great if you end up not needing to be fused top to bottom, front and back, as some surgeons believe. There is also a place in Texes called Baylor Institute. They don't take Medicare. They referred me to three different surgeons for my next surgery, which I hope will be minor. I need a screw removed and I hope that's all. But I don't want to travel to WI. So they referred me to 3 different surgeons. I don't remember all the names. One was in NY, one in Missouri, and the one I'm going to is in San Francisco, Dr Berken. ________________________________ From: kelizrm <kelizrm@...> Scoliosis Treatment Sent: Sunday, September 13, 2009 12:38:31 PM Subject: Doctors  Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Thanks to all who have replied thus far...I guess since Boachie has lousy staff/hospital care, that rules him out. So I will pursue both Rand and Bridwell...I think. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 My name is . I haven't been able to be of help to others or I think tell my story due to all my pain. I have insurmountable pain from a one in a million disease that struck my spine transverse myelitis and it paralyzed me in Dec. 2006. I had terrible burning in my feet when I left my spinal rehab. at Baylor Rehab. Institute. Oh, they showed me how to increase my muscle by it being like a boot camp from 9:00 to 4:30 me pulling pulleys to rowing type machines, but they never never tried I believe hard enough to get my pain under control. My doc. kept saying " you have more pain than most, but I've seen it happen like this. "  There were nights I never slept, I screamed and cried into my pillow from my feet burning. That has gotten controlled by my great internist or long ago pain doc. Baylor let my morphine pump go dry. I was told by my first doc. " My asst. checked all over Dallas & no pain dr. knows about these pumps " . I never believed it. Dallas is much larger than Little Rock and North Little Rock, Arkansas and they had several pain docs. who knew about pain pumps. I had already had one replaced as the battery went out on the old one. I called the Scoliosis Baylor Center and there are 2 docs. there, & one was a dr. who found years ago 3 cracks in my neck, having lived in the pain for 5 years. I've been in pain since 1987. Now, Transverse Myelitis paralyzed me. After all, it was Christmas time & my doc. had to go on vacation and instead of giving me over to the one on call of the group. I was sent to a rehab. (right leg was only paralyzed then), before I left the rehab. after being talked down to by the Big doc. over this rehab. I wasn't trying enough. My left leg became paralyzed. Sooo, I couldn't do anything else but wait for my back doc. to get back into town. He was livid this had happened to me - needless to say he was not the only one. Now, I had 42% curve in the Spring of this year of scoliosis; which probably was a result of the herniations and collapsing of my lower back. It's been rescheduled 3 times; I hope when Oct. 16th comes I'll get this surgery over. My scoliosis pain is nothing compared to the Transverse Myelitis pain that attacks my legs almost daily. I've been 4 times to Emergency in my town in the last 2 weeks to get my pain under control from Transverse Myelitis. I'm to have 2 rods and 18 pins, but it might increase due to having to go thru all the testing process of x-rays, probably another MRI again and such. The last CT-myelogram my doc. (who I was sent to, as he does the " Big " surgeries he said of the firm) the radiologist doc. couldn't get a needle inbetween my epidural space due to spinal stenosis being so bad; she went one level up and the dye ran thru after they tilted the table some. She almost gave me over to a neuro radiologist if the other level would not go thru. I have not been the same since.. Bad, Bad pain and I hope Oct. 16th helps. I can't see anymore pain than I already have. It has taken my life for the past 23 years. Car wreck and the guy doesn't even know that's where it all began; I never got his name. Sorry, for the soap box, but does anyone know of a Dr. Seal who use to be in California for several years correcting major spinal problems. I am worn out from surgeries, plus the pain of Transverse Myelitis. I must go & I apologize I took so long of anyone's time who reads this. I don't know anything about this doc. but I was sent to him by my old doc. I am requesting new x-rays of my spine when I go to him. Anyone out there, know him? Thanks,  P.S. Any advice of this?? From: Randie Meyer <taknitlite@...> Subject: Re: Doctors Scoliosis Treatment Date: Monday, September 14, 2009, 4:01 AM  I will again recommend Dr. Tribus in Madison WI. He's talented and a good listener. He's conservative in that he does the least amount of surgery possible. This isn't necessarily the best way, if you end up having more surgeries, but it would be great if you end up not needing to be fused top to bottom, front and back, as some surgeons believe. There is also a place in Texes called Baylor Institute. They don't take Medicare. They referred me to three different surgeons for my next surgery, which I hope will be minor. I need a screw removed and I hope that's all. But I don't want to travel to WI. So they referred me to 3 different surgeons. I don't remember all the names. One was in NY, one in Missouri, and the one I'm going to is in San Francisco, Dr Berken. ____________ _________ _________ __ From: kelizrm <kelizrm (DOT) com> Scoliosis Treatment Sent: Sunday, September 13, 2009 12:38:31 PM Subject: Doctors  Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi, , I met with Dr. Rand prior to my surgery that was performed by somebody else.  Dr. Rand was rude to me and hardly personable. Go in with a smile, and it may make a difference. I was in pain, had a resp infection at the time, and boy. Not what he wanted to see. He told me he wouldn't touch me 'with a ten foot pole.' ha. He didn't know me and didn't care to hear what I had to say. I'm a woman with lots of inner strength....  Fyfer From: kelizrm <kelizrm@...> Subject: Re: Doctors Scoliosis Treatment Date: Wednesday, September 16, 2009, 11:54 PM  Thanks to all who have replied thus far...I guess since Boachie has lousy staff/hospital care, that rules him out. So I will pursue both Rand and Bridwell...I think. Thanks. Quote Link to comment Share on other sites More sharing options...
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