Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Dear , May I make another suggestion? I think you have Charcot-Marie Tooth Disease. It's VERY often misdiagnosed. You have all the signs. If you have a good doctor, as him humbly, " Well... I was wondering... could I have CMT? " If he IS a good doctor, he will look into it, refer you for neurological testing and won't make you feel like a hypocondriac. If he does, please get a second opinion. Fyfer From: Randie Meyer <taknitlite (DOT) com> Subject: Re: Doctors Scoliosis Treatment Date: Monday, September 14, 2009, 4:01 AM I will again recommend Dr. Tribus in Madison WI. He's talented and a good listener. He's conservative in that he does the least amount of surgery possible. This isn't necessarily the best way, if you end up having more surgeries, but it would be great if you end up not needing to be fused top to bottom, front and back, as some surgeons believe. There is also a place in Texes called Baylor Institute. They don't take Medicare. They referred me to three different surgeons for my next surgery, which I hope will be minor. I need a screw removed and I hope that's all. But I don't want to travel to WI. So they referred me to 3 different surgeons. I don't remember all the names. One was in NY, one in Missouri, and the one I'm going to is in San Francisco, Dr Berken. ____________ _________ _________ __ From: kelizrm <kelizrm (DOT) com> Scoliosis Treatment Sent: Sunday, September 13, 2009 12:38:31 PM Subject: Doctors Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 I have no insight for you but just wanted to say I am sorry for all you have gone through and my heart goes out to you! From: Randie Meyer <taknitlite (DOT) com> Subject: Re: Doctors Scoliosis Treatment Date: Monday, September 14, 2009, 4:01 AM I will again recommend Dr. Tribus in Madison WI. He's talented and a good listener. He's conservative in that he does the least amount of surgery possible. This isn't necessarily the best way, if you end up having more surgeries, but it would be great if you end up not needing to be fused top to bottom, front and back, as some surgeons believe. There is also a place in Texes called Baylor Institute. They don't take Medicare. They referred me to three different surgeons for my next surgery, which I hope will be minor. I need a screw removed and I hope that's all. But I don't want to travel to WI. So they referred me to 3 different surgeons. I don't remember all the names. One was in NY, one in Missouri, and the one I'm going to is in San Francisco, Dr Berken. ____________ _________ _________ __ From: kelizrm <kelizrm (DOT) com> Scoliosis Treatment Sent: Sunday, September 13, 2009 12:38:31 PM Subject: Doctors Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 The doctor/patient dynamic is influenced by individual personalities; what's going on in our lives at the time, how we feel (and our level of desperation), etc. Out of the 4 or so people I know who've used Dr. Rand for complicated initial or revision surgeries, I've never heard anyone call him rude. That doesn't mean you don't feel he was towards you, Fyfer. Same case with my surgeon: I'm familiar with maybe 10 of his other patients, and they all love him. There's one woman I know who went for a consult with him (with no intention of having surgery - nor did he advise it) and swears he's uncaring: Coincidentally, she had been having Shelakov manage her meds, and was irate because Hanson wouldn't take over her med mgmt with the same drugs). Most reputable doctors won't on a first visit, but that doesn't change the fact she felt he was indifferent to her pain. My perception of him, however, is he is very understanding of pain. In fact, he was the first doctors in my life (and I was diagnosed with JIS at 10 - in horrible pain before I was even braced) to tell me " I know scoliosis can definitely cause great pain. " I can't even begin to tell you how it felt to have someone believe I wasn't imagining it. We're all different, for sure. Kim, I'll get you that list of previous patients, and you'll just have to make your own decision. Regards, Pam -- Very proud Marine Mom of Cpl. Jett, 3rd generation USMC VMGR-152 Marine of the Quarter (Q2/09), promoted by MAG-40 Meritorious Board (06/09) VMGR-152 (KC-130J Avionics) Futenma, Okinawa Currently deployed to southern Afghanistan From: kelizrm <kelizrm (DOT) com> Subject: Re: Doctors Scoliosis Treatment Date: Wednesday, September 16, 2009, 11:54 PM Thanks to all who have replied thus far...I guess since Boachie has lousy staff/hospital care, that rules him out. So I will pursue both Rand and Bridwell...I think. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 That is so terrible. I feel so bad that this happened. Do you believe Baylor pushing you to work when you were in pain was what led to this? How do you feel about the Baylor clinic? I ask because, I'm not going there but they gave me a referrel to UCSF orthepedic clinic. It's in San Fran. Dr. Berven. I'm going next week, and tho I don't have it as bad as you, I do understand being worn down from pain. My understanding is my liliac screw was put through my nerve 2 years ago, and I'm getting ready to have it removed. I didn't want to go back to the one who put the screw in, even tho he came highly recommended. It's so hard to make these decisions when we have to travel and go through all sorts of expenses before we know whether we like the new surgeon. Then, even if we think it'll all be good, it isn't, necessarily. I hope you can find someone to help you. I haven't heard of that Dr. before. Where is he located? By chance in San Fran? ________________________________ From: Sara Dolan <mollymol6@...> Scoliosis Treatment Sent: Sunday, September 20, 2009 4:59:18 AM Subject: Re: Doctors I have no insight for you but just wanted to say I am sorry for all you have gone through and my heart goes out to you! From: Randie Meyer <taknitlite@ . com> Subject: Re: Doctors Scoliosis Treatment Date: Monday, September 14, 2009, 4:01 AM I will again recommend Dr. Tribus in Madison WI. He's talented and a good listener. He's conservative in that he does the least amount of surgery possible. This isn't necessarily the best way, if you end up having more surgeries, but it would be great if you end up not needing to be fused top to bottom, front and back, as some surgeons believe. There is also a place in Texes called Baylor Institute. They don't take Medicare. They referred me to three different surgeons for my next surgery, which I hope will be minor. I need a screw removed and I hope that's all. But I don't want to travel to WI. So they referred me to 3 different surgeons. I don't remember all the names. One was in NY, one in Missouri, and the one I'm going to is in San Francisco, Dr Berken. ____________ _________ _________ __ From: kelizrm <kelizrm (DOT) com> Scoliosis Treatment Sent: Sunday, September 13, 2009 12:38:31 PM Subject: Doctors Hi all, I am considering getting surgical opinions again. I still cannot work...or not much. And money would be handy. (yes, that was sarcastic) My surgeon on the last two revisions was Dr. Francis Denis at the Twin Cities Spine Center in Minneapolis. Even tho I live in the SE, I did a lot of research before my first revision in 2000 and decided he was " the best " . Now, I am not sure. I didn't have a bad outcome, but my fusion failed once (I don't think it was his fault), and I am again in a good bit of pain....or at least chronic lying down to avoid pain. I don't want to be this way. I just turned 50, but I am angry bc I don't have the quality of life of my peers. I have no energy, I hurt, repeat. Any suggestions re surgeons? Dr. Denis rec'd Dr. Burkus in Columbus, GA and he is the one that removed my hardware last August. I just don't know if he is really good... and I know their hospital care was HORRIBLE. Does anyone know anything about Dr. Horton at Emory in Atlanta? I know a few ppl who have used him w good results. I don't care where I go, I just want to feel better. Thx, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Dr Lauerman, Chief of Spinal Surgery, at town University Hospital in Washington DC is very personable and so is his staff. ?He specializes in scoliosis, too. ?If you want more info, just let me know. Re: Doctors Scoliosis Treatment Date: Wednesday, September 16, 2009, 11:54 PM ? Thanks to all who have replied thus far...I guess since Boachie has lousy staff/hospital care, that rules him out. So I will pursue both Rand and Bridwell...I think. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 My allergist is also a pulmonary specialist which helps. I was pretty much told by my ENT that I would only need to see him if surgery is needed so I dont go to him anymore. My allergist prescribes all meds for my samters issue (zyflo, advair, budesonide), I see him maybe twice a year for blood work up because of the zyflo. I have found the right mix of meds to give me a better quality of life. I have had samters for about 14 years and only in the past four years have I found the right doctor. I used to just count the days when I could take prednisone. Now I may need a quick burst once a year if I come down with bronchitus. Luckily my allergist gives me an emergency supply of prednisone in case I do have problems, to hold me over till I can get in to see the doctor. (TX) From: Christy <whitech@...>Subject: Doctorssamters Date: Friday, October 2, 2009, 10:27 PM How often do you visit an allergist?How often do you visit an ENT?Are there other doctors involved in your treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Deronda, I dont think DrRand ever spoke in those kinds of terms to me. I would say he was very circumspect in actually promising anything, although I believe he was clear that he would not do surgery unless he felt that it would improve my life to enough of a degree that the benefits outweighed the risks. That seems fair enough to me. I would say that is really what you are getting at...the risk/reward ratio? So dont forget to ask yourself if you had the same pain levels but upright posture, or in your terms, 0% change in pain and 100% change in balance, how would you feel? Of course...most of us do end up with reduction in pain...but not everyone does. Very few are pain free following revision surgery, so I would not use that as a benchmark. Most of our membership when asked have said that they are very satisfied with their results and would likely do it again, regardless of their post op pain status. There is research on this point...if I get a chance I will look for it. I believe it came from Bridwell or Lenke. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Hi Deronda, I looked at your post from a week or two ago. The first things that came to mind are the questions below. Did you get an actual diagnosis from your doctor? What would he/she be correcting by extending your fusion, but not doing osteotemies? I assume that means that you do not have flatback -- and that is why osteotemies are not necessary? Or is there another reason? And if he/she does not know if what he proposes should help relieve the pain or not, what would he be correcting exactly? I do not know how much info you have or when was your visit, but if you have questions, you may want to email or call with a list of questions and he hopefully will answer. You may want to explicitly ask about your relieving pain concerns/questions and see what he says. In my case, I can email my doctor's nurse with questions and she gets back to me with the Doc's answers within a few days, which is pretty nice. So I hope that most doctors do the same. I hope that this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Cam & , Cam pain is now my number one concern, and if I also was straighter that would be a bonus. This summer is when I started having pain more often, now I am in pain from the time I awake before I even get out of bed, until I go to sleep. Laying down doesn't help. I wonder if an MRI of the upper portion would show anything, many here have a mylegram, what is the reason for that testing? , the doctor told me my lumbar area has shifted. I do not have flatback or any low back pain. My pain is around the top of the fusion and around the scapula area on the concave side. When I went for my appointment he did not address why I could be having pain in that area or if he thought surgery would help the pain. I think I will make a call and talk to the nurse in regard to these questions. Have you had revision yet, if so where did you have it done? Deronda MI From: Deronda <derondaharmon@...>Subject: [ ] doctors Date: Thursday, November 5, 2009, 6:05 PM When most revision patients go for their 1st consultation does the doctor usually give you any percentages that the surgery will help the pain? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Hi Deronda, I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF. I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation! I'm sorry that you are in pain and I hope that you get some answers and some relief. I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi , I looked at the photo section and did see your picture. How long have you been leaning forward? Deronda From: S. <jessicasny1234@...>Subject: [ ] Re: doctors Date: Saturday, November 7, 2009, 1:03 AM Hi Deronda,I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF.I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation!I'm sorry that you are in pain and I hope that you get some answers and some relief.I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi Deronda, I have xrays from the year 2000 where my lateral view looks straight all the way. So, by looking at photos and just my memory of when I had some problems, I think it may have slowly started leaning forward within the last 5 or 6 years. But, it went over " the tipping point " in late Fall 2008 when I started to really have bad pain episodes and noticing changes (but not being able to figure out what was wrong at the time). > > > From: S. <jessicasny1234@...> > Subject: [ ] Re: doctors > > Date: Saturday, November 7, 2009, 1:03 AM > > > Â > > > > > Hi Deronda, > > I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF. > > I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation! > > I'm sorry that you are in pain and I hope that you get some answers and some relief. > > I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 , I have really appreciated your email posts and your photos. You indicate that you have pain episodes. Could you explain these--how often, where you hurt, etc. I think I have a similar situation. Thanks, Tyra From: S. <jessicasny1234@...> Sent: Sun, November 8, 2009 10:13:12 PMSubject: [ ] Re: doctors Hi Deronda,I have xrays from the year 2000 where my lateral view looks straight all the way. So, by looking at photos and just my memory of when I had some problems, I think it may have slowly started leaning forward within the last 5 or 6 years. But, it went over "the tipping point" in late Fall 2008 when I started to really have bad pain episodes and noticing changes (but not being able to figure out what was wrong at the time).> > > From: S. <jessicasny1234@ ...>> Subject: [ ] Re: doctors> > Date: Saturday, November 7, 2009, 1:03 AM> > > Â > > > > > Hi Deronda,> > I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF.> > I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation!> > I'm sorry that you are in pain and I hope that you get some answers and some relief.> > I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi , I'm glad you found this group and figured out what was going on with you back. I am amazed at the before and after picture of the people with flatback, they really can do a lot to help you. Just think it won't be long and you will be posting that picture after surgery. Deronda From: Tyra Bevers <tyrabelle_2000@...>Subject: Re: [ ] Re: doctors Date: Monday, November 9, 2009, 2:10 PM , I have really appreciated your email posts and your photos. You indicate that you have pain episodes. Could you explain these--how often, where you hurt, etc. I think I have a similar situation. Thanks, Tyra From: S. <jessicasny1234@ gmail.com> Sent: Sun, November 8, 2009 10:13:12 PMSubject: [ ] Re: doctors Hi Deronda,I have xrays from the year 2000 where my lateral view looks straight all the way. So, by looking at photos and just my memory of when I had some problems, I think it may have slowly started leaning forward within the last 5 or 6 years. But, it went over "the tipping point" in late Fall 2008 when I started to really have bad pain episodes and noticing changes (but not being able to figure out what was wrong at the time)..> > > From: S. <jessicasny1234@ ...>> Subject: [ ] Re: doctors> > Date: Saturday, November 7, 2009, 1:03 AM> > > Â > > > > > Hi Deronda,> > I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF.> > I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation!> > I'm sorry that you are in pain and I hope that you get some answers and some relief.> > I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Deronda, Deronda, thanks! And yes!, we are all very grateful to have found this group! > > > > > > From: S. <jessicasny1234@ ...> > > Subject: [ ] Re: doctors > > > > Date: Saturday, November 7, 2009, 1:03 AM > > > > > >  > > > > > > > > > > Hi Deronda, > > > > I'm still pre-revision, but scheduled for revision in January. I'm in the SF Bay Area -- I see Dr. Hu at UCSF. > > > > I do encourage you to have a list of questions ready (short and to the point), and see how much info you can get over the phone or email. There are many things one thinks of after that first consultation. And it still happens even after the second consultation! > > > > I'm sorry that you are in pain and I hope that you get some answers and some relief. > > > > I'm in lucky that I'm not in pain. I get pain episodes that come and go (in my lower back). I have based my decision to do the revision mainly because of sagittal imbalance -- I'm tipping forward quite a bit and I'm only 43 (I've posted photos under S. in the photos link). I know what is to come my way. I do get doubts now and then, but then something happens (either a pain, or I just really feel how I'm standing/walking) and I'm back to being sure that it is the right decision. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Emma wrote: I was talking to my gp about the candida and she said that i would have high temperature and also it would be in my stools if i had systematic candida, i tried to explain what i read on your website but she said all the symptoms i have would not be caused by candida. Can you give me any advice on how i can try and make her understand. Thank you Emma ++++ Hi Emma, I hope that you do mind me jumping here, but my doctor told me the exact same thing, and I had the blood test to prove that I had rampid candida in my bloodstream. It was very high, and she said that this had nothing to do my symptoms. I gave up trying to make her understand, and I am trying to just get better on my own. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Emma, I meant to say 'I hope that you do not mind', sorry for the typing error. Missy I was talking to my gp about the candida and she said that i would have high temperature and also it would be in my stools if i had systematic candida, i tried to explain what i read on your website but she said all the symptoms i have would not be caused by candida. Can you give me any advice on how i can try and make her understand. Thank you Emma   ++++ Hi Emma, I hope that you do mind me jumping here, but my doctor told me the exact same thing, and I had the blood test to prove that I had rampid candida in my bloodstream. It was very high, and she said that this had nothing to do my symptoms. I gave up trying to make her understand, and I am trying to just get better on my own. Missy  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 My dr kicked me out of his practice when I went to another dr for a second opinion. At that time we did not know what was wrong. All he would do is say I hope you feel better. I had problems for 10 years. You think he would of figured it out by then. I am thankful to know what is wrong. However this is a battle at least for me. But other drs told me it was psychological, emotional, etc... that it was all in my head. It was really tough to keep searching to find out what was wrong with me. At least I know I am not crazy. I have a new dr and I love him! > I was talking to my gp about the candida and she said that i would have high temperature and also it would be in my stools if i had systematic candida, i tried to explain what i read on your website but she said all the symptoms i have would not be caused by candida. > > Can you give me any advice on how i can try and make her understand. > > Thank you > Emma > > > ++++ Hi Emma, I hope that you do mind me jumping here, but my doctor told me the exact same thing, and I had the blood test to prove that I had rampid candida in my bloodstream. It was very high, and she said that this had nothing to do my symptoms. > I gave up trying to make her understand, and I am trying to just get better on my own. > Missy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 I suggest getting a new doctor. I finally found one that understands candida, leaky gut, and is supporting us even though she doesn't get all the in's and out's of our diet plan (she is vegetarian personally). She actually ordered a fecal test for our son to test for candida strains...paid for by insurance! There are doctors and pharmacies out there who get it...they are just few and far between. Maybe there is a homeopath in your area who could recommend a physician who has a more " holistic " approach. Or, you could look up " holistic " medicine for your area and see who pops up. You never know who you will find. Also, you might try your local Weston A Price Foundation group, I bet they would have a referral for you. I know a lot of people in my local group use the same office I do now. Word gets around. Go get um tiger! Anne G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 > > Hi bee > > I was talking to my gp about the candida and she said that i would have high temperature and also it would be in my stools if i had systematic candida, i tried to explain what i read on your website but she said all the symptoms i have would not be caused by candida. > > Can you give me any advice on how i can try and make her understand. +++Hi Emma. It may be impossible to make your doctor understand since their training is based upon so many false theories and ideas, and they get only 5-8 hours training on nutrition. They are taught only on how to use drugs and surgery to manipulate our bodies, and don't believe our bodies can heal themselves. So you'd be UP against an uphill losing battle. It is rare for anyone to have systemic candida. If you did you'd be in intensive care, since it happens when people are extremely ill. Candida in most people is only overgrowing in mucus membranes, including mouth, nose, sinuses, eyes, ears, digestive system, bladder, and reproductive organs. I suggest you get another doctor. All the best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 > > I suggest getting a new doctor. I finally found one that understands candida, leaky gut, and is supporting us even though she doesn't get all the in's and out's of our diet plan (she is vegetarian personally). +++Hi Anne. Unfortunately the leaky gut theory is totally false: http://www.healingnaturallybybee.com/articles/dig12.php Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 >> +++Hi Anne. Unfortunately the leaky gut theory is totally false: > http://www.healingnaturallybybee.com/articles/dig12.php > > Bee This is interesting. The same doctor who diagnosed my Candida (that was how I found out about it and began to do research which brought me here) also said I had a leaky gut due to food allergies and antibiotic use. Hmmmmm so I've been trying to heal my leaky gut under the assumption that food was leaking through holes into my bloodstream, and it seemed to make sense. This is the first I've heard of the falseness of the theory. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Dr Thierry Hertoghe is based in Belgium - and yes, some of our members have been over there to see him. He is not cheap. There are one or two docs. with a similar approach in the UK - the best that I know is Dr Peatfield who trained with Thierry's Dad (Dr Jacques Hertoghe) Luv - Sheila Has anyone seen Dr Hertoghe for hormone problems? Or is there anyone who has a similar approach in the UK, especially -but not limited to - the Midlands? Thanks Chris No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.436 / Virus Database: 271.1.1/2751 - Release Date: 03/17/10 19:33:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 ne, the owner of the International Hormone Society forum has the details of a doctor who is trained by Dr H and who works in the UK privately. I have never heard of anyone who has seen this doctor but ne thinks he is good as she goes to a lot of his lectures that he gives with Dr H. You would need to join the forum: http://intlhormonesociety.org/forum/ You need to send ne a private message to ask for the contact details as you can't currently post messages, as the forum has been temporarily locked due to a spam attack. > > Hi > > Has anyone seen Dr Hertoghe for hormone problems? Or is there anyone who has a similar approach in the UK, especially -but not limited to - the Midlands? > > Thanks > > Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Thanks Sheila I have seen Dr P and he is very good, am I mistaken though in thinking that he does not test or address other hormone deficiencies? I have been reading Dr Hertoghe's book (the younger one) and i have symptoms of growth hormone, testosterone and dhea deficiency as well as possible thyroid issues. Can you email me the names of any drs who test these please if Dr Peatfield himself doesn't? Does Dr Theodora have a similar approach to Dr Hertoghe? Thanks Chris > > Dr Thierry Hertoghe is based in Belgium - and yes, some of our members > have been over there to see him. He is not cheap. There are one or two docs. Quote Link to comment Share on other sites More sharing options...
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