Chronic Fatigue

[Guest guest]

I would think because doctors only prescribe pharmaceutical medicines not 'supplements'. Presumably if a doctor tells someone to take say CoQ10 (which is fairly expensive taken in the correct dose), they will ask for it to be put on a prescription. It cannot be bought in a chemist only in a health food shop.

Lilian

Absolutely - but WHY oh WHY don't doctors know this? It just is so much common sense!

[Guest guest]

Dr's are not allowed to prescribe any supplement as far as I am aware Lilian, nor are they supposed to recommend them. I once went to my GP and asked if he would look at a couple of leaflets regarding 2 supplements that I was thinking would do me a lot of good in respect of my high blood pressure and high cholesterol, I do believe that it was MSM and CoQ10 that I was asking about. He almost went mad and threw my prescription at me without looking at the leaflets and said, this is what I know see the nurse for your bp in 3 months, end of consultation. When telling my sister about the experience, she said that although he could have put it better, it was forbidden for them to recommend any supplement as they are not insured for anything that could go wrong. Whilst we are all sensible adults on this group who work hard at getting our lives & health back, some people will take these supplements to extreme and cause themselves further problems.

Luv nne

I would think because doctors only prescribe pharmaceutical medicines not 'supplements'. Presumably if a doctor tells someone to take say CoQ10 (which is fairly expensive taken in the correct dose), they will ask for it to be put on a prescription. It cannot be bought in a chemist only in a health food shop.

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[Guest guest]

I went to an arthritis specialist who said I should take Glucosamine, I

asked if he would prescribe it and he said he couldn't as it is a food

supplement not a medication. I then asked him how I was supposed to

pay for it, he laughed and said it was only £20 a month!! Only!! Thats

£5 a week mate I said, I'm living on benefits because I'm ill how do I

afford it then?

The cost of glucosamine has come down a lot now, this was just after I

was diagnosed with Hyperthyroid, about 6 1/2 years ago and the stuff

was very expensive!!

[Guest guest]

Hi Lilian,

You do have a point, but

docs are keen to recommend a healthy diet which is much more expensive than

junk food. I don’t think anyone would expect that to be prescribed. It’s

just that nowadays we are more aware of the link between food and medicine

and lines are blurred between food and medicine.

I would think because doctors only prescribe pharmaceutical

medicines not 'supplements'. Presumably if a doctor

tells someone to take say CoQ10 (which is fairly expensive taken in the correct

dose), they will ask for it to be put on a prescription. It cannot

be bought in a chemist only in a health food shop.

Lilian

[Guest guest]

Hi,

Just

another example of the patchiness of services. My OH has arthritis ans when he

went to see the doc he was recommended to use glucosamine and CLA oils.

Hey ho docs are all different!

Re:

Re: Chronic Fatigue

Dr's are not allowed to

prescribe any supplement as far as I am aware Lilian, nor are they supposed to

recommend them. I once went to my GP and asked if he would look at a

couple of leaflets regarding 2 supplements that I was thinking would do me a

lot of good in respect of my high blood pressure and high cholesterol, I do

believe that it was MSM and CoQ10 that I was asking about. He almost went

mad and threw my prescription at me without looking at the leaflets and said,

this is what I know see the nurse for your bp in 3 months, end of consultation.

Luv nne

put

on a prescription. It cannot be bought in a chemist only in a

health food shop.

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[Guest guest]

On December 21, 2010 04:37:18 pm Haven DeLay wrote:

> Things like Acetyl-L-Carnitine, Co Q 10, fish oil, and perhaps even

> Creatine could maybe help will your energy level, but get your

> thyroid evaluated first.  I suggest a DO or other holistic

> practitioner.  I never could get an MD to listen very well, but a DO

> saved me.

What is a DO Is this a Naturopath? Are they able to diagnose thyroid

conditions?

Can you direct me to an article that explains why the blood tests

Doctors do are not sufficient?

[Guest guest]

http://thyroid.about.com/od/gettestedanddiagnosed/a/salivatesting.htm

This is just one, but there are many other articles. You can Google it as

easily as I. There are also published papers regarding the unreliability of

blood testing alone if you do a search for them. Prior to this blood test,

doctors relied on their patients symptoms and then tried a low dose and

worked up to see if they felt better, and when doctors did this, people felt

better and didn't have to run around from doctor to doctor only to be told

again and again, " But you're in range! " Every human is unique! Also listen

to what your patient is telling you! How hard can that be???

Many doctors --most are taught that when they hear hoof beats to only think

horses, and because of this teaching, diagnosing correctly sooner is lost.

A dear friend went from doctor to doctor for a year and they kept thinking

" horses " rather than consider the possibility of a zebra. Then they

diagnosed her with Cat Scratch Fever and started treating her for that.

Then while in the shower one morning, she felt a lump in her neck. By the

time she was correctly diagnosed, she had stage three Hodgkin's! She had a

lemon sized tumor also near her heart. This was many years ago. She was

newly married and only twenty-four years old. Standard treatment would have

left her sterile.

She opted for MD and a new trial that would give her a chance at

motherhood if successful. She is alive today and has two beautiful

children. Hats off to MD ! But just what if she had been diagnosed

correctly shortly after seeking medical help? Why did it have to take well

over a year?

I went from doctor to doctor. My hair was falling out. I had NO energy. I

couldn't lose weight and was gaining. I was freezing cold all the time! My

friends laughed at me because it was May in Texas, and I would still wear my

down jacket outside! It was eighty degrees but I need a down jacket!

My skin was so dry that my right arm looked like I had fell and skinned it,

and the skin was peeling off, and still they would say, " But you're in

range, " perhaps you are depressed. Here take this Prozac. NOT!

Doctors are prescribing psychotropics as their catch all for anything they

can't figure out. What a disgrace.

A DO is a doctor of osteopathic medicine. They go through the same training

but it includes chiropractics, as well. I have always fared better

medically by going to a DO. I find they LISTEN to their patients better.

They tend to look at things more holistically, I think, and are better at

including the patient in their medical treatment. In short, I just think

they are better doctors overall, thought the mainstream tend to steer the

public into looking down on them. I say let the patients decide. Try one

out and see.

I got on Armour thyroid, and it was one of the best things that ever

happened to me. It was reformulated and many say it doesn't work as well as

it used to and many are opting for natural thyroid hormone replacement.

There is a group dedicated to this. I would like to move towards as

natural as possible.

Find a doctor who will do saliva testing and listen to your complaints. You

also need iodine deficiency testing, which you can buy the test on-line for

ninety dollars and sent it off. In office runs about 150 and insurance

doesn't cover it. Since going on iodine, my fibrocystic breast disease went

away, and after having three biopsies from 27 - 45, I have not had to have

any more since and have better mammograms than I did in my thirties. Iodine

is vital to breast health. (Men can get breast cancer, too).

[Guest guest]

Dear Joe,

Why not look into ldn (low dose naltrexone) which is excellent for immune

system problems such as chronic fatigue.

It is a very small dose of the drug naltrexone. You can find more

information at www.ldninfo.org and www.gazorpa.com and from the

low dose naltrexone email list.

From what I've read, the raw vegan diet is very helpful for fibromyalgia (as

well as other immune system problems) so should be a help. It is a very

high energy diet (an understatement).

I'm sorry You've had such a rough time. There is help though.

Sincerely,

Francine

p.s. If You have any questions, just ask (sunrose101@... since I don't

always have time to read the digest. Again, You can be helped.

[Guest guest]

My chronic fatigue was related to an undiagnosed thyroid condition. I also

had chronic candida problems, sleep problems and adrenal exhaustion. I

eventually traced all this back to heavy metal poisoning... I had several

fillings as a teen.They started breaking down in my early 30s so I had more

exposure as dentists just dug them out without a dam (I remember swallowing

some).

Luckily, I asked for composites to be put back in and took the last of the

metal out a few years ago. If you have had a lot of shots (flu,

vaccinations and etc.) and metal fillings, it might be worth looking into doing

a

trial round of chelation to test yourself for metals. Make sure you're on a

few good anti-oxidants first (Vitamin C - at least 4 grams and some vitamin

E, some minerals, essential fatty acids and probiotics) and have the

mercury/metal fillings out before using chelators (even for a test).

Some anti-oxidants as well as thyroid support might help you feel better

soon. Meanwhile, read as much as you can to digest the chelating protocol

you read about here. It's the one that seems to have the least amount of

side effects while maximizing benefits. I use ALA (cheap) and DMSA (expensive

but helps with unpleasant side efffects) every 3 hours (round the close

for 3 days and nights) and am on my 45th round or so. It's been slow,

tedious progress but health concerns are slowly correcting themselves. I

probably

have another 50-75 rounds to go.

Best wishes, /Rosegvr

[Guest guest]

I think you are right. I wish I could get my amalgams out and chelate, but

not easy with our kiddos to always have the money to do what we want.

Someday I hope! I get brain fog, so I know I must be toxic.

BTW: Happy Holidays to all of you! You guys rock!!!

[Guest guest]

However you can, make it a priority Haven. I think when the entire household

detoxes, everyone is much healthier. I believe people who are detoxing can be

contagious, at least Candida is very much so.

>

> I think you are right. I wish I could get my amalgams out and chelate, but

> not easy with our kiddos to always have the money to do what we want.

> Someday I hope! I get brain fog, so I know I must be toxic.

>

> BTW: Happy Holidays to all of you! You guys rock!!!

>

>

>

[Guest guest]

We eventually concluded that in order for any one of us (especially the sickest

of us) to get well, we all had to get well.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

> >

> > I think you are right. I wish I could get my amalgams out and chelate, but

> > not easy with our kiddos to always have the money to do what we want.

> > Someday I hope! I get brain fog, so I know I must be toxic.

> >

> > BTW: Happy Holidays to all of you! You guys rock!!!

> >

> >

> >

[Guest guest]

How do people afford to get them out? I am angry that are dentist knew how

I felt about amalgams, and then I found out when my husbadn went to him, he

put tons of amalgams in my husband's mouth without even informing him or

giving him a choice! I just have about four left in my mouth, but this

idiot dentist put about twelve in my husband's. What does it run to get

them safely removed?

I am worried as my husband was always very healthy, but I've seen him grow

more tired and he had debilitating back problems last week, and now we have

found out his PSA is high again and though they put him on a round of

antibiotics, it is still high, so now we have to find a urologist. Of

course, I am really scared about this as my father had prostate cancer.

[Guest guest]

On December 22, 2010 04:46:16 pm you wrote:

> From: Elaine <lenagur@...>

> Joe S <bindery@...>

> Date: 22/12/10 04:46 pm

>  

> have you rulled-out Lyme Disease? itsounds like you have one.

>

> www.drcharlescrist.com/borreliosis.htm

>

> elaine

From reading the website it looks like Lyme Disease is caused by ticks.

I don't remember ever being bit by a tick. Are there other ways to

contract this disease?

I am seing a doctor and she did a 24 Hour Urine Test. She says my

thrroid and adrenals are in the normal range. I read the article on

saliva testing. Would the urine test be as accurate as this?

I know the blood tests aren't enough. Would this be the same as the

Urine Test?

[Guest guest]

No, but the deer tick usually bites when its between the larval and adult stage

and is about the size of a poppy seed, so it could be possible that you were

bitten and didnt realize it.

Karla

> > From: Elaine <lenagur@...>

> > Joe S <bindery@...>

> > Date: 22/12/10 04:46 pm

> >  

> > have you rulled-out Lyme Disease? itsounds like you have one.

> >

> > www.drcharlescrist.com/borreliosis.htm

> >

> > elaine

>

> From reading the website it looks like Lyme Disease is caused by ticks.

> I don't remember ever being bit by a tick. Are there other ways to

> contract this disease?

>

>

> I am seing a doctor and she did a 24 Hour Urine Test. She says my

> thrroid and adrenals are in the normal range. I read the article on

> saliva testing. Would the urine test be as accurate as this?

> I know the blood tests aren't enough. Would this be the same as the

> Urine Test?

>

[Guest guest]

Thanks for the advice from everyone. I have looked into a few

things. I hope these will be helpful.

I have been getting 24 hour urine tests for my thyroid and

my doctor says these show normal ranges. From what I understand

tests cannot be conclusive (or is a saliva test better?), so I

asked the doctor I have been seeing to give me something to try

and she has prescribed Levothyroxine Sodium 0.05mg (Synthroid

0.05mg). Is this a good choice? If there is something wrong with

my thyroid will this improve things and let me know if the

thyroid was the problem?

She has also given me a 24 hour urine test for my adrenals and

she said she would look into a tests for Lyme disease.

Thanks