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In a message dated 4/21/01 12:19:10 AM Eastern Daylight Time,

schauss@... writes:

<< You should

also make sure that you are taking adequate co-factors to make sure you

don't compound any metabolic blockades.

>>

Such as mulit vitamins and antioxidants?

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In a message dated 4/21/01 8:42:03 AM Eastern Daylight Time,

fcunsrial1@... writes:

<<

A more important question, however, has to do with the nature of the aminos

you want to take and their effect as precursors of other

aminos, neurotransmitters, etc. >>

,

I am looking at L-Tyrosine as well as turine for seeing if it can help in

seizure control.

Here is what she takes now. Multi Vitamin, Life's Greens with probiotics,

DHA, DMG, Sesame Seed oil, Flax oil, B-Complex (50's), Beta Carotene, and as

much whole foods and juices as possible. I may be forgetting something here.

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Hi ,

I am sure you know why, (how and when) you are using each of those supplements,

so I won't get there.

We use Tyrosine as a mild antidepressant and I don't know of any study or

clinical work in which Tyrosine is used for epilepsy. If you know

something about it pls let me know. Taurine is an inhibitory amino and as such

is used for epilepsy with mixed results. The claim is made

that it does not work well because of its poor absorption. We heard that the

" pushing " of the taurine through the BBB is potentiated with a

special blend of minerals and we are trying the Peltier water, following a

protocol from Mark Schuss (I hope is the correct spelling) and

we intend to follow through for three months before we can say anything about

it. But even after all the oral taurine is found in the brain

tissues, does it work for all types of seizures? Nobody knows. If seizures are

caused by the overstimulation of glutamic and aspartic acids

(excitatory aminos) it is hoped that the presence of extra inhibitory Taurine

may compensate. But nobody really knows. There is no question

in my mind that taking taurine is the proper course of action in my son's case

because twice (many years apart) his blood work showed low

taurine levels. However we have noticed just a marginal improvement and little

elevation of the blood values with the supplementation.

We'll check them again using the Peltier minerals.

I'd mention that Braverman and the Brain Institute used a concomitant

therapy in one adult patient 4 gr of Taurine, 100 mg of

Manganese and 60 mg of Zinc.

My son weights 180 pounds and he is taking 3x1 gr of Taurine a day in an empty

stomach with 4 oz of Peltier diluted water.

Finally I think that if your child is processing proteins well, it is not

necessary to supplement with a mixture of aminos. Digestive

enzymes and proper stomach acidity always guarantees proper breakdown. It is

true that mixing alkaline foods with protein will slow down

this process but good nutrition tells us not to mix in the same meals simple

carbs with proteins.This applies specially in your case with

so many fruit juices. Are you diluting them 50/50 with water?

Warm regards

FCR

Dillr@... wrote:

> In a message dated 4/21/01 8:42:03 AM Eastern Daylight Time,

> fcunsrial1@... writes:

>

> <<

> A more important question, however, has to do with the nature of the aminos

> you want to take and their effect as precursors of other

> aminos, neurotransmitters, etc. >>

>

> ,

>

> I am looking at L-Tyrosine as well as turine for seeing if it can help in

> seizure control.

> Here is what she takes now. Multi Vitamin, Life's Greens with probiotics,

> DHA, DMG, Sesame Seed oil, Flax oil, B-Complex (50's), Beta Carotene, and as

> much whole foods and juices as possible. I may be forgetting something here.

>

>

>

> _

>

>

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In a message dated 4/22/01 1:59:03 PM Eastern Daylight Time,

schauss@... writes:

<<

Some of the co-factors and precursors include B6 (P5P), magnesium,

manganese, zinc, B12, folate and electrolytes. >>

Instead of using B6 P5P, why not use the B-50's with all the B's balanced?

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In a message dated 4/22/01 5:53:09 AM Eastern Daylight Time,

fcunsrial1@... writes:

<<

We use Tyrosine as a mild antidepressant and I don't know of any study or

clinical work in which Tyrosine is used for epilepsy. If you know

something about it pls let me know. >>

,

All I know is it is recommended as one of the top three supplements to give

for epilepsy in the book .... Prescription for Nutritional Healing. This is

the new revised addition. I think it recommend giving it with Turine.

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,

Not sure as to the effectiveness or research into the use of tyrosine in

epilepsy. Still, it's not that far fetched that it could have some have an

effect as tyrosine is a precursor to DOPA - Dopamine - Norepinephrine -

Epinephrine. The needed cofactor and precursors in this pathway include P5P

(B6), ascorbate, and copper. This may explain why some respond so well to

B6 supplementation.

In health,

Mark Schauss

www.cellmatewellness.com

Re: [ ] amino Acids

> In a message dated 4/21/01 8:42:03 AM Eastern Daylight Time,

> fcunsrial1@... writes:

>

> <<

> A more important question, however, has to do with the nature of the

aminos

> you want to take and their effect as precursors of other

> aminos, neurotransmitters, etc. >>

>

> ,

>

> I am looking at L-Tyrosine as well as turine for seeing if it can help

in

> seizure control.

> Here is what she takes now. Multi Vitamin, Life's Greens with probiotics,

> DHA, DMG, Sesame Seed oil, Flax oil, B-Complex (50's), Beta Carotene, and

as

> much whole foods and juices as possible. I may be forgetting something

here.

>

>

>

> _

>

>

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Some of the co-factors and precursors include B6 (P5P), magnesium,

manganese, zinc, B12, folate and electrolytes.

In health,

Mark Schauss

www.cellmatewellness.com

Re: [ ] amino Acids

> In a message dated 4/21/01 12:19:10 AM Eastern Daylight Time,

> schauss@... writes:

>

> << You should

> also make sure that you are taking adequate co-factors to make sure you

> don't compound any metabolic blockades.

> >>

>

> Such as mulit vitamins and antioxidants?

>

>

>

> _

>

>

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Guest guest

Because sometimes the nutrient deficiencies are specific. Of course, the

proper testing protocols will guide you to the biochemically individualized

answers. The B50 supplement probably won't hurt, will probably help, but

isn't as efficient as finding the exact combination of co-factors needed for

your child. My concept is very much the ideal of Dr. -

" biochemical individuality. "

In health,

Mark Schauss

www.cellmatewellness.com

Re: [ ] amino Acids

> In a message dated 4/22/01 1:59:03 PM Eastern Daylight Time,

> schauss@... writes:

>

> <<

> Some of the co-factors and precursors include B6 (P5P), magnesium,

> manganese, zinc, B12, folate and electrolytes. >>

>

> Instead of using B6 P5P, why not use the B-50's with all the B's balanced?

>

>

>

>

> _

>

>

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Hi ,

I understand the issue of Tyrosine WITH Taurine. It could prevent Taurine from

being wasted in pathways other than those it is directed to.

It is a " helper " to Taurine. It wouldn't do any harm, make sure your child is

not taking any MAO inhibitor drugs (Prozac and et al) at the

same time he takes Tyrosine. Watch also for subtle mood changes. If negative,

reduce the Tyrosine dose. If headaches, also reduce.

Warm regards.

FCR

Dillr@... wrote:

> In a message dated 4/22/01 5:53:09 AM Eastern Daylight Time,

> fcunsrial1@... writes:

>

> <<

> We use Tyrosine as a mild antidepressant and I don't know of any study or

> clinical work in which Tyrosine is used for epilepsy. If you know

> something about it pls let me know. >>

>

> ,

> All I know is it is recommended as one of the top three supplements to give

> for epilepsy in the book .... Prescription for Nutritional Healing. This is

> the new revised addition. I think it recommend giving it with Turine.

>

>

>

>

> _

>

>

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Guest guest

> Here is what she takes now. Multi Vitamin, Life's Greens with probiotics,

> DHA, DMG, Sesame Seed oil, Flax oil, B-Complex (50's), Beta Carotene, and

as

> much whole foods and juices as possible.

Hey ,

Sounds like you are doing quite well on your own with supplements. You

might make sure that the juice doesn't have sugar in it.

a is taking the following for now:

Magnesium Taurate

DMG

Cod Liver Oil

Quantum ph powder

Ferulic Acid

Acidophilus

Enzymes

Have you decided to go for the appt. this week with Dr. J?

Sue

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  • 2 months later...
Guest guest

Hi, Bill,

>Anyway, does anyone know the " source " of the

>amino acid pills you can take (e.g.-chicken, beef)?

>My goal is to find a protein supplement that

>is non casein based, and is as absorbable as

>Immunocal. (tried Seacure, but it doesn't work)

>

>Or should I just take all the aminos in their

>separate pills ? Would they work as well as

>Immunocal ?

I don't know brand names, but am sure that there are amino acid supplements

that have a different source. Many of the cheap ones are from yeast cultures

- these are good if you are not yeast-sensitive. I have seen some from beef

sources too (heart or other organs I expect). These would be an excellent

source as they would be well balanced - better than yeast source.

You could go with separate aa supplements, but that would be expensive and

would take a major effort to balance correctly. You could use the breakdown

of aa.s from a casein supplement to get the right balance, if you are

willing to go to the effort and expense.

This info should be available from manufacturer or on the bottle - all I can

say is, they are out there, just keep looking.

Jerry

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Hi Bill,

Have you checked into Ultimate Meal protein supplement? Their address is

www.ultimatelife.com. It's a vegan source protein powder, but without yeast

or soy, which i'm allergic to. Also free of eggs, whey, dairy..... not

cheap, and needs to be started slow, but I find it's about the only protein

powder I tolerate right now.

Donna in NC

> >Anyway, does anyone know the " source " of the

> >amino acid pills you can take (e.g.-chicken, beef)?

> >My goal is to find a protein supplement that

> >is non casein based, and is as absorbable as

> >Immunocal. (tried Seacure, but it doesn't work)

> >

> >Or should I just take all the aminos in their

> >separate pills ? Would they work as well as

> >Immunocal ?

>

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Guest guest

> I don't know brand names, but am sure that there are amino acid supplements

> that have a different source. Many of the cheap ones are from yeast cultures

> - these are good if you are not yeast-sensitive. I have seen some from beef

> sources too (heart or other organs I expect). These would be an excellent

> source as they would be well balanced - better than yeast source.

>

> You could go with separate aa supplements, but that would be expensive and

> would take a major effort to balance correctly. You could use the breakdown

> of aa.s from a casein supplement to get the right balance, if you are

> willing to go to the effort and expense.

>

> This info should be available from manufacturer or on the bottle - all I can

> say is, they are out there, just keep looking.

Thank you Jerry !

Do you know the company that sells the beef supplement ?

Also, do you know the " source " (i.e. beef, chkn, etc) of

the aa pills ?

Thanks

Bill

=====

__________________________________________________

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> Hi Bill,

> Have you checked into Ultimate Meal protein supplement? Their address is

> www.ultimatelife.com. It's a vegan source protein powder, but without yeast

> or soy, which i'm allergic to. Also free of eggs, whey, dairy..... not

> cheap, and needs to be started slow, but I find it's about the only protein

> powder I tolerate right now.

> Donna in NC

Can it raise glutathione ?

Thanks!

Bill

=====

__________________________________________________

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Hi Bill,

I could not tolerate Ultimate Meal because of the Blue Green Algae in it, but

Dr. Cheney recommended it to me since I am allergic to whey. He said to take

25mg of zinc picolinate and 1/2 teaspoon of Liguid Selenium with it to help with

Glutathione. He stressed it must be liquid Selenium! This is from Nutricology.

Hope this helps,

Rita

Re: amino acids

> Hi Bill,

> Have you checked into Ultimate Meal protein supplement? Their address is

> www.ultimatelife.com. It's a vegan source protein powder, but without yeast

> or soy, which i'm allergic to. Also free of eggs, whey, dairy..... not

> cheap, and needs to be started slow, but I find it's about the only protein

> powder I tolerate right now.

> Donna in NC

Can it raise glutathione ?

Thanks!

Bill

=====

__________________________________________________

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  • 5 months later...

-

Immunesupport.com has one that combines eight of the

essential amino acids at a good price. I've tried it

but prefer to use just the ones that I feel help me

the most (e.g., L-glutamine, L-carnitine). Right now

I am doing an ammonia detox with L-ornithine (I've

colored my hair for about 14 years and am really

herxing from this!), and will do a metal detox next

with Cysteine, once I have my last amalgams removed

next month.

Good luck - Jennie Floyd

Date: Wed, 23 Jan 2002 16:39:33 -0000

From: " clemsonjk " <clemsonjk@...>

Subject: Amino Acids

Hi all,

I'm looking for a good source of the eight or nine

essential amino

acids that are not from whey or soy. I've heard these

are available

but have not been able to find any. If any knows of

any please let

me know. Thanks

__________________________________________________

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As I suggestion I would get tested by Metametrix for the amino acids 1st to

see if you are low on them. If so the can refer you to some one than can

make up a custom powder with just the one's you need in the correct

portions.

Amino Acids

Hi all,

I'm looking for a good source of the eight or nine essential amino

acids that are not from whey or soy. I've heard these are available

but have not been able to find any. If any knows of any please let

me know. Thanks

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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  • 9 months later...

Joyce,

Was that a blood serum or a urine amino acids test?

Rich

> Subject: Amino acids

>

> I have just recieved me amino acids lab results. I am low in all

but one,

> and in some instances, show none dectected. Dr is having

most of

> his patients do the amino acids testing and so far, everyone I have

spoken

> with is very low in most of the amino acids. Interesting...

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  • 1 month later...

Dave,

I do think amino acid screens can be helpful in figuring out what's

going on. I think it's most helpful to get both blood and urine

amino acid screens.

If funds are limited, I think I would put the urine organic acids

test before the amino acids screens, but I do think they are helpful.

Rich

> Hi Rich

> I would be obliged if you could help me to decide

> if an amino acid screen is useful or will it simply be a

> reflection of what I have been eating?

>

> Regards

> Dave x

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  • 2 months later...
  • 1 year later...

Dear Doug and everyone,

Yes, you're right, they did call it Amytonia Congentia. Where were you born ? I

was in Kentucky. I had my first biopsy when I was 3 years old and it was on the

back of my calf. But the scar is only about 3 inches long. I do remember how

hard it was to be away from my family at that age. You remember how strict the

Orthopedic hospitals were in those days.? At 3 years old I still remember the

black mask they put over my face for the ether. The smell of ether can give me

nightmares!

I remember later when I was 5 and in a different hospital being presented at

Rounds.. That was horrible. A whole room full of Doctors, Physical and

Occupational Therapists and little me on a gurney in a halter and g-string.

They never talked " to " you.. they talked over your head and about you as if you

were invisible.. I even remember one time when 2 nurses were talking right next

to me about how I was never going to walk and that I probably wouldn't live very

long. But I was a very outgoing kid and always had a snappy come-back for rude

people like that.

I hated being away from my family but I did make friends there and I can

remember some really great times too.

Did you have to take any nasty tasting medicine. ? I remember lots of others

besides the Amino Acids. How long did you stay at that hospital. ? When I was

4 1/2 I was there for over 6 months.. There were kids there that had been an

inpatient for 3, or 4 years.. My folks were never told I could get services from

MDA. I didn't know about MDA until I was 22, moved to California and went to

the clinic at Rancho Los Amigos.

Lainie

Doug <doug696@...> wrote:

Hey Laine, I'm 47 and was also diagnosed with Amytonia, well they actually

called it Amytonia Congenita. I went thru Hell when I was about 8 or 9 yrs old,

I was sent to the local university hospital to find out " what was wrong with

me " . Mind you this was in the archaic 60's. I was put on a top floor ward with

so many different people and diseases, it was very frightening for a young

child, I still have nightmares about it. I was poked and prodded, given very

painful EMG's and spinal taps and a muscle biopsy that left a 6 inch scar on my

calf. I still remember every painful moment of it. After all that they

recommended us to MDA, we had never even heard of it. Well anyway, saw the

Amytonia this and thought I'd give my 2 cents, take care, Doug

----------

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  • 4 months later...
Guest guest

Sure - see articles written by Dr. Vickery at www.life-enthusiast.com/amino

Whatever he says about fibromyalgia can also be extrapolated to candidiasis,

they often go hand-in-hand.

www.life-enthusiast.com

Amino acids

> Anyone have an info on amino acids such as best sources food or

> otherwise or be able to give references to info that I could read that

> perhaps you found useful on this?

>

> Cheers

>

> Sue

>

>

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  • 2 weeks later...
Guest guest

Thanks, Theresa. Please do.

Adrienne

Amino acids

Hello Adrienne,-

I started an amino acid protocol with NeuroScience www.neuroscienceinc.com

in March. After, developing some problems with my eyes, I decided to stop until

that problem cleared. It is so difficult to tell if the disease is the cause or

the amino acids. Anyway, I restarted the protocol yesterday and will keep you

posted.

Wishing you better health.

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Resending- was blocked yet again

Amino acids

Hello Adrienne,-

I started an amino acid protocol with NeuroScience

www.neuroscienceinc.com in March. After, developing some problems with my eyes,

I decided to stop until that problem cleared. It is so difficult to tell if the

disease is the cause or the amino acids. Anyway, I restarted the protocol

yesterday and will keep you posted.

Wishing you better health.

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