Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Jo, Yes this is typical for Jaye. She will not even realize she is limping til I tell her. And then, if she is doing something that she wants to keep doing she works hard to quit limping. Although as a mom I can see this and know that she is struggling. We have had a couple of times when they put her on steriods for one thing or another and she just could not get over how good she felt. She just smiled way more then normal and kept saying " Wow do I feel good " . Of course what we have figured out is that her meds are not controlling her as well as we thought and that she did not realize how bad she felt all the time til she started feeling better. We have now put her on a low dose of steriods for maintenance at this point to see how she does. And just because she is 13 she may be more likely to not let you know of the pain. My Jaye hates to complain when she feels bad. She has to be really sick or a lot of pain to tell me about it, so it is my job to watch and try to not irritate her by asking too many times how she is doing. Be sure to document these things and talk to the rheumy about it when you have your next appointment. I had read so many posts from parents about having a love/hate relationship with the steriods and I did not understand it til now. They make her feel good but we hate taking them all the time. Our goal will be to find another solution but not sure what that is at this point. We go back to the rheumy December 20th and will see if the inflamaiton is gone and pain level is bette. Veri & jaye 16 poly Limping After having really good summer a had about a week of not feeling good last month. Very tired and achy, but snapped out of it pretty quick. But the past few weeks she has been limping a lot. She says she feels fine and doesn't realize she's limping. She's almost 13 and she should realize if she's in pain. Or is she so used to being in pain that it's " normal " for her? Has anyone else experienced this? Thanks, Billie-jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 We've notice the same with . I think you're right and they don't realize how bad they feel until they feel better. I believe it just becomes the norm to them and that's why they don't know they're limping until we bring it to their attention. ( 12 poly) From: veristroud@... Date: Sun, 7 Nov 2010 10:30:38 -0500 Subject: Re: Limping Jo, Yes this is typical for Jaye. She will not even realize she is limping til I tell her. And then, if she is doing something that she wants to keep doing she works hard to quit limping. Although as a mom I can see this and know that she is struggling. We have had a couple of times when they put her on steriods for one thing or another and she just could not get over how good she felt. She just smiled way more then normal and kept saying " Wow do I feel good " . Of course what we have figured out is that her meds are not controlling her as well as we thought and that she did not realize how bad she felt all the time til she started feeling better. We have now put her on a low dose of steriods for maintenance at this point to see how she does. And just because she is 13 she may be more likely to not let you know of the pain. My Jaye hates to complain when she feels bad. She has to be really sick or a lot of pain to tell me about it, so it is my job to watch and try to not irritate her by asking too many times how she is doing. Be sure to document these things and talk to the rheumy about it when you have your next appointment. I had read so many posts from parents about having a love/hate relationship with the steriods and I did not understand it til now. They make her feel good but we hate taking them all the time. Our goal will be to find another solution but not sure what that is at this point. We go back to the rheumy December 20th and will see if the inflamaiton is gone and pain level is bette. Veri & jaye 16 poly Limping After having really good summer a had about a week of not feeling good last month. Very tired and achy, but snapped out of it pretty quick. But the past few weeks she has been limping a lot. She says she feels fine and doesn't realize she's limping. She's almost 13 and she should realize if she's in pain. Or is she so used to being in pain that it's " normal " for her? Has anyone else experienced this? Thanks, Billie-jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Yes, my daughter, Rose (10) is the same way. When the limp is just starting, she doesn't seem to be in pain either or realize she is limping. If I don't do anything to get rid of it, she eventually complains that she is in pain, however. Jo > > After having really good summer a had about a week of not feeling good last month. Very tired and achy, but snapped out of it pretty quick. But the past few weeks she has been limping a lot. She says she feels fine and doesn't realize she's limping. She's almost 13 and she should realize if she's in pain. Or is she so used to being in pain that it's " normal " for her? > > Has anyone else experienced this? > > Thanks, > Billie-jo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2010 Report Share Posted November 9, 2010 Yes, the changing of the seasons often causes a flare up. definitely walks differently when his feet are acting up and he doesn't even realize it. He still does it even as an adult. He doesn't complain about it, he seems to just accept it. Michele ( 23, spondy) From: [mailto: ] On Behalf Of Billie-jo Jary Sent: Sunday, November 07, 2010 8:45 AM *JRA List Subject: Limping After having really good summer a had about a week of not feeling good last month. Very tired and achy, but snapped out of it pretty quick. But the past few weeks she has been limping a lot. She says she feels fine and doesn't realize she's limping. She's almost 13 and she should realize if she's in pain. Or is she so used to being in pain that it's " normal " for her? Has anyone else experienced this? Thanks, Billie-jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Hello All My son had a cold and then after a few days fever and vomiting,then cough.As soon as i give him GSE and GS his cough reduces considerably. Strangely he woke up this morning limping.He is still on the go but stiff feet. Can anyone who has had this experience advice.He does not verbalize or share pain or hurt with us yet and im pretty sure he did not fall or injure himself last night we have done 25 rounds in the last 6 months Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Sent from my LG phone " olive.ginger " <olive.ginger@...> wrote: >Hello All > > My son had a cold and then after a few days fever and vomiting,then cough.As soon as i give him GSE and GS his cough reduces considerably. >Strangely he woke up this morning limping.He is still on the go but stiff feet. > >Can anyone who has had this experience advice.He does not verbalize or share pain or hurt with us yet and im pretty sure he did not fall or injure himself last night > >we have done 25 rounds in the last 6 months > >Kara > Quote Link to comment Share on other sites More sharing options...
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