Introduction

[Guest guest]

In a message dated 1/11/01 11:42:00 PM Central Standard Time,

laharvey1@... writes:

<< Mine started with a combination of

allergy shots & antibiotics. I try to stay clear of both now. >>

What is harful in allergy shots? Just curious, as I had these for years as a

child. Thanks!

Tracey

[Guest guest]

> In a message dated 1/11/01 11:42:00 PM Central Standard Time,

> laharvey1@h... writes:

>

> << Mine started with a combination of

> allergy shots & antibiotics. I try to stay clear of both now. >>

>

> What is harful in allergy shots? Just curious, as I had these for

years as a

> child. Thanks!

>

> Tracey

My doctor told me that the steriod in the allergy shot brought my

immune system down.

Lori

[Guest guest]

Welcome !

Lysine is good for acne (and cold sores, too, if anyone has that problem). A good natural source of Lysine is in quinoa. Otherwise, supplements work, too.

Quercetin works great for allergies, too. It's a natural anti-histamine. A natural decongestant is vitamin A (or beta carotene).

~

In a message dated 1/10/01 8:06:57 PM Central Standard Time, dharrisn@... writes:

Hello, my name is . I am new to this site. I was

diagnosed with Candida in Sept., 2000. I have probably

had it, though, since 1988 or so. That is when I

started taking alot of antibiotics. I took things for

Strep throat and I took Tetracycline for acne. My

doctor has been giving me Nizoral for two week

intervals. When I go off for two weeks I take Nystatin.

He has recommended several herbal things too along with

the book The Yeast Infection and the Woman. I have read

the book. For the first 3 weeks, I didn't eat any

sugar, but then I started to cheat. Now I don't eat

what I did before I found out I had Candida, but I

still eat sugar. I do not drink regular sodas anymore,

though. I either drink diet or I drink lots of water. I

just turned 31 in Nov. I used to be really thin, but

probably due to the Candida, I now have hypothyroidism

and I have gained about 70 pounds. I would love to be

able to lose it, but I have tried about everything, and

I can't seem to do it.

When the doctor first diagnosed me he took 3 different

blood tests. The one test, I don't remember what is was

called, the number should have been below 100 to be

normal and mine was over 600. I just had another blood

test taken last week and I haven't heard about the

results yet. It will be the end of this week before I

do.

I got off the pill, since that is suppose to not be

good for Candida. I was taking it because I still break

out alot. I have been fine without it up until this

last week. I am starting to break out again. If anyone

has any suggestions for that, I want to know. I was

taking a Kenalog shot every 8 weeks for my allergies,

that I have only had for the last 3 1/2 years. I had to

take the shot or I would get sick and need more

antibiotics. I have taken supplements alot in the last

few months and I have been able to not have to have a

shot since Sept. or Oct.

If I have left anything out that you guys would like to

know, just ask.

If you guys have any suggestions for me about acne or

candida, please tell me.

[Guest guest]

In a message dated 1/12/01 8:57:55 AM Central Standard Time, TFreyre@... writes:

What is harful in allergy shots? Just curious, as I had these for years as a child. Thanks!

I believe a lot of allergy shots contain steroids. I'm sure others know more about this, though.

~

[Guest guest]

> Hi! My name is Gail, and I'm 49 years old.I developed asthma 16

years

> ago.In 1995 I became very ill and was hospitalized with a flare-up.

> Since then I have had repeated flares and was given multiple

steroid

> regimes. Last year I was diagnosed with Secondary Adrenal

> Insufficiency due to the steroids, and was found to be allergic to

the

> very inhalers I was treating the asthma with!

> I was removed from all medicines and in 24 hours I was normal for

the

> first time in years, and haven't treated the asthma since!My

biggest

> hurdle was weaning off the prednisone, which took 9 months, and had

> debilitating effects.

> Luckily my adrenals are regenerating though I was told it could

take

> up to 1 year for 100% function.

> Since discontinuing the prednisone in August I have had increased

> allergic reactions to numerous foods, additives, and OTC meds that

> cause immediate rashes,itching and wheezing; and get migraines with

> additives and milk products.

> I now make my own breads, have eliminated most processed foods from

my

> diet, as well as 'added sugars',and do not consume

> nuts,milk,cheese,and related products, chocolate, foods with

> MSG,sulfites or nitrites.

> My days are spent reading labels and grieving over lost loved foods!

>

> Currently I have a problem with Oral Candidiasis (Thrush), which

has

> so far been resistant to prescription medicines.

> I'm sure I'm in a vicious circle with the immune system/adrenals

and

> allergies all affecting the other.

> PLEASE HELP!!

> If anyone has had an experience similar to mine or has advice for

me

> I'd appreciate it! Thanks!

Hello Gail,

Have you ever tried Tea Tree Oil for your thrush? It is god awefull

nasty but it does work...(I give it to my 6 yr. old son) I mix one

teaspoon into a 8 ounce cup of water and have him gargle until it is

all gone. It has lessened the pain of the thrush and the sores that

he gets......I wish you all the best....

Angie

[Guest guest]

Thanks for the hint.....I'll check into it.

> > Hi! My name is Gail, and I'm 49 years old.I developed asthma 16

> years

> > ago.In 1995 I became very ill and was hospitalized with a

flare-up.

> > Since then I have had repeated flares and was given multiple

> steroid

> > regimes. Last year I was diagnosed with Secondary Adrenal

> > Insufficiency due to the steroids, and was found to be allergic

to

> the

> > very inhalers I was treating the asthma with!

> > I was removed from all medicines and in 24 hours I was normal for

> the

> > first time in years, and haven't treated the asthma since!My

> biggest

> > hurdle was weaning off the prednisone, which took 9 months, and

had

> > debilitating effects.

> > Luckily my adrenals are regenerating though I was told it could

> take

> > up to 1 year for 100% function.

> > Since discontinuing the prednisone in August I have had increased

> > allergic reactions to numerous foods, additives, and OTC meds

that

> > cause immediate rashes,itching and wheezing; and get migraines

with

> > additives and milk products.

> > I now make my own breads, have eliminated most processed foods

from

> my

> > diet, as well as 'added sugars',and do not consume

> > nuts,milk,cheese,and related products, chocolate, foods with

> > MSG,sulfites or nitrites.

> > My days are spent reading labels and grieving over lost loved

foods!

> >

> > Currently I have a problem with Oral Candidiasis (Thrush), which

> has

> > so far been resistant to prescription medicines.

> > I'm sure I'm in a vicious circle with the immune system/adrenals

> and

> > allergies all affecting the other.

> > PLEASE HELP!!

> > If anyone has had an experience similar to mine or has advice for

> me

> > I'd appreciate it! Thanks!

>

>

> Hello Gail,

> Have you ever tried Tea Tree Oil for your thrush? It is god

awefull

> nasty but it does work...(I give it to my 6 yr. old son) I mix one

> teaspoon into a 8 ounce cup of water and have him gargle until it

is

> all gone. It has lessened the pain of the thrush and the sores that

> he gets......I wish you all the best....

>

> Angie

[Guest guest]

Hi Gail. sorry I've not said hello earlier - had an interesting few days

with some new medication! Anyway, um, hello!!

Ann

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.willow-web.net Quality Web Design

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Hi Michele,

Let me know when you are in the Lancaster area and I will then give you the

names of the 2 docs who are lyme literate. I have a friend in the Lancaster

area and they all use the one in Colmar as well. Our weather has been cold -

but no ticks out yet. Want to help me kill a few? Talk to you soon. KIM

[Guest guest]

can you send me privately the names of drs in lancaster, pa area as i know

someone there I'd like to give them to? CB : H10741451@...

[Guest guest]

Hello ML - I wish I had answers for you. I had steriod injections in my wrists

- but I was being treated for tenosynovitis not arthritis - the injections were

relatively painless - and helped a great deal - but I am sure the experience

would be different treating the joint (I assume) - and for a child. This issue

has not come up in the case of my son - so I can't provide any of that input - I

just wanted to welcome you to this wonderful group & let you know that my

thoughts are with you as you struggle with these decisions.

Val

Rob's Mom (4, systemic)

In a message dated Tue, 2 Oct 2001 1:43:21 AM Eastern Daylight Time,

msmlyakel@... writes:

> Hello. I just found this site tonight. My son, Jeffery, just turned

> 7 last week. Jeffery was diagnosed with JRA at about 21 months -- we

> went to the Mayo Clinic for a couple years - although I battled the

> doctors regarding meds -- so we were on over-the-counter liquid

> MOTRIN for a long time and also tried homeopathic therapy for about 1

> year. Summer 2000, Jeffery appeared to have increasing stiffness and

> pain. The Mayo recommended I get a 2nd opinion -- so we now see a dr

> in Mpls who immediately educated me regarding the meds and explained

> the potential problems Jeffery could experience if I continued down a

> path of limited treatment. Jeffery has arthritis in his toes, upper

> feet, ankles, knees, hips, neck, fingers (particularly thumbs and

> fifth finger), jaw, wrists, and we are guessing some arthritis in his

> spine. The next action our dr wants to take is injections into

> Jeffery's wrists (while under a general anesthesia (sp?)). I am NOT

> excited about this treatment and have said NO. Not at this time --

> anyone have comments or input? I am also wanting to take Jeffery to

> get another opinion -- I have heard about some major JRA clinic in

> Cincinnati (I think) and another in Texas. Anyone have any input on

> clinical environments that are progressive without being aggressive?

>

> Thank you all for your help. Thank you for listening. Jeffery is

> presently taking folic acid, methotrexate once a week (shot), VIOXX

> daily, and Remicade every 6-8 weeks (we skipped right over all the

> oral meds as Jeffery has had stomach problems and refuses to take

> pills-- also the dr felt that my 2 year stall in not doing heavy meds

> required quick action and the intense fix and not a lot of trial and

> error).

>

> Again, thank you.

> ML

>

>

>

> For links to websites about arthritis and JRA, visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

Welcome to our group, sorry this is the way you have to meet us, but

here you'll find an abundance of knowledge, we are not doctors here

although we did have a rheumy here that was posting. What we are, are

mothers that are all in or have been in the same boat.

My son Jordan 5 - systemic was diagnosed in Dec 2000. He became ill

on October 13/00 and went thru 2 months of pain before we got a

diagnosis. Currently he's on MTX 7.5mg oral, folic acid,

indomethacin 3mg 3x's a day and zantac, 4mg/day. He also had joint

injections in March/01 in all his major joints. The results were

amazing!! He was up and running in 48 hours like a 5 yr old should

be. He was injected with aristospan, under anesthetic, and although

it was scary, we were willing to do anything to help him. One of the

other moms on here go to the same rheumy as we do, (we live in

canada) and it was her that put my mind at ease regarding the

injections. It is something to really think about, giving

some relief and less pain.

Someone you might try for another opinion is the Shrine. We also

went to them here in Montreal, but the trip was too hard on Jordan

and it was too far away for the dr to properly monitor him. We now

go to Sick Kids Hospital in Toronto. I trust our rheumy fully and the

treatment and the care he's gotten there has been fabulous.

I sincerely hope you find the right rheumy for Jeffery, one that you

trust like I do here with ours. Good luck with your son, and keep us

posted. Again, welcome to our group

Lori mom of Jordan 5 systemic

> Hello. I just found this site tonight. My son, Jeffery, just

turned

> 7 last week. Jeffery was diagnosed with JRA at about 21 months --

we

> went to the Mayo Clinic for a couple years - although I battled the

> doctors regarding meds -- so we were on over-the-counter liquid

> MOTRIN for a long time and also tried homeopathic therapy for about

1

> year. Summer 2000, Jeffery appeared to have increasing stiffness

and

> pain. The Mayo recommended I get a 2nd opinion -- so we now see a

dr

> in Mpls who immediately educated me regarding the meds and

explained

> the potential problems Jeffery could experience if I continued down

a

> path of limited treatment. Jeffery has arthritis in his toes,

upper

> feet, ankles, knees, hips, neck, fingers (particularly thumbs and

> fifth finger), jaw, wrists, and we are guessing some arthritis in

his

> spine. The next action our dr wants to take is injections into

> Jeffery's wrists (while under a general anesthesia (sp?)). I am

NOT

> excited about this treatment and have said NO. Not at this time --

> anyone have comments or input? I am also wanting to take Jeffery

to

> get another opinion -- I have heard about some major JRA clinic in

> Cincinnati (I think) and another in Texas. Anyone have any input

on

> clinical environments that are progressive without being aggressive?

>

> Thank you all for your help. Thank you for listening. Jeffery is

> presently taking folic acid, methotrexate once a week (shot), VIOXX

> daily, and Remicade every 6-8 weeks (we skipped right over all the

> oral meds as Jeffery has had stomach problems and refuses to take

> pills-- also the dr felt that my 2 year stall in not doing heavy

meds

> required quick action and the intense fix and not a lot of trial

and

> error).

>

> Again, thank you.

> ML

[Guest guest]

ML,

I live in Pittsburgh and took my daughter who has pauci (knees and ankles involved) to the Children's Hospital in Cincinnati because they have a large juvenile arthritis program for a second opinion. We saw Dr. Passo who is excellent. What he recommended for my daughter who was 3 at the time was the steroid injections and then to start methotrexate if and when the steroid injections wear off. We did exactly that. The terrific result of the steroid injection in her right knee has lasted for almost a year now. The arthritis has not come back. It did come back in her left knee (lasted for 6 months) and she is now receiving methotrexate. I would highly recommend the injections. They do wonders to provide relief and allow you time to work on range of motion and strengthening. The injections are very standard for JRA. The rheumatologists recommend being aggressive early in order to prevent long term damage to the joints.

Good luck.

Chris

Introduction

Hello. I just found this site tonight. My son, Jeffery, just turned

7 last week. Jeffery was diagnosed with JRA at about 21 months -- we

went to the Mayo Clinic for a couple years - although I battled the

doctors regarding meds -- so we were on over-the-counter liquid

MOTRIN for a long time and also tried homeopathic therapy for about 1

year. Summer 2000, Jeffery appeared to have increasing stiffness and

pain. The Mayo recommended I get a 2nd opinion -- so we now see a dr

in Mpls who immediately educated me regarding the meds and explained

the potential problems Jeffery could experience if I continued down a

path of limited treatment. Jeffery has arthritis in his toes, upper

feet, ankles, knees, hips, neck, fingers (particularly thumbs and

fifth finger), jaw, wrists, and we are guessing some arthritis in his

spine. The next action our dr wants to take is injections into

Jeffery's wrists (while under a general anesthesia (sp?)). I am NOT

excited about this treatment and have said NO. Not at this time --

anyone have comments or input? I am also wanting to take Jeffery to

get another opinion -- I have heard about some major JRA clinic in

Cincinnati (I think) and another in Texas. Anyone have any input on

clinical environments that are progressive without being aggressive?

Thank you all for your help. Thank you for listening. Jeffery is

presently taking folic acid, methotrexate once a week (shot), VIOXX

daily, and Remicade every 6-8 weeks (we skipped right over all the

oral meds as Jeffery has had stomach problems and refuses to take

pills-- also the dr felt that my 2 year stall in not doing heavy meds

required quick action and the intense fix and not a lot of trial and

error).

Again, thank you.

ML

[Guest guest]

ML.. i was just wondering how long has your son been on mtx? has it helped? does he have any side effects from it.. they are wanting to start my daughter on it and i am a bit nervous. what amount is he on? thanks.. kellie & 7 yr old polyarticular JRA

[Guest guest]

Hi Kellie

I'm Liz, not ML, but also have a child on methotrexate. Her current dose is 15mg (.6cc), given by injection once a week. The dosage for the kids varies depending on size as well as how well they are responding. some kids do very well on as little as 7.5mg. Unfortunately, , 9 yrs old, has not been able to successfully go below her current dose. While on oral methotrexate had a lot of trouble with nausea and vomiting, but since switching to injections a couple years ago things are much better. The decision to use methotrexate for our kids is never an easy one, as I think all of us worry about putting the kids on these meds. But the difference it can make in quality of life is amazing!

Hope this helps a bit. Let us know how is doing.

Liz

Re: Introduction

ML.. i was just wondering how long has your son been on mtx? has it helped? does he have any side effects from it.. they are wanting to start my daughter on it and i am a bit nervous. what amount is he on? thanks.. kellie & 7 yr old polyarticular JRA For links to websites about arthritis and JRA, visit: http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Kellie & : My daughter is on MTX, 20 mg? (I think its mg) a week. She started on pills, then they put her on injections, and then when she started Remicade we switched back to pills. She is no longer on Remicade, but seems to be doing pretty well right now. I truly believe the Folic Acid helps with the MTX. She wasn't taking the Folic Acid in the beginning. It seems to be the drug of choice with JRA.

Pat & (Systemic, 1 year now)

[Guest guest]

thanks liz.. i'll let you all know how things go with her at pittsburgh.. we go the 12th..

[Guest guest]

pat,

thanks for the answer back.. how is he doing on the mtx? has he had many side effects? i'm sorry if i sound like a nag i just am so scared.. kellie & 7yr poly

[Guest guest]

Hi Liz & Kellie:

My daughter's experience is the same. She is 7, systemic jra, and on the same dosage as . She too started off on the oral pills (crushed in applesauce) and had a lot of trouble with nausea and vomitting. The switch to injections was beneficial in that regard, though we have gone through a lot of anxiety related to the injections, she has reacted much better to receiving the mtx that way. And, until the mtx, we were always unable to lower the prednisone dosage much below ten mg/day. We have been lower than 5mg/day for much of the last year and even off of it for 2 months! Sadly, she flared again and is back up to 10mg/day (down from 16), but we hope to get it lower yet. The docs attribute the lower prednisone (overall) to the use of the mtx.

Lynn

From: " " <smithfamilyzoo@...>

Reply-

Date: Wed, 3 Oct 2001 06:15:06 -0400

< >

Subject: Re: Introduction

Hi Kellie

I'm Liz, not ML, but also have a child on methotrexate. Her current dose is 15mg (.6cc), given by injection once a week. The dosage for the kids varies depending on size as well as how well they are responding. some kids do very well on as little as 7.5mg. Unfortunately, , 9 yrs old, has not been able to successfully go below her current dose. While on oral methotrexate had a lot of trouble with nausea and vomiting, but since switching to injections a couple years ago things are much better. The decision to use methotrexate for our kids is never an easy one, as I think all of us worry about putting the kids on these meds. But the difference it can make in quality of life is amazing!

Hope this helps a bit. Let us know how is doing.

Liz

Re: Introduction

ML.. i was just wondering how long has your son been on mtx? has it helped? does he have any side effects from it.. they are wanting to start my daughter on it and i am a bit nervous. what amount is he on? thanks.. kellie & 7 yr old polyarticular JRA

For links to websites about arthritis and JRA, visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Just wanted to let you know my son is three and to little for pills,he

gets the injectable form of MTX in 4oz juice every friday night before

bed so he will sleep through most of the side affects-so far no problems.

becki and david 3systemic

Lynn Young wrote:

Hi Liz & Kellie:

My daughter's experience is the same. She is 7, systemic jra, and on

the same dosage as . She too started off on the oral pills (crushed

in applesauce) and had a lot of trouble with nausea and vomitting. The

switch to injections was beneficial in that regard, though we have gone

through a lot of anxiety related to the injections, she has reacted much

better to receiving the mtx that way. And, until the mtx, we were always

unable to lower the prednisone dosage much below ten mg/day. We have been

lower than 5mg/day for much of the last year and even off of it for 2 months!

Sadly, she flared again and is back up to 10mg/day (down from 16), but

we hope to get it lower yet. The docs attribute the lower prednisone (overall)

to the use of the mtx.

Lynn

From: " " <smithfamilyzoo@...>

Reply-

Date: Wed, 3 Oct 2001 06:15:06 -0400

< >

Subject: Re: Introduction

Hi Kellie

I'm Liz, not ML, but also have a child

on methotrexate. Her current dose is 15mg (.6cc), given by injection once

a week. The dosage for the kids varies depending on size as well as how

well they are responding. some kids do very well on as little as 7.5mg.

Unfortunately, , 9 yrs old, has not been able to successfully go below

her current dose. While on oral methotrexate had a lot of trouble

with nausea and vomiting, but since switching to injections a couple years

ago things are much better. The decision to use methotrexate for our kids

is never an easy one, as I think all of us worry about putting the kids

on these meds. But the difference it can make in quality of life is amazing!

Hope this helps a bit. Let us know

how is doing.

Liz

Re: Introduction

ML.. i was just wondering how long has your son been on

mtx? has it helped? does he have any side effects from it.. they are wanting

to start my daughter on it and i am a bit nervous. what amount is he on?

thanks.. kellie & 7 yr old polyarticular JRA

For links to websites about arthritis and JRA, visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Joe,

I am going to fax this theory to my best friend who is an MD (now specializing in Metabolic Wellness and Anti-Aging Medicine). I am curious, why did you find this information so interesting to you? You didn't mention if it was sought because of an illness you or a family/friend member might have. Many of our members will not understand the medical terms or its application to them. I DO very much appreciate your note and will respond as I become more informed. Please feel free to express more information...we are friends here.

Best regards,

[Guest guest]

The part that looked interesting to me is that some of the research was done at USC. I go to the Norris Cancer Center every year. I am going to be asking my doctor the next time I am there about it all. Thanks for the tip.debby

[ ] Introduction

Hello, all!My name is Joe Park. First of all, let me state for the record thatI am NOT a doctor. I don't pretend to understand all the medical or biological issues involved here. What I will say is MY opinion based upon what I have read and researched. Please do not take it for any more than that. Except where noted, I will be quoting from "Immune Perspectives; A Publication of the Center for Advancement in Cancer Education," volume VIII, no. 2/3 (Fall/Winter 2000) which isavailable through http://www.beatcancer.org.You can easily make the argument that our immune systems are the most powerful bodily system. Without it, we would be dead within a week. People with AIDs, for example, are not killed by the HIV virus. They die because of "simple" illnesses like pneumonia which they catch and their bodies cannot fight off because of a compromised immune system.While healthy, the immune system is our best defense against viruses and bacteria. Made up of millions of cells, the immune system has 3 main lines of defense against invaders: the digestive, respiratoryand skin systems. They constantly work to screen out bacteria, viruses and other foreign agents. The liver plays a LARGE part in keeping us healthy, maintaining metabolic, excretory and immune functions."The liver's immune functions are mostly carried out by the Kupffner cells. The major function of these cells include absorption and destruction (phagocytosis) of foreign matters and elimination of endotoxins. Kupffner cells also help modulate or regulate immune response via production of substances such as gamma gobulin." (p. 9)Dr, Darryl See, M.D., is a physician in the Division of Infectious Diseases, Department of Medicine, University of California. In a1998 review of complementary therapies in arthritis, Dr. See "...examined the the possible multiple roles of 'immune foodproducts' in correcting some of the immune dysfunctions that havebeen identified as possible causes of some forms of arthritis. Heobserved that passive immunity, conveyed by food items, delivers beneficial antibodies directly to the human gut, which is a major point of entry to the body for numerous pathegenic organisms. He speculates that the hyperimmune food's delivery of antibodies tohuman pathogens may reduce exposure to gut pathogens and lighten the body's immunologic activation, thereby reducing the likelihood of the immune overactivity." (p. 3)In a January 14, 2000 statement to Dr. Leo Gallard (the recipeant of the 2000 Linus ing Award -- the highest honor given to medical doctors) wrote "It seems likely that the nutriceutical effects of[the hyperimmune egg supplement] are derived from its content ofantibodies and immune-modulating peptides. In patients with immunedeficiencies, these appear to stimulate immune response, decreasing the frequency of new infections. In chronic fatigue syndrome, on the other hand, the immune system appears to be stuck in ahyperstimulated state. Most people with [CFS] feel as if they have the flu and it never leaves them. I believe that [the hyperimmuneegg supplement] helps these patients by 'unsticking' the immune response, allowing it to ease back to normal, freeing it from the overactive condition." (p. 3)In her article, "Hyperimmune Egg Capture Natural Immune Support" (found in this same publication from the Center for Advancement in Cancer Education), L. Dean writes, "Hyperimmune eggs and supermarket eggs have the same protien (including immunoglobulin),fat and cholesterol contents. They differ principally in two ways: (1) the exact type of immunoglobulins (antibodies) that make up the egg's respective protiens differ and (2) hyperimmune eggs contain higher levels of more active immunoregulatory factors thansupermarket eggs."Most supermarket eggs come from hens that have been vaccinated one time, at birth, against avian (in this case, chicken) diseases. Hyperimmune eggs are produced by hens that have undergone repeated vaccinations against many human diseases. DCV's proprietary methodof producing hyperimmune eggs calls for the repeated immunization of laying hens with patented vaccines containing at least 24 inactivated enteric pathogens that effect human beings. These include, but are not limited to, Shigella dysentariae, Staphylococcus epidermidis and simulans, Escherichia coli, Salmonella enteritidis and typhimurium, Pseudomonas aeruginosa, Klebsiella pneumoniae, Haemophillisinfluenzae and at least six species of Streptococcus."DCV notes, in its technical information, that the hens laying the eggs, and not the eggs themselves, are injected with vaccines andthat the vaccines are made pf inactivated pathogens. The henproduces immunoglobulin antibodies against microbe that are ofspecial concern to human health and concentrates those antibodies in the eggs she lays. When eaten by a human, these eggs transfer passiveimmunity to the pathogens in the vaccines."After an appropriate time subsequent to vaccination of the hen, her eggs are collected and processed under careful manufacturing practices, in a US Department of Agriculture-inspected facility. The eggs are washed and broken, and the yolks and whites are spray-dried under mild conditions to produce a fine protein powder that is richin egg antibodies and active immunoregulatory factors."...As clinical experience with hyperimmune egg supplementation continues to grow and as basic research into hyperimmune products expands our understanding of their physiological actions, it is to be expected that additional applications for those healing foods will emerge. Patients with cancer whose immune function has been compromised by chemotherapy or radiation therapy could benefit, as could anyone whose immune response has been disrupted by illness or therapy. The hyperimmune egg's boost to the immune system could help protect individuals who are exposed to physically or emotionally stressful living environments. Hospital employees and people whose daily occupations expose them to many different people at close quarters also stand to benefit from the hyperimmune egg's healing potential." (pp. 3-4)Any thoughts or comments? Does this look like something that could help?I believe in you,Joe

[Guest guest]

Hi Kathy,

This is a great list with a lot of good information. I am glad you

have joined. I know I have seen you on another list. I just wanted to

say that I am glad the diet is helping lin!!!! I have always

wondered if it would be as good or effective as the keto. diet. My

sister has a friend who put her son on the Atkins diet (he is a

teenager) and his seizures were rediced. My daughter is 3 yrs. old.

We tried the keto. diet when she was 17 months old. but she wouldn't

cooperate and became very weak so she was only on it for 3 weeks. It

didn't stop the seizures either. We have just done some bloodtests

and are waiting for all the results to begin a protocol based on her

blood chemistry and fatty acid analysis. I hope it will help. These

medications just make her feel terrible.

Anyway, welcome and thanks for sharing. I would love to hear more

about how you are doing the Atkins diet and what foods lin is

eating. Is he a picky eater, does he enjoy healthy foods etc...

Take care,

(Mallorie's mom)

> I have just joined this list and wanted to introduce myself. My 3

1/2 year

> old son, lin, has idiopathic generalized seizures. He was a

very

> healthy boy when he had his first tonic-clonic seizure January 2nd

of this

> year. Since that time, he has had tonic-clonic, myoclonic, absence

and

> atonic seizures and been on 5 different medications (lamictal,

zonegran,

> depakote, topamax and klonopin). The latest one, which we just

finished

> weaning yesterday, was topamax. He has had no seizure control on

the

> medication and plenty of horrific side effects. Our pediatric

neurologist

> recommended that we try the Atkins diet because he thinks that the

state of

> ketosis is what controls the seizures rather than the type of diet

a person

> is on. lin has been on the Atkins diet for more than a month

now and

> we have been able to wean his medication and get him down to 2 - 6

seizures

> a day (atonic - drop seizures). We are still having some behavioral

> problems which we keep thinking was caused by the medication. He

is super

> sensitive to touch. We're hoping that this will start getting

better now

> that he is off medication. So right now he is eating an Atkins

style diet

> with added fat (cream) so he doesn't loose weight and he is staying

in

> ketosis. We are supplementing with multivitamins (kirkman labs),

vit C, vit

> E, taurine and a liquid cal/mag/zinc. I am subscribed to the

ketogenic list

> and have learned huge amounts from that group. I'm hoping to learn

more

> here and try some other things in order to keep his seizures under

control

> and off medication! Thanks for letting me introduce myself.

>

> take care,

> Kathy (lin's Mom)

[Guest guest]

Hi !

lin can have a pretty varied diet and still stay in ketosis, thanks

to the Atkin's products and web sites like 1800dietfoods.com. For

breakfast, he usually has pancakes (recipe from the ketogenic book) or a

slice of toast (Keto bread machine mix) with a little peanut butter on it

and Atkins syrup. Lunches are sandwich meat or hot dogs and cheese and a

veggie (like cucumbers or tomato slices). Dessert is cream whipped with

flavorings and a few strawberries or the Keto puddings. Snacks are

macadamia nuts or no-carb gummi bears. Dinner is a pork chop which he dips

in mayonnaise and green beans and another cream dessert. He doesn't seem to

mind his diet and we don't eat much in front of him that he can't have.

Also, I think that age 3 is a good age for this. They don't seem to

question what you are giving them as much as an older child would and there

isn't the peer pressure. I sure wish he could have more fruits and veggies

but have to keep them limited in order to keep him in ketosis.

Thanks for the welcome!

take care,

Kathy (lin's Mom)

[Guest guest]

Debby,

Have you had a chance to talk to your doctor yet? When are you going

to the Norris Center?

I believe in you,

Joe

> The part that looked interesting to me is that some of the research

was done at USC. I go to the Norris Cancer Center every year. I am

going to be asking my doctor the next time I am there about it all.

Thanks for the tip.debby

> [ ] Introduction

>

>

> Hello, all!

>

> My name is Joe Park. First of all, let me state for the record

that

> I am NOT a doctor. I don't pretend to understand all the medical

or

> biological issues involved here. What I will say is MY opinion

based

> upon what I have read and researched. Please do not take it for

any

> more than that. Except where noted, I will be quoting from

" Immune

> Perspectives; A Publication of the Center for Advancement in

Cancer

> Education, " volume VIII, no. 2/3 (Fall/Winter 2000) which is

> available through http://www.beatcancer.org.

>

> You can easily make the argument that our immune systems are the

most

> powerful bodily system. Without it, we would be dead within a

week.

> People with AIDs, for example, are not killed by the HIV virus.

They

> die because of " simple " illnesses like pneumonia which they catch

and

> their bodies cannot fight off because of a compromised immune

system.

>

> While healthy, the immune system is our best defense against

viruses

> and bacteria. Made up of millions of cells, the immune system has

3

> main lines of defense against invaders: the digestive, respiratory

> and skin systems. They constantly work to screen out bacteria,

> viruses and other foreign agents. The liver plays a LARGE part in

> keeping us healthy, maintaining metabolic, excretory and immune

> functions.

>

> " The liver's immune functions are mostly carried out by the

Kupffner

> cells. The major function of these cells include absorption and

> destruction (phagocytosis) of foreign matters and elimination of

> endotoxins. Kupffner cells also help modulate or regulate immune

> response via production of substances such as gamma gobulin. " (p.

9)

>

> Dr, Darryl See, M.D., is a physician in the Division of Infectious

> Diseases, Department of Medicine, University of California. In a

> 1998 review of complementary therapies in arthritis, Dr. See

> " ...examined the the possible multiple roles of 'immune food

> products' in correcting some of the immune dysfunctions that have

> been identified as possible causes of some forms of arthritis. He

> observed that passive immunity, conveyed by food items, delivers

> beneficial antibodies directly to the human gut, which is a major

> point of entry to the body for numerous pathegenic organisms. He

> speculates that the hyperimmune food's delivery of antibodies to

> human pathogens may reduce exposure to gut pathogens and lighten

the

> body's immunologic activation, thereby reducing the likelihood of

the

> immune overactivity. " (p. 3)

>

> In a January 14, 2000 statement to Dr. Leo Gallard (the recipeant

of

> the 2000 Linus ing Award -- the highest honor given to medical

> doctors) wrote " It seems likely that the nutriceutical effects of

> [the hyperimmune egg supplement] are derived from its content of

> antibodies and immune-modulating peptides. In patients with

immune

> deficiencies, these appear to stimulate immune response,

decreasing

> the frequency of new infections. In chronic fatigue syndrome, on

the

> other hand, the immune system appears to be stuck in a

> hyperstimulated state. Most people with [CFS] feel as if they

have

> the flu and it never leaves them. I believe that [the hyperimmune

> egg supplement] helps these patients by 'unsticking' the immune

> response, allowing it to ease back to normal, freeing it from the

> overactive condition. " (p. 3)

>

> In her article, " Hyperimmune Egg Capture Natural Immune Support "

> (found in this same publication from the Center for Advancement in

> Cancer Education), L. Dean writes, " Hyperimmune eggs and

> supermarket eggs have the same protien (including immunoglobulin),

> fat and cholesterol contents. They differ principally in two

ways:

> (1) the exact type of immunoglobulins (antibodies) that make up

the

> egg's respective protiens differ and (2) hyperimmune eggs contain

> higher levels of more active immunoregulatory factors than

> supermarket eggs.

>

> " Most supermarket eggs come from hens that have been vaccinated

one

> time, at birth, against avian (in this case, chicken) diseases.

> Hyperimmune eggs are produced by hens that have undergone repeated

> vaccinations against many human diseases. DCV's proprietary

method

> of producing hyperimmune eggs calls for the repeated immunization

of

> laying hens with patented vaccines containing at least 24

inactivated

> enteric pathogens that effect human beings. These include, but

are

> not limited to, Shigella dysentariae, Staphylococcus epidermidis

and

> simulans, Escherichia coli, Salmonella enteritidis and

typhimurium,

> Pseudomonas aeruginosa, Klebsiella pneumoniae, Haemophillis

> influenzae and at least six species of Streptococcus.

>

> " DCV notes, in its technical information, that the hens laying the

> eggs, and not the eggs themselves, are injected with vaccines and

> that the vaccines are made pf inactivated pathogens. The hen

> produces immunoglobulin antibodies against microbe that are of

> special concern to human health and concentrates those antibodies

in

> the eggs she lays. When eaten by a human, these eggs transfer

passive

> immunity to the pathogens in the vaccines.

>

> " After an appropriate time subsequent to vaccination of the hen,

her

> eggs are collected and processed under careful manufacturing

> practices, in a US Department of Agriculture-inspected facility.

The

> eggs are washed and broken, and the yolks and whites are

spray-dried

> under mild conditions to produce a fine protein powder that is

rich

> in egg antibodies and active immunoregulatory factors.

>

> " ...As clinical experience with hyperimmune egg supplementation

> continues to grow and as basic research into hyperimmune products

> expands our understanding of their physiological actions, it is to

be

> expected that additional applications for those healing foods will

> emerge. Patients with cancer whose immune function has been

> compromised by chemotherapy or radiation therapy could benefit, as

> could anyone whose immune response has been disrupted by illness

or

> therapy. The hyperimmune egg's boost to the immune system could

help

> protect individuals who are exposed to physically or emotionally

> stressful living environments. Hospital employees and people

whose

> daily occupations expose them to many different people at close

> quarters also stand to benefit from the hyperimmune egg's healing

> potential. " (pp. 3-4)

>

> Any thoughts or comments? Does this look like something that

could

> help?

>

> I believe in you,

>

> Joe

>

>

>

[Guest guest]

Welcome to the group, Patty, and congratulations on the adoption. You must have a huge heart!

I'm too a mom of an 8 yr. old girl who has JRA (systemic). Do you know what type of JRA your child has?

You asked about what you should do about the school. What I learned to do was first of all educate myself on this disease. I then learned to watch how my child would react to the weather, what type of things she needed assistance with, what made her get "fatigued" the easiest (and the time of day), etc. I took all of this information along with a dr's note and explained it to the teachers (PE included) and the guidance councelor. You'd be surprised on how little people know about this disease.

In our state (and probably yours) there is a 504 plan and/or IEP which states my childs disability and the things that the school system HAS to provide for her. EX.: she dosen't have to take written test due to finger pain, therefore, she can have oral test, her poor attendance does not go against her and the teachers are required to have her assignments on hand so that if for some reason she's unable to attend school for an extended amount of time the teacher won't have to scramble to get her assignment. She is also not "required" to perform/attend in any physcial education unless SHE feels that she can. As your childs needs change the plan will change to accomodate her needs.

I hope this little bit of information can help you in some way. I wish you and your child the best of luck!

Sincerely,