Re: choletryromine/chronicneurotoxins.com

[Guest guest]

Christy, what I have learned is that it 'can' be good for nuero lyme.

Supposed to hepl clear the neuro toxins. My LLMD has a few people on it but

isnt to sure of it yet. Pepi

[Guest guest]

Christy---

This is the treatment that is being done by Dr. Richie Shoemaker from Pokomoke

City, MD. The

visual acuity test he uses to determine if you have neurotoxins in you. If you

test positive

on the test, he believes that the Cholestyrimine (Questran) can be used to

alieviate the

symptoms...this applies to more than just lyme...sick building syndrome, CFDS,

Pfesteria....if you test positive on the visual acuity test, he believes the

symptoms can be

relieved. I know this because I was one of the test subjects for his paper. I

had one of

the visual acutity contraptions in my home for about 5 months. My vision did

improve along

with dizziness, disorientation, mothion sickness, etc. It took 5 months of

treatment for me

to get that far...all his other test subjects improved in less than two

months...however, I

had probably the most severe case out of those tested...I had been undiagnosed

for ten

years!!!! If you want more info I will post...I think I posted some on this a

while ago, but

cannot remember exactly when (lyme brain...it didn;t change that!).

Hope this answers some of your questions Christy.

Rhonna

Ritz3131@... wrote:

> <A HREF= " http://www.chronicneurotoxins.com/ " >Click here: VCS Test Center</A>

> Hi. I called someone today to find out about cholestyroime treatment for

> lyme and was given this web site. I was told there is a whole protocol one

> goes on. Does anyone know about this?

>

> Thanks a lot,

>

> Christy

>

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[Guest guest]

Rhonna,

Can you tell me more about these vision acuity tests? Do they have an official

name? My roommate manages an Optometric office and we both found the idea of

using an eye test to determine neurotoxins fascinating. Anything that you can

provide about this will be much appreciated.

Robynn

Re: [ ] choletryromine/chronicneurotoxins.com

Christy---

This is the treatment that is being done by Dr. Richie Shoemaker from Pokomoke

City, MD. The

visual acuity test he uses to determine if you have neurotoxins in you. If

you test positive

on the test, he believes that the Cholestyrimine (Questran) can be used to

alieviate the

symptoms...this applies to more than just lyme...sick building syndrome, CFDS,

Pfesteria....if you test positive on the visual acuity test, he believes the

symptoms can be

relieved. I know this because I was one of the test subjects for his paper.

I had one of

the visual acutity contraptions in my home for about 5 months. My vision did

improve along

with dizziness, disorientation, mothion sickness, etc. It took 5 months of

treatment for me

to get that far...all his other test subjects improved in less than two

months...however, I

had probably the most severe case out of those tested...I had been undiagnosed

for ten

years!!!! If you want more info I will post...I think I posted some on this a

while ago, but

cannot remember exactly when (lyme brain...it didn;t change that!).

Hope this answers some of your questions Christy.

Rhonna

[Guest guest]

Robynn--

The visual contrast sensitivity test is actually a kit (that is how it was sent

to me) and it consists of a card with markings on it and a device to hold the

card and rest the holder on your chin to get the proper distance. The way I had

to use it was to look at the card under a

certain kind of flourescent light and try to determine which direction the

objects on the card were pointing. There were, I believe 8 to 10 levels across

and I think six down for a total of around 48 objects. They started out dark

at level one and got progressively lighter to level

8. And the same going down, starting out dark at level one and lighter to level

6. When I first took this test there is no way you could convince me that there

was anything at all after level two or three...I saw nothing!!!! By the end of

the testing period (I was on for 5 months)

I could see all the way to 8!!! Dr. Shoemaker could not believe that it took me

5 months...most of his other test subjects improved in 6-8 weeks. The more I

could see on the test...the better my overall vision, disorientation, dizziness,

and motion sickness got. He could tell how

my overall vision was by my going through the test over the phone from

land!!! It was really kindof spooky. But it did eleviate these

symptoms...I was on IV abx at the time (still on IV now) and his theory was that

the toxins were building up as they were being eliminated and

that is why it took so long to get results with me. When his paper comes out (I

do not know when that is it should be soon...) I am one of those tested and the

extreme chronic case that he talks about in the paper. I just cannot remember

the name of the company that manufactures the

test kits... I do know that they are $400 apiece because that kept getting

repeated to me about the cost of the test kit and don't loose it!

Come to think of it it is probably on the website about neurotoxins

http://www.chronicneurotoxins.com/

I believe that now they are doing the testing over the internet instead of the

kits...I don't understand that since I was told it needed to be under the

flourescent light to be accurate....maybe they found a way...

Hope this info helps....If you have any other questions, let me know, I would be

glad to try to answer them....

BTW...six months after being off the Questran...the vision and other problems

have begun to return but nowhere near at the level they were before. I guess I

need to find a dr that will prescribe the treatment for me again. BTW my llmd

isn't sold on this and will not prescribe it

for me. I really trust him, I know he really looked into this when I informed

him I was going to try it in the study.

Rhonna

and/or Robynn wrote:

> Rhonna,

>

> Can you tell me more about these vision acuity tests? Do they have an

official name? My roommate manages an Optometric office and we both found the

idea of using an eye test to determine neurotoxins fascinating. Anything that

you can provide about this will be much appreciated.

>

> Robynn

> Re: [ ] choletryromine/chronicneurotoxins.com

>

> Christy---

> This is the treatment that is being done by Dr. Richie Shoemaker from

Pokomoke City, MD. The

> visual acuity test he uses to determine if you have neurotoxins in you. If

you test positive

> on the test, he believes that the Cholestyrimine (Questran) can be used to

alieviate the

> symptoms...this applies to more than just lyme...sick building syndrome,

CFDS,

> Pfesteria....if you test positive on the visual acuity test, he believes the

symptoms can be

> relieved. I know this because I was one of the test subjects for his paper.

I had one of

> the visual acutity contraptions in my home for about 5 months. My vision

did improve along

> with dizziness, disorientation, mothion sickness, etc. It took 5 months of

treatment for me

> to get that far...all his other test subjects improved in less than two

months...however, I

> had probably the most severe case out of those tested...I had been

undiagnosed for ten

> years!!!! If you want more info I will post...I think I posted some on this

a while ago, but

> cannot remember exactly when (lyme brain...it didn;t change that!).

> Hope this answers some of your questions Christy.

> Rhonna

>

>

[Guest guest]

Thanks for this description. Marta also sent me a picture of the card that you

look at. This all sounds a little like quackery to me, but so does a lot of the

things I've tried while battling this disease. LOL.

I am so glad that this worked for you. Do you think you could get Shoemaker to

prescribe the stuff to you again? It sounds like anyone with a credit card can

get scripts through the website.

Let mw know if you do go back on this stuff and how you do.

Robynn

Re: [ ] choletryromine/chronicneurotoxins.com

Robynn--

The visual contrast sensitivity test is actually a kit (that is how it was

sent to me) and it consists of a card with markings on it and a device to hold

the card and rest the holder on your chin to get the proper distance. The way I

had to use it was to look at the card under a

certain kind of flourescent light and try to determine which direction the

objects on the card were pointing. There were, I believe 8 to 10 levels across

and I think six down for a total of around 48 objects. They started out dark

at level one and got progressively lighter to level

8. And the same going down, starting out dark at level one and lighter to

level 6. When I first took this test there is no way you could convince me that

there was anything at all after level two or three...I saw nothing!!!! By the

end of the testing period (I was on for 5 months)

I could see all the way to 8!!! Dr. Shoemaker could not believe that it took

me 5 months...most of his other test subjects improved in 6-8 weeks. The more I

could see on the test...the better my overall vision, disorientation, dizziness,

and motion sickness got. He could tell how

my overall vision was by my going through the test over the phone from

land!!! It was really kindof spooky. But it did eleviate these

symptoms...I was on IV abx at the time (still on IV now) and his theory was that

the toxins were building up as they were being eliminated and

that is why it took so long to get results with me. When his paper comes out

(I do not know when that is it should be soon...) I am one of those tested and

the extreme chronic case that he talks about in the paper. I just cannot

remember the name of the company that manufactures the

test kits... I do know that they are $400 apiece because that kept getting

repeated to me about the cost of the test kit and don't loose it!

Come to think of it it is probably on the website about neurotoxins

http://www.chronicneurotoxins.com/

I believe that now they are doing the testing over the internet instead of the

kits...I don't understand that since I was told it needed to be under the

flourescent light to be accurate....maybe they found a way...

Hope this info helps....If you have any other questions, let me know, I would

be glad to try to answer them....

BTW...six months after being off the Questran...the vision and other problems

have begun to return but nowhere near at the level they were before. I guess I

need to find a dr that will prescribe the treatment for me again. BTW my llmd

isn't sold on this and will not prescribe it

for me. I really trust him, I know he really looked into this when I informed

him I was going to try it in the study.

Rhonna

and/or Robynn wrote: