Fwd: RESTLESS LEGS : daytime? nitetime only?

August 9, 2001

Hi Alice,

WOW, I never realized that my Restless Legs attacks occur ONLY at nite.

I get them when I'm totally exhausted, on the verge of sleep, then,

maddeningly, the attacks hit, totally preventing sleep.

But, until now, I never realized that I don't get these attacks in the

daytime, even if I doze then.

I can't imagine what significance the timing of the attacks has.

When I was on IV antibiotics, I did not get RLS attacks, but now that I'm

ABX-free, I get the attacks every nite & cannot get by even one nite without

Klonopin.

Anyone out there have any ideas why this doesn't happen during the day?

Thanks,

a

August 10, 2001

Sounds like you have Periodic Limb Movement Disorder..........and not

Restless Leg Syndrome they are a little different.

I have the PLMD too.......which it is a central nervous system

disorder.........most likely caused by the Lyme...........

It can cause you to wake fatigued, and non refreshed........make sure you

solve that problem.....if the Klonopin is working than stick with

it...........A good nights sleep is so important.

Check out this site for more information.

http://www.mlists.net/judson/Elaty.html

Connie nwnj

Leave no stone unturned.......and ask questions!

August 13, 2001

Hi Connie,

I havnt really discused this with my doctor yet (I did

include it in my symptom list though). When ever I

lay down for a period of time I have involentary

muscle jerking. It could be my leg, foot, hand, my

whole arm, ect. I guess I could have PLMD. Next time

I talk to my LLMD, I'm gonna mention this. Take care,

Kim S.

--- conniek <conniek@...> wrote:

> Sounds like you have Periodic Limb Movement

> Disorder..........and not

> Restless Leg Syndrome they are a little different.

> I have the PLMD too.......which it is a central

> nervous system

> disorder.........most likely caused by the

> Lyme...........

> It can cause you to wake fatigued, and non

> refreshed........make sure you

> solve that problem.....if the Klonopin is working

> than stick with

> it...........A good nights sleep is so important.

> Check out this site for more information.

> http://www.mlists.net/judson/Elaty.html

> Connie nwnj

> Leave no stone unturned.......and ask questions!

=====

Take care and have a nice day !!! Kim S. kimsak2000@...

__________________________________________________

August 14, 2001

I am fearful that my daughter may have Lyme though her doctor doesnt think

so. I lay down with her at night and she just about hops all over the bed

sometimes.I have spoken with friends about this and they say that their kids

sometimes jerked in their sleep. Any opinions on this? Also my daughter had 3

grand mal seizures when she was about 4 years old (she is 9 now) and she says

that sometimes at school she is too tired to climb the stairs or run in gym.

My problem is that her doctor doesn't think any of this is significant or

related in any way and says that even if we do a blood test it may be a

false positive. I personally go to Dr. Burrascano but he doesn't see young

children. I will see him again in a few weeks and ask him what to do also.

Jst to mention, I did have Lyme when I was pregnant with her (though I

thought it had been treated.)

a

_________________________________________________________________

" Do me a favor, doc, tell me something good. " - Blair -

~~ The Exorcist ~~

August 14, 2001

In a message dated 8/14/01 5:55:32 AM, StarDantzer@... writes:

<< I personally go to Dr. Burrascano but he doesn't see young

children. I will see him again in a few weeks and ask him what to do also. >>

I have several other choices for you for your daughter for a LLMD including

my dr.

Sue in nj

sue massie

let me know

August 14, 2001

Kim,

I too have the involuntary jerking, mainly at night, I know I have it

before I go to sleep, my husband tells me it continues through the night.

Once I had my entire abdomen and chest jerk, that one scared me. Funny

though if I nap during the day, I don't notice the jumping, even though I am

in bed. I don't think this is the same as periodic leg movement.

Marta

----- Original Message -----

From: " KimSak " <kimsak2000@...>

> Hi Connie,

> I havnt really discused this with my doctor yet (I did

> include it in my symptom list though). When ever I

> lay down for a period of time I have involentary

> muscle jerking. It could be my leg, foot, hand, my

> whole arm, ect. I guess I could have PLMD. Next time

> I talk to my LLMD, I'm gonna mention this. Take care,

> Kim S.

August 14, 2001

Hi Marta,

It does happen to me during the day. If I take a nap

or if I'm just laying still for a while. Having your

whole abdomen & chest jerk sounds scary. I havnt had

that one yet. Hope I dont. One day I was laying on

the couch watching TV and my arm & hand jerked & my

whole arm went up in the air. Take care, Kim S.

--- Marta McCoy <mlmccoy2@...> wrote:

> Kim,

> I too have the involuntary jerking, mainly at

> night, I know I have it

> before I go to sleep, my husband tells me it

> continues through the night.

> Once I had my entire abdomen and chest jerk, that

> one scared me. Funny

> though if I nap during the day, I don't notice the

> jumping, even though I am

> in bed. I don't think this is the same as periodic

> leg movement.

> Marta

=====

Take care and have a nice day !!! Kim S. kimsak2000@...

__________________________________________________

August 14, 2001

Kim,

It could be that I rarely relax thoroughly during the day, and naps are

quick and not restful for me. That body jerk happened once, and I hope

never again, it really did scare me. I do have major CNS damage, and I am

assuming that is why I twitch and jerk.

Marta

----- Original Message -----

From: " KimSak " <kimsak2000@...>

> Hi Marta,

> It does happen to me during the day. If I take a nap

> or if I'm just laying still for a while. Having your

> whole abdomen & chest jerk sounds scary. I havnt had

> that one yet. Hope I dont. One day I was laying on

> the couch watching TV and my arm & hand jerked & my

> whole arm went up in the air. Take care, Kim S.

>

August 14, 2001

Hi Marta,

Sounds like you have both.......rls and plmd....before lyme? or caused by

lyme?

You may not realize it, your body is probably waking up by these

movements.........you may not be conscious during your

awakening..........but I bet you don't wake refreshed..........

Connie nwnj

Leave no stone unturned.......and ask questions!