Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 I also have hyperreflexia even with 2400 mg/d of neurontin. Is this the effects of lyme on the CNS...the tingling of my extremities seem to go along with it. Is this what anyone else has dealt with? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 In a message dated 2/18/02 10:58:22 PM Eastern Standard Time, alopeztcr@... writes: > I also have hyperreflexia even with 2400 mg/d of neurontin. Is this the > effects of lyme on the CNS...the tingling of my extremities seem to go > along > with it. Is this what anyone else has dealt with? > > Donna > I too have the tingling extremeties now. Do you experience muscle twitching? a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do me a favor Doc ~ Tell me something good. Blair ~ The Exorcist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 >>>>>I have heard too much mag. can bind up bowels so be careful because if waste does not come out all kinds of sickness will result. It actually backed up so bad for me that the toxins in the waste was literally poisining my body and made me very sick I thought I was dying so please be careful! I always thought that mag would cause diarhea if taken in too high a dosage, no? My doc said that low mag can be causing my twitches and hyperreflexia. What is quinine? is it Plaquenil? When you had twitching Jeri, was it only in your legs? I have it all over and it is driving me crazy! I want to have an EMG to rule out any other horrible causes but doc says to wait and see. Wondering if all the Flagyl might not be contributing to my numbeness , tingling and twitching? It is so hard to know! a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Do me a favor Doc ~ Tell me something good. Blair ~ The Exorcist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Yes, this I think is pretty common with these tick-borne diseases. My twitching was so bad my legs would fly up and jerk around which was also painful and my family would sit and massage them until painkiller and muscle relaxer would put me to sleep. That was about a year ago or so and since I am now on Quinnine 260mgs and only lil bit of magnesium it has not happened in a long time. I have heard too much mag. can bind up bowels so be careful because if waste does not come out all kinds of sickness will result. It actually backed up so bad for me that the toxins in the waste was literally poisining my body and made me very sick I thought I was dying so please be careful! Jeri in IN USA We can do it together! _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Krisina, Quinnine is a maleria drug but is also used for leg cramps and muscle twitching. Yes The twitching was everywhere even in the eye muscles. I could be mixing up mag with iron tabs too, sorry but brain is foggy sometimes and I have to go back to stuff that I'm not sure about but the Quinnine I am sure about. Many supplements can bind up with some so always read about them first. BTW I had all this twitching and was not on Flagyl at the time. I am now on Flagyl, Quinnine, Viox, and Elavil. The rest are vit and supplements. Hope this helps. Jeri in IN USA We can do it together! _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 I believe it was the Bleiweiss report that said Lyme patients tend to be very low in magnesium and that it, like many Lyme sx, may not show up in normal blood tests. If memory serves, Mg deficiency can cause heart attacks. Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 i had the twitching all over too, some of it so major it was more like tremor. i took calcium/mag combined which helped. potassium was also beneficial. still get the eye twitching and other ocassionally, the eye can sometimes last for a week or more! pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 In a message dated 2/19/2002 9:37:04 AM Central Standard Time, StarDantzer@... writes: > I too have the tingling extremeties now. Do you experience muscle twitching? > a > The twitching I had was unbearable and I had such tremors of the hand, I couldn't write. The neurontin seemed to help but the tingling goes on and the neurologists at UCLA told me 2 yrs. ago that I had severe peripheral neuropathy of hands and lower extremities. I think that many of the symptoms were helped with the rocephin but I didn't journal which was a big mistake...my lyme doc at the time told me to just write a sentence in my calendar. Hope in healing, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Rita: having low magnesium levels seemed correlated with many patients I used to see coming into the ER where I worked before being disabled. When patients came in with coronaries and in full arrest and their fibrillating hearts didn't respond to the early advanced CPR drugs, we had it on our protocol to give magnesium sulfate. But I think it would be wise to get a doctor to do a blood level for mag. and discussing it with an LLMD if possible. Too much magnesium isn't a good thing either. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 I'm interested in knowing more about NST. Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Dear PJ, Have you looked into NST (neuro structural technique) - a HIGHLY effective method of rebalancing autonomic nervous system??? If anyone wants info, let me know, I have site links which list trained practitioners. (This is very inexpensive, considering the truly amazing effects we've experienced; typically 3 treatments are required - 1st 2 are one week apart, then a tx at 3 weeks. Prices range by area & practitioner from $40 per treatment to $125 - depending upon practitioner's prices...) Hope this is helpful! Blessings, Chris > i had the twitching all over too, some of it so major it was more like > tremor. i took calcium/mag combined which helped. potassium was also > beneficial. still get the eye twitching and other ocassionally, the eye can > sometimes last for a week or more! pj > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi Chris: Is this something that insurance will cover? Also, does it work for Hyporeflexia? thank you best, lea > Dear PJ, > > Have you looked into NST (neuro structural technique) - a HIGHLY > effective method of rebalancing autonomic nervous system??? > > If anyone wants info, let me know, I have site links which list > trained practitioners. (This is very inexpensive, considering the > truly amazing effects we've experienced; typically 3 treatments are > required - 1st 2 are one week apart, then a tx at 3 weeks. Prices > range by area & practitioner from $40 per treatment to $125 - > depending upon practitioner's prices...) > > Hope this is helpful! > > Blessings, > > Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 In a message dated 2/19/2002 6:50:51 PM Central Standard Time, synchronicity336@... writes: > > Have you looked into NST (neuro structural technique) - a HIGHLY > effective method of rebalancing autonomic nervous system??? > > If anyone wants info, let me know, I have site links which list > i would like whatever info you have on this, chris. thank you. pj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 I would also like to know more about NST. Can I receive it from a physical therapist's office? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Dear Donna, Of all the " balancing " / supplemental therapies we've experienced, this is the most profound. As with all holistic healing, we've experienced (as we were told we would) the good old " peeling back of the layers of the onion " - where old injuries resurface briefly, then seem to be released from the body. This occurred with old lyme sxs which have been completely absent for over 1 year, as well as old sports injuries resurfacing briefly, then disappearing. If your physical therapist is trained in this technique, then you can receive it from them. (One must be a " hands on " health care practitioner in order to be trained in this technique, as advanced anatomy & physiology are required.) From what I've read, this technique is about 50 years old; began in Australia by a very gifted healer & not only balances autonomic system, but boosts the immune system as a result of autonomic balance being restored. Here are 2 websites for your perusal... USBOWEN.COM MERCOLA.COM (upper right - search box, type in NST; then when page loads, there will be an option to find practitioner in your area. Canada is also included at this site). Hope this is helpful - feel free to email if you'd like more info. Blessings! PS - Supposed to be VERY effective in relieving pain as well. > I would also like to know more about NST. Can I receive it from a physical > therapist's office? > > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Thank you synchronicity for your help about NST. I will look into it and have emailed a practitioner in the Houston area. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Chris: if you know someone in the Houston, Tx area, please let me know. I am so ill right now, espec. after the attempted and failed picc line insertion. Pain 10+ and chills, etc. Thanks for your kindness...where would the world be without people like yourself...probably not liveable. Warm wishes to all, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Dear Donna, You are MOST welcome for info. My entire internet existence is solely to find treatments to help victims of lyme!!!! As I'm sure you know, these diseases really turn life upside-down & can be quite frightening until one finds their answer as to how to eradicate & restore homeostasis... Seems it goes in steps - one thing works to a point, then another is needed. This is a GIANT step in the right direction, as energy continues to improve by the day! Blessings, Chris > Thank you synchronicity for your help about NST. I will look into it and > have emailed a practitioner in the Houston area. > > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Dear Donna, Oops... Forgot to ask if you would please let us all know about your treatments (or if you need further info on practitioners - will do all we can to help!)... Thanks! Blessings, Chris PS - Also, applied kinesiology (releasing old aches /pains / injuries) is awesome as well & can be done right before NST tx. (Assuming doc is trained in this technique.) > Thank you synchronicity for your help about NST. I will look into it and > have emailed a practitioner in the Houston area. > > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear Donna, I am in the process of emailing all the practitioners in the Houston area - as silly as this sounds, MSN (HATE IT) doesn't display your email address completely, so I cannot send you a copy of the email. If you will email me off list (so that I can save to my addy book), I will forward my emails to these practitioners. As soon as I receive responses, I will then forward them to you! Thank you for the kind words - no biggie on this end - we've overcome the lyme & you haven't YET - keep the faith!!!!! (Isn't that WHY we're all HERE in the earth - to help one another, lend a helping hand / share knowledge and perspectives???) BIG HUGS! Chris PS My email is SYNCHRONICITY336@... IF YOU ARE TOO ILL TO EMAIL, CAN YOU HAVE A FRIEND SEND ME YOUR COMPLETE ADDY SO THAT I WILL THEN BE ABLE TO FORWARD ANSWERS TO INQUIRIES? > Chris: if you know someone in the Houston, Tx area, please let me know. I > am so ill right now, espec. after the attempted and failed picc line > insertion. Pain 10+ and chills, etc. > > Thanks for your kindness...where would the world be without people like > yourself...probably not liveable. > > Warm wishes to all, > > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 If you right click on the person's name in the from column and then on properties, it will give the whole email addy. FYI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear , Thanks! when i do as you suggested, properties show lyme-aid. do you have msn? if so, could you please tell me how to SAVE emails - esp. pix? no one i know has ideas... blessings chris > If you right click on the person's name in the from column and then on properties, it will give the whole email addy. > FYI > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 I do have MSN and did you rt click on the person's name and then click on properties? The screen that pops up has the person's whole addy on it, under lyme-aid. To save email, click on edit at top of page and then move to folder. You can create a folder or send it to saved mail. Highlight the folder you want it to go to and then OK. To create a new folder, click on edit, move to folder, new folder, type in whatever you want it to say and then click ok. HTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Dear , Tried right clicking on your name, then properties. NO email addy under lyme-aid. (I'm running xp - perhaps that's the problem???) Will try your save email remedy... Don't think I have an EDIT option in email. Thanks again. Blessings, CHris > I do have MSN and did you rt click on the person's name and then click on properties? The screen that pops up has the person's whole addy on it, under lyme-aid. > > To save email, click on edit at top of page and then move to folder. You can create a folder or send it to saved mail. Highlight the folder you want it to go to and then OK. To create a new folder, click on edit, move to folder, new folder, type in whatever you want it to say and then click ok. HTH > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 I know nothing about xp but just happen to have someone coming over today to fix my system who does and I will ask him about the email stuff, if I can remember. Am writing myself a post-it right now. Quote Link to comment Share on other sites More sharing options...
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