Re: : Nominate an angel for the Oprah Network

[Guest guest]

Hi Robynn,

I think this is a great idea, the more the merrier, and the greater our

chances of getting someone from the world of LD elected. Can you post the

website again, and what is the cut-off date to get nominations in.

Hugs,

Marta

From: and/or Robynn <nebneb@...>

Through some discussions with others about this idea I came up with another

idea. What if we nominate many different Lyme people for this " award " ?

That way isn't their only Lyme option. I'm thinking if we nominate a

lot of different Lymies for their Lyme work someone at Oprah may say, " Wow.

There sure is a lot of activity surrounding this disease. Maybe we should

look into it a bit more. " Also, because their definition of the kind of

person they are looking for isn't very detailed they may be looking for

someone who isn't so national already.

Since they aren't tracking who is writing to them I think it's worth a try

to nominate more than one person. Maybe your local support group leader.

Or your doctor. Or whoever YOU think really is an angel.

What do you guys think?

Robynn

[Guest guest]

Here is the Oprah site where you can find the form to fill out:

http://www.oprah.com/tows/intheworks/plugs_85.html#theform

This is where all the (limited) information is at.

Robynn

Re: [ ] : Nominate an angel for the Oprah Network

Hi Robynn, I think this is a great idea, the more the merrier, and the greater ourchances of getting someone from the world of LD elected. Can you post thewebsite again, and what is the cut-off date to get nominations in.Hugs,MartaFrom: and/or Robynn <nebneb@...>Through some discussions with others about this idea I came up with anotheridea. What if we nominate many different Lyme people for this "award"?That way isn't their only Lyme option. I'm thinking if we nominate alot of different Lymies for their Lyme work someone at Oprah may say, "Wow.There sure is a lot of activity surrounding this disease. Maybe we shouldlook into it a bit more." Also, because their definition of the kind ofperson they are looking for isn't very detailed they may be looking forsomeone who isn't so national already.Since they aren't tracking who is writing to them I think it's worth a tryto nominate more than one person. Maybe your local support group leader.Or your doctor. Or whoever YOU think really is an angel.What do you guys think?Robynn

[Guest guest]

i have nominated Dr Ray .

this is my post;

A doctor by the name of Ray from New Haven Conn. saved my

children's lives and mine. The three of us are infected with Lyme disease,

human ehrlichiosis and human babesiosis He has undertaken the enormous task

of caring for thousands of children across the country who have Lyme disease

and co-infections. Dr is in his 70's, he walks with a cane and suffers

from a life threatening autoimmune disease. This does not stop him, or even

slow him down, in working literally 7 days a week all year to help the

children of Lyme disease. I can provide you with a fascinating video, which

focuses on Dr and a few of " his kids " . My daughter has been infected

all her life. When she was 8 her maternal grandmother died. The stress

caused her to have a " flare " (like MS or Lupus patients endure) which caused

her to have visual hallucinations, psychosis, dementia, severe cognitive

decline, visual cortex damage causing an inability to read, emotional

lability in the form of depression, suicidal and homicidal ideations. We had

to make the heartbreaking decision to place our baby in a locked pediatric

psychiatric unit for her own safety. She spent almost 4 weeks there the

summer she turned 9. While there another fantastic doctor, Dr

Stromberg, suggested we have an MRI done even though our insurance would not

pay. The results came back with " multiple lesions throughout the brain,

primarily in the frontal lobes " . This began our agonizing journey from

doctor to specialist to doctor and seemingly endless testing, which she

bravely endured. A pediatric neurologist at a major Boston hospital told us

she had a " tentative " diagnosis of Mitochondrial disease. People with this

diagnosis waste away and we were told the prognosis was hopeless. There is

no treatment for Mito. I researched feverishly and found a paper " The

Neuropsychiatric Assessment of Lyme Disease " by Bransfield, M.D. This

described Meredith's symptoms and I had been taking her to her pediatrician

since early childhood asking for Lyme tests. It took us 2 years to find Dr

. Dr Ray is the only doctor in the USA that understands

how to test for and diagnosis these infections and that will treat these

horrifying diseases aggressively in pediatric patients. He has treated over

3000 children. We travel 340 miles and pay out of pocket to have our kids be

cared for by him. Every time we are there we meet families who have come

even further than us to see him. He is an angel on earth. I have told so

many people this. I thank God every day for Dr . In a world of

increasing financial greed and lack of respect by doctors and insurance

companies for patients, Dr is as close to a living saint that I have

ever seen.

[Guest guest]

Hi Kay,

What a wonderful nomination, I sure hope he wins, I will send in another

nomination for him using some of the information you provided. You have

really been to hell and back as has poor Meredith, you are so fortunate Dr

is over seeing her treatment.

Much love,

Marta

From: kay <b10g7@...>

>i have nominated Dr Ray .

>

>this is my post;

>

>A doctor by the name of Ray from New Haven Conn. saved my

>children's lives and mine. The three of us are infected with Lyme disease,

>human ehrlichiosis and human babesiosis He has undertaken the enormous task

>of caring for thousands of children across the country who have Lyme

disease

>and co-infections. Dr is in his 70's, he walks with a cane and

suffers

>from a life threatening autoimmune disease. This does not stop him, or even

>slow him down, in working literally 7 days a week all year to help the

>children of Lyme disease. I can provide you with a fascinating video, which

>focuses on Dr and a few of " his kids " . My daughter has been infected

>all her life. When she was 8 her maternal grandmother died. The stress

>caused her to have a " flare " (like MS or Lupus patients endure) which

caused

>her to have visual hallucinations, psychosis, dementia, severe cognitive

>decline, visual cortex damage causing an inability to read, emotional

>lability in the form of depression, suicidal and homicidal ideations. We

had

>to make the heartbreaking decision to place our baby in a locked pediatric

>psychiatric unit for her own safety. She spent almost 4 weeks there the

>summer she turned 9. While there another fantastic doctor, Dr

>Stromberg, suggested we have an MRI done even though our insurance would

not

>pay. The results came back with " multiple lesions throughout the brain,

>primarily in the frontal lobes " . This began our agonizing journey from

>doctor to specialist to doctor and seemingly endless testing, which she

>bravely endured. A pediatric neurologist at a major Boston hospital told us

>she had a " tentative " diagnosis of Mitochondrial disease. People with this

>diagnosis waste away and we were told the prognosis was hopeless. There is

>no treatment for Mito. I researched feverishly and found a paper " The

>Neuropsychiatric Assessment of Lyme Disease " by Bransfield, M.D.

This

>described Meredith's symptoms and I had been taking her to her pediatrician

>since early childhood asking for Lyme tests. It took us 2 years to find Dr

>. Dr Ray is the only doctor in the USA that understands

>how to test for and diagnosis these infections and that will treat these

>horrifying diseases aggressively in pediatric patients. He has treated over

>3000 children. We travel 340 miles and pay out of pocket to have our kids

be

>cared for by him. Every time we are there we meet families who have come

>even further than us to see him. He is an angel on earth. I have told so

>many people this. I thank God every day for Dr . In a world of

>increasing financial greed and lack of respect by doctors and insurance

>companies for patients, Dr is as close to a living saint that I have

>ever seen.