Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Hi Lovette, that is an excellent tactic, addressing people affliated with ALDF and giving them some food for thought. I am sure they will be very interested in hearing what people with lyme disease have to say about these quacks. We should be doing that more often. If ALDF starts losing credibility and funds, they won't be able to wage their falsehoods about lyme disease and short term antibiotic treatment. Way to go, Lovette! i hope you are feeling a little better relizabeth << This is my official response at Crichton's website to his affiliation with the June 1st " gala " ALDF Event: I read that you will be attending a Lyme disease " gala " which the ALDF is sponsoring on June 1st. Why are you attending this event? Are you aware that ALL patient advocacy and support groups view this group as inbred, greedy, and completely opposed to helping Lyme disease victims? The common perception in the Lyme community is that their board members work for insurance companies who seek to deny Lyme victims much-needed antibiotics, and that they are harassing our Lyme literate doctors by filing complaints against them with licensing boards for overuse of antibiotics. Please reconsider your association with this group. There is nothing to be " festive " about at a gala dance when Lyme disease victims are in wheelchairs, and have neurotoxins clouding their brains and destroying their lives. I was an attorney for 17 years, as well as a 4th year Seminary student when Lyme disease incapacitated me, and my entire family, in August of 1998. My husband and daughter are now asymptomatic after 9 months of long-term antibiotics, but my 14 year old son, who used to be in the gifted program in school is now failing and needs to be on long-term antibiotics but his doctor's license was revoked for treating Lyme patients with long-term antibiotics. My son's life and my life are ruined, and yet the ALDF believes there is something to celebrate! I simply cannot fathom this - would there be a gala event, and dance with festivities for polio victims, or AIDS victims? I hardly think so. I trust that you will make the right decision and end your affiliation with this event. I have read all of your books, but unfortunately, I can no longer read because of this illness, and I must wear sunglasses indoors due to light sensitivity. I cannot integrate letters into a Scrabble Board - this is an absolutely devastating disease, and certainly not one to be celebrated! I am happy to discuss this further with you if you are interested. Lovette Mott, Esquire 2389 Chambersburg Road Biglerville, PA 17307 (717) 334-6339 smott@... >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 In a message dated 4/25/00 3:09:16 AM Central Daylight Time, smott@... writes: << I simply cannot fathom this - would there be a gala event, and dance with festivities for polio victims, or AIDS victims? I hardly think so. >> I agree with the general tone of your letter...but there are fundraisers all the time for diseases. You have to have an event the rich want to attend in a tuxedo and cocktail dress to mingle with other celebrities in order to get their money. Spend money to make money. I am completely behind the work of the LDF and believe their message is far more accurate than that of the ALDF. But, I am somewhat surprised the LDF has never had a gala...or I just haven't heard of it. Their approach is more low-key whereas the ALDF has gone the big PR route. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Go Lovette, That was a great letter, Connie, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Hey! Let's do something on the west coast. I can wish can't I? Seriously, with the power and exposure of California, the entire country would be sandwiched in. We even have a Lyme law on the books (though it could be better). With the glitz of southern California, what hasn't there been a gala affair? I didn't know that there were to philosophical approaches. Can anyone confirm whether there has or has not been such an event? California dreamin' Annie Quote Link to comment Share on other sites More sharing options...
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