New to group

[Guest guest]

wrote:

> I dont understand what folders everyone is talking about to refer

back to.

==>You need to go directly to the group's website. On the left menu

there's Home, Messages, Files, Links, etc. Click on Files and you will

get all of the folders and files for our group.

Bee

P.S. Please trim your messages - see our Files for the Group

Info Folder to find out how to do it correctly. Thanks a bunch.

[Guest guest]

Lower back here L2,L3,L4,L5 is gone.

Hoolihanma

[Guest guest]

Oh my gosh, Leslee. It really makes me wonder, if a nurse with

medical background like yours, couldn't get the appropriate tests for

YEARS, how many people are just never getting the right tests, never

having the option for surgery (yes dangerous, but often the only

thing that works) and just living their lives out in pain.

There are a lot of people on this list who have had that kind of

surgery. I had mine in my cervical spine, so the fact that it was the

best decision I ever made (to have that surgery) isn't necessarily

helpful for someone with a problem in the lumbar area.

So...any lumbar folks out there?

Shulamit

--- leslee_white <leslee_white@...> wrote:

> group. I asked repeatedly for an MRI because I just wasnt getting

> better(in my opinion). She insisted that I was getting better and

> would not order an MRI. It took me three years to finally get

> someone to order an MRI, and things have started moving now.

<snip>

> spinal care. The pain clinic doc says he thinks I will need a 1 or

2 level discectomy with fusion. My PCP agrees. I don't see the new

ortho doc until Jan31.

[Guest guest]

At 11:03 AM 1/17/2006, you wrote:

>Good morning everyone. I am new here, just joined yesterday. Here

>is a little about me. I am a 35yo married mother of 2 (6year old

>and a 9 year old). I am a registered nurse. My husband is in the

>Army. I worked as a surgical/pediatric nurse for 11 years. I have

>battled lumbar back pain for the past 13 years as a result of

>repeated insults and injuries sustained mostly from work.

Leslee, in all the research I've done online because of my own back

problems, I've read so much from nurses who have injured or aggravated

their backs on the job. It's a tough job and gives new meaning to the

time-worn expression " no heavy lifting " when people describe how

hard something is or isn't to do. Nursing is definitely " heavy lifting. "

I think you have an advantage over the rest of us, though, in that you know

how some of this medical " stuff " works. You know that you have to approach

your doctor at your upcoming visit with the caveat that he has to walk you

through all of this the same way he'd have to with one of us, even though

he knows you, you know him and he might want to assume too much as to what

you know about your condition.

I remember when I was still working at the courthouse before I retired, and

a woman came in to see me for an interview about a custody matter. She was

a surgical nurse, and she was obviously very nervous and explained by

offering this parallel: If I had to go into a hospital ... the place where

SHE worked ... I'd be nervous, too. But it's her everyday surroundings,

she's used to the sights and sounds, and she would know what to

expect. Same thing at the courthouse. They were my surroundings, her

unknown. I remember thinking about her the day I went in for my back

surgery. Many of us get very nervous at the thought of just not knowing.

Anyway, I'm blabbing ...

Best of luck with your appointment on the 31st.

http://thebacklog.blogspot.com/

[Guest guest]

Hi ,

welcome to the group! You'll find tons of information here.

Die-off affects everyone differently. It incapacitates some people and

others feel almost nothing. If you've been reading posts the last few

days you've already read examples of just that.

The best thing you can do for yourself is to take things

slowly...follow Bee's recommended diet and get that down pat before

you start introducing antifungals and probiotices. Bee's diet is

unlike other anti-candida diets out there...please read through the

information you were sent when you subscribed to the group and you'll

understand better...as well, you would be doing yourself a big favor

to read through the articles contained int the group Files entitled

" Die-off Symptoms " and the one called " Healing Reaction,The " .

As you get into the diet and die-off starts to happen (and it will,

there's no avoiding it), there are many things you can do to help ease

the symptoms...and there is information in the files on that too,

depending on what your personal symptoms are that is.

Plus, we're all here to help! But do read those files in order to get

off to the best start.

jackie

The one thing I had trouble overcoming was a die-off reaction that

seemed to cause me to have some mental problems. I ended up giving up

the changes because of issues I had with that. I also wonder if I had

introduced something into my diet that could have had this effect. I

did research some about this phenomenon, but wondered if there was any

feedback from some experienced dieters.

>

[Guest guest]

--- jahlstrom78 <jahlstrom@...> wrote:

> Die-off affects everyone differently. It

> incapacitates some people and

> others feel almost nothing. If you've been reading

> posts the last few

> days you've already read examples of just that.

Like me, I have almost no symptoms. I'm very obese

and used to eat sugar (literally) by the large

spoonful because I didn't know any better.

In fact my brother who used to like to cruelly trick

me told me long ago that sugar didn't have any

calories, and I believed him for many years (until my

early twenties) because I didn't know any better, I

just never questioned it.

I used to drink many daily glasses of milk that had

about 1/2 cup of sugar mixed in it. This was due to

some abuse I had from my stepmother, and milk and

sugar were the only things that I seemed to be able to

get away with eating without incurring her wrath since

my Dad bought those in the house (long story).

Also I had a lot of recurring bladder infections when

I was a kid where I had to take so many antibiotics my

teeth are permanently stained yellow.

I eat anti-candida to lose weight and to improve my

health. Just because I have almost no symptoms

doesn't mean I don't have candida. I'm convinced I

do, and I'm convinced this is the healthiest way to

eat, candida or not.

Luv,

Debby

San , CA

Website for my son Hunter Hudson, born 10/11/04:

http://debbypadilla.0catch.com/hunter/

[Guest guest]

yes Debby, you can start eating healthly now, it is never to late to want to

improve your health and when you do it the pounds surely start to fall off, i

wish you all the luck and stay tune to this web site for encouragement, good

luck

Debby Padilla-Hudson <debbypadilla@...> wrote:

--- jahlstrom78 <jahlstrom@...> wrote:

> Die-off affects everyone differently. It

> incapacitates some people and

> others feel almost nothing. If you've been reading

> posts the last few

> days you've already read examples of just that.

Like me, I have almost no symptoms. I'm very obese

and used to eat sugar (literally) by the large

spoonful because I didn't know any better.

In fact my brother who used to like to cruelly trick

me told me long ago that sugar didn't have any

calories, and I believed him for many years (until my

early twenties) because I didn't know any better, I

just never questioned it.

I used to drink many daily glasses of milk that had

about 1/2 cup of sugar mixed in it. This was due to

some abuse I had from my stepmother, and milk and

sugar were the only things that I seemed to be able to

get away with eating without incurring her wrath since

my Dad bought those in the house (long story).

Also I had a lot of recurring bladder infections when

I was a kid where I had to take so many antibiotics my

teeth are permanently stained yellow.

I eat anti-candida to lose weight and to improve my

health. Just because I have almost no symptoms

doesn't mean I don't have candida. I'm convinced I

do, and I'm convinced this is the healthiest way to

eat, candida or not.

Luv,

Debby

Sa dn , CA

Website for my son Hunter Hudson, born 10/11/04:

http://debbypadilla.0catch.com/hunter/

[Guest guest]

Hi, Tom!

Yes, Lyme can go away completely. Even if you still have some lying dormant

(those cystic ones, or whatever they call them), as long as you keep yourself

healthy, your immune system will have a good chance of keeping it in check.

Has your doc done a CD-57? This is a good indicator of how active the

infection is. From what I've read, if you stop treatment while the CD-57 is

still low, you are likely to relapse. Once it's well within a normal range, as

long as symptoms are also gone, you are much safer in discontinuing treatment.

The recommended lab for the CD-57 is a specific LabCorp in California. I

have the phone number - can email it if you'd like. Your doc may need to call

the lab for instructions, address, etc.

Good luck with it.

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Hi Tom,

Welcome to the group. This is a very knowledgeable group of folks.

It could take you well over a year to completely beat Lyme. I've been

at it for 3 years and I'm still working on it. I was infected for at

least a year, if not longer, before diagnosis. The longer one goes

untreated the longer it can take to get well.

It sounds like your doctor has a good treatment plan, so I suggest you

hang in there and be patient!

Jessie

>

> Hi, my name is Tom. I live in Kansas City and was diagnosed with Lyme

> last year. The first 8 months of my illness, I thought I had CFIDS or

> something like it as I had a sudden onset with flu-like symptoms that

> only worsened. I was tested for lyme 3 times, but tests were always

> negative, until I visited Dr. Carol Ann Ryser. She used a serial

> dilution test and a buffy coat smear test from a research lab in

> Florida and it was then I discovered that I had both babesiosis and

> traditional lyme. I have been taking zithromax with mepron for about

> 6 months to treat the babesiosis, then I switched to zith with

> tindazole for treatment of the lymes. Next month she wants me to

> switch again to clindamycin and quinine. This will be over a year on

> different types of treatment. Is this typical? Will this every go

> away completely? I feel much better now, but still get easily

> fatigued and am afraid to return to work as it is physical and might

> cause a relapse. Any info will be greatly appreciated. Tom in KC

>

[Guest guest]

Jim: I graduated today! No more neck brace or soft collar!!! Thought about

this day all this time since my surgery, and guess what? I feel undressed

without it! It was sort of scary driving home without the brace. I found out

that I have a forever lasting spinal cord injury as there was more damage done

than I thought, and that info was given to me but I think the pain meds kept me

from really hearing and understanding it all when the doc told me all this. He

changed the dose of neurontin, and is getting me a TENS unit for the pain as I

am having a hard time taking medicine when I am working, so wish me well for the

pain relief on that. Has anyone used the TENS for the pain? Does it work well?

By the way the surgeon is the best in Phoenix, Az. He has successfuly performed

three internal decapations! His name is Dr. A. Gianni Vishteh, and is the very

best. He spent the whole night after my surgery in my room, and never left me

once that whole night.

The info I have gotten from this Group has been so helpful, and now that I am

feeling better and not so drugged I think I will learn even more. Thanks for

the helpful things I have gotten.. I hope the new drug you are taking is

helping. Please let me know. I will be anxious to know how it works.

Shirley

Jim <jm_mcgrgr@...> wrote:

Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs

ago. This also left me with arm & hand nerve damage primarily on the

left side. The Neurologist who did my operations put me on Neurontin

back then & altho it has helped its not going to relieve all your

pain. I read something like 30-60% better depending on the person.

Neurontin was a drug designed for seizures & they found it would in

some folks work for nerve damage pain as well. Now Pfizer has come

out with

a new drug designed more for nerve pain called " lyrica " . New so no

long term reports yet & my G.P. just switched me over less then a

week ago so to early to tell how it will work for me. Can only say

he told me has now switched about 12 of his patients over to lyrica

& so far they all prefer it ! At the very least its worth asking

your DR. about it.... JIM....

>

> I am taking Neurontin for the Neuropathy in my hands and arms.

Not for the back, and I guess you are right about one hurting

because of the other. I am starting to have spasms in the shoulder

area, however was sort of expecting that one. I guess I am just

beginning to see the seriousness of what was done. Had and

excellent doctor, and just wondering the long term affects if anyone

else had similar surgery as mine. Thanks

> Shirley

>

> Carlene Farmer <birddog@...> wrote:

> wondering why you are taking neurontin--not related to your

back, right? i still have nerve damage in one big toe from a

laminectomy 10 years ago--they seem to be getting better about that

but still they have to do so much cutting that it seems impossible

to hit some nerves and also with fusion.

>

> if you had part of your upper spine fused, i would wonder if that

is bothering your low back. if we restrict movement in one area,

the others feel it.

>

> Carlene

>

> New to group

>

>

> I just had Cervical Laminectomy with Mass Screws. and Fusion C3

thru

> C6 Jan. 5th, any advise on Recovery past the two month mark, so

far

> lots of nerver damage in my hands and arms, feels like steam burns

on

> my hands and arms, and when I put my right hand in water it makes

my

> elbow hurt! Any ideas if Neurontin causes chest pain? I have it

when

> I take it, if I stop taking the chest pain goes away. Any and all

> suggestions are appreciated. My lower back aches when I sit for

any

> length of time. Could that be related.

> Shirley

>

>

>

>

>

>

[Guest guest]

MY sister used one for awhile, and she was satisfied with how it helped her.

Shirley Moma <shirleymoma@...> wrote:

Jim: I graduated today! No more neck brace or soft collar!!! Thought about

this day all this time since my surgery, and guess what? I feel undressed

without it! It was sort of scary driving home without the brace. I found out

that I have a forever lasting spinal cord injury as there was more damage done

than I thought, and that info was given to me but I think the pain meds kept me

from really hearing and understanding it all when the doc told me all this. He

changed the dose of neurontin, and is getting me a TENS unit for the pain as I

am having a hard time taking medicine when I am working, so wish me well for the

pain relief on that. Has anyone used the TENS for the pain? Does it work well?

By the way the surgeon is the best in Phoenix, Az. He has successfuly performed

three internal decapations! His name is Dr. A. Gianni Vishteh, and is the very

best. He spent the whole night after my surgery in my room, and never left me

once that whole night.

The info I have gotten from this Group has been so helpful, and now that I am

feeling better and not so drugged I think I will learn even more. Thanks for

the helpful things I have gotten.. I hope the new drug you are taking is

helping. Please let me know. I will be anxious to know how it works.

Shirley

Jim <jm_mcgrgr@...> wrote:

Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs

ago. This also left me with arm & hand nerve damage primarily on the

left side. The Neurologist who did my operations put me on Neurontin

back then & altho it has helped its not going to relieve all your

pain. I read something like 30-60% better depending on the person.

Neurontin was a drug designed for seizures & they found it would in

some folks work for nerve damage pain as well. Now Pfizer has come

out with

a new drug designed more for nerve pain called " lyrica " . New so no

long term reports yet & my G.P. just switched me over less then a

week ago so to early to tell how it will work for me. Can only say

he told me has now switched about 12 of his patients over to lyrica

& so far they all prefer it ! At the very least its worth asking

your DR. about it.... JIM....

>

> I am taking Neurontin for the Neuropathy in my hands and arms.

Not for the back, and I guess you are right about one hurting

because of the other. I am starting to have spasms in the shoulder

area, however was sort of expecting that one. I guess I am just

beginning to see the seriousness of what was done. Had and

excellent doctor, and just wondering the long term affects if anyone

else had similar surgery as mine. Thanks

> Shirley

>

> Carlene Farmer <birddog@...> wrote:

> wondering why you are taking neurontin--not related to your

back, right? i still have nerve damage in one big toe from a

laminectomy 10 years ago--they seem to be getting better about that

but still they have to do so much cutting that it seems impossible

to hit some nerves and also with fusion.

>

> if you had part of your upper spine fused, i would wonder if that

is bothering your low back. if we restrict movement in one area,

the others feel it.

>

> Carlene

>

> New to group

>

>

> I just had Cervical Laminectomy with Mass Screws. and Fusion C3

thru

> C6 Jan. 5th, any advise on Recovery past the two month mark, so

far

> lots of nerver damage in my hands and arms, feels like steam burns

on

> my hands and arms, and when I put my right hand in water it makes

my

> elbow hurt! Any ideas if Neurontin causes chest pain? I have it

when

> I take it, if I stop taking the chest pain goes away. Any and all

> suggestions are appreciated. My lower back aches when I sit for

any

> length of time. Could that be related.

> Shirley

>

>

>

>

>

>

[Guest guest]

Good to hear you're doing so well! Let me know how the TENS unit works for you.

I have my decompression and fusion next Thursday and the NSG alluded to the TENS

unit in about 3-4 weeks.

-

New to group

>

>

> I just had Cervical Laminectomy with Mass Screws. and Fusion C3

thru

> C6 Jan. 5th, any advise on Recovery past the two month mark, so

far

> lots of nerver damage in my hands and arms, feels like steam burns

on

> my hands and arms, and when I put my right hand in water it makes

my

> elbow hurt! Any ideas if Neurontin causes chest pain? I have it

when

> I take it, if I stop taking the chest pain goes away. Any and all

> suggestions are appreciated. My lower back aches when I sit for

any

> length of time. Could that be related.

> Shirley

>

>

>

>

>

>

[Guest guest]

That is great news Shirley. You give me hope that freedom from the cervical

collar does actually happen!!!! I had C2-3 and C4-5 fused on Feb 7th. I am now

fused either surgically or genetically from C2 all the way to C7. I went for my

6 week post op today and thought I was doing great but the Dr said no driving or

work for another 6 weeks! I feel fine and have no real pain so I was

disappointed. The only tingling I have is in my left hand which he said tells

him that my spinal cord is " receiving some pretty good pressure and could

still be swollen. " We knew this could be a problem going in because I have a

spinal cord injury at C4-5 but I really do feel fine. I know I am just impatient

but I am still frustrated.

BTW- is it ok to drive with a neck brace in AZ??? I live in San Diego,

California and have been wearing either a soft or hard collar since June 2005

and my Dr said it was against the law to wear the collar while driving so when I

drove around, I took it off. I even wore the soft collar to Disneyland.

( I am not complaining about my Doc as I think he is amazingly talented, I am

just tired of being under house arrest.)

Debra

Beverley <wargames06@...> wrote:

Good to hear you're doing so well! Let me know how the TENS unit works for

you. I have my decompression and fusion next Thursday and the NSG alluded to

the TENS unit in about 3-4 weeks.

-

New to group

>

>

> I just had Cervical Laminectomy with Mass Screws. and Fusion C3

thru

> C6 Jan. 5th, any advise on Recovery past the two month mark, so

far

> lots of nerver damage in my hands and arms, feels like steam burns

on

> my hands and arms, and when I put my right hand in water it makes

my

> elbow hurt! Any ideas if Neurontin causes chest pain? I have it

when

> I take it, if I stop taking the chest pain goes away. Any and all

> suggestions are appreciated. My lower back aches when I sit for

any

> length of time. Could that be related.

> Shirley

>

>

>

>

>

>

[Guest guest]

No it isn't ok to drive with the neck brace or collar in Arizona, but, Arizona

just made it legal to drive if you are legally blind with some sort of

adaptation, so if you can drive blind, I figure I could drive with the soft

collar! I admit if I saw a police man, I took it off. Driving with the collar

was a real trick in itself. Anyway I went back to work at two months, my

coworkers drove me for a week, then I started driving myself. It is like being

prisoner. I am feeling fine, just the burning in my hands. And it is hard when

you go back to work, just the fact that you can't break when you want to is

hard, sitting and standing, is also hard.

Shirley

Debra Rodebaugh <debrar65@...> wrote:

That is great news Shirley. You give me hope that freedom from the cervical

collar does actually happen!!!! I had C2-3 and C4-5 fused on Feb 7th. I am now

fused either surgically or genetically from C2 all the way to C7. I went for my

6 week post op today and thought I was doing great but the Dr said no driving or

work for another 6 weeks! I feel fine and have no real pain so I was

disappointed. The only tingling I have is in my left hand which he said tells

him that my spinal cord is " receiving some pretty good pressure and could

still be swollen. " We knew this could be a problem going in because I have a

spinal cord injury at C4-5 but I really do feel fine. I know I am just impatient

but I am still frustrated.

BTW- is it ok to drive with a neck brace in AZ??? I live in San Diego,

California and have been wearing either a soft or hard collar since June 2005

and my Dr said it was against the law to wear the collar while driving so when I

drove around, I took it off. I even wore the soft collar to Disneyland.

( I am not complaining about my Doc as I think he is amazingly talented, I am

just tired of being under house arrest.)

Debra

Beverley <wargames06@...> wrote:

Good to hear you're doing so well! Let me know how the TENS unit works for

you. I have my decompression and fusion next Thursday and the NSG alluded to

the TENS unit in about 3-4 weeks.

-

New to group

>

>

> I just had Cervical Laminectomy with Mass Screws. and Fusion C3

thru

> C6 Jan. 5th, any advise on Recovery past the two month mark, so

far

> lots of nerver damage in my hands and arms, feels like steam burns

on

> my hands and arms, and when I put my right hand in water it makes

my

> elbow hurt! Any ideas if Neurontin causes chest pain? I have it

when

> I take it, if I stop taking the chest pain goes away. Any and all

> suggestions are appreciated. My lower back aches when I sit for

any

> length of time. Could that be related.

> Shirley

>

>

>

>

>

>

[Guest guest]

Hi Shirley, glad your feeling better & finally out of the collar.

I had to wear a hard one for the better part of a year & then Dr.

switched me to a soft one for a few months after that. I was using

my soft one at night & removing it most of the day, but sure was

happy when he told me I could throw it. Sorry I can't help you with

the " tens " unit. Keep hearing about them, but have no idea how they

work or what results people get from them? Take care Jim...

> Jim: I graduated today! No more neck brace or soft collar!!!

Thought about this day all this time since my surgery, and guess

what? I feel undressed without it! It was sort of scary driving

home without the brace. I found out that I have a forever lasting

spinal cord injury as there was more damage done than I thought, and

that info was given to me but I think the pain meds kept me from

really hearing and understanding it all when the doc told me all

this. He changed the dose of neurontin, and is getting me a TENS

unit for the pain as I am having a hard time taking medicine when I

am working, so wish me well for the pain relief on that. Has anyone

used the TENS for the pain? Does it work well? By the way the

surgeon is the best in Phoenix, Az. He has successfuly performed

three internal decapations! His name is Dr. A. Gianni Vishteh, and

is the very best. He spent the whole night after my surgery in my

room, and never left me once that whole night.

> The info I have gotten from this Group has been so helpful, and

now that I am feeling better and not so drugged I think I will learn

even more. Thanks for the helpful things I have gotten.. I hope the

new drug you are taking is helping. Please let me know. I will be

anxious to know how it works.

> Shirley

>

> Jim <jm_mcgrgr@...> wrote:

> Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs

> ago. This also left me with arm & hand nerve damage primarily on

the

> left side. The Neurologist who did my operations put me on

Neurontin

> back then & altho it has helped its not going to relieve all your

> pain. I read something like 30-60% better depending on the person.

> Neurontin was a drug designed for seizures & they found it would

in

> some folks work for nerve damage pain as well. Now Pfizer has come

> out with

> a new drug designed more for nerve pain called " lyrica " . New so no

> long term reports yet & my G.P. just switched me over less then a

> week ago so to early to tell how it will work for me. Can only say

> he told me has now switched about 12 of his patients over to

lyrica

> & so far they all prefer it ! At the very least its worth asking

> your DR. about it.... JIM....

>

> >

> > I am taking Neurontin for the Neuropathy in my hands and arms.

> Not for the back, and I guess you are right about one hurting

> because of the other. I am starting to have spasms in the

shoulder

> area, however was sort of expecting that one. I guess I am just

> beginning to see the seriousness of what was done. Had and

> excellent doctor, and just wondering the long term affects if

anyone

> else had similar surgery as mine. Thanks

> > Shirley

> >

> > Carlene Farmer <birddog@> wrote:

> > wondering why you are taking neurontin--not related to your

> back, right? i still have nerve damage in one big toe from a

> laminectomy 10 years ago--they seem to be getting better about

that

> but still they have to do so much cutting that it seems impossible

> to hit some nerves and also with fusion.

> >

> > if you had part of your upper spine fused, i would wonder if

that

> is bothering your low back. if we restrict movement in one area,

> the others feel it.

> >

> > Carlene

> >

> > New to group

> >

> >

> > I just had Cervical Laminectomy with Mass Screws. and Fusion C3

> thru

> > C6 Jan. 5th, any advise on Recovery past the two month mark, so

> far

> > lots of nerver damage in my hands and arms, feels like steam

burns

> on

> > my hands and arms, and when I put my right hand in water it

makes

> my

> > elbow hurt! Any ideas if Neurontin causes chest pain? I have

it

> when

> > I take it, if I stop taking the chest pain goes away. Any and

all

> > suggestions are appreciated. My lower back aches when I sit for

> any

> > length of time. Could that be related.

> > Shirley

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Colleen:

My story is similar: I probably had candida from an early age. I

remember in 6th grade (I won't tell you how long ago it was, only

that nobody knew what candida was at that time) I had problem with my

butt -itchy, and a feeling like I couldn't keep it clean. It had

quite an emotional impact. I begged to go to the doctor, who, of

course, had no clue. I also remember in 7th grade, I would sometimes

see whitish curd-like crud growing in the back of my throat. I was

finally diagnosed in 1988 and ahve been working on it ever since.

Maybe I'd have been more successful if I had unlimited funds or

insurance or access to someone who knows what they're doing, but I am

better. I've learned alot about nutrition but am now working on

allergies and possible thyroid/adrenal insufficiency and am also

chelating for mercury. I just ordered some armour to " rev things up "

and may see a good allergist if that doesn't help. I completely

understand how isolating this stuff can be. My friends stopped asking

me out to dinner a long time ago. I now eat 99.9% of my meals at home

cuz there's nothing for me to eat " out there. " We should be given

medals for not having gone iNsAnE by now..............

hang in there,

-m

>

> I'm so frustrated with this candida. I've had it for 25 years. I

> didn't know what it was till about 14 years ago. I remember when I

> was 15 my mom took me to the Dr. becuase I had scratched my butt

> raw. He said it was yeast and gave me a topical ointment. Ten

years

> later and sick as a dog I went through an elimination diet. Quit

> eating all those foods and started to feel better. I managed to

kick

> it for 3 years which required a major life change - a back to the

> land venture which didn't last. It's just an incredible amount of

> self disciple to not eat the wrong food - especially if you have to

> eat out and live in this world. And take the medicines - 3 to 4

> different ones 3-4 times a day - every day or I'll get a flare up.

> I've run the gamet on the over the counter stuff. Raw garlic (no

> wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic,

> pau'd arco, burdock tea, goldenseal, some new herbal extract

mixture

> I found with black walnut extract, if there's something I'm missing

> I can't remember. I've been subject to really bad mood swings which

> now I take meds for - which is probably a yeast symptom. I think

I'm

> to the point of taking a prescription antifungal but I'm really

> scared of that. I wonder if it will interact with the meds I'm

> already on. I heard they were really hard on the liver. And I

wonder

> if they really work. I mean if I take one and for how long will I

> be cured? Or will it just be another pill to take till I die? I'm

> really down on the how thing and feeling like a freak and just

wanna

> be normal and not have to say " um, no. i can't eat that. i can't

> drink that. i can't smell that. i can't breathe that. "

Uggggggggggg.

>

[Guest guest]

Hi Colleen!

Welcome to the group! You've tried so many antifungals without success. I was

wondering if you have Mercury fillings? Have heard that can keep the Candida

from being eliminated. If you do try the prescription antifungals, I would have

a test done before and while taking them to monitor your liver. I have heard

that they can affect your liver.

Beth

New to group

I'm so frustrated with this candida. I've had it for 25 years. I

didn't know what it was till about 14 years ago. I remember when I

was 15 my mom took me to the Dr. becuase I had scratched my butt

raw. He said it was yeast and gave me a topical ointment. Ten years

later and sick as a dog I went through an elimination diet. Quit

eating all those foods and started to feel better. I managed to kick

it for 3 years which required a major life change - a back to the

land venture which didn't last. It's just an incredible amount of

self disciple to not eat the wrong food - especially if you have to

eat out and live in this world. And take the medicines - 3 to 4

different ones 3-4 times a day - every day or I'll get a flare up.

I've run the gamet on the over the counter stuff. Raw garlic (no

wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic,

pau'd arco, burdock tea, goldenseal, some new herbal extract mixture

I found with black walnut extract, if there's something I'm missing

I can't remember. I've been subject to really bad mood swings which

now I take meds for - which is probably a yeast symptom. I think I'm

to the point of taking a prescription antifungal but I'm really

scared of that. I wonder if it will interact with the meds I'm

already on. I heard they were really hard on the liver. And I wonder

if they really work. I mean if I take one and for how long will I

be cured? Or will it just be another pill to take till I die? I'm

really down on the how thing and feeling like a freak and just wanna

be normal and not have to say " um, no. i can't eat that. i can't

drink that. i can't smell that. i can't breathe that. " Uggggggggggg.

[Guest guest]

Hi Beth, Thanks for your reply. I actually have no fillings. No cavities. The

over the counter antifungals will work if I take them everyday. Nothing has

really lasted except when I was eating all fresh organic veggies, very little

meat, very little wheat, very little dairy, no processed food, very few

restaurants, no fast food, no wine, beer etc. No prescription or over the

counter meds. I had decided the only way I was gonna be healthy was to totally

give up on all that. I had the opportunity to venture into an organic produce

farm. I was very healthy but also very secluded from society. Now I'm back

living a " normal " life and under the pressures of living this way. I need to

have more self discipline. When I eat for myself, I don't eat wheat, but can

eat rice, very little dairy, no fruit, or juice, no commercial meat, no

nightshades, no processed foods. I eat alot of green veggies, wild game, sea

fish, and rice. I need to cut out vinegar. And my one weakness wine.

Eating out on business or dates or with other people is hard. If I splurge too

much or too often, I pay. Does the OB/GYN deal with the prescription

antifungals?

Beth Fish <bethafish@...> wrote: Hi Colleen!

Welcome to the group! You've tried so many antifungals without success. I was

wondering if you have Mercury fillings? Have heard that can keep the Candida

from being eliminated. If you do try the prescription antifungals, I would have

a test done before and while taking them to monitor your liver. I have heard

that they can affect your liver.

Beth

New to group

I'm so frustrated with this candida. I've had it for 25 years. I

didn't know what it was till about 14 years ago. I remember when I

was 15 my mom took me to the Dr. becuase I had scratched my butt

raw. He said it was yeast and gave me a topical ointment. Ten years

later and sick as a dog I went through an elimination diet. Quit

eating all those foods and started to feel better. I managed to kick

it for 3 years which required a major life change - a back to the

land venture which didn't last. It's just an incredible amount of

self disciple to not eat the wrong food - especially if you have to

eat out and live in this world. And take the medicines - 3 to 4

different ones 3-4 times a day - every day or I'll get a flare up.

I've run the gamet on the over the counter stuff. Raw garlic (no

wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic,

pau'd arco, burdock tea, goldenseal, some new herbal extract mixture

I found with black walnut extract, if there's something I'm missing

I can't remember. I've been subject to really bad mood swings which

now I take meds for - which is probably a yeast symptom. I think I'm

to the point of taking a prescription antifungal but I'm really

scared of that. I wonder if it will interact with the meds I'm

already on. I heard they were really hard on the liver. And I wonder

if they really work. I mean if I take one and for how long will I

be cured? Or will it just be another pill to take till I die? I'm

really down on the how thing and feeling like a freak and just wanna

be normal and not have to say " um, no. i can't eat that. i can't

drink that. i can't smell that. i can't breathe that. " Uggggggggggg.

[Guest guest]

, I'm not sure that I haven't gone insane! LOL

colleen

<yoonit@...> wrote:

Hi Colleen:

My story is similar: I probably had candida from an early age. I

remember in 6th grade (I won't tell you how long ago it was, only

that nobody knew what candida was at that time) I had problem with my

butt -itchy, and a feeling like I couldn't keep it clean. It had

quite an emotional impact. I begged to go to the doctor, who, of

course, had no clue. I also remember in 7th grade, I would sometimes

see whitish curd-like crud growing in the back of my throat. I was

finally diagnosed in 1988 and ahve been working on it ever since.

Maybe I'd have been more successful if I had unlimited funds or

insurance or access to someone who knows what they're doing, but I am

better. I've learned alot about nutrition but am now working on

allergies and possible thyroid/adrenal insufficiency and am also

chelating for mercury. I just ordered some armour to " rev things up "

and may see a good allergist if that doesn't help. I completely

understand how isolating this stuff can be. My friends stopped asking

me out to dinner a long time ago. I now eat 99.9% of my meals at home

cuz there's nothing for me to eat " out there. " We should be given

medals for not having gone iNsAnE by now..............

hang in there,

-m

>

> I'm so frustrated with this candida. I've had it for 25 years. I

> didn't know what it was till about 14 years ago. I remember when I

> was 15 my mom took me to the Dr. becuase I had scratched my butt

> raw. He said it was yeast and gave me a topical ointment. Ten

years

> later and sick as a dog I went through an elimination diet. Quit

> eating all those foods and started to feel better. I managed to

kick

> it for 3 years which required a major life change - a back to the

> land venture which didn't last. It's just an incredible amount of

> self disciple to not eat the wrong food - especially if you have to

> eat out and live in this world. And take the medicines - 3 to 4

> different ones 3-4 times a day - every day or I'll get a flare up.

> I've run the gamet on the over the counter stuff. Raw garlic (no

> wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic,

> pau'd arco, burdock tea, goldenseal, some new herbal extract

mixture

> I found with black walnut extract, if there's something I'm missing

> I can't remember. I've been subject to really bad mood swings which

> now I take meds for - which is probably a yeast symptom. I think

I'm

> to the point of taking a prescription antifungal but I'm really

> scared of that. I wonder if it will interact with the meds I'm

> already on. I heard they were really hard on the liver. And I

wonder

> if they really work. I mean if I take one and for how long will I

> be cured? Or will it just be another pill to take till I die? I'm

> really down on the how thing and feeling like a freak and just

wanna

> be normal and not have to say " um, no. i can't eat that. i can't

> drink that. i can't smell that. i can't breathe that. "

Uggggggggggg.

>

[Guest guest]

On 5/26/06 6:41 AM, " " <yoonit@...> wrote:

> My friends stopped asking

> me out to dinner a long time ago. I now eat 99.9% of my meals at home

> cuz there's nothing for me to eat " out there. " We should be given

> medals for not having gone iNsAnE by now..............

I relate to this statement 100%!! The friends/dinner thing is HARD because

people just don't realize how much eating and drinking is connected to

socializing (don't even get me started on the drinking...)

And yes, I was just chatting this morning with a friend saying I have

basically been driven INSANE by this, and would just love one freaking day

where I didn't have to worry about what I was going to eat.

_jason_

_________ ________ _______ _____ ____ ___ __ _ _ _

[Guest guest]

Have you tried the nystatin protocol on www.askwaltstollmd.com which also

includes diet and skilled relaxation and exercise?

[Guest guest]

,

I know - I get so tired of thinking about food all the time!

[Guest guest]

I quit drinking all alcohol 9 months ago (although I had

a drink at Easter (white wine) and I just had 2 glasses

last Sat. afternoon). Boy did I feel loopy and craving ALL

the things I don't eat anymore. I can not believe how tipsy

if not drunk I felt after only 2 small servings !!! I did not cave in

and eat what I should not eat but I did feel weird like I was on drugs

and I never did drugs !!

Do the ingredients in the wine stir up the cravings for everything else ?

Thanks.

Maggie

" ..: )::.. " <ombass@...> wrote:

On 5/26/06 6:41 AM, " " <yoonit@...> wrote:

> My friends stopped asking

> me out to dinner a long time ago. I now eat 99.9% of my meals at home

> cuz there's nothing for me to eat " out there. " We should be given

> medals for not having gone iNsAnE by now..............

I relate to this statement 100%!! The friends/dinner thing is HARD because

people just don't realize how much eating and drinking is connected to

socializing (don't even get me started on the drinking...)

And yes, I was just chatting this morning with a friend saying I have

basically been driven INSANE by this, and would just love one freaking day

where I didn't have to worry about what I was going to eat.

_jason_

_________ ________ _______ _____ ____ ___ __ _ _ _

[Guest guest]

OHHH, wine and vinegar. They might be the culprits. What are you eating the

vinegar on? Could you substitute fresh lemon instead? I use to drink wine too.

Didn't think I could ever give it up even if I had gotten pregnant. The last

one was Christmas 2005. A little bit makes me feel bad. I'd rather have a hot

fudge sundae now. How long have you been on this strict diet and antifungals?

I know what you mean about eating out. We hardly did before, but it's even less

now. I try to look at the menu online before going to the restaurant. Still

worry about what they're doing or using in the kitchen.

My OB/GYN wanted to put me on Nizoral years ago and I wouldn't do it. That's

supposed to be one of the worst antifungals on the liver.

Congrats on no fillings! Hate to start taking a bunch of stuff because I have

five fillings and my one and only route canal last Fall. I've heard that

Nystatin may not work because of the Mercury. Sucks to be us!

Beth

New to group

I'm so frustrated with this candida. I've had it for 25 years. I

didn't know what it was till about 14 years ago. I remember when I

was 15 my mom took me to the Dr. becuase I had scratched my butt

raw. He said it was yeast and gave me a topical ointment. Ten years

later and sick as a dog I went through an elimination diet. Quit

eating all those foods and started to feel better. I managed to kick

it for 3 years which required a major life change - a back to the

land venture which didn't last. It's just an incredible amount of

self disciple to not eat the wrong food - especially if you have to

eat out and live in this world. And take the medicines - 3 to 4

different ones 3-4 times a day - every day or I'll get a flare up.

I've run the gamet on the over the counter stuff. Raw garlic (no

wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic,

pau'd arco, burdock tea, goldenseal, some new herbal extract mixture

I found with black walnut extract, if there's something I'm missing

I can't remember. I've been subject to really bad mood swings which

now I take meds for - which is probably a yeast symptom. I think I'm

to the point of taking a prescription antifungal but I'm really

scared of that. I wonder if it will interact with the meds I'm

already on. I heard they were really hard on the liver. And I wonder

if they really work. I mean if I take one and for how long will I

be cured? Or will it just be another pill to take till I die? I'm

really down on the how thing and feeling like a freak and just wanna

be normal and not have to say " um, no. i can't eat that. i can't

drink that. i can't smell that. i can't breathe that. " Uggggggggggg.

[Guest guest]

Wish we all lived closer so we could go out for bottled water and salad greens

with no dressing! LOL (haven't done this in awhile)!!

Beth

Re: Re: New to group

On 5/26/06 6:41 AM, " " <yoonit@...> wrote:

> My friends stopped asking

> me out to dinner a long time ago. I now eat 99.9% of my meals at home

> cuz there's nothing for me to eat " out there. " We should be given

> medals for not having gone iNsAnE by now..............

I relate to this statement 100%!! The friends/dinner thing is HARD because

people just don't realize how much eating and drinking is connected to

socializing (don't even get me started on the drinking...)

And yes, I was just chatting this morning with a friend saying I have

basically been driven INSANE by this, and would just love one freaking day

where I didn't have to worry about what I was going to eat.

_jason_

_________ ________ _______ _____ ____ ___ __ _ _ _