New to group

[Guest guest]

In a message dated 05/15/2002 1:46:14 AM Eastern Daylight Time,

mgittlemanb@... writes:

<< I was wondering if

any of you would recommend Dr. Jensen's book. >>

---

Melinda, I highly recommend DR Jensons book and his 7 day cleanse.

The book is so informative, you will learn a lot by reading it.

I had no luck with DR Schulze's colon cleanse either but good results with Dr

Jenson's.

Christel

[Guest guest]

Dani; what is this vaccine you mention? Thanks Mog

[Guest guest]

<i>Mercury and candidiasis go hand in hand. </i>

You have to forgive me, but I am sure I can find the answer to my

question by signing up the the chelation group. It's just that every

time I have a question, someone sends me to another email list and I

really can't keep up with the emails.

So, my question is, if candidiasis and mercury go hand in hand, would

that basically mean that anyone who has been injected with a

thimerasol vaccine pretty much a good candidite for candidiasis?

TIA,

Dani

[Guest guest]

> Dani; what is this vaccine you mention? Thanks Mog

Hi,

I hope I didn't open up a can of worms. Before 1997(I think for

some, not all) many childhood vaccines contained thimerasol which is

a preservative which is about 49% mercury. Therefore, if you were

vaccinated before that time period, you have had exposure to mercury.

You can a bit about that here:

http://www.nccn.net/~wwithin/mercury.htm

They no longer make vaccines with thimerasol because many people

complained. Still, you have to request a mercury free vaccine because

if some doctors' office still has old vaccines, they will use them.

Dani

[Guest guest]

Not true. Flu shots still contain thimerasol, and there is no alternative

without it.

----- Original Message -----

They no longer make vaccines with thimerasol because many people complained.

Still, you have to request a mercury free vaccine because if some doctors'

office still has old vaccines, they will use them.

[Guest guest]

> Not true. Flu shots still contain thimerasol, and there is no

alternative without it.

Ick. I never really looked into flu shots because we don't do those.

Again though, if you have been vaccinated with a thimerasol

containing vaccine, does that automatically make you pretty much

susceptible to candidiasis? Do I really want to know that answer?

Dani

[Guest guest]

Dani: Wow! i never heard that and it is very interesting indeed! Thanks

Mog

[Guest guest]

Medicare does not cover infusion unless you are

inpatient at a hospital or go to an infusion center

*every* day. So don't count on Medicare for Lyme

Disease coverage.

Most insurance companies will try to limit you to 4-6

weeks of IV treatment.

I have found on my two extended IV treatments that I did

not have improvement until I reached about the ten week

level.

Of course, your mileage may vary.

>

> I understand antibiotic treatment - either IV or oral and probably

> many different types.

>

> I understand that I will feel worse before I feel better - but I

> wonder how much worse.

>

> I understand that insurance doesn't like paying for treatments for

> lyme - is there a way to code things so they would be covered? I have

> Medicare (since I am on disability from AT & T) and United Healthcare

> PPO - anyone know how Medicare will respond to covering the

> treatments?

>

[Guest guest]

Sounds like you need to find a Lyme literate MD, and quick.

email me privately if you'd like the number of my doctor. I love him.

Nan

heis1am@...

[Guest guest]

See a good Lyme Dr.............How south are you in NJ ?

ConnieK NWNJ

[Guest guest]

Hello Connie:

I live about 20 minutes from Atlantic City, But live in the tick infested

woods. This year my husband spayed our yard. and we keep out animals out in

there pens which have also been treated. I stay pretty darn close to the

house haveing my garden close to the back door, my pool clothe line etc. Its

a shame to live on ten acres and not being about to go on it. I wouldn't

mind moving but hubby likes it here.

[Guest guest]

Donna-

I live in the Red Bank area if you would like to write me, I can help you.

sue in nj

sue massie

[Guest guest]

Dear Janice:

What part of Arkansas do you live? I live in Memphis and can refer

you to some drs. here if you're near. I'm sorry your husband is

suffering through this. Did they take his liver enzymes? Liver

biopsy? Did they diagnose him with AIH? Sorry to ask so many

questions. This can really throw you for a loop.

I will send prayers your way and good wishes!

Rhonda/TN

>

> I am in a totally new world when talking about liver disease. I'm

not

> certain if I'm in the right group, but after reading your posts I

know you

> can help me find the one I should be in. Right now I can't sit at

the

> computer very long because I'm recovering from surgery. I'll make

my story

> as short as possible, or really it's my husbands story.

>

> About a year ago my husband knew he was sick. He has never been

to drs. or

> needed to go. His right leg was very swollen. He went to a round

of

> specialists. One would tell him one thing & then refer him to the

next. He

> saw several drs and each one would refute what the other said.

Out of

> disgust, he quit going to all drs.

>

> This year he went to my general phy. He had a scan done on him.

At this

> time he had quit eating but was gaining weight. He was put into

the hospital

> and immediately learned he had cirrhosis of the liver and needed a

> transplant. My daughter has had complete care of him and I'm not

sure of all

> that transpired in the hosp. They drained 80 lbs of fluid from him

and said

> that he was malnourished. He was sent home on a salt free diet

and still

> doesn't want to eat. He was told he had to have a transplant.

Ironically,

> both of his doctors are on vacation until August 9. Any advice

could help me

> to help him.

>

> Janice in Ark

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

I was wondering if anyone can recommend any books or particular

web sites they found helpful to them.

Hi Eileen,

Welcome.... I would go to www.thyroid.about.com and read Living Well With

Hypothyroidism by Shomon.

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

No symptoms??? Oh wow! You're the first person I've ever heard say

that. Lucky girl you! I think this is a great site:

http://www.mercola.com/2001/jan/28/thyroid_disease.htm

There's some great articles here and lots of recent info.

Jeni

> I was wondering if anyone can recommend any books or particular

> web sites they found helpful to them.

>

> Hi Eileen,

> Welcome.... I would go to www.thyroid.about.com and read Living

Well With

> Hypothyroidism by Shomon.

>

>

>

>

>

>

> _________________________________________________________________

> Join the world?s largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

[Guest guest]

In a message dated 8/22/02 4:05:12 PM, ixode@... writes:

<< Have you been tested for coinfections yet? babesiosis, erlichiosis,

bartonells, mycoplasma I guess are the main ones.

>>

Dee-

I second that!!! The above tests of bartonella, mycoplasma and HHV-6 can be

done thru MD Labs in Mt. Laurel, NJ and usually insurance covers the test

completely.

As for babesia and ehrlichia, Igenex Labs in CAL -- www.igenex.com

The co-infections MUST be treated and cured for one to get better--I had ALL

of them.

Also just a note....in the last few months MANY (self and husband included)

test negative for babesia BUT WE HAVE IT ANY WAY. We are treating with Dr.

Zhang's artemesia and it is working wonderfully.

One really has to do CONTINUOUS antibiotics to get lyme into remission... I

did 3 1/2 yrs. non-stop. I have been off for 7 mos or so and doing great,

finally.

If you need any help, plz feel free to write me.

sue in nj

sue massie

[Guest guest]

HI Dee,

It appears, in general, that when a course of antibiotics is ended prematurely,

the infection will return and be more resistant than ever to antibiotics.

I had 5 rounds of antibiotics altogether. I relapsed after every session which

included 3 months of IV Clafarin and a 7 month mix of ceftin and doxy. I looked

elsewhere for treatment in Sept. 1999 and started alternatives. Keep going with

the antibiotics though. Give'em every chance.

Have you been tested for coinfections yet? babesiosis, erlichiosis, bartonells,

mycoplasma I guess are the main ones.

[ ] New to Group

Hi everyone - I was diagnosed with Lymes almost a year to the day. I

did 4 weeks of IV Rocephin and was feeling pretty good - Dr said go

home - let me know how it goes. 2 months later symptoms started to

return so I was put on antibiotics for 4 months and was feeling

pretty good up until about 3 weeks ago. It is back AGAIN .... and

this time with a vengance. This is the worst I have ever felt.

Always achy, headaches and my eyes are freaking out- that drives me

nuts.

Well right now I am waiting for the insurance company to approve

another pic line. My dr wanted to use something called Vibromythcin

(SP) and the Ins. co. would not approve it - so he is trying for the

Rocephin again.

I was just curious what meds have been used and what has been the

most successful. any input would be appreciated.

Dee

[Guest guest]

estrogen feeds the yeast (I was on Hormone Replacement therapy I know)

also~diflucan is ok temp but yes it is expensive and yes it destroys your

liver and yes it gets resistant and develops stronger strains of yeast

jen

New to Group

> I've been lurking for awhile & need to jump in with a question.

>

> I've always had problems with yeast (I have lupus). Now, I'm

> perimenopausal & the hot flashes, night sweats & mood swings are

> awful. My gyn prescribed the estrogen patch & I have the worst yeast

> infection I've ever had. I was prescribed diflucan, ($20=1 pill,

> yikes!) and it STILL isn't gone completely. I know about the bad

> foods, probiotics and helpful herbs & have been doing everything I

> can to get this under control.

>

> My question - has anybody ever used estrogen successfully? Am I

> doomed to hot flashes? Insomnia + lupus is difficult to deal with on

> a daily basis, but this infection is not tolerable at all.

>

> Thanks for any help!

>

> Kim

>

>

>

>

>

[Guest guest]

Hi kim...welcome.. I have psoriatic arthritis, very simaler to lupus... I

might even have that too...who knows... But doctors have told me that

almost all people with chronic diseases have high candida and bacteria

levels.... They also said that we mostly all have hyperventalation problems

too... (meaning that we do not breathe correctly and get dizzy very quickly

when excersizing) Were suppose to breathe from our stomach instead from our

chest.... But thats another story..

I have tried these anti-candida herbs/supplements for several years...

Doesnt seem to really help only make my symptoms worse... Your probably just

like me... If you eat alot of sugary foods u feel so severely tired.. I feel

drunk and so tired whenever i consume too much yeast , sugar, or carbs... I

also talk loud like a drunk...lol The things that do work for me are :

Staying away from sugary foods, eating less , and eating more vegetables....

If i stick with that , then i have enough energy to do my things.. It is

very hard to resist eating those yummy tasting 'bad for us' foods sometimes

, but you gotta try to stick with it... you'll feel the difference.. believe

me... Me and you also have a liver that is working overtime to try to

cleanse our body.. Our immune system disorder puts more stress on the

liver.. So eating the dark leafy vegetables helps to clean out the liver

better and give u more energy.. Eating good foods and eating less is very

important for us..

mike

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Message: 1

Date: Sat, 19 Oct 2002 13:04:38 -0000

From: " dogmama85712 " <dogmama@...>

Subject: New to Group

I've been lurking for awhile & need to jump in with a question.

I've always had problems with yeast (I have lupus). Now, I'm

perimenopausal & the hot flashes, night sweats & mood swings are

awful. My gyn prescribed the estrogen patch & I have the worst yeast

infection I've ever had. I was prescribed diflucan, ($20=1 pill,

yikes!) and it STILL isn't gone completely. I know about the bad

foods, probiotics and helpful herbs & have been doing everything I

can to get this under control.

My question - has anybody ever used estrogen successfully? Am I

doomed to hot flashes? Insomnia + lupus is difficult to deal with on

a daily basis, but this infection is not tolerable at all.

Thanks for any help!

Kim

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<

[Guest guest]

>Hello everyone. I am completely new to this group and could use the

>support. I'm glad this exists and can't believe it has taken me so

>long to seek it. I can see all of the care is genuine. I am 1 year

>post surgery for spinal fusion from T12 to L5. I had arthritis,

>ruptured disks, spondolysthisis, stenosis and God knows what else.

>I made matters worse for myself because I willingly put off

>treatment for at least 10 years. 1 year ago I was unable to walk

>100 yards without needing to stop. I couldn't sleep at night and

>the pain was 24/7. That's when I had enough and sought treatment.

>After consultation, a neurosurgeon didn't hesitate to tell me I

>needed surgery immediately because I already had caused some

>permanent damage. He said I had the back of a 80 year old man, the

>problem is that I'm 31. The surgery and recovery went well and I am

>now almost completely pain free. I am still having problems and

>could use some advice (hip pain, stiffness, depression, etc.) It's

>impossible to speak to my surgeon now that he " did his job " , and for

>1 year I have had no one to compare my recovery/problems with. This

>group would really help. I hope to share experiences with you!>>

Hi! Welcome to the group! Sounds like you fit right

in....unfortunately! I know what you mean...my Neuro (an Ortho is the one

who did all the damage!) isn't much help either. I have to have my PCP

write my scripts.....the Neuro refuses to write more than 40 at a time!

LOL I suppose they don't ever have to worry about co pays eh? I know what

you mean on the depression thing as well. I told my PCP that I was getting

very depressed since the Neuro informed me that all that was wrong with me

was *just* permanent nerve damage! UGH!! One of my other worries was my

inability to sleep at night. I was waking up every hour, hour & half. So,

he killed 2 birds with one stone...I think! LOL He had me on 75 mg of

Elavil.....and the Neuro upped that to 100 mg. Now I sleep sooo much

better! Still not all night, but a heckuva lot better than before! It

seems that I've read that Elavil isn't that good for depression unless it

is used in larger doses than what I take...but man! I can't imagine taking

that stuff during the day! LOL

Glad you joined the group, and I assure you, this IS therapeutic!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

----------

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[Guest guest]

Kris -

Two of us have had 2 level ACDF surgeries. and myself. I've faired

better than , but

your mileage may vary. It sounds as if you had an EMG test (pins in the

muscles) and an MRI.

I would suggest that you make sure that you get an MRI on your total back. It's

also probably

a good idea to see another neurosurgeon. Make sure you have your films with

you. I've

had some of your symptoms, but also a problem getting up out of a chair and

having a hard

time climbing stairs.

Pleas get yourself another opinion ASAP. If you wish, I'd be happy to provide

you the name of

my Neurosurgeon. I reside in the Raleigh, NC area.

Joe

A MRI showed two herniated disks, C 5/6 and C 6/7, stenosis, degenerative disk

disease and that my right arterial canal was about half the size of my left

arterial canal due to calcification. My symptoms include headaches, neck pain,

severe nausea, dizziness, hand and arm tremors, constant stimulation of the

triceps, hand weakness and clumsiness,and large drops in blood pressure if my

neck is tilted forward or backward for more than a few seconds.

The neurologist I went to did nerve conduction tests and muscle tests (I can't

remember what they are called--it is when needles are inserted in the muscles).

He said that my spinal deteriortation was causing my symptoms and that I needed

surgery before it got any worse. The tests showed that my triceps are

continuously vibrating --there are times when I will wake up with my bed shaking

and I realize that it is my triceps. ( The upshot of that is when I am finally

reduced to making a living on my back since I am miserable when vertical, the

johns will get a vibrating bed without spending the extra quarter! I have to

joke about this becasue it is such an ongoing nightmare)

[Guest guest]

Thanks for responding. Unfortunately, with no insurance (I had applied for more

affordable insurance before I let my Cobra go and they turned me down 2 1/2

months later), I can't afford MRIs or surgery. I am in Colorado, but thanks for

your recommendation (Raleigh is a beautiful area, by the way). Glad to hear

that the surgery has helped you. How long ago did you have surgery? Kris

Re: New to Group

Kris -

Two of us have had 2 level ACDF surgeries. and myself. I've faired

better than , but

your mileage may vary. It sounds as if you had an EMG test (pins in the

muscles) and an MRI.

I would suggest that you make sure that you get an MRI on your total back.

It's also probably

a good idea to see another neurosurgeon. Make sure you have your films with

you. I've

had some of your symptoms, but also a problem getting up out of a chair and

having a hard

time climbing stairs.

Pleas get yourself another opinion ASAP. If you wish, I'd be happy to provide

you the name of

my Neurosurgeon. I reside in the Raleigh, NC area.

Joe

A MRI showed two herniated disks, C 5/6 and C 6/7, stenosis, degenerative

disk disease and that my right arterial canal was about half the size of my left

arterial canal due to calcification. My symptoms include headaches, neck pain,

severe nausea, dizziness, hand and arm tremors, constant stimulation of the

triceps, hand weakness and clumsiness,and large drops in blood pressure if my

neck is tilted forward or backward for more than a few seconds.

The neurologist I went to did nerve conduction tests and muscle tests (I

can't remember what they are called--it is when needles are inserted in the

muscles). He said that my spinal deteriortation was causing my symptoms and

that I needed surgery before it got any worse. The tests showed that my triceps

are continuously vibrating --there are times when I will wake up with my bed

shaking and I realize that it is my triceps. ( The upshot of that is when I am

finally reduced to making a living on my back since I am miserable when

vertical, the johns will get a vibrating bed without spending the extra quarter!

I have to joke about this becasue it is such an ongoing nightmare)

[Guest guest]

Hi Kris and welcome to the group...although sorry that it was pain that brought

you here.

I am intrigued by your email name...do you do poodle rescues? I have a 3 year

old toy poodle who is just wonderful.

[Guest guest]

Hi,

When I gave up sports and riding horses, I got into dog rescue. Because I can

handle their size, I rescue small dogs of any breed or combination. My place is

a senior dog sanctuary, where little old dogs who were strays or owner turn-ins

at shelters live out their life. It is extremely rewarding and helps me deal

with my own misery by focusing on the dogs. Glad you have a toy poodle--they

are so smart and entertaining! What pain brought you to the group? Kris

Re: New to Group

Hi Kris and welcome to the group...although sorry that it was pain that

brought you here.

I am intrigued by your email name...do you do poodle rescues? I have a 3 year

old toy poodle who is just wonderful.

[Guest guest]

> What pain brought you to the group? < From: " Kris King "

I am a paramedic. Got hurt on the job in March, workers comp sucks, diagnosed

with DDD, herniation, nerve compression, and one doc says stenosis. I get to see

a neurosurgeon on the 13th since nothing works. My EMS career is over and I am

in the process of starting over with my own business...Sweet Dreams K9...do

obedience training, behavior evaluations, and photography.