Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Evel, If only it were that easy but who knows.. maybe someone will one day hit on the ideal strategy that most users will prefer. Ace is becoming a popular strategy for the Nucleus, although it's not the best for every person. Some prefer speak or another strategy. In my opinion a persons hearing is just as individual as their DNA so I really doubt there would ever be a " one size fits all " strategy. Remember, everyone's activation experience is different and it may well just take your brother a little longer to understand speech.. Those of us who were so fortunate in being able to hear and understand immediately are the exception rather than the norm and some need to have more frequent mappings than others. it sounds like your brother is doing pretty well for his first couple of days, but he will progress at his own speed. I'm glad he has you for support, encouraging him to hang in there, knowing from experience that it only gets better. It makes it so much easier when one has support right on hand to help them through the adjustment period. I'm really interested in seeing how much difference a month or 2 makes for your brother. I've a feeling he'll hearing more and more and you all will be very pleased with his progress.. It's a matter of the brain adjusting to all the sounds and no two brains will react identically. Hang in there and let your brother know it'll all happen and he will most likely come to love his ci. Keep us posted as to how things are going. Hugs, silly MI Why don't we have a BIG brainstorm session on here and come up with > the Ultimate mapping strategy! It would be VERY diverse with all the > different people on here.. That's where the BEST idea's come from. > > Cheers, > Evel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 You missed my point..Or I was not very clear. Regardless of what speech strategy is used the actual adjusting of the electrodes(which is VERY important) is a joke. Meaning if they could do better setting the tones right, then you could then try all the strategies with the these settings. I am NOT asking for one size fits all, just a more technically advanced way to set up the tones. Guess I should have been more clear.. The bottom line is they are using a hit and miss approach and I know they could do better.. Evel > > Evel, > If only it were that easy > but who knows.. maybe someone will one day hit on the ideal > strategy that most users will prefer. Ace is becoming a popular > strategy for the Nucleus, although it's not the best for every > person. > Some prefer speak or another strategy. In my opinion a persons > hearing is just as individual as their DNA so I really doubt there > would ever be a " one size fits all " strategy. > > Remember, everyone's activation experience is different and it may > well just take your brother a little longer to understand speech.. > Those of us who were so fortunate in being able to hear and > understand immediately are the exception rather than the norm and > some need to have more frequent mappings than others. > > it sounds like your brother is doing pretty well for his first > couple of days, but he will progress at his own speed. I'm glad he > has you for support, encouraging him to hang in there, knowing from > experience that it only gets better. It makes it so much easier when > one has support right on hand to help them through the adjustment > period. > I'm really interested in seeing how much difference a month or 2 > makes for your brother. I've a feeling he'll hearing more and more > and you all will be very pleased with his progress.. > It's a matter of the brain adjusting to all the sounds and no two > brains will react identically. Hang in there and let your brother > know it'll all happen and he will most likely come to love his ci. > Keep us posted as to how things are going. > > Hugs, > silly MI > > > Why don't we have a BIG brainstorm session on here and come up > with > > the Ultimate mapping strategy! It would be VERY diverse with all > the > > different people on here.. That's where the BEST idea's come from. > > > > Cheers, > > Evel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 I know what Evel is saying. It IS a hit and miss setup. We can get a nice map while in the office but then we get out in the real world. And it just plain falls flat for many of us. I have not been able to get a good map since we " lost " it over a year ago. I'm doing alright, it just is nowhere near what I had before even after oh I dont know how many mappings. Evel is not talkign abotu a one size fits all, he is talking about a more realistic perhaps interactive mapping arrangement. But we also need to move the audie's office outside or into a restaurant. *---* *---* *---* *---* *---* The face of a child can say it all, especially the mouth part of the face. --Jack Handley & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Just chalk that one up to my reading it before I had my morning coffee..LOL Thanks for clarifying what you meant. I'm not sure how they could improve the way they adjust the electrodes; I'm a bit " eletronically challenged " LOL What I do know is what I have now is 100 times better than what I had before my implant and while I'm sure there could stand to be improvements in how they do things.. I'm a pretty happy camper these days. I do my own electrode programming though. I'm given the knob to turn and adjust the loudness and softness of my electrodes myself. I'm sure along the line there will be more and more improvements in programming and strategies; just look how far the ci technology has advanced within the last 5 years or so. Have a great day Silly MI In , " evel339 " <evel339@y...> wrote: > You missed my point..Or I was not very clear. Regardless of what > speech strategy is used the actual adjusting of the electrodes (which > is VERY important) is a joke. Meaning if they could do better setting > the tones right, then you could then try all the strategies with the > these settings. I am NOT asking for one size fits all, just a more > technically advanced way to set up the tones. Guess I should have > been more clear.. The bottom line is they are using a hit and miss > approach and I know they could do better.. > > Evel > > > > > > > > Evel, > > If only it were that easy > > but who knows.. maybe someone will one day hit on the ideal > > strategy that most users will prefer. Ace is becoming a popular > > strategy for the Nucleus, although it's not the best for every > > person. > > Some prefer speak or another strategy. In my opinion a persons > > hearing is just as individual as their DNA so I really doubt there > > would ever be a " one size fits all " strategy. > > > > Remember, everyone's activation experience is different and it may > > well just take your brother a little longer to understand speech.. > > Those of us who were so fortunate in being able to hear and > > understand immediately are the exception rather than the norm and > > some need to have more frequent mappings than others. > > > > it sounds like your brother is doing pretty well for his first > > couple of days, but he will progress at his own speed. I'm glad he > > has you for support, encouraging him to hang in there, knowing from > > experience that it only gets better. It makes it so much easier > when > > one has support right on hand to help them through the adjustment > > period. > > I'm really interested in seeing how much difference a month or 2 > > makes for your brother. I've a feeling he'll hearing more and more > > and you all will be very pleased with his progress.. > > It's a matter of the brain adjusting to all the sounds and no two > > brains will react identically. Hang in there and let your brother > > know it'll all happen and he will most likely come to love his ci. > > Keep us posted as to how things are going. > > > > Hugs, > > silly MI > > > > > > Why don't we have a BIG brainstorm session on here and come up > > with > > > the Ultimate mapping strategy! It would be VERY diverse with all > > the > > > different people on here.. That's where the BEST idea's come from. > > > > > > Cheers, > > > Evel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Silly, You just made my point with your statement exactly! " I'm given the knob to turn and adjust the loudness and softness of my electrodes myself " I know of one other person that claimed they " used to " let him adjust his own maps.. I have read a million different ways that they do mappings.. Here at work we have what we call Procedures. Their main purpose is so that everyone does it the same way and then when we find ways to make it better it gets updated. Letting every Audie do his or her own thing does not benefit us.. I have read so many different ways that they program CI's and not one matches the way I have been programed so far..That's all I was really getting at. I am not trying to come up with a new speech strategy.. They have people working on those. And like you I would not trade my CI for all the HA's in the world :-) I say if they come up with a consistant/better way to set up maps then we would all benefit IMO. I was hoping for other to share their thoughts on mappings. Cheers, Evel > > Just chalk that one up to my reading it before I had my morning > coffee..LOL > Thanks for clarifying what you meant. > I'm not sure how they could improve the way they adjust the > electrodes; I'm a bit " eletronically challenged " LOL What I do know > is what I have now is 100 times better than what I had before my > implant and while I'm sure there could stand to be improvements in > how they do things.. I'm a pretty happy camper these days. > I do my own electrode programming though. I'm given the knob to turn > and adjust the loudness and softness of my electrodes myself. > I'm sure along the line there will be more and more improvements in > programming and strategies; just look how far the ci technology has > advanced within the last 5 years or so. > Have a great day > Silly MI > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2008 Report Share Posted November 11, 2008 They have scheduled my brothers surgery for Thursday so I will be out of town for several days. Please keep a good thought and send healing because the doctors have said this is going to be a tough surgery. Peace, Love, Light, and Joy, Cherylvisit me at: www.myspace.com/senegalady "You need to smile to your sorrow because you are more than your sorrow." Thich Nhat Hanh AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Hello, Sorry to hear.... They usually allow homeopathy when asked, and if they don't they are usually just naive...go to higher authority & explain it will not interfere with meds. It can be dosed by dropper possible to do a lot for him if given well-prescribed remedies. Best wishes, Liz > > Hey everybody, > > It looks like my brother has a repeat occurence of what he had before at the end of 2004 beginning of 2005. Whatever virus is lodged in his brain and central nervous system is rearing its ugly head again. Say some prayers....the " resident " in charge of his care last night sounded like a complete idiot on the phone. Our hands are tied with him in the hospital at this point and us trying herbal remedies. He can't swallow, is mentally confused, heart rate at 140, and he is having repeat seizures. She was talking about putting him on an antibiotic (yeah, I had to point out his kidney function!?) AND she wants to put him on Acyclovir. I said, " It didn't work 5 yrs ago, why would we do it AGAIN?! " I told her to run 2 tests and try Ganciclovir. If/when he gets out of this, his main focus will have to be to kill that virus permanently and naturally. > > For anyone that is new or doesn't know my brother's story, go here: > > http://vaccinesexposed.blogspot.com/2008/09/my-brother-another-victim.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I am so sorry to hear about your brothers relapse. I just read your bio on him and the Coast Guard service stoped me cold. I am reading VACCINE A, by Matsumoto: http://vaccine-a.com/index.html Right now I am reading about the use of oil adjuvants used on our military without their knowledge and certainly without their consent. The resulting illnesses are terrible. This is such an outrage! I haven't read everything about your brother yet, has he been evaluated for an autoimmune disorder? Sylvia > > Hey everybody, > > It looks like my brother has a repeat occurence of what he had before at the end of 2004 beginning of 2005. Whatever virus is lodged in his brain and central nervous system is rearing its ugly head again. Say some prayers....the " resident " in charge of his care last night sounded like a complete idiot on the phone. Our hands are tied with him in the hospital at this point and us trying herbal remedies. He can't swallow, is mentally confused, heart rate at 140, and he is having repeat seizures. She was talking about putting him on an antibiotic (yeah, I had to point out his kidney function!?) AND she wants to put him on Acyclovir. I said, " It didn't work 5 yrs ago, why would we do it AGAIN?! " I told her to run 2 tests and try Ganciclovir. If/when he gets out of this, his main focus will have to be to kill that virus permanently and naturally. > > For anyone that is new or doesn't know my brother's story, go here: > > http://vaccinesexposed.blogspot.com/2008/09/my-brother-another-victim.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Wow, Dawn…your brother is in my deepest prayers. Sending positive energies to you both… ~Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 All the best, Reiki if he wants it. Worth considering Homeopathy. Muriel > > Hey everybody, > > It looks like my brother has a repeat occurence of what he had before at the end of 2004 beginning of 2005. Whatever virus is lodged in his brain and central nervous system is rearing its ugly head again. Say some prayers....the " resident " in charge of his care last night sounded like a complete idiot on the phone. Our hands are tied with him in the hospital at this point and us trying herbal remedies. He can't swallow, is mentally confused, heart rate at 140, and he is having repeat seizures. She was talking about putting him on an antibiotic (yeah, I had to point out his kidney function!?) AND she wants to put him on Acyclovir. I said, " It didn't work 5 yrs ago, why would we do it AGAIN?! " I told her to run 2 tests and try Ganciclovir. If/when he gets out of this, his main focus will have to be to kill that virus permanently and naturally. > > For anyone that is new or doesn't know my brother's story, go here: > > http://vaccinesexposed.blogspot.com/2008/09/my-brother-another-victim.html > Quote Link to comment Share on other sites More sharing options...
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