Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 , I know what you mean, as Ihave only been on the site twice. It will not let me back on. So, the emails are all I can get for now. I tried for hours to change my password, everything, I almost wanted a drink by the time I was finished! So I have given up for now. It is so frustrating! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Good Luck to you on Wednesday Maritza! Maybe you can write down some affirmations and keep repeating them to yourself on the drive to NYC. You sound very positive about school so maybe you can keep your focus on that. Try to keep all your thoughts positive, things will work out as they should. Keep the faith and know that we are wishing you well. Please keep in touch. Maggy rheumatic Dear Friends I want to thank everyone for the wonderful encouraging words. I have been feeling very bad. I have been having the chills and I have been sleeping alot. I guess this is part of the process. I am so blessed to be able to call my best friend Suzie for support. I do not know what I would do without her. I started school last week. I have a really good schedule for this semester. I attend school 5 days a week and my schedule allows me enough time to rest during the day. Those naps are very important to me. I often wish that the doctors who perscribe the meds to me would take the time to call to see how I am doing. I am trying to be as strong as I can be through this process. I know that stress isn't good for Scleroderma patients. I am under alot of stress because I have to drive to New York City (on Wednesday) which is anywhere from 12-14 hours away to appear in court for child support. Please keep me in your prayers. I haven't seen my ex-husband in about 9 years. My appearance has drastically changed since I have had Scleroderma. This is not going to be easy. God Bless with gentle thoughts from the beach Maritza Myrtle beach, Sc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Hi Maritza, I live in NYC, so if you need to get in touch with another scleroderma person or need a place to rest, call me. I live in E. village area of Manhattan. I've had scleroderma several years, but was not diagnosed until last August and now on Minocin. I am a senior citizen, but young at heart. I live with Mike, my husband of 31 years and will help you in any way you need while you are in NYC, Dolores & Mike Rosner Maggy Alonso <MaggyAlonso@...> wrote: Good Luck to you on Wednesday Maritza! Maybe you can write down some affirmations and keep repeating them to yourself on the drive to NYC. You sound very positive about school so maybe you can keep your focus on that. Try to keep all your thoughts positive, things will work out as they should. Keep the faith and know that we are wishing you well. Please keep in touch. Maggy rheumatic Dear Friends I want to thank everyone for the wonderful encouraging words. I have been feeling very bad. I have been having the chills and I have been sleeping alot. I guess this is part of the process. I am so blessed to be able to call my best friend Suzie for support. I do not know what I would do without her. I started school last week. I have a really good schedule for this semester. I attend school 5 days a week and my schedule allows me enough time to rest during the day. Those naps are very important to me. I often wish that the doctors who perscribe the meds to me would take the time to call to see how I am doing. I am trying to be as strong as I can be through this process. I know that stress isn't good for Scleroderma patients. I am under alot of stress because I have to drive to New York City (on Wednesday) which is anywhere from 12-14 hours away to appear in court for child support. Please keep me in your prayers. I haven't seen my ex-husband in about 9 years. My appearance has drastically changed since I have had Scleroderma. This is not going to be easy. God Bless with gentle thoughts from the beach Maritza Myrtle beach, Sc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 I pray for all of you that suffer from Scleroderma and all of these horrible auto-immune diseses. My mother was diagnosed with Scleroderma 11 1/2 years ago and was told she would not be around in a few years!! Well, it is over 11 and she is doing better than she has in the past. She did go on Minocyn as well as Norvasc and did have somewhat of a reversal of the disease. She mainly had it externally except for some swallowing problems, but, I believe she has done so well because of the Minocin. She decided about a year ago to go off of the minocyline because she was tired of taking it!! Well, now she has lumps that are painful in her abdomin and her arms. Has anyone experienced anything like this? I truly feel, especially after reading alot of your e-mails that Minocin has truly helped her keep the scleroderma at bay. She questioned whether or not it was the Minocin or the special vitamins she started taking at that time (from HSN). I definately can see it has helped so many people and feel so positive the anti-biotic therapy helped. We lived in Orange County, California, and I can tell you most of the Doctor's out here know nothing about this therapy!! We are originally from New York and I have always felt Doctor's on the east coast are supreme to those elsewhere. My mother only started taking the Minocin years ago because my husband heard about it on the news, her Doctor's gave it to her only because she asked, and, they figured, why not?? There isn't anything else they could have really done for her. Well, I am so happy for all of you that have had such great results!!' May God bless all of you to get better and live wonderful, pain- free, happy lives... diane eumatic , " Maggy Alonso " <MaggyAlonso@...> wrote: > > Good Luck to you on Wednesday Maritza! Maybe you can write down some affirmations and keep repeating them to yourself on the drive to NYC. You sound very positive about school so maybe you can keep your focus on that. Try to keep all your thoughts positive, things will work out as they should. Keep the faith and know that we are wishing you well. Please keep in touch. > Maggy > > rheumatic Dear Friends > > > I want to thank everyone for the wonderful encouraging words. I have been > feeling very bad. I have been having the chills and I have been sleeping alot. > I guess this is part of the process. > > I am so blessed to be able to call my best friend Suzie for support. I do > not know what I would do without her. > > I started school last week. I have a really good schedule for this semester. > I attend school 5 days a week and my schedule allows me enough time to rest > during the day. Those naps are very important to me. > > I often wish that the doctors who perscribe the meds to me would take the > time to call to see how I am doing. > I am trying to be as strong as I can be through this process. I know that > stress isn't good for Scleroderma patients. I am under alot of stress because I > have to drive to New York City (on Wednesday) which is anywhere from 12-14 > hours away to appear in court for child support. > > Please keep me in your prayers. I haven't seen my ex-husband in about 9 > years. My appearance has drastically changed since I have had Scleroderma. This > is not going to be easy. > > God Bless > with gentle thoughts from the beach > Maritza > Myrtle beach, Sc > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Hello Diane, Minocin, in itself does not guarantee a cure for scleroderma. I have heard of a remission being acheived, but not yet a cure. There are other protocols which incorporate antibiotic therapy which do show promise of a cure, but as yet there is not enough positive proof. Have your Mom's lumps checked out. It may be by some other cause. And if she went off the Minocin by her own choice, she should go back on it quickly as it seems she responded well. Some people don't as we are all different. My testimony is that I started on Minocin MWF- at 50 mg daily last December and got ramped up to 200mg daily (100mg in the a.m. and 100 mg. in the p.m) in January and have been getting better ever since. Even my doc's , who thought I was nuts asking for antibiotics, are now shaking their heads because my symptoms are reversing and they are acting like I'm the 8th wonder of the world. And it's not because I am in NY. My doc is in Boston. If you write to the Roadback.org site, get on the Bulletin Board and ask Richie for a list of A/P docs in your area, he will give you several. I've heard some good things coming from A/P people in California. You'll have to post your e-mail address as they are not allowed to advertise Doc's names on that site. He will answer you personally as he has a whole roster of A/P docs for the whole country and maybe even the world. Good luck. Dolores dianefstjohn <dianefstjohn@...> wrote: I pray for all of you that suffer from Scleroderma and all of these horrible auto-immune diseses. My mother was diagnosed with Scleroderma 11 1/2 years ago and was told she would not be around in a few years!! Well, it is over 11 and she is doing better than she has in the past. She did go on Minocyn as well as Norvasc and did have somewhat of a reversal of the disease. She mainly had it externally except for some swallowing problems, but, I believe she has done so well because of the Minocin. She decided about a year ago to go off of the minocyline because she was tired of taking it!! Well, now she has lumps that are painful in her abdomin and her arms. Has anyone experienced anything like this? I truly feel, especially after reading alot of your e-mails that Minocin has truly helped her keep the scleroderma at bay. She questioned whether or not it was the Minocin or the special vitamins she started taking at that time (from HSN). I definately can see it has helped so many people and feel so positive the anti-biotic therapy helped. We lived in Orange County, California, and I can tell you most of the Doctor's out here know nothing about this therapy!! We are originally from New York and I have always felt Doctor's on the east coast are supreme to those elsewhere. My mother only started taking the Minocin years ago because my husband heard about it on the news, her Doctor's gave it to her only because she asked, and, they figured, why not?? There isn't anything else they could have really done for her. Well, I am so happy for all of you that have had such great results!!' May God bless all of you to get better and live wonderful, pain- free, happy lives... diane eumatic , " Maggy Alonso " wrote: > > Good Luck to you on Wednesday Maritza! Maybe you can write down some affirmations and keep repeating them to yourself on the drive to NYC. You sound very positive about school so maybe you can keep your focus on that. Try to keep all your thoughts positive, things will work out as they should. Keep the faith and know that we are wishing you well. Please keep in touch. > Maggy > > rheumatic Dear Friends > > > I want to thank everyone for the wonderful encouraging words. I have been > feeling very bad. I have been having the chills and I have been sleeping alot. > I guess this is part of the process. > > I am so blessed to be able to call my best friend Suzie for support. I do > not know what I would do without her. > > I started school last week. I have a really good schedule for this semester. > I attend school 5 days a week and my schedule allows me enough time to rest > during the day. Those naps are very important to me. > > I often wish that the doctors who perscribe the meds to me would take the > time to call to see how I am doing. > I am trying to be as strong as I can be through this process. I know that > stress isn't good for Scleroderma patients. I am under alot of stress because I > have to drive to New York City (on Wednesday) which is anywhere from 12-14 > hours away to appear in court for child support. > > Please keep me in your prayers. I haven't seen my ex-husband in about 9 > years. My appearance has drastically changed since I have had Scleroderma. This > is not going to be easy. > > God Bless > with gentle thoughts from the beach > Maritza > Myrtle beach, Sc > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 I agree. I think we need to stop that topic. > > Please let's not get to where we attack innocent kindergarten children in this group. I realize only one person said this but I really hope this is not the opinion of other parents. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Dear Friends, Well I don't think it will be long now. My brother has been failing fast in the last week. They say that there are tumors in his whole body. Hospice has come in today and will be a great help to us all. It's a very strange thing really. I am finding much more peace in the fact that he will be leaving us soon. I don't feel the panic anymore. I mean, I have my crying times, but then I get back with the business of doing what I can to help. I have been spending most everyday with him and his wife doing what I can for them. I am very sad, but I am ok. I just wanted you all to know that. And I am sure it has to do with all of the prayers and healing that has been sent our way in these last months. I am so grateful to you all for that, and to the many hundreds of people that are praying for our family all over the world. I love you all with all of my heart. I know where my brother will go when he dies. He has one big family reunion to attend. Peace, Love, Light, and Joy, Cherylvisit me at: www.myspace.com/senegalady "You need to smile to your sorrow because you are more than your sorrow." Thich Nhat Hanh You Rock! One month of free movies delivered by mail from blockbuster.com Quote Link to comment Share on other sites More sharing options...
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