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I'm sorry to hear that you still don't feel good, .

I share your belief that our group is special and that it is marvelous to

have come to know each other.

Please let us know how you are doing when you are able to. I hope that it

helps you to know that, not only are we here, we are pulling for you and

wishing you a fast recovery.

----- Original Message -----

From: " Valued Compaq Customer " <ruf-caimi@...>

< egroups>

Sent: Monday, September 25, 2000 6:42 AM

Subject: [ ] thankful

>

> Hello Rainy Sue,

> I still don't feel well and I will answer the e-mail I have received soon.

> I will let you know what happened. For today though, my candle started

> burning at 4 a.m.. I looked at the candle and realized that having all

> these medical problems is hard, but like anything else in life there is

> always a good side. The special side here is this group. Since January I

> have found such companionship, friendship, understand, and love right here

> with this group. I had felt so isolated. RA is a lonely disease but not

> for those of us who were fortunate enough to come here.

> To you Rainy Sue, I am so glad we have this candle day. It's a nice day

> to reflect how lucky we all are to know each other. For what ever reason

> God has chosen to give us these crosses to carry, right here we have each

> other to help lift the load.

> My request is that today we all have a prayer answered.

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

>

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  • 2 years later...

on 2/23/03 10:40 PM, My Guardian Angel, at cayden@..., wrote:

> I think that passion is what keeps us all going and it's

> nice to share a group with such inspiring people =0)

That's a lovely note. Roseanne. Thanks for sharing that :)

--

Jean

jpro2@...

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Hi Roseanne,

I've done some lurking from time to time on other groups and was struck by the

same thing - everyone there was so sick and so sad. Those on the scleroderma

support groups were not only sad but often dying. This group is full of energy.

Even when everyone is arguing, I often think well, they have enough energy and

spirit to argue, which isn't such a bad thing :)

Chris.

>Hello everyone! When I was struggling to find out what was wrong with me,

I

>stayed up half the night, every night, for what seemed like forever just

>trying to find something that would help me. I joined support groups, read

>the list of side affects for rheumatic drugs, and read hundreds of studies

>on brave, willing participants. I'm sure some of you have done this as

>well! The bottom line is, having any autoimmune illness is absolutely

>petrifying. You wonder what life will be like for you and your family 10,

>20, 30 years from now. Some days, you wonder if you will make it past

>breakfast. While I was posting on other support groups, the topics

>everyday, week after week, were about the massive side affects of these

>popular drugs. I was only in my early twenties, with a newborn baby, and

>dreading the thought of my life to come. The more I read about joint

>replacements, terrible side affects, and crippling pain, the more I felt

>suicidal. The groups were just immersed in despair! Then somebody posted on

>the support group that they were almost in remission from an antibiotic. An

>antibiotic!! This person, happy as they were, stuck out like a sore thumb.

>That person is the reason I am doing so well today. When I found the road

>back foundation and this group, I could not believe the happy, well

>functioning people that posted. I found hope for the first time because I

>thought to myself, " Maybe this will work for me and I can have a life again

>too " . I am eternally grateful for this group and the supportive people here.

>The immune system is such a complex, amazing circuit of actions and

>reactions. Each of us is SO different and amazingly, our immune system can

>change from night to day making it difficult to ever know how we will react

>to the medications put before us. I know Lupus isn't a disease to be taken

>lightly but I am thankful to find out that was my biggest concern when

>choosing this therapy. Some others have far more, dangerous side affects

>that can be devastating. I'm glad we have a wonderful group of intelligent,

>informed people here: Even when we respectfully disagree on a topic. At

>least we are researching and taking control of our diseases arming ourselves

>with knowledge. I think that passion is what keeps us all going and it's

>nice to share a group with such inspiring people =0)

>Roseanne*

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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Hi Everyone

I totally agree with Roseanne here. This is the only site I have

found where there is an upbeat optimism; an energy that is sadly

lacking on other boards.

I started with RA two years ago, and in that time I have spent many

days and nights researching the net to find out anything I can about

this disease. During my search I came across several support groups

and felt depressed by the heavy note of desperation and lack of hope

in their voices.

I'm sure they are an important outlet to those who feel the need to

share how their disease is deeply affecting every area of their

lives and causing not only pain but depression also. But I never

felt the desire to become involved in their 'family'. I would read

the archives and it was the same message repeated over and over

again since the sites were started maybe several years earlier. The

message was loud and clear; there is no remission, there is no cure,

there is no hope! Who on earth wants to be told that when newly

diagnosed with a potentially crippling disease.

Then a wonderful thing happened. I read DR Mercola's web site and

found a link to Rheumatic.org. from there I followed the link to

here, and am I glad I did! For the first time since my diagnosis I

felt a sense of HOPE!

This site is buzzing with an energy that comes from many of its

members experiencing the joys of a second stab at life. Yes, there

are people (me included) who are struggling and in severe pain, but

we have something which is sadly lacking in the other sites, we have

optimism and a wonderful sense of humour. Yes, we may bicker on

occasion and hotly debate certain subjects, but that shows a feisty

spirit and determination, two qualities needed to fight this

destructive disease.

I am not too good at the moment (AP 3 months) but I know I am doing

everything in my power to beat this disease, and that is a very

empowering thought. The other sites may knock us, and believe me I

have read some very mocking posts from some of their members about

us AP'ers, but we have something they don't have; we have many

members who have gone into remission and we send out a message of

HOPE!

Thanks for being here.

Lindy

> Hello everyone! When I was struggling to find out what was wrong

with me, I

> stayed up half the night, every night, for what seemed like

forever just

> trying to find something that would help me. I joined support

groups, read

> the list of side affects for rheumatic drugs, and read hundreds of

studies

> on brave, willing participants. I'm sure some of you have done

this as

> well! The bottom line is, having any autoimmune illness is

absolutely

> petrifying. You wonder what life will be like for you and your

family 10,

> 20, 30 years from now. Some days, you wonder if you will make it

past

> breakfast. While I was posting on other support groups, the topics

> everyday, week after week, were about the massive side affects of

these

> popular drugs. I was only in my early twenties, with a newborn

baby, and

> dreading the thought of my life to come. The more I read about

joint

> replacements, terrible side affects, and crippling pain, the more

I felt

> suicidal. The groups were just immersed in despair! Then somebody

posted on

> the support group that they were almost in remission from an

antibiotic. An

> antibiotic!! This person, happy as they were, stuck out like a

sore thumb.

> That person is the reason I am doing so well today. When I found

the road

> back foundation and this group, I could not believe the happy, well

> functioning people that posted. I found hope for the first time

because I

> thought to myself, " Maybe this will work for me and I can have a

life again

> too " . I am eternally grateful for this group and the supportive

people here.

> The immune system is such a complex, amazing circuit of actions and

> reactions. Each of us is SO different and amazingly, our immune

system can

> change from night to day making it difficult to ever know how we

will react

> to the medications put before us. I know Lupus isn't a disease to

be taken

> lightly but I am thankful to find out that was my biggest concern

when

> choosing this therapy. Some others have far more, dangerous side

affects

> that can be devastating. I'm glad we have a wonderful group of

intelligent,

> informed people here: Even when we respectfully disagree on a

topic. At

> least we are researching and taking control of our diseases arming

ourselves

> with knowledge. I think that passion is what keeps us all going

and it's

> nice to share a group with such inspiring people =0)

> Roseanne*

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Hi Lindy,

I started with RA about the same time as you did. I found and started AP

right away and remission is in sight. Hang in there. It's a rough start at

first but once it kicks in and you feel the difference it makes it all worth

while.

Best Wishes,

Dee

rheumatic Re: thankful

> Hi Everyone

>

> I totally agree with Roseanne here. This is the only site I have

> found where there is an upbeat optimism; an energy that is sadly

> lacking on other boards.

>

> I started with RA two years ago, and in that time I have spent many

> days and nights researching the net to find out anything I can about

> this disease. During my search I came across several support groups

> and felt depressed by the heavy note of desperation and lack of hope

> in their voices.

>

> I'm sure they are an important outlet to those who feel the need to

> share how their disease is deeply affecting every area of their

> lives and causing not only pain but depression also. But I never

> felt the desire to become involved in their 'family'. I would read

> the archives and it was the same message repeated over and over

> again since the sites were started maybe several years earlier. The

> message was loud and clear; there is no remission, there is no cure,

> there is no hope! Who on earth wants to be told that when newly

> diagnosed with a potentially crippling disease.

>

> Then a wonderful thing happened. I read DR Mercola's web site and

> found a link to Rheumatic.org. from there I followed the link to

> here, and am I glad I did! For the first time since my diagnosis I

> felt a sense of HOPE!

>

> This site is buzzing with an energy that comes from many of its

> members experiencing the joys of a second stab at life. Yes, there

> are people (me included) who are struggling and in severe pain, but

> we have something which is sadly lacking in the other sites, we have

> optimism and a wonderful sense of humour. Yes, we may bicker on

> occasion and hotly debate certain subjects, but that shows a feisty

> spirit and determination, two qualities needed to fight this

> destructive disease.

>

> I am not too good at the moment (AP 3 months) but I know I am doing

> everything in my power to beat this disease, and that is a very

> empowering thought. The other sites may knock us, and believe me I

> have read some very mocking posts from some of their members about

> us AP'ers, but we have something they don't have; we have many

> members who have gone into remission and we send out a message of

> HOPE!

>

> Thanks for being here.

>

> Lindy

>

>

>

>

> > Hello everyone! When I was struggling to find out what was wrong

> with me, I

> > stayed up half the night, every night, for what seemed like

> forever just

> > trying to find something that would help me. I joined support

> groups, read

> > the list of side affects for rheumatic drugs, and read hundreds of

> studies

> > on brave, willing participants. I'm sure some of you have done

> this as

> > well! The bottom line is, having any autoimmune illness is

> absolutely

> > petrifying. You wonder what life will be like for you and your

> family 10,

> > 20, 30 years from now. Some days, you wonder if you will make it

> past

> > breakfast. While I was posting on other support groups, the topics

> > everyday, week after week, were about the massive side affects of

> these

> > popular drugs. I was only in my early twenties, with a newborn

> baby, and

> > dreading the thought of my life to come. The more I read about

> joint

> > replacements, terrible side affects, and crippling pain, the more

> I felt

> > suicidal. The groups were just immersed in despair! Then somebody

> posted on

> > the support group that they were almost in remission from an

> antibiotic. An

> > antibiotic!! This person, happy as they were, stuck out like a

> sore thumb.

> > That person is the reason I am doing so well today. When I found

> the road

> > back foundation and this group, I could not believe the happy, well

> > functioning people that posted. I found hope for the first time

> because I

> > thought to myself, " Maybe this will work for me and I can have a

> life again

> > too " . I am eternally grateful for this group and the supportive

> people here.

> > The immune system is such a complex, amazing circuit of actions and

> > reactions. Each of us is SO different and amazingly, our immune

> system can

> > change from night to day making it difficult to ever know how we

> will react

> > to the medications put before us. I know Lupus isn't a disease to

> be taken

> > lightly but I am thankful to find out that was my biggest concern

> when

> > choosing this therapy. Some others have far more, dangerous side

> affects

> > that can be devastating. I'm glad we have a wonderful group of

> intelligent,

> > informed people here: Even when we respectfully disagree on a

> topic. At

> > least we are researching and taking control of our diseases arming

> ourselves

> > with knowledge. I think that passion is what keeps us all going

> and it's

> > nice to share a group with such inspiring people =0)

> > Roseanne*

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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Dear Roseanne,

What a positive, uplifting, intelligent, and lucid characterization of your

RA history and your sentiments about this support group! Thanks so

much for this.

Ellen

rheumatic thankful

Hello everyone! When I was struggling to find out what was wrong with me, I

stayed up half the night, every night, for what seemed like forever just

trying to find something that would help me. I joined support groups, read

the list of side affects for rheumatic drugs, and read hundreds of studies

on brave, willing participants. I'm sure some of you have done this as

well! The bottom line is, having any autoimmune illness is absolutely

petrifying. You wonder what life will be like for you and your family 10,

20, 30 years from now. Some days, you wonder if you will make it past

breakfast. While I was posting on other support groups, the topics

everyday, week after week, were about the massive side affects of these

popular drugs. I was only in my early twenties, with a newborn baby, and

dreading the thought of my life to come. The more I read about joint

replacements, terrible side affects, and crippling pain, the more I felt

suicidal. The groups were just immersed in despair! Then somebody posted on

the support group that they were almost in remission from an antibiotic. An

antibiotic!! This person, happy as they were, stuck out like a sore thumb.

That person is the reason I am doing so well today. When I found the road

back foundation and this group, I could not believe the happy, well

functioning people that posted. I found hope for the first time because I

thought to myself, " Maybe this will work for me and I can have a life again

too " . I am eternally grateful for this group and the supportive people here.

The immune system is such a complex, amazing circuit of actions and

reactions. Each of us is SO different and amazingly, our immune system can

change from night to day making it difficult to ever know how we will react

to the medications put before us. I know Lupus isn't a disease to be taken

lightly but I am thankful to find out that was my biggest concern when

choosing this therapy. Some others have far more, dangerous side affects

that can be devastating. I'm glad we have a wonderful group of intelligent,

informed people here: Even when we respectfully disagree on a topic. At

least we are researching and taking control of our diseases arming ourselves

with knowledge. I think that passion is what keeps us all going and it's

nice to share a group with such inspiring people =0)

Roseanne*

To unsubscribe, email: rheumatic-unsubscribeegroups

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  • 2 years later...

Hi ! Such a great post and very true! Happy Turkey day to

everyone!

Jenna

>

> I have a lot of things to be thankful about, I am blessed with

many

> wonderful things in my life. But the thing that I am MOST thankful

for

> this year is this support group! Without it I would not be healing

the

> way that I am today and I would still have those poisonous sacks

in my

> chest. I love this group and all of the wonderful participants!

Have a

> fabulous Thanksgiving everyone!

>

> Love,

>

>

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Definitely, I'm thankful for this support group as well. I might

still be sitting here with the hateful bags in my body if I hadn't

been guided to this site.

Sis

> >

> > I have a lot of things to be thankful about, I am blessed with

> many

> > wonderful things in my life. But the thing that I am MOST

thankful

> for

> > this year is this support group! Without it I would not be

healing

> the

> > way that I am today and I would still have those poisonous sacks

> in my

> > chest. I love this group and all of the wonderful participants!

> Have a

> > fabulous Thanksgiving everyone!

> >

> > Love,

> >

> >

>

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Me, too! Thanks to you all, I, too am on the road to health. I can't imagine how I could have figured it all out on my own. Tomorrow I'll drink (virgin cider) to all of you and your collective health and happiness.

Melinda

Re: Thankful

Definitely, I'm thankful for this support group as well. I might still be sitting here with the hateful bags in my body if I hadn't been guided to this site.Sis> >> > I have a lot of things to be thankful about, I am blessed with > many > > wonderful things in my life. But the thing that I am MOST thankful > for > > this year is this support group! Without it I would not be healing > the > > way that I am today and I would still have those poisonous sacks > in my > > chest. I love this group and all of the wonderful participants! > Have a > > fabulous Thanksgiving everyone!> > > > Love,> > > >>

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  • 2 years later...

Sandy ,

My family dont believe it fat either, my mom mentions it every time she sees me. I

was 110 lbs at implant and now I am 150lb. I know it the canidada but I chose

not to let them toxic members to get through me so I think God has made me

thick skined right now. When they call I let the answer machine get it.

I dont need negative in my life. All I did was help out my family and now they

expect me to still help out even though I dont feel good. HOW SAD............

especially when my mom is a SUNDAY SCHOOL TEACHER....................

Sandy dont say goodbye so quickly to Secrets I believe you will be

back in it again..........just have faith in yourself and dont let them take that

away from you........I know with all the detoxes we can not be big.

I am not even claiming Plus Sizes ......I refuse to shop big clothes I wear sweats

Because I know I am going to wear my clothes again and you should feel

and think the say way. FAITH is the substance of all things hoped for it you think

later you will believe it and that when the miracle happens.

I love you and I know what kind of beautiful person you are inside as well as me.

I think maybe you and I did these implants to try to impress our family ,,,so we can

feel good enough for them when really those kinds of people you can never impress.

They are toxic people that are hurting inside and misery loves company ......I just chose

now not to give it MY COMPANY.

I stay away from all holidays from my family now........yeah my kids say how big I am

so I let them make fat jokes but I also let them understand its water weight and swelling

from the candidia.

I am so glad we have each other to vent with.............I am glad to be alive and get a second chance

at life ........not to many have those opportunities.!!!!!!!!!!

Love ya

In a message dated 2/7/2008 4:06:52 A.M. Eastern Standard Time, dusty.com@... writes:

I feel the same way as you do.

My family has pretty much abandant me.

My family does not believe my symptoms or the fact

my so called safe saline implants made me sick.

The word fat does not enter into my family's vocabulary.

Now here I am, Candida FAT FAT ! !

I also lost friends and family along this journey

They all look down at me being FAT with no shape.

Before Implants: -110 lbs

After Implants: - 180 lbs

Now: 165 -170 lbs

I cannot even cry anymore.

I am so drained of tears.

At least I am welcomed here and can vent.

I was never heavy before getting implants

I am thankful to have God and all

the ladies here whom I can relate

This implant journey has not been a

pleasant one by far, my body is a mess

Now it's goodbye secret

It's hello plus sizes!!

I look like a BIG Stuffed Turkey !!

Gobble Gobble Gobble

but...

I know in my heart....

God has blessed me with all of you

wonderful ladies who truly care.

I am very thankful to all of you,

Sandy~

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Wow Dede,

You definitely need to get that surgery done get them boobies out ...I feel for you ...I thought I was going through something and hear other people have it worse.

I am serious Sandy your going to have to trust God and get them implants out of you. Your taking care of your DAD but lets look at the realistic side your dieing inside too and you need as much help as he does.

His desease and your are on the same level and it needs to be addressed .......I know you probably have looked at that........But seriously if I get better after surgery I am coming to take care of you and make you get them boobies out now.

Make your appointment and trust God to do the rest he will come through for you. I am praying that God comes through on getting you some help.

Love ,

In a message dated 2/7/2008 8:27:25 A.M. Eastern Standard Time, DGRAHAMA@... writes:

and Sandy ~

Girls ~

I am in the same ballfield as you two are !

Just 2 short years ago, I was 100-115 lbs.

now 180 ! ! ! My neck is even big now, with

big puffy things on either side of it, I cant

even wear my necklaces cuz they are now too

small ! ! ! ! !

I ballooned up when my heart lungs liver and

kidneys all shut down. My boobs are so

swollen and big ( and I have basically had a

mastectomy ) and they are the size of footballs !

My stomach is the size of term twins ! This is

no joke ! No joke at all. I can hardly walk around

I am so heavy. It makes me seasick too cuz I

giggle and I wiggle when I walk ! ! I am up every

30 min to 45 minutes thru the night, and I dragg

ass all day long. My heart lately has been so low

its in the 80/60 range, with those crazy pulse

spikes into the 100's. I told Dad yesterday that

as soon as he is done with these chemo's and

feeling better that I have to go have surgery.

I am miserable, and my boobs hurt like a son of

a gun. I cant even wear a bra cuz it squeezes my

heart and makes it thump and jump. I am scared

poopless that the defibrillator is gonna go off

again, so I am a big weinie on top of it all.

Get this, the last bra I did wear, now too small,

was a 42 DD ! ! and it is way, way to small.

This left boob is so big its under my armpit too !

Family and friends have also drifted off, and

they dont care. This is where you find out who

your real friends are. If it werent for all you

wonderful ladies, my heart and soul would

have already gone to heaven.

Ok, I have vented, thank you for listening.

Love ya ~ Dede

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DEDE,

I am not giving up on my prayers for

you to get this surgery. I will change my

prayer to allowing your heart to be perfectly

normal so you can go thru with the surgery.

You perfect 10 you.

In a message dated 2/7/2008 9:19:15 A.M. Eastern Standard Time, DGRAHAMA@... writes:

~

One of the reasons I havent had these boobies

out is because my heart is so weak, and I had a

heart attack last july and was bedridden from then

til the end of October, and that is when Dad came

over for me to care for him. We actually both help

each other, and the church folks are bringing dinners

in for us to help out.

I was told 2 years ago I needed a heart transplant, and

that it was too weak even for surgery, so it has been a

weird venture. Dr Kolb said if I can get cardiac clearance

she would do the surgery. The 2 doctors I contacted

in Texas would not touch me cuz of my heart. I feel

God has handed me to Dr Kolb. So, this will happen.

I have been babying myself as much as I can so this

heart will handle the surgery. I am determined to heal.

Thank you for your kindness, and the laughter you

bring. I think the BI road we all have walked down has

been rough for everyone. I am so glad we all have each

other to love and support and vent and laugh.

You are adorable !

Loveya ~ Dede

Who's never won? Biggest Grammy Award surprises of all time on AOL Music.

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DEDE,

Very true statement. Love ya

In a message dated 2/7/2008 11:13:07 A.M. Eastern Standard Time, DGRAHAMA@... writes:

Thank you ~

God answers all our prayers.......

even if the answer is no.

We just have to remember we all are

an extension of him and that he loves

us all unconditionally.

The power of prayer is huge, we just

have to be sure the power of gratitude we

give is huge.

Pay it Forward ~ Love and God Bless ~ Dede

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Oh Dede,

You are such a sweetheart and I am praying you can get those toxic

bombs out very soon! It hurts my heart to read of how you suffer....

We love you,

Patty

>

> and Sandy ~

> Girls ~

> I am in the same ballfield as you two are !

> Just 2 short years ago, I was 100-115 lbs.

> now 180 ! ! ! My neck is even big now, with

> big puffy things on either side of it, I cant

> even wear my necklaces cuz they are now too

> small ! ! ! ! !

> I ballooned up when my heart lungs liver and

> kidneys all shut down. My boobs are so

> swollen and big ( and I have basically had a

> mastectomy ) and they are the size of footballs !

> My stomach is the size of term twins ! This is

> no joke ! No joke at all. I can hardly walk around

> I am so heavy. It makes me seasick too cuz I

> giggle and I wiggle when I walk ! ! I am up every

> 30 min to 45 minutes thru the night, and I dragg

> ass all day long. My heart lately has been so low

> its in the 80/60 range, with those crazy pulse

> spikes into the 100's. I told Dad yesterday that

> as soon as he is done with these chemo's and

> feeling better that I have to go have surgery.

> I am miserable, and my boobs hurt like a son of

> a gun. I cant even wear a bra cuz it squeezes my

> heart and makes it thump and jump. I am scared

> poopless that the defibrillator is gonna go off

> again, so I am a big weinie on top of it all.

> Get this, the last bra I did wear, now too small,

> was a 42 DD ! ! and it is way, way to small.

> This left boob is so big its under my armpit too !

> Family and friends have also drifted off, and

> they dont care. This is where you find out who

> your real friends are. If it werent for all you

> wonderful ladies, my heart and soul would

> have already gone to heaven.

> Ok, I have vented, thank you for listening.

> Love ya ~ Dede

>

>

>

> **************Biggest Grammy Award surprises of all time on AOL

Music.

> (http://music.aol.com/grammys/pictures/never-won-a-grammy?

NCID=aolcmp003000000025

> 48)

>

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  • 9 months later...

Want to say that I have not been a participator in this forum, but I

am extremely thankful for what is being done here. I asked for prayer

a good time back from you as I was ill and in extreme pain. My disease

is now in remission and I am able to live a normal life...is there a

greater gift? I think my ailment was (is) a call from God, a wake up

call to announce that I wasn't living my life in alignment with my

higher self and that it was time to get on with the business at hand.

I have begun to try to pick up the pieces and put them together while

taking baby steps forward. Sometimes the past still shows its ugly

face only to ask " Why are you even trying? " . Maybe I don't always know

why, but I still try. On this Thanksgiving 2008, I am thankful for

life with all its majesty and mystery. Thank you for the part you have

played in helping to restore mine. Happy Thanksgiving, my wish is that

your holiday is filled with as much love as you have given to me. Liz.

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