Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 I am also an RN and went through what you did. I eventually made a formal complaint agaist the first MD who said it was all in my head. well now he is being investigated by the NJ State Medical Examiners. I am outraged that the OPMC is getting away with the harassment of the LLMD's that do take the time and energy to ttreat us research thelatest. I have been on and off antibiotics for a little over 1 year and due to the fact that the a------e MD that didn't diagnose me from the beginning is the reason I am in Late Stage Neurological Lyme being only maintained on antibiotics. I am on disability because at this stage I could never go back to ICU/CCU and trauma nursing which I love! That is why I'm enraged. Any help? . FrancineNJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 I too am in the same boat, just a MUCH shorter period of time. I am also allergic to 6 different antibiotics, so it's much easier to be labeled with fibro, as I worsen! Either way, something needs to be figured out! Why haven't you pursued the Lyme side, and even just try a round of abx, and see if you do better? If you do, then obvoiusly its LD, and not fibro, fibro doesn't care about abx lol. I would look into this more, as you could be better, if this is LD, just by 'testing' with some abx, and seeing how you do for a month or two, ya never know. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 >Anyway, that was about 10-12 years ago. I'm trying to get disability right now. I have focused more on the Fibromyalgia in the last 5-8 yrs. but have started >thinking about the Lyme Disease lately for some reason. Maybe I've been barking up the wrong tree. I don't know if any of this is making any sense. I guess >I'm looking for support and understanding from people who have been through the same humiliating enraging experience. Thanks for listening!! ,For disability why not try depression, much easier to get and you don't have to prove anything, just think "doctors" when you go for your interview and it should get you so mad you'll pbly cry, I did! Nelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 My question has anyone who has chronic lyme disease ever gotten well? I also have the late stage neurological lyme disease. My doctor says it takes about 18 months of antibiotic treatment. I would like to believe him but I have been so sick for 6yrs with CFIDS and fibromyalgia and EBV, CMV, and HHV6 viruses. He said it was most likely due to Lyme disease, that is why I have CFIDS. Re: [ ] Is it Lyme or FMS? I am also an RN and went through what you did. I eventually made a formal complaint agaist the first MD who said it was all in my head. well now he is being investigated by the NJ State Medical Examiners. I am outraged that the OPMC is getting away with the harassment of the LLMD's that do take the time and energy to ttreat us research thelatest. I have been on and off antibiotics for a little over 1 year and due to the fact that the a------e MD that didn't diagnose me from the beginning is the reason I am in Late Stage Neurological Lyme being only maintained on antibiotics. I am on disability because at this stage I could never go back to ICU/CCU and trauma nursing which I love! That is why I'm enraged. Any help? . FrancineNJ Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2001 Report Share Posted April 1, 2001 In a message dated 3/31/01 11:25:17 AM Central Standard Time, janel@... writes: << , For disability why not try depression, much easier to get and you don't have to prove anything, just think " doctors " when you go for your interview and it should get you so mad you'll pbly cry, I did! >> Depends if it is Social Security or a private disability plan....the private disability plans *want* you to file on depression as it is limited to two years of benefits for most plans. For Social Security, it probably doesn't matter. I think my final ruling from Social Security was Organic Brain Syndrome, when we presented Lyme Disease and CFIDS as the illnesses that caused my disabilities. Based on my cognitive difficulties and infection with Lyme, I suppose that is accurate enough. Quote Link to comment Share on other sites More sharing options...
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