Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 OK, I'm asking what may seem like dumb questions to a lot of you, but I'm new to all this...what does LLMD stand for? My family physician keeps referring me to Infectious Disease specialists, and I may need to travel up north (I live in SC) to find a better dr. I'm not real sure what to look for. I just found an IDS here who has 2 lyme's patients. Yippee, most drs around here have never treated it before! Thanks, Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 LLMD stands for Lyme Literate MD. Dont feel bad I didnt know what it meant until I came here, and I had to ask the same question. --- sjbeardaolcom@... wrote: > OK, I'm asking what may seem like dumb questions to > a lot of you, but > I'm new to all this...what does LLMD stand for? My > family physician > keeps referring me to Infectious Disease > specialists, and I may need > to travel up north (I live in SC) to find a better > dr. > > I'm not real sure what to look for. I just found an > IDS here who has > 2 lyme's patients. Yippee, most drs around here > have never treated > it before! > Thanks, > Jenni ===== Take care and have a nice day !!! Kim S. kimsak2000@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Jenni, I'll give you a brief description of LLMD and why Dr H went to court. Others can fill in better than I later on LOL Just because a Dr can or will treat Lyme does not make them an LLMD=Lyme Literate Dr. Inf Dis Drs usually think that 6-8 weeks antibiotics and your cured, this is NOT right, many of us have been treated for years. The longer you went undiagnosed, the longer the treatment. Drs B+H went to court because they treat ALOT of Lymies with long term antibiotics. The guy that named Lyme Disease thinks that he knows all there is to know about Lyme, he states that its an easy cure and 'rare'. That Dr has the ear of the powers that be and has told them that he is right and the LLMDs are wrong. Thus the court fights and also alot of us going years undiagnosed because dr think " its rare and its not here " . Jenni, you need to see an LLMD and not waste your time with other Drs. This sounds harsh I know, but it is the truth. Someone here might be in your area and be able to help you out. Take care, Pepi/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi, Jenni, LLMD stands for " Lyme Literate MD " - a doctor who has experience in diagnosing and treating Lyme Disease. Many Infectious Disease doctors (probably the majority!) are NOT LLMDs. It is crucial to find an LLMD because research on Lyme testing and diagnosis is in a state of flux, and there is enormous controversy over what causes a positive vs. negative result on the Western Blot test and how to treat Lyme effectively. Only an LLMD can be trusted to make a accurate diagnosis and help you really get better. I know, it sounds weird, I always thought Lyme was a straightforward disease to diagnose and treat, but it's not! For example, most Infectious Disease docs will tell you that after 4 weeks on antibiotics, you should be cured of your Lyme. We now know this is not true, but many Primary Care and Infectious Disease docs still go by the old, conservative, outdated guidelines and won't prescribe additional treatment, even as your symptoms return. It is very, very important to find an LLMD. To start finding out more, I suggest looking at www.lymenet.org and www.lymealliance.org. I believe there is a number listed there to call for LLMDs in your state. Also, someone on the List may know. Check out the archives and links, too - if you are subscribed to this list you can access the informative links there. Hope this helps. Best wishes and wellness, Marie ill since 1994 dx'd CFIDS (by an Infectious Disease doc) dx'd Lyme 12/99 by an Infectious Disease LLMD and getting better now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I have been out of town so I don't know if someone responded or not LLMD is Lyme Literate MD Sheryl [ ] LLMD??? > OK, I'm asking what may seem like dumb questions to a lot of you, but > I'm new to all this...what does LLMD stand for? My family physician > keeps referring me to Infectious Disease specialists, and I may need > to travel up north (I live in SC) to find a better dr. > > I'm not real sure what to look for. I just found an IDS here who has > 2 lyme's patients. Yippee, most drs around here have never treated > it before! > Thanks, > Jenni > > > Welcome to > > Easy Reference: > Send a blank email message to: > > -Unsubscribe - Unsubscribe from the list > -Digest - Switch your subscription to a digest format > -Normal - Switch your subscription to normal > > Please send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic > > The archives can be accessed at > > The chat room is always open! > /chat > > Quote Link to comment Share on other sites More sharing options...
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