Guest guest Posted May 16, 2000 Report Share Posted May 16, 2000 In a message dated 5/16/00 3:52:43 PM Eastern Daylight Time, m2hmghb@... writes: << Thanks for your support. I guess I just had a nervous breakdown. I cried for over an hour and a half. >> SCOTT, Hang in there sweet heart, sometimes a good cry just lets us get rid of bent up frustrations, you just can't stay in the pits. I'm willing to talk to you on the phone. Just email me your phone number. CarolF. in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Hi I agree with much of what you said except Im a bit puzzled you say [Right now I am seriously seeking solutions for my wife's lyme. So far the areas that seem most promising are herbal remedies, MMS, salt/c, Rife and The Marshal Protocol.] yet the MMS, salt/c and Rife fall into the very same categories you are wary of!!! especially the MMS as for Marshall it may help a small subset, but not all of us exhibit the vit D ratio disregulation and many of us with dysautonomia would be in grave danger with the Benicar!! not to mention how much worse our condition would get taking an ARB with all of the above you list there is a very worrisome attitude whereby those having very dangerous reactions or questioning the safety are not " allowed " to post or voice their experiences--I tend to look negatively upon anything that doesnt allow BOTH the good and the bad to be discussed for a fully disclosed set of info--and the risks-- and please note that as many on those protocols are on them for months to years just like herbs and/or Rx meds--and yet most seem to still be ill--and the long term risks of much of it is very unknown but cant be any better than the short term risks? which are plenty bad. I also look negatively upon things that are hyped with blatantly false info ( be they alternative or Big Pharma) for example all of Africa--incl Malawi and Uganda-?STILL has?a horrible and deadly Malaria problem---so why try to say otherwise just to sell some bleach water?? may I urge you to view the many solid ( and scientifically backed by citations) articles on www.lymeneteurope.com for your own edification. when we are careful, it includes all of it-- the Mds suggestions and creds, other health professional creds and all the tx--Rx meds, herbs, etc ALL of it Finette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Many thanks for your very detailed reply. Please see my answers in line below. Again thank you for taking the time to respond. > [ ] Re: scott > > Hi > > I agree with much of what you said except Im a bit puzzled > > you say > [Right now I am seriously seeking solutions for my wife's > lyme. So far the areas that seem most promising are herbal > remedies, MMS, salt/c, Rife and The Marshal Protocol.] > > > yet the MMS, salt/c and Rife fall into the very same > categories you are wary of!!! especially the MMS So far ancedotal evidence for Rife is really overwhelming, I have not tried it but am on a list to get a machine. Salt/C has given my wife a tremendous hex starting out and it also has some science that seeems to explain why it can be working. It too has great ancedotal evidence from a large group of uses. > > as for Marshall it may help a small subset, but not all of us > exhibit the vit D ratio disregulation and many of us with > dysautonomia would be in grave danger with the Benicar!! not > to mention how much worse our condition would get taking an ARB Yes I understand this may not be something for everyone but for those it is helping it does seem to do something useful. > > with all of the above you list there is a very worrisome > attitude whereby those having very dangerous reactions or > questioning the safety are not " allowed " to post or voice > their experiences--I tend to look negatively upon anything > that doesnt allow BOTH the good and the bad to be discussed > for a fully disclosed set of info--and the risks-- I am always open to all sides of a discussion. Please do not take my negativity for close mind, I am very willing to learn more and if wrong correct my errors. > > and please note that as many on those protocols are on them > for months to years just like herbs and/or Rx meds--and yet > most seem to still be ill--and the long term risks of much of > it is very unknown but cant be any better than the short term > risks? which are plenty bad. Yes I do understand that. Again I am seeking what works and trying to help my wife get through this. The best bets seem to be the treatments that have a number of success cases. > > I also look negatively upon things that are hyped with > blatantly false info ( be they alternative or Big Pharma) for > example all of Africa--incl Malawi and Uganda-?STILL has?a > horrible and deadly Malaria problem---so why try to say > otherwise just to sell some bleach water?? I have read both sides of MMS. Currently my wife is NOT taking it but I am using it at least see what sort of things it might do to a non-lyme sufferer. Right now I am home sick with flu and am expermenting to see if it allievates this at all. So far results are inconclusive. > > may I urge you to view the many solid ( and scientifically > backed by citations) articles on www.lymeneteurope.com > for your own edification. I am a member of lymnet Euorope and had to recently shut off my daily intake of that list. I find a large number simply repeating the ABX line with complete negativity to any alternate treatmenst. At present it is very obvious to me that ABX is one of the worst ways currently to treat this disease and there appears to be at least a small cover up going on over this. > > > when we are careful, it includes all of it-- the Mds > suggestions and creds, other health professional creds and > all the tx--Rx meds, herbs, etc ALL of it I agree I do not discount anything and I am still learning, experimenting and searching. > > Finette Quote Link to comment Share on other sites More sharing options...
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