Re: NBC Weekend Today Link on Lyme

[Guest guest]

Thanks for posting this Rose, would you believe I got up early to watch

Weekend Today and fell back to sleep only to wake up after it was over!

Drat! Thanks too for the invite to move to Texas, it is hot and humid there

in the Dallas Ft. Worth area, just as bad as NJ, has lots more pros to it

than cons, but thinking now is that since my family still alive and ailing,

it might be best to move to a closer state. I just wish we would get over

with it already while I am feeling well enough to undertake this huge

upheaval! Hubby cannot make up his mind.

Hugs,

Marta

----- Original Message -----

From: " 'TOIL for Lyme' " <toil_for_lyme@...>

>

> Dear Friends,

>

> NBC Weekend Today segment on Lyme - Will air second segment tomorrow

(Sunday) morning.

>

> The following link is what they have posted so far concerning today's

program and what is up for tomorrow. No transcripts yet, as far as I can

see, but a lot of background info. We need to respond with a massive email

campaign, which you can do from the link below:

>

> http://www.msnbc.com/modules/exports/ct_email.asp?/news/577822.asp

>

> Said how our letters prompted this second airing of the coverage. Dr. B

and Dr. Fallon were featured. Talked about the progressive attitude in

Europe for longer antibiotic treatment. Why don't we do the same here, Dr.

Ian asked? The OPMC controversy was discussed in good detail. Many

letters from patients were read.

>

> Love ya, Rose

[Guest guest]

While I liked the Lyme segments on NBC, This is about the third time

I have seen DR. Fallon on TV showing brain scans and talking about

Lyme. What I have not seen from him or Columbia are any recent info

about what it all means. All they do is say we have scans. What is

actually happening to our brains, have they learned nothing yet that

they can explain in laymans terms? I was encouraged to go to

columbia, had a scan, and then never told what it really means. I

found that very disapointing and a waste of money and time. All I

have is a piece of paper that talks about hypofusion .

I think they need to be more open with what they have learned so far.

world

> Dear Friends,

>

> NBC Weekend Today segment on Lyme - Will air second segment

tomorrow (Sunday) morning.

>

> The following link is what they have posted so far concerning

today's program and what is up for tomorrow. No transcripts yet, as

far as I can see, but a lot of background info. We need to respond

with a massive email campaign, which you can do from the link below:

>

> http://www.msnbc.com/modules/exports/ct_email.asp?/news/577822.asp

>

> Said how our letters prompted this second airing of the coverage.

Dr. B and Dr. Fallon were featured. Talked about the

progressive attitude in Europe for longer antibiotic treatment. Why

don't we do the same here, Dr. Ian asked? The OPMC controversy

was discussed in good detail. Many letters from patients were read.

>

> Love ya, Rose

>

> ____________________________________________________________________

>

>

>

> ---------------------------------

>

[Guest guest]

In a message dated 5/26/2001 10:40:49 AM Eastern Daylight Time,

toil_for_lyme@... writes:

> Dr. B and Dr. Fallon were featured. Talked about the progressive

> attitude in Europe for longer antibiotic treatment. Why don't we do the

> same here, Dr. Ian asked? The OPMC controversy was discussed in good

> detail. Many letters from patients were read.

>

Hi everyone,

I didn't get to watch this, but thank you to those here who have given us

feedback.

The above is very encouraging, gives me hope.

Hugs, a