Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Yes I recommended sulphur and yes it works I did it. I also have animals in the yard full time and it didn't hurt them at all. It is naturally found in the soil. Also use frontline or advantage w/the tick formula. [ ] New to the group! Hello All... I just joined this list after all the people living in my house hold have been diagnosed/treated for Lyme. It's been a year for me, and I am still not 100%. I breed and show dogs and they were testing positive and showing signs so often, my vet just sells me a bottle of doxycycline and I treat them all twice a year. It was that bad with them. Just this morning, I pulled a tick off of me. I do a tick search everynight, so I don't know how this one made it through the inspection. I am just sick of them. I'm now terrified of lyme, again. My dogs are so used to the phrase " icky ticky time " that when I say it, they all line up in the bathroom waiting for their turn (light is best in there! It's a sign that the tick issue is out of hand here. So, I joined to learn. I live in Central Connecticut and the ticks are just horrible. I just finished fencing in my yard, with the hopes it will cut down on the wildlife in my yard and with any luck, the tick population will decrease. My one question that I have for now, is what do you guys use to help curb the tick population in your yards? I really don't want to spray harsh chemicals, but if it comes to that I will. Do any of you have any other suggestions? I've heard about using sulfer, has anyone used it and had luck? How do you spread it? Having a flock of birds that eat ticks doesn't work here. I've tried it twice and all the birds are eaten by something if I don't keep them cooped and they can't eat the ticks from there! Thanks and I look forward to learning! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Welcome to the group Lyn. This is a great bunch of people that are very knowlegable about jra. It took the doctors about 6 months to diagnose my daughter (5 yrs ago now). Her knee was swollen up the size of a basketball and all she could tell them at age 4, was it hurt right here....pointing to her knee. they referred us to a surgeon at the children's hospital, who was examing in her for a knee surgery....when he moved her knee one way and she yelled that it hurt.....after that, thankfully, he knew something wasn't right...and transfered us to the ped. rheumy. That doc had no doubt in her mind that she has poly jra. She has been under going treatment every since. Helen New to the group! Hello all :)I'm Lyn, mother of 3 girls ages 6 4 and 3 and wife to a police officer where we live in Minnesota. Just recently our 6 yr old daughter was diagnosed with JRA. Her symptoms started at the end of November and with doctor visits in January, Feb and March - April 18th we finally got some answers. I look forward getting to know all of you with your stories or stories about your loved ones that are affected by this. Feel free to ask any additonal questions. ~Lyn Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Hi Lyn - I too am from MN, there are a few others from MN here as well. Where do you live in MN? I live in andria. We drive to the UofM for our appts. the 2 hour drive is never something we look forward to but it actually has been a good bonding time with my son. Nice to have you here! & Grant (11,PsA/Uveitis) > > Hello all > > I'm Lyn, mother of 3 girls ages 6 4 and 3 and wife to a police officer > where we live in Minnesota. Just recently our 6 yr old daughter was > diagnosed with JRA. Her symptoms started at the end of November and > with doctor visits in January, Feb and March - April 18th we finally > got some answers. > > I look forward getting to know all of you with your stories or stories > about your loved ones that are affected by this. Feel free to ask any > additonal questions. > > ~Lyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Welcome aboard. I am new too. Erna (7) got her symptoms around the time your daughter got yours. I was thinking arthritis right away, while people around us said it probably were "growing pains", so we told the doctor to check for arthritis the next time we saw him. (She has syndrome too - meaning, she doesn`t have 2 X chromosones, only 1... and it affects her growth. With no medications she will end up 20 cms (8 inches) shorter than me. And it affects her fertility as well, so we will have to use ostrogene to get her into puberty and she will need it fr the rest of her life not to develop oseoporoses.. Thanks to the syndrome we are seing a doctor a couple of times a year to follow her development.) Well. When we found out she started taking cortisone and now she is hopping around as she always have with no pains at all. Hope it continues that way. Inger Lise How do you become a butterfly? she askedYou must want to fly so much that you are willing to give up being a caterpillar... New to the group! Hello all :)I'm Lyn, mother of 3 girls ages 6 4 and 3 and wife to a police officer where we live in Minnesota. Just recently our 6 yr old daughter was diagnosed with JRA. Her symptoms started at the end of November and with doctor visits in January, Feb and March - April 18th we finally got some answers. I look forward getting to know all of you with your stories or stories about your loved ones that are affected by this. Feel free to ask any additonal questions. ~Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 > > Hello all > > I'm Lyn, mother of 3 girls ages 6 4 and 3 and wife to a police officer > where we live in Minnesota. Just recently our 6 yr old daughter was > diagnosed with JRA. Her symptoms started at the end of November and > with doctor visits in January, Feb and March - April 18th we finally > got some answers. > > I look forward getting to know all of you with your stories or stories > about your loved ones that are affected by this. Feel free to ask any > additonal questions. > > ~Lyn > Hi Lyn, Welcome to the group . My name is Elaine, Nickname Lani. My daughter has poly-JRA, and she has had it most of her life. She is now 21 months old, and it took me looking her symptoms up on web MD to get a diagnosis after 8 months of hell. I feel ya girl!!! I use to think Doctors knew everything, but now I am confident that I know more...when it comes to my . It's bitter sweet when you get the diagnosis. I kept thinking ..well, it's better than the other stuff they were testing her for, but I never thought it was this disabling. I have come to the realization that these diseases are totally downplayed. Everyone here has seen it at it's ugliest..... Best wishes, Lani and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 , I'm up in West Central Minn. in Breckenridge (24 miles west of Fergus Falls & 43 miles south of Moorhead). Not too far from andria. We actually drive past to head down to the cities where we go as well to the UofM. Our next visit will be May 16th and heading down May 15th. > > > > Hello all > > > > I'm Lyn, mother of 3 girls ages 6 4 and 3 and wife to a police > officer > > where we live in Minnesota. Just recently our 6 yr old daughter > was > > diagnosed with JRA. Her symptoms started at the end of November > and > > with doctor visits in January, Feb and March - April 18th we > finally > > got some answers. > > > > I look forward getting to know all of you with your stories or > stories > > about your loved ones that are affected by this. Feel free to ask > any > > additonal questions. > > > > ~Lyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi Janelle, Welcome to the group. Although I am sorry you are having to deal with this disease. Yes, you are correct in the fact that you may need to increase your Armour. I believe it is suggested that we increase by 1/4 to 1/2 a grain every two weeks. You are probably at the point of needing to increase. If you go to stopthethyroidmadness.com and click on " mistakes we have made " I believe that's where the info is, you will be able to get more info there. You should also make sure you do not have any adrenal problems before starting Armour. If you have not done so also check out the adrenals section at the same website. HOpe this helps Venizia > > Hi all > > I'm 28 years old and I've just begun my hypothyroidism journey. > Someone in one of my parenting groups mentioned her laundry list > of symptoms and it sounded so familiar, going all the way back to when > I hit puberty/started hbc. A couple of months ago I visited a > holistic md who confirmed my suspicions (despite " normal " labs) after > my pcp poo-pood my list of symptoms and told me he knew it was just > anxiety/depression. The holistic md put me on 60mg armour. > > Anyhow, I've been through www.stopthethyroidmadness.com but I need > some person to person support. Over the last couple of weeks many of > my symptoms have come back - jumpiness, fatigue, scalp acne, > frustration/anger flare ups/mood swings, more fatigue, low body > temperature, needing naps, dry skin and bumps on legs. My skin was > just starting to soften and my energy was up and life was good. From > what little I've had a chance to read lately (I've got an 11 month old > dd) it's common to need an increase in Armour after a period of time. > Is that right? Due to money problems I can't go back to see my > doctor (damned insurance), but I want to call her to see if she'll > increase my dosage. I just want to make sure I've got accurate > information. > > I've also got suspected hypometabolism, too, but I don't have the $100 > to do the all day saliva test quite yet. > > Thanks, > > Janelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 docs do not know how to Rx Armour and undertreat us. usual dose of Armour is 180--300mg. I take 240mg chewed up all in the morning. you must get MORE Armour soon---get up to 180mg as soon as possible. IMO that is the minimum. Gracia Hi all I'm 28 years old and I've just begun my hypothyroidism journey. Someone in one of my parenting groups mentioned her laundry list of symptoms and it sounded so familiar, going all the way back to when I hit puberty/started hbc. A couple of months ago I visited a holistic md who confirmed my suspicions (despite " normal " labs) after my pcp poo-pood my list of symptoms and told me he knew it was just anxiety/depression. The holistic md put me on 60mg armour. Anyhow, I've been through www.stopthethyroidmadness.com but I need some person to person support. Over the last couple of weeks many of my symptoms have come back - jumpiness, fatigue, scalp acne, frustration/anger flare ups/mood swings, more fatigue, low body temperature, needing naps, dry skin and bumps on legs. My skin was just starting to soften and my energy was up and life was good. From what little I've had a chance to read lately (I've got an 11 month old dd) it's common to need an increase in Armour after a period of time. Is that right? Due to money problems I can't go back to see my doctor (damned insurance), but I want to call her to see if she'll increase my dosage. I just want to make sure I've got accurate information. I've also got suspected hypometabolism, too, but I don't have the $100 to do the all day saliva test quite yet. Thanks, Janelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 gracia- just curious, why do you take your dose all at once instead of splitting it up say in 2 or 3 doses? nancie From: Gracia Sent: Wednesday, May 21, 2008 9:35 PM hypothyroidism Subject: Re: New to the group! docs do not know how to Rx Armour and undertreat us. usual dose of Armour is 180--300mg. I take 240mg chewed up all in the morning. you must get MORE Armour soon---get up to 180mg as soon as possible. IMO that is the minimum. Gracia Hi all I'm 28 years old and I've just begun my hypothyroidism journey. Someone in one of my parenting groups mentioned her laundry list of symptoms and it sounded so familiar, going all the way back to when I hit puberty/started hbc. A couple of months ago I visited a holistic md who confirmed my suspicions (despite " normal " labs) after my pcp poo-pood my list of symptoms and told me he knew it was just anxiety/depression. The holistic md put me on 60mg armour. Anyhow, I've been through www.stopthethyroidmadness.com but I need some person to person support. Over the last couple of weeks many of my symptoms have come back - jumpiness, fatigue, scalp acne, frustration/anger flare ups/mood swings, more fatigue, low body temperature, needing naps, dry skin and bumps on legs. My skin was just starting to soften and my energy was up and life was good. From what little I've had a chance to read lately (I've got an 11 month old dd) it's common to need an increase in Armour after a period of time. Is that right? Due to money problems I can't go back to see my doctor (damned insurance), but I want to call her to see if she'll increase my dosage. I just want to make sure I've got accurate information. I've also got suspected hypometabolism, too, but I don't have the $100 to do the all day saliva test quite yet. Thanks, Janelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 I did not feel good when I split the dose, but now that I am taking enough iodine perhaps I could split the dose--maybe I will try it. Gracia gracia- just curious, why do you take your dose all at once instead of splitting it up say in 2 or 3 doses? nancie From: Gracia Sent: Wednesday, May 21, 2008 9:35 PM hypothyroidism Subject: Re: New to the group! docs do not know how to Rx Armour and undertreat us. usual dose of Armour is 180--300mg. I take 240mg chewed up all in the morning. you must get MORE Armour soon---get up to 180mg as soon as possible. IMO that is the minimum. Gracia Recent Activity a.. 14New Members Visit Your Group Health Heartburn or Worse What symptoms are most serious? Meditation and Lovingkindness A Group to share and learn. Find Balance on manage nutrition, activity & well-being. . ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1458 - Release Date: 5/21/2008 7:21 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Janelle, You wrote: > ... The holistic md put me on 60mg armour. > That is unusually low. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 I thought the manufacturer said that the MAXIMUM recommended dosage is 180 mg [or is it mcg?]??? > > Re: New to the group! > <hypothyroidism/message/38540;_ylc=X3oDMTJxdnEwbWw\ zBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzg1NDAEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIxMTQ1MzQwNw--> > > > > Posted by: " Gracia " circe@... > <mailto:circe@...?Subject=%20Re%3A%20New%20to%20the%20group%21> > graciabee <graciabee> > > > Wed May 21, 2008 9:36 pm (PDT) > > > docs do not know how to Rx Armour and undertreat us. usual dose of > Armour is 180--300mg. > I take 240mg chewed up all in the morning. you must get MORE Armour > soon---get up to 180mg as soon as possible. IMO that is the minimum. > Gracia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Hi Chuck She's increasing my dosage to 90mg for 6 more weeks. Having hypothyroid herself, she's been sent into hyperthyroid with meds and wants to avoid that with me. Considering that she's actually got personal experience with hypothyroid, I'm less resistant to her strategy here. As much as I want to get better, faster, I appreciate the fact that she's not overdoing it. Janelle On Thu, May 22, 2008 at 6:22 PM, Chuck B <gumboyaya@...> wrote: > Janelle, > > You wrote: > > ... The holistic md put me on 60mg armour. > > > > That is unusually low. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 she's making you suffer. well actually I could only tolerate 90mg for the longest time, b/c I needed adrenal and sex hormones. Hyperthyroidism is caused by iodine deficiency and/or low adrenals. If you take too much meds it is a different thing---you will just be buzzed. have you looked at http://www.drbrownstein.com and the books there? Gracia Hi Chuck She's increasing my dosage to 90mg for 6 more weeks. Having hypothyroid herself, she's been sent into hyperthyroid with meds and wants to avoid that with me. Considering that she's actually got personal experience with hypothyroid, I'm less resistant to her strategy here. As much as I want to get better, faster, I appreciate the fact that she's not overdoing it. Janelle On Thu, May 22, 2008 at 6:22 PM, Chuck B <gumboyaya@...> wrote: > Janelle, > > You wrote: > > ... The holistic md put me on 60mg armour. > > > > That is unusually low. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 that is what Chuck says is on the Armour website but it is not what patients say. 180 MG is the minimum. Gracia I thought the manufacturer said that the MAXIMUM recommended dosage is 180 mg [or is it mcg?]??? > > Re: New to the group! > <hypothyroidism/message/38540;_ylc=X3oDMTJxdnEwbWw\ zBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzg1NDAEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIxMTQ1MzQwNw--> > > > > Posted by: " Gracia " circe@... > <mailto:circe@...?Subject=%20Re%3A%20New%20to%20the%20group%21> > graciabee <graciabee> > > > Wed May 21, 2008 9:36 pm (PDT) > > > docs do not know how to Rx Armour and undertreat us. usual dose of > Armour is 180--300mg. > I take 240mg chewed up all in the morning. you must get MORE Armour > soon---get up to 180mg as soon as possible. IMO that is the minimum. > Gracia ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.0/1460 - Release Date: 5/22/2008 7:06 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Valid Medical sites referring to hyperT , its causes, symptoms etc. http://www.mayoclinic.com/health/hyperthyroidism/DS00344 http://www.endocrineweb.com/hyper1.html http://www.endocrineweb.com/hyper2.html Regards Dusty _____ From: hypothyroidism [mailto:hypothyroidism ] On Behalf Of Gracia Sent: Friday, May 23, 2008 12:46 AM hypothyroidism Subject: Re: New to the group! she's making you suffer. well actually I could only tolerate 90mg for the longest time, b/c I needed adrenal and sex hormones. Hyperthyroidism is caused by iodine deficiency and/or low adrenals. If you take too much meds it is a different thing---you will just be buzzed. have you looked at http://www.drbrowns <http://www.drbrownstein.com> tein.com and the books there? Gracia Hi Chuck She's increasing my dosage to 90mg for 6 more weeks. Having hypothyroid herself, she's been sent into hyperthyroid with meds and wants to avoid that with me. Considering that she's actually got personal experience with hypothyroid, I'm less resistant to her strategy here. As much as I want to get better, faster, I appreciate the fact that she's not overdoing it. Janelle On Thu, May 22, 2008 at 6:22 PM, Chuck B <gumboyayacox (DOT) <mailto:gumboyaya%40cox.net> net> wrote: > Janelle, > > You wrote: > > ... The holistic md put me on 60mg armour. > > > > That is unusually low. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 I am a " valid " sufferer of hyper/hypothyroidism, now taking 100mg iodine/iodide per day. http://www.optimox.com (not " valid " by allopathic standards, but you will get well nonetheless) LOL gracia Valid Medical sites referring to hyperT , its causes, symptoms etc. http://www.mayoclinic.com/health/hyperthyroidism/DS00344 http://www.endocrineweb.com/hyper1.html http://www.endocrineweb.com/hyper2.html Regards Dusty _____ From: hypothyroidism [mailto:hypothyroidism ] On Behalf Of Gracia Sent: Friday, May 23, 2008 12:46 AM hypothyroidism Subject: Re: New to the group! she's making you suffer. well actually I could only tolerate 90mg for the longest time, b/c I needed adrenal and sex hormones. Hyperthyroidism is caused by iodine deficiency and/or low adrenals. If you take too much meds it is a different thing---you will just be buzzed. have you looked at http://www.drbrowns <http://www.drbrownstein.com> tein.com and the books there? Gracia Recent Activity a.. 17New Members Visit Your Group Health Memory Loss Are you at risk for Alzheimers? Meditation and Lovingkindness A Group to share and learn. Women of Curves on see how women are changing their lives. . ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.0/1462 - Release Date: 5/23/2008 7:20 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Janelle, By " low " I did not necessarily mean " wrong. " Low doses are appropriate for beginning titration or for early stages of Hashimoto's when the thyroid is still working, although only partially. Either case implies that you should expect changes in dosage in the near future. Chuck You wrote: > > > Hi Chuck > > She's increasing my dosage to 90mg for 6 more weeks. Having hypothyroid > herself, she's been sent into hyperthyroid with meds and wants to avoid that > with me. Considering that she's actually got personal experience with > hypothyroid, I'm less resistant to her strategy here. As much as I want to > get better, faster, I appreciate the fact that she's not overdoing it. > > Janelle > > On Thu, May 22, 2008 at 6:22 PM, Chuck B <gumboyaya@... > <mailto:gumboyaya%40cox.net>> wrote: > > > Janelle, > > > > You wrote: > > > ... The holistic md put me on 60mg armour. > > > > > > > That is unusually low. > > > > Chuck > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 You are not yet well, Gracia and you take tons of mixed meds - YOu have posted many times that you " NEED " Cortef and Iodine , in ADDITION to Armour - along with extremely high dose hormones and this vitamin and that vitamin in order to try and feel well. You have done this for years (not months), and by your own words, increased one (or more of those drugs) not too long ago. I too suffered the effects of h yper and hypo - and can testify to the fact that propylthiouracil for 13 months fixed my hyper in my early 20'1 and I am doing just fine now on Synthroid (no iodine to supplement it, no steroids to supplement it, etc. etc.) after being diagnosed hypo at age 52. Dusty _____ From: hypothyroidism [mailto:hypothyroidism ] On Behalf Of Gracia Sent: Friday, May 23, 2008 10:13 AM hypothyroidism Subject: Re: New to the group! I am a " valid " sufferer of hyper/hypothyroidism, now taking 100mg iodine/iodide per day. http://www.optimox. <http://www.optimox.com> com (not " valid " by allopathic standards, but you will get well nonetheless) LOL gracia Valid Medical sites referring to hyperT , its causes, symptoms etc. http://www.mayoclin <http://www.mayoclinic.com/health/hyperthyroidism/DS00344> ic.com/health/hyperthyroidism/DS00344 http://www.endocrin <http://www.endocrineweb.com/hyper1.html> eweb.com/hyper1.html http://www.endocrin <http://www.endocrineweb.com/hyper2.html> eweb.com/hyper2.html Regards Dusty _____ From: hypothyroidism@ <mailto:hypothyroidism%40> [mailto:hypothyroidism@ <mailto:hypothyroidism%40> ] On Behalf Of Gracia Sent: Friday, May 23, 2008 12:46 AM hypothyroidism@ <mailto:hypothyroidism%40> Subject: Re: New to the group! she's making you suffer. well actually I could only tolerate 90mg for the longest time, b/c I needed adrenal and sex hormones. Hyperthyroidism is caused by iodine deficiency and/or low adrenals. If you take too much meds it is a different thing---you will just be buzzed. have you looked at http://www.drbrowns <http://www.drbrowns <http://www.drbrownstein.com> tein.com> tein.com and the books there? Gracia Recent Activity a.. 17New Members Visit Your Group Health Memory Loss Are you at risk for Alzheimers? Meditation and Lovingkindness A Group to share and learn. Women of Curves on see how women are changing their lives. .. ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.0/1462 - Release Date: 5/23/2008 7:20 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 actually I am no different than LOTS of women and some men. Lots of us take iodine, Armour, cortef and hormones. It all works b/c it's the ENDOCRINE SYSTEM not the endocrine parts. look on http://www.stopthethyroidmadness.com or iodine group for ppl just like me! yes I would say I am pretty well, considering the 30 " lost " years but you can think whatever you like! ooooh doesn't that just make you so mad? LOL Gracia You are not yet well, Gracia and you take tons of mixed meds - YOu have posted many times that you " NEED " Cortef and Iodine , in ADDITION to Armour - along with extremely high dose hormones and this vitamin and that vitamin in order to try and feel well. You have done this for years (not months), and by your own words, increased one (or more of those drugs) not too long ago. I too suffered the effects of h yper and hypo - and can testify to the fact that propylthiouracil for 13 months fixed my hyper in my early 20'1 and I am doing just fine now on Synthroid (no iodine to supplement it, no steroids to supplement it, etc. etc.) after being diagnosed hypo at age 52. Dusty _____ Recent Activity a.. 18New Members Visit Your Group Health Early Detection Know the symptoms of breast cancer. Meditation and Lovingkindness A Group to share and learn. Cat Fanatics on Find people who are crazy about cats. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Not mad at all darling. I take my Synthroid in the a.m. and I'm just fine. I don't need to supplement it with steroids and iodine. It's you I feel badly for, having to take all that stuff just to feel half as well as the rest of us. Dusty _____ From: hypothyroidism [mailto:hypothyroidism ] On Behalf Of Gracia Sent: Saturday, May 24, 2008 12:32 AM hypothyroidism Subject: Re: New to the group! actually I am no different than LOTS of women and some men. Lots of us take iodine, Armour, cortef and hormones. It all works b/c it's the ENDOCRINE SYSTEM not the endocrine parts. look on http://www.stopthet <http://www.stopthethyroidmadness.com> hyroidmadness.com or iodine group for ppl just like me! yes I would say I am pretty well, considering the 30 " lost " years but you can think whatever you like! ooooh doesn't that just make you so mad? LOL Gracia You are not yet well, Gracia and you take tons of mixed meds - YOu have posted many times that you " NEED " Cortef and Iodine , in ADDITION to Armour - along with extremely high dose hormones and this vitamin and that vitamin in order to try and feel well. You have done this for years (not months), and by your own words, increased one (or more of those drugs) not too long ago. I too suffered the effects of h yper and hypo - and can testify to the fact that propylthiouracil for 13 months fixed my hyper in my early 20'1 and I am doing just fine now on Synthroid (no iodine to supplement it, no steroids to supplement it, etc. etc.) after being diagnosed hypo at age 52. Dusty _____ Recent Activity a.. 18New Members Visit Your Group Health Early Detection Know the symptoms of breast cancer. Meditation and Lovingkindness A Group to share and learn. Cat Fanatics on Find people who are crazy about cats. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Hi , my name is Olivia...I just turned 29 not too long ago. When I read your message I just had to respond, because, I just had cervical fusion surgery in mid June on c5-6 and c6-7 level...I'm obviously still recovering. Anyhow, one of my concerns about having the surgery was future problem with my neck. I'm really sorry to hear about your current problems. I'd be interested in sharing more with you...but, I'm really not sure how I could help you...hope you are feeling ok, at the least. Anyhow, reading your post really struck in nerve with me...no pun intended...LOL!!...please stay in touch...or you can e-mail me at: oaj1979@.... Take care, Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Hi , my name is Olivia...I just turned 29 not too long ago. When I read your message I just had to respond, because, I just had cervical fusion surgery in mid June on c5-6 and c6-7 level...I'm obviously still recovering. Anyhow, one of my concerns about having the surgery was future problem with my neck. I'm really sorry to hear about your current problems. I'd be interested in sharing more with you...but, I'm really not sure how I could help you...hope you are feeling ok, at the least. Anyhow, reading your post really struck in nerve with me...no pun intended...LOL!!...please stay in touch...or you can e-mail me at: oaj1979@.... Take care, Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 My story is a lot like yours... I had surgery on 2 herniated disks. I was fine for 6 months and then the pain started to come back. My co-workers had some doubts about the truth of what I was saying and thought I was just trying to be a slacker so I just shut up about but the pain was hard for me to bear. After some time I went back and had another MRI and found I had 3 more disks in my neck that had herniated. I later found I had one in my lower back as well. My doctor sent me to have the shot into the neck and the doctor who was going to administer the shot said he would not do it because he noticed damage to my spinal column. So I now cannot have shots or any further surgery. I am now at the place where I can take meds and that is all. Work is almost impossible. I have to have a job that allows part time or work from home. I am in IT so that is not an easy thing to find.. The one thing about your case that I really feel for is that you are so young... I am 56. I sincerely hope that you are able to solve your issues and can go back to having a normal life.. : ) Tom In a message dated 8/5/2008 4:32:44 P.M. Mountain Daylight Time, carrie.heflin@... writes: Hi Everyone! I just wanted to send a message to introduce myself and tell you a little about my story. I am 30 years old and I have been dealing with neck issues for over 3 years now. After a year of therapy, injections, and lots of meds I finally took the plunge in 2006 to have my two herniated discs removed (C5 - C7). I thought at the time that it was the best decision I could have ever made. After the surgery, I could at least move my arms, shoulders, and neck again (something I hadn't done in over a year). What I didn't know is that my muscles were so tight from being still for so long that it would take another year after surgery to even go one day without being in pain. 7 months ago I started suffering from numbness and tingling in my arms and this time in my hands (which did not happen before). I started to think maybe just carpel tunnel and dealt with it on my own for a few months. It seemed to get better with my home remedies so I thought nothing more about it. Then two months ago the numbness and tingling came back. This time, more often and now I am feeling severe pain in my neck. Not just the muscles but I feel like someone is stabbing me inbetween my shoulder blades. I decided to see an Orthopedist (still thinking carpel tunnel). They sent me for X-rays, and EMG and everything came back normal. Finally, last week I got an MRI. I received the results yesterday and I almost fainted. The two discs (C3 - C4) above what I had fused are now bulging and arthritis is setting in. They also told me that one of the screws is loose on C6. They immediately set up an appointment with a Neurosurgeon. I had my surgery in VA but now I live in NC. I can't possibly make the drive to see my surgeon but I am very apprehensive about seeing a new surgeon. I called my surgeons PA today and told her the news. She reassured me that people can live the rest of their lives with bulging discs and that the screw being loose on my plate isn't an issue. In the same breathe, she told me that I have been blessed with bad genetics and that these two discs could end up herniated as well. I joined this group because I want to hear about other peoples stories as sometimes I feel so alone in my situation. I hide my pain level from my friends and family since I know they must be tired of hearing me say day in and day out " My neck hurts " . My neck has prohibited me doing all the things that I love to include painting, gardening, scrapbooking, crocheting, ect.. Everything I do involves my neck (even my deskjob!) and one day of pleasure causes me a week or more of serious pain. I don't take pain meds anymore because they just became addictive and they really just don't work after a while. I have an appointment on Thursday to see the Neurosurgeon. I am so nervous and the stress is putting me in even more pain! I would love to hear your stories, especially if you have one similiar to mine. Also, any words of encouragement would be wonderful! Thanks for taking the time to read about my story and I look forward to hearing from all of you and reading about your trials and tribulations. **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 My story is a lot like yours... I had surgery on 2 herniated disks. I was fine for 6 months and then the pain started to come back. My co-workers had some doubts about the truth of what I was saying and thought I was just trying to be a slacker so I just shut up about but the pain was hard for me to bear. After some time I went back and had another MRI and found I had 3 more disks in my neck that had herniated. I later found I had one in my lower back as well. My doctor sent me to have the shot into the neck and the doctor who was going to administer the shot said he would not do it because he noticed damage to my spinal column. So I now cannot have shots or any further surgery. I am now at the place where I can take meds and that is all. Work is almost impossible. I have to have a job that allows part time or work from home. I am in IT so that is not an easy thing to find.. The one thing about your case that I really feel for is that you are so young... I am 56. I sincerely hope that you are able to solve your issues and can go back to having a normal life.. : ) Tom In a message dated 8/5/2008 4:32:44 P.M. Mountain Daylight Time, carrie.heflin@... writes: Hi Everyone! I just wanted to send a message to introduce myself and tell you a little about my story. I am 30 years old and I have been dealing with neck issues for over 3 years now. After a year of therapy, injections, and lots of meds I finally took the plunge in 2006 to have my two herniated discs removed (C5 - C7). I thought at the time that it was the best decision I could have ever made. After the surgery, I could at least move my arms, shoulders, and neck again (something I hadn't done in over a year). What I didn't know is that my muscles were so tight from being still for so long that it would take another year after surgery to even go one day without being in pain. 7 months ago I started suffering from numbness and tingling in my arms and this time in my hands (which did not happen before). I started to think maybe just carpel tunnel and dealt with it on my own for a few months. It seemed to get better with my home remedies so I thought nothing more about it. Then two months ago the numbness and tingling came back. This time, more often and now I am feeling severe pain in my neck. Not just the muscles but I feel like someone is stabbing me inbetween my shoulder blades. I decided to see an Orthopedist (still thinking carpel tunnel). They sent me for X-rays, and EMG and everything came back normal. Finally, last week I got an MRI. I received the results yesterday and I almost fainted. The two discs (C3 - C4) above what I had fused are now bulging and arthritis is setting in. They also told me that one of the screws is loose on C6. They immediately set up an appointment with a Neurosurgeon. I had my surgery in VA but now I live in NC. I can't possibly make the drive to see my surgeon but I am very apprehensive about seeing a new surgeon. I called my surgeons PA today and told her the news. She reassured me that people can live the rest of their lives with bulging discs and that the screw being loose on my plate isn't an issue. In the same breathe, she told me that I have been blessed with bad genetics and that these two discs could end up herniated as well. I joined this group because I want to hear about other peoples stories as sometimes I feel so alone in my situation. I hide my pain level from my friends and family since I know they must be tired of hearing me say day in and day out " My neck hurts " . My neck has prohibited me doing all the things that I love to include painting, gardening, scrapbooking, crocheting, ect.. Everything I do involves my neck (even my deskjob!) and one day of pleasure causes me a week or more of serious pain. I don't take pain meds anymore because they just became addictive and they really just don't work after a while. I have an appointment on Thursday to see the Neurosurgeon. I am so nervous and the stress is putting me in even more pain! I would love to hear your stories, especially if you have one similiar to mine. Also, any words of encouragement would be wonderful! Thanks for taking the time to read about my story and I look forward to hearing from all of you and reading about your trials and tribulations. **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
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