Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 Hi Tammy, I asked my hubby's doc about cochlear implants and he said Larry was not a candidate because his cochlea was intact. Have you heard of the radio talk show host named Rush Limbaugh? He did not have c-toma but lost his hearing for a reason I can't remember. He got cochlear implants now and hears fine. Hope this helps a little. Not knowing what your small problem about this is or what the procedure for doing this is, I would think this would be great. Michele "jsatssat <jsatssat@...>" <jsatssat@...> wrote: i went to my ent yesterday and he is talking about me useing the cochlear implants. i have a small problem with this and am not really sure about wether this the right way to handle my hearing problems. i was just woundering if anyone here has a thoughts to the cochlear implants. i would like any input anyone has. thank you tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 no have not heared of him. i am not really sure that this is the answer to my hearing problems i do know that the hearing aids do not work any more and beside just letting it go and be deaf i dont know what my choices are. i know that for the last 10 years the doctors have been telling me that i need to deal with what is happening to me and go on with life. so i started taking asl and am doing pretty good with that and now they are saying that just letting it be is not good enough. i do know that if i agree to this it will mean surgery again and lots of rehab to learn to understand the sound. i dont know if this helps explain better but that why i guess i am worryed about it. thank you tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 - Hello Bonnie I have Bilateral Meniere's Disease myself and will be having my Cochlear Implant Surgery on Tuesday June 16Th. There are many people on this forum who have Meniere's Disease that even have Bilateral Implants so just go for the testing to see if you qualify. -- In , " bmf3329@... " <bmf3329@...> wrote: > > okay, here's the deal......I have Meniere's Disease in my right ear only. In 1993, I had a VNS....(vestibular nerve section) which essentially is when they open up the area behind your ear.....go into the inner ear to the brain (neurosurgeon involvement as well as two ear docs) and cut the balance nerve which runs from the inner ear into the brain....very involved surgery. It relieved all my severe vertigo (room spinning by the field of vision at about 40 mph sometimes for as long as 16 hours continuously....resultant nausea, throwing up) recovery for a few weeks, generally feeling lousy during my " respites " ....queasy, lack of appetite, rung out...then wham! another bout of severe vertigo. I was left, after the operation, with pretty much an off-balance feeling all the time, vision problems that never completely cleared up and staggering when I turn my head too fast while I am walking. Sounds worse than it is for me. Amazing what one can adapt to and what the body can eventually accept as normal. Most of the time, I do not notice it at all. Except the staggering on occasion, especially if I happen to stagger into walls, people, etc. lol > Left with no usable hearing in the affected ear. Fitted with a hearing aid that uses a receiver in my deaf ear that transfers all sound to my good ear...in effect my good ear is doing double duty. It works okay in one-on-one situations even though its supposed to be state-of-the-art technology and screen out background noise. don't wear it much. to my question: I was told that cochlear implants would not work for me since Meniere's patients have hearing nerve damage.....is this the case for all of you? Do none of you with cochlear implants have hearing nerve damage? Thanks (to those of you who have read this far, lol) for any info you can provide and for sharing your experiences with me. Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 Hi Bonnie, I have bilateral Meniere's and qualified as a bilateral cochlear implant patient late last year. I still get quite a lot of benefit from my hearing aids so I have decided to wait until I receive little or no benefit at all in order to pursue CI's. My doctor felt like Meniere's patients are good candidates for CI's. Belinda DeLaby, CPDT Canine Action, Inc. (407)325-9317 www.canineaction.com www.tempestwires.com From: [mailto: ] On Behalf Of bmf3329@... Sent: Sunday, June 14, 2009 7:31 PM Subject: cochlear implants okay, here's the deal......I have Meniere's Disease in my right ear only. In 1993, I had a VNS....(vestibular nerve section) which essentially is when they open up the area behind your ear.....go into the inner ear to the brain (neurosurgeon involvement as well as two ear docs) and cut the balance nerve which runs from the inner ear into the brain....very involved surgery. It relieved all my severe vertigo (room spinning by the field of vision at about 40 mph sometimes for as long as 16 hours continuously....resultant nausea, throwing up) recovery for a few weeks, generally feeling lousy during my " respites " ....queasy, lack of appetite, rung out...then wham! another bout of severe vertigo. I was left, after the operation, with pretty much an off-balance feeling all the time, vision problems that never completely cleared up and staggering when I turn my head too fast while I am walking. Sounds worse than it is for me. Amazing what one can adapt to and what the body can eventually accept as normal. Most of the time, I do not notice it at all. Except the staggering on occasion, especially if I happen to stagger into walls, people, etc. lol Left with no usable hearing in the affected ear. Fitted with a hearing aid that uses a receiver in my deaf ear that transfers all sound to my good ear...in effect my good ear is doing double duty. It works okay in one-on-one situations even though its supposed to be state-of-the-art technology and screen out background noise. don't wear it much. to my question: I was told that cochlear implants would not work for me since Meniere's patients have hearing nerve damage.....is this the case for all of you? Do none of you with cochlear implants have hearing nerve damage? Thanks (to those of you who have read this far, lol) for any info you can provide and for sharing your experiences with me. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 Hi Don, Good luck with the CI surgery Tuesday. We will be thinking about you. Here's to great results! Best regards, Jim > > > > okay, here's the deal......I have Meniere's Disease in my right ear only. In 1993, I had a VNS....(vestibular nerve section) which essentially is when they open up the area behind your ear.....go into the inner ear to the brain (neurosurgeon involvement as well as two ear docs) and cut the balance nerve which runs from the inner ear into the brain....very involved surgery. It relieved all my severe vertigo (room spinning by the field of vision at about 40 mph sometimes for as long as 16 hours continuously....resultant nausea, throwing up) recovery for a few weeks, generally feeling lousy during my " respites " ....queasy, lack of appetite, rung out...then wham! another bout of severe vertigo. I was left, after the operation, with pretty much an off-balance feeling all the time, vision problems that never completely cleared up and staggering when I turn my head too fast while I am walking. Sounds worse than it is for me. Amazing what one can adapt to and what the body can eventually accept as normal. Most of the time, I do not notice it at all. Except the staggering on occasion, especially if I happen to stagger into walls, people, etc. lol > > Left with no usable hearing in the affected ear. Fitted with a hearing aid that uses a receiver in my deaf ear that transfers all sound to my good ear...in effect my good ear is doing double duty. It works okay in one-on-one situations even though its supposed to be state-of-the-art technology and screen out background noise. don't wear it much. to my question: I was told that cochlear implants would not work for me since Meniere's patients have hearing nerve damage.....is this the case for all of you? Do none of you with cochlear implants have hearing nerve damage? Thanks (to those of you who have read this far, lol) for any info you can provide and for sharing your experiences with me. Bonnie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 Hi Belinda, I also have bilateral Meniere's Disease and I also have bilateral CIs. I've never been able to use a hearing aid in my left ear due to the severe distortion, recruitment and hyperacusis. I was starting to get the same in my right ear when I got the second CI. The CIs have cured the distortion, hyperacusis, and recruitment and have improved my tinnitis. I've had excellent results with both CIs, far superior to any hearing aid I've ever had in the past 35 years. Best regards, Jim > > Hi Bonnie, > > > > I have bilateral Meniere's and qualified as a bilateral cochlear implant > patient late last year. I still get quite a lot of benefit from my hearing > aids so I have decided to wait until I receive little or no benefit at all > in order to pursue CI's. My doctor felt like Meniere's patients are good > candidates for CI's. > > > > Belinda DeLaby, CPDT > > Canine Action, Inc. > > (407)325-9317 > > www.canineaction.com > > www.tempestwires.com > > > > From: [mailto: ] On Behalf Of > bmf3329@... > Sent: Sunday, June 14, 2009 7:31 PM > > Subject: cochlear implants > > > > > > > > > okay, here's the deal......I have Meniere's Disease in my right ear only. In > 1993, I had a VNS....(vestibular nerve section) which essentially is when > they open up the area behind your ear.....go into the inner ear to the brain > (neurosurgeon involvement as well as two ear docs) and cut the balance nerve > which runs from the inner ear into the brain....very involved surgery. It > relieved all my severe vertigo (room spinning by the field of vision at > about 40 mph sometimes for as long as 16 hours continuously....resultant > nausea, throwing up) recovery for a few weeks, generally feeling lousy > during my " respites " ....queasy, lack of appetite, rung out...then wham! > another bout of severe vertigo. I was left, after the operation, with pretty > much an off-balance feeling all the time, vision problems that never > completely cleared up and staggering when I turn my head too fast while I am > walking. Sounds worse than it is for me. Amazing what one can adapt to and > what the body can eventually accept as normal. Most of the time, I do not > notice it at all. Except the staggering on occasion, especially if I happen > to stagger into walls, people, etc. lol > Left with no usable hearing in the affected ear. Fitted with a hearing aid > that uses a receiver in my deaf ear that transfers all sound to my good > ear...in effect my good ear is doing double duty. It works okay in > one-on-one situations even though its supposed to be state-of-the-art > technology and screen out background noise. don't wear it much. to my > question: I was told that cochlear implants would not work for me since > Meniere's patients have hearing nerve damage.....is this the case for all of > you? Do none of you with cochlear implants have hearing nerve damage? Thanks > (to those of you who have read this far, lol) for any info you can provide > and for sharing your experiences with me. Bonnie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 Yet another bi-lateral Meneire's person here. I sure hope CI's help folks like us, 'cause I'm all approved to get one. But I had to have really bad hearing in BOTH ears before they would qualify me to have a CI in ONE ear (makes no sense to me. Don't they allow eye surgery when you still have one good one left?). My Doc says I'm an " excellent " candidate for a CI and that the procedure may even help with the pressure and tinnitus. No promises though. But there doesn't seem to be a reason that having Meneire's would prevent you from being able to use a CI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 > > Yet another bi-lateral Meneire's person here. I sure hope CI's help folks like us, 'cause I'm all approved to get one. But I had to have really bad hearing in BOTH ears before they would qualify me to have a CI in ONE ear (makes no sense to me. Don't they allow eye surgery when you still have one good one left?). My Doc says I'm an " excellent " candidate for a CI and that the procedure may even help with the pressure and tinnitus. No promises though. But there doesn't seem to be a reason that having Meneire's would prevent you from being able to use a CI. > you all are so helpful with this. Why my doc would say I was not a candidate I cannot say, but this post might have given me the answer. I am NOT bilateral. I have very good hearing in my " good " ear. Thaks again for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Hi Bonnie, In order to qualify for a CI you currently have to have significant hearing loss in both ears. That is probably why your doc said you didn't qualify for a CI. Meniere's disease usually doesn't affect the health of your 8th (hearing) nerve. That is why a CI usually works well for Meniere's patients. Best regards, Jim > > > > Yet another bi-lateral Meneire's person here. I sure hope CI's help folks like us, 'cause I'm all approved to get one. But I had to have really bad hearing in BOTH ears before they would qualify me to have a CI in ONE ear (makes no sense to me. Don't they allow eye surgery when you still have one good one left?). My Doc says I'm an " excellent " candidate for a CI and that the procedure may even help with the pressure and tinnitus. No promises though. But there doesn't seem to be a reason that having Meneire's would prevent you from being able to use a CI. > > > you all are so helpful with this. Why my doc would say I was not a candidate I cannot say, but this post might have given me the answer. I am NOT bilateral. I have very good hearing in my " good " ear. Thaks again for your help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Hi Bonnie, If you don't qualify for a cochlear implant, you may well qualify for a BAHA which is a device that takes the sound from the deaf ear and transmits it via your skull to the hearing ear. Bone conduction. Used for people who have one sided hearing loss. Made by Cochlear corp. so check out their website www.cochlear.com and look up BAHA . Might be just what you need ____________________________________________________________ Click to learn how to become a world famous writer or poet. http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTIZkTTxBhNlFYkdV1i9qHsFxsFQ3Bj\ ePzz3nwTvpZkk61ZokRfLwc/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 I think she already has a FM cross-over hearing aid. Jim > > Hi Bonnie, > If you don't qualify for a cochlear implant, you may well qualify for a > BAHA which is a device that takes the sound from the deaf ear and > transmits it via your skull to the hearing ear. Bone conduction. Used > for people who have one sided hearing loss. Made by Cochlear corp. so > check out their website www.cochlear.com and look up BAHA . Might be > just what you need > > > ____________________________________________________________ > Click to learn how to become a world famous writer or poet. > http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTIZkTTxBhNlFYkdV1i9qHsFxsFQ3Bj\ ePzz3nwTvpZkk61ZokRfLwc/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Do you get insurance through your job or are you on Medicare? Different plans have different coverages and different payment levels - have you consulted with your insurance provider? Why do you refuse to get new coverage if it it would help you pay for the CI? Remember that it's not just the surgery but all all the mappings and follow-up visits that you will need to consider. Kat On Sat, Aug 15, 2009 at 4:12 PM, rashley833<rashley833@...> wrote: > > > my dr. wants me to have ci. the main thing that has held me back has been > the cost. they say that i am the perfect candidate. no one seems to be able > to tell me bottom dollar what i would be out. one tells me that i have to > pay so much down before i can make payments. one ins. i had refused to pay. > have new ins. will only pay 70 to 80%. so if any one can give me some info. > i would really appreciate. i just found this site, and i have been looking > for so long for other people like me > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 My implant was about $100,000, including the surgeon and the hospital costs and an overnight hospital stay. My guess is that the least expensive is probably around $50,000. Of that, my insurance paid 80% but I had a cap of $2,000 in terms of out of pocket per year maximum. So it will depend on what cap your insurance imposes. I also have a $30 co-pay for audiology visits, and have about 10 mapping visits between now and year end (or $300 in co-pays). From: [mailto: ] On Behalf Of rashley833 Sent: Saturday, August 15, 2009 3:13 PM Subject: cochlear implants my dr. wants me to have ci. the main thing that has held me back has been the cost. they say that i am the perfect candidate. no one seems to be able to tell me bottom dollar what i would be out. one tells me that i have to pay so much down before i can make payments. one ins. i had refused to pay. have new ins. will only pay 70 to 80%. so if any one can give me some info. i would really appreciate. i just found this site, and i have been looking for so long for other people like me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Like I said, it depends on her plan. Some insurance plans negotiate the costs down to the wire; others seem to be more flexible (which is becoming as rare as hens' teeth). And the funny thing is, we switched insurers between my two implants and the costs as listed on my EOBs were totally different. So you really can't tell. Kat On Sat, Aug 15, 2009 at 8:40 PM, Anne Todia<anne350831@...> wrote: > > > My implant was about $100,000, including the surgeon and the hospital costs > and an overnight hospital stay. My guess is that the least expensive is > probably around $50,000. > > Of that, my insurance paid 80% but I had a cap of $2,000 in terms of out of > pocket per year maximum. So it will depend on what cap your insurance > imposes. > > I also have a $30 co-pay for audiology visits, and have about 10 mapping > visits between now and year end (or $300 in co-pays). > > From: [mailto: ] On Behalf Of > rashley833 > Sent: Saturday, August 15, 2009 3:13 PM > > Subject: cochlear implants > > my dr. wants me to have ci. the main thing that has held me back has been > the cost. they say that i am the perfect candidate. no one seems to be able > to tell me bottom dollar what i would be out. one tells me that i have to > pay so much down before i can make payments. one ins. i had refused to pay. > have new ins. will only pay 70 to 80%. so if any one can give me some info. > i would really appreciate. i just found this site, and i have been looking > for so long for other people like me > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 My surgeon takes both United Health Care ppo and Medicare. I bave not beard from the anesthesiologist so I should be covered. Blue Cross need not be notified for ambulatory surgery. The audiogy hospital received three Blue Cross authorizations for mapping. I may retire if given an incentive. But that should be after mapping. The MRI lab only billed me for a $12 co payment. Gerald Sent from my iPhone On Aug 15, 2009, at 8:40 PM, " Anne Todia " <anne350831@...> wrote: My implant was about $100,000, including the surgeon and the hospital costs and an overnight hospital stay. My guess is that the least expensive is probably around $50,000. Of that, my insurance paid 80% but I had a cap of $2,000 in terms of out of pocket per year maximum. So it will depend on what cap your insurance imposes. I also have a $30 co-pay for audiology visits, and have about 10 mapping visits between now and year end (or $300 in co-pays). From: [mailto: ] On Behalf Of rashley833 Sent: Saturday, August 15, 2009 3:13 PM Subject: cochlear implants my dr. wants me to have ci. the main thing that has held me back has been the cost. they say that i am the perfect candidate. no one seems to be able to tell me bottom dollar what i would be out. one tells me that i have to pay so much down before i can make payments. one ins. i had refused to pay. have new ins. will only pay 70 to 80%. so if any one can give me some info. i would really appreciate. i just found this site, and i have been looking for so long for other people like me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Yes that's an important point - make sure you get *all* preauthorizations and decisions in writing so you'll have proof if any questions come up. Keep a record of all conversations (easy to do with relay) and make sure you have the names of everyone you talk to. Kat On Sat, Aug 15, 2009 at 9:15 PM, Gerald Gollinger<gerald4nyc@...> wrote: > > > My surgeon takes both United Health Care ppo and Medicare. I bave not beard > from the anesthesiologist so I should be covered. Blue Cross need not be > notified for ambulatory surgery. The audiogy hospital received three Blue > Cross authorizations for mapping. I may retire if given an incentive. But > that should be after mapping. The MRI lab only billed me for a $12 co > payment. > Gerald > > Sent from my iPhone > > On Aug 15, 2009, at 8:40 PM, " Anne Todia " <anne350831@...> wrote: > > My implant was about $100,000, including the surgeon and the hospital costs > and an overnight hospital stay. My guess is that the least expensive is > probably around $50,000. > > Of that, my insurance paid 80% but I had a cap of $2,000 in terms of out of > pocket per year maximum. So it will depend on what cap your insurance > imposes. > > I also have a $30 co-pay for audiology visits, and have about 10 mapping > visits between now and year end (or $300 in co-pays). > > From: [mailto: ] On Behalf Of > rashley833 > Sent: Saturday, August 15, 2009 3:13 PM > > Subject: cochlear implants > > my dr. wants me to have ci. the main thing that has held me back has been > the cost. they say that i am the perfect candidate. no one seems to be able > to tell me bottom dollar what i would be out. one tells me that i have to > pay so much down before i can make payments. one ins. i had refused to pay. > have new ins. will only pay 70 to 80%. so if any one can give me some info. > i would really appreciate. i just found this site, and i have been looking > for so long for other people like me > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 My doctor told me approximately $30k, but I'm not quite ready for it just yet so we haven't gone into details. Your doctor's office should call your insurance company to pre-cert and determine what your out of pocket expense will be. If they can't do that, I would look for another doctor. Rhonda ________________________________ From: rashley833 <rashley833@...> Sent: Saturday, August 15, 2009 4:12:47 PM Subject: cochlear implants my dr. wants me to have ci. the main thing that has held me back has been the cost. they say that i am the perfect candidate. no one seems to be able to tell me bottom dollar what i would be out. one tells me that i have to pay so much down before i can make payments. one ins. i had refused to pay. have new ins. will only pay 70 to 80%. so if any one can give me some info. i would really appreciate. i just found this site, and i have been looking for so long for other people like me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 We are preparing for A/C chelation for our son by getting all the necessary supplements on board. While we are going to just start with DMSA, I have a question about ALA. Can you use ALA if you have Cochlear Implants? I am just concerned if his implants would interfere at all with the process ridding out the metals. Part of the implant is made of titanium I believe. I am going to call the makers of the implants today, but I'm not sure they will know any answers concerning chelation. I would really appreciate any insight on this---Thanks! Cortney Quote Link to comment Share on other sites More sharing options...
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