Washington Post on Klempner study

[Guest guest]

Dear Oakie,

Your article about the study reflects what the media is saying. However,

they are missing the bigger problem. That problem is patients with Lyme who

were misdiagnosed/not diagnosed for a decade due to the inaccurate tests

that were available 10 year ago.

Of course in the beginning of the treatment you get sicker, there is a lot

of dieoff and it is a known scientific fact called the Herxheimer reaction.

I do not believe the studies are relevant to patients such as me that have

had Lyme over 10 years and were not specifically treated for it because of

the inaccuracy of the testing methods back then.

I am glad that they have found treatment that may help those who get bit

today or just recently, but that does not necessarily mean that the long

term antibiotics, and I am talking 6 mos. to 3 years and beyond for patients

with Chronic Late Stage Lyme Disease. Please show me where those studies

are and I would love to see the results.

The fact is that long term antibiotics, as per my definition above, do work

on patients with Chronic Late Stage Lyme Disease and I have read nothing

that proves otherwise. And when these spirochetes have run rampant for over

10 years in ones body, of course you have to get sicker before you get

better, the dieoff alone proves that as in other illnesses.

I have several tests done recently, Western Blot, LUAT, plus others that

show that I am not only positive for Lyme but also the co-infection Babesia.

And as they say, hind sight is 20/20, and the symptoms that I have had for

the past 10+ years, causing me to go on disability 6 years ago from a job

that I loved and made good money at go right along with the diagnosis.

Where are the studies that show that long term antibiotics won't help me?

And where are the researchers even talking to and reviewing the long term

treatment that has helped many regain some of their life back. Currently I

sleep up to 20 hours a day, two hours up and I am back in bed or I spend the

next few days totally in bed.

I have not started any Lyme treatment yet, and I was very hopeful of

regaining some functioning over the years to come but these current half

done studies will hurt my chances of the treatment that will help me and I

am not sure where to turn from here. Please help those of us who are in

Chronic Late Stage Lyme Disease get the studies and treatment that will help

us some day regain some of our lives back. I thank you in advance.

Sincerely,

Michele E. Townsend

Lancaster PA

(717) 396-0644

Hugs from a Light-HouseKeeper finally in Pennsylvania

(Anyone can clean the house, only you can catch up on your rest,)

Michele E. Townsend, FMS/90,ME/CFS/94,LD/??(Dx01),SSDI/95

mailto:michtown@... and homepages:

http://msnhomepages.talkcity.com/SupportSt/michtown/default.htm

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