Fibromyalgia

[Guest guest]

Cases of secondary fibromyalgia (i.e. occurring with another rheumatic

problem) seem to improve

along with the primary problem where the antibiotics are used. We don't

have any data on primary

fibromyalgia. However, Ethel wrote an article about one patient's

successful reversal of fibromyalgia

and you'll find it at rheumatic.org/fibro.htm.

I've also heard that fibromyalgia patients have a reduced blood supply to

the brain, so any upside-

down or partially upside down positions might help. It doesn't have to be a

complete yoga

headstand - perhaps lying on the floor and putting the feet high upon a

wall for a few minutes at a

time might help.

Chris.

A woman in my spinning group has fibromyalgia and asked me if AP works

for it. It is listed on the front of Arthritis Breakthrough but I don't

remember reading much about it. Nothing has worked for her she'll try

anything.

Thank you

------------------------------------------------------------------------

[Guest guest]

Hi ,

Ihave fibromyalgia too and so far AP has not worked on that.

Cooky

arjay wrote:

>

> From: arjay <arjay@...>

>

> A woman in my spinning group has fibromyalgia and asked me if AP works

> for it. It is listed on the front of Arthritis Breakthrough but I don't

> remember reading much about it. Nothing has worked for her she'll try

> anything.

> Thank you

>

> ------------------------------------------------------------------------

> To unsubscribe from this mailing list, or to change your subscription

> to digest, go to the ONElist web site, at and

> select the User Center link from the menu bar on the left.

[Guest guest]

Oh no! So, this IS MORE than " just a big headache " ?

?????????????????????????????????????????

Susie

a wrote:

> Due to its symptomology, Fibromyalgia is often misdiagnosed as a

> repetitive strain injury, sleep disorder or reuhmotoid arthritis. This

> article gives you an introduction to Fibromyalgia

>

>

>

ttp://rsi.about.com/health/rsi/library/weekly/aa040700a.htm?iam=dpile & terms=migr\

aines+rheumatoid+arthritis

>

>

>

>

[Guest guest]

<fibromyalgia-stricken people doing out there to treat yourselves

As Andy would say: Chelate the Mercury out of your body and heal yourself and amaze the doctors.

I haven't tried this yet.

I need to do the following first:

1.Buy Andy's book (Mine is on it's way to my house now! YEA!

2.Have hair sample done and send to Doctors Data.

3. Remove all amalgam fillings from my mouth using a Mercury free dentist who know's how to do this.

4. Find a doctor willing to admit that he is NOT GOD and can learn from this. He must be willing to follow through with the protocal and ask for help from those doctors familiar with this ie: Dr. Amy Holmes or Dr. Cave.

4. Fight with insurance to cover the necessary costs.

As they say: It ain't gonna be easy BUT I have no choice.

I am full of Mercury.

It only gets worse.

I have Fibromyalgia which started as frequent migrane headaches.

Myofascial Pain which was misdiagnosed as TMJ for many years

Chronic Fatigue, you'd be tird too if you hurt all the time and couldn't sleep. & NOW Degenerative spinal disc disorder. The discs in my spine are deteriorating. They are almost gone. 2 are herniated and was is bulging and putting major pressure on the spinal nerves. Every day is an adventure in pain.

I have nothing to lose by trying this.

Traditional medicine hasn't worked and my doctor just told me that there is nothing more that I can do except the surgery and while I contemplated it, I have small children at home and don't feel that this is an option YET...I'll try this first!

Donna :-)

[Guest guest]

I didn't have fibromyalgia, but I had chronic neck and back pain with

recurrent severe muscle spasms and migrains. I had elevated

antibodies to muscle too(not real high). I tested for real high

mercury and arsnic. I removed all my amalgums and root canals and

replaced them with composit and biocalix(for root canals). (Looks so

white in there now!) Than I began chelation with Chemet (on fri,

sat & sun off MTW & Th) and DMPS shots( one every 1-2 weeks). I use lots

of minerals too. After a couple of months the pain is gone and the

migranes are less frequent, shorter and easier to treat. I have not

taken a tylenol#3 in 6 weeks. WOW. Can't wait till he chelation is

complete(I am in my 3rd month and it may take a year or more).

Beverly

-- In egroups, " lisa edmond " <sjcsydney@h...>

wrote:

> while we're waiting to hear from those that attended the DAN!, what

are all of you fibromyalgia-stricken people doing out there to treat

yourselves? I've read it's chronic and doesn't go away but I just

can't accept that. mine just came upon me about 3 months ago out of

the blue (standing in line at a movie theater) and hasn't left my

side (literally) since. Drinking hot distilled water all day seems

to help which has me thinking an all-out detoxification would

probably do the trick. What do you all think?

> thanks for your input!

>

[Guest guest]

I would like the paper on fibromyalgia if you can, I also have been diagnosed

with it and am going to do detox first and I am on amitryptilline right now,

but would like to get off of it because of weight gain.

crystal

[Guest guest]

I would like to post a paper on Fm, if any one is interested please contact

me

hyperbaric1@...

Re: [ ] Fibromyalgia

>

>I would like the paper on fibromyalgia if you can, I also have been

diagnosed

>with it and am going to do detox first and I am on amitryptilline right

now,

>but would like to get off of it because of weight gain.

>

>crystal

>

>

[Guest guest]

Thank you, Missy,

Yes, I would like to e you privately (unless there are more of us out there that would be interested?!) and hear what you have to say. Could you send me your e address? I just spoke with another mother today who had fibro when her son was born and was able to cure it as of 4 years ago. I hadn't time to find out what her treatment was but I would sure be interested to hear what you have to say.

I have amalgams, too but I thought that detoxing whatever else I can would probably ease the pain and discomfort until I can have them taken out. It's only just recently begun to interfere with my sleep (not nice to wake up in pain!). I can't afford to lose any more sleep so I'm pretty eager to begin detox. A year or so ago I did a dietary intervention to treat candida and it did wonders for me health wise, sensory wise, and pain wise (I'd had horrible pains in my ear that came and went at that point) so I'm thinking it just might do the trick with this, too. It's a horrible way to eat really and I eventually became depressed and feeling deprived - no gluten, no dairy, no yeast, no sugar, etc. My best friend went into moarning because we couldn't go out for our usual "treats" (pizza, bagels, danish, you-name-it. I haven't seen a eatery yet that serves rice cakes. ugh). BUT, I fell off the wagon in time and so here I am in pain again.

The very worst part about this condition is the impact it has on my ability to be playful and gay with my daughter. I hate it.

fibromyalgiawhile we're waiting to hear from those that attended the DAN!, what are all of you fibromyalgia-stricken people doing out there to treat yourselves? I've read it's chronic and doesn't go away but I just can't accept that. mine just came upon me about 3 months ago out of the blue (standing in line at a movie theater) and hasn't left my side (literally) since. Drinking hot distilled water all day seems to help which has me thinking an all-out detoxification would probably do the trick. What do you all think? thanks for your input!

[Guest guest]

Is there a test for fibromyalgia? How do you know it isn't arthritis?

Elise

[Guest guest]

I looked it up in my Tabers medical dictionary and they outline the

specifications. I also have inherited arthritis and this is a very

different beast. Arthritic pain comes and goes. This changes forms but is

always present - sometimes a sharp pain, sometimes a deep burning sensation

inthe muscles, sometimes tingling numbness, sometimes aching - but always

always there - except for a verybrief period after I eat something sweet. I

am convinced it has to do with Candida albicans.

[ ] Re:Fibromyalgia

>

> Is there a test for fibromyalgia? How do you know it isn't arthritis?

>

> Elise

>

>

[Guest guest]

Fibromyalgia was caused by mercury poisoning for me. Mine is gone

now, so is my arthritis. > Is there a test for fibromyalgia?

How do you know it isn't arthritis?

>

> Elise

[Guest guest]

,

As soon as I get my amalgams out, I'm going to start chelating.

I've had FMS for over 20 years!

The best thing (really!) that I've found is using a combination of

sleep aids (you need to get DEEP sleep, and most of us with FMS

don't), some pain relief meds (I've gotten to the point of needing

narcotics at time) and EXERCISE. (I get up to go swim every morning

at 5AM.)

I only use narcotics if I am unable to break the pain cycle using

other methods. When used wisely, I believe there is a place for them.

Also, I have myself on a GFCF diet, which really makes a BIG

difference.

Feel free to email me privately if you want more info.

(Cary, NC)

persistentC@...

[ ] fibromyalgia

My Groups | Main Page | Start a new group!

while we're waiting to hear from those that attended the DAN!, what

are all of you fibromyalgia-stricken people doing out there to treat

yourselves? I've read it's chronic and doesn't go away but I just

can't accept that. mine just came upon me about 3 months ago out of

the blue (standing in line at a movie theater) and hasn't left my side

(literally) since. Drinking hot distilled water all day seems to help

which has me thinking an all-out detoxification would probably do the

trick. What do you all think?

thanks for your input!

[Guest guest]

Donna wrote:

<snip>

& NOW Degenerative spinal disc disorder. The discs in my spine are

deteriorating. They are almost gone. 2 are herniated and was is

bulging and putting major pressure on the spinal nerves. Every day is

an adventure in pain

<snip>

I had 3 heriated discs in my neck, bone spurs, and a compressed spinal

cord. I, too, was in horrible pain. Last May I finally told the

neurosurgeon to go ahead with the surgery. I feel SO much better

(although, honestly, not completely recovered.) I still have problems

sitting for long periods, and I have to be very careful about what I

do.

(Cary, NC)

persistentC@...

[Guest guest]

If you are feeling better w/o dairy, why not forget about the yoghurt

& take a probiotic supplement? Why risk the pain returning? What's

good in yoghurt (like vits, mins & probiotics) are all available

elsewhere, including in soy yoghurt.

.....I think it's probably the best way (plain and/or possibly goat

milk plain yogurt) to supplement active and healthy probiotics. As

you all agree that it will aggravate the FMS, do you think we might

actually be able to tolerate the yogurt if we took a digestive enzyme

when we ate it?....I've been completely wheat and dairy-free the last

couple of days and the horrible, sharp pain in my left hip that

shoots down my leg and up into my lower back is beginning to go away -

....

[Guest guest]

> Dear , etc

> I asked whether you thought yogurt might cause your fibromyalgia

to flare up because I think it's probably the best way (plain and/or

possibly goat milk plain yogurt) to supplement active and healthy

probiotics. As you all agree that it will aggravate the FMS, do you

think we might actually be able to tolerate the yogurt if we took a

digestive enzyme when we ate it?

Not if the problem is the sulfur content. That isn't digestible to

something innocuous.

> Has anyone tried this?

> Thanks for your input! This is all relatively new to me.

I've been completely wheat and dairy-free the last couple of days and

the horrible, sharp pain in my left hip that shoots down my leg and up

into my lower back is beginning to go away - THANK goodness!! It

takes away SO much of the energy I want to give to my daughter.

>

[Guest guest]

Andy,

Would sulfur intolerance bring on fibromyalgia symptoms?

[ ] Re: fibromyalgia

>

> > Dear , etc

> > I asked whether you thought yogurt might cause your fibromyalgia

> to flare up because I think it's probably the best way (plain and/or

> possibly goat milk plain yogurt) to supplement active and healthy

> probiotics. As you all agree that it will aggravate the FMS, do you

> think we might actually be able to tolerate the yogurt if we took a

> digestive enzyme when we ate it?

>

> Not if the problem is the sulfur content. That isn't digestible to

> something innocuous.

>

> > Has anyone tried this?

> > Thanks for your input! This is all relatively new to me.

> I've been completely wheat and dairy-free the last couple of days and

> the horrible, sharp pain in my left hip that shoots down my leg and up

> into my lower back is beginning to go away - THANK goodness!! It

> takes away SO much of the energy I want to give to my daughter.

> >

>

>

>

> =======================================================

>

[Guest guest]

> Andy,

> Would sulfur intolerance bring on fibromyalgia symptoms?

>

It does do so in certain people.

Andy

..

..

..

..

..

..

[Guest guest]

Welcome Bonnie. I also have FM, and I'm still working on

different medications to help the pain. The only think

I've found for sure that has helped me immensely is

trazadone. It's an AD that I take at night and it makes me

sleep like a baby. Before this, I had a 15 year sleep

disorder that disabled me more than my arthritis. I'm

supposed to start Prozac in the AM, but I haven't started it

yet. I also have PA (Psoriatic Arthritis), for which I

take Enbrel, Vioxx and MTX. What works best for me is my

hot tub, no stress and plenty of rest. I'm looking forward

to getting to know you.

a

-----Original Message-----

From: 007grandma@...

[mailto:007grandma@...]

Sent: Friday, May 11, 2001 10:59 AM

Subject: [ ] Fibromyalgia

Hi:

My friend Rainysu invited me to join your group because

we have

just recently decided I have fibromyalgia and have had it

for some

time but it was aggrevated to an unbearable level last

summer when I

had a fall from a swing. Let me know some of your

experiences with

this problem, to top that off I have arthritis and really

hurt when

it rains. Any medications that might help too...

God Bless, Bonnie

[Guest guest]

Hey Bonnie!

I am glad to see you made it here! I am sure you'll like it here as much as

I do. This is the BEST group of people on the net! Gotta go. Want to finish

dinner. =)

Love, Rainy Sue

----- Original Message -----

Sent: Friday, May 11, 2001 7:59 AM

> Hi:

> My friend Rainysu invited me to join your group because we have

> just recently decided I have fibromyalgia and have had it for some

> time but it was aggrevated to an unbearable level last summer when I

> had a fall from a swing. Let me know some of your experiences with

> this problem, to top that off I have arthritis and really hurt when

> it rains. Any medications that might help too...

> God Bless, Bonnie

[Guest guest]

Penny,

Unfortunately, because of the oonsluaght of patients, he now only sees new

patients who are children (and is overwhelmed with them). His Office #

(818)343-1010. Give a call and see if they can recommend someone. if not,

get back to me and i'll do some research for you.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Tina

Who would you recommend in MI? Some of my diagnoses include CFS, FMS,

ADD..... been sick for over ten years.

thanks

mjh

In a message dated 5/15/02 2:11:58 PM Eastern Daylight Time,

Cure2000@... writes:

> Penny,

> Unfortunately, because of the oonsluaght of patients, he now only sees new

> patients who are children (and is overwhelmed with them). His Office #

> (818)343-1010. Give a call and see if they can recommend someone. if not,

> get back to me and i'll do some research for you.

>

> Tina M. Hendrix

> Cure2000@...

> Vice-President, California Coalition

> Neuro-Immune Dysfunction Syndromes

> Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

> etc.

>

[Guest guest]

Tina, Thank you for getting back to me. That is what I thought.

Truefully, Dr Goldberg is using his time where it is most needed and where

he can do the most good. But I will call his office and see if they can

refer me to some one else. Will get back to you with the results.

Sincerely, Penny

Re: fibromyalgia

> Tina

> Who would you recommend in MI? Some of my diagnoses include CFS, FMS,

> ADD..... been sick for over ten years.

> thanks

> mjh

>

>

>

> In a message dated 5/15/02 2:11:58 PM Eastern Daylight Time,

> Cure2000@... writes:

>

>

> > Penny,

> > Unfortunately, because of the oonsluaght of patients, he now only sees

new

> > patients who are children (and is overwhelmed with them). His Office #

> > (818)343-1010. Give a call and see if they can recommend someone. if

not,

> > get back to me and i'll do some research for you.

> >

> > Tina M. Hendrix

> > Cure2000@...

> > Vice-President, California Coalition

> > Neuro-Immune Dysfunction Syndromes

> > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity,

CFS,

> > etc.

> >

>

>

>

>

>

[Guest guest]

Tina,

Does Dr. Galpin treat fibromyalgia or only CFS?

Re: fibromyalgia

> Penny,

> Unfortunately, because of the oonsluaght of patients, he now only sees new

> patients who are children (and is overwhelmed with them). His Office #

> (818)343-1010. Give a call and see if they can recommend someone. if

not,

> get back to me and i'll do some research for you.

>

> Tina M. Hendrix

> Cure2000@...

> Vice-President, California Coalition

> Neuro-Immune Dysfunction Syndromes

> Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity,

CFS,

> etc.

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

Not sure, but do know he treats CFS. Does anyone have his ph number?

> Tina,

> Does Dr. Galpin treat fibromyalgia or only CFS?

>

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

Who can help with this info?

> Tina

> Who would you recommend in MI? Some of my diagnoses include CFS, FMS,

> ADD..... been sick for over ten years.

> thanks

> mjh

>

>

>

>

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.