Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 LOL... that was one of the first things I told him was he was gonna have to change his diet, his eating habits. He is under a great deal of stress too so he is dealing with alot.. SuziSV <shavig@...> wrote: I have read and talked with women who have virtually eliminated all symptoms by ridding their diets of all processed foods and all animal products. That means no milk, cheese, yogurt, fish, chicken, etc.... AND they stopped cooking their food. YIKES! That means they are eating the dreaded raw food diet! And they are feeling great and functioning very well. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 I hadn't either.. but men tend to ignore things more than women. sorry guys! Suzi"Sharyn E. Cerniglia" <sharyncern@...> wrote: My 27yo son thinks he has this also. We’ve thought for years that his problems were due to an Army injury, but he had the anxiety and depression before the injury…so now he’s thinking that the injury exacerbated the fibro. I too would like to know how people are treating this. And I’d like to forward posts on to him if that’s okay. I have many female friends (mostly writers) who have this, but had never heard of a male with fibromyalgia. Sharyn From: health [mailto:health ] On Behalf Of Suzanne one of the guys in the group said he thought he has fibromyalgia... at least all the symtoms fit.. of course he does have stress in his life also. So I told him I would check my group to see who has this and how they are treating it. I gave him some suggestions meantime but thought it would be good to hear from those who are actually dealing with it. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 The only thing that helps me when I have a flare up is taking malic acid supplements and watching my diet. Stretching and a non-impact exercise routine is good too. Go with whole, natural foods for the diet – nothing processed or with additives. Fibro patients have sleep disturbances and sometimes GI problems too. These need to be addressed. If he wants to know more, I can probably catch up sometime this week, just keep asking! Janet (running with my hair on fire once again to class…) From: health [mailto:health ] On Behalf Of Sharyn E. Cerniglia Sent: Sunday, October 21, 2007 4:38 PM health Subject: RE: Fibromyalgia My 27yo son thinks he has this also. We’ve thought for years that his problems were due to an Army injury, but he had the anxiety and depression before the injury…so now he’s thinking that the injury exacerbated the fibro. I too would like to know how people are treating this. And I’d like to forward posts on to him if that’s okay. I have many female friends (mostly writers) who have this, but had never heard of a male with fibromyalgia. Sharyn From: health [mailto:health ] On Behalf Of Suzanne one of the guys in the group said he thought he has fibromyalgia... at least all the symtoms fit.. of course he does have stress in his life also. So I told him I would check my group to see who has this and how they are treating it. I gave him some suggestions meantime but thought it would be good to hear from those who are actually dealing with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Thanks, Janet! From: health [mailto:health ] On Behalf Of Janet The only thing that helps me when I have a flare up is taking malic acid supplements and watching my diet. Stretching and a non-impact exercise routine is good too. Go with whole, natural foods for the diet – nothing processed or with additives. Fibro patients have sleep disturbances and sometimes GI problems too. These need to be addressed. If he wants to know more, I can probably catch up sometime this week, just keep asking! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Well, I should have known that. <blush> But my DH, who really is my best friend and supports me in most things, had trouble believing I wasn't just creating Alps from anthills...it's truly a difficult place to find yourself. Ev PS - hey! don't let me forget to send the sage tomorrow! He knows I believe him, Evie. I may be the only supporter he has, but I’m there for him! Sharyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Send sage, please! Thanks! Sharyn From: health [mailto:health ] On Behalf Of PS - hey! don't let me forget to send the sage tomorrow! No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.12/1096 - Release Date: 10/27/2007 11:02 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.12/1098 - Release Date: 10/29/2007 9:28 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 I > <<<<He prescribed 25 milligrams and said that she wouldn't notice any > changes at all in her case for about two months. He predicted that after that > time, it would suddenly occur to her that her pain was gone. She says that this > is exactly what happened. This was four years ago and the pain has not > returned. She uses the generic amitriptyline. She has told several others about this > treatment and their experiences have been the same as hers. >>>>> > , you left out Dr. Gott's response ! Dr Gott's response: A: Fibromyalgia, a poorly understood pain disorder, is difficult to manage. Patients with the ailment have noted significant reductions in their quality of life. I welcome the opportunity to echo your sentiments about Elavil. If, in fact, the medicine reduces the muscle pain, you should be considered for a Nobel prize. I ask that readers who try this remedy let me know whether it works, and I'll print a follow-up. Because fibromyalgia is a diagnosis of exclusion and a form of arthritis, I am sending you a copy of my Health Report " Understanding Osteoarthritis. " Other readers who would like a copy should send a long, self-addressed, stamped envelope and $2 to Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure to mention the title. ************************************** See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 If Dr. Gott actually said these things, I'd save my $2. He says: " Because fibromyalgia is a diagnosis of exclusion and a form of arthritis ... " - which is false. Fibromyalgia is not a diagnosis of exclusion and it is not a form of arthritis. Another thing to be aware of is that amitriptyline has been used since the 80s to treat fibromyalgia. Not an MD > > From: NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54 -0500> Subject: Re: [ ] Fibromyalgia> > > I> > > <<<<He prescribed 25 milligrams and said that she wouldn't notice any > > changes at all in her case for about two months. He predicted that after that > > time, it would suddenly occur to her that her pain was gone. She says that this > > is exactly what happened. This was four years ago and the pain has not > > returned. She uses the generic amitriptyline. She has told several others about this > > treatment and their experiences have been the same as hers. >>>>>> > > , you left out Dr. Gott's response !> Dr Gott's response:> > A: Fibromyalgia, a poorly understood pain disorder, is difficult to manage. > Patients with the ailment have noted significant reductions in their quality > of life. I welcome the opportunity to echo your sentiments about Elavil. If, in > fact, the medicine reduces the muscle pain, you should be considered for a > Nobel prize. I ask that readers who try this remedy let me know whether it > works, and I'll print a follow-up.> Because fibromyalgia is a diagnosis of exclusion and a form of arthritis, I > am sending you a copy of my Health Report " Understanding Osteoarthritis. " Other > readers who would like a copy should send a long, self-addressed, stamped > envelope and $2 to Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure to > mention the title. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 I'd save mine too. From all of the specialists I have seen in trying to just get my FMS diagnosis, my rheumatologist said that only one patient her entire career had been discharged from care due to being able to manage her FMS pain and that there was a good chance that perhaps that patient had just been misdiagnosed. I think if there were a miracle cure by now to not feel any more pain from the FMS we would all be lining up for a miracle cure --- <Matsumura_Clan@...> wrote: > If Dr. Gott actually said these things, I'd save my > $2. > > He says: " Because fibromyalgia is a diagnosis of > exclusion and a form of arthritis ... " - which is > false. Fibromyalgia is not a diagnosis of exclusion > and it is not a form of arthritis. > > Another thing to be aware of is that amitriptyline > has been used since the 80s to treat fibromyalgia. > Not an MD > > > > > > From: > NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54 > -0500> Subject: Re: [ ] Fibromyalgia> > > > I> > > <<<<He prescribed 25 milligrams and said that > she wouldn't notice any > > changes at all in her > case for about two months. He predicted that after > that > > time, it would suddenly occur to her that > her pain was gone. She says that this > > is exactly > what happened. This was four years ago and the pain > has not > > returned. She uses the generic > amitriptyline. She has told several others about > this > > treatment and their experiences have been > the same as hers. >>>>>> > > , you left out Dr. > Gott's response !> Dr Gott's response:> > A: > Fibromyalgia, a poorly understood pain disorder, is > difficult to manage. > Patients with the ailment > have noted significant reductions in their quality > > of life. I welcome the opportunity to echo your > sentiments about Elavil. If, in > fact, the medicine > reduces the muscle pain, you should be considered > for a > Nobel prize. I ask that readers who try this > remedy let me know whether it > works, and I'll > print a follow-up.> Because fibromyalgia is a > diagnosis of exclusion and a form of arthritis, I > > am sending you a copy of my Health Report > " Understanding Osteoarthritis. " Other > readers who > would like a copy should send a long, > self-addressed, stamped > envelope and $2 to > Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure > to > mention the title. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 ----- Original Message ----- From: " McNally " <McNacks@...> >then she found a doctor who said that he had been an intern for two fibro >specialists and that the antidepressant Elavil >would be extremely helpful. Most doctors will prescribe this for their fibro patients. Like any other drug for fibro people, it works well for some, partially helps others, some can't tolerate the side effects and others find it doesn't help them at all. I'm glad it worked for this woman. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 hi all! there is the new fda approved lyrica for fibro.my rheumy told me its similar to the neurontin...which i cant live without, and very few women r reporting bad side effects.....it works like the neurontin as it is for the neuropathic pain that accompanies the fibro, and most insurances r paying for it.ask....what have u got to lose? take care...laurie stephanie <stephieann2@...> wrote: I'd save mine too. From all of the specialists I have seen in trying to just get my FMS diagnosis, my rheumatologist said that only one patient her entire career had been discharged from care due to being able to manage her FMS pain and that there was a good chance that perhaps that patient had just been misdiagnosed. I think if there were a miracle cure by now to not feel any more pain from the FMS we would all be lining up for a miracle cure --- <Matsumura_Clan@...> wrote: > If Dr. Gott actually said these things, I'd save my > $2. > > He says: " Because fibromyalgia is a diagnosis of > exclusion and a form of arthritis ... " - which is > false. Fibromyalgia is not a diagnosis of exclusion > and it is not a form of arthritis. > > Another thing to be aware of is that amitriptyline > has been used since the 80s to treat fibromyalgia. > Not an MD > > > > > > From: > NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54 > -0500> Subject: Re: [ ] Fibromyalgia> > > > I> > > <<<<He prescribed 25 milligrams and said that > she wouldn't notice any > > changes at all in her > case for about two months. He predicted that after > that > > time, it would suddenly occur to her that > her pain was gone. She says that this > > is exactly > what happened. This was four years ago and the pain > has not > > returned. She uses the generic > amitriptyline. She has told several others about > this > > treatment and their experiences have been > the same as hers. >>>>>> > > , you left out Dr. > Gott's response !> Dr Gott's response:> > A: > Fibromyalgia, a poorly understood pain disorder, is > difficult to manage. > Patients with the ailment > have noted significant reductions in their quality > > of life. I welcome the opportunity to echo your > sentiments about Elavil. If, in > fact, the medicine > reduces the muscle pain, you should be considered > for a > Nobel prize. I ask that readers who try this > remedy let me know whether it > works, and I'll > print a follow-up.> Because fibromyalgia is a > diagnosis of exclusion and a form of arthritis, I > > am sending you a copy of my Health Report > " Understanding Osteoarthritis. " Other > readers who > would like a copy should send a long, > self-addressed, stamped > envelope and $2 to > Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure > to > mention the title. > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ u know i love ya...right? laurie --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Hi, I have been on Lyrica now for five months. Started out at 50 MG twice a day Now I am at 200 MG just at night. I have found that for me nothing worked for nerves or Fibro until this magic pill. Please give it long enough to get in the system. It has saved my life. laurie buran <kidslpn@...> wrote: hi all! there is the new fda approved lyrica for fibro.my rheumy told me its similar to the neurontin...which i cant live without, and very few women r reporting bad side effects.....it works like the neurontin as it is for the neuropathic pain that accompanies the fibro, and most insurances r paying for it.ask....what have u got to lose? take care...laurie stephanie <stephieann2@...> wrote: I'd save mine too. From all of the specialists I have seen in trying to just get my FMS diagnosis, my rheumatologist said that only one patient her entire career had been discharged from care due to being able to manage her FMS pain and that there was a good chance that perhaps that patient had just been misdiagnosed. I think if there were a miracle cure by now to not feel any more pain from the FMS we would all be lining up for a miracle cure --- <Matsumura_Clan@...> wrote: > If Dr. Gott actually said these things, I'd save my > $2. > > He says: " Because fibromyalgia is a diagnosis of > exclusion and a form of arthritis ... " - which is > false. Fibromyalgia is not a diagnosis of exclusion > and it is not a form of arthritis. > > Another thing to be aware of is that amitriptyline > has been used since the 80s to treat fibromyalgia. > Not an MD > > > > > > From: > NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54 > -0500> Subject: Re: [ ] Fibromyalgia> > > > I> > > <<<<He prescribed 25 milligrams and said that > she wouldn't notice any > > changes at all in her > case for about two months. He predicted that after > that > > time, it would suddenly occur to her that > her pain was gone. She says that this > > is exactly > what happened. This was four years ago and the pain > has not > > returned. She uses the generic > amitriptyline. She has told several others about > this > > treatment and their experiences have been > the same as hers. >>>>>> > > , you left out Dr. > Gott's response !> Dr Gott's response:> > A: > Fibromyalgia, a poorly understood pain disorder, is > difficult to manage. > Patients with the ailment > have noted significant reductions in their quality > > of life. I welcome the opportunity to echo your > sentiments about Elavil. If, in > fact, the medicine > reduces the muscle pain, you should be considered > for a > Nobel prize. I ask that readers who try this > remedy let me know whether it > works, and I'll > print a follow-up.> Because fibromyalgia is a > diagnosis of exclusion and a form of arthritis, I > > am sending you a copy of my Health Report > " Understanding Osteoarthritis. " Other > readers who > would like a copy should send a long, > self-addressed, stamped > envelope and $2 to > Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure > to > mention the title. > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ u know i love ya...right? laurie --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Those that can take it are so lucky! I don't gain weight and my first two weeks on it I gained 9lbs which was detrimental to my RA and joint knee effusions so I had to go off of it. It's working really well for some but there are still many its not working for yet. A few women that go to my Wellness Doctor (pain management) had the same issue and had neck and facial swelling and had to go off it as well. I have hope though because they expect 3 to 4 more new drugs for FMS alone to be on the market in the next couple of years:) I'm really glad its working for you:) Gentle Hugs --- dawn parry <dwnparry@...> wrote: > Hi, I have been on Lyrica now for five months. > Started out at 50 MG twice a day Now I am at 200 MG > just at night. I have found that for me nothing > worked for nerves or Fibro until this magic pill. > Please give it long enough to get in the system. It > has saved my life. > > laurie buran <kidslpn@...> wrote: hi > all! there is the new fda approved lyrica for > fibro.my rheumy told me its similar to the > neurontin...which i cant live without, and very few > women r reporting bad side effects.....it works like > the neurontin as it is for the neuropathic pain that > accompanies the fibro, and most insurances r paying > for it.ask....what have u got to lose? take > care...laurie > > stephanie <stephieann2@...> wrote: I'd save > mine too. From all of the specialists I have > seen in trying to just get my FMS diagnosis, my > rheumatologist said that only one patient her entire > career had been discharged from care due to being > able > to manage her FMS pain and that there was a good > chance that perhaps that patient had just been > misdiagnosed. I think if there were a miracle cure > by now to not feel any more pain from the FMS we > would > all be lining up for a miracle cure > --- <Matsumura_Clan@...> wrote: > > > If Dr. Gott actually said these things, I'd save > my > > $2. > > > > He says: " Because fibromyalgia is a diagnosis of > > exclusion and a form of arthritis ... " - which is > > false. Fibromyalgia is not a diagnosis of > exclusion > > and it is not a form of arthritis. > > > > Another thing to be aware of is that amitriptyline > > has been used since the 80s to treat fibromyalgia. > > Not an MD > > > > > > > > > > From: > > NELLIESTAR@...> Date: Fri, 14 Dec 2007 > 23:25:54 > > -0500> Subject: Re: [ ] Fibromyalgia> > > > > I> > > <<<<He prescribed 25 milligrams and said > that > > she wouldn't notice any > > changes at all in her > > case for about two months. He predicted that after > > that > > time, it would suddenly occur to her that > > her pain was gone. She says that this > > is > exactly > > what happened. This was four years ago and the > pain > > has not > > returned. She uses the generic > > amitriptyline. She has told several others about > > this > > treatment and their experiences have been > > the same as hers. >>>>>> > > , you left out > Dr. > > Gott's response !> Dr Gott's response:> > A: > > Fibromyalgia, a poorly understood pain disorder, > is > > difficult to manage. > Patients with the ailment > > have noted significant reductions in their quality > > > > of life. I welcome the opportunity to echo your > > sentiments about Elavil. If, in > fact, the > medicine > > reduces the muscle pain, you should be considered > > for a > Nobel prize. I ask that readers who try > this > > remedy let me know whether it > works, and I'll > > print a follow-up.> Because fibromyalgia is a > > diagnosis of exclusion and a form of arthritis, I > > > > am sending you a copy of my Health Report > > " Understanding Osteoarthritis. " Other > readers > who > > would like a copy should send a long, > > self-addressed, stamped > envelope and $2 to > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be > sure > > to > mention the title. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > u know i love ya...right? laurie > > --------------------------------- > Looking for last minute shopping deals? Find them > fast with Search. > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Hello everyone. I am new here and just wanted to let you know a little about myself. The meds I am on would take about a page, so I just included what I am doing right now for the Fibro. Nothing is working and I am begining to lose all hope of ever getting rid of this pain. I have been on neurotin for about 8 months, it is not helping. I tried amitriptyline, it did not do anything. I am at my wits end. I am taking 40 mgs of oxycontin twice a day, I also use norco every 4 hours as needed. I was diagnosed with RA in April of 2006. I take a lot of meds for this, they help some, but it is not under control. I am really interested in your experiences with Lyrica for used to help control Fibro. I am sick and tired of being sick and tired. Thanks for listening...reading Rosemary > > > > > If Dr. Gott actually said these things, I'd save > > my > > > $2. > > > > > > He says: " Because fibromyalgia is a diagnosis of > > > exclusion and a form of arthritis ... " - which is > > > false. Fibromyalgia is not a diagnosis of > > exclusion > > > and it is not a form of arthritis. > > > > > > Another thing to be aware of is that amitriptyline > > > has been used since the 80s to treat fibromyalgia. > > > Not an MD > > > > > > > > > > > > > From: > > > NELLIESTAR@... Date: Fri, 14 Dec 2007 > > 23:25:54 > > > -0500> Subject: Re: [ ] Fibromyalgia> > > > > > I> > > <<<<He prescribed 25 milligrams and said > > that > > > she wouldn't notice any > > changes at all in her > > > case for about two months. He predicted that after > > > that > > time, it would suddenly occur to her that > > > her pain was gone. She says that this > > is > > exactly > > > what happened. This was four years ago and the > > pain > > > has not > > returned. She uses the generic > > > amitriptyline. She has told several others about > > > this > > treatment and their experiences have been > > > the same as hers. >>>>>> > > , you left out > > Dr. > > > Gott's response !> Dr Gott's response:> > A: > > > Fibromyalgia, a poorly understood pain disorder, > > is > > > difficult to manage. > Patients with the ailment > > > have noted significant reductions in their quality > > > > > > of life. I welcome the opportunity to echo your > > > sentiments about Elavil. If, in > fact, the > > medicine > > > reduces the muscle pain, you should be considered > > > for a > Nobel prize. I ask that readers who try > > this > > > remedy let me know whether it > works, and I'll > > > print a follow-up.> Because fibromyalgia is a > > > diagnosis of exclusion and a form of arthritis, I > > > > > > am sending you a copy of my Health Report > > > " Understanding Osteoarthritis. " Other > readers > > who > > > would like a copy should send a long, > > > self-addressed, stamped > envelope and $2 to > > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be > > sure > > > to > mention the title. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > __________________________________________________________ > > Be a better friend, newshound, and > > know-it-all with Mobile. Try it now. > > > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > u know i love ya...right? laurie > > > > --------------------------------- > > Looking for last minute shopping deals? Find them > > fast with Search. > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > [Non-text portions of this message have been > > removed] > > > > > > > > ________________________________________________________________________\ ____________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 hi, i'm ren. i'm just coming back, was here before, but couldn't type or hit the space bar with my thumbs for the longest time, or use my thumbs for anything i needed them for. i just wanted to tell you that i hear what you're talking about and am sure you'll find some good support here. it was always an informative, courageous, compassionate bunch of people to come to. i'm just now learning i have more Fibro than RA but from what i have been reading and learning, learning to relax and de-stress is really important. as someone who never slowed down or relaxed before, it is gonna be really hard. but i checked out a self-hypnosis book from the library and have been working on one that works pretty well so that i can start to believe that relaxing can help with this darned pain. pain meds don't help me other than to make me so stoned i can't function and still feel but don't care about the pain. what good is that? ren > > > > > > > If Dr. Gott actually said these things, I'd save > > > my > > > > $2. > > > > > > > > He says: " Because fibromyalgia is a diagnosis of > > > > exclusion and a form of arthritis ... " - which is > > > > false. Fibromyalgia is not a diagnosis of > > > exclusion > > > > and it is not a form of arthritis. > > > > > > > > Another thing to be aware of is that amitriptyline > > > > has been used since the 80s to treat fibromyalgia. > > > > Not an MD > > > > > > > > > > > > > > > > > From: > > > > NELLIESTAR@ Date: Fri, 14 Dec 2007 > > > 23:25:54 > > > > -0500> Subject: Re: [ ] Fibromyalgia> > > > > > > I> > > <<<<He prescribed 25 milligrams and said > > > that > > > > she wouldn't notice any > > changes at all in her > > > > case for about two months. He predicted that after > > > > that > > time, it would suddenly occur to her that > > > > her pain was gone. She says that this > > is > > > exactly > > > > what happened. This was four years ago and the > > > pain > > > > has not > > returned. She uses the generic > > > > amitriptyline. She has told several others about > > > > this > > treatment and their experiences have been > > > > the same as hers. >>>>>> > > , you left out > > > Dr. > > > > Gott's response !> Dr Gott's response:> > A: > > > > Fibromyalgia, a poorly understood pain disorder, > > > is > > > > difficult to manage. > Patients with the ailment > > > > have noted significant reductions in their quality > > > > > > > > of life. I welcome the opportunity to echo your > > > > sentiments about Elavil. If, in > fact, the > > > medicine > > > > reduces the muscle pain, you should be considered > > > > for a > Nobel prize. I ask that readers who try > > > this > > > > remedy let me know whether it > works, and I'll > > > > print a follow-up.> Because fibromyalgia is a > > > > diagnosis of exclusion and a form of arthritis, I > > > > > > > > am sending you a copy of my Health Report > > > > " Understanding Osteoarthritis. " Other > readers > > > who > > > > would like a copy should send a long, > > > > self-addressed, stamped > envelope and $2 to > > > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be > > > sure > > > > to > mention the title. > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > __________________________________________________________ > > > Be a better friend, newshound, and > > > know-it-all with Mobile. Try it now. > > > > > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > > u know i love ya...right? laurie > > > > > > --------------------------------- > > > Looking for last minute shopping deals? Find them > > > fast with Search. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Never miss a thing. Make your homepage. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > ______________________________________________________________________ __\ > ____________ > > Be a better friend, newshound, and > > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 did you experience any of the weight gain side effects from your Lyrcia. I have some samples at home that I was given but I have been reluctant to take them because everyone I have talked to says that you do gain weight and that is the last think I need to have happen. > > > If Dr. Gott actually said these things, I'd save my > > $2. > > > > He says: " Because fibromyalgia is a diagnosis of > > exclusion and a form of arthritis ... " - which is > > false. Fibromyalgia is not a diagnosis of exclusion > > and it is not a form of arthritis. > > > > Another thing to be aware of is that amitriptyline > > has been used since the 80s to treat fibromyalgia. > > Not an MD > > > > > > > > > > From: > > NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54 > > -0500> Subject: Re: [ ] Fibromyalgia> > > > > I> > > <<<<He prescribed 25 milligrams and said that > > she wouldn't notice any > > changes at all in her > > case for about two months. He predicted that after > > that > > time, it would suddenly occur to her that > > her pain was gone. She says that this > > is exactly > > what happened. This was four years ago and the pain > > has not > > returned. She uses the generic > > amitriptyline. She has told several others about > > this > > treatment and their experiences have been > > the same as hers. >>>>>> > > , you left out Dr. > > Gott's response !> Dr Gott's response:> > A: > > Fibromyalgia, a poorly understood pain disorder, is > > difficult to manage. > Patients with the ailment > > have noted significant reductions in their quality > > > of life. I welcome the opportunity to echo your > > sentiments about Elavil. If, in > fact, the medicine > > reduces the muscle pain, you should be considered > > for a > Nobel prize. I ask that readers who try this > > remedy let me know whether it > works, and I'll > > print a follow-up.> Because fibromyalgia is a > > diagnosis of exclusion and a form of arthritis, I > > > am sending you a copy of my Health Report > > " Understanding Osteoarthritis. " Other > readers who > > would like a copy should send a long, > > self-addressed, stamped > envelope and $2 to > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure > > to > mention the title. > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > u know i love ya...right? laurie > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi I have fibro and was diagnoised in 04 and recently RA. I am 37 a wife and a mother. I just saw a speicalist on fibro. He gave me some new meds to go along with my Lyrica. He put me on cmybalta and ritalin. So far so good. Pretty excited. I get depressed too. For the past year I have been in bed alot. Friends ask us to do stuff, But of course didn't feel well enough to. Thank God I have a very understanding husband. Vent anytime. crktrendle54 <crktrendle54@...> wrote: hi everyone, im new 2 the group. my name is connie, i,m 54 and i,ve probly have had this 4 a long time. i was diagnoised with fibro 3yrs ago when i thought i had ra. my joints, hands and feet swell 2 were i can,t move some days and others not 2 bad. my skin hurts 2 the touch most of time. depression is a big problem,. the hardest thing 4 me is admitting that i can,t do some of things that i use 2 do. holding my grandkids will put me in bed all day the next day. i try 2 do things in moderation so i don,t end up there. my dr. has me starting conseling the 24. she seems 2 think that my depression could be effecting my physical pain, it makes me mad 4 her 2 think that but i also understand 2. i do take meds 4 my depression, fibro, cronic pain, migraines and my sleepless nights. i,ve read some of the storys of some of you and it is great 2 know that i,m not alone. it will be great 2 connect with someone that has fibro 2 compare with . god bless u all , connie Jeannie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 --- In , " crktrendle54 " <crktrendle54@...> wrote: > > hi everyone, im new 2 the group. my name is connie, i,m 54 and i,ve > probly have had this 4 a long time. i was diagnoised with fibro 3yrs > ago when i thought i had ra. my joints, hands and feet swell 2 were i > can,t move some days and others not 2 bad. my skin hurts 2 the touch > most of time. depression is a big problem,. the hardest thing 4 me is > admitting that i can,t do some of things that i use 2 do. holding my > grandkids will put me in bed all day the next day. i try 2 do things > in moderation so i don,t end up there. my dr. has me starting conseling > the 24. she seems 2 think that my depression could be effecting my > physical pain, it makes me mad 4 her 2 think that but i also understand > 2. i do take meds 4 my depression, fibro, > cronic pain, migraines and my sleepless nights. i,ve read some of the > storys of some of you and it is great 2 know that i,m not alone. it > will be great 2 connect with someone that has fibro 2 compare > with . god bless u all , connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 HI DID U GET MY MESSAGE? PLEASE REPLY TO ME AS MELYNDA. I WROTE SEVERAL THINGS ABOUT DEPRESSION DRUGS & ITS ISSUES. ALL YOU CAN DO IS TRY YOUR BEST!!!! YES COUNCELING WOULD BE GREAT SO U CAN TALK TO SOMEONE WITH NO CLUE OF YOUR PROBLEM. SOMETIMES THEY SAY ITS BETTER TO TALK TO SOMEONE U DONT NOW. GOOD LUCK MELYNDA crktrendle54 <crktrendle54@...> wrote: hi everyone, im new 2 the group. my name is connie, i,m 54 and i,ve probly have had this 4 a long time. i was diagnoised with fibro 3yrs ago when i thought i had ra. my joints, hands and feet swell 2 were i can,t move some days and others not 2 bad. my skin hurts 2 the touch most of time. depression is a big problem,. the hardest thing 4 me is admitting that i can,t do some of things that i use 2 do. holding my grandkids will put me in bed all day the next day. i try 2 do things in moderation so i don,t end up there. my dr. has me starting conseling the 24. she seems 2 think that my depression could be effecting my physical pain, it makes me mad 4 her 2 think that but i also understand 2. i do take meds 4 my depression, fibro, cronic pain, migraines and my sleepless nights. i,ve read some of the storys of some of you and it is great 2 know that i,m not alone. it will be great 2 connect with someone that has fibro 2 compare with . god bless u all , connie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 YOU GO GIRL! TELL YOUR DR. I HATE WHEN OTHER DRS. TELL U ABOUT SOMETHING THEY KNOW NOTHING ABOUT. GOD BLESS,MELYNDAGAMEZ 6/24/08 5:55P.M.CENTRAL [ ] Fibromyalgia I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Thank you Melynda! That " you go girl " cracked me right up! I know, I couldn't believe the nerve of him! I don't think my mom was that impressed with him either! She was telling him how tired she gets at around noon each day, and very weak so that she can barely do anything. This very well could be her low potassium levels or it could be her heart condition that they are working on. So you know what he tells her? He tells her " oh that happens to me everyday too. That's why I drink coffee. " I was SHOCKED! I've been told by cardiologists for the past 10 years to NOT drink caffiene with my heart conditions. I've also been warned even if its decaf to not overdue it, as decaf has some levels of caffiene in it, and if you have toooo many cups it can be just as bad! I wanted to throw something and I usually don't lose my temper:) I can't wait to tell my doctor who is the family doctor that diagnosed the FMS to set his friend straight:) He will probably laugh!!! From: Melynda Gamez <melyndagamez@...> Subject: Re: [ ] Fibromyalgia Date: Tuesday, June 24, 2008, 6:57 PM YOU GO GIRL! TELL YOUR DR. I HATE WHEN OTHER DRS. TELL U ABOUT SOMETHING THEY KNOW NOTHING ABOUT. GOD BLESS,MELYNDAGAMEZ 6/24/08 5:55P.M.CENTRAL [ ] Fibromyalgia I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 not a problem, i would do the same! god bless,melyndagamez 6/24/08 10:45p.m..central [ ] Fibromyalgia I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 WOW - that guy is a piece of work!! Let him get Fibromyalgia just so we can all gather around him and tell him it doesn't exist!! And the coffee comment to your mother?!! I think I would be finding a new cardiologist! > > I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage > therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 I completely agree Mimi!! The FMS comment angered my mom as well as she is the one who went through me down the long path of specialists and appointments and going to the doctors with me and learning of the disease. I should think he would have taken her extreme fatigue and weakness a little more seriously since she's seeing him for heart issues. I think she is definitely looking for a new one to go to! It's so ironic because the doctor that referred her to him is amazing and he treats FMS just as well as my rheumatologists do. He diagnosed me when they couldn't..since he saw more of me. And he is a firm believer and up to date on treatments. I'll have to tell him he should drag his cardio friend to an FMS seminar:) From: Mimi <mimi212@...> Subject: [ ] Re: Fibromyalgia Date: Wednesday, June 25, 2008, 8:25 AM WOW - that guy is a piece of work!! Let him get Fibromyalgia just so we can all gather around him and tell him it doesn't exist!! And the coffee comment to your mother?!! I think I would be finding a new cardiologist! > > I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage > therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Bravo - you tell him! It's that " God complex " thing. I know people in all walks of life who are self-proclaimed " experts " on everything. We used to call them know-it-alls. But it does seem to me that members of the medical profession are misproportionately more guilty of this than the general population. Imho they should take pride in staying on top of their own specialties, and acknowledge that other specialites exist to have in-depth knowledge on the stuff they don't know about. Isn't that the whole point of specializing? > > I just accompanied my 55 year old mom to the cardiologist. He had me come in the room with her since I have been a cardiac patient for the past ten years (since I was 26). I had to go over my history of what is wrong with mine, so he can see what types of things run in the family. In my medical history, my Fibromyalgia was mentioned. He said " Oh don't even get me started on Fibromyalgia " . He said that he doesn't believe its a disease or even exists. This is kind of funny, since he is best friends with my family doctor who diagnosed me years ago before sending me to U of M. He said most diagnosed are middle age women who are extremely overweight. I was thinking hello! I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely overweight). He said these people are sedentary. He never sees runners get FMS. Which isn't true. I've a friend who is very petite, about 5 feet tall and 105 lbs. She is a massage > therapist and very active. I was a little frustrated yet then thought, this guy is a cardiologist. He keeps up on heart conditions, and he's supposed to have people try to stay in shape and to get exercise. He might not be on the up and up of rheumatological and nervous system disorders that affect the body. Not to mention since there are some doctors that haven't even heard of it, or seem to know what it is. So I tried not to take too much offense. Then I thought, you are a medical professional spouting off about something you aren't even sure of! I'm going to tell my doctor he is not allowed to go golfing with him anymore since they just got back from a three day golf outing until he educates his friend on FMS > > > > > Quote Link to comment Share on other sites More sharing options...
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