Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 Debra, It really does like that old devil " Stress " is getting to you. To those who don't know, there's " stress " and then there's " Stress " . We get " Stress " and it causes all kinds of physical reactions that can result in a relapse or a new set of problems developing. I hope that doctors acknowledge the role this plays in how well we do but I'm not certain that they do. I'd be blowing into the wind if I bothered to tell my doctors about how Stress affects me. I'm sure they'd be sympathetic and offer to give me some meds to slow down my thinking a little, but do they realize how important it can be to our health? Call your doctor if you haven't already. Much of what you describe sounds like the symptoms that led to my original diagnosis of AIH. Maybe school isn't going to work for you? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Hi, my name is Genny and my 27 year old daughter has PBC. I just found this group and am very excited to talk to someone who either has this diease or has a family member with it. I have so many questions and fears. Any and all e-mails would be welcomed. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Dear Genny, This may get confusing, my name is . I have PBC. You can e-mail me directly (madamfood@...) or through . I sure don't have all the answers, but I will be very glad to talk to you. You should also e-mail PBCers. That is were most of your information will come from. Your daughter is lucky to have a Mom who cares enough to find out all she can about PBC. Kind regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Genny, Welcome......at your service. lydia 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Hi Genny, You'll find a wealth of compassion and experience here. This is a wonderful group of the most supportive people I've ever heard about, gathered in one place. All of your questions will be welcomed and it won't be long before you're giving answers. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Thanks and Lydia 2 for the welcome. I am trying to soak in all the e-mails right now, a lot of reading. Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Welcome Genney, I am sure you will find lots of support and comfort here. The people here know what you are experiencing and give advice or just a friendly word. Take Care, Loes, aih, The Netherlands Re: [ ] insomnia > > Hi, my name is Genny and my 27 year old daughter has PBC. I just found this > group and am very excited to talk to someone who either has this diease or > has a family member with it. I have so many questions and fears. Any and > all e-mails would be welcomed. Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 In a message dated 09/12/2001 6:48:47 PM Central Daylight Time, greenter@... writes: > Has anyone else experienced insomnia as a primary sympton. Experienced > improvement with diet? I would appreciate any feedback, I am desparate for > sleep. > > I have had insominia for years. After only about 2 months on a strict candida diet, along with supplements, I broke that awful cycle! I cannot tell you the feeling of being exhausted and feeling sleepy around 10 pm and waking up prior to 8 am, feeling well rested. Plus, I no longer felt exhausted all day. Get on the diet, take your supplements, and watch your insomnia, along with a lot of your other problems, improve! annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2001 Report Share Posted September 12, 2001 You must follow the diet. Refined foods feed yeast all day and all night, this does contribute to insomnia. However, I noticed an improvement in my sleep but I still have it as an issue. I found Pro-gest helping me get into a sleep as well as taking additional minerals along with calcium and magnesium. Liz D Insomnia I have been diagnosed with allergies to dairy products, nightshades, aspartame, sugar and chocolate and candida albicans. I suffer from IBS, chronic joint pain, weight gain and chronic insomnia. I have pretty much eliminated the allergy causing foods but have seen no abatement in the symptoms. (I am not following a candidiasis diet.) Has anyone else experienced insomnia as a primary sympton. Experienced improvement with diet? I would appreciate any feedback, I am desparate for sleep. --- rabbitbrain@... bUcKsNdOeS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2001 Report Share Posted September 13, 2001 When my symptoms were at their peak, I had difficulty lying flat because of tightening in the chest. I used to be so tired, fell asleep straight away and then about half an hour later woke up with chest pains, a hollow feeling and a lot of flatulence. I would spend most of the rest of the night pacing up and down. After I began to find out what it was really about, I began drinking hot water and fresh ginger root first thing in the morning as a kind of flusher. I also kept mineral water by my bed at night which helped. One night when I woke up again with the same symptoms, I went downstairs and made myself the ginger root in hot water. And it did seem to help me and I got off to uninterrupted sleep. I also nibble a little of the ginger root. I find it does seem to calm my system down. Even if you don't get the same symptoms, perhaps it'll help. I know even drinking water on its own helped and I mean pints! Now I'm following a full yeast free, dairy free diet. For the most part I don't get the symptoms any more and it did work fairly quickly. My symptoms came from prescription drugs -- synthetic steroid hormones (including the " contraceptive pill " and corticosteroids) and anti-biotics -- for many years. I know taking iron pills has also helped me, but I think this is more my individual make up rather than something applicable to everyone with candidiasis. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2001 Report Share Posted September 13, 2001 ----- Original Message ----- From: T Green I have pretty much eliminated the allergy causing foods but have seen no abatement in the symptoms. (I am not following a candidiasis diet.) Has anyone else experienced insomnia as a primary sympton. -------------------- The anti-yeast diet is crucial in fighting candidiasis. As long as you continue to eat sugar or starch in any form, you are feeding the yeast. The diet is the foundation you must achieve before any supplement or medication can assist. I find that keeping all caffeine out of my diet (herbal teas and water with lemon only) has made a big difference. But it did take several months before I could tell my sleep was deeper and more restful. Please share what you are eating and drinking and what regimen you are following. Ruby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2001 Report Share Posted September 13, 2001 I experienced insomnia during ALL die-off's and before,they started, my Dr. prescribed a medication & still it didn't help, only after the die-off was finished & the yeast was under control. Mog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 I think that there could be a correlation between cleansing and just about anything! It would seem to me that if the body is doing a more effective job of cleansing and doesn't have to work so hard at it as the bowels become healthier, then the sleeping hours would be less active, internally. Does that make any sense? --- TerriG <terhg@...> wrote: > Has anyone noticed an improvement in sleep after > cleansing? I think that > there is a corralation between my gut problems and > sleep problems. I was > recently diagnosed with food allergies, but > abstinence from those foods have > not helped except for reflux. I refuse to take any > more drugs for any of my > conditions, but the alternative treatments are very > confusing. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Terri G, I notice I sleep better (no more frequent bathroom visits) and I remember most of my dreams!!! It always disturbed me that I could not remember my dreams, and now I do. Now that is pretty disturbing! LOL!! No, really, it is fascinating that all of a sudden, since the age of 13 or so, I can remember my dreams!! I hope this helps?!?!! God bless, KJ Insomnia > Has anyone noticed an improvement in sleep after cleansing? I think that > there is a corralation between my gut problems and sleep problems. I was > recently diagnosed with food allergies, but abstinence from those foods have > not helped except for reflux. I refuse to take any more drugs for any of my > conditions, but the alternative treatments are very confusing. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 I had the insomnia really bad when I was on 15mg; now that I have moved down to 10mg it is not quite as bad. Mine seemed to come and go. Would take a sleeping pill on Saturday night to try to catch up on some of my rest. Thanks,Bonnie RohrerAdministrative AssistantGovernment Card Services757-624-6212 -----Original Message-----From: c reece [mailto:maplecolors@...]Sent: Tuesday, November 26, 2002 2:37 PM Subject: [ ] insomniaI'm assuming that my insomnia is related to prednisone. I'm only on 10 MG per day, as well as imuran, does anyone get over the insomnia, build up a tolerance to prednisone, or does the insomnia not go away until you're off pred.? Cathie PS I'm having a terrible time. Even Ambien doens't do it for me. A couple glasses of wine would help, but my doc says no-no._________________________________________________________________The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 I have no doubt it is the prednisone. I have never had ANY trouble sleeping in my life and I had some insomnia on 10mg. Not every night, but when it did occur I got NO sleep at all that night. Thankfully, it was infrequent. Completely went away after I went to 5 mg. I just kind of suffered through it, but it was awful. If it is really giving you a hard time don't hesitate to ask the doctor for some help! Yeah, wine would be the perfect cure....oh well! One can dream. > > > > > I'm assuming that my insomnia is related to prednisone. I'm only on 10 MG > per day, as well as imuran, does anyone get over the insomnia, build up a > tolerance to prednisone, or does the insomnia not go away until you're off > pred.? Cathie PS I'm having a terrible time. Even Ambien doens't do it > for me. A couple glasses of wine would help, but my doc says no-no. > > _________________________________________________________________ > The new MSN 8: advanced junk mail protection and 2 months FREE* > http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 I too, was having a terrible time with insomnia from the Prednisone. My rheumatologist gave me a prescription for Zanaflex, which is fairly quick acting, but is short lived, so that you don't wake up groggy. It's been working fine for me. nne [ ] insomnia > > > > > I'm assuming that my insomnia is related to prednisone. I'm only on 10 MG > per day, as well as imuran, does anyone get over the insomnia, build up a > tolerance to prednisone, or does the insomnia not go away until you're off > pred.? Cathie PS I'm having a terrible time. Even Ambien doens't do it > for me. A couple glasses of wine would help, but my doc says no-no. > > _________________________________________________________________ > The new MSN 8: advanced junk mail protection and 2 months FREE* > http://join.msn.com/?page=features/junkmail > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2003 Report Share Posted April 14, 2003 In a message dated 4/14/2003 5:45:03 PM Eastern Standard Time, hspl28@... writes: > Oh - and does anyone else get bad insomnia as well? I > > read somewhere that it is linked with the critters. I > > am exhausted but I toss and turn all night.Help! > > > I have awful insomnia too and hope that this new way of eating will help me. I can go to bed feeling like I will fall asleep only to lie awake until 2:00 or 3:00. Good luck to you and if anyone else knows any tricks or tips please share! BTW, I guess I should introduce myself! I am 42 years and live in Michigan. I am married with 4 children ages 14-5. My 14 yo attends public school and I home school my 3 boys. I started looking around on the internet to figure out why I keep getting these awful itching rashes behind my ears, other " personal " places and even occasionallly in my belly button! I was so grateful for all the info I found and for finding this email group list. Looking back I believe I've had Candida ever since I was a child. These symptoms and others have always come and gone throughout my whole life. I took the one yeast test where if you scored 180 or higher, then yeast was probably the problem. I scored 191. I am so tired of feeling sick and tired! I'm excited about eating healthier, losing a few pounds, and getting these awful rashes to disappear! (Anyone else get these?) I've read, " The Yeast Connection " and " The PH Miracle Diet " which is really close to the Candida diet and it talks about Candida in a few chapters too. After reading a few messageboards I've also realized that I don't have Candida as bad as some others, so my heart really goes out to those of you who are really disabled by this. Thanks for all who have shared with me so far! Sissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi Satya, Thanks for this info for insomnia. Where can I order it? Thanks again. Margie. [ ] insomnia Hi all, I just thought I'd let you guys know that I finally found a good herbal product for insomnia. It helped me the first night, and the herbs in it are good for the liver (Corydalis Root, jujube seeds, and Schisandra root--that's it!). It's $24 for a month's supply, but I get 30% off for financial hardship (Dr. Zhang is good like that). I remember reading Jays recommendation of 5HTP, melatonin, and calcium citrate for sleep which also seems good, but I didn't have any of the three products on hand. Also, Jay, aren't the ingredients in the HerbSom also in your blends? If so, would it produce the same effect as taking the caps--(you take two before bed (600mg)? Since I got this head cold Sunday, I had Hepapro (dr. Zhang's lab) send me two bottles of Allicin (concentrated, smelly garlic!) pronto, --this is what I use for any cold or even serious infection (like twice when I had pneumonia, this remedy worked and I avoided antibiotics). so while I was at it I ordered the HerbSom, since the insomnia problem was lingering.....and some Olive leaf in capsule form--these are expensive, and I can't wait till Jay can get the caps for the buyer's club (are you reading this Jay?)---Jay if you are reading this--know that this cold is the reason you haven't gotten my order yet--I had to send $ to my credit card again, since I had to deplete it getting my meds from Dr. Zhang to fix this cold. So I'll get my order in to you next week.....love and health to all, Satya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 I had problems with insomnia in the 90's. I had the restless legs, headaches, ringing in the ears, loss of hearing, dizziness, vertigo,etc. also. But, I was still able to move about. Then in Oct. 2001, I started having difficulty with mobility. Now, I usually don't have a problem with insomnia or the migraine/tension headaches. (I do get what I call a rubber band headache). I like the idea that I am no longer getting the migraines and I am sleeping well at night. I don't know what all this means. Perhaps there is stages that people go through with lyme. Perhaps it is good you are not being able to sleep because it means you are not as badly infected. It is a long shot. I know not being able to sleep is not fun at all. I also know that I have gone back to having insomnia when I try the different antidepressants. I usually stop them, because being able to sleep at night is really important to me. I felt the antidepressants were depressing me. HA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 When I would go several days without being able to sleep and was working full time, I would get a massage. I would sleep like a baby then. I don't know why...but it was good to find something that worked. There was a health club a couple blocks from my house. I would go there in the evening after I ate, then come home and sleep. It was great. I hope that works for you too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 WOW! I don't know about you, but I don't think I have ever battled anything like this before in my life. I will certainly be glad when I have my health back. I know what you mean about the antidepressants. I kept trying to take them because I thought they would help. I finally gave up. I do cry now if I push myself to far. If I am able to just wait it out until my body allows me to get out and about I do OK> When this first hit, I would cry almost everyday for a short time. It was mostly due to the loss of mobility. I sure didn't understand what was going on. Still don't. Just hope I am learning what it is I am suppose to be learning from this. I know I have friends who feel they will be on antidepressants the rest of their lives. One can't sleep if she doesn't take them and the other doesn't like herself if she doesn't take them. HA! (But, neither one of them have lyme) I do know that all of the antidepressants I tried had insomnia as a possible side affect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 At one point, I tried to go back to work. I took excedrin and provigil and lots of caffeine to help me get through the day. I took these products in the am and went to work in the afternoon until 11 pm. Work allowed me to use a golf cart to get to my classroom because of my mobility problems. I worked 3 days (couldn't sleep at night) Slept the next 4 days around the clock. (It was a 4 day weekend) Worked 4 days...sleep 3 days around the clock. The next week we didn't have any breaks. It was a regular work week. I lasted until the 4th day. Then my body crashed on me. Luckily, the supervisor was in the room with me. He took over the class. I sleep for 2 weeks after that. Looking back, I know that was not a good choice. But, at the time, the docs were telling me nothing was wrong with me and I needed to get back to work in order to continue to have health insurance. It was great to be there. But, I was very low functioning. What I was amazed about is that I was able to hold my body upright in the chair. I would slouch, but I did it. I certainly wish I could have figured out a way to continue to work while I was healing. The cognitive skills were so slow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Hi Bill: I also suffer from insomnia and if I don't sleep at night the symptoms and misery for me magnify...I am trying supplements with GABA, valerian, 5htp...and ultimately have to resort to xanax when everything fails...but I know that I don't want to over depend on benzodiazepines since I know they also probably stop working in time... The best thing I have found is to take a warm bath with baking soda, epsom salts and peroxide...sometimes this does help...also not to have a tv in your bedroom but keep some easy to read magazines nearby until you feel sleepy...I have also been waking up at 3 or 4 am some nights and trying to get back to sleep...sometimes I take melatonin but have no idea if this is good or bad for me. The most difficult thing for me is to have to sleep because my husband will awaken if I turn on the light or move too much..I have to find a room and bed where I can turn on a light and read until I get sleepy...one night, I just didn't sleep after 3 am after going to bed at 11..I was so exhausted by that next night, I just went promptly to sleep. So maybe it's better to just wait till the next night to catch up...this is my dilemma..let me know if anyone has an idea of other things that work with insomnia. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Now, when I have difficulty sleeping, I listen to Chuck Swindoll's daily broadcast on the computer. The computer is next to my bed. He puts me to sleep everytime. HA! If I wake in the middle of the night and can't get back to sleep, I listen to his broadcast again. I have yet to listen to a complete broadcast. I also noticed that if I put headphones on and try to listen to an audio of a book, I will find myself falling alseep when I don't really want to. It would be great if these things helped others too. The irony in all of this is that I needed quiet to go to sleep before lyme. NOw, it is kind of nice to fall asleep listening to a speaker. It helps me focus on something else besides the ringing in my ears. Quote Link to comment Share on other sites More sharing options...
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