Tinnitus

[Guest guest]

Hi Tom;

I got a CI in Nov 2004 and I have a different kind of tinnitis now. It only is

audible to me when I am not wearing the CI and is kind of a very loud ever

present whooshing sound. It's definitely not as bothersome as the tinnitis I

had prior to implant.

When I first became deaf and realized the tinnitis I actually asked myself " Can

I live with this? " At first I didn't know if I could but somehow managed over

time to put the tinnitis in the back of my mind and carry on. Sometimes I even

forgot it was there and it only bothered me when it was " roaring loud " in the

mornings.

I've been grateful for the relief I obtained but it's not really gone.... just

" less " .

Pam (in Alaska)

----- Original Message -----

From: Tom Fortman

I would like to hear from ci users that have tinnitus, that has not gone away

after activation. It' been two months since I was activated

[Guest guest]

Yes, that's me! I've had it for as long as I remember and continue to have

it with or without the CI on. It is less noticeable when I am actively hearing

but otherwise it is a part of me.

In a message dated 5/11/2006 7:59:00 AM Eastern Standard Time,

kfortman@... writes:

I would like to hear from ci users that have tinnitus, that has not gone away

after activation. It' been two months since I was activated

[Guest guest]

My tinnitus has been much worse since I was implanted, Tom. Mainly on

the implanted side. Sometimes during the mapping, the beeps seem to get

on the same frequency as the tinnitus and make hearing them, more

difficult to recognise.

Ted F.

>

> I would like to hear from ci users that have tinnitus, that has not

> gone away after activation. It' been two months since I was activated

>

[Guest guest]

(Gerald asked me to post this as his had bounced...)

Nina,

The female administrative assistant at the NYU CI Implant Center is a

personable person. She told me that when " you are ready contact us again. "

I am age 65 and on Medicare Part A and working. I like to make my

retirement date around 2008. It is nerve wracking and I do not think that

people while working have the time for a year long commitment for the

rehabilitation process. Perhaps, when I am getting my pension besides

social security and no one is watching the clock at work I can reapply. If

my hearing progressively worsens and I am a better candidate I can chose on

whether iatrogenic (side effect of treatment) disorder is worth total

deafness. I am not there yet. So time will tell. - Gerald

Nina Wallace <nwallace@...> wrote:

Gerald,

I had major tinnitus for years before surgery. The tinnitus lessened

after surgery but did not go away entirely.

Another kind of tinnitus occured after surgery for many months - a

roaring sound that came and went. It has finally gone away.

Nina

CI 2001 BTE hi-focus

[Guest guest]

Gerald,

I haven't found the time involved with the CI to be too much, and I have to

travel to Birmingham which is 4-1/2 hours away for my surgery and maps. In

fact, not having the CI was interfering with my work as I was having a

terrible time hearing on the phone even with 2 ears, booted FM and the

TelCom. In fact, I was on the verge of having to check into Captel. The CI

is allowing me to continue working and be more productive than before. I was

totally unable to use the phone for the 3 weeks between surgery and

activation, but as soon as I was activated, I was able to resume using the

phone and am hearing MUCH better than before.

I had my activation on September 27, returned for a second mapping on

October 11 and don't go back again until November 17. At that time, I will

choose the speed I like and we will put in the 4 programs, ADRO, BEAM,

autosensitivity and Whisper (or I may choose an open program which is what

I'm using now at all speeds).

It really depends on the individual as to how much rehab is needed. Someone

who hasn't heard in years (or ever) will need more. Someone like me who was

still hearing with hearing aids should not need as much rehab. I was able to

hear immediately at activation.

I'm not going to push getting a CI on anyone before they are ready. I had

to come to terms with the severity of my own hearing loss before being

really ready for a CI. I paid my first visit to my otologist in Dec. 2004

just because I wanted to find out why my hearing was declining. At that

time, he mentioned the CI to me. I was very sad and was not ready to accept

that my hearing had declined to that level. I had to first get new hearing

aids and come back for re-testing under best-aided conditions. After getting

the new hearing aids, I waited a whole year before returning for the CI

evaluation and then I ended up being borderline. I had to wait another 6

months and be re-evaluated before I finally qualified. And, I was definitely

ready then!!!

Lynn

Fairhope, AL

Nucleus Freedom

Surgery date: 9/6/06

Activation date: 9/27/06

_____

From: [mailto: ] On Behalf Of

Sent: Tuesday, October 17, 2006 1:04 PM

Subject: Re: tinnitus

(Gerald asked me to post this as his had bounced...)

Nina,

The female administrative assistant at the NYU CI Implant Center is a

personable person. She told me that when " you are ready contact us again. "

I am age 65 and on Medicare Part A and working. I like to make my

retirement date around 2008. It is nerve wracking and I do not think that

people while working have the time for a year long commitment for the

rehabilitation process. Perhaps, when I am getting my pension besides

social security and no one is watching the clock at work I can reapply. If

my hearing progressively worsens and I am a better candidate I can chose on

whether iatrogenic (side effect of treatment) disorder is worth total

deafness. I am not there yet. So time will tell. - Gerald

..

<http://geo./serv?s=97359714/grpId=7962067/grpspId=1705013490/msgId

=48881/stime=1161108387/nc1=3848429/nc2=2/nc3=3>

[Guest guest]

Dora's statement has me curious. I've never had tinnitus in my right ear.

However, ever since my CI surgery I have tinnitus (which can be very loud at

times) that sounds like a car engine turning over repeatedly. Someone on

another list said tinnitus following CI surgery may be the hearing nerve

" waking up. " It's an interesting speculation, but I'm not sure if that's

true in my case since my right ear has always been my better ear and has

been aided from age 15 until I received my second CI in February.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

Dora,

I think it's great that your tinnitus symptoms were eliminated following

surgery. Your surgeon's explanation as to why this happened makes

perfect sense.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

>

> I just read in the files cause I felt I needed to re-read them, that

Candida causes ringing in the ears. Do you think it also causes

partial hearing loss? And do you think these things can be reversed

on the diet.

> jeanne, yes candida does cause ringing in the ears. Zack, one of

our moderators had it in the beginning. Because candida breaks down

the body with it's toxins it could also cause hearing loss, and yes I

believe these things can get reversed on the program.

Luv, Bee

[Guest guest]

Jeanne,

I lost 20% of my hearing from candida. I have gotten a good grip on the

infection twice and my hearing improved noticably. I got a cold after both

times and my hearing went back down again. My doctors couldn't believe it when

I told them about regaining my hearing. It wasn't totally back, but I heard

things that I hadn't heard in 20 years. I am working on getting it back for

good!!

[Guest guest]

Hi, All,

Hope you all had a happy and safe Memorial Day Weekend.

This article about a new development in the field of helping tinnitus

from my local newspaper appeared today and I thought some of you might be

interested.

_www.mcall.com_ (http://www.mcall.com) - type Tinnitus in the search -

or click this link:

<_Foreign innovation grows in the Valley : The Morning Call Online_

(http://www.mcall.com/business/local/all-ears.5866633may28,0,2958328.story) >

<smiles> Jackie

************************************** See what's free at http://www.aol.com.

[Guest guest]

From the article:

" Neuromonics' treatment, which costs $3,500 to $5,000 and is covered

by some insurance, involves the use of a device that looks and works

like a simple Walkman. Basically, all the patient has to do is put on

the headphones and listen to specially-formatted music, perhaps

classical, for a couple of hours a day over the course of a half year.

The music is embedded with special sounds that, although barely

audible, stimulate the brain's auditory cortex. The sounds,

customized at Neuromonics' Bethlehem Township office to each

patient's needs, are what do the trick.

''Your brain, through stimulus, can be adjusted,'' Springer explained.

Ninety percent of those who try Neuromonics achieve at least a 40

percent reduction of tinnitus, according to a clinical trial in

Australia, where the treatment has been available since 2004. A

recent article in the U.S. medical journal Ear & Hearing concluded

that it ''provides rapid and profound improvements.'' "

..............

I dont know how they would measure a 40% improvement. I see it was

developed in Oz, but they look like they are depending on your US

insurance companies to pay the costs of it. Its not likely the kind

of thing to be covered " over here " by anybody. There's more rich

folk " over there " as well :-)

Interesting article, Jackie.

Ted F.

>

> Hi, All,

> Hope you all had a happy and safe Memorial Day Weekend. This

> article about a new development in the field of helping tinnitus

> from my local newspaper appeared today and I thought some of you

> might be interested.

> _www.mcall.com_ (http://www.mcall.com) - type Tinnitus in the

search -

> or click this link:

>

> <_Foreign innovation grows in the Valley : The Morning Call Online_

> (http://www.mcall.com/business/local/all-

ears.5866633may28,0,2958328.story) >

>

> <smiles> Jackie

[Guest guest]

Hey, Ted,

I knew you'd be proud that it was an Aussie who developed the device.

My first thought was also how expensive it is. But it's a start, anyway, for a

problem that affects so many of us. Glad you enjoyed reading it.

) Jackie

************************************** See what's free at http://www.aol.com.

[Guest guest]

What helps reduce tinnitus (at least for me):

- cell phones, computers, TVs, cars all flare up tinnitus.

It's the EMF (60 Hz to RF). I modifiled my computer because

the LCD monitor caused blaring tinnitus (mostly it's the

switching power supply). Also the keyboard and mouse.

- Lipoflavenoid seems to help. They recently increased it's

potency.

- Inositol seems to help.

- vitamin supplements may contribute to tinnitus.

Ultra Mega vitamins from GNC flares up my tinnitus.

- use ear plugs in noisy environments.

- aspirin can cause tinnitus.

- my tinnitus gets particularly bad after taking a sauna,

so I suspect an inbalance of electrolytes causes tinnitus.

- other medications (Concerta) and foods may contribute to tinnitus.

Eli

>

> Has anyone been able to reduce their tinnitus symptoms , if so

what

> helped?

> Thanks, Sandi

>

[Guest guest]

You can get a masker that will help that you place in your

ear. Also try turning off the electrics when it starts if you

can which helps me. I've also got a cap from Handy

Fashion that is silver lined. I think it's a matter of trial and

error and it took me years to get relief although at times

nothing seems to stop it.

Maureen

Tinnitus

Has anyone been able to reduce their tinnitus symptoms , if so what

helped?

Thanks, Sandi

[Guest guest]

In a message dated 6/9/2008 9:45:52 P.M. GMT Daylight Time,

maureen.norman@... writes:

Has anyone been able to reduce their tinnitus symptoms , if so what

helped?

Thanks, Sandi

Reduce muscle tension around shoulders/neck/head, ensure blood pressure is

not to high.

paul uk

[Guest guest]

If I go camping somewhere with no power lines, no cell phone coverage, no

tinnitus

(may take a day if it was bad before).

I must avoid cell phone towers. I have my car windows tinted with tint that

reflects 99.9% of microwaves. I removed all dimmer switches because they

could cause it. I added a 2-pole switch to turn off both hot and neutral

wires

in the bedroom (and use GFI so no ground wire). I can tell when that switch

is

on after about 2 minutes. I also had to use an extension cord for the

refridgerator

because the wiring went under the bedroom. It now uses all twisted (round)

cable

and goes through the garage.

Bill

On Tue, Jun 10, 2008 at 3:35 AM, <paulpjc@...> wrote:

>

> In a message dated 6/9/2008 9:45:52 P.M. GMT Daylight Time,

> maureen.norman@... <maureen.norman%40tesco.net> writes:

>

> Has anyone been able to reduce their tinnitus symptoms , if so what

> helped?

> Thanks, Sandi

>

> Reduce muscle tension around shoulders/neck/head, ensure blood pressure is

> not to high.

>

> paul uk

>

>

[Guest guest]

Yes. I did several treatments with a strong magnet machine and my tinnitus

of 25 years for the first time went silent for about six hours after each

treatment. It really can be a quiet world out there! I treated with the

magnapulse magnet machine - I held the white looped cable over various parts

of me as

it clicked away with magnetic impulses. Google for PEMF machines. Normal

cells have a cell membrane voltage of 70 milliamps, and sick cells, including

cancerous ones, can go down as low as 15 milliamps. Thus we are jumpstarting

our system. Don't ask me how this translated to reducing tinnitus - it just

did. Pain went down, energy and mood went up. - Robin

In a message dated 1/29/2009 12:49:08 P.M. Pacific Standard Time,

this.and.that@... writes:

Anyone have any suggestions for dealing with Lyme tinnitus?

(constant hissing sound)

Carmen

**************Know Your Numbers: Get tips and tools to help you improve your

credit score.

(http://www.walletpop.com/credit/credit-reports?ncid=emlcntuswall00000002)

[Guest guest]

Here is a web site with tips for eliminating tinnitus:

http://www.mytinnitus.de/#tips

I had tinnitus before getting Lyme, after having a bad cold and after taking

antibiotics and medications. Not sure what caused it. I did notice that it

was worse with offending substances like aspartame, and better with zinc.

[Guest guest]

My son has a contant EEEE high pitched sound. 8 months of chelation didn't

effect it. We have never found the cure for his and he still has it.

[Guest guest]

I have chronic tinnitus and ringing in my ears. I hear it's caused by a

lack of oxygen, pathogens and toxins. I relieve mine by either or both ginger

root and gingko biloba. With these, I rarely have a problem.

Love and prayers,

Heidi N

**************From Wall Street to Main Street and everywhere in between, stay

up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023)

[Guest guest]

Hi from Lymeover:

 

Is there anyway this could become longer lived then 6 hours?    IE CURED?

 

Lymeover and out

From: sfrobink@... <sfrobink@...>

Subject: Re: [ ] tinnitus

Date: Thursday, January 29, 2009, 2:00 PM

Yes. I did several treatments with a strong magnet machine and my tinnitus

of 25 years for the first time went silent for about six hours after each

treatment. It really can be a quiet world out there! I treated with the

magnapulse magnet machine - I held the white looped cable over various parts of

me as

it clicked away with magnetic impulses. Google for PEMF machines. Normal

cells have a cell membrane voltage of 70 milliamps, and sick cells, including

cancerous ones, can go down as low as 15 milliamps. Thus we are jumpstarting

our system. Don't ask me how this translated to reducing tinnitus - it just

did. Pain went down, energy and mood went up. - Robin

In a message dated 1/29/2009 12:49:08 P.M. Pacific Standard Time,

this.and.that@ sbcglobal. net writes:

Anyone have any suggestions for dealing with Lyme tinnitus?

(constant hissing sound)

Carmen

************ **Know Your Numbers: Get tips and tools to help you improve your

credit score.

(http://www.walletpo p.com/credit/ credit-reports? ncid=emlcntuswal l00000002)

[Guest guest]

Hi - yes, I have heard stories about people treating for much longer time

with the magnet machine and healing whatever ailed them. My time with it was I'd

say pretty minimal. - Robin

In a message dated 2/3/2009 2:16:56 A.M. Pacific Standard Time,

lymeover@... writes:

Hi from Lymeover:

Is there anyway this could become longer lived then 6 hours? IE CURED?

Lymeover and out

From: _sfrobink@..._ (mailto:sfrobink@...) <_sfrobink@..._

(mailto:sfrobink@...) >

Subject: Re: [ ] tinnitus

_ @Lyme_Aid_BuhLym_

(mailto: )

Date: Thursday, January 29, 2009, 2:00 PM

Yes. I did several treatments with a strong magnet machine and my tinnitus

of 25 years for the first time went silent for about six hours after each

treatment. It really can be a quiet world out there! I treated with the

magnapulse magnet machine - I held the white looped cable over various parts

of me as

it clicked away with magnetic impulses. Google for PEMF machines. Normal

cells have a cell membrane voltage of 70 milliamps, and sick cells,

including

cancerous ones, can go down as low as 15 milliamps. Thus we are jumpstarting

our system. Don't ask me how this translated to reducing tinnitus - it just

did. Pain went down, energy and mood went up. - Robin

In a message dated 1/29/2009 12:49:08 P.M. Pacific Standard Time,

this.and.that@ sbcglobal. net writes:

Anyone have any suggestions for dealing with Lyme tinnitus?

(constant hissing sound)

Carmen

************ **Know Your Numbers: Get tips and tools to help you improve

your

credit score.

(_http://www.walletpo_ (http://www.walletpo/) p.com/credit/ credit-reports?

ncid=emlcntuswal l00000002)

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

**************Who's never won? Biggest Grammy Award surprises of all time on

AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?ncid=emlcntusmusi00000\

001)

[Guest guest]

This is one of the first symptoms that returns for me. When I'm on the

full Buhner protocol, it goes away. Off all herbs, comes back.

On Feb 3, 2009, at 6:35 AM, sfrobink@... wrote:

> Hi - yes, I have heard stories about people treating for much longer

> time

> with the magnet machine and healing whatever ailed them. My time

> with it was I'd

> say pretty minimal. - Robin

>

>

[Guest guest]

Take a look at this. Put these two words under search on your internet and read the articles.

meclizine and tinnitis

I have the cholesteatoma but my mom did not. She did however have a lifetime of ear problems. She had bouts of dizziness, tinnitis and she could not tolerate weater or wind in her ear. Her Dr prescribed this drug and it really worked for her. She took it for over 20 yrs and we were never aware of any side effects. So ask your Dr about it!

Tinnitus

I am having a severe bout of Buzzing!! This has been going on constantly for over 4 months! It keeps me up at night and drives me crazy all day. It is in my ear that has had Ctoma surgeries. I have a drainage tube in that ear. I have just gotten the Resound Azure hearing aide in that ear with hopes that if I got more sound into the ear that would help. No such luck.

I have tried diuretics, Valium, Xanax and nothing has helped.

I have had small bouts before but nothing like this. I go to bed with it and wake up with it.

Does anyone please have any suggestions!!! I have endured a lot with my ear but nothing like this. It is not something that I can just ignore. There are times that it overpowers my hearing aid.

Any info appreciated!!!

Ingrid

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of Arun GuptaSent: Friday, February 06, 2009 5:49 AMcholesteatoma Subject: Good articles

Following is good article for all, specially for new members to know more about the disease

http://emedicine.medscape.com/article/860080-overview

http://www.orlnews.org/links/howidoit/howidoit_files/kflap/kflap.php

Dr. Arun, India

[Guest guest]

>I also have a constant buzzing in my c-toma ear, and this can

suddently get very loud, for no apparent reason. I also notice at

night that I sometimes hear other, odd sounds in this ear. I know

this probably sounds strange, but occasionly I hear beeping (very

quiet) and once in a while the buzzing sound almost sounds like

voices. Yes, I know that sounds crazy, but until the voices actually

start saying something, I don't think I'll have myself committed!

Does anyone else hear these kinds of sounds as well?

Jackie

> I am having a severe bout of Buzzing!! This has been going on

constantly

> for over 4 months! It keeps me up at night and drives me crazy

all day. It

> is in my ear that has had Ctoma surgeries. I have a drainage tube

in that

> ear. I have just gotten the Resound Azure hearing aide in that ear

with

> hopes that if I got more sound into the ear that would help. No

such luck.

>

>

>

> I have tried diuretics, Valium, Xanax and nothing has helped.

>

>

>

> I have had small bouts before but nothing like this. I go to bed

with it

> and wake up with it.

>

>

>

> Does anyone please have any suggestions!!! I have endured a lot

with my ear

> but nothing like this. It is not something that I can just

ignore. There

> are times that it overpowers my hearing aid.

>

>

>

> Any info appreciated!!!

>

>

>

> Ingrid

>

>

>

> From: cholesteatoma

[mailto:cholesteatoma ]

> On Behalf Of Arun Gupta

> Sent: Friday, February 06, 2009 5:49 AM

> cholesteatoma

> Subject: Good articles

>

>

>

> Following is good article for all, specially for new members to

know more

> about the disease

>

> http://emedicine.medscape.com/article/860080-overview

>

>

>

>

http://www.orlnews.org/links/howidoit/howidoit_files/kflap/kflap.php

>

>

>

> Dr. Arun, India

>