Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 -- Tinnitus for some people do subside quite a bit. I find that if I cut out certain stuff I don't have the tinnitus as much. I do know how you feel. This am I was bothered by a whining hum in my left ear that woke me up out of a sound sleep. I just ignored it and it went away on its own eventually. Mine is usually masked by the implants when the processors are on. Snoopy bilateral CIs prelingual due to Rubella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi Snoopy, My surgeon told me last week that my tinnitus should disappear once my CI is activated. What has been frustrating to me are the variations in the sounds I hear. It continually alternates between a high pitched tone, a waterfall and a freight train. Is there any treatment that you know of for tinnitus? I know some people have tried using white noise generators to help mask the sound, but do you know of anything else besides cutting down on caffeine (and salty foods)? As I said in another message, I'm going to try drinking white soda for awhile to see if that has any positive effect. Implanted: 12/22/04 Activation date: 1/18/05 (20 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi, , I'm sorry to hear you are being so bothered by tinnitus. I've always had it, and, sorry to say it is worse since my implant. There is no cure for it, unfortunately. Alice has the best list of suggestions I know to try to minimize its effects. (I switched to caffeine free diet pepsi years ago). I know it is a running joke with me to promote tranqualizers like xanax and prozac, but I have truely read that some people do find relief while taking these drugs. It is, of course, a matter to discuss with your doctor should it become intolerable. I hope it doesn't come to that for you, and that activation puts a real crimp in this very annoying tinnitus! Happy New Year!! Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi , I'm sorry that your tinnitus has gotten to the point of waking you up at night. You still are healing from the surgery although you feel well. There is most likely some swelling in the area of the implant and it sounds like when you lay on the implanted side, you are making the tinnitus roar by laying against the swelling. Do you have a neck pillow? It might be helpful when you are trying to sleep on that side. My tinnitus is usually worse when I first get up, but as soon as I put on the processor, it goes almost completely away and becomes unnoticeable. I can tell which days I didn't drink enough water - and I know that sounds strange. The next morning, the tinnitus is worse. I personally have almost completely stopped drinking anything carbonated and have made the change to fruit drinks, vegetable drinks and water. This was my own solution and not something recommended. One question - are you taking anything for pain still? Would you be taking ibuprofen or something like that? This too can make it worse. Tylenol seems to be the best for pain relief - even for a headache. I hope this resolves for you easily but your doctor may be right about the activation day being the relief. Alice -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.6.7 - Release Date: 12/30/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi Jackie, I woke up this morning with the same high pitched tone. After a few hours, it turned into a whooshing type sound that I can still hear as I type this. I've had tinnitus before, but it certainly wasn't as loud or as persistent as it is now. I wonder if the antibiotic I'm taking (Cefadroxil - generic - 500 mg twice a day) could be partially responsible? In the meantime, I'm going to try cutting out all caffeinated drinks to see if that helps. Failing that, I will have to learn how to live with it until my activation date. I don't think it will come down to this, but if need be, I may take your suggestion and talk to my surgeon about tranquilizers. (I've already e-mailed my audi to see if she has any suggestions.) The reason why I think the tinnitus is so distracting to me is because I don't have any visual input to take my mind off of it. When I experienced tinnitus before my surgery, it wasn't as loud or as constant as it is now -- just an occasional high pitched ringing sound that would happen every now and then (usually at night). Implanted: 12/22/04 Activation date: 1/18/05 (19 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi Alice, Thanks for your reply. I'm no longer on pain meds and haven't been taking ibuprofen. However, I have been taking Extra Strength Tylenol (acetaminophen) just before bedtime to ease the mild soreness I feel when sleeping on my implanted ear. I don't have a neck pillow but will consider buying one, especially if it will help bring the tinnitus down to a low roar. Right now I have my head propped up on two pillows. Perhaps going back to the recliner will help in the meantime? Implanted: 12/22/04 Activation date: 1/18/05 (19 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 , You mentioned in another e-mail that you are still taking an antibiotic. I bet that's the culprit in making it sound so bad. I always think that sleeping upright helps us to heal better because we don't put any pressure on the surgical area. This is my own theory and not one that was ever given to me by a medical professional. The Tylenol should be fine. Try to get plenty of rest too. What makes it bad is that when we have the horrid tinnitus, we tend to get stressed and stress makes it worse. Vicious circle. Alice -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.298 / Virus Database: 265.6.7 - Release Date: 12/30/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi Alice, Because there was some residual blood in my eardrum, my surgeon recommended that I continue taking antibiotics for another week. I'll let you know if I notice any difference in the tinnitus once I've stopped taking them. As of tonight, I'm going to start sleeping in my recliner again. The implant area has become a little sore, but like you said, sleeping in an upright position should take care of that. Fortunately, the implant area is starting to flatten out and doesn't protrude as much as it did last week. Thanks for your help! <smile> Implanted: 12/22/04 Activation date: 1/18/05 (19 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 , I wanted to thank you for your recommendations re: tinnitus. As of now, it appears that my tinnitus is a side effect of the antibiotics I've been taking. If tinnitus becomes a problem for me in the future, I will definitely ask my doctor about Valium. By the way, I was on Valium a long time ago when my migraines were first diagnosed. A very powerful drug, but as long as it helps, that's what counts. I'll see how things pan out within the new few weeks. Hopefully after the final course of antibiotics is finished, my tinnitus will be history. <crossing fingers> Implanted: 12/22/04 Activation date: 1/18/05 (17 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 , Tinnitus really is annoying, isn't it? I'm not one to complain, but I do have to admit how annoying this has become because of how loud and persistent it is. I've tried blocking out these sounds with the TV or radio but because I can't understand what is said, it only adds to the noise. Tonight I'm going to try listening to some jazz to see if that helps. Glad to know I'm not alone. Hang in there, ...hopefully your tinnitus will disappear once you're activated. Implanted: 12/22/04 Activation date: 1/18/05 (16 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 , have you thought of taking something to hlp you sleep? Is your problem falling asleep or staying that way. I've been having spleep problems myself although for me I think it is just plain insomnia rearing its ugly head which it seems to do from time to time but still anoying. I noticed last tim I had it that if I took somethhing like tylenol pm which is not habit forming, that it seemed to help. I'm just really tirred today been upsince 2 so jst thought of you. I know how irritating it is in many ways to not have slept properly so you aren't feeling recharged. Re: Re: Tinnitus > > , > > Tinnitus really is annoying, isn't it? I'm not one to complain, but I do > have to admit how annoying this has become because of how loud and > persistent it is. I've tried blocking out these sounds with the TV or radio > but because I can't understand what is said, it only adds to the noise. > Tonight I'm going to try listening to some jazz to see if that helps. Glad > to know I'm not alone. Hang in there, ...hopefully your tinnitus will > disappear once you're activated. > > > Implanted: 12/22/04 > Activation date: 1/18/05 (16 days and counting!) > Deafblind/Postlingual > BTE hearing aid user 19 years > Severe-profound hearing loss 9 1/2 years > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi everyone, My surgeon e-mailed me this morning and said that he could put me on steroids to help with the tinnitus I've been experiencing. Some of the side effects I might have as a result include an upset stomach and sleeplessness. However, I told him I'd like to give them a try -- even if they only help to dull the sounds I'm hearing. Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Now you will get muscles~ Pearson sville, WA Re: tinnitus Hi everyone, My surgeon e-mailed me this morning and said that he could put me on steroids to help with the tinnitus I've been experiencing. Some of the side effects I might have as a result include an upset stomach and sleeplessness. However, I told him I'd like to give them a try -- even if they only help to dull the sounds I'm hearing. Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Hi Tina, I have problems falling asleep. I'm also awakened by the tinnitus sometimes but my primary complaint is not being able to get to sleep. I e-mailed my surgeon to ask if I could take Benedryl with the steroids he is prescribing. Hopefully both of them will help. By the way Tina...the next time you have insomnia, try drinking warm milk. You could also heat milk in the microwave and add Hershey's syrup. (When hot chocolate is made with milk and Hershey's syrup, it contains no caffeine.) Both of them have an effect that helps calm and relax you. Hope you're able to get a better night's sleep tonight. <smile> Oh...and try the hot chocolate as described above. It's delicious! Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 , LOL! would like that. <grin> Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 , Steroids do reduce the tinnitus. They have other side effects which are bothersome but I do know that they make tinnitus better. You are right about warm milk BTW and that is the reason baby's sleep so well. I'm not so sure about the warm chocolate milk though. Alice -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.6.7 - Release Date: 12/30/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 Alice, It will be interesting to see how well the steroids work. Hopefully they will allow me to relax while I start looking ahead towards my activation. Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 , I didn't even think about Gingko Biloba. If the steroids don't work, that's the next thing I'll try! Hmmm. Come to think of it, I could kill two birds with one stone that way...eliminate the tinnitus while strengthening my memory. <grin> Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 What memory? Pearson sville, WA Re: Tinnitus , I didn't even think about Gingko Biloba. If the steroids don't work, that's the next thing I'll try! Hmmm. Come to think of it, I could kill two birds with one stone that way...eliminate the tinnitus while strengthening my memory. <grin> Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2005 Report Share Posted January 3, 2005 , Gosh, I can't imagine having tinnitus for 40 years!! I wish I could block out what I'm hearing, but I can't -- at least not now. The high pitched tone I've been hearing has been replaced by an ocean/whooshing sound. Just when I become used to one sound, it changes to something else. I think that and the loudness (it's *very* loud) is what makes this so annoying for me. Hopefully my activation will take care of this once and for all. LOL! One thing I know for sure is that the tinnitus I used to have before surgery was nothing compared to what I'm experiencing now. If my tinnitus had the " courtesy " of limiting itself to only one sound, I'd be happier and would have a much easier time concentrating on other things. <grin> Implanted: 12/22/04 Activation date: 1/18/05 (15 days and counting!) Deafblind/Postlingual BTE hearing aid user 19 years Severe-profound hearing loss 9 1/2 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 I just realise that my tinnitus has been gone since November, and I had it for several months, and it was most annoying!! My CI implant certainly turned the trick!! WOW!! Moses Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Hi , I have heard Tinnitus for many years and it especially gets annoying when I take off my hearing aid. So, I fully expect to have it roaring away after the surgery. Stan (Implant scheduled for 2/24/05) If you do experience tinnitus Stan, it will most likely > be temporary (though there are exceptions as several people on this list can > testify) and only experienced when your speech processor is off. > > > Implanted: 12/22/04 Activated: 1/18/05 > Deafblind/Postlingual > BTE hearing aid user 20 years > Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Moses, That’s a true blessing when it happens. I remember thinking that if I gained nothing more than the silence of no tinnitus from my implant, I would be happy. Of course, that wasn’t really the truth but I know what a relief it is when the tinnitus fades after the activation. I wish it could happen for everyone. Alice • I just realise that my tinnitus has been gone since November, and I had it for several months, and it was most annoying!! My CI implant certainly turned the trick!! WOW!! Moses> -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 265.8.4 - Release Date: 2/1/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 Ann I have had the ringing since I was a teenager (45 now) I am used to it, don't think it will ever go away. It doesn't affect hearing others though. I read some where the Shatner has tinnitus and got a special hearing aid with " white noise " that helped with his misery. Don't know what the device was called. Ann Prow <aprow@...> wrote: With all the talk about hearing loss, I was wondering if anyone has had any success in getting rid of tinnitus - ringing in my ears. I have had this problem with long term undiagnosed Lyme and even with treatment the last 3 years, it only has gotten worse -louder. It is now affecting my hearing cause I just cannot hear things people are saying. Thank you again for your help -however you can, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 Hi Ann, My husband has had tinnitus for years with late stage lyme. We did not associate it with the lyme, we thought it was due to many years of loud machinery. He is a contractor and always using something loud. He said is would be non stop all the time. My husband has been using a serious nutritional protocol with glyconutrients for 1 year, I have been using it even longer. He said his tinnitus is only on occaison and not very bad, so it is obviously not a permananent thing. I never had it at all. We have never taken any abx except for the very first script right after bullseye rash. Ann Prow wrote: > > > With all the talk about hearing loss, I was wondering if anyone has had any > success in getting rid of tinnitus - ringing in my ears. I have had this > problem with long term undiagnosed Lyme and even with treatment the last 3 > years, it only has gotten worse -louder. It is now affecting my hearing > cause I just cannot hear things people are saying. > Thank you again for your help -however you can, > Ann > Quote Link to comment Share on other sites More sharing options...
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