Guest guest Posted December 20, 2010 Report Share Posted December 20, 2010 My LLMD told me that tinnitus might not resolve, even after successful treatment with ABXs. Mine has become worse over the last couple months (I stopped ABXs in mid-July after a year). As it crescendos it brings on a host of neuro symptoms and fatigue. I get pressure and itching in my inner ears when it gets bad. I think it's one of the most common symptoms of neuro Lyme. [ ] Re: 's story & questions Date: Sunday, December 19, 2010, 6:24 AM > > The only treatment experience that ever affected my tinnitus was the use of a PEMF machine. people report the most diverse treatments for getting rid of tinnitus; but reality is that despite lots of research, there is NO proven treatment. Usually the problem will disappear or decrease over time, irrespective of what you do. While there are no proven treatments, there are quite a few proven causes for tinnitus (e.g. certain drugs). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2010 Report Share Posted December 21, 2010 > > I get pressure and itching in my inner ears when it gets bad. Do you also get this weird effect where your eardrums (?) will pulse, as if you are standing in a high speed elevator and the pressure is building up in the ear? At first I thought this was an effect of blood pressure or maybe the large trigeminus nerve on the inner ear, but the beating frequency is different from my heart rate. I read somewhere that it can be caused by (permanent) damage to the inner ear, as a result of infection/inflammation. Just after my ABX course the effect was really bad, it also caused a feeling of choking. My MD doesn't know what it is. While my tinnitus is mostly gone nowadays, the pressure effect on the eardrums still comes and goes (possibly gets worse when I feel bad or stressed). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 > This is great . My husband has tinnitus and he, as you know, is not a believer in EHS. Tinnitus DOES seem to be related to the mobilization of toxins. I normally do NOT have ringing ears, however I regularly do short rounds of heavy metal detox using alpha lipoic acid. After these rounds, my ears are usually ringing LOUDLY. It is known that after these rounds, toxins are being redistributed throughout the body (rather than exiting the body). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Someone told me that it could be metal toxification as well. Loni From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 9:55 AM Â > This is great . My husband has tinnitus and he, as you know, is not a believer in EHS. Tinnitus DOES seem to be related to the mobilization of toxins. I normally do NOT have ringing ears, however I regularly do short rounds of heavy metal detox using alpha lipoic acid. After these rounds, my ears are usually ringing LOUDLY. It is known that after these rounds, toxins are being redistributed throughout the body (rather than exiting the body). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Loni, you're right, that's also a possibility. If someone is heavy metal toxic, I might try the Body Ecology Diet. It's all about avoiding dairy & eating strictly fermented foods (young coconut kefir, fermented grains, sauerkraut) etc. It's used for kids w/ autism, but as probiotics aid detox pathways, the heavy metals seem to chelate themselves " naturally " after 6 months or so on this diet. P.S. DO NOT take DMPS or EDTA. My Lyme doc, who is a D.O., has seen many get permanent brain damage from taking these, probably b/c they fail to chelate the metals out of the nervous system (CNS), & also they just redistribute the metals in the gut to other areas in the body. More & more, alternative practitioners are finding that the best ( & possibly only effective) way to get rid of metals is to have a very strict diet focused around detox, b/c such a diet makes your body better able to process the metals & other toxins. Ex's: Body Ecology Diet, Dr. Rau's alkaline diet, or the one outlined in Minding My Mitochondria by Dr. Wahl. From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 9:55 AM  > This is great . My husband has tinnitus and he, as you know, is not a believer in EHS. Tinnitus DOES seem to be related to the mobilization of toxins. I normally do NOT have ringing ears, however I regularly do short rounds of heavy metal detox using alpha lipoic acid. After these rounds, my ears are usually ringing LOUDLY. It is known that after these rounds, toxins are being redistributed throughout the body (rather than exiting the body). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 > P.S. DO NOT take DMPS or EDTA. I suspect your are referring to large amounts of DMPS or EDTA via IV? Taking small amounts of these substances should be fine. People using the Andy Cutler protocol often report improvement by taking tiny (5mg) amounts of DMPS every 8 hours. And some people report improvements via IV, although this can definitely be dangerous. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Nope, my Lyme doc said don't take them in ANY form. If you're electro-sensitive, I wouldn't take the risk, even though DMPS & EDTA have helped many people. From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 2:28 PM  > P.S. DO NOT take DMPS or EDTA. I suspect your are referring to large amounts of DMPS or EDTA via IV? Taking small amounts of these substances should be fine. People using the Andy Cutler protocol often report improvement by taking tiny (5mg) amounts of DMPS every 8 hours. And some people report improvements via IV, although this can definitely be dangerous. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 > Nope, my Lyme doc said don't take them in ANY form. Okay, well, that's one doctors opinion... unfortunately, there are as many doctor's opinions as there are doctors... at this point, I don't really trust any of them... Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 I totally agree with you Elysia about detoxing but man it is hard to stick to a very strict diet as such. My husband is a huge milk & cheese consumer & he would never give those things up. Â Just sayin! Loni From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 9:55 AM Â > This is great . My husband has tinnitus and he, as you know, is not a believer in EHS. Tinnitus DOES seem to be related to the mobilization of toxins. I normally do NOT have ringing ears, however I regularly do short rounds of heavy metal detox using alpha lipoic acid. After these rounds, my ears are usually ringing LOUDLY. It is known that after these rounds, toxins are being redistributed throughout the body (rather than exiting the body). Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Probably depends on your detox system and what degree of damage has been done. For most of us it is pretty bad I would imagine.  Wouldn't that be stronger or more harsh than ALA? I know even that is difficult for me!  Loni From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 11:28 AM  > P.S. DO NOT take DMPS or EDTA. I suspect your are referring to large amounts of DMPS or EDTA via IV? Taking small amounts of these substances should be fine. People using the Andy Cutler protocol often report improvement by taking tiny (5mg) amounts of DMPS every 8 hours. And some people report improvements via IV, although this can definitely be dangerous. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 Yes I have trouble trusting docs as well but at least this one believes that EHS is real! Loni From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 11:59 AM Â > Nope, my Lyme doc said don't take them in ANY form. Okay, well, that's one doctors opinion... unfortunately, there are as many doctor's opinions as there are doctors... at this point, I don't really trust any of them... Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2011 Report Share Posted June 10, 2011 > Wouldn't that be stronger or more harsh than ALA? I know even that is difficult for me! Generally people find DMPS more tolerable than ALA. This is because ALA is both fat and water soluble, so it can draw out toxins from everywhere within the body. DMPS is only water soluble, so it can only get at SOME toxins in the body. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2011 Report Share Posted June 11, 2011 There is a cottage cheese detox diet, Loni!  From: Marc <marc@...> Subject: Re: Tinnitus Date: Friday, June 10, 2011, 9:55 AM  > This is great . My husband has tinnitus and he, as you know, is not a believer in EHS. Tinnitus DOES seem to be related to the mobilization of toxins. I normally do NOT have ringing ears, however I regularly do short rounds of heavy metal detox using alpha lipoic acid. After these rounds, my ears are usually ringing LOUDLY. It is known that after these rounds, toxins are being redistributed throughout the body (rather than exiting the body). Marc Quote Link to comment Share on other sites More sharing options...
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