Re: Help with Neuro Lyme Symptoms

[Guest guest]

Hi ,

 

I myself do not suffer from this. But my friend who I met on a lyme board does.

She cannot feel the sensation to void (urinate or bowel movement). She has to

listen for when she is done. she also does not experience pain or emotions. She

describes it as living in the third dimension.

 

So far she has not improved on anything. I just wanted to let you know that you

are not alone with these sx.

 

Rhonda   " The Best Is Yet To Come "

From: kmwmar <kmwmar@...>

Subject: [ ] Help with Neuro Lyme Symptoms

Date: Tuesday, December 16, 2008, 2:00 AM

Hi everyone,

I have been a member for a while, but have not posted much. I have

read 's book and found it a source of information.

In particular, wondering if anyone here suffered from sensory

neuropathy. Mine is pretty bad. My lower legs have lost all sensory

impulses and my arms are " abnormal " on a nerve conduction study.

THe neurologist has checked for MS, LUPUS, B-12 deficiency, Folic

acid, Electrolytes, and did a albumin protein electrophoresis

(whatever that is). ... He can't find anything. I had a MRI and

awaiting those results.

In particular, would anyone have any knowledge of what herbs are best

for this? It is Lyme because I was bit by several ticks in my life

and I do have numerous other Lyme symptoms but this sensory

neuropathy has prevented me from working.

Please help.

Thank you for listening.

[Guest guest]

St. 's Wort is specific to nerve endings - rebuilding the myelin

sheath, in particular.

A

Boston

kmwmar wrote:

> In particular, wondering if anyone here suffered from sensory

> neuropathy. Mine is pretty bad. My lower legs have lost all sensory

> impulses and my arms are " abnormal " on a nerve conduction study.

> In particular, would anyone have any knowledge of what herbs are best

> for this? It is Lyme because I was bit by several ticks in my life

> and I do have numerous other Lyme symptoms but this sensory

> neuropathy has prevented me from working.

[Guest guest]

Thank you so much . 

 

 What is really strange is that the electro nerve conduction test

indicated muscles are perfectely NORMAL

 

Sensory pathways: ZERO SIGNAL  .... I mean not EVEN a diminished signal

                                                         rather NO signal at all

 

He said that he was able to say with certainity it was not the

demyelinating kind of neuropathy? 

 

It can ONLY be Lyme or metal poisening

(cuz that is all that I could find that would cause this)

 

Labs normal

Not MS

Not LUPUS

Not Nutritional Problem

NOT ANYTHING!

 

Doctors these days can be so uncaring.

Very frustrating

and now I am fired from my job

> In particular, wondering if anyone here suffered from sensory

> neuropathy. Mine is pretty bad. My lower legs have lost all sensory

> impulses and my arms are " abnormal " on a nerve conduction study.

> In particular, would anyone have any knowledge of what herbs are best

> for this? It is Lyme because I was bit by several ticks in my life

> and I do have numerous other Lyme symptoms but this sensory

> neuropathy has prevented me from working.

[Guest guest]

Thank you Rhonda,

 

I wonder if this individual you mentioned had this start in

her feet/legs and hand/arms like mine?  If that is what is

in store for me than I can't deal.

 

I already can't deal trying to support myself at nearly 50 years

of age and can't work.  I learned my benefits and job will end

the day after Christmas.

 

I'd been off work since September and no income, so I am so

frustrated that my daughter wants me to be alive, yet it is just

to darn hard to remain alive.  Death would be welcome right now.

 

She lives a thousand miles away.  I hate being an invalid.  I guess

it's off to the social service agency's.  I can't think what else to do.

 

The certified letter came today telling me I have NOTHING SECURE

anymore.

From: Rhonda Nielsen <feelfit59@...>

Subject: Re: [ ] Help with Neuro Lyme Symptoms

Date: Tuesday, December 16, 2008, 4:12 PM

Hi ,

 

I myself do not suffer from this. But my friend who I met on a lyme board does.

She cannot feel the sensation to void (urinate or bowel movement). She has to

listen for when she is done. she also does not experience pain or emotions. She

describes it as living in the third dimension.

 

So far she has not improved on anything. I just wanted to let you know that you

are not alone with these sx.

 

Rhonda   " The Best Is Yet To Come "

[Guest guest]

>

>

> Hi everyone,

>

> I have been a member for a while, but have not posted much. I have

> read 's book and found it a source of information.

>

> In particular, wondering if anyone here suffered from sensory

> neuropathy. Mine is pretty bad. My lower legs have lost all sensory

> impulses and my arms are " abnormal " on a nerve conduction study.

>

> THe neurologist has checked for MS, LUPUS, B-12 deficiency, Folic

> acid, Electrolytes, and did a albumin protein electrophoresis

> (whatever that is). ... He can't find anything. I had a MRI and

> awaiting those results.

>

> In particular, would anyone have any knowledge of what herbs are best

> for this? It is Lyme because I was bit by several ticks in my life

> and I do have numerous other Lyme symptoms but this sensory

> neuropathy has prevented me from working.

>

> Please help.

> Thank you for listening.

>

>

Hi -

I have severe neuro-Lyme but instead of blunting sensory input, my

species amplifies every nerve sensory input. Without Fent patches I

couldn't make it through the day! So the first thing I try to do each

day is meditate and focus on my affirmations which may not seem like

much but it really helps me with my positive outlook which seems light

years away many, many days. Here are a couple favorites:

" THE MOST HANDICAPPED PERSON IN THE WORLD IS A NEGATIVE THINKER "

OR

" LIFE IS AN EXPRESSION OF ALL YOUR THOUGHTS "

In addition, there is a product you can get that is available through

health stores but you will find my best source in my free ebook " Lyme

Combat II " you can download at www.lymediseaseresource.com

Blessings!

Jenna

[Guest guest]

Thank you Heidi,

 

I do have cats claw.  I just never took it faithfully.

 

I will start right away.  I need to get some tumeric.

 

SO you legs are no longer numb?  That is so encouraging!

My hands do tingle too.

 

This Lyme sucks and MD's don't want to help.

From: Ambitionn01@... <Ambitionn01@...>

Subject: [ ] Re:Help with Neuro Lyme Symptoms

Date: Wednesday, December 17, 2008, 12:45 PM

:

I have neuro symptoms. I think Turmeric helps a lot. I think Samento

(Cat's Claw) helped a lot. I can't remember what else, but I take a hodge-podge

of things to kill pathogens and detox. I am doing lots better. I no longer

have leg numbness, but still have finger tingles and such, and I have poor

endurance and strength still. I live like I am normal, but my strength is much

less than what it used to be in that my muscles get tired easily. I can

clean my house, but I could not do yard work for a living.

Love and prayers,

Heidi N

[Guest guest]

Hi from Lymeover:

 

Try taking alpha lipoic acid and Guto kola and lots of fish oil.  I take lithium

occasionally now.  I too live almost normal, but I watch what I eat.  When I

want chololate I know the lyme is growing so I know to fast white anything

more.  I don't eat wheat or milk or peanuts or mushrooms anymore.  For me that

helped.  I no longer an aping out with suppliments.  To many suppliments slow

down my digestive processes

 

Sincerely and Merry merry

beleiveing for us all to ber touched by God's hand

Lymeover and out

From: kmwmar <kmwmar@...>

Subject: Re: [ ] Help with Neuro Lyme Symptoms

Date: Wednesday, December 17, 2008, 9:58 AM

Thank you Heidi,

 

I do have cats claw.  I just never took it faithfully.

 

I will start right away.  I need to get some tumeric.

 

SO you legs are no longer numb?  That is so encouraging!

My hands do tingle too.

 

This Lyme sucks and MD's don't want to help.