Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Hi Sheryl, I'd be careful if I where you .. I had really bad brain/neuro symptoms which actually occured as an attack, dizzy .. totally unstable and huge weight gain .. the neuro bit was scary .. heck it all was and it lasted a long time .. until I had my heart attack. If your immune system is really reactive, it makes your blood thick (this is common in any one that has had lyme or any disease state for a period of time) .. with thick blood your bod is barely functioning .. any " good " Lyme doc will have get a Hyper coagulation Panel run, typically the best is through Hemex Labs in Phx, AZ .. look them up online .. they have lyme info .. I think their tests change through advanced technology etc. The standard treatment for Hypercoagulation is low dose heparin, but keep in mind 20% of the population is allergic or reactionary to Heparin .. and my guess us Lymie's would fit that profile with parts of our immune system over active and some parts under active. Anyway, that was the case with me, I tried Low Molecular Weight Heparin too, just thinned my syrum (watery part of blood) .. reg heparin actually made my blood thicker !! .. so no good doc'a around, I had to research natural blood thinners .. (even plavix after my Almost Fatal heart attack was not enough) .. I take a lot of sups just to thin my blood .. they all help .. but I imagine our immune system is at varied states at different times so, it helps, but is never going to be normal. Thing is with thick blood over time, even before it forms deposits on our arteries and blood vessals, it inhibits EVERYTHING from moving in and out of blood stream as it should .. now keep in mind all or gland, organs, EVERYTHING in our body depends on the transfer of substances in and out of our blood stream, all functions !! And, this is so poorly addressed, its just unreal .. just like most others aspects of Lyme and those whom are suppose to be " Treating it " !! Nothing flows through or functions as it should .. we have so many checks and balances in most body functions, that some over produce to try and compensate for signals its not getting, etc .. some under produce period .. explaining many of our symptoms. Lyme is destructive .. just how directly destructive I havent a clue .. but would like to know.. Any treatments are not going to be as effective either.... Things I take to thin my blood (keep in mind Ive had Lyme since birth and I also have a microscope to monitor my blood .. cheap on ebay ..just basic at 5000x .. only indication that its to thin is bruising easily .. so I cute back a few days. Vit E is actually one of the strongest blood thinners, I started at 1000mg .. but am now taking 600ng w/selenium it it. But, I do try and get the full spectrum of Natural Vit E with all the Alpha and Beta, might be others, cant recall .. unless I find it on sale, I make do .. Nattokinae is also a good one, derived from fermented soy, an age old one .. and I imagine if I had the real fresh stuff from china I wouldnt have to take 3 different kinds .. most these I find a sale and stock up. (compare strengths in FU's) Bromelain 1000mg I think .. (Lucky Vitamins decent prices on most things. I also take Niacin flush free (helped stop my heart palps .. but my Blood Pressure just wont be controlled .. even on beta blockers, vessal dialators and plavix and everything else, its still 10 to 40 points to high on both sides.. This is a life saver here .. pain .. Quercetin .. all these sup's have keep me off heavy pain killers !! I tried vicodine, the high dose one .. and it didnt touch my bone/joint pain !! So if I followed the typical routine .. theyd have me on a patch or something really strong .. Im trying to get well, not more spacie !! I also take 2 1000mg vit e twice a day (most these I take twice a day) I slack up on the vit e half the time and only take it once a day.. I take Ginger Capsules, which like most of these are anti- inflammitories..and is also a digestive/stomach aid.. I take a good B complex which is Very Important and a good Daily (thought I slack on these) I do take Lechithin twice daily I take Magnesium Malate as its part of the ATP/Kreb energy cycle and Im trying to get at least some energy !! I take Glucoamine and chrondroitin(sp) .. slack on this too.. ... and many others but those are the major ones except for IDEBENONE .. great stuff !! (I found this because Im reactionary to Q-10, and this is a synthetic anolog of Q-10) I get the pure powdered stuff from a guy in england until I can get connections in china ( I have one, but I dont care for the way he does biz .. and it makes me uncomfortable enough not to order from the guy in china because you have to buy a lot at a time, transfer money with no assurance what so ever .. even though its the same guy that the guy in england uses) .. I tried some stuff in the states, didnt work and looked at it under a microscope and didnt look like Idebenone at all .. makes me wonder just how much of what I take is not real, fillers or has lost a lot of its effectiveness from age, over processing etc etc.. Healthy people get a Natural energy buzz from it, I just might get some energy period if I push myself .. some times at least I can have some energy with Idebeone .. research it .. if you want to try it ask me and Ill give you the guys info in england .. its in pure powder form .. I know what he has is good. Good luck, I wish more people would read this, or I could direct more people whom have only followed the new version of Modern Medicine .. theres just so much more, they should and do work together .. and its time doc's accept this fact !! Many things I dont know still, but many things I do as well. Im totally not up on natural ways of killing Lyme .. thats what lead me here. And my thought and belief is that there are NO CURES for Lyme .. once its sets up camp, itll run for the mountains when the calvery comes, then venture back out at some point in time, over and over again .. until science has found a better way .. our blood system is just not capable of transporting anything to kill Lyme in Cyst Form every where it sets up, it can go ANYWHERE .. and most more likely to be in low oxygen areas/same as poor blood flow areas !! So, I think initial treatment depending on the individual and treatment now and then depending on the individual, Im still experimenting on that one...but it would vary on the individual as well. I wish you all Happiness and hope you have real support factors in your life .. and hopefully they fill voids in all aspects... Quote Link to comment Share on other sites More sharing options...
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