Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 My LLMD prescribed recently a high dose of Doxy because my symptoms are getting worst. He said we need to bring down the bacterial load to lessen the symptoms. I was diagnosed with Lyme four years ago. (positive western blot) I found the tick on me and I had a round rash followed by excruciating knee pain and flew like symptoms. I have never taken antibiotics to treat Lyme. I started with a natural antibiotic called Allicin with many supplements. I then added Hydrotherapy (fever treatments) with great improvement. I did this for two years and then I switched to CS and Hydrotherapy for one year. I went back to the Allicen with supplements for six months and I am now on Buhner Herbal Protocol or the last four months and I have been at full strength for four weeks. I make a decoction tea with the herbs and drink 4oz. three times a day. I have made steady improvement, although it has been more like one step back and two forward; until about a year ago my symptoms have leveled off and even worsened. My symptoms are mainly neurological and it has been described it as Nero psychiatric Lyme disease. I feel edgy, detached, brain irritation, depersonalization, paranoia. . . . On a bad day it is like who put the LSD in the punch. These words do not begin to accurately describe the psychological pain I am experiencing. I have wanted to chop off my fingers and toes and throw myself through the glass window to the street below. This lack of improvement and worsening symptoms is why my LLMD has recently prescribed high dose of Doxy. I am concerned about adding Doxy (antibiotics) because of the side effects and it’s known effect to drive the spirochetes deeper into the muscle tissue giving only temporary relief of symptoms creating greater problems in the future. I have been also learning on this site that there could be something going on behind the Lyme that is the reason symptoms are worsening and persisting; such as damage to the immune system. That the conventional focus to kill the bacteria is beginning to change to the need for repair and support of the immune system. Is there a more specific scientific argument that I could give to my LLMD either against or in support of antibiotic use? Thank you for your comments. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011  My LLMD prescribed recently a high dose of Doxy because my symptoms are getting worst. He said we need to bring down the bacterial load to lessen the symptoms. I was diagnosed with Lyme four years ago. (positive western blot) I found the tick on me and I had a round rash followed by excruciating knee pain and flew like symptoms. I have never taken antibiotics to treat Lyme. I started with a natural antibiotic called Allicin with many supplements. I then added Hydrotherapy (fever treatments) with great improvement. I did this for two years and then I switched to CS and Hydrotherapy for one year. I went back to the Allicen with supplements for six months and I am now on Buhner Herbal Protocol or the last four months and I have been at full strength for four weeks. I make a decoction tea with the herbs and drink 4oz. three times a day. I have made steady improvement, although it has been more like one step back and two forward; until about a year ago my symptoms have leveled off and even worsened. My symptoms are mainly neurological and it has been described it as Nero psychiatric Lyme disease. I feel edgy, detached, brain irritation, depersonalization, paranoia. . . . On a bad day it is like who put the LSD in the punch. These words do not begin to accurately describe the psychological pain I am experiencing. I have wanted to chop off my fingers and toes and throw myself through the glass window to the street below. This lack of improvement and worsening symptoms is why my LLMD has recently prescribed high dose of Doxy. I am concerned about adding Doxy (antibiotics) because of the side effects and it’s known effect to drive the spirochetes deeper into the muscle tissue giving only temporary relief of symptoms creating greater problems in the future. I have been also learning on this site that there could be something going on behind the Lyme that is the reason symptoms are worsening and persisting; such as damage to the immune system. That the conventional focus to kill the bacteria is beginning to change to the need for repair and support of the immune system. Is there a more specific scientific argument that I could give to my LLMD either against or in support of antibiotic use? Thank you for your comments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hi ,    You sound very similar to the neuro effects I have had with Lyme. Doxycycline is very similar to the tetracycline compounds already found in certain herbs in the Buhner protocol.I would highly reccomend getting on ABX if your LLMD reccomends. Make sure he is aware of the herbs you continue to take as they can either add to or interact with the ABX you take.I am following up a 1 1/2 year ABX protocol with the Buhner protocol now added in. The improvement has been like a stock market with strong ups and downs, but the trend is better. Most of my neuro symptoms are abated. Hope this helps and reach out anytime.     Jeff From: Libby <asphaltnation@...> Subject: [ ] Re:Worsening Symptoms Date: Tuesday, January 11, 2011, 3:02 PM   My LLMD prescribed recently a high dose of Doxy because my symptoms are getting worst. He said we need to bring down the bacterial load to lessen the symptoms. I was diagnosed with Lyme four years ago. (positive western blot) I found the tick on me and I had a round rash followed by excruciating knee pain and flew like symptoms. I have never taken antibiotics to treat Lyme. I started with a natural antibiotic called Allicin with many supplements. I then added Hydrotherapy (fever treatments) with great improvement. I did this for two years and then I switched to CS and Hydrotherapy for one year. I went back to the Allicen with supplements for six months and I am now on Buhner Herbal Protocol or the last four months and I have been at full strength for four weeks. I make a decoction tea with the herbs and drink 4oz. three times a day. I have made steady improvement, although it has been more like one step back and two forward; until about a year ago my symptoms have leveled off and even worsened. My symptoms are mainly neurological and it has been described it as Nero psychiatric Lyme disease. I feel edgy, detached, brain irritation, depersonalization, paranoia. . . . On a bad day it is like who put the LSD in the punch. These words do not begin to accurately describe the psychological pain I am experiencing. I have wanted to chop off my fingers and toes and throw myself through the glass window to the street below. This lack of improvement and worsening symptoms is why my LLMD has recently prescribed high dose of Doxy. I am concerned about adding Doxy (antibiotics) because of the side effects and it’s known effect to drive the spirochetes deeper into the muscle tissue giving only temporary relief of symptoms creating greater problems in the future. I have been also learning on this site that there could be something going on behind the Lyme that is the reason symptoms are worsening and persisting; such as damage to the immune system. That the conventional focus to kill the bacteria is beginning to change to the need for repair and support of the immune system. Is there a more specific scientific argument that I could give to my LLMD either against or in support of antibiotic use? Thank you for your comments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Jeff, What was the extent of your disease in terms of symptoms & time? Jazzman [ ] Re:Worsening Symptoms Date: Tuesday, January 11, 2011, 3:02 PM My LLMD prescribed recently a high dose of Doxy because my symptoms are getting worst. He said we need to bring down the bacterial load to lessen the symptoms. I was diagnosed with Lyme four years ago. (positive western blot) I found the tick on me and I had a round rash followed by excruciating knee pain and flew like symptoms. I have never taken antibiotics to treat Lyme. I started with a natural antibiotic called Allicin with many supplements. I then added Hydrotherapy (fever treatments) with great improvement. I did this for two years and then I switched to CS and Hydrotherapy for one year. I went back to the Allicen with supplements for six months and I am now on Buhner Herbal Protocol or the last four months and I have been at full strength for four weeks. I make a decoction tea with the herbs and drink 4oz. three times a day. I have made steady improvement, although it has been more like one step back and two forward; until about a year ago my symptoms have leveled off and even worsened. My symptoms are mainly neurological and it has been described it as Nero psychiatric Lyme disease. I feel edgy, detached, brain irritation, depersonalization, paranoia. . . . On a bad day it is like who put the LSD in the punch. These words do not begin to accurately describe the psychological pain I am experiencing. I have wanted to chop off my fingers and toes and throw myself through the glass window to the street below. This lack of improvement and worsening symptoms is why my LLMD has recently prescribed high dose of Doxy. I am concerned about adding Doxy (antibiotics) because of the side effects and it’s known effect to drive the spirochetes deeper into the muscle tissue giving only temporary relief of symptoms creating greater problems in the future. I have been also learning on this site that there could be something going on behind the Lyme that is the reason symptoms are worsening and persisting; such as damage to the immune system. That the conventional focus to kill the bacteria is beginning to change to the need for repair and support of the immune system. Is there a more specific scientific argument that I could give to my LLMD either against or in support of antibiotic use? Thank you for your comments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi Jay,     I have had Lyme for approx 8-10 years misdiagnosed as LouGehrigs, MS and other diseases before getting correctly treated for Lyme.( now under treatment for about 2 years..so approx 12 years total or more) I had cognitive issues( memory, facial recognition, number and word processing). I also had neuromuscular control issues with (at it's worst) occassional paralysis and speech problems. I went from competing in occassional triathalons to being stuck on the floor for 1 1/2 hours without being able to call for help. Understand that those sentences describe the worst of it and that their are many symptoms of much less severity that occurred in between. Difficulty walking, fatigue, neuropathic pain roving to different parts of my body, head aches, neck aches, confusion, Bells palsy  and more. I have been on oral antibiotics for over 1 1/2 years on a rotating schedule. I am not the man i was, but I now struggle to become the man I could be.    I started adding the Buhner protocol as I felt I had plateaued on ABX and needed to change it up again to continue improvement. I understand that given the extent of the damage to me I am unlikely to recover completely(whatever that means) as it is like being in a car accident where you heal, but scar tissue and damage remains. If you want to know more you can check out my blog. I apologize as I have not updated it in a long time. www.jeffslymejournal.blogspot.com   Hope this helps and that everybody finds the recovery they want.     Jeff From: Libby <asphaltnation@...> Subject: [ ] Re:Worsening Symptoms Date: Tuesday, January 11, 2011, 3:02 PM My LLMD prescribed recently a high dose of Doxy because my symptoms are getting worst. He said we need to bring down the bacterial load to lessen the symptoms. I was diagnosed with Lyme four years ago. (positive western blot) I found the tick on me and I had a round rash followed by excruciating knee pain and flew like symptoms. I have never taken antibiotics to treat Lyme. I started with a natural antibiotic called Allicin with many supplements. I then added Hydrotherapy (fever treatments) with great improvement. I did this for two years and then I switched to CS and Hydrotherapy for one year. I went back to the Allicen with supplements for six months and I am now on Buhner Herbal Protocol or the last four months and I have been at full strength for four weeks. I make a decoction tea with the herbs and drink 4oz. three times a day. I have made steady improvement, although it has been more like one step back and two forward; until about a year ago my symptoms have leveled off and even worsened. My symptoms are mainly neurological and it has been described it as Nero psychiatric Lyme disease. I feel edgy, detached, brain irritation, depersonalization, paranoia. . . . On a bad day it is like who put the LSD in the punch. These words do not begin to accurately describe the psychological pain I am experiencing. I have wanted to chop off my fingers and toes and throw myself through the glass window to the street below. This lack of improvement and worsening symptoms is why my LLMD has recently prescribed high dose of Doxy. I am concerned about adding Doxy (antibiotics) because of the side effects and it’s known effect to drive the spirochetes deeper into the muscle tissue giving only temporary relief of symptoms creating greater problems in the future. I have been also learning on this site that there could be something going on behind the Lyme that is the reason symptoms are worsening and persisting; such as damage to the immune system. That the conventional focus to kill the bacteria is beginning to change to the need for repair and support of the immune system. Is there a more specific scientific argument that I could give to my LLMD either against or in support of antibiotic use? Thank you for your comments. Quote Link to comment Share on other sites More sharing options...
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