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Re: OT: painful soles-

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,

I seem to only have Lyme (through testing & symptoms) and I was diagnosed

(finally after 6 years) because of mood swings and crying jags. Psychiatric

symptoms are very common with late stage Neuro Lyme. In fact one of the

foremost LLMDs is a Neuro-Psychiatrist. And Buhner is an herbalist and

a psychotherapist.

I used to get anxiety attacks and severe depression (especially on IV

rocephin). I was convinced to go on an antidepressant by LLMD. Hope to wean

myself this spring.

Would you consider going on Rx for anxiety and mood swings? Would melatonin

help with insomnia?

Wishing you better days and nights ahead

Kim

[ ] painful soles

Sent by:

>

> you maybe right in many things.

> I am 36 years old now and I am sure that I have been ill since 2007 but

that

> time I had minor problems only but very specific to bart or lyme,

painful soles,

> especially in the morning, profound fatigue, sleep disorders and so on.

I don't think fatigue, sleep disorders are specific enough to point to

lyme - they can occur with many diseases (including vitamin deficits and

several other infections).

Don't know about painful soles, depending on where the pain is it seems to

be specific for Bart indeed.

I have had painful soles for a long time myself, also mostly in the

morning. It is important where the pain is, some sites (pain radiating

from joints, tendons) point to Borrelia, and others to Bart. I have been

tested two times for Bart infection, but nothing has been found, I only

have a proven Borrelia (garinii) infection.

My soles look weird when standing on a hard floor for a short time.

Initially the soles of hand and feet got very red when light pressure was

applied. Same symptom for the rest of my skin with even light pressure.

This problem started right after ABX treatment with doxy and plaquenil;

the redness gradually got less intense when I stopped the plaquenil

treatment.

After standing for a minute or so it looks like all the blood in my soles

has disappeared and the soles looks mostly yellow, but with a very

irregular, blotchy pattern. The soles get completely flat and if I'm not

careful they really 'stick' to the bathroom floor. Looks pretty scary, but

when sitting down it returns to normal quickly, within a few minutes.

After about 4 years the pain is now mostly gone, but it sometimes appears

again for some weeks, often in a slightly different part of the pads. The

effect of blood (?) disappearing when standing etc. is still there. I

don't know what it is and doctors don't know either, they don't seem

interested in figuring out. I'm guessing something is wrong with the blood

flow in the small veins, damage to the autonomous nervous system or the

smallest veins maybe (could be caused by both Bart and Bb).

For the pads on my hands/fingers this used to be a severe problem, I was

unable to handle small tools or knives, forks etc. without damaging my

pads. This has improved, but I still have to be careful and use leather

gloves when I have to use some force.

Does that description sound familiar, or do you only have pain in the pads

of the feet?

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written to be used, and cannot be used, by the recipient for the purpose of

avoiding penalties that may be imposed under the Internal Revenue Code or

applicable state or local tax law provisions.

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THis is what I started to have after some time after infection-strong anxiety,

panics so I was ending at ER and was so depressed that I was not able to wake up

from bad. They thought all my problems are from depression so they put me on

Triticco which made my life even more missearable and it worsened everything. I

had more regular panicks on it- I took it for 4 months as I was continuously

told that we have to wait till AD start to work. Then they changed for

MIrtazapin which brought some relief and at least I cold sleep.

Then it was fine for some time so I quit AD and felt ok without anxiety and

panics. All got worse again on ABX, I thought its side effect of quinolones

which is pretty common with this medicine. Now I sometimes take xanax which

helps with chest pain but I am thinking again to go on AD as beeing in such a

mood all the time will not help to cure anything. It just makes things worse, I

think.

But luckily I can sleep well.

Was also thinking to use lithium or any herbs that can help rather then AD.

Will have to see.

________________________________

From: Kim Ovrutsky <KTOvrutsky@...>

Sent: Fri, March 11, 2011 4:11:15 PM

Subject: Re: [ ] OT: painful soles-

,

I seem to only have Lyme (through testing & symptoms) and I was diagnosed

(finally after 6 years) because of mood swings and crying jags. Psychiatric

symptoms are very common with late stage Neuro Lyme. In fact one of the

foremost LLMDs is a Neuro-Psychiatrist. And Buhner is an herbalist and

a psychotherapist.

I used to get anxiety attacks and severe depression (especially on IV rocephin).

I was convinced to go on an antidepressant by LLMD. Hope to wean myself this

spring.

Would you consider going on Rx for anxiety and mood swings? Would melatonin

help with insomnia?

Wishing you better days and nights ahead

Kim

[ ] painful soles

Sent by:

>

> you maybe right in many things.

> I am 36 years old now and I am sure that I have been ill since 2007 but

that

> time I had minor problems only but very specific to bart or lyme,

painful soles,

> especially in the morning, profound fatigue, sleep disorders and so on.

I don't think fatigue, sleep disorders are specific enough to point to

lyme - they can occur with many diseases (including vitamin deficits and

several other infections).

Don't know about painful soles, depending on where the pain is it seems to

be specific for Bart indeed.

I have had painful soles for a long time myself, also mostly in the

morning. It is important where the pain is, some sites (pain radiating

from joints, tendons) point to Borrelia, and others to Bart. I have been

tested two times for Bart infection, but nothing has been found, I only

have a proven Borrelia (garinii) infection.

My soles look weird when standing on a hard floor for a short time.

Initially the soles of hand and feet got very red when light pressure was

applied. Same symptom for the rest of my skin with even light pressure.

This problem started right after ABX treatment with doxy and plaquenil;

the redness gradually got less intense when I stopped the plaquenil

treatment.

After standing for a minute or so it looks like all the blood in my soles

has disappeared and the soles looks mostly yellow, but with a very

irregular, blotchy pattern. The soles get completely flat and if I'm not

careful they really 'stick' to the bathroom floor. Looks pretty scary, but

when sitting down it returns to normal quickly, within a few minutes.

After about 4 years the pain is now mostly gone, but it sometimes appears

again for some weeks, often in a slightly different part of the pads. The

effect of blood (?) disappearing when standing etc. is still there. I

don't know what it is and doctors don't know either, they don't seem

interested in figuring out. I'm guessing something is wrong with the blood

flow in the small veins, damage to the autonomous nervous system or the

smallest veins maybe (could be caused by both Bart and Bb).

For the pads on my hands/fingers this used to be a severe problem, I was

unable to handle small tools or knives, forks etc. without damaging my

pads. This has improved, but I still have to be careful and use leather

gloves when I have to use some force.

Does that description sound familiar, or do you only have pain in the pads

of the feet?

Any U.S. tax advice contained in the body of this e-mail was not intended or

written to be used, and cannot be used, by the recipient for the purpose of

avoiding penalties that may be imposed under the Internal Revenue Code or

applicable state or local tax law provisions.

__________________________________________________________

The information contained in this message may be privileged and confidential and

protected from disclosure. If the reader of this message is not the intended

recipient, or an employee or agent responsible for delivering this message to

the intended recipient, you are hereby notified that any dissemination,

distribution or copying of this communication is strictly prohibited. If you

have received this communication in error, please notify us immediately by

replying to the message and deleting it from your computer.

Notice required by law: This e-mail may constitute an advertisement or

solicitation under U.S. law, if its primary purpose is to advertise or promote a

commercial product or service. You may choose not to receive advertising and

promotional messages from Ernst & Young LLP (except for Ernst & Young Online and

the ey.com website, which track e-mail preferences through a separate process)

at this e-mail address by forwarding this message to no-more-mail@.... If

you do so, the sender of this message will be notified promptly. Our principal

postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst & Young

LLP

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Guest guest

>

> Was also thinking to use lithium or any herbs that can help rather then AD.

you could use St.Janskruid instead (I think it is called St.sworth in

english?). From what I know it is even more effective than the common lithium

based drugs, in doubleblind placebo trials. Take care of conflicts with other

drugs though, this is a herb that you cannot combine with everything.

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Guest guest

Two great website discussion groups for SYMPTOM experiences and

conversation: drerniemurakami.??can't remember...google it and CanLyme.

Both Canadian sites with focus on allopathic HOWEVER there are very civil

and educated people on both of these, and I suggest reading back in time -

like find some threads and read all the postings by that particular

person/response.

Dr. Murakami also will answer questions - NOT on anything that is not

allopathic, but on testing, and other. He works with naturopaths.

Of course these are both sites that are mainly ABX folk, but there are

rifers and some combo folk as well. I have learned a LOT reading these. Best

On Fri, Mar 11, 2011 at 11:04 AM, martin spimr <spimar75@...> wrote:

>

>

> THis is what I started to have after some time after infection-strong

> anxiety,

> panics so I was ending at ER and was so depressed that I was not able to

> wake up

> from bad. They thought all my problems are from depression so they put me

> on

> Triticco which made my life even more missearable and it worsened

> everything. I

> had more regular panicks on it- I took it for 4 months as I was

> continuously

> told that we have to wait till AD start to work. Then they changed for

> MIrtazapin which brought some relief and at least I cold sleep.

> Then it was fine for some time so I quit AD and felt ok without anxiety and

>

> panics. All got worse again on ABX, I thought its side effect of quinolones

>

> which is pretty common with this medicine. Now I sometimes take xanax which

>

> helps with chest pain but I am thinking again to go on AD as beeing in such

> a

> mood all the time will not help to cure anything. It just makes things

> worse, I

> think.

> But luckily I can sleep well.

> Was also thinking to use lithium or any herbs that can help rather then AD.

> Will have to see.

>

>

> ________________________________

> From: Kim Ovrutsky <KTOvrutsky@...>

>

>

> Sent: Fri, March 11, 2011 4:11:15 PM

> Subject: Re: [ ] OT: painful soles-

>

>

> ,

> I seem to only have Lyme (through testing & symptoms) and I was diagnosed

> (finally after 6 years) because of mood swings and crying jags. Psychiatric

>

> symptoms are very common with late stage Neuro Lyme. In fact one of the

> foremost LLMDs is a Neuro-Psychiatrist. And Buhner is an herbalist

> and

> a psychotherapist.

>

> I used to get anxiety attacks and severe depression (especially on IV

> rocephin).

> I was convinced to go on an antidepressant by LLMD. Hope to wean myself

> this

> spring.

>

> Would you consider going on Rx for anxiety and mood swings? Would melatonin

>

> help with insomnia?

>

> Wishing you better days and nights ahead

> Kim

>

>

> [ ] painful soles

> Sent by:

>

>

>

> >

> > you maybe right in many things.

> > I am 36 years old now and I am sure that I have been ill since 2007 but

> that

> > time I had minor problems only but very specific to bart or lyme,

> painful soles,

> > especially in the morning, profound fatigue, sleep disorders and so on.

>

> I don't think fatigue, sleep disorders are specific enough to point to

> lyme - they can occur with many diseases (including vitamin deficits and

> several other infections).

>

> Don't know about painful soles, depending on where the pain is it seems to

> be specific for Bart indeed.

>

> I have had painful soles for a long time myself, also mostly in the

> morning. It is important where the pain is, some sites (pain radiating

> from joints, tendons) point to Borrelia, and others to Bart. I have been

> tested two times for Bart infection, but nothing has been found, I only

> have a proven Borrelia (garinii) infection.

>

> My soles look weird when standing on a hard floor for a short time.

> Initially the soles of hand and feet got very red when light pressure was

> applied. Same symptom for the rest of my skin with even light pressure.

> This problem started right after ABX treatment with doxy and plaquenil;

> the redness gradually got less intense when I stopped the plaquenil

> treatment.

>

> After standing for a minute or so it looks like all the blood in my soles

> has disappeared and the soles looks mostly yellow, but with a very

> irregular, blotchy pattern. The soles get completely flat and if I'm not

> careful they really 'stick' to the bathroom floor. Looks pretty scary, but

> when sitting down it returns to normal quickly, within a few minutes.

>

> After about 4 years the pain is now mostly gone, but it sometimes appears

> again for some weeks, often in a slightly different part of the pads. The

> effect of blood (?) disappearing when standing etc. is still there. I

> don't know what it is and doctors don't know either, they don't seem

> interested in figuring out. I'm guessing something is wrong with the blood

> flow in the small veins, damage to the autonomous nervous system or the

> smallest veins maybe (could be caused by both Bart and Bb).

>

> For the pads on my hands/fingers this used to be a severe problem, I was

> unable to handle small tools or knives, forks etc. without damaging my

> pads. This has improved, but I still have to be careful and use leather

> gloves when I have to use some force.

>

> Does that description sound familiar, or do you only have pain in the pads

> of the feet?

>

> Any U.S. tax advice contained in the body of this e-mail was not intended

> or

> written to be used, and cannot be used, by the recipient for the purpose of

>

> avoiding penalties that may be imposed under the Internal Revenue Code or

> applicable state or local tax law provisions.

> __________________________________________________________

> The information contained in this message may be privileged and

> confidential and

> protected from disclosure. If the reader of this message is not the

> intended

> recipient, or an employee or agent responsible for delivering this message

> to

> the intended recipient, you are hereby notified that any dissemination,

> distribution or copying of this communication is strictly prohibited. If

> you

> have received this communication in error, please notify us immediately by

> replying to the message and deleting it from your computer.

>

> Notice required by law: This e-mail may constitute an advertisement or

> solicitation under U.S. law, if its primary purpose is to advertise or

> promote a

> commercial product or service. You may choose not to receive advertising

> and

> promotional messages from Ernst & Young LLP (except for Ernst & Young

> Online and

> the ey.com website, which track e-mail preferences through a separate

> process)

> at this e-mail address by forwarding this message to no-more-mail@....

> If

> you do so, the sender of this message will be notified promptly. Our

> principal

> postal address is 5 Times Square, New York, NY 10036. Thank you. Ernst &

> Young

> LLP

>

>

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