Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 IGENEX testing > As I posted recently I may have lymes and am persuing more accurate > testing. Has anyone had the IGENEX test done? How accurate is it really? > I read info on their website. > > Phil > I have had testing done both by Igenix and MDLabs of Mt Laurel NJ. Western Blot is no problem. PCR is more difficult- its hard to get a sample that has the DNA you are looking for in it. Igenix is a great lab, the problem is finding the suckers. FYI I had negative PCR for Lyme from Igenixs, positive from MDL, both done on blood. -- _______________________________________________ Get your free email from http://www.mail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 i heard none of test are accurate i keep getting people saying that lyme and cfs are the smae is this true? im trying to find a lyme doc close to me but there are not many. --- Tansy@... wrote: > > IGENEX testing > > > > As I posted recently I may have lymes and am > persuing more accurate > > testing. Has anyone had the IGENEX test done? How > accurate is it really? > > I read info on their website. > > > > Phil > > > I have had testing done both by Igenix and MDLabs of > Mt Laurel NJ. Western Blot is no problem. PCR is > more difficult- its hard to get a sample that has > the DNA you are looking for in it. Igenix is a great > lab, the problem is finding the suckers. FYI I had > negative PCR for Lyme from Igenixs, positive from > MDL, both done on blood. > -- > > _______________________________________________ > Get your free email from http://www.mail.com > > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 I don't know where this idea that the tests are inaccurate keeps coming from, the problem (from a patient's point of view) is that there are a lot of false negatives, especially with the PCR. IGENEX testing > > > > > > > As I posted recently I may have lymes and am > > persuing more accurate > > > testing. Has anyone had the IGENEX test done? How > > accurate is it really? > > > I read info on their website. > > > > > > Phil > > > > > I have had testing done both by Igenix and MDLabs of > > Mt Laurel NJ. Western Blot is no problem. PCR is > > more difficult- its hard to get a sample that has > > the DNA you are looking for in it. Igenix is a great > > lab, the problem is finding the suckers. FYI I had > > negative PCR for Lyme from Igenixs, positive from > > MDL, both done on blood. > > -- > > -- _______________________________________________ Get your free email from http://www.mail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 That sounds inaccurate to me! Yes, it is just a one directional inaccuracy, but still makes the whole thing irritating. Cindi Tansy@... 06/03/01 05:20 PM Please respond to cc: Subject: Re: IGENEX testing I don't know where this idea that the tests are inaccurate keeps coming from, the problem (from a patient's point of view) is that there are a lot of false negatives, especially with the PCR. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Thank you, ! I had these tests run today and sent off to IgeneX. And now I sit and wait. My ND wanted to run the entire panel to be certain I didn't have co-infections so I did that as well. I'm still on Doxy in the interim but reduced the dose to 100 mg twice per day. I was taking 200 mg twice per day but was feeling pretty miserable at that dose. I have an appointment with a LLMD but he's booked until January. Fortunately he is willing to discuss my IgeneX results with my ND when we get them. Kenda On 9/12/08 11:59 AM, " L. Richey, MD, ND " <valerie.richey@...> wrote: > I would recommend the Lyme Western Blot IgG and IgM (two tests) from IGeneX > for starters. You can find out more about IGeneX ant www.igenex.com . > They report ALL Lyme bands. > > Good luck. > > > On Fri, Sep 12, 2008 at 12:17 PM, Maureen Havenner > <havenner@...>wrote: > >> Hi Kenda, >> >> I am just going through the diagnosis stage myself and saw a Lyme >> literate physician in Seattle one week ago. >> >> I had acute Lyme in 2003 after pulling a tick off my leg. I thought I >> did everything " right " . I got onto antibiotics within a few days of >> symptoms appearing (probably 12 days after the bite) and I insisted on a >> test (ELISA) which came back positive and I bullied my west coast >> non-Lyme literate doctor into giving me 4 weeks of antibiotics rather >> than the 2-3 he thought appropriate. >> >> The antibiotics then seemed to do their job. After a few days, I had no >> symptoms for the remainder of the 30 day ABX course and then I continued >> to be well for the next five years before suddenly coming down with >> Lyme-type symptoms last May. >> >> My LLMD told me that I had been undertreated for Lyme in 2003. I was >> allergic to doxycline, so I was given 500 mg of amoxicillin twice a day. >> My LLMD told me that even in 2003 I should have been taking the >> amoxicillin three times a day, not twice, and that LLMD's these days >> feel that much higher levels of ABX in the blood are necessary. >> Therefore, he felt than an appropriate dose of ABX would have been 1,000 >> mg three times a day. >> >> My LLMD feels that the initial ABX knocked down the Lyme so that my >> immune system could take over for a while, but that over time or with an >> unusual stress, or any other event that could lower the immune system >> (in my case it was using topical steroids), the remaining Lyme organisms >> get the upper hand. >> >> So....if you didn't take enough doxycyline for a long enough time, I >> would be very concerned that you have Lyme re-emerging. People who don't >> catch Lyme early (and you are no longer early) need to take ABX for >> longer than a month. >> >> Regarding tests, I will let someone else answer more thoroughly as I am >> not so knowledgeable, but I do know you probably need to get the test >> done at a lab that specializes in Lyme, such as IGeniX. >> >> I hope someone else can answer your question about a LLMD in your area, >> because you will want one! >> >> >> Maureen >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2011 Report Share Posted March 18, 2011 Hello, I posted a while ago asking some questions about Igenex testing. We initially tested negative through one lab, then rested with Igenex. We did the Western Blot, IGM and IGG plus a lyme pcr serum a genomic and plasmid (whatever that means). We were just told that these came back negative as well. Looking at older responses to my first posting, I noticed someone said that if you have the PCR that it is a very small chance that it would come back false negative maybe 5% chance? And someone different said that Igenex has stated that most testing is unreliable. Does this mean the PCR as well? Also, I'm wondering why Igenex would state that their testing is mostly unreliable? Now we're wondering if we should go to another lyme doctor who someone recommended at $500 initial visit and go forward even if we haven't had the positive diagnosis or try another avenue. I guess we're just wondering how likely it is lyme even if we're not getting a positive. Are there other test names someone could provide that we have not done yet that would show the other coinfections or do the tests we've already done cover that? My husband has not complained of migraines as of yet. It's mostly the numbness, pain, burning and cold sensations. Thank you for any responses about this. Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 > > Looking at older responses to my first posting, I noticed someone said that if > you have the PCR that it is a very small chance that it would come back false > negative maybe 5% chance? no, PCR has a very small chance of false positives (certainly below 5%). But the chance of a false negative is pretty big with PCR, could be over 50% depending on the test and sample type (blood, urine, tissue) that was used. > And someone different said that Igenex has stated that > most testing is unreliable. Does this mean the PCR as well? Also, I'm wondering > why Igenex would state that their testing is mostly unreliable? it depends on what you mean with unreliable (there are many factors in this like sensitivity, specificity, repeatability). There is NO lyme test that is 100% reliable, or close to 100%. But that doesn't mean the tests are useless, because the same goes for many medical tests. Some are better than others, and especially a good Borrelia Western Blot (like those from IGeneX) is pretty reliable. You can have Lyme and test negative with all the common lyme tests, but the chances for that are low (like below 5%). > My husband has not complained of migraines as of yet. It's mostly the numbness, > pain, burning and cold sensations. If the complaints didn't start quickly after a tick byte, I would look into other explanations instead of Lyme. The symptoms you mention here have MANY possible causes. With no positive test outcome, the doctor has to judge the situation based on the symptoms only, and maybe can run some other tests to check for possible other causes. Quote Link to comment Share on other sites More sharing options...
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