Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi, all... I'm new to the group and am wondering if anyone else out there has experience with the triple whammy: Lyme + mycotoxicosis (toxic mold poisoning) + MCS I also have Bartonella and ES (electrical sensitivity), but who's counting? Before this, I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami and greater Philadelphia (where I got sick). After nearly dying on several occasions, trying various famous docs, and moving 6 times in 3 states in the last two years in search of a mold-free home (each time they've developed leaks), I have finally found a couple lyme/mold/EI docs willing to try to help me within the framework of my extreme sensitivities, which includes being unable to tolerate abx. I am a little stronger, having gained back 20 pounds after 2 years (at 5'6 " , I went from 130 to 100 in the first 9 weeks of this medical journey and was told there was nothing wrong with me), but still have reactions to most all foods, most all airbornes, and most all chemicals; however, I can now tolerate some supplements and IV nutrients. And I can use a computer again (except during fungal flares which make my EMF sensitivity soar). One of my docs describes me as the " perfect storm, " and is kind enough to do our consults outside because I can't tolerate the offgassing in his office even with a NIOSH/carbon mask. I'm beginning to experiment with Cumanda/Samento, and I've tried some pretty far-out things in the past 2 years, but I'm still open to more, so I'd be grateful for any suggestions/support. In particular, if anyone has enough biochemistry knowledge to figure a way to increase the enzyme acetaldehyde dehydrogenase in the body, that would be great. Healing wishes to all, arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Arlene: Yes, I had severe MCS. I think what has helped me the most is Turmeric and ginger root. Samento helps as well. Anything and everything I do for liver support helps. I like to use supplements made from foods; you can find broccoli sprouts and artichoke in herbal capsules. I also use milk thistle. Cod liver oil helps. I usually herx off of most things, but only at first. Fortunately, I do not react to organic foods, just the unorganic foods. Carpeting is the worst, especially if it is new. I wear a mask (from home depot) if I have to go to the garage or use glues or something that smells. Fresh air or airing out the house does wonders for me. I am getting better slowly. I hear MCS is from the liver being over-whelmed with too much toxin build-up from all the pathogen wastes. All the pathogens keep the body too busy to have any reserves left for toxins in the environment. I am using Grapefruit seed extract right now as a basic pathogen-killer. I am still on Samento as well as the other things I mentioned, plus some more here and there. I had luck with Resveratrol. I just am not on it right now due to it being on the expensive side and trying other things. As much as I felt Cumanda did help with my Bartonella some, it didn't sit well with me. I think it's ok short term, but I did not like it long term. I did well on Smilax. Love and prayers, Heidi N Hi, all... I'm new to the group and am wondering if anyone else out there has experience with the triple whammy: Lyme + mycotoxicosis (toxic mold poisoning) + MCS I also have Bartonella and ES (electrical sensitivity)and ES (electrical Before this, I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami and greater Philadelphia (where I got sick). After nearly dying on several occasions, trying various famous docs, and moving 6 times in 3 states in the last two years in search of a mold-free home (each time they've developed leaks), I have finally found a couple lyme/mold/EI docs willing to try to help me within the framework of my extreme sensitivities, which includes being unable to tolerate abx. I am a little stronger, having gained back 20 pounds after 2 years (at 5'6 " , I went from 130 to 100 in the first 9 weeks of this medical journey and was told there was nothing wrong with me), but still have reactions to most all foods, most all airbornes, and most all chemicals; however, I can now tolerate some supplements and IV nutrients. And I can use a computer again (except during fungal flares which make my EMF sensitivity soar). One of my docs describes me as the " perfect storm, " and is kind enough to do our consults outside because I can't tolerate the offgassing in his office even with a NIOSH/carbon mask. I'm beginning to experiment with Cumanda/Samento, and I've tried some pretty far-out things in the past 2 years, but I'm still open to more, so I'd be grateful for any suggestions/be grate In particular, if anyone has enough biochemistry knowledge to figure a way to increase the enzyme acetaldehyde dehydrogenase in the body, that would be great. Healing wishes to all, arlene **************One site keeps you connected to all your email: AOL Mail, Gmail, and Mail. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 arlene, i'm no chemist but, have u tried the substrates for the enzyme?: NAC, CoA, and NADH and perhaps a try at a low phenol diet? (Test your Tyrosine levels first): http://www.kirkmanlabs.com/ViewProductDetails@Product_ID94 (DOT) aspx https://www.houston-enzymes.com/store/product.php?p=7 & c=1 http://www.enzymestuff.com/nofenolfile.htm http://www.talkaboutcuringautism.org/gfcf-diet/phenols-salicylates-additives.htm http://www.danasview.net/phenol.htm or perhaps trying chelation? may u find joy, ~zeph http://www.genome.jp/dbget-bin/www_bget?enzyme+1.2.1.10 " It is the final enzyme in the meta-cleavage pathway for the degradation of phenols cresols and catechol, converting the acetaldehyde produced by EC 4.1.3.39 into acetyl-CoA [3]. NADP+ can replace NAD+ but the rate of reaction is much slower [3]. " > > Hi, all... > I'm new to the group and am wondering > if anyone > has enough biochemistry knowledge to figure a way to increase the enzyme > acetaldehyde dehydrogenase in the body, that would be > great. > > Healing wishes to > all, > arlene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi Arlene: Yes, I also have the triple problem....my ES is quite severe, I have lymes and don't know if I have any co-infections but I suspect I do - however, I have dental infections (old cavitation sites and root canals which have been surgically cleared but will take some time to get all the infection out) and mold infections throughout my body which I'm workking hard to get rid of. I've made progress with herbs I'm about 50% better from those symptoms but my ES soars....I can't go into grocery stores or any wi-fi type environments....I think the ES is a symptom of the body and immune system having difficulty coping with other " challenges " , which in my case are the lymes and very persistent bowel and jaw infections. I'm working hard to clear up all my problems with help from a naturopath....I am not taking any drugs... I am hopeful that my ES will reduce as I make more progress on the other issues and lymes. Also...for ES, having your house inspected for large sources of emf's and then fixing those, especially in sleeping areas is helpful for me. Stay off the computer as much as possible, I'm here once a week and only briefly..... If you are in Ontario, Canada I can give you the name of someone to consult with who specializes in helping people cope with ES. Please keep in touch on your successes with all of these it is quite a challenge to have ES and lymes together, I'm finding it totally life altering and very challenging as you have to keep track of your symptoms and can't always be sure if it's ES or lymes that is acting up....I'm determined to beat this and get my former good health back. Email me privately if you have more detailed questions about ES. Also, anyone else who is dealing with ES and lymes - it would be great if we could all brainstorm and work on this together....so let's compare notes and research Happy New Year. . Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi - was going through some of the emails tonite and saw this - question for any of you - do any of you react to touching fabric? I am reacting with itching and hives. Have any of you rehabbed yourself back from this? Lyme here, no co's. - Robin In a message dated 12/30/2008 7:57:58 A.M. Pacific Standard Time, Ambitionn01@... writes: Arlene: Yes, I had severe MCS. I think what has helped me the most is Turmeric and ginger root. Samento helps as well. Anything and everything I do for liver support helps. I like to use supplements made from foods; you can find broccoli sprouts and artichoke in herbal capsules. I also use milk thistle. Cod liver oil helps. I usually herx off of most things, but only at first. Fortunately, I do not react to organic foods, just the unorganic foods. Carpeting is the worst, especially if it is new. I wear a mask (from home depot) if I have to go to the garage or use glues or something that smells. Fresh air or airing out the house does wonders for me. I am getting better slowly. I hear MCS is from the liver being over-whelmed with too much toxin build-up from all the pathogen wastes. All the pathogens keep the body too busy to have any reserves left for toxins in the environment. I am using Grapefruit seed extract right now as a basic pathogen-killer. I am still on Samento as well as the other things I mentioned, plus some more here and there. I had luck with Resveratrol. I just am not on it right now due to it being on the expensive side and trying other things. As much as I felt Cumanda did help with my Bartonella some, it didn't sit well with me. I think it's ok short term, but I did not like it long term. I did well on Smilax. Love and prayers, Heidi N Hi, all... I'm new to the group and am wondering if anyone else out there has experience with the triple whammy: Lyme + mycotoxicosis (toxic mold poisoning) + MCS I also have Bartonella and ES (electrical sensitivity)and ES (electrical sensitivity)<WBR> I was a healthy yoga teacher for 15 years in San Francisco, VT, Miami and greater Philadelphia (where I got sick). After nearly dying on several occasions, trying various famous docs, and moving 6 times in 3 states in the last two years in search of a mold-free home (each time they've developed leaks), I have finally found a couple lyme/mold/EI docs willing to try to help me within the framework of my extreme sensitivities, which includes being unable to tolerate abx. I am a little stronger, having gained back 20 pounds after 2 years (at 5'6 " , I went from 130 to 100 in the first 9 weeks of this medical journey and was told there was nothing wrong with me), but still have reactions to most all foods, most all airbornes, and most all chemicals; however, I can now tolerate some supplements and IV nutrients. And I can use a computer again (except during fungal flares which make my EMF sensitivity soar). One of my docs describes me as the " perfect storm, " and is kind enough to do our consults outside because I can't tolerate the offgassing in his office even with a NIOSH/carbon mask. I'm beginning to experiment with Cumanda/Samento, and I've tried some pretty far-out things in the past 2 years, but I'm still open to more, so I'd be grateful for any suggestions/be grateful for any suggestions/<WBR>b has enough biochemistry knowledge to figure a way to increase the enzyme acetaldehyde dehydrogenase in the body, that would be great. Healing wishes to all, arlene ************************<WBR>**One site keeps you connected to all your Gmail, and Mail. Try it now. (_http://www.aol.http://www.http:/ & icid=icid=<WBR>aolc & <WBR>ncid=emlcnt<WBR>nc id_ (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025) ) [Non-text portions of this message have been removed] **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) Quote Link to comment Share on other sites More sharing options...
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