Deb

[Guest guest]

he could try prelief www.prelief.com I thinkt hey give free samples.. and

tummy tamer but they changed thier name to phbalance.. takes acid out of

stuff. I have a bladder disease nad so can't have anything acidic. I am

taking prevacid which is for acid reflux (taking it for tummy but doing no

good but its helping my bladder).. I hvae had no side efects from the stuff

which says A LOT cuz i am very sensitive. Enzymes i think are more for the

intestines than the tummy like they help you digest milk and things that may

be otherise hard to handle nad are absorbed in the intestines. My local

health food store offers mini digestion bottles like for 3.95 for 10 pills

so you can always try. they definately wont hurt him, its just like a

vitimin.

there is also nexium.. those are the biggies for tummy acid nexium and

prevacid.. back in the 90's it was tagament and zantac (they thought I had

ulcers..i had a gallstones)which you can buy over the counter now.. he could

try those too

deb

> Date: Thu, 06 May 2004 04:59:18 -0000

>

> http://www.molocure.com/?site=overture & keyword=molo_cure

>

> _________________________________________________________________

> Mother's Day is May 9. Make it special with great ideas from the Mother's

> Day Guide! http://special.msn.com/network/04mothersday.armx

>

>

>

>

>

[Guest guest]

there is a good test for this--if you feel better drinking lemon

juice than he is not making enough acid ---then those digestive

enzymes would really help him!!!!! I got over my spell of this---it

was terrible!!!!!!!

I'll have to find the info for you---tina

> Tina,

> my fiance has acid reflux - would dig. enz help him?

>

> karen

> ----Original Message Follows----

> From: " tina83862 " <tina83862@y...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: deb

> Date: Thu, 06 May 2004 04:59:18 -0000

>

> http://www.molocure.com/?site=overture & keyword=molo_cure

>

> _________________________________________________________________

> Mother's Day is May 9. Make it special with great ideas from the

Mother's

> Day Guide! http://special.msn.com/network/04mothersday.armx

[Guest guest]

Thank you . You are obviously quite intelligent about this subject and

I would really love to read positive posts from you. I really think you could

help me.

Deb

Deb

I apologize; I don't blame you for feeling this way. I'm not going

to say anything else on the subject. Let's hope that Barbara will

also refrain.

> > > > > > > why does it seem like you are arguing with

me? I

> > > > don't

> > > > > > > understand the point of it. I have had two drs tell

me that

> > > > > > > serotonin resides in your head and your gut -but that

the

> > > > majority

> > > > > > of

> > > > > > > it is in your digestive system. I agree that a lot of

> > people

> > > > seem

> > > > > > to

> > > > > > > have no problems on anti-depressants -however I know

just as

> > > > many

> > > > > > > people who have had problems on them. Maybe they

don't all

> > > > feel

> > > > > > > nauseated, but just about every single person has

felt at

> > least

> > > > > > > something. We can go back and forth quoting studies

or

> > > > internet

> > > > > > > research but the truth is that I have been nauseous

from

> > every

> > > > anti-

> > > > > > > depressant I have tried and I find it hard to believe

that

> > > > there

> > > > > > will

> > > > > > > be one miracle drug out there that won't make me

sick. I

> > guess

> > > > > > I'll

> > > > > > > just leave it at that and stop looking for support

from this

> > > > list.

> > > > > > > Thanks anyway -Charisse

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Thank you, Joy!! It's nice to know that I was missed (y'all are like family to me!), but it's especially nice to know that the info I've provided was helpful to others here in the group.

I always try to subscribe to the "everything happens for a reason" theory, and since I've not yet found a reason for me having achalasia, I've decided that "so I can help others with what I've learned" is going to be my reason for having gone (and continuing to go) through all that I have the past dozen years. Rather than just let the baloney that I've gone through (quack doctor, then another one who had his own personal agenda that had nothing to do with "fixing" me and everything to do with getting his research published, etc.) get me down, I just let it be my motivation for "spreading the good word" to others.

I just hate to see others make decisions that they'd later regret (like I do now) simply b/c they didn't have all the information that is available. I shudder when I hear people say that their doctors are just telling them to do Botox, for example, without discussing ALL the various treatment options and ALL the research that shows likelihood of a good outcome based on various factors, etc. (Thank Goodness that Cindi didn't listen to her first doctor!)

I'm so glad that you are pleased with the care you're receiving at TCC. I just wish that I had known that TCC even existed (let alone that they had achalasia experts there!) when I was first diagnosed -- I honestly had NEVER heard of the place until I joined this group, and then I learned that they're ranked right up there w/ places like Mayo Clinic, s Hopkins, Cedars-Sinai, etc!!! I live closer to TCC than any of those other well-respected facilities, and yet I knew those names and not TCC's name! (And I honestly do NOT live under a rock, I swear it! LOL) After having two unsatisfying relationships with so-called "specialists" already, I was thrilled with the professionalism of the staff at the Swallowing Disorders Clinic at TCC, and now I can't help but sing their praises. I'm glad that you too had/continue to have a good experience there as well.

I think it's great, too, that you've gotten some Detroit people together for Meet-Ups! Probably one of the most awful parts of this disease is that you feel "all alone" with it.... thank goodness for the internet so we don't have to feel that way anymore, right? This is the BEST group of folks!

Perpetually-Pink-Pepto-Deb

Hi Debbie, I havn't mentioned it yet...but nice, oh so very nice you are surfacing again to post. I wanted to thank you again for referring me to CC. All the information was invaluable.Joy

[Guest guest]

You're very welcome, --- glad that it put your mind at ease!Deb

Deb wrote: -- Joan has already said it, but I will as well: don't worry about it!

Hi Debbi!

PHEW!!! I should have read a bit more into that! LOL I heard “tough skin” and read it on my report and had a panic attack! Trust me, that is all I need right now! LOL Thanks again!

Love and Hugs,

[Guest guest]

Deb,

Just be yourself. The Man Upstairs will take care of the rest.

Smile,

Joyce T, RN Atlanta

[Guest guest]

Hi Deb, I just have to pop in here and say you give me so much hope for my coming surgery. I, too have bone on bone and many spurs which cause a lot of pain. Sometimes in the night the pain is so burning hot that I can only cry, and I cannot depend on the knee. It will give out very easily. Other times, I am able to walk just fine but can feel the presence of weakness. 61 days and counting, til surgery.Lucky you didn'y have that cadaver tissue! They just uncovered a huge ring of people in the New England who were illegally marketing cadaver tissue and bones to hospitals. Really scary for all the recipients. I cannot wait for the walks I will be able to take in my beautiful area here. Visions of the walking will get me through the hard times and encourage me to do all the PT which I know is coming! Happy day to you, Marciareynawhitehawk <ReynaWhitehawk@...> wrote: Hi ,I had a LTKR on March 14th, I'm 6 weeks post-op. I'm 48, and was told for years I was too young to do it. In 2003 I had a high tibia osteotomy to try to buy some additional time before having to replace it. This did me no good. In fact, it did more harm than good, and left me in more pain!! At that time, that particular sports doctor was going to do a cartlidge transplant from a cadaver. At the last minute, that part of the surgery was canceled because several things received from the lab where it was coming from, were tainted with HIV. So we went ahead with the osteotomy only. The recovery from that surgery was worse than my TKR has been so far!!!!So now in Feb 2006 after 3 surgeries, I found a doctor who took one look at my xrays and saw that my poor knee was not only

bone and bone, but even more full of arthritis and bone spurs. He also agreed that quality of life is more important than age. I'm hoping I'll have great sucess with my replacement as have most of the others here in this group. It's alot of hard work, but I'm so looking forward to being able to walk and just lead a life without pain. One of the coolest things I saw, was my fist xrays after the surgery with the implant in. These was SO MUCH SPACE where I'd been bone on bone for so many years. I just sat there and cried.....I wish your husband much luck.Debra>> Hi,> New to the group. My husband is 44. In 2003 he was in an accident > and suffered a tibial plateau fracture. Had surgery, and has had pain > since plus

another surgery to remove some hardware. Went to a new > surgeon Friday who showed us new xrays that show he has no space > between the bones in his knee. In other words, no cartilage, bone on > bone. We've always thought he'd be facing a total knee replacement > but of course, due to his age, all the doctors want to put it off as > long as possible. I was trying to do some research on the web about > possible cartilage replacements but it looks like there is nothing > available in the US yet? Anyone have any information? Just seems > like this would be an option to the US by now. I was specifically > researching the elastomer type implants. Just trying to find any way > to minimize what he has to go through as he's been through so much > already.> > Thanks,> >

[Guest guest]

Thanks for your kind words...I do appreciate it.

As far as you think you are obsessed, wouldn't you rather be safe

than sorry?

The infection I have just happened to be on the same leg as the TKR.

It didn't get to the bone...but the surgeons did watch over it once

they realized it didn't heal itself. Guess that is why it was

operated on in March and last Thursday. For the first time in almost

6 months now I feel it will heal. Don't have a clue how long, but,

until it is totally healed I cannot go swimming, take a bath, go in

a sauna, etc. I wanted to work out in a swimming pool because I

have gained so much weight since November. In time I will!

Thanks again,

Val

> >

> > Well group...I finally see the light at the end of the tunnel!

> > Before I had a horrible infection that put me in the hospital

for 7

> > days having to take strong antibiotics. The wound was operated

on

> > again March 7th I think it was and again this past Thursday.

> >

> > The surgery this past Thursday was for other matters as well.

It

> > seems the vericose veins that I have had problems over the years

> > escalated when I had my TKR in Sept 2004 to the point where it

was

> > very painful for me to walk on the operated leg.

> > > Even though my legs are very bruised now from the surgery I

> already

> > feel the difference! No more pain behind and the side of the

TKR!

> No

> > more pain in the wound area! (guess they got the infection

totally

> > out this time!)

> >

> > Two out of three major pains aren't to bad!!! It has been very

> rough

> > going as it seemed to me that whenever I had problems, would try

to

> > explain them to anyone on boards...noone seemed to either

> understand

> > the predicament I was in...or care.

> >

> > I still have the pain near where the prosthesis is connected to

the

> > bottom bone..but will look into that next once I have

recuperated

> > from this last surgery.

> >

> > So, my opinion...if anyone has problems, keep going back to

> doctors,

> > if you feel that the doctors, medical staff are not helping you

go

> > to someone else. This has been going on with me since Sept 2004

and

> > I am beginning to feel better now.

> >

> > I was told that I will probably never find out where or how I

got

> > the infection. Ok, I can accept that, at least I got an answer.

It

> > still isn't healed all the way as of yet (size of a quarter) but

> its

> > getting there!

> >

> > Val

> > an american from Florida living in the Netherlands

> >

>

[Guest guest]

Hi Deb I am so glad that it has coole doff some.It is just awful how many people have died here in Ca.I am near stockton. I hope we do not have any more heat waves. sherriereynawhitehawk <ReynaWhitehawk@...> wrote: Hi Sherrie,Yes, it is SO HOT here in CA!!! I am so over this heat I can't stand it anymore. Over 110 every day. Everyone is so cranky and mean. Especially driving on the freeways...my commute is a nightmare anyway, but in the heat it's 10 times worse. I'm lucky I have A/C in my

office at work, the people who work in the wardrobe department partof the building were all the costumes are don't...they are all frying!!!We're in Acton, this small town in the foothills of the San Mountains, above Palmdale...35 miles east of Valencia..(where Magic Mountain is)and I commute 45 miles down to North Hollywood everydayto work. Takes me at least an hour in the AM, 1 1/2 in the PM.Where are you in CA??Deb>> I know what you mean about the temp I am in CA and it has been over 100 for 12 straight days it was 112 sun. I have to get in really early in the morning , sherrieGod bless all our heros PMSM LCPL JOSH India 2nd plt.

Groups are talking. We´re listening. Check out the handy changes to .

[Guest guest]

I lay on the bed lift my leg off the bed and bend knee pull knee to you. lower it on the bed and rest. You may want to call your doc and ask him to give you exercises. I have a recombunt bike now and use it everyday, if I had it to do over I would of gotten it before surgery. debDIANE WRISTEN <happyshopper717@...> wrote: Deb, I have plenty of time to get prepared for TKR. I live in a wheelchair at home, and use a walker to get to a few other places. I have gone to pot. I was wondering if you did the leg lifts lieing down or how ? Any other hints ? Diane Diane Happy Shopper

The fish are biting.

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[Guest guest]

I lay on the bed lift my leg off the bed and bend knee pull knee to you. lower it on the bed and rest. You may want to call your doc and ask him to give you exercises. I have a recombunt bike now and use it everyday, if I had it to do over I would of gotten it before surgery. debDIANE WRISTEN <happyshopper717@...> wrote: Deb, I have plenty of time to get prepared for TKR. I live in a wheelchair at home, and use a walker to get to a few other places. I have gone to pot. I was wondering if you did the leg lifts lieing down or how ? Any other hints ? Diane Diane Happy Shopper

8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut.

[Guest guest]

Good advice Deb. I got a recumbent stationary bike about 5 weeks before my surgery and I'm so so so glad I did. Anyone about to have surgery would do very well to get as strong as possible before the surgery.

No matter how hard it is to exercise now, it's that much harder after surgery. You're doing yourself the biggest favor you can by getting strong in advance.

>>I lay on the bed lift my leg off the bed and bend knee pull knee to you. lower it on the bed and rest. You may want to call your doc and ask him to give you exercises. I have a recombunt bike now and use it everyday, if I had it to do over I would of gotten it before surgery. deb

[Guest guest]

Thanks you are an angel.......I have GERD and a sensitive gag reflex...i

think the other big thing is the use of narcotics...just as when some people

are so drunk that they vomit in their sleep and aspirate..not sure if the

mechanism is the same.

Deb

From: spinal problems

[mailto:spinal problems ] On Behalf Of

Babbitt

Sent: Thursday, October 09, 2008 10:58 PM

spinal problems

Subject: Deb

What I've been able to come up with says that certain people are more

likely to aspirate: those with GERD, Obesity, sensitive gag reflex, and a

possible link with scleroderma.

To prevent aspirating in your sleep, don't go to bed with a full stomach

and take reflux meds.

I wasnt able to find anything about aspirating in your sleep. All the

references were in regards to anesthesia.

---

[Guest guest]

Deb,

I also wanted to say that years ago on HBO I saw a

special on cancer. Case after case the common thread

was that you had to be your own doctor. You had

to be able to research, to seek out and to speak up.

It was amazing. Parents for their children, women for

themselves, wives for husbands. It was stressed

over and over again. People saved their own lives

by doing this.

What I find about having a Naturopath on your side

is it is like having this great big book of knowledge that you would have no where else right at your

disposal and you can concentrate on the other

research.

Just thought of that and wanted to make sure

I passed it along.

More healing hugs,

Sue

[Guest guest]

You said you bought a FIR therasage mat that helps. Is it a large mat? Where

did you buy it...I think $400 is reasonable. Does it make you sweat? I am

trying to get insurance to pay for a Bio Mat professional, they said they would

approve it but I haven't heard from them yet. If not I will have to look for

something more in " budget "

[Guest guest]

I just switched doctors and my new G.I. was very upset when he read the list of

meds I handed him.I dont know why I thought it was okay and didnt ask

questions...well,maybe because every time my doc prescribes something to me,i

ask if it will be okay to take with the medicines I'm already taking and he's

always said yes.I am so...what?..naive,gullible?grrrr I am actually angry with

myself

>

> why are you on pepcid and prilosec?? it definately sounds like you are on too

many meds

> ~ in NC

>

[Guest guest]

hey Deb - don't beat yourself up too much - consider it a lesson learned and

remember to question EVERYTHING!!

> >

> > why are you on pepcid and prilosec?? it definately sounds like you are on

too many meds

> > ~ in NC

> >

>

[Guest guest]

Debbie wrote:

> ... The meds I'm on are .pepcid,prilosec,cardizem,reglan,

> and librax. My new doc says this is too many...

Pepcid is an H2 blocker (Histamine 2 receptor antagonist) and Prilosec

(Omeprazole) is a PPI (Proton Pump Inhibitor). Sometimes one medication

alone is not enough to reduce acid production to stop the effects of

acid reflux or other problems related to stomach acid. In such cases,

drugs from different classes are sometimes use together. There are

others in this support group that are taking more than one medication to

reduce acid production. Some people produce much more acid than others

and some respond less to medications than others. Again, this is one of

those one size does not fit all. You may or may not benefit by taking both.

Cardizem (a calcium-channel blockers) is a smooth muscle relaxer. The

problems muscles in achalasia are smooth muscles. This and other smooth

muscle relaxers are used for treating achalasia. They are used to reduce

the pressure at the LES and reduce esophageal spasms. The reglan is for

GI motility and is sometime used to treat achalasia related problems.

The Librax use may be related to pain, NCCP (esophageal spasms) or

stomach upset, or something else. I would hope you don't need all those

but I am not going to say you don't. If I were on all that I would

probably try to see what I could do without, if any.

Proton pump inhibitor failure--what are the therapeutic options?

http://www.ncbi.nlm.nih.gov/pubmed/19262545

" ... adding an histamine 2 receptor antagonist could be a successful

therapeutic strategy. ... Treatment of PPI failure due to delayed

gastric emptying should be focused on improving gastric motor activity.

Psychological management may supplement any medical or surgical approach

toward PPI failure. "

(Interesting quote in consideration of the reglan and librax.)

Esophageal Hypersensitivity

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2950665

" Patients should not be told that their symptoms are just in their minds... "

(The quote is related to antidepressant use.)

We don't tend to think about the possibility of hypersensitivity in

achalasia because we worry more about reduced sensitivity from nerve

damage that could lead to acid damage before we are bothered enough to

do anything about it but there are times hypersensitivity could be a

problem.

On that note, I just happened to find this item of interest, not that it

has a lot to say directly about achalasia or the drugs in question.

Brain activity following esophageal acid infusion using positron

emission tomography

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2988243

" Emotion-related brain areas were activated by esophageal acid

stimulation. The orbitofrontal area might be involved in symptom

processing, with esophageal sensitization induced by repeated acid

stimulation. "

Things may be more complicated than they appear.

notan