Re: Re: knot_weed Was: New in here.request for help-

[Guest guest]

I do the coil machine , the silver , the ldn, do no tknow about this protocol ,

jus tknow that for neuro symptoms paralysis the coi l as been the first with

silver to act definitly on th eparalysis know also tha thti sdesease is hard to

beat and very long and everybody is searching for what works for one person

that

would not work for an other except the coil tha tlook slike works for every body

or clos etoo.  On lyme_and_riffe     forum no sales.

Hope this help Marie

 

________________________________

From: karend27 <karend27@...>

Sent: Fri, March 11, 2011 2:10:16 PM

Subject: [ ] Re: knot_weed Was: New in here.request for help-

 

knot_weed:

I really appreciate your comments in various emails from yesterday, like the one

below. I am recently infected (i.e., less than a year) and by far the worst part

of this whole experience for me has been trying to sort out the various agendas

of all parties involved with this disease. I've found that most of the groups

who support the diagnosis of " chronic lyme " have only one goal - advocating

long-term antibiotics as a cure, and protecting the docs who prescribe long-term

antibiotics. And then there are all the doctors who seem to have a commercial or

egotistical interest in promoting a particular type of treatment, when, as you

say below, NOTHING is proven. It's just as bad on the other side of course (IDSA

etc.). But I just wish there was a bit more honesty and cohesiveness in the

groups that supposedly support patients with chronic lyme - and that would

promote real research in the manifestation of this disease, for me that would be

figuring out whether this is an immune problem (i.e., the body is fighting an

active infection), or auto-immune type of problem, and trials of treatments that

pass peer-review.

For example, I saw one doc who prescribed me with 5 months of antibiotics. Last

he heard I was doing well. But I have not seen him since - does he consider me

cured? One of his success stories. This same doc has published an article on the

results of his treatment, I think it was 20% cured, 70% showed improvement, 10%

no improvement. To me that doesn't sound much better than placebo.

I found myself on website the MS society, envying people who had these folks as

their support group. Yes I know there are controversies with MS, diagnosis,

treatment, etc., but the scope and clarity of the information provided there is

amazing - everything from excercise plans, how to deal with work and a chronic

illness, mental issues, etc.

Anyway, thanks again for your comments, and your research/reading on Lyme - I

really appreciate you and your comments as a resource.

> >

> > as Buhner says in his book that they have 95% success in the treatment.

>

> success in this case is 'improvement', NOT cure. Read what he has said about

>this on the Planet Health pages and elsewhere. The 5% with no success are

people

>who do worse on the protocol. Even someone who sees a very small benefit is

>counted as 'success'. I don't object to that because if you are very ill, every

>small improvement is good.

>

> I have read elsewhere that about 25% are supposed to be cured completely with

>Buhner protocol (my guess is that most of these are people who were ill for

>shorter period, and probably a significant group who did not have Borrelia

>infection at all), about 50% show good improvement but no full cure (e.g. have

>to stay on the protocol) and about 25% have little or no improvement or adverse

>outcome.

>

>

> These success numbers are similar to those from many other treatments (e.g.

>ABX).

>

>

> Only a few alternative treatments claim close to 100% cure rate (for those who

>believe in magic, IMHO). E.g. in my country bioresonance practitioners (a bit

>similar to Rife in the US) claim 100% cure rate from Lyme. Despite this claim,

I

>haven't been able to find ONE example of someone with proven Borrelia infection

>who was fully cured with this treatment. Often it works like this: the patient

>gets ten very expensive sessions, and if they don't return after that they are

>assumed to be 100% cured. It's that easy ...

>

> P.S.: I know that a large chunk of the 'ABX cure for Lyme' stories are

similar,

>the docs use the standard treatment and never check the condition of their

>patients in 1, 2, 5 years. And if they still have problems after a year, it

>cannot be Lyme - by definition. Even a lot of the official medical research

>works like that.

>

> > Hope all will calm down at least a little so that I can exist normally, or

at

>least like before treatment.

>

> Don't get me wrong. You CAN improve a lot, things can calm down. But if you

>have been ill for 1-2 years (in your case this is not too obvious to me, as

most

>of your earlier symptoms are not necessarily due to Bb or Bart) getting back to

>your condition before you got infected is a stretch. If only because treatments

>tend to take years, and during these treatments you age, which statistically

>introduces new problems.

>