Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 Does anyone know why my muscles fatigue as soon as I start using them? I could be lying motionless and lift my little finger. That would be enough to tire me. It is so bad that I cannot take care of myself and must live in an assisted living home. I also have more than one kind; there is a deep fatigue that never goes away in addition to the the " instant " kind that is the result of activity. You could call them chronic and acute forms of fatigue. Anybody else experiencing this? BB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 BB, I am so sorry to hear this. I can relate as I lived in assisted living for a while after getting so weak and fainting and falling down my stairs that I had to give up my house for safety sake. I know this double edged fatigue. In fact it has 3 edges. The mental fatigue is very bad when we get into this state. There are many things in the CFS/FMS et al SOUP that cause this. One that is more controllable than most is medications. With all this fatigue and brain fog, I was in a Serotonin Syndrome (SS) from a combination of 3 medications that can really do a number on your re-uptake. There are several medications that add to fatigue and some combinations can make extreme fatigue a routine thing. If you have a pathogen bases in your chronic illness and some mal-absorption syndrome then chemistry in your cells and fluids are your enemy. When I was in this state my brain was as if fried and my family thought I was mentally illness. Have you discussed this with your doctor? And have you reviewed all your medications? Your blood levels need to be checked for the basics and your hormones. It takes a spinal tape to find the high levels of serotonin that indicate SS. If your medications are in the high range and you use things like XANAX, Ultram and Trazodone along with a SSRI like Prozac, than a hard long at the SS possibility should be done. You can find reading on this syndrome by searching the web. A lot of doctors are not aware of the SS or the way these medications will interact. Rarely will a drug interaction review show the possibility. The makers of Prozac do know of this and I have talked with them. But few cases ever are reported to them. This can happen with high doses of any SSRI and or combination of drugs that work on serotonin levels. It can be fatal if not correctly and the levels keep rising. My flare at that level lasted 2 years and after leaving assisted living I had a nurse in for a few hours and also found I needed oxygen 24 hours a day because I was de-saturating day and night to levels that deprive the brain and the heart. If you can not follow up on this because of the fatigue, get someone who is assertive and able to follow thru to help you investigate this and work with your doctor. Shalom, W -----Original Message----- Does anyone know why my muscles fatigue as soon as I start using them? I could be lying motionless and lift my little finger. That would be enough to tire me. It is so bad that I cannot take care of myself and must live in an assisted living home. I also have more than one kind; there is a deep fatigue that never goes away in addition to the the " instant " kind that is the result of activity. You could call them chronic and acute forms of fatigue. Anybody else experiencing this? BB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 That is the question of the century and many believe defines chronic fatigue syndrome. Not enough " energy " is getting to your cells, but why and how to fix it ??? There are treatable causes such as thyroid and adrenal problems. My post exertional fatigue was significantly improved from thyroid medications. Doris ----- Original Message ----- From: bb5381@... Does anyone know why my muscles fatigue as soon as I start using them? I could be lying motionless and lift my little finger. That would be enough to tire me. It is so bad that I cannot take care of myself and must live in an assisted living home. I also have more than one kind; there is a deep fatigue that never goes away in addition to the the " instant " kind that is the result of activity. You could call them chronic and acute forms of fatigue. Anybody else experiencing this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 One factor that can cause severe fatigue is Vitamin D deficiency. When Laurie was doing the MarshallProtocol.com, she found that her muscles became very weak (but energy went up) - her muscles became so weak that she could not fold sheets without great pain. There was no problems prior to starting the MarshallProtocol.com (which encourages people to become vitamin D deficient). We track the cause down to severe vitamin D deficiency -- some researchers feels that a % of CFS is misdiagnosised Vitamin D deficiencies. Well, she opted off MP.com and added vitamin D to her supplements, and her muscle weakness disappeared quickly. As we added more vitamin D (we have worked up to ~4000 IU of vitamin D per day), there has been the disappearance of a number of symptoms, including increase of body temperature. At the moment we are looking hard at mineral and nutrient deficiencies -- how much is needed to correct it (RDA does not correct a deficiency) and what the ideal levels should be. There appears to be no significant studies in this area (there was one small study on 4 patients published in the CFS Journal). There have been many surprises -- like some Vitamin books claiming that going over RDA for any nutrient is dangerous! while the nutrition specialists are advocating minumum levels that may be 5x RDA for healthy individuals, and 10x RDA for correcting deficiencies... One of the interesting thing that I came across today was that Boron availablity is based on pH -- thus a change in pH can cause boron deficiency (not because it is missing from food -- but because it cannot be extracted from the food due to pH). > That is the question of the century and many believe defines chronic fatigue syndrome. Not enough " energy " is getting to your cells, but why and how to fix it ??? There are treatable causes such as thyroid and adrenal problems. My post exertional fatigue was significantly improved from thyroid medications. > > Doris > ----- Original Message ----- > From: bb5381@a... > Does anyone know why my muscles fatigue as soon as I start using them? I > could be lying motionless and lift my little finger. That would be enough to tire > me. It is so bad that I cannot take care of myself and must live in an > assisted living home. I also have more than one kind; there is a deep fatigue that > never goes away in addition to the the " instant " kind that is the result of > activity. You could call them chronic and acute forms of fatigue. Anybody else > experiencing this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Hello all - Just thought I'd ask - does anyone else ever occasionally become overwhelmed with an almost disabling feeling of fatigue from time to time? Rather recently I seem to sometimes be hit with a feeling of startling weakness which essentially renders me worthless for the rest of the day... This is a symptom that seems unique and is something I hadn't been experiencing before - Thanks, and hope people are doing well - Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Yes, I have had that a couple of times. It always comes when my doctor says I'm dealing with a coinfection. I think our body has the capability of drawing things out to be fought for a period of time. It usually lasts a few days for me and then I wake up one morning feeling much better - like I won the skirmish. I had five days a couple of months ago when my body simply shut down at 2:30 in the afternoon. The last day of this I was sweating all over. The following day I woke up at 6AM and feel energetic all day long. My doctor said I was fighting a coinfection at that time. It might be a sign that your body has what it needs to fight something big time. At least that's what it was for me. Wishing you the best. Hope you're feeling better very soon. > > > Hello all - > > Just thought I'd ask - does anyone else ever occasionally become > overwhelmed with an almost disabling feeling of fatigue from time to > time? Rather recently I seem to sometimes be hit with a feeling of > startling weakness which essentially renders me worthless for the rest > of the day... This is a symptom that seems unique and is something I > hadn't been experiencing before - > > Thanks, and hope people are doing well - > > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 I've been getting this too recently. I find it interesting that whenever I develop a new disabling symptom, there's always someone on-line commenting about the onset of that same symptom. Makes me wonder whether lyme spirochetes can communicate with other spirochetes across great distances. As if some lyme " home office " dispatches a new symptom. Either that or else there are viruses going around that manifest as specific symptoms in Lymies. But the real significant coincidence here is that we're both named Steve. don't mean to make light of it - yes, I started this new symptom last week - perhaps Tuesday. It's overwhelming and devastating. I find that a shower helps. no idea why. Also, if i can manage to drift off to sleep for a few minutes, it disappears. but when it happens and I'm on the street (NYC in my case) I feel like i'm in big trouble and it's terrible. also having accompanying brain fog and feel like I'm in a trance. muscles get heavier too. Steve On May 10, 2008, at 6:09 PM, dharmabum1974 wrote: > > Hello all - > > Just thought I'd ask - does anyone else ever occasionally become > overwhelmed with an almost disabling feeling of fatigue from time to > time? Rather recently I seem to sometimes be hit with a feeling of > startling weakness which essentially renders me worthless for the rest > of the day... This is a symptom that seems unique and is something I > hadn't been experiencing before - > > Thanks, and hope people are doing well - > > Steve > > > ------------------------------------ > > Buy Healing Lyme: Natural Healing And Prevention of Lyme > Borreliosis And Its Coinfections by Buhner at one of these > locations: > http://tinyurl.com/3bgm5d > > Lyme Disease News continually updated from thousands of sources > around the net. http://www.topix.net/health/lyme-disease > > MedWorm > The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 I often get a sudden feeling of " hollow " weakness and / or also a bone draining fatigue like I cant move or Im in a pressure chamber. I also have often overlapping with this a sense of numbness like my inner core is dead or dying...NOT panic or anxiety--just as if I can see a gauge or meter measuring " life force " it would read very close to empty!!! when all 3 are together--its a BAD day (lol) Often Bartonella ( and Lyme too) does strange things with brain chemistry and these feelings often come with other Bart sx so I wait it out--if they last for a few days Ill call my LLMD to assess the sx.. try not to be anxious over it and ride it out--if you can sense anything specific or have sx changes write them down--the patterns may mean something. Journal or brief notes on a calendar--waht you feel, where, what sx , what meds taken and when etc etc will help sort it out ( sometimes) I hope your stuff passes---until it does, do very mild exercises( even small stretches) and dont overdo it or try to force it away--a bad idea that can backfire. good luck Finette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 I have to say, you just nailed it flawlessly - there's absolutely nothing I can add to your description - it's already all right there - all I can say is that it gives me some sanity to hear other of other people who are living thru similar things... Thanks for taking the time to write..both Finette and Steve in NY... - Steve in Boston > > > > > I often get a sudden feeling of " hollow " weakness and / or also a bone draining fatigue like I cant move or Im in a pressure chamber. I also have often overlapping with this a sense of numbness like my inner core is dead or dying...NOT panic or anxiety--just as if I can see a gauge or meter measuring " life force " it would read very close to empty!!! when all 3 are together--its a BAD day (lol) > > Often Bartonella ( and Lyme too) does strange things with brain chemistry and these feelings often come with other Bart sx so I wait it out--if they last for a few days Ill call my LLMD to assess the sx.. > > try not to be anxious over it and ride it out--if you can sense anything specific or have sx changes write them down--the patterns may mean something. Journal or brief notes on a calendar--waht you feel, where, what sx , what meds taken and when etc etc will help sort it out ( sometimes) > > I hope your stuff passes---until it does, do very mild exercises( even small stretches) and dont overdo it or try to force it away--a bad idea that can backfire. > > good luck > Finette > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 I get hit with the unexpected fatigue and it is always so discouraging when it happens; I never know when it will happen either. If I fight it I become more cognitively challenged. I try to describe it to others as how one feels just before or after getting hit hard with the flu ... extremely fatigued and easily confused. I do know that stress affects me, any stress, good or bad. Also the weather affects me: if it is hot and/or humid. Lack of fresh air affects me, as do fumes & odors. But sometimes it just seems to come out of nowhere and I never know when it will happen. Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Finette, I always thought of that feeling as if somebody suddenly sucked out all your energy and all circuits are off. A horrible sensation. Dagmar **************Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
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